Multiple Sclerosis Life Hack: Paradigm Shifting

In this video, I discuss how paradigm shifting is a critical skill to master to live your best life despite a chronic condition such as Multiple Sclerosis.
Frustrated with your MS care? Paradigm Shift! The Boster Center for Multiple Sclerosis accepts all major insurance carriers and is currently enrolling several MS clinical trials! www.BosterMS.com or call 614-304-3444 to schedule!
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COMMENT with your thoughts and questions below on paradigm shifting! I look forward to reading and responding!
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NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS t(this video for example is about paradigm shifting) o help educate others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys! Paradigm Shifting

[@mikeecko]

I've never heard of paradigm shifting. But honestly I have always thought that way. No matter what I've done in life I have always approached things like this. Then in my construction job this would come into play every day. "Work smarter not harder" I don't know who came up with that phrase but I've always used it. Now with having MS since 2019. Everything I do is well thought out before I do it now.

[@dr.froghopper6711]

Construction work is a constant state of adaptation! Plans are drawn up, engineers get lauded-but the guys building the “thing” are the ones that actually make it work and bring theory into fact, functional fact. Construction workers, for the most part, are not the dumb brutes they’re often depicted to be!

[@jcol243624]

I have all my life too

[@shel4697]

Definitely!

[@maryblick944]

Yep….me with MS mow the front and my husband does the back. But also my motto “screw the lawn”. It can go a couple more days 🤣

[@dr.froghopper6711]

I have to attack my garden right before sunrise and get it done before things get hot. Man points mean doodley! FOOD is what matters. I live in the desert, central New Mexico, 5000’ in the air. Sunburn is a threat. So everything is wrapping up around 10:00 AM. I’m turning bare dirt into soil, capturing carbon underground, bringing abused dirt back to life. All of this is therapy! Mentally, physically, spiritually-I grow and learn and adapt. I’m 65 and I’m not giving up until I’m dead. I’m extremely rural and don’t have access to much of the stuff you discuss. But we don’t quit just because things get kinky!

[@missyholz]

I stopped working in 2010 and my employer fought hard against most accommodations. Should have more success now for sure!!

[@susanfabian6234]

Bury the ego and use the assist device. I don't care what other people think, I just want to keep moving. I have other dependents and without me they will suffer. Do what you can when you can, that's my approach to dealing with life with MS.

[@judidixon6948]

Same here, never heard of paradigm shifting. My downfall is starting activities and not listen to body. Happens about once a month. Usually after Ty infusions. Walking aides- not modest. I’ve fallen with my kids 15 yrs ago. Have cane/chair walker will travel!!!

[@hilarykerr8912]

8 years on with MS and still working, finding it harder now though. I tend to get annoyed when cognitive function plays up because I need it to behave itself because I work with students.. 😮‍💨😃👍👍👍

[@AaronBosterMD]

Well said!

[@bonnies5651]

Paradigm shifting was second nature to me because I’m a problem-solver. I no longer focus on appearances and instead use every tool in my tool shed to be able to continue doing what I enjoy doing. Last year I had to change how I garden and now use 20” raised beds and containers and had to use the wheelchair to get out there.

[@AaronBosterMD]

Well said!

[@ragub6]

"Exercise" - For Muscles & Vanity in college, became movements to all joints for flexibility/balance now Work - In the 15 years after diagnosis, Prism glasses for vision, Walking aids, Planning emptying bladder & have fiber rich diet for Bowel, Lot of naps in between work (WFH) and when finally "Memory/Cognition" were giving problems, had to retire (Not fully because of others) Chart on general progression of disability over the years, helped plan for early retirement/Insurance - Doing well, then came Covid - Messed up my flare free life (of 5 years) 😰

[@ope4r540]

Dr. Boster, remember when you recommended we join a support group to help us belong to a community dealing with MS. I posted that your Live Chats are my support group. This was where my energy level was adequate enough to log onto KZbin and be aware of your calling for a Live Chat. No alarm to wake me up, shower, dress, commute and engage with others. Just visiting family and friends feels taxing on my body after the visit. So be alert for the live chats placed me straight on the MS community scene. It’s great reading others comments or offering suggestions to others who post questions. This is a small shift, but it helps me emotionally and physically. My best to everyone for better days!😉💛

[@suenorton-bates9859]

My dad was disabled from birth so I grew up thinking disability was normal. I am spms and 25 yes since dx. I have electric wheelchair, outdoor scooter, walker, stairlift. On really great days I just walk right passed all the equipment but at bad times they all help me lives. Having four dogs I have trained to walk with either scooter or wheelchair, people's reactions is wonderful, most stop and talk. I do not bother if people see me using any aid and on the very odd occasion someone has been rude or nasty I just stick my nose in the air and go on my way. I love photography and using a chair or scooter makes me look at different angles, the results are really pleasing. Not to mention its much easier to carry and equipment!

[@mistycross3844]

Thanks. I needed this today! I've really gleaned a lot from your videos. I just got my second MRI workup that was most concerning for ms just last week. My Dr has just about ruled out all other sickness. I've got 2 weeks before I actually go in for a diagnoses. I think I've had ms for years. Just so glad they found the problem and there is hope. I get seizures as well. Recently I've gotten such bad vertigo that I had to get a cane at 44, almost 45. It can be embarrassing but it's better than falling. I'm learning to pace myself. I'm a go getter but my get up and go is gone. I'm a mom to 10 and it's been a hard adjustment. I'm thankful there is hope and there are awesome resources out there to help me.

[@ezaserrano4677]

MS is truly all about adjusting how you do almost everything to insure your safety. I really didn’t want to use a shower chair at all and even convinced myself that it was dirty. However, once my occupational therapist taught me how to use a shower chair effectively and safely, I now feel much more independent with a shower chair! I’d say that paradigm shifting has helped me accept and enjoy my new outlook on life. Great video!

[@starman9921]

My neurologist often ask me what's my secret I've had Ms for over 30 years and have plenty of problems. My answer is there are things I want to do in life like play snooker. So I I won't give up I find ways to adapt. I suffer a lot of pain but I don't let it hold me back I'm strong character I will not give up it does take me longer or it's a lot harder to do things but I have a Can-Do attitude and have learnt to adapt. I think the main thing is I have naturally a strong will power example if I have to use a mobility scooter to go out then that's what I do. I have one that can go in forests along the beach I use a buoyancy vest to go swimming and so on I know I can't go out in hot weather I stayed indoors with air-conditioning on but I can go out in the evening when it's cooler. I don't get held back I just have to do things differently from abled body people

[@jillpartain3546]

Thank You for this (and all) video, Dr. Boster. I really wish you & your MS center weren't 6hrs away! There's not one at all close to me! My neurologist is an hour away and an hour ahead of me time wise cause although she does do other neurological issues she's the closest that has MS as a speciality. I really struggle with this issue. I put off using a cane for waaay too long, due to vanity! I put off moving to a rollator for too long, too (vanity again)! Now though, I'm just STUCK on how to paradigm shift for: cleaning, laundry, "me" time, & exercise. My 3-1/2yr old granddaughter started living with me the end of March & I've been behind ever since. I'm so overwhelmed & can't figure out how to break things down to be able to get it all done without completely wearing myself out & having ZERO energy left over for her!! Sorry to go on & on! I just came across your videos a month or so ago. I was diagnosed Dec. 2009 & am amazed by all that I've learned by watching them! Thank You!!

[@belmakanlic1113]

Thanks for the video dr B! Here's my example: when I developed a more serious urinary urgency, I started having problems when I'm outside and not close to bathroom. It ended with me wetting myself more than once. And it's not pretty. Then my husband told me "Why don't you buy adult diapers". And I was furious, I told him No way, I'm only 35 years old, I'm not buying diapers, it's humuliating, blah blah.... However, I discovered incontincence sanitary pads which are way more convenient than diapers, so I use them on regular basis when I know that I wont have access to bathroom. Thank you for the time you take to make the videos, and everything else you do, not only for your patients, but for all people with MS!

[@keithriemersma9793]

I use a 15 minute rule. To avoid procrastinating I only commit to doing errands for 15 minutes. If I make it for longer that's awesome. If I need to stop it was only a short effort but at least I started. Everything takes a lot longer but at least it gets completed eventually.

[@junemaisel2520]

I like your rule and will adopt it myself. Thank you. I was food shopping and I pushed myself to walk around for a half hour just to see if I could do it. It turned out I paid for it the rest of the day by being totally exhausted. I did it again the next week because I didn’t learn my lesson and it had the same outcome. So now I will follow your 15 minute rule and let my husband finish up the shopping. He goes with me anyway. As far as using a cane, I started years ago after my friend had a terrible fall and bashed her teeth in, and my mother had a terrible fall and wound up in the hospital with complications for six weeks! Neither of them had MS and I figured when I started having problems with balance that I’d rather be safe than sorry. I use a travel fold up scooter when I travel because I never want to give up one of the joys in my life. Thanks doc for another great video. I truly believe that one’s attitude is the most important thing in life and we have to concentrate on what we CAN do and be grateful for that. Being grateful is what makes us happy, not having a “poor me” attitude.

[@KatBrat38]

I was lucky my dad was handicapped, in different ways, so he taught me how to think about things differently, using a chair to get up off the floor. Holding a nail with needle nose pliers so you can hit it with a hammer. I always cut my own grass, can't anymore, but I used a electric mower, you can cut the lawn at various times too because they are so quiet.

[@BenLeitch]

To use one of your phrases - Let's Unpack This - Lawn Care - Mowing the yard is an excellent example and describes what has happened with me. When I could no longer operate the riding mower due to foot pedals(I'm in a wheelchair) my wife took over the job of mowing. The Paradigm Shift came in the form of a zero turn mower with hand controls. I am now able to help with the mowing. Is it a manly thing? Not to me. It is more personal pride and contributing to the responsibilities of the household. Assist Devices - I have always been proud of my devices, canes, elbow crutches, wheelchairs, scooters. I am not shy or embarrassed of this disease or my disability. On the contrary, most people are shy and embarrassed to ask about it. Exercise - being in a wheelchair limits some of the exercising I can do. I have gone from lifting weights to lifting myself. I sit in a chair with arms and lift my own body weight. At Work - when I was working my employer accommodated my disability rather well. ... Lengthy I know. Sorry... just had to make this comment.

[@dougtagg9162]

Thank you for the video. Dogger12 My paradigm shift for grass cutting is hiring a grass cutting service. Fortunately for me in my career as a home physical therapist, I was able to paradigm shift frequently and safety as my functional status declined from adapting my house ( accessible one floor living and bathroom, outdoor ramp for my scooter) to making the needed changes for enjoyable bedroom activities . Now I am getting ready for my new exercise paradigm shift by taking paratransit to Peter B Lewis for water exercise. Doug, coffee in hand on the deck( with the ramp) from Lyndhurst.

[@AaronBosterMD]

Awesome examples of paradigm shifting!

[@susanb403]

to add to the use of cane or walker: it is helpful because it signals to other people not to bump into you and to give you space as you are trying to walk. I have found that people tend to give you more respect and more personal space and try not to get in your way. when you don't have a cane, people tend to get impatient when you are walking slowly. when you have a cane, they seem to understand, and don't get impatient.

[@AngelVixen1983]

@@susanb403 I had my cane with me at a Christian concert. Because of where we were, people and kids came and stood in front of us. A little girl kept bumping into me. I asked her to please stop after the 2nd time. I asked her again after the 3rd... then her sister and mom were like, "WHAT DID YOU SAY TO HER?!" I was talked to like I was the rudest person ever because I asked this child to stop, but they couldn't talk to her about giving strangers space to be. There were a few feet in front of our row, between us and the stage, but this girl acted like taking videos and standing in my bubble was more important. I don't understand people these days. I thought people in Kansas were better than that.. Midwest, close to "southern hospitality," but apparently not.

[@sherritice3203]

This video hit me particularly hard. I recently went out with my teenage children to roller blade with them. A few years ago, I taught THEM how to skate, but a few weeks ago, I could barely stand on my skates. I pushed through by sitting on a chainless bike and used that as "walker" and we had a good time. I am sure our neighbors, if they saw me, had some stuff to say to each other, but the 4 of us were having a blast and my oldest, and largest, son (he's 6'2" and over 300lbs) was feeling very proud of helping me stay up right. My children have been amazing! My youngest is almost 13 and my oldest is almost 17, and they never make me feel "less" when I need their help. Right now, my issues are relative minor compared to some, but I am already have to view my capabilities in new ways. I had a break in my symptoms for the first time almost since I started having problems recently, and it was amazing, but it also mad me more aware of how much I have lost. I was typing recently and one of my family made a face at how bad my aim was... and I just said yep, that's how it is now. Phone or full size key board, it doesn't matter. My fingers just don't obey me very well anymore. Just typing this out helps. Thanks! I think i should start journaling, to process the emotional parts of this journey. Might help with my finger dexterity too... LOL

[@sherritice3203]

I find out tomorrow if what has plaguing my since Nov, last year, is ms. No matter what it is, this concept articulates well how to deal with changes in you life and your capabilities. Even if it is just normal aging, this veiw point can help you come to terms with your life now, and dwell less on the losses.

[@dr.shrutibachalli8577]

Exercise!!! I've had MS for 18yrs...Pilates has helped me big time.... especially my core strength

[@AaronBosterMD]

Thanks for sharing!!

[@lemonpeelangelfish]

Thank you Dr Boster - this is absolutely brilliant. Me and my hubby split the lawn mowing I do the back and he does the front 😁. I bought myself a cane decorated with butterflies. 🔥🔥🔥🔥🔥

[@AaronBosterMD]

#WeHaveMS #StrongerTogether BosterMS.com

[@Jerusalem_Warrior]

Yeah, it was a year ago that I finally understood that I'm not going to synagogue this holiday without a wheelchair. And you know what? When I finally braved it, no one was surprised or shocked. So now I've switched from "Everyone's going to see me!" to, "Let's get the job done.". Pro tip: Chair exercise on Zoom, all types. No traveling. Win - win. 👍🏻.

[@suecooper2975]

Hey Dr B, my paradigm shift was in the workplace. With memory and cog fog issues I don't learn new things quickly or remember procedures as I used to. I've become the queen of note taking. I write everything down so I can refer to my notes whenever needed. It works really well.

[@desiredecove5815]

Excellent video this morning. Thinking more on the subject. More people would have a BETTER life- in ALL ways - if they learned how to change their perception of their illness or how they deal with it in so many ways- This then spills over to one’s life- and then all of a sudden what once seemed hopeless- is a free and clear path to truth and how to continue on in life despite MS. ❤️

[@TheresaMadame]

I developed MS when I was 30, LONG before disease modifying therapies were available, and the standard advice was to go home and rest. Fortunately, twenty years later after I'd been in physical therapy several times to learn how to walk again and again, I figured out that I could exercise without having a physical therapist supervise me. I found a terrific personal trainer and we've been working out three times a week all through the pandemic via video chat, and even afterwards. And I walk with a friend twice a week and I take a yoga class (which we also did with Zoom during the pandemic). I used to be a couch potato, but now I'm a WARRIOR!

[@desiredecove5815]

Our perception is KEY to living our best life. I’m always saying this- thank you for explaining this concept WAY BETTER than I can. #wehavems

[@pedrodacostapinto]

paradigm shifting also means resilience, when such diagnose arrives we, pwMS, need to adapt and overcome difficulties. never giving up! acceptance is a major step ! as Martin Luther King, jr says "...always moving forward. " whatever happens

[@EvenSoItIsWell]

Bravo! Thanks Dr. Boster! Changing the way we think changes the way we live. Think you can? Thank you can’t? Either way you are right! We may need to adjust how we get from point A to point B. Or we may need to adjust the manner in how complete a task. 🙌

[@AaronBosterMD]

Well said!

[@EvenSoItIsWell]

@@AaronBosterMD thanks!

[@GrandmaSally]

So agree 💯

[@monicarodriguez1867]

This was great. Muchas gracias! I’m a stay-at-home mom and wife so housekeeping was a challenge until I figured out my peek energy times of the day. Meal prepping and following a schedule with rest times allowed me to get everything done before the family gets home from work/school. Then I can spend quality time with them by the end of the day. Also, I learned it’s ok to ask for help sometimes. Being humble can go a long way. 😊

[@AaronBosterMD]

Glad it was helpful!

[@syazwanimohdsabri91]

I was a teacher and where I work, it involves a lot of physical activity. I couldn't do it, because even after I've asked for some ease where I'd get students come to my class instead of me climbing too much, it was disregarded. To the point I had frequent relapses. So I decided to change career so I can pace myself, not too fatigued. It made a lot of difference. So yes, paradigm shifting, what can I do instead.

[@BornAgainFarmGirl]

Just took temporary custody of our 8 year old granddaughter in May and I have never felt better. Her room is upstairs and that hasn’t been an issue for me at all. As a born again Christian I’ve found this shift you discussed happens to be very similar to my faith is Jesus, I believe He supplies my every need for whatever arises . Thank you for your continued uplifting support, drinking a lot of water also has changed my health enormously #Waterchallenge 🤭.

[@andrewreisinger6860]

Also using hand controls for your vehicle like you highlighted on Twitter recently. I found that using these controls is very freeing. I decided to try it after I nearly got in a wreck after I couldn't successfully transfer my foot from the accelerator to the brake smoothly. Lots of times people with MS experience spasticity in the legs or they can't feel where their feet are in space in the darkness of the floorboard area or have numbness/weakness in the feet. A hand control device makes you feel more confident about driving safely and can be configured to control both gas and brake or just the brake. Also, most newer cars these days come equipped with adaptive cruise control which adds to the safety of driving a car with MS during longer trips on the freeway.

[@AmyInArizona]

Thank you Dr. Boster for your genuine talk. I will use my walker. Your words sunk in deep to my heart. It’s adaptation, isn’t it? 😃👍🏻

[@AaronBosterMD]

Well said!

[@sammikinney1601]

When you were commenting about not wanting to use a cane when out in public. And you're right the risk of falling outweighs the risk of embarrassment by a thousand. So I thought I would add a suggestion to this particular scenario. I was one who found themself extremely embarrassed to be walking through my local grocery store where I had worked and knew everyone and was very reluctant to use an assistant device for this venture. what I ended up doing and I'd like to suggest this for others I would grab myself a shopping cart and I would spend my entire visit with someone walking with me and I would use the cart to lean on as a way to support myself and the person with me could go into Isles and retain products for me off the shelves. But I could walk through the entire store for an hour leaning on that shopping cart and then push it all the way back out to the car.

[@TheresaMadame]

My only problem is trying to stash my forearm crutch (instead of a cane) while I'm shopping!

[@squirrel9407]

I've come around to using a cane recently and it really was a struggle to do so (pride, probably). What gave me the impetus to finally do it was remembering having a car accident back in the 90s and using a cane to recover. I suppose I realised I needed to do it to avoid those falls you mention, having felt low enough with MS anyway. Thanks for your words.

[@scottyrosencrance2889]

Hey there!! Hope you are great!! I think that a lot of us do the same thing! A shopping cart is my life line whether I’m going to Walmart or Walgreens!

[@snow-wlkr7xplorer494]

Indeed! When I arrive in the parking lot, first thing is look for the closest cart! I hate when the workers come out and are taking them all in!😣 Have had to flag them down for one. I use the cart for balance while shopping and keep pushing til I've gotten everything I need. Most times my legs are exhausted, but I push on. After checkout and at the exit door, if there's a bench, I sit and rest a few mins before resuming. Also I walk my own groceries to the car with the cart, no carryout! I still need the cart for balance and walking assistance. I unload all my bags into the car and leave cart in the lot. At home I unload my rollator from the car, put my bagged groceries into cloth bags, hang them on the handles and set others on the seat; walk to my dwelling and have a seat a few minutes. Then put purchases away. It's a job!! But I'm glad to accomplish this!!😁 I definitely break things up that I have to do between rest breaks or different days a bit at a time. So happy when I have better days!! Vitamin b12 under the tongue helps a lot too!!, for strength and energy! Call it what you want--it's determination, patience, survival. Old saying-'Where there's a will, there's a way'!!

[@forkums]

Great video. Here are 2 shifts I have included in my daily routine. My feet are always in pain. When I go to the gym I would run on the treadmill for about 2 miles during my workout. Now I split it up 50% treadmill and 50% elliptical. I never liked the elliptical but my goal is cardio and fitness so I shifted. On days off from the Gym, I ride my bike. At times it is windy or my energy is low. Rather than skip bike day, I use an electric bike with peddle assist. In the past I thought an electric bike was just cheating now I see it as a way to achieve when otherwise I may skip the day. I have learned they are really fun. Dr. Boster Thank you for all you do.

[@MatttMan]

Thank You for being real and doing these video topics….you are a rockstar, Dr. Boster!!!

[@CONTROVERSYRISING]

I mow the lawn in the winter and shovel snow in the Summer she handles the during the Summer.... 50/50

[@DoctorGretchenHawley]

Excellent video! So many people struggle with paradigm shifting, and get stuck in the problem, rather than shifting to find a new solution. Thank you for this☺️

[@AaronBosterMD]

Absolutely! I'm sure you come across the need for paradigm shifting often in the setting of delivering PT!

[@andreagray559]

The working from home scenario during, and after, the pandemic has been a godsend to me. However, I found I was struggling with carrying all the IT equipment in a backpack backwards and forwards to the office, even if it is a couple of days a week. So I found a small luggage bag on wheels, and use that instead. It has two advantages, I don't have to carry heavy equipment and it offers support for me when I'm walking to and from the office to the train station. Win, win. I also made the decision to drive to my local train station, rather than walk (morning and evening). I was getting too tired. Yes, it adds to the expense of travelling but as it's only two days a week at the moment, it was a good choice.

[@PersephonePersonified]

I live this way, always have always will. Where there's a will, there's a way. Always! Giving up is not an option. I've givin testimonials and stories all my life; indeed impacting the lives of people to shape a better future for the world. I'm very headstrong when I put my mind on something. Breaking things down into smaller segments helps, but then I find no time for myself. Then I go too ham and have to give myself a couple days to recover. It's a learning curve really, and that's okay. 👍

[@michalenestabler1327]

I really appreciate you talking about paradigm shifting. I honestly thought this was something people automatically did, to my surprise it’s not. Oddly enough I took on the challenge of lawn care in my household long before my diagnosis of MS, it in my mind keeps me active. I have the I don’t care what people think about me attitude, I think it really helps with paradigm shifting. Thank you for the great video!! Keep up the awesome work.

[@KnittyKnut]

I was listening to this with my MSer husband and his solution to the boat problem was to eat the family. I'm not sure he's getting it!

[@2500gamma]

I learn more from one of your videos than from all of my neurologist appointments here in the UK!

[@roberture5903]

Thank you Dr Aaron, excellent video this morning as always. Especially like the part about Lawn Care because I worked Outdoors for 25 plus years for a living and I took my lawn care/ Landscaping and snow removal very seriously. When I had to retire from that professionally three and a half years ago I was a bit devastated to say the least. I hate the fact that I can't do a lot of the handwork right now but I'm happy and grateful that I can still run a zero turn mower or a skid steer like I stole it haha. I can still get out and play in some ways. As always thank you for the great videos.

[@ZoyaStreet]

Thank you so much for this video and for all the work that you do. I'm recently diagnosed after two attacks quite close together. I feel confident that I am recovering very well, but I also feel that a long-term paradigm shift is needed in my working life - something I had already needed to respond to before diagnosis, as I was having annual episodes of disabling fatigue and low mood lasting for weeks or months at a time (seems like it was MS the whole time but I doubt we'll ever know). Over those years I had already found that if you make changes in your working life to adapt to your own disability, you might also be making your working practices safer and healthier for those around you. I've been able to develop much more positive collaborations with people because they feel cared for, understood, and respected when we work in a way that is responsive to changing levels of disability. I think we can all contribute to making the workplace better for those around us if we respond to the challenge of changing our paradigms in order to adapt to our bodies' different needs.

[@averybennett1009]

Tips for using Walker get one with a comfortable seat to rest in between

[@cubbi2789]

Howdy, Dr. B. I agree that it is the way we view our illness. Instead of watering my plants and vegetables later in the day, doing it in the early morning help combat any heat that can affect me. Thank you for sharing this information, it is really important when you have MS.

[@rhiwright]

" I used to think it was awful that life was so unfair. Then I thought, 'wouldn't it be much worse if life *were* fair, and all the terrible things that happen to us come because we actually deserve them?' So now I take great comfort in the general hostility and unfairness of the universe." - Marcus Cole, Babylon 5 I have taken that quote to heart and use it whenever I need to remind myself that This Is Not My Fault

[@rayah_v_dc]

🙏🏽 I was recently diagnosed and just discovered your channel and am incredibly grateful. TBH-reading /watching some other MS- related channels amplifies my anxiety even more. I truly appreciate how your videos are a combination of evidence- based information, practical nutrition and mind-focused techniques like this one. Thank you again-

[@metalsomemother3021]

My husband has gotten fabulous walking sticks for assist. He gets comments and compliments on them all of the time. He prefers this over a cane.

[@genee3005]

I have not heard this term before. It is very much something I need to work on. I just passed my one year mark of official diagnosis. It is a whirl wind at times. My friend said if she didn’t know me for years before she wouldn’t necessarily know or see that something is “wrong with me” (she doesn’t mean this in a rude way by any means) and she said I must be “high functioning”. I laughed and told her I’m stubborn and terrified of people knowing how things really are feeling. However after over a year of trying to hide as much as possible I have learned it really does a number on me. I’m trying to function at the speed and rate I was long before symptoms and expecting “old me” from me. I am slowly learning to accept my new version for what it can STILL do even if it is not quite what it was able to do before. When I was given work out packets for the Ms gym. It took me about a week until I would actually look at them and when I did I broke down in tears and was embarrassed showing my husband (not that he makes me feel that way at all, it’s all my own self esteem dropping with changes) because I went from doing Insanity and being in great shape to having a hard time holding my purse and walking all day long. I try to remind myself to be thankful for what my body is still able to do while being mindful that it’s already in a battle of its own but sometimes it is hard. I guess I really needed this video to point out it’s still a work out for my body now. Thank you. I hope to one day get past this hurdle of embarrassment for what my body does now when symptoms show around others.

[@carareiki]

Excellent advice! Thank you!

[@mikenicoletti3899]

Great video, thank you Dr B!

[@AaronBosterMD]

Glad it was helpful!

[@stacyjahn9533]

Hey Dr Boster! I appreciated the paradigm shift and those around us can learn from it too. I would add that using a cane when you're feeling unsteady signals to other people that they need to give you space and not bump into you. Thanks for your awesome KZbin videos! I've learned so much.

[@MeecheMeeche]

Paradigm shifting has been the #1 thing during the past 17 years that has helped me thrive with MS. Where I am stumbling is figuring how to paradigm shift chronic nerve pain... haven't quite figured out the approach. Any insights from this community would gratefully appreciated.

[@Haghenveien]

I'm having this online course. The problem is that it starts at 6:30 pm and it goes up to 8:30 and sometimes even later. And I was struggling to fallow it, keeping the concentration etc. because at that time of the day I'm just to tired. I had to accept that it wasn't working for me. Now, instead of forcing myself to watch the classes live, I watch them recorded the following morning. Not only I'm fresher but I can stop the recording whenever I need it, for example to take some notes or just to have a break, I can go back if I didn't undertand something because I lost my concentration at certain moment. Of course I would prefer to watch it live and have the option to interact in class like other students do, but to be honest, that wasn't happening anyways.

[@MsTubbytube]

Thanks!

[@AaronBosterMD]

Welcome!

[@lumlehmw]

One paradigm shift: reading costs a lot of energy, because my eyes can't 'stick to' the line. This energy I safe for work. For leasure I listen to audiobooks. When I really need to read a paper book (without the function of increasing the distance between the lines), then a ruler or paper helps focusing / finding the words

[@jkmmiles]

Thank you Dr. B! I am very thankful for you and for your great advice! My Doctor in Stanford, Jeffrey Dunn, knows you. Small world, huh? You both are wonderful!

[@AaronBosterMD]

Dr. Dunn is an amazing MS Neurologist (amongst the top in the United States) and a SUPER nice guy! Please give him a hug for me!

[@MSBABE77]

I have made my canes an accessory ❤ I bought super stylish ones and I feel great with them 😊

[@l.a.w.79]

I fell just yesterday. I jokingly call it my annual fall but today I’m in pain. Gotta accept the changes!

[@DetroitGoldie]

Ohhh okay! I’ll start using my cane since you put it that way!

[@mikedeegan9342]

Doc, Thanks for this video. Ironically I have recently adopted breaking up big tasks into several smaller tasks out of necessity, but your video helped reinforce my approach. On using the cane, I was reluctant at first out of vanity. But I quickly realized I couldn't save face and my butt simultaneously, so now I use the cane. Have you done any videos about crowded or cramped spaces triggering symptoms? My leg symptoms kick in whenever I am in a crowded area like the grocery store checkout or movie theater lines.

[@thephoenixyears]

My employers have been very supportive with paradigm shifts. I've only been diagnosed for four months so everything I do is a paradigm shift. I get up earlier and work earlier so that I can rest by 3.30pm. I have shorter periods on tasks so I am changing tasks regularly. I am working hybrid so I can stop and rest my eyes / body for 15 minutes or so. I am still exploring all the paradigm shifts that I can use.

[@Sarah-ck2dc]

Thanks for that motivating video! How about a lawn mowing robot? I know my husband would be really proud to show off such a shiny new toy… And look at Selma Blair and how cool she looks with her cane… I also feel we all can push those prejudices about disabilities by being open about our struggles. We live in changing times and diversity is on the rise, so I really want to do my part in making the world better. Often it’s the one person someone knows personally that makes them see people with disabilities different.

[@tineye5100]

I love this concept with mowing. I wish I could find a way to make the same thing work around job responsibilities. I doubt HR would consider a uniquely divided workday to be a reasonable accommodation.

[@missyholz]

I hope it isn’t too hot on said boat. Don’t have too much energy to do most ways without a motor. It really is tiring.

[@abehummel1909]

Thanks for this video. I really want to make an appointment with you… Your videos really help. Do you offer virtual visit I am in Northern Michigan.

[@AaronBosterMD]

Yes I do!

[@07broly]

I skipped the cane and went to a rollator and I'm only 28

[@rollin-92992]

Can you create a video about potential anti-EBV therapy, there will be ATA188 EMBOLD 2 phase results today! Thank you from Tbilisi, Georgia!

[@kaym9882]

That us my biggest fear....having to give up my independence 😔

[@buh-byepolar3341]

I recently had a MRI that showed several new enhancing lesions. One was a larger ring-like lesion in my frontal lobe. I asked my neurologist if this could impact my personality bc I haven’t felt like myself for about six months. I used to be an emotional person (I was diagnosed BPD about 8 years ago) with high anxiety and now I get feedback from those close to me and my managers that I am unreactive and almost robotic. I agree with them bc honestly I don’t feel emotions like I used to. The feedback is positive. But Im almost always indifferent. My neurologist thinks that i have developed better coping skills and that this isn’t bc of my frontal lobe lesion. But Im very adamant- I’m not the same person. I have also had a few experiences where I notice my face feels damp and I realize I’m silently crying. Just tears streaming down my face. Nothing triggered it. Im not struggling with depression or compartmentalizing my emotions. I have a theory that maybe I’m not registering emotions in the moment and then days or weeks later it finally hits and the tears start. Like a connection issue? I really am at a loss over this. Thoughts? Thank you 🙏🏻

[@nicolerodgers2937]

@aaronBosterMD I work in EMS in Texas. I have found that I can do a quick rapid cool in an Er after pt drop off. I constantly have ice water at all times, hand sanitizer to help cool off my hands. I have noticed my hands will get hot, start sweating then my feet will start getting hot. I will soak my hands in sanitizer and fans them. I will then get blast the ac in the ambulance to help cool off further. The heat is a big issue with me.

[@matthewlawrence9987]

I use a cane even when I can walk pretty well, so people can see I have an issue so they don't think I'm drunk. By the way I do have multiple sclerosis and I'm only 38 .

[@danielhernandez-fo3mj]

nice video ... im still struggling with the cane and try to push myself to not need it as i don't want to become dependent or lazy with not keeping streagth ..... but when you talk about hurting the hip it makes it harder to use that as i do believe I'm starting to cause more wear and tear by not .... very hard to shift ...... i uae that excuses a lot lol im 36 i shoudlent have to accept this lol ....i do love your talk about sex shifting ...... i myself have opted to a ora/ forplay only sex life as its eazyer to recover from and i like mine palned but my partner is super spontanius .... super hard to shift lol as of right now im having a hard time shifting my video game time as its making my eye hurt more and my brain hurts but i know its helay for keeping the brian active so i atlest say an hour of gaming or major brake during the session dim lights ..... but really this is a good video

[@cesarromero7856]

E + R = O you do not control the Event you only control your Respond to the Event and depend of your respond will be the outcome….. the “R” factor system

[@ginamaez8234]

Can working from home be denied by your employer as a reasonable accommodation, if you performed it successfully during the pandemic?

[@__Wanderer]

Hi Dr. Aaron I was diagnosed yesterday with MS after waiting 3-4 months for another scan, I am male, 26 and live in the netherlands (despite multiple brain/ spine lesions and ON they wanted another scan). I am now asked to decide for myself what treatment to use :/ They are recommending low efficacy treatments which I find strange. I would like to start with Tecfidera / Mavenclad / Ocrevus. However I am no Dr. and don't know which to choose :( Do you recommend these to patients just diagnosed with MS? Scared I will make the wrong choice and end up causing myself long term damage from a relapse. (blind in one eye already from the ON :( ) Thank you for any help / advice Dr. Aaron.

[@cd9400]

Because I am not on any medication due to having Ankylosing Spondylitis as well as MS, and not monitored with either condition (only seen Neuro once in last 5 years ☹) I have compensated by having 2 days rest after a good full day. It's the only way I can live an active life but very frustrating tbh 😑.

[@terrybullard7377]

I have never had a neurologist offer anything but a harsh drug. For example, my neurologist prescribed clonazepam for muscle spasms instead of magnesium which works better and it is not addictive. You talked about satisfying sex --- when orgasms are taken away because of plaque on the cervical spine, I ask you neurologist to do a paradigm shift, and come up with a way to remove plague from the nerves that cause the issues. If Ben Carson and a team of surgeons from all areas can successively separate conjoined twins attached at the skull, why can't neurologists remove plaque from nerves?

[@rhondahallisey2728]

I am more comfortable with a walking stick!

[@terrybullard7377]

Most anyone knows that mowing the yard during the hottest part of the day is unsafe. Why not put down ground cover so you do not have to mow the yard at all.

[@WMACPT]

🇺🇸🇺🇸🇺🇸🇺🇸🇺🇸

[@harddriveusame7248]

I call a lawn care guy. Much easier. ;)

[@AaronBosterMD]

You got that right!

[@richardclark1819]

😅

[@14sgs]

Trade in your 800lb motorcycle and get a 400lb motorcycle.

[@dy-no-mitedragon7759]

Please don't waste your water on a lawn. Grow indigenous plants. Canes are 😎

[@averybennett1009]

TY for helpful info alternative thinking is a hard task but worthwhile finding another way to function Ask others including your health team You are not alone this is incredibly difficult but think of all the Great accomplishments that you will be doing baby steps Join Ms groups online follow the good doctor online KZbin Twitter

[@Earthoceanfire435]

This paradigm shift I believe personally my thought pattern changes well because I’m on disability, I’m poor. So I seek out healing ❤️‍🩹 herbs and food’s because I cannot afford a doctor. Google is a great search engine to find peer reviewed papers on various subjects. So like your boat 🛶 I use oars. It’s the most affordable. I use what’s most affordable and I research, research, research constantly.

[@pedrodacostapinto]

paradigm shifting also means resilience, when such diagnose arrives we, pwMS, need to adapt and overcome difficulties. never giving up! acceptance is a major step ! as Martin Luther King, jr says "...always moving forward. " whatever happens

[@MSBABE77]

I have made my canes an accessory ❤ I bought super stylish ones and I feel great with them 😊