♡ My Feeding Tube is Broken! (15th-17th.04.19) | Amy's Life ♡

[@karamason7605]

You are so strong Amy. I've had quite a few medical issues and so on. I was also on TPN for a little while, but my access was through my arm which was super annoying. I don't think you realise how strong you are. I know that we all have good days and bad days, but you give alot of us ( Amy's Amazing Army, hehehehe your followers) so much help, insight and knowledge. I just want to say a BIG and HUMONGOUS thankyou and Good luck or today ( I think it's today LOL). And also You are strong, You are amazing, You are smart, You are inspiring, You are beautiful, You are friendly, You are helpful, You are awesome, You are wonderful, You are kind, You are caring, You are sincere, You are funny, You are giving , You are loving, YOU ARE........ AMY!!!!!! Please don't ever change or feel like you are letting us down in any way and you definitely are worth it for nowand always.

[@amyslife4457]

Kara Mason omg thank you so so much! ❤️❤️

[@SuperCsokiii]

Even though I'm only half way through the video i just want to leave a little message to you. 💕 As for someone who struggled with mental health and body positivity i know it's a lot to handle. Get the help you want because you deserve it.💕 In my experience mental instability comes when we can't accept our phisical problems and such. It is hard it takes a lot of effort but I am sure you'll pull it through. You've already been through so much, and you deserve to be happy. Also don't worry about your tube too much, if they will replace it with button tube later. If the dangleing tube causes you less discomfort and pain. I'd rather go for it. And that it sticks out oh well, it doesn't worth to be stressed about. It's your body's way to show you that you are fighting. Everything will turn better for you. 💕

[@aristahenriot7450]

Hoping that they can fix your tube for you. You are right about asking for help if you really want things to change . Thoughts and prayers coming your way ❤️ x

[@angelaturk7409]

Hi Amy! I want to thank you for speaking about physical and mental health. I live with severe chronic pain and struggle daily with both of those and yes, it is very difficult to deal with. I can't tell you enough how much I appreciate your vlogs. It feels as though I have someone out there who knows how I am feeling. I am so inspired by how strong you are to still get up every day and live your life. For myself, I am at a point where I don't go out anymore very much due to pain or mental issues. Thank you so much for sharing your life, because for me, you are a comfort and you give me hope. Bless you and keep staying strong ❤

[@trickyt21]

Tom really makes me giggle!! I love his sense of humour 😂😂

[@amandaanderson8254]

Yess! Seeing a therapist now for depression and dealing with my chronic illness. It can be so overwhelming. I feel for ya chick and that totally sucks about your tube. Hope things work out for you. Love how relatable you are .

[@mollybarry1808]

The moment I admitted that I had and needed help mentally they said that all my physical problems around my chronic illness was “behaviour” related which is far from the problem. I hate it when they assume things instead of taking on board of what I’m telling them and how I’m feeling. I don’t understand why they can’t listen to me 🤷🏽‍♀️

[@Renfrye]

Same. As soon as my doctors found out I had anxiety, they assumed most of my symptoms were mental, including my cardiac symptoms. It took almost 2 years to convince them to do actual tests. When they finally did they discovered I had hEDS, arrhythmias (fortunately benign), P.O.T.S, asthma, and gastroparesis.

[@sabrinaward622]

I have gasptroparesis ehlers danlos and POTS too among a lot of other conditions and I am currently NJ fed so I know the pain of a new tube!! I love you and your videos

[@idkwhythough1411]

Sabrina Ward I have everyone of those too! Sorry to hear about the NJ tube, I had one and it was torture!

[@janetlambert371]

Sending prayers and hugs for your procedure 🙏❤️

[@lisawinters4681]

I will be praying that your tube is able to be fixed!!!! I know how much it suck not know if when you wake up what kind of tube you will have. Also how stressful it is to keep going under general anesthesia. You will be in my thoughts and prayers. Hopefully you will update on Instagram how it goes!!! Sending you lots of hugs and love from Oregon!!!

[@jasslily]

good luck amy! and thank you so much for addressing the issue about mental and physical heath, one of the first thing my doctor said to me when I started having GI Issues was that it is all down to my mental health which is so frustrating and not spoken about enough so thank you for addressing it and I wish you all the best with your tube situation xx

[@Fowlersyndrome]

Good luck for tomorrow hun, I get how anxious you are feeling as general anaesthetic for us IF patients is high risk, I’m no longer allowed to have GA anymore unless it was life-threatening situation and I needed GA as my life depended on it, I have to go through all my procedures with lots of sedation or they do a spinal nerve block similar to an epidural it numbs you from waist down & this is how I have all my peg and button surgeries or any other tummy surgeries. Anyway I’m babbling too much now lol 😂 just wanna say I’m sending you loads of good luck wishes your way and pray all goes well for you Hun. ❤️❤️

[@Lloyd-Black]

You're such a beautiful person in general. I wish you were in better health. I deal with some multiple health issues but not nearly like yours. Anyway, hang in there, you're an awesome person no matter what. I've watched your videos for about a month now and some past videos. Just remember, you're very brave for going through everything and many people are always wishing you the best in everything.

[@billiebluesheepie2907]

Wishing you all the best for tomorrow, at least you can have tpn - I waited three days for surgery with nothing but water for an hour each day because general anaesthetic doesn’t seem to work for me (not something I want to describe the day before you get surgery!) and I have spinal blocks/sedation instead, so kept getting bumped down the list.

[@ericataylor2292]

I had the fun time of getting my PEG changed yesterday. Was supposed to be at 1pm...happened at 5pm. On the plus side they measured me for my next tube so I can have a button! I know exactly what you were taking about with clothes not fitting right with the PEG tube dangling down. I struggled that with my outfit today.

[@itsanorristhing3825]

Your so right about the mental health. You channel is so informative. Your are truly speacial.❤❤❤

[@norajung4513]

Such a bummer that your tube broke. Hopefully they will be able to fix it so you won't be sick anymore. Something on the things that make you go humm with vampires!? I might know. Sending you all the good vibe and positivity for a easy surgery. Wanted to add how proud I am of you for recognizing that you need help mentally and physically. It is very hard to find a balance. I know we try to help, but it is just not enough sometimes.

[@blakemama]

Good thoughts headed to you! I really, really hope they can fix the broken one. That's my mantra today.

[@Epona124]

Amy is amazing! That's an understatement I guess. Amy, you are a beautiful young woman and so very positive in everything you do! You have been through so much in your young life and so many of us should truly be inspired by your courage and love of life! God bless you dear.🤗

[@EllaJane1992]

I hope you can get your tube fixed Amy! I’ll be praying for you ❤️❤️

[@skyalliyah9127]

Good luck Amy! You’ll be fine you’ve been through so much this is just one of those things, but you’ll be fine girl. Keeping you in my prayers ❤️

[@brittanywoodman6559]

Best of luck with fixing your tube you’ve got this girl

[@lollipop1639]

I hope you get your tube fixed soon x

[@Brandi.65]

Love you Amy and I’m sorry you had the feeding tube break😢hope all goes well and you feel better!

[@lorileewalters2018]

Oh my goodness I relate to you and these issues so much!! I’m battling with both, both physical and mental health affect everything. Thank you so much you’re helping me as I deal with my health and anxiety and OCD issues. Much Love to you♥️‼️

[@rmjames83]

Goodluck for the tube fixing!!! It’s horrible having to go under-but I guess better than having to have a traumatic procedure done awake. We are all cheering for you!!! (As a nurse that can no longer work due to health issues), I was just wondering if you tried Coke/some other carbonated drink down your tube if it’s suspected that it’s blocked-it usually works in my experience. Just a suggestion-that is probably useless to you right now, but may help in the future!!! But if it isn’t blocked, and possibly kinked instead, unfortunately the fizzy drink won’t work.

[@ejdoug8328]

Good luck tomorrow Amy!! I'll say a prayer that they can fix your tube.

[@hollywittenberg7031]

Hope that tube get fixed ASAP!

[@alysonjade2461]

I know you've already had your procedure, but I still wanted to wish you all the luck in your current medical journey. I hope they can get your tube fixed sooner than later since I know in your next vlog you talk about the nose hose being back temporarily. Sending you lots of love!!!

[@sharonlifsey2991]

I will pray that you are able to get your tube fixed. I hope all goes well.

[@paincreatesfame]

I hope you can get everything sorted out and back in order soon ❤️

[@lottiatbeaniecodesigns4681]

You two crack me up lol 😂. I have to have teeth out under GA or under sedation. The last tooth I had out has left me with an underbite. I’m now under maxillo facial team to reset my jaw, bloody arthritis!! You are looking really well Amy, I know you struggle daily but your you are so much stronger than you realise. Chin up girl and I hope you get your tube sorted 😘🥰

[@denbywilliams4348]

It’s amazing how you want to share your story with others to help them get through tough times 😍 you an an incredible person and great individual in the KZbin community 😘 love your videos 💗 please carry on bringing us enjoyment, laughter, amusement, creativity and extreme kindness 🥰 love you with all my heart 💓

[@marieked]

I wish I had a guy like Tom. You’re very lucky! Hope they fixed your tube.

[@janepovey3652]

I really hope everything goes well for you Amy. You are such an inspiration, I look forward to watching your videos. xxx

[@bestronglaboron313]

Good luck! I'll pray that everything goes well.

[@pauldevery6173]

Good luck. It's almost midnight here on the US east coast, so it's probably lunchtime where you are.

[@chadbivona3572]

I hope you get your tube fixed and all will be good.💙

[@Katie_Jo_21]

Good luck girl. I am sorry you r so nervous. I am sure they will have the knowledgeable staff to sort it out. Hugs.

[@saawwah]

Wishing you all the best for tomorrow Amy..or rather today..lots of love from the UK xx

[@NatashaAnne1994]

Good luck to you Amy! I hope everything goes well! ❤️

[@natashacorrigan6917]

With the back pack the velcro bits you put together at the start go on top of the second layer, thought I’d let you know for next time! So you put the left big panel over first , then the velcro bits from the bottom followed by the right sided part. I hate the back pack to it’s so ugly 🙈 been trying to find a alternative for ages

[@sage-mareemandich156]

I had all 4 wisdom teeth out under general, it wasn’t too bad. Better than having them with local, as I just had 2 molars taken out on 16/4/19 and it kills (had to have them taken out for my braces in 2 weeks)

[@chronicinokla]

I will be praying 🙏🙏 🙏🙏. I have been going thru shit as well. I've heard good things about app headspace for a bit of self therapy. I've got to give it a try. Because like you I don't want to bring any emotional days up to any Dr for fear of them over reacting or insisting I go on antidepressants. I feel we chronic illness suffers deserve to give our selves a break. This shit is hard. And there truly are going to be times where the positive attitude and things just aren't enough. So anyway I hope you do well with tube fixing. Much love to you and Tom

[@roblisa100]

Aww girl!!! Good vibes sent...best of luck!

[@willowgggw]

Oh my goodness. I can totally relate to the mental/physical thing where doctors mix the two up 🤔

[@Roxy-wc1lb]

me too. it makes things extra tough.

[@sophie-pj1fm]

Omg yes same but the other way round i have chiari malformation, which causes rlly bad headaches etc, and the doctors thought that I just had anxiety(cus I kept throwing up) it was so annoying because I really am 100% happy! Anyway I'm fine now jus I had brain surgery( lol u didn't need to know that)

[@sarahnelson4740]

Good luck 🤞 Hope it all works out for you. Stay strong girlie. 💕

[@miswelch1]

Sending hugs & prayers, good vibes!!!!! Love u, Amy, you are an inspiration

[@melissahesketh486]

Good luck for tomorrow chick. Will be thinking of you xxx

[@HollyGrace90]

Turned my programme off on the tv to watch this lol 😂 love you Amy! Oh and you should do a Q and A with your mum and then with your dad 😁 would be good to see them more.

[@amyslife4457]

Holly T aww bless! Love you ❤️❤️

[@rebeccaingram980]

I never used. The TPN backpack just use my cath Kidston one as connected 24/7 and that backpack. Is so heavy!

[@motherofalienspawn7065]

Praying everything goes well for you!! Love you loads!! 💕💕💕

[@sophie-pj1fm]

I just had brain surgery and had to be attached to soooo many machines and had a Catheter and 3 cannulas, I literally cannot imagine how frustrating it must be to be attached to tubes 24/7 You are amazing!❤❤

[@thaliaoneal3847]

I have a feedingtube botton it barely brake but it dose clogged up sometimes I hate it

[@kellyhinde4048]

Gd luck for your tube hun love all your vlogs xx

[@lylasurvivor9719]

All the best for tomorrow!!! Hugs, love and prayers that they can fix it!! ♥️🙏🤗🙏♥️

[@carolnoetzelmann82]

Good luck girly you got this

[@ayellessnuffelhoek]

Good luck hun. Hopefully they van Fix your tube!

[@Alluska]

Im not getting help from doctors for my physical problems because i have been diagnosed with depression and anxiety so they keep blaming them even tho im feeling sooooo much better mentally and its more than frustrating

[@kerrimcvinney6081]

I know the feeling. I'm only 26 and I'm on oxygen with many health issues. Because I'm so young I'm finding it impossible to get help with my pain. It's so completely awful I have problems with just getting out of bed because of the pain.

[@devonlacava4346]

You got this! Everything will go well, just lean on your family, friends, and of you all of us! I personally would like to see more fashion videos, as well as make up videos. Lots of positive thoughts your way. As we say in Massachusetts your "wicked awesome" 💖💖

[@andreafrost9814]

Wishing you all the good thoughts in the world..LOVE YOU

[@WorthyMissJ]

But, you NEED the drainage NOT the ng! The ng isn't going to do enough for you which is why you have the button, obviously! The doctors have GOT to think this shit through! Love you, girl! Keep smiling!

[@jessicalong3566]

What age did you start have feed tube on your body

[@janadams2978]

Sending you lots of good thoughts and praying it goes how YOU want it to. Stay strong Amy sweetheart 👍😀

[@eduardopadilla5505]

Awesome idea of your back pack Amy!

[@maddiehook8326]

Your in my thoughts! Everything gonna work out ♥️

[@lisaioannou6758]

You will do great. Sending many prayers 🙏🏼🙏🏼 and lots of love. 🥰🥰

[@rebeccahwark8838]

Fingers crossed Hun!

[@WackyLisa]

Could you do a video on ways you keep your teeth healthy with gastroparesis? Personally I find brushing my teeth hard when nauseous. Plus I’ve done so much damage to my teeth that dentists ask if I’m bulimic or and alcoholic. Good luck with everything.

[@WolfQveen]

my wisdom teeth also cant be taken out at the dentist but i dont have anyone to come with me and take me home so im just waiting til they hurt to get them done

[@charlottebouglas7557]

Good luck Amy

[@Briuv]

where did you get that grey fuzzie jacket, i loovvveeee itt

[@sherriestewart8765]

Whats in your bag /purse

[@yogabirds]

How much and for what are you using your jtube right now? What size is the g tube and how much are you draining how often? Are you doing any jtube feeds?

[@amyslife4457]

BottleBabies Reborns I use my J tube for feeds 3-5 hours a day and I use my G tube to drain throughout the day as I feel like I’m going to be sick. Usually first thing in the morning or throughout the night are my worst times!

[@yogabirds]

Amy's Life have you ever tried hooking a drainage bag to your jtube when it’s not being used? We thought I only had gp. Turns out my intestines were slow too. We were able to help quite a bit with abdomen pain and bloating with the drainage bag. I was hoping you weren’t using both tubes enough to need both😞. It would be a lot easier to not have the gjtube, having 2 separate tubes is easier for changes and broken tubes because you can do them yourself. But the jtube surgery is absolutely horrible and I wouldn’t suggest it for you at this point. I have a feeling your intestines are just as slow as your stomach or they would have been able to get you off of tpn and weaned back on tube feeds. If that is the case, you may be able to ditch the jtube altogether and just depend on the g tube. The stoma you have now is a gtube stoma with a j tube fed through to your intestines correct? If so, I would recommend placing or drinking 30ccs or so of something bright blue(koolaid) and then hooking a drainage bag up and seeing if and how long and it takes to go through. If it is going through to the bag, then crushed and liquid meds would also go through. You would have to not eat anything an hour before meds, drain your stomach, and then administer crushed meds. You could do gtube changes on your own as needed. I wish we had quick easy solutions! Nobody should have to deal with this! I quit absorbing oral meds a few years. After not using my jtube for anything for one month to see how bad it would be if I couldn’t drain, we pulled it. Best decision anyone had made in a very long time! The tubes caused more pain nd trouble than they were helping at the point. My disease is a lot more advanced than yours right now and I doubt your medical team would feel going tube free is a good option for you now. I’m sending Hugs and healing thoughts your way dear!

[@leukaemiasurvivor4536]

I found that when I had my Hickman I could never put my arm above my head on the side with the line without it feeling like it’s going to come out 🙄❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️

[@taradaycatalortaraifyourno8482]

Just started the video but I need your fuzzy jacket thing. I'm always cold for my chronic illnesses.

[@ajwho4177]

You're in my thoughts and prayers! ❣️

[@zielwanna1]

Good luck girl.

[@ColleenBeautyAndMore]

Where is your fuzzy gray jacket from? 😍

[@amyslife4457]

Colleen.Taylor ALDI xx

[@ColleenBeautyAndMore]

I'm going to have to keep an eye out for it at Aldi's in the states. 🤞😊 Thanks!

[@maryfrazier6260]

Keeping you in my prayers

[@VelveteenBippy]

My husband changes my mic-key tube at home. Is it possible for them to give you a spare mic-key kit so you can change your tube at home?

[@nikkitibbs7605]

Idea: You and Tom could do the earn the most in 24 hrs challenge. A way to get some coins lol. Wishing you healing and mental strength. Be blessed young lady😘

[@amyslife4457]

Nikki Tibbs how would that work?

[@nikkitibbs7605]

Put this one on the back burner. It might take planning and creativity. It's #42 on trending...

[@roblisa100]

Where did you get that beautiful sweater??? Loving your videos as always!

[@purplestripes3437]

I have the same jacket, I got mine from Aldi

[@S.B.2011]

Why wouldnt be able to just replace the button if needed?

[@greeneyes12346]

They have to be specially ordered for some.

[@amyslife4457]

My hospital don’t have them in stock they have to be custom ordered

[@S.B.2011]

@@amyslife4457 oh ok, i didnt know that. I dont have a feeding tube but i know here in the US they have the patient have an emergency button kit at home to bring to the hospital in case something happens. I hope they will be able to repair yours. I remember how the long tube was tough for you.

[@xoviolet32]

Its so crazy watching these in America sometimes right when you've posted them because you already have footage from Wednesday night, but its only Wednesday afternoon right now for me... its like you're a time traveling hahaha

[@amyslife4457]

Amanda Franco maybe I am time travelling 😂😂 although I did stay up till 4am my time editing for you guys ❤️

[@maryhurst7038]

Good luck !

[@EllaJane1992]

Yes please do a make up video. I’d love to know how you do your make up and I’d love you and Tom to do a QnA xx

[@Astrid591000]

Good luck sending good vibes xx🧚‍♂️🇬🇧❤️

[@damonmad02]

this might be a stupid question but how do pumps know when the tpn or feeds are finished and don't just keep pumping air? x

[@Heather-Hope]

you put in the rate and amount you want it to pump, say 42ml per hour for 24hours would give 1,000ml/1L total

[@damonmad02]

@@Heather-Hope ah OK thank you, I don't have eds so was always curious about this xx

[@1991jessica18]

Hi my name is Jessica and in 2007 I got sic. I had meningitis that turned out to be a strouk. I have had a track and a gtube. I did have.to come home with the gtube in for 1 week and then my mom tuck it out . it kind of tickle when she tuck it out. I love hearing about your life sroeys.

[@aricakathryn1519]

I like your makeup videos and u can do one with OCD I have similarity to that I dwell on things to much I hate the feeling

[@RH117]

Chemist as in a pharmacist?? In the USA chemists do lab work and make meds whereas pharmacists dispense your prescriptions (meds). Terminolgy is different I guess.

[@millielovesteal2346]

Fingers crossed on the button fix huni xoxo

[@maisyforrest-hay3570]

I’m really confused do you live in America or England x please answer

[@seannacap7360]

she lives in Australia

[@amyslife4457]

Neither 😂 I’m English and I live in Australia 😅

[@maisyforrest-hay3570]

Amy's Life thanks I just got confused because if the accent that makes so much sense x😂😂

[@sarahlouise598]

Love watching your videos hope your well xx

[@jessicarobinson8869]

Good luck tomorrow!

[@jessthehorse2254]

Hope all goes well 💕💕💕 sorry about the tube, my heart sank when I read the title

[@greeneyes12346]

I had my wisdom teeth out on March 21

[@curtisbemis6640]

When she soad I woulnt wake up again I started crying , she was such an amazing person and my gielfriends best friend. Amy was so important to worry yet I live a life that's worthless.. if I could exchange it for hers I would in a second. L

[@marycatherinesmart4366]

Good luck