Multiple Sclerosis Prognosis

[@forkums]

I remember our first call. you outlined much of this video. You were honest, caring, supportive, and even easy to understand for a new MS patient. Thank you for all you do,

[@AaronBosterMD]

#StrongerTogether #WeHaveMS BosterMS.com

[@joeh6244]

@@AaronBosterMD Dr. Buster I am a 64 year old white male diagnosed in April 2022 at 62years old.Original symptoms weakness in legs and balance issues. First MRI showed one lesion on spine at C6.Admitted to hospital for three days of steroids and walked out under own power after three days. About a week later legs felt weak again second MRI showed second lesion at C2(active), back in hospital five days of steroids and left with aid of walker. By August I was in a wheelchair and have been since. I have no use of my legs at all. Prior to this I was healthy, non smoker, and exercised regularly.

[@pedrodacostapinto]

Totally agree !! Every newly diagnosed should receive this video and/or psychological support!!

[@sherifranco1201]

Good Morning Dr. B. See you on screen again later for my Televisit!!!🧡

[@EvenSoItIsWell]

Thanks Doctor Boster! I love that you want to tackle MS based on how it presents and all these factors.

[@AaronBosterMD]

Glad it was helpful!

[@smmcb647]

Thanks Dr Boster. I love your honesty and not sugar coating the facts. It helps me keep my expectations real.

[@Paul9735]

Another banger from Dr.B

[@dragonwithinher]

Exposed to significant second hand smoke since birth, vitamin D levels extremely low-2 on blood test, my first attack was a large lesion (transverse myelitis) in my cervical spine that I didn’t fully recover from, obese, MRI confirmed relapses approx every six months, and suffering from a chronic CSF leak that leaves me bedridden. 😢 It’s a scary outlook.

[@shannonciaramella7599]

Good morning Dr B. From PA. Thank you for going into to detail about the progression. Your channel has helped me so much in understanding and learning. Lifetime subscriber here.

[@voja2000]

Hellot DrB! Fantastic explanation that all ms neurologists should tell us on the very beggining... 👌

[@pamelaalfieri382]

Mine did not😢

[@donnabolt5847]

You are helping soo many people with the knowledge that they can change some of those factors. If people know that they can help themselves it is so encouraging and empowers them versus you have this and you can't help yourself at all. Thank you for being a light to others ✨️ 💛

[@susanroper6287]

Thank you always 💫

[@yusefkaissi304]

Thank you for all of this

[@staceyvaas1210]

Thank you Doctor!

[@susannicholson3493]

Thanks Dr. Boster

[@judysmith7607]

Thank you Dr Boster. Reassuring.

[@michellemedrano-garcia9927]

Thank you for all the information you provide!

[@AaronBosterMD]

Glad it was helpful!

[@beckymoran321]

I haven’t had a relapse in 8 months, and I couldn’t be happier! I was dx 2 years ago and had them every 4 months or so. I had good MRIs after starting Ocrevus but still had relapses. Switched to Tysabri, and so far so good. Not sure if the drug plays a roll, but I will take the win either way!

[@julienjully]

Thanks again! Always there for people impacted by MS. You're the best Doc !

[@marybethcully5883]

I truly appreciate your honest sharing…..🙂

[@donalpaccio4233]

Another great informative video Dr. Boster! Greets from Paris.

[@rosered3919]

Thankyou, from Australia. Much appreciated.

[@kaym9882]

Well, happy Monday and thanks for posting this. 😀 I always learn something new.

[@kitshrapnel8548]

Thanks, I got a lot from that, 🔥🐾🇬🇧

[@cesaredo]

Thanks as always Dr. B. Nice hoodie from the Boster Clinic you have!

[@angelaharris1112]

Thank you so much for all the info you shared with us. You are my hero!

[@roberture5903]

Great video this morning Dr Aaron B, if I'd known this stuff 5 years ago what I know now things might be a little bit different. I'm grateful though because I'm still on my feet. God bless you Doc and all the work you do.

[@Fishbone8891]

This video was very eye opening for me. I have more than half of the situations where you stated the prognosis would be worse, that's a tough pill to swallow at 31

[@DoctorGretchenHawley]

Great video!😀

[@dollyandmoose]

Very helpful information, as always. I just wanted to say that your videos have helped me so much, thank you for what you do!

[@WORRO]

You are a brilliant man, and I say that with much respect Sir. Thumbs up video ~John

[@Jillbertx5]

Thank you for this. Prognosis can be difficult to face but it’s helpful to know where things are heading. It’s also a wake up call to manage the health bits under our control to have the best outcome possible.

[@Shanny13]

Hey again, I’m sure you have no time to respond to individual comments so I was wondering if one day you could potentially do a video on lesions shrinking on MRIs and what that means. I know lots of people have experienced this and are confused by it. I’m especially confused that my spinal lesions shrunk as I have only heard of it happening with brain lesions. Anyway thank you so much for all you do for the community, I have learnt so much from you. Truly a life saver

[@famasmaster2000]

So informative Dr. Boster. You are so comforting to follow and understand. Thank you 😊

[@SmileyTheAxolotl]

Thank you for this video! This information is so great to learn and would've been so helpful in easing my fear and uncertainties immediately following my diagnosis! Thank you for everything you do!

[@joeh6244]

Doctor Bostor I am a 64 year old white male and was diagnosed in April of 2022 at 62. First MRI showed lesion on spine at C6. Three days in hospital if steroids. Walked out on my own power feeling strong. Leg weakness over next ten days and back in hospital. Second MRI showed another lesion C2(active). Five days of steroids and left hospital with aid of walker. Continued getting weaker in legs. By August of 2022 was confined to wheelchair and have been since.

[@dougtagg9162]

Thank you for the Monday morning video seen this afternoon. Doug coffee in hand from Lyndhurst.

[@AaronBosterMD]

Morning!

[@lemonpeelangelfish]

Thank you Dr Boster, brilliant video on such an important topic. So empowering to know what steps to take to live your best life with MS. 🔥🔥🔥🔥🔥

[@jadamitchell547]

My husband has a new patient appointment with you tomorrow. We are so looking forward to it!

[@RubenBonillaPortilla]

I had an awful prognostic feature at the very beginning of 2012 with a locomotion problem (had to wear a cane), and it got worse in 2014 when I lost the sight for a few weeks from my right eye. Since then I had a few problems for running specially. Now in 2022 and after receiving steroids and monoclonal antibodies I feel much better, but I will have a medication update soon. Anyway it's remarkable the way you described accurately the process I had lived along the last decade.

[@senull56]

Thank you for this video. I have been trying to figure out my prognosis since my first attack involved transverse myelitis with multiple enhancing lesions on my cervical spine and medulla but my brain looked great on the MRI with no lesions so not typical for MS. This video was very helpful.

[@kaym9882]

Have you thought about holding a MS summit via Teams or zoom? I would definitely attend

[@colleenhurley7507]

Me too!!

[@JesusisLord-oj9jm]

Thank you so much for your videos. I currently work with a 46-year-old email that has primary progressive and that it is very aggressive. I’ve never seen anything like it.

[@MinnieOnCam]

Thank you for the video, this explains why sometimes my neurologist is very optimistic and positive about my MS. I've only had to do a contrast dye once since my diagnosis in 2013.

[@marelynch685]

Hi Dr B. I wish you were my Neuro. You are so kind and knowledgeable. I was RR for many years. Now very SP. low lesion load. Moblilty 0.

[@desiredecove5815]

Well explained Doc, So many DIFFERENT things for us to take into consideration, and explains WHY we are all snowflakes. I love how you give us ways to be proactive as well - #SharingisCaring ❤

[@user-qy5gb8xx5j]

This was quite beneficial information based on knowledge is power, but devastating as well. I was diagnosed with relapsing/remitting MS in 2018, at the age of 55. There was no remission, but a pretty aggressive progression instead. Thus, my diagnosis is now secondary MS. Though a PPMS is probably more accurate. My initial MRI detected 4 lesions in my spine, 4 in my brain and 4 in my brain stem. My initial presentation was with walking. I have bilateral symptoms, though as of the last couple months, I have more weakness in my left leg. I have bilateral foot drop as well. After my diagnosis, I could walk with difficulty, but independently. I started with custom bilateral leg braces. My walking challenges have now reached the point of needing forearm crutches outside of my house. We moved to a small house so I can get around in the house without devices because I can always reach a wall, bar or piece of furniture. I've been on Rituxin infusions since my diagnosis and have developed no new lesions. I am on an antidepressant as well as vit D and other vitamins. I have bowel and bladder issues, severe brain fog and fatigue and loss of cognitive function (The latter being my opinion, no tests have been done.) I have a no red flag specialist, but we now live 5 hours from her. Even if I wanted to change, there are none closer to where we live. Are we missing anything that could help me?

[@DrBrandonBeaber]

Nice video.

[@AaronBosterMD]

Thanks!

[@thirdavenue3045]

I have RRMS. I'm scared I'm in the category of aggressive disease. Onset at 46. Optic Neuritis (resolved) then 6/52 later. total loss of legs, both sensory and movement, then 4/12 later bladder. I can see, can move my legs but have terrible skin pain and I still can't tell when I needs to pee. They found something like 7 lesions somewhere between T4 and T9 when I was in hospital with the leg issue. No-one will tell me whether I have more aggressive MS (or am more likely to) and would really like reassurance / proper knowledge so I can do stuff if I need to hurry. I've watched heaps of these videos and would like to thank you for all that you do.

[@kathypilchman3657]

I am so glad I am watching this right now. As of late I’ve been really Slippin with my vitamin D3. I have a high count and so I’m thinking I could slack. I skip it at least three times a week but after watching this I’ll never skip it again. I take D3 10,000

[@bevk7320]

Well I guess I am doomed based on all that info. Ty for giving your time and helping us gain more knowledge.

[@hcm444]

No, you are not doomed. I replied to Shannon Evans at the top of the page if you would like to read it.

[@kenguru4795]

I have been watching your videos, I really appreciate your work. After watching this video, I really got frightened, I was diagnosed after 40, I have spinal and stem lesions. I run my life more or less the same as I did before the diagnosis. (1,5 years ago) Even though I have "worse" prognosis, I still hope I can influence my life with diet, meditation and walking.

[@hcm444]

I understand your fear. I hate these videos. If you haven't heard of George Jelinek - overcoming multiple sclerosis. He had all the factors for a poor prognosis and is still doing well since his diagnosis in 1999. Also check out Trevor Wicken and the MS gym. Good luck.

[@tammybeckley694]

Dr. Booster, I enjoy listening to your channel and learning about my disease.

[@AaronBosterMD]

Thank you

[@markwebbdoesms2271]

Just caught up with this video. Informative and helpful as usual. Would love your thoughts one day on life expectancy with ‘Advanced’ MS. Trying to make plans and to live life to the full in tandem…

[@kmdemonte]

I know this is a random request but do you think you could ever make a short video about MS and the invisible symptoms but directed at family/partners? So maybe they could understand slightly better the ups and downs of MS? I love your videos but my partners attention span is only good for about a 3 minute tiktok. I’m having a difficult time getting him to understand that one day yes I can move furniture, but the next I’m a weakling.

[@billmcilwain5403]

I have been watching your Chanel since I was diagnosed and it's given me the ability to understand this chapter in my life im being selfish now when are we getting a cure or better treatment program help.

[@lisaleem9593]

Thank you Dr.Boster very helpful information. I have R&R MS diagnosed at 44 yrs old. My last relapse (optic neuritis) that required hospitalization and steroid treatment was 2015. Last year MRI had one new lesion without causing me symptoms. How does my prognosis look? Should I be worried? I'm very active and watching my diet.

[@juliebarwell8387]

I leave UK and have Ms for about 20 years. My Neurologist is very slow on treating me with any treatment. I feel like I am being left behind. The NHS here is so bad. My Ms always seems to be really bad in our spring.

[@stevecolon7732]

Is that an old printing press in the background? I grew up watching one of those in use at a local museum. I love it.

[@AaronBosterMD]

yes it is. Completely refurbished and in working order.

[@CL_Easterling]

My MS came on strong

[@pamelaalfieri382]

❤ This was amazing two years of two different Neurologist and I got more information from your video I’ve had consistent EBV Low vitamin D and a poor mean system so now I take vitamin D supplements and keep my immune system and check I hope and my lesion has not changed within two years and only one but I don’t exactly know where it is the neurologist don’t really tell me much and don’t want me to go on medication and kind of wait and see kind of look and they did not compare my MRIs to each other they just took the information from the radiologist note from the MRI basically I don’t even need a neurologist I get the notes as well I could’ve told you what I waited six months to see a neurologist for. These are all the questions that I wanted to look up separately you just answered every single one of them I’m gonna go take my supplements now and take care of myself more so I can take care of myself later❤

[@lindseymcmullen-vickers4257]

Hi Dr B, I’m from the UK and going to be starting on Ocrevus shortly. Diagnosed ten years ago and have now been told I have PPMS , my neurologist refused to put me on a DMT five years ago,wondering what your thoughts are on this. X

[@Shanny13]

I unfortunately tick the boxes of brain stem and lots of spinal cord lesions but my neuro said when comparing my most recent MRI to the one that got me diagnosed she said she could hardly see the spinal lesions anymore. Im wondering does this mean that my prognosis has gotten better? Or has the damage already been done so it doesn’t matter?

[@Shanny13]

@@orbitingdecay6797 having MS is bad enough but having it in the wrong places is an extra kick in the teeth! Sending you love

[@hcm444]

​@@orbitingdecay6797 I replied to Shannon if you would like to read my response.

[@Terricharmedackles]

So interesting and scary. My first relapse was last August (aged 41) which I have never recovered from so far. My second was in November and I was hospitalised for a week :( I have been told by my neurologist that my MS is highly active and rapidly evolving 😢

[@ludwig2018]

How are you doing?

[@byronvanderbank9046]

Good afternoon Dr Boster From 🇿🇦

[@AaronBosterMD]

Howdy

[@byronvanderbank9046]

Thank you, for your valuable insight always Doc, much appreciated Sir🧡

[@RonaldBeirouti]

Great video! I'm wondering of the definition of "fully recovered" from an attack. Is having symptoms come back (Uhthoff) with elevated body temperature or when we're tired or stressed considered not having fully recovered?

[@tanyahaithcock1627]

I love this info! Is smoke from cannabis as damaging as cigarette smoke?

[@AaronBosterMD]

I am concerned that it is.

[@emilyanne4008]

What about paramagnetic rim lesions and leptomeningial lesions?

[@pmooremoore2798]

Great info, thank you! as always I'm still confused about something though..If diagnosed over 55 w brain lesions only, but minimal symptoms, wouldn't this be a better prognosis in spite of age? MS is very confusing.

[@mariefrid9614]

Thank you Dr Boster, I would like to know if the treatments vary from US and EU countries? Or do you have the same general opinions on which treatments are suitable for a patient?

[@julieb737]

I’ve recently changed from RRMS to SPMS . Now on siponimod called Mayzent in USA . This is the only thing available in UK for progressive forms but I know there are three used in the US .

[@kevinobrien5964]

Good morning Sir , As a (ppms) sufferer for 13 years .what circumstances or scenario would have my medical provider (NHS, UK ) do nothing except provide me with a pair of crutches .Am I better than how I feel ?

[@rhiwright]

...no wonder my neurologist seemed happy when I said I'd quit smoking

[@lalittl]

Are tremors considered a worse prognostic factor? I only have two lesions but my main symptoms are intention tremors, light tingling, and some stiff muscles. I actually wondered if maybe I have Parkinson’s instead. I haven’t been diagnosed yet

[@BigLuv8]

I clicked on your Vid because I met someone recently who said he had MS, So I wanted to learn more about it... But then I saw that old WindMill Printing Press in the Background. There must be some History around that. Maybe your GrandPa ran it?

[@kathye8663]

What do you think about dx of Parkinson’s 8 yrs into MS dx? What questions should I be directing to my Neurologist? Thank you for doing these highly informative videos.

[@105C09]

I live near Pittsburgh and am looking forwad to setting up and appointment.

[@gabes738]

Thank you for your videos DR B. I have a question, if somebody has an aggressive onset, brainstem activity on the mri vertigo double vision recovers good no recurrence in symptoms after 5 years on treatment most of the symptoms don’t affect day to day life, doesn’t have any disability, has a couple of annoying symptoms when they get hot for example. Is there even any hope for the future, I’m on ocrevus and it made me get better and it’s amazing but I have anxiety thinking about what I went through. My positive thoughts are that because I’m on treatment I changed the trajectory of ms and by the time I have to worry about it down the road there will be better therapies, that’s my optimistic side, but I also think that even though these symptoms I had that were terrible have never showed up will I just eventually have them all return as I age when the functional reserve gets lower??

[@memyaccount8213]

I was wondering, do other types of smoke (like weed smoke) cause the same level of harm? & What if you live in an apartment/dorm where weed smoke comes in through the vents? Thank you!

[@valeriealv7503]

Quest: is there any movies highlighting Ms as in "Flowers in attic"?

[@lauriegray8781]

Hi Dr. Boster. Do you have any recommendations for a MS doctor near Baltimore MD? Any neuros that you know good things about or any who you may know through MS conventions or something like that? And #2. I'm not dying but I am stuck in a hole. I can't keep up with appts and my teeth have rotted from the last few years of neglect. My fatigue is incredible. I desperately need to see a dentist and a neurologist but I DO NOT have the energy to do it and the longer I sit here growing moss the worse I'm getting. So my question is do I need to go to a nursing home or something like that? My energy is so low that going to a Dr appt is daunting to me. I get high anxiety from every single doctor visit for the past decade and KNOWING that I'm going to have to advocate for myself to a person who, in my experience, will be skeptical of me and will probably be opposed to prescribing me the meds that would treat fatigue... Knowing this makes me so tired and contributes to my extreme procrastination. Having a shower the day before my appt and coordinating a ride and getting my records together and then the initial appt., Then the blood test appt, then the MRI appt, possibly a sleep doctor appt... These have been beyond my abilities to address. So what should I do? I'm so far behind on everything and I wonder if there is a way I can be brought up to speed. A place where the doctors come to me. That sounds like the hospital but I am not a medical emergency. Thank you if you answer this.

[@valeriealv7503]

Can dr .diagnoses without mri I haven't did mine in 4 months

[@karenseeley6174]

I'm wondering if there is a difference between tobacco smoke and marijuana smoke. Is it the smoke that matters or how the smoke is made? Also, it would be second hand smoke. (This question from Canada, where marijuana is legal).

[@Faebles.online]

What is meant by a shrinking lesion? I had one on my last mri last year and due my next mri in November x

[@tfilmz]

I’m a 34 year old male with PPMS, i was diagnosed in 2022, i feel my symptoms are getting worse 😪

[@annem7806]

Can pneumothorax(s) have any association w/MS? (1st L)was from injury, but 2 (R) & 3 (L) switched sides. I have had laproscopy for endometriosis in 4 areas of my abdomen.

[@elizabethgrizo9956]

What would attacks on your lower body mean ie. inability to walk 🚶‍♀️ and run

[@Haghenveien]

I have a question, in the case of people of colour having a worse prognosis, that's because biological factors or socioeconomical ones? I mean, having more difficult access to health care, difficulties in getting an early diagnosis, more effective but also more expensive DMTs , different therapies...

[@TheresaMadame]

Great question! Physician racism and prejudice against disabled patients of all colors as well.

[@marieandresen4060]

Thank you for this! ❤ I have never had an MRI that’s shown my spine & my next one (of my brain only isn’t til 2025, Dr’s preference, last one was 2021). Am I within my rights to ask for one of my spine? It seems like I have to PUSH him to do anything. 😢 I do have a pituitary tumor that has so far not affected my optic nerve. I have a neurosurgeon watching that. ❤

[@dejv8581]

Hi. I have RRMS for 2 years. When i will start kesimpta now, it is Hope to be in good condition after 20 years ?

[@btsphysio4854]

So….basically I’m in trouble. Got lesions brain stem, spinal cord, cerebellum and multiple in both cerebral hemispheres. Radiologists don’t even bother to count 😢 This was the state at diagnosis. I should really hope I get rich quick, quit my very stressful 9-5 job and make the most of what could very well be my last ‘good years’

[@hcm444]

Your post is sad. Try not to think like this. Chances are you will do well. I replied to Shannon Evans at the top of the page if you would like to read it. Good luck.

[@RonaldBeirouti]

I feel a bunch of those unmodifiable risk factors are not independent: being a man, having a later diagnosis, having a bunch of lesions on the first MRI, having progression 🙂

[@lorifoster8637]

Ok, I have had MS diagnosed at 40 and am now 56. All of my symptoms have subsided and am still categorized as RRMS. I’m now experiencing severe left leg spasticity and using a rollator. Ok, (cringe) I AM GUILTY of continuing to smoke cigarettes. From what you said in your video, the modifiable risk factor of stopping smoking can reduce my disease progression by50%…question…could stopping smoking reduce my spasticity???

[@lorifoster8637]

I know it is a “no brainer” that I need to stop. I just feel so defeated. I know that’s not an excuse to keep smoking…just respect your opinion and would like to know if quitting could help my spasticity…please.

[@artempo8722]

When I smoke, my symptoms get worse. I have a tremor and weakness of the hand. If I stop smoking, the symptoms go away.

[@miguelboricuapatientlongsu1855]

I had been addicted to Cigarettes for 20 years. It was hard to stop.

[@CONTROVERSYRISING]

OK..... if smoking is a modifiable risk fact, so is diet and you claimed last week that there was no diet that could slow MS. Smoking impairs the removal of CO2 from the body, a low carbohydrate diet has the same positive effect ceasing smoking does.

[@daevid3927]

I was diagnosed at 21 last year. After my 2nd attack, it went down my legs and made me relearn to walk. My first attack was in my hands/bladder issues. At first i thought i had Carpal tunnel and was actually diagnosed with Cubital tunnel syndrome.. I've had no complete recovery in my hands nor legs. I recently started Aubagio, Ditropan XR 10 mg for the bladder issues crazy to me how my entire body starts working differently all of a sudden :( I still don't know what kind of MS i got, my neurologist don't even address my questions

[@nele7895]

😰

[@sherristevens3972]

Agreed 👍 but i like smoking. Tell them to stop putting s*** in it. Truthful 😎 👍 im 53 smoking since 1984. Truthful 😎 👍 ive quit b4 and slowed down. Amen 😎 👍 my age group an then some was exposed to crap today's kids weren't. Truthful 😎 👍 my dad has ms. My 2 cousin's. Myself. My question is how can they say its not generic and well the ms deal sux. AMEN