My Clinical Experience with SOT for Lyme Disease

SOT is a relatively newer treatment for Lyme and co-infections. But does it actually work? Studies are limited, so clinical experience can give us some insights.

[@kelseygallo53]

Thank you for taking the time to share your clinical experience knowledge

[@creativegirl9710]

Thank you. I'm doing this soon. Blood has been shipped off to Greece. I've been in pain for 10+ years. Diagnosed with Chronic Lyme in 2016. By then I had pain from head to toe. It seems I've tried every alternative therapy since. Ozone was the most successful but couldn't get me to normal. Now I can't do infusions anymore because that Ozone Clinic scarred my vein. The clinic I'm going to now tested me again, (3rd time since 2016) and that damn Lyme is still lurking. SOT treatment was recommend along with ozone. But I just can't do that to my veins anymore. It's been a nightmare. One tick bite as a child which was ignored. Odd symptoms my entire life but somehow got by until my health took a nose dive in 2013.

[@newhopehrc]

So sorry to hear! Best of luck with your SOT!

[@creativegirl9710]

@@newhopehrc thank you 🙏

[@davidkanyok3579]

@@creativegirl9710 Hi, I believe that there are other ways to receive Ozone. What every other alternative therapy seems to help you the most? Thanks! If you don't mind?

[@concernedcitizen780]

Is “ double dapasone” or disulfiram a possibility?

[@creativegirl9710]

I did try disulfiram a few years ago after doing 1.5 years of ozone and still not getting to "normal." I got a super low dose, took once a week and did terribly on it. Incredible fatigue almost like being in a coma. I wanted to die. Did not go well. I did do SOT for Lyme 4 weeks ago and recovering. Stiff as a Tin Man at this time. Waiting for a miracle. @@concernedcitizen780

[@TODD7]

Thanks for the video and sharing your experience truthfully. I’ve been in the sot facebook group for about 8 months and learned a lot. Basically anything that isn’t being treated with sot or other herbal/antibiotic therapy will flare. Seems about 50% need only one sot per infection. Mold and heavy metals may be the factor why some need 2-3 sots per infection, other than not enough molecules to hit all the bacteria in 1 sot. Bad infected root canals and dental cavitation from tooth extraction are going to be probably the main reasons why patients don’t respond to the treatment. Cross reaction on tests and having sot done for an infection that isn’t there but just cross reacted positive on a test will neither have any positive or negative benefits. There are patients in the group who had sot for Lyme or co infections done 6+ years ago and they are still in remission so they are likely cured of the infections they did sot on. Some have major mcas reaction when doing Bart sot. Detoxing is a must. Unfortunately there are strains of bartonella and babesia that have no tests like odocoilei or venatorum so those patients can’t get better using sot if they can’t test positive and have the sot made. That’s basically everything that I’ve discovered that is significant. Yes I have done sot for BB on myself about 9 months ago and had improvement but also have Bart, babs, ebv, mold, maybe some mercury and parasites. Working on that and will retest soon to see if my #s are good on vibrant. Usually takes 6-12 months for proper sequencing for bb( Lyme )

[@creativegirl9710]

Thanks for the post. Good info. I'm 4 weeks out from the SOT for Lyme. Chronic Lyme here, went undiagnosed for 40+ years. I thought having aches and pains come and go was normal. Now looking back I had symptoms in my childhood & teenage years that went completely ignored by my family. Tick bite was about age 8 or 9 best I can remember. And I didn't know one bug from another at that age. So nothing was done about it back then. Hit middle age and just seemed to have more and more pain issues that didn't make sense. Took forever to get a diagnosis and even that ND (supposedly Lyme literate) let me suffer for 6 months/6 appointments) before suggesting to test. Just unreal looking back. I did treat/focus on Bartonella for 1.5 years after initial diagnosis with all the herbals possible. Then did ozone 1.5 years. Still suffered with pain. Recently took the Vibrant test and BB and Bartonella still lurking. Preying to God SOT works for me. I'm at the end of my rope. I've had nerve pain in my left foot since Oct. 2015 and tried everything! It's a million dollar foot at this point.

[@TODD7]

@creativegirl9710 yeah unfortunately even Stephen Buhner the master herbalist says that herbals alone is usually not sufficient in curing Bart, herbs will only put Lyme in remission- I talked to plenty of people who went to Lyme Mexico and that treatment also failed, seen their vibrant and still everything is positive, If you only have bb and 1 strain of Bart then your case should be easy 1-2 years to deal with it if you need repeat sot, some have needed 3 bb sot some only 1, depends on bacterial load and your immune system response, make sure you detox and aren't in mold or the dental issues I listed above and you should do well. Make sure you go to a good clinic where they reconstitute the sot properly and they use the premeds and steroid during the iv procedure

[@YesPlease1]

What do you think of herbal treatment without antibiotics? Is it insufficient? I've read many stories of bad outcomes with antibiotics and am scared to use them.

[@TODD7]

@YesPlease1 herbs alone can work great. But you need to combine multiple herbs for each infection to successfully treat. Stephen Buhner has great protocols for Lyme and co infection, make sure the source of the herbs is high quality and you detox and have a clean diet. Herbs work slowly so it takes usually 3-6 months to have significant impact. Herbs are taken 3x day Space binders 2 hours apart from any food or supplement. Infrared sauna is a better choice than binders to help detox or even coffee enemas also work great.

[@creativegirl9710]

Did you do SOT for Bartonella? My Vibrant test is borderline positive. @@TODD7