My journey with endometriosis | Morgahna Godwin | TEDxBundaberg

[@nikkimcbride696]

Had a hysterectomy and endometriosis and scar tissue on my colon and my ovaries covered over in scar tissue and stuck to my colon. Nearly had my colon resected. Been ill for years. Doctors telling me I'm a hypochondriac. Been suffering for nearly 50 years with no answers. Has been miraculous. Can't wait to see my gastroenterologis t and educate him. Sadly, the diagnosis and treatment of endometriosis has not changed since my mother's hysterectomy in 1964.

[@neetaagarwal7326]

Hi Nikki....i am getting a surgery to clear advanced endometriosis done anytime soon...it has impacted my bowel,intestines,bladder and everything in between....your experience and words of wisdom solicited

[@cleocatra9324]

Yes were all effing hypochondriacs according to these quacks who dont do their job.

[@kendraanthony9120]

Thank you for this. It took 7 years for me to get diagnosed and it’s been overwhelming and difficult to deal with because I feel like nobody takes it seriously in society. The way society treats this disease and the healthcare system around it makes me so angry that I break down crying. I needed to hear this to know I’m not alone in feeling this way.

[@sinchana3703]

Even me too facing same problem nobody and no doctors can understand what is this and it's solution

[@krushtonpaul]

How does one get finally diagnosed if they keep saying my tests are fine ! I’m in pain weeks at a time . In pain more than not

[@retrohexdesign3653]

Such an important message. From someone who has also lived through endo, researching it myself when it was unknown, it's so encouraging to see support for women. Great talk

[@MorgahnaGodwin]

Thank you for the kind words :)

[@inaratumu3757]

@@MorgahnaGodwin hi there I was also told the same thing from a doctor and given the same meds. I don't know what to do as I feel like there is nothing that can be done. However I would like to know more about the plant based diet and types of exercises I can do, being that I used to always go to the gym but barely go now. I hope to hear from you.

[@Al3nd13]

After 15 years of suffering,I’ve been diagnosed with endometriosis recently . I was misdiagnosed with irritable bowel syndrome …very painful journey 💔 thank you so much for this .

[@gloriawhite2214]

Have you tried herbal medications it worked for me clearing out my Endometriosis

[@hs7868]

@@gloriawhite2214 from where u got herbal medicine

[@gloriawhite2214]

@@hs7868 to be more clear to you i didn't make it myself it was prepared for me by Dr Mabosa herbal on KZbin he was the only one who understood what i was going through and could help me with his herbal medications and now I'm free and a living testimony of his work!! I can boldly say trust me he can help you too i highly recommend him i can give you his contact if you want?❤️

[@smileykylieblue1234]

What are your symptoms if you don’t mind me asking?🥺

[@marinabatista9781]

How have you been?

[@nicoleives1442]

Thank you for the information and the research you have done on behalf of all women. I just had a miscarriage and through that was found two endometriomas on my left ovary. I had no idea I could even have this disease. It is not confirmed yet but I have felt for a long time something was off with my body. In regard to gratitude - I agree, waking with a thankful heart each morning is an important practice. In regard to no one coming to save me (only myself) - I disagree - God is always providing tools and people to help us along the way. I look forward to growing my faith in the Lord and seeing how my faith activates God's power to heal me. I look forward to God using my story to help other women I encounter in the future. There is hope even if keeping it is not easy when things get tough.

[@userl697]

everything will get better, be kind to yourself and your body. I wish you all the best

[@elizabethaguilar8004]

I was just diagnosed after 18 years of pain Always told it was in my head, or I was pain seeking! Thank you so much for this! I am finding your app ASAP

[@laylapres8255]

PLEASE take my advice. There’s a book on Amazon called Beating Endo. Buy it and read it. It will change your life and if you follow the instructions you can beat this horrible disease. Good luck and wishing you a pain free journey.

[@MorgahnaGodwin]

Hey Elizabeth, thank you for the kind words! The app is called Qendo and is delivered by the organisation Endometriosis Queensland (Qendo) 🙏

[@ArtistFB]

@@MorgahnaGodwin Really sucks that it’s not available in the US…

[@sinchana3703]

@@MorgahnaGodwin hey it's not available in India too, at finally what's the solution or treatment have get out of this problem, please let me know

[@alikatrina]

3:30 she starts explaining what endometriosis is and what it does.

[@longdistanceaswell]

Jump to minute 10:00 for specific lifestyle changes to led her to less pain

[@toluaire6206]

That’s one of the most holistic and powerful Tedx talks I’ve ever heard. Thanks for educating me.

[@MorgahnaGodwin]

thank you 🙏

[@oswinsteve]

LOL. Where is the solution. There is noneeeee. I don't get one damn answer as a solution from this video. Just getting views but no solution.

[@IAD22-y6m]

I was diagnosed at 38 only. Two things about endometriosis: 1- what everybody do in 30 days I have to do in 20. 2- I feel like I am going insane slowly…

[@jaimeanderson8044]

Thank you for this comment, I feel exactly like that currently

[@IAD22-y6m]

@@jaimeanderson8044 I am now on Orillisa and I don’t have my periods anymore. It put me on menopause, which is a walk in the park compare to endo.

[@hannajeanbalmes9888]

I know the feeling 😢

[@sorana8439]

This is the bst Ted Talk I have ever watched. it's a pity that it doesn't have more views.

[@BiohackingEndo]

hi, i made a video about endo and coffee and yt suggested this one so I am here.I was diagnosed with endo 4 -3 surgeries and 20 years later I managed to put this illness into remission naturally just by making an anti-inflammatory diet a lifestyle so I want everyone to know that getting better IS possible. Never ever give up on yourself!

[@MorgahnaGodwin]

Hey Jola! Love it. So true - never give up! I just checked out you video and I love the honesty. I would recommend everyone check it out too ✌️🙏

[@BiohackingEndo]

@@MorgahnaGodwin thank You beautiful. For an introvert that means so much. Sending hugs from Scotland.x

[@Genreinc]

Thank you for sharing!

[@rachelleb7786]

Thank you for this!

[@viloteyesbas1884]

Add the link plz

[@sabrinabigler8751]

Today is a very hard day for me on my journey with Endometriosis and what you said was just inspiring and gave me a lot of strength to empower myself and find my individual way of healing. It can be overwhelming not having any guidance by the medicine we used to rely on bcs they are just not there yet. I believe in people like you who made the journey and share it with the world. And also thank you TEDTalk, that you make it accessible.

[@thecrazymuzician1]

What helped get rid of the pain from endometriosis for me was cutting gluten out of my diet. Research has been done on women that shows that eliminating gluten from the diet can actually stop the pain for many women!

[@EndoUnbroken]

This is a beautiul, holistic perspective that mirrors my journey in many ways. Thank you

[@gug1970]

Endo its a symptom of an underactive thyroid (which is often never confirmed by a TSH test - which is pretty much useless). Endo is caused by estrogen dominance because without adequate thyroid hormone you CAN NOT produce progesterone - the result is estrogen dominance. But nearly all the time doctors are looking in the wrong place. Its in your neck, not between your legs. Wife suffered for years (less when taking the pill (because the pill is basically progesterone, so it basically supplements your natural inability to produce it yourself)... Sorted out her thyroid issues and basically doesn't any more. Had 7cm endometrioma which experts said would never shrink... last measured at < 4cms. No more clutching a pillow for 2-3 days a month and all the other unpleasentaries. Too many videos talk about endo but dont actually address the real cause. (or claim there is no cure... which is BS, they just havent figured it out yet) .... Mirena coil mentioned in video releases.... you guessed it, synthetic progesterone. Google, Dr David Brownstein, Dr Jorge Flechas, the iodine project etc. Vit C works due to its clearing of sodium Iodine Symporters. Tumeric (actually curcumin) is fine, but why try and suppress the inflammation when you can stop it in the first place. Zinc and intestinal permiability are mentioned. This is because to generate stomach acid you require adequate zine , iodine and salt. If you have inadequate stomach acid you can not break down proteins into amino acids. If you eat bread, Gluten is not broken down and gets through the gut lining. Your immune system then (rightly) attacks the foreign proteins. The downside is that this often mistakenly attacks the thyroid too ... resulting in ... you guessed it. etc etc etc. Chlorine, Fluorine and Bromine also displace Iodine (they're all halogens) in the cells iodine receptor sites.... resulting in... you guessed it. Natural Progesterone is fine and it helps, but theres nothing like curing the problem itself. 1) Check that you are Hypothyroid by putting a mercury or alcohol thermometer in your armpit for about 10 minutes before you get out of bed on days 2 and 3 of your period. If you are below 36.6 degrees you are likely to be hypothyroid. If you are hypothyroid then its likely this is the cause of your endometriosis. Everything we do from this point is an attempt to balance your hormones - Due to your hypothyroidism, you are very likely to be estrogen dominant ( meaning you do not have enough progesterone to balance the amount of estrogen in your body - I list the reasons in my other posts). 2) Start supplementing with selenium to protect your thyroid. 3) Start supplementing with iodine to ensure you have adequate amounts to generate thyroid hormone. Without adeqaute thyroid hormone you can not produce progesterone (which is what we need to balance the estrogen). Start off slow with a single 6mg drop of lugols iodine in your cup of tea each day. Slowly work up to 50mg per day (over the couse of the day) and then keep that up for about 2 months - but go easy and listen do your body. If you feel bad/jumpy/anxious then lower the dose back to 6mg). I cant stress enough that you should read the thyroid books by Dr David Brownstein and Dr Mark Starr etc first. Dont just blindly take the advice of some person on the internet ! 4) Remove/Lower your exposure to chemicals that affect the thyroid. The main ones are fluorine, chlorine, bromine. These are all halogens which displace iodine from your cells receptor sites. So, fluoride free toothdaste, Get a vitamin c shower filter if your water supply is chlorinated (chlorinated steam is much worse than just drinking chlorinated water)... additionally get a water filter that removes chlorine from your drinking water. Bromine is hard to avoid (its in fire retardants and some flour conditioners depending on where you live in the world. You might want to avoid eating bread/gluten. This is terrible for you and most people actually have an intolerance for it (albeit asymptomatic in most cases) - however the body can release antibodies to attack the foreign proteins if they get in your bloodstream - these will also accidentally damage your thyroid in an autoimmune response. Try and use only natural products that do not contain "fragrance" , SLS and other estrogen mimics. Under no circumstances microwave your food in plastic containers and try and avoid canned foods (they are often lined with BPA (another estrogen mimic). I think that those are the lowest hanging fruit when it comes to first steps in treating your endometriosis. I think it might be easier if i get my wife to write a blog post on everything she did so that i can just post a link to that :) Good Luck !

[@jdun102]

I'd like to share my personal story with you and get your feedback. I've been diagnosed with Hashimotos and have treated that for 2 years with synthyroid. Last month I was in the ER because an endometrioma (that I did not know I had) ruptured. I've since had bloodwork done and I'm low on both testosterone and estradiol. I have had a Mirena in for the past 8 years. I've had suspected endometriosis for the past 22 years (which is why I have the Mirena) ... so since I've basically done everything to correct the thyroid issue that only popped up maybe in the last 5 years (because diagnosis is a b*@) why did I develop an endometrioma? Oh and now I have also been diagnosed with PCOS when I have never shown any symptoms for that but ya know my ovaries have cysts on them now and my LH is slightly higher than my FSH which is apparently enough to give me that diagnosis.

[@som7839]

Thanks for sharing this. This is truly informative!

[@kaylinamanrique2133]

Please get your wife to do a blog! U seem so inform

[@denairasoto4548]

This is amazing ! 5 years trying to get pregnant and each month is soul crushing

[@karinaramirez5331]

@@denairasoto4548 i wish you the best! And may your dreams of a baby come true for you ❤️

[@nicolebaker2754]

more awareness thankfully for this disease has occurred. i’m 17, and they were open to diagnosing early on. although i’d been suffering since 11.

[@ericaworkman]

amazing talk! Great awareness, education, and empowerment for others!

[@perseusyt5396]

Come to think of it I haven't felt the sudden movement on the lower part of my abdomen these past few months. I just want to thank you Dr Iyhere for all you do. Ever since the day I met you on youtube my life has been some worth different.

[@marig14707]

Great message. Disappointingly the app was bought out by another company in 2019 and is not available unless if you live in Australia.

[@lifeafterendo1300]

Yes.. humbly i put my Endo in remission all naturally with plant based diet..natural supplements, natural vitamins, plant-based progesterone cream, myomin and daily meditation and journaling. I also learned I was a highly sensitive empath. May sound like a lot but after time it becomes normal.. because there is no more pain. At least in my case. I had to share because I tried it all. and after the Mirena IUD my body had had enough with the hormonal therapy. Oh and maybe it was a little easier for me because I was also ostracized so I had nobody around me to tell me I was faking or being dramatic, pick up toxic energy.. 20 years of telling me it was in my head.. I was a drug addict... I was being dramatic.. go for a job. they were wrong... Especially my own mother..causes me insomnia, anxiety and a magnet to narcisisstic people. Im not perfect but wouldn't hurt a fly. I've been in remission 18 months Ive had to do a lot of inner healing.. I wasn't even aware of, and I used to think saying this was dorky from my dsyfuncyional childhood programming..but truly learning how to love myself... I hope more of us can speak up ..and help all the other beautiful endo sisters that are suffering.. many of them are my new family. The program I did sadly was extremely extremely extremely expensive and now I realize why isn't it more advertised?? Maybe I am a different case but I promised I had throbbing ovaries 24/7 almost all of the 20 years, two surgeries, two rounds of birth control, Lupron, and then the IUD that would leave me bedridden .and that is when true colors came out of once best friends and my own blood thinking I was truly faking, smearing my name. I have forgiven them..wish it wasnt this way. But i know have found my voice and since staying no contact..my body seems to be a big fan away from them ..and whatever God you do or don't believe in please know that you're not making this disease up ..and being around toxic people can affect us even more( is what I learned a lot from being ostracized and restarting my life with only kinds of like-minded people and having boundaries.)stay strong..and ty for talk.. I am starting a podcast and hope to reach out to this speaker 🎗

[@mcxx9675]

I went to a naturopath recently to start fighting my newly diagnosed Endo, and she told me of the progesterone cream and prescribed Chinese Herbs. I would love to hear how you transitioned your body into remission naturally through food and supplements- my email is in the "About" section of my YT if you feel comfortable reaching out- please do.

[@Cv_224]

Can we connect so I can learn more of how you have gone into remission?!

[@MorgahnaGodwin]

Hey thank you for sharing your experience 🙏 this is awesome! - Morgahna

[@carlybalsamo9883]

Nice to see TED talks on this. I have stage 4 endo, two surgeries in 11 months, 1 more on the horizon. Really sucky, terrible disease. How is it men can pop a pill for ED, but endo is so under-researched? Hmmph.

[@gloriawhite2214]

Have you tried herbal medications it worked for me clearing out my Endometriosis with no side effects whatsoever

[@lisamatthew7094]

Have you tried herbal medications it worked for me with no side effects whatsoever

[@reneelanglais642]

because men dont have endo....they DONT care

[@erinstevens5377]

Exactly

[@streaminglive7213]

Same here. The veggies and no sugar really help. I am greatful for my endometriosis because without it, I'd have no self control.

[@dinuliperera6337]

Most important message for me in this painful situation.thank you very much 🙏

[@emilynarey2686]

I wish the app was available in the United Kingdom!

[@MsFroggiie]

Yup. And popping drugs like there's no tomorrow, just to TRY and ease the excruciating pain

[@cheenajain8572]

I hv undergone surgery for stage 4 endometriosis 7 days back. Constantly having pelvic pain earlier and thought it was coz of soft bed mattress. I m 33 and Fallopian tubes completely blocked.

[@MorgahnaGodwin]

Hey Cheena, sorry to hear you’re going through that. Sending you all the good vibes and best wishes for the road ahead! You got this 💪

[@youngtoyko7535]

The day I saw that all I thought life was about wasn't what it seemed. I did my best and tried making everything seem easy enough. With my encounter on this issue. I made sure that Dr Iyhere made enough time to help me sort out the issue of Endometriosis fibroid in my system.

[@colettelittle]

Thank you Morgahna for this. Also love the harry potter ref Xx

[@MorgahnaGodwin]

Thank you for the kind words :)

[@Talibisgaming21vloggingKnight]

Hi guys, I am Drew Brooks from Brooklyn I am a little bit confused as to how I could get a lasting solution to my wife's condition. On the issue of infertility, we have tried everything and you seem to be one of our last resort. We hope to hear from you soon.

[@bsfenomen2511]

My younger daughter was experiencing this pain at her lower abdomen few weeks back and we have taken her to different hospitals only to discover that it was pelvic pain, the doctors said they had to operate on it, I couldn't allow them tear her open so I prayed to God to show me the way for the right solution when I came across Dr Iyhere page on youtube. I knew my prayers had been answered.

[@edenstiles3980]

Best treatment for Endometriosis with Alternative Herbal supplement and body cleanser, works perfectly well no side effect.

[@Kirsty178]

I got diagnosed through an ultrasound and an MRI.

[@jade5615]

Me too, my lesions and adhesions were all mostly visible

[@VixxyMcN]

Kia Ora from Hamilton ! I’m a fellow kiwi and sufferer myself

[@patriziamessineo1753]

This is a legitimate question. If 1 in 10 people have endometriosis is it possible it's just a normal part of being a female? Kind of like how developing ovarian cysts are normal during your reproductive years? I have endometriosis and I deal with chronic pain on an almost daily basis, but my doctors have always shaken it off like it's nothing. It's very confusing to me. It's like the diagnosis itself is not taken seriously in the medical community but yet it affects my daily life. I always go back and forth with feeling like my pain is legitimate to wondering if my pain is even worth talking about.

[@alinanicoletaristea8046]

Your pain is definitely worth talking about and you should be able to find a doctor who will hear and understand you, keep searching and looking, don't give up. I have been suffering from endometriosis and I have seen a lot of doctors until I found someone who knew what they were doing. I had a surgery and my endo came back 1 month after the surgery so I started looking at holistic and diet options as I wasn't ready to have another surgery. I adopted a vegetarian diet at 1st, and later went into a vegan diet, I noticed less pain so I kept on going. I've been doing therapy, yoga and meditation and my endometriosis is under control and down sizing so happy days.

[@mm1111-xo]

While it's very common, it is not just a part of the normal female experience, it's like diabetes, a very significant amount of people have it, but it doesn't mean it is just part of the human experience. Find a doctor that takes your pain seriously, it is valid and you shouldn't be living with pain just because doctors refuse to hear you. Your pain is worth talking about and you need to be heard, don't give up on your body. Love, another woman on the diagnosis process of endometriosis.

[@alyssavincentstephens7981]

I have it too. Your pain is worth talking about.

[@Cv_224]

No the issue is you are experiencing what the effects are of gaslighting. Which happens to a lot of us with this disease. Without understanding how harmful it is to state things like "Its all in your head" this is normal for woman to have this pain. No I refuse to accept that narrative and let anyone tell me wtf is normal. It's not fkn normal to be locked in your room, bedridden, can breathe and move without wanting to die from the pain. Its not normal to also throw up, have digestive pains and pass out from pain. Sometimes you have the pain when its not even your period. So no honey, its not in your head. You're body is legit experiencing pain, very horrible bad pain!! Do not ignore this.

[@suhaa2881]

Hey, it's been a year you commented. I was just like you, I've been on and on to different doctors. No one was taking me seriously. Until just two days ago, i found the real doctor. He said I've been went to wrong doctors, they're not fertility specialist. They're just ordinary gynecologist. So when you have something wrong with fertility, we should go to fertility clinics. Because they would treat us the right way. And I'm glad somebody actually understands my condition. But it's just ironic, all the gynecologist never told me to went to fertility specialist. What were they doing?

[@cuearesty]

Came here after my urgent care said 'you might have endometriosis.' Might. I dunno why they're being vague about how or what I should do next.

[@anamariasuarezvanegas970]

I been having very painful periods all my life, getting worst after stop taking the pill. A week ago my gyn did a laparoscopy. I have endometriosis and a lot of it. It's been going on for years. Demand a referal for a gyn and find a good one, who knows about endometriosis, and do it fast.

[@mintycatkohproductions2597]

@@anamariasuarezvanegas970 how soon after letting the doc know about your pain did you get the laparoscopy? Curious as last month the doc told me my symptoms match up, and next month I have an ultrasound. I just want a diagnosis already 😢😢

[@anamariasuarezvanegas970]

In my case, the story has two parts. I was living in a different country before. I went to different gynecologist and all of them ask for the same tests, ultrasounds, blood work, even an MRI. According with them, all normal, but the pain was present. I moved two almost three years ago, I kinda given up but last year started to get worst, in this occassion was my general practitioner who ask me to get all the same tests... Again... I told him I already had all those results but because is a different country, I had to had them again to also proof I don't have polycystic ovaries. Again, everything normal, but in this occasion, my GP suspected of endometriosis and refereed me to a gynecologist who has a lot of experience with it endometriosis. He specialises on fertility and that's a big issue for it. He check everything and ask me if I wanted the laparoscopy because is the only way to know if I had endometriosis. After so many years, I said yes! And yep, it was endometriosis. I still have a nodule he'll need to remove in a second and longer surgery considering is attached to my gut and bladder, however and because I'm trying to get pregnant, we're waiting a few months because in theory, during pregnancy it could get shrunk because I won't be ovulating, and afterwards the treatment to control it could be hormonal. Basically, as long as you ovulate, the endometriosis will grow more. Ask for all the tests, if is nothing else, get a gynecologist referral and find one that has experience with endometriosis!

[@mintycatkohproductions2597]

@@anamariasuarezvanegas970 thank you so much for sharing your story, your advice is so much better than all the things I've read online! :)

[@anamariasuarezvanegas970]

Glad I can help! Maybe that's what we all need, just to share our experiences to both feel we're not alone and learn about our options! 😊

[@empathyamy707]

Amazing, thankyou Mogahna

[@MorgahnaGodwin]

Thanks Amy!

[@Goonjify]

Thanks for sharing your experience

[@lisamatthew7094]

Have you tried herbal medications it worked for me with no side effects whatsoever

[@emmawaghorn9374]

I’ve just come home from hospital after a week of hideous pain in my illiac fossa. It was endo I had hysterectomy in 2011 and I have suffered on and off since 2009. Morphine and cocodomol and sent on my way - what next 🤢

[@priyankanegi3865]

Suffering from 10cm*10cm*9cm endometriosis.... Somebody help

[@evelyngab4268]

There is a woman called Dr igho, she can help you.

[@chitratomar5759]

Are you from India... if yes I can help

[@priyankanegi3865]

@@chitratomar5759 yes plz

[@divkuruv]

​@@chitratomar5759pls help I'm from india

[@petercase7697]

NZ best country in the world.

[@putirmama6486]

I also have it when i got this pain i faint every time because of this pain. I feel like vomiting headache also.sometimes i feel like i should kill myself.

[@popcorn43]

Beautiful speaker 🌸 Thankyou

[@Lemony1980]

Stage 4 this desease have ruin my life. Cant have children Science need to help us !!!!

[@allmovies1791]

i find it painful during menstrual pain, and also i had virgina warts in which i wasn't able to get pregnant, but big thanks to DR IYHERE on KZbin. i came across his youtube channel which i used his herbal medication for this illness, and now i am a living testifier that i am cured completely and also four months pregnant❤️

[@GarimaShitootJAZZSOMEMORE]

Great talk.

[@gasharafiq7405]

Well I'm more comfortable in my period I have a lot of pain in my normal days

[@moanjames_]

What's the app name?

[@aidayohannes3846]

Did you end up conceiving? I am issuing right due to endometriosis.

[@evelyngab4268]

There is a woman called Dr igho, she can help you.

[@girlontheedge2636]

are cramps for straight up 2 hours normal??

[@evacalles5442]

In my experience, I have bad cramping episodes that feel like birthing labor that last between minutes and hours.

[@girlontheedge2636]

@@evacalles5442 same i have very bad cramps i wrote this comment when i was on my period

[@trinitycottrell5257]

I’ve had cramps that simulate contractions for hours on end before (most recently for 6 hours and an er visit was made to confirm nothing else was wrong). I have endometriosis and was recently confirmed with the diagnoses after laparoscopic surgery and removal of endometrial tissue on the outside of my uterus

[@girlontheedge2636]

@@trinitycottrell5257 i am so sorry

[@Bigchychill]

Did I miss what the app was

[@MorgahnaGodwin]

Hey Chyna, The app is called Qendo and is delivered by the endo organisation ‘Endometriosis Queensland (Qendo)’ 🙏 you can find it in the Play Store and App Store

[@fukhill4447]

Thanks to Doctor Eseoh on KZbin for curing me of endometriosis, And now I am okay I am no longer having pelvic pain

[@magicheart7025]

how did you do that?

[@laurenceosborne4261]

First minute made me wanna switch it off

[@jkat3911]

Oh I got scared it s not in English