Multiple Sclerosis and Progression: WHAT IS IT

[@billielewis5562]

Your so right, I haven’t relapsed in years (ty tysabri) however I can’t write properly anymore, I put random letters in a word that just happens by its self!🤷‍♀️ I look at someone I know and I just don’t know there name! I lose track of what I’m saying! I have to figure out it my head how to construct a sentence before I say it. It’s scary, I’m only 28, what about when I’m 38?! However, I’m alive, I’m breathing and I’m living the best I possibly can so I thank god for that. Good video seb as always 😊 thank you 🙏

[@richamishra5173]

You damn right about accepting your MS. It is very important for all MS patient to understand that progression will never stop, it can only be delayed. The sooner we get in terms with this understanding, The better it is to accept MS treatments. I am RRMS patient since 2017. I accepted MS progression in very hard way. In just 4 years i had 4 relapses. First 3 years went smooth and that gave me very easy attitude towards MS and i discontinued my MS treatment. It impacted me in 2020. In just 1 year i had 3 relapses and it was so much for me. Treatment kept changing, my body was set for roller costar ride. We need to understand, each disease delaying treatment has its own side effects. Dealing with so many changes in one year with coronavirus making us sit at home was overwhelming experience for me. Please don't take MS lightly.

[@LifeofSebMS]

Thank you for your support!! It is so important for everyone to understand this 🧡💪🏻

[@arr2820]

It is different for all of us. Some people may not be affected too much.

[@KaitCervi]

You were not dramatic. This is very important communication that people need to hear.

[@LifeofSebMS]

Thank you! 💪🏻🧡

[@sharonhenderson5999]

Prayed for you, Seb. This walk with MS is very hard, 22 years Dx. I know personally that if I didn’t have a relationship with Jesus Christ, I couldn't make it, and I know that I'm nothing without Him. This is hard, extremely hard, but let's try to see some good, somehow, and in some way. Even in the beauty of a sunset! Let us all be grateful for the things we are able to still do and not focus on what we used to do, but no longer can. (This is a message to myself as well) God Bless!

[@LifeofSebMS]

🤗🧡

[@michaeloesterle6652]

Diagnosed at 40, 6 years ago. Looking back I had symptoms all the way back into my early 20’s. Didn’t take it seriously then. Now I have a hard time walking and with my balance. Don’t let it go or it will take over.

[@bojanbojic9230]

Hi there dear Seb 🙏 My first signs of ms were in my 34 year. Diagnosis was when I was 37 yo . Now in my 39 I can walk, and work physical jobs. I work out chinese qi gong, and especially tai ji. MS mostly hits my brain, and emotions, more than body. Be well

[@AuntTooters]

Seb, Rick here. It is very hard when the realization hits you. I think it has hit you now ❤ It took 15 years between my first symptoms and diagnosis. 15 years of brain damage without a DMT. I have many lesions (none new) and am on Ocrevus now. My hope is that the Ocrevus will help slow my disability. PT and other external treatments for my disability are in my future. DMT's at diagnosis are critical! Big hugs to you!

[@arr2820]

Some do well without dmts for 30years, some go down with dmt's in 5 years. Everyone different. You just have to learn your limits, and do "good" things for keeping the MonSter calm.

[@manuelasantos8359]

Hugs to you. Hard!!! You are strong!!! Not dramatic... A lot of prayer to you

[@andyandanthony6523]

This is extremely scary. I was diagnosed Thursday. I can't even wrap my head around this!!! I'm absolutely devestaed with this. I just went in to find out why my migraines and leg tingling was not going away. They said it was low back disc herniation. The MRI was just to rule out anything. And they found lessions...I'm Terrified.

[@richamishra5173]

Don't be scared. Have faith in your treatment and be positive. Any medication in MS will have side effects. Don't run away from side effects. Acceptance is required and more than that have faith in your doctor. And one more piece of advice, start saving money just for your health or have insurance ASAP. You need good bank balance to fight MS.

[@susanharrisdemorales3446]

This is the disease of a thousand and more faces. My son has it. He had a terrible time at 19. Now he is 37. At 20 he literally fought his way back to life. And what a life!!! He has always taken the advice and treatments recommended with discipline. Find and trust a good neurologist. My son also does regular physiotherapy practices interval fasting, eats very MS healthy food and does lots of good physical exercise. He squeezes all the best out of life. At 19 his condition was so bad, a doctor told me, I should prepare for the worst. He had been in an intensive care unit as a very rare case for nearly 3 months at just 19. I was so devastated. The next day, the same doctor mentioned this"disease of a thousand faces" and said "anything can happen." And it did!!! After inflamation finally withdrew, goodness knows how!!! as mentioned, my son started to fight to get his life back, in a rehabilitation clinic. To cut a long story short, two years after, he ran a Marathon, he had managed to get his driving license, he then studied for his masters degree and now he has a job he loves and he lives with his symptoms eg. balance problems, fatigue, ( intermittent fasting helps a lot). He basically lives with MS, not against it. Take it on board as part of you and don't let it destroy your life. As a tip, I myself have been trying out Wim Hof cold showers and breathing techniques, which are amazing. I don't have MS, but I'm not the youngest any more!! I'm sure my son is going to try the Wim Hof Method too and there are a couple of cases of MS sufferers doing the same. Google it and you can see what you think. Well. I never wrote all this before on any social Media. I am doing this for you. I remember how scared my son was and I really feel for you. I hope He doesn't mind. Your life is very, very special, never forget that. I wish you masses of strength, hope and the best possible outcomes. You will be amazing!! There are so many ways to live a life!! Go for it! ♥️

[@LifeofSebMS]

Stay strong!! 💪🏻🧡

[@ug8512]

I am one of those people sadly, I said all those things. I wanted to act like my MS didn't exist. Now I have hit rock bottom and after 2 years am finally looking into treatment. Thanks for this

[@LifeofSebMS]

Thank you for sharing! You’re making the right choice 💪🏻

[@roberthernandez9148]

Hi Seb, I’m Robert from the US and I too was diagnosed with 20+ lesions at age of 19. I’m sorry to hear that the MS is progressing and not getting better. My very first treatment was COPAXONE and it didn’t help me at all, just caused pain that I live with today. The second treatment I tried and that I currently am on is Ocrevus. Ocrevus had been nothing but great for me to the date, a bi-annual infusion.

[@astridgarcia9725]

Robert, im in Ohio and im about to start treatment....after a month of my diagnosed in december ....i choose Glatopa that is the bioequivalent as Copacson. My insurance approved for a year. Some guide that you would like to le t me know i have to know?

[@roberthernandez9148]

@@astridgarcia9725 hi Astrid, I’m in LA and the treatment I’m currently on is called Ocrevus and it’s an infusion done every 6 months and it has worked perfectly well for me. The Ocrevus works best for those with RMS or PPMS, you should ask your neurologist about the medication and ask if it’s a possibility for you.

[@astridgarcia9725]

Thank you so much. Have a good day and keep safe out there.

[@81MercTurbo]

All of this... thank you for sharing and cementing these points... I know that my remission is because of my DMT... the side effects suck, the injections suck, but keeping MS at bay is paramount... I will stay on top of this as long as I need to.

[@lauracarlson9260]

That is only 1 step ;-) don't think that you can just do your DMT/a drug and it can overcome everything else in your life- also eat clean, exercise, don't smoke, avoid stress, keep vit D levels betwen 50&100, get your sleep, etc. etc. Too many people think it is as easy as taking a pill. That isn't all you can do - or should do ;-) I'm with you on the attack with O.

[@MM-sh7dk]

Hi Seb. Good post. The MS professor who writes on Barts Blog gives the same advice for the same reasons.

[@mikemoon8037]

I admire your outlook. You state the hard hitting clear-cut truth. This you can't hide!!

[@samiam3291]

You are so right! The truth sucks but it will set us free. DMT are a no brainer.

[@venizaviray1451]

Hi, my friend had MS like 10 years ago. Her pain was too much and she needed to have a pain patch that is very strong. She decided to have stem cell treatment and as in the next day she was able to walk without difficulty. Tho because of the auto immune, she developed other diseases like hypo thyroid but that treatment changed her life . Just want to share

[@LifeofSebMS]

Thanks for sharing 🙏🏻🧡

[@TP4F]

Thank you once again for delivering important facts in a sympathetic way (I tend to be a bit of a brute when faced with people who are skeptical of DMT’s.).

[@elizabethrather1698]

it's a nightmare..diagnosed 2005/fought the fight for years/ kind of made my peace/ somewhat..don't hace any faith in drugs..done tham all....I will study your channel and see what's what ..maybe learn something new..with thanx.

[@LifeofSebMS]

Hey Elizabeth, welcome! Hope you get some useful information from my channel 🙏🏻🧡

[@gr8omar129]

I was kinda lucky to catch it early, currently 16 and other than cog fogs and double vision. My mental health is all over the place and I'm seriously starting to fall. But I really do hope that you guys have good luck dealing with it.

[@LifeofSebMS]

Stay strong!! It’s a long and difficult journey but you can make it 💪🏻🧡

[@goddess.110]

Its so scary. I admire you

[@fabiolavelasco4979]

Seb, mi agradecimiento profundo por este vídeo. Es indispensable que nos lo recuerden para poder hacerle frente al miedo a tomarnos la medicación. Finalmente, empiezo copaxone en agosto. Un abrazooooo!

[@LifeofSebMS]

Te deseo lo mejor! 💪🏻

[@krystalaustin142]

Have you heard of doctor Terry Wahls? She reversed her ms through her own way. Just like you said try everything to stop the progression of ms. I haven't tried her program exactly because I just found her, but I have stuck to something sooo simulator that helped me and other people I've known with other autoimmune disorders. Sending good vibes!! 😄

[@arr2820]

She has done hsct

[@LifeofSebMS]

Yes I have but I could not stick to her protocol I’m afraid…

[@shannondiaz73]

We thought my boyfriend had that progression but thank God he doesn't ❤ He had Ms for about over 11 years before he found out 😢He was training for a marathon ( walking) in the summer so he's body just gave up and collapsed on a bus bench ambulance came n got him he was in the hospital for over a month doctor's told him he wasn't gonna be able to walk anymore 😢😢😢His doctor uses his MRI pictures whej he does conferences because he says that he has never seen a patient with so many spinal cord and Brain lessions that can still walk 😊So with that being said my man is still standing and fighting for us his family ❤😊 I go into depression just thinking and not knowing what's coming next 😢is he gonna get worse anytime soon ? Is he gonna die in a few years? 🥺I don't know 😞 all I know is that I love my man with everything I got I pray to God for his recovery 🙏🙏🙏❤️😢 Love ypur videos thank you so much Gid bless you always and forever 💕

[@LifeofSebMS]

Hey Shannon, I’m so sorry about your boyfriend! Rest assured that MS is not something you die of, so all you can do is make sure your boyfriend follows the treatment as recommended by his doctors!! Let me know if you have more questions 🙏🏻🧡

[@shannondiaz73]

@@LifeofSebMS thank you so much for making my day 😘❤️😘❤️ I keep thinking that his gonna die quick because of the Ms 🥺 now I can move on from that 😀❤️he is very careful about what we eat we try to eat everyday healthy but sometimes we break lol But I've known him for over 8 yrs and I can see that MS is catching up 🥺😔. His right arm and leg are losing the strength 🥺🥺🥺He uses a leg brace for foot drop it does help him. I just want to say thank you so much for your videos 💓💓💓💓

[@LifeofSebMS]

Be strong for him 😘🧡

[@shannondiaz73]

@@LifeofSebMS thank you Seb 💓😘

[@LifeofSebMS]

🙏🏻🧡

[@PhanstmaDelMar]

DMT can be important but not only way to slow progression. There has been substantial evidence on diet and lifestyle changes. Dr. Wahl’s out of wheelchair and no longer DMT. I haven’t been able to afford meds for years but have been steadily progressing gaining back abilities.

[@arr2820]

She has done hsct

[@LifeofSebMS]

Really? I didn’t know.

[@arr2820]

@@LifeofSebMS she has done some sort of chemotherapy for sure

[@LifeofSebMS]

🤔

[@arr2820]

@@LifeofSebMS she has too much marketing on what she is doing. I personally like channels here "Steve beats Ms"(I guess it is how ot is called), Bob Cafaro's channel. They all give details of how they keep ms calm. Also very informative channel of dr. Brandon beaber.

[@amarcelous]

REAL TALK!!1

[@bonsaigardening8845]

Love from Pakistan ❤

[@indie5826]

Welll said , same for me, it creeps up on you

[@shahilagh]

It is funny .... when I m better I think I never had any problem ...........

[@amarcelous]

HARD TRUTH

[@NightMonsterMC]

Hi seb are you still able to work for a living? If so what do you do?

[@paolobanchero8454]

hello ..i tought you've been in a remission...sorry if i cant understand your video cauz english is not my first language...i had watched your video that you said your ms has been in a remission state..so do you mean, it relapse now???

[@LESFLEURSDUSOLEIL]

still so many testimonies from people who overcome like dr terry walsh

[@LifeofSebMS]

Thanks 😊

[@fabiolavelasco4979]

Y espero que tu tratamiento haga lo suyo y frene la progresiôn de la enfermedad para ti :)

[@LifeofSebMS]

🧡

[@MrArtisticjay]

have you done AHSCT or have you considered it??

[@gabbyfranks78]

Miss ya

[@antonyklipper621]

Have you ever considered HSCT?

[@LorindaAB]

Do you follow the wahls diet? Or any other diets?

[@LifeofSebMS]

Not anymore… I’ve chosen to eat clean and non-processed but without a clear pattern 🙏🏻🧡

[@krikrix16]

what about stem cell treatment?

[@LifeofSebMS]

I’m not quite there yet… the thought of that treatment scares me too much unfortunately:(

[@mary-vy3mo]

​@@LifeofSebMSIt is only thing that is able to stop progression...only because it can give normal brain atrophy.. see "normal brain atrophy after hsct for ms" see "tysabri brain atrophy ms news today"

[@jfjf1256]

Do you have contrast injected when taking a MRI?

[@LifeofSebMS]

Yes

[@lawnerddownunder3461]

How much more was visible with the contrast? I have multiple WM lesions discovered about 5 years ago but no one has ever wanted to use contrast. I just get blown off every time I mention new weird symptoms and usually told it's all anxiety 🙄

[@LifeofSebMS]

My doctors don’t tell me what is from contrast and not. I just get a general number with a description of new lesions.

[@eduardoalonso3198]

Vivo en Barcelona soy gay tengo esclerosis múltiple remitente recurrente no encuentro.personas gays con esta enfermedad

[@LifeofSebMS]

Hola Eduardo, yo también vivo en Barcelona y soy gay. Las hay las personas gays con EM, solo que igual no son tan visibles por la presión que existe en el colectivo!

[@eduardoalonso3198]

@@LifeofSebMS muchas gracias por responderme