My experience with OSTEOPATHY for ME/CFS and why it might help (Perrin technique)

[@AhmedHOmar-vz4qz]

It seems to have something to do with connective tissue and misbehaving genes ,like the trifecta of diagnosis of Pots , Ehlers-Danlos syndrome and mast cell activation ,it seems to be genetic predisposition activated by epigenetic factors under stress conditions which implicates neurotransmitters, nutritional deficiency by elements of gut dysbiosis which goes in a negative feedback loop by vagus nerve dysfunction and that controls heart,gut brain axis, hormonal feedback axis to the brain, swallowing and even diaphragm dysfunction causing breathing disorders. Of course the conventional doctors are trained on organ pathology and very rarely can they comprehend the organism as a whole and the multisystem pathology that's going on.

[@angelbryan98]

Do you know if crackling and popping noises of the large joints are a symptom of connective tissue disease? I am not hyper mobile and all started after a I was injured by a vaccine in January.

[@truemecfsuncensored1022]

Great video. One of the key issues people with true ME/CFS report is a strange buildup of pressure/pain occurring in the T1 area. As this pressure/pain builds in the T1 area for many, very clear and serious neurological issues will start to manifest and/or present. I personally explain/report this issue as (my head feels like a bowling ball on a stick feeling). So many neurologists are missing this very clear neurological detail. One thing I would point out is Folks with cervical stenosis should be very careful using this process and in many cases would likely be denied this as a treatment option. Stay well and safe.

[@me-cfs-strategiesforhealing]

Thanks very much. Very interesting comment - 'bowling ball on a stick' feeling resonates with me. I had an X-ray done which shows an overly straight spine just in my neck area. The Perrin osteopath told me that would have been caused by a physical trauma and would change the signals in the ANS. I really appreciate your channel btw.

[@gilliankavanagh169]

Hi Patrick. This is how i was diagnosed with ME/CFS & Fibromyalgia. I actually went to the Perrin clinic in Manchester and it was enlightening as just by looking at my spine and posture without any touching i was diagnosed after 23 years. Some issues in my past like a broken left clavicle, a fall where i banged back of head were main factors. Also the fact i was a trampolinist for many years. Plus with a long history of stress and anxiety. I would love to talk to you regarding what happened to me during my sessions and since stopping them for various reasons my condition has deteriorated. I agree with your ideas around this technique and would be willing to talk to you regarding this. Let me know how i could contact you to discuss this. Thanks Gillian

[@angelbryan98]

There is a guy on reddit who claims to be cured of three years of Long COVID after going with the chiropractor and even ran a marathon after that.

[@me-cfs-strategiesforhealing]

Wow, that's very interesting!

[@jipa3883]

Thanks again Patrick for an amazing video. This was an Aha-moment for me almost, I am severely ill in LC/ME since March 2020, but have had back problems my entire adult life (I am 39 now). So I will look into this as well and see if there is an osteopath with Perrin skills in Sweden where I live. Looking forward to hear your progress, and good luck!

[@me-cfs-strategiesforhealing]

I’m so glad the video was of help. I’d be interested to hear if an osteopath says you also have the rigid thoracic region so please do let me know.

[@jipa3883]

@@me-cfs-strategiesforhealing Currently I know I have scoliosis. Sure, I will let you know, but it will take time as I have other medical problems and appointments of higher priority first.

[@me-cfs-strategiesforhealing]

Ah, interesting: I have some scoliosis too. Best of luck with your current treatment plans.

[@jipa3883]

@@me-cfs-strategiesforhealing Thank you! (Ps. My legs are also a bit different in length, as a consequence of a rare hip disease I had as a child. I believe this created scoliosis and back problems later in life).

[@me-cfs-strategiesforhealing]

Very Interesting…When I look back now, my spine was always not quite right in comparison to peers. Perhaps some me/cfs patients have a poor spinal situation which later predisposes them to excessive toxin buildup in brain, triggering of ANS dysfunction and ME

[@MorganMedia23798]

Recently started deep tissue lymphatic massages! But my main pain is always in my neck Esp the middle part of my neck and collar bones. Always been very veiny in my chest and had lots of back problems in my life

[@me-cfs-strategiesforhealing]

Interesting. So many of us have back and neck issues! How is the lymph massage going?

[@davidkohl8962]

Thanks Patrick, Glad to hear this has helped you with your symptoms. Might sound strange but have you ever tried giving blood on a regular basis? Do you think that could cause a reduction in symptoms as opposed to Apheresis?

[@me-cfs-strategiesforhealing]

Thank you David. No, I haven’t tried that. I’d be scared to given the low blood volume. However I did come across someone (vax injured) who said that she paid a phlebotomist to take blood on a regular basis and that this improved her. Perhaps doing that will reduce the load of some of the microclots and aabs. Also came across someone who lost a lot of blood from an accident. He said he also felt better (once on the mend from the accident). Would you think of trying that?

[@davidkohl8962]

@@me-cfs-strategiesforhealing yep.. I’ve booked in to start doing this.. I’m in Australia and unfortunately cant test for any of this stuff here.. I figured if there is something in the blood then getting it out wouldn’t hurt.. and counting on my body to replace it with “clean” blood

[@me-cfs-strategiesforhealing]

Best of luck David. Please let me know how it goes