My CIDP Journey to HSCT (Hematopoietic Stem Cell Treatment)

In May 2019 I was diagnosed with a rare auto-immune disorder by the name of Guillain Barre Syndrome. Then, in November 2019 the diagnosis was changed to a rare auto immune disease by the name of Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). With several relapses and dramatic episodes of taking two steps forward and four steps backward. My hope, in recording a timeline of the events leading up to my decision to do Hematopoietic Stem Cell Treatment, is somewhat of a moving target for me; full of a rollercoaster of emotionally charged moments. That being said, my over-arching hope is that my documentation finds its way to someone who needs it. God only knows how much this would have been a support for me in my time(s) of needing answers. So here it goes…
* Join me in my HSCT Journey to Beat here linktr.ee/marc...

[@katebuckseall1414]

I have CIDP. 41 years ago, I was diagnosed with GBS after giving birth to twins. 38 years later, I had symptoms again and after 12 months was diagnosed with CIDP. Every 6 weeks, I have IVIG. Relapses occur, some worse than others. At least this immune disorder is not lfe threatening but life changing. I'm better off than many people. Stay positive.

[@MzeeKigogo_]

How much did you pay? Did you get recovery