My Journey with Multiple Sclerosis- Part 1

  Рет қаралды 49,223

theclumzygirl

theclumzygirl

Күн бұрын

Пікірлер: 60
@TAYLOR-fc2lb
@TAYLOR-fc2lb 7 жыл бұрын
Thanks for sharing your story. I was just diagnosed last week. I am F 32 with 2 kids. I am checking out people's stories to see how they all live with it also. Glad to hear you are doing well.
@TonyTony-jq5fc
@TonyTony-jq5fc 6 жыл бұрын
T A Y L O R check out my post on this video
@lady_wasser
@lady_wasser 5 жыл бұрын
Thanks for the video sister! You’re are so pretty not even MS could take your inner and outer beauty! May God bless and let’s keep pushing, I just subscribed to your channel! 😘
@PaulHattle
@PaulHattle 2 жыл бұрын
Thanks Jess, very helpful :) I have a Lumbar Puncture coming up but I'm pretty sure I will be diagnosed with MS. All the best.
@philipstephan5451
@philipstephan5451 Жыл бұрын
I am so sorry you went through all this. Unfortunately sounds like what the normal scenario is to get a diagnosis. The medical community is so busy, God love them, that it takes a while to just be seen. Try to have patience and it will work out.
@jessstalin8777
@jessstalin8777 9 жыл бұрын
I was diagnosed last year, myself. Thank you for sharing your story. x
@mytravls
@mytravls Жыл бұрын
What were your symptoms?
@FernandoAbenoza
@FernandoAbenoza 8 жыл бұрын
I had a bad case of MS, after 6 years of studying Orthomolecular medicine, I learned the approach to recover from MS is to repair the Myielin covering the nerves,. I took daily Vitamin B12 in shots or under the tong. , this is because the intrinsic factor in the stomac is not transporting the B12 to the Elium, to be absorved, and eventually we develop the MS.....I had Bone brocth, the Marroe is the best collagen, and also the basic element to rebuild the Myelin already damaged,, take vit C 2000 mgs, Carnitine and Creatine, Zink Magnesium,, MSM and Turmeric for inflamation., this is the only way to recover from MS. ..I recovered. Reply ·
@sharongagnist6428
@sharongagnist6428 6 жыл бұрын
Fernando Abenoza what kind of doctor are you? why should someone believe you?
@edvhollywood4544
@edvhollywood4544 5 жыл бұрын
The broth you ate was bone with marrow? To get collagen?
@muhammadx656
@muhammadx656 8 жыл бұрын
My heart reaches out for you and your family. Thank you for sharing your personal stody and a glimpse into Life with MS. You are so beautiful. May Allah bless you all. Ameen.
@13reanna13aker
@13reanna13aker 8 жыл бұрын
My vision does the same thing..... I always described it like an old TV it turns black from the outside in when you turn it off. I wake up like that a lot. My muscles feel exhausted & sore. I've been diagnosed with vertigo so many times. My vision has gone out completely. I've lost control of limbs.... random tingling or shaking of one limb. I've done many MRI's & Cat Scans, Stress Test, Tilt Table..... some weird results, yet nothing they could make anything of. I forget things a lot & lately having pain when I look side to side, & I can' cross my eyes on my own anymore. It hurts & feels too hard to do so. I've been diagnosed with a neuropathy disorder..... but idk, everything matches what I've read about MS. I have seizures sometimes too.
@mistermex187
@mistermex187 8 жыл бұрын
Did you finally get diagnosed?
@Clutterfreecarli
@Clutterfreecarli 7 жыл бұрын
13reanna13aker I have multiple sclerosis and I wanted to encourage you that there is hope! There is a lot you can do to treat all of your symptoms naturally! You can start by healing your gut. Our bodies can develop leaky gut where toxins from foods like gluten and dairy especially leak into our bloodstream and start causing many issues you see. You can heal your gut by eating certain foods! If you want to know more feel free to contact me! Hope your doing okay, so sorry your going through this!
@quiyada
@quiyada 9 жыл бұрын
I had a similar initial experience. Thanks for sharing your story :D
@ericott2561
@ericott2561 Жыл бұрын
Ur pretty
@quiyada
@quiyada Жыл бұрын
Thank you 😉
@DownTownPamBrown
@DownTownPamBrown 9 жыл бұрын
Hello I am a 34 year veteran of MS. I can only find Part 1 and 2 on you tube. Please tell me where to find Part 3+ any further parts. Thank you,Pamela Brown. 10/25/15.
@cindywyant3129
@cindywyant3129 8 жыл бұрын
Pamela Brown
@vcarreon04
@vcarreon04 9 жыл бұрын
Thanks for this video!!! Helps to hear about your beginning sx similar to my husbands
@elsakristian5713
@elsakristian5713 8 жыл бұрын
Powerful video, thank you
@megangras8284
@megangras8284 Жыл бұрын
I'm currently going to many specials to find out why I'm dizzy tired lost so much weight look grey feel pins and needles limb edema nausea vomiting and so much more. Including imbalance an forgetfulness. So I do have ulcers and esophagitis. My bowls are hard. Twitch eyes loss of balance...etc. So I alo have low RBC and malnourished as well as anemic. I just had a mammogram I lost all my breast tissue and body muscle. Went from 220 to 118 in less than 4 months ...I feel awful and like death. So I'm looking into so many avenues...I also have different vision ..so this I helpful
@shireenramnarain4005
@shireenramnarain4005 Жыл бұрын
U look amazingly fine n happy Its no wonder when we tell someone our complaints of tiredness ,vertigo, tingling, leg drop they think we talking lies(even family members) Even medical specialists will not believe u n do ordinary test where everything seems fine Its a long journey to be correctly diagnosed.... By then we have more symptoms n it becomes more difficult n expensive to treat Although we have sooo much medical knowledge cos of education ,social media n availability of medication, we still cant cure these conditions I have been diagnosed with ms after almost 20 yrs of complaining n nothing been done until my son (age 23) took me, a yr ago, to a prof of neurology n he did the proper mri test
@megangras8284
@megangras8284 Жыл бұрын
Oh and I've had 3 body breakouts lost hair and feel pins n needles daily in waves... I went into hallucinogen bug episode..it's awful
@jghjgh6481
@jghjgh6481 6 жыл бұрын
When you saw double. Did you only see double if you was looking out of both eyes or did you see double even if you was looking from one eye only. I had Mri to look for ms after some dizziness and numbness but it didn’t show anything. For the past couple of months I’ve noticed that I am seeing double vertical images but I see them out of each eye individually as well as with both eyes open. I’m wondering if I maybe just have astigmatism or if it’s something worse.
@shireenramnarain4005
@shireenramnarain4005 Жыл бұрын
My son had double vision while studying 3rd yr to become a pharmacist He went for tests n all come back negative I took him to a prof of neurology n he diagnosed him with mystenia Gravis In 3 days after proper medication all symptoms vanished He is now on medication After he got better ,he noticed my walking was not good n he took me to prof of neurology n he diagnosed me with ms My daughter has lupus My husband has pemphigus vulgaris....an autoimmune skin condition
@lady_wasser
@lady_wasser 5 жыл бұрын
I forgot to ask: have you been tested for Lyme disease?
@chronicliberation
@chronicliberation 3 жыл бұрын
It’s not really a journey. It’s more like cure suppression. Look outside of the conventional medical system for treatment. Many of us use diet. See a naturopathic doctor. You could also try classical homeopathy.
@bludelphinium994
@bludelphinium994 4 жыл бұрын
Thank you 💜💕
@staceyedwards6190
@staceyedwards6190 5 жыл бұрын
.Your experience with the neurologist sounds very similar with my last neurologist!!
@vanskii7900
@vanskii7900 8 жыл бұрын
I have some questions about MS and your symptoms? If that's ok ?
@DebbieVanGorder
@DebbieVanGorder 9 жыл бұрын
Did you do a part 3 -- your treatment plan? I was looking for it but can't find it.
@sharongagnist6428
@sharongagnist6428 6 жыл бұрын
theclumzygirl @ 13:12ish are you saying people shouldn't look online for information about ms?
@michelemyers5174
@michelemyers5174 5 жыл бұрын
I have read all of the Medical Medium books except the liver rescue. Those books really shed some light on issues. I especially like Medical Medium Life Changing Foods. Perhaps you could benefit from his knowledge. Good luck.
@GlimpseInside
@GlimpseInside 5 жыл бұрын
I need a new neurologist. He had said he doubts MS. I have the symptoms & worsening. VNG with no nystagmus but I do have abnormal saccades. My optometrist says I have convergence insufficiency now & I didn't have it when I saw him end of Feb 2019. Not working since Sept & walking with cane since 9/1/19.
@adamslilith-art
@adamslilith-art Жыл бұрын
but didn't they do an MRI to check!?
@GlimpseInside
@GlimpseInside Жыл бұрын
@@adamslilith-art I had an MRI which showed no lesions. Recently had SFEMG to rule out MG too. Not seeing anymore neurologists as most symptoms stopped except balance issues & other new, different issues. Had a large retroperitoneal mass & a melanoma in situ removed last year so my health issues are evolving. Wish me luck as I'm waiting for the next round of tests!
@adamslilith-art
@adamslilith-art Жыл бұрын
@@GlimpseInside omg I'm so sorry... yes fingers crossed everything eventually turns out fine!!! 😔but I can totally imagine youre disappointed in medicine... and I can relate, the first doctor I saw when my symptoms got unbearable told me to just cheer up and not be so depressed.. cause that "causes" my problems 🙌
@GlimpseInside
@GlimpseInside Жыл бұрын
@@adamslilith-art I'm so sorry anyone said that to you, let alone a doctor! It's bad enough that WE know something is wrong & worse when an "expert" tells us basically that it's in our head. The NP I saw last week was wonderful & seemed concerned. She said that I should've had other tests when my ovary wasn't visualized during a pelvic ultrasound in 2019. Instead, I was told I was constipated & it blocked the view when I had a lipoma in my gut the size of a 4lb baby. It was tested twice & found to be benign but now, I'm having problems with those organs & I'm scared. Please know that im in no way, shape or form comparing my experience with yours. I find you highly relatable & my heart still goes out to you! I've since gone "back to school" so I haven't been able to catch up. Do you have any updates you've shared or will be sharing?
@lindaferns9459
@lindaferns9459 8 жыл бұрын
I'm looking forward to have stem cell transplantation in ms treatment clinic belgrade. I want to try anyway this kind of treatment.
@ericott2561
@ericott2561 Жыл бұрын
Me too!!!!
@ericott2561
@ericott2561 Жыл бұрын
OMG. Me too.
@863NightOwl
@863NightOwl 7 жыл бұрын
With your mom having MS Im shocked the Drs and even you didnt think of it..And what do you mean your mom was sick?
@ericott2561
@ericott2561 Жыл бұрын
Me too same
@Barnabydemossienaux
@Barnabydemossienaux 4 жыл бұрын
My Ms has gave me terrible cardiovascular issues
@megangras8284
@megangras8284 Жыл бұрын
I also stopped having a menstrual...so insane...
@OlgaMesh
@OlgaMesh 8 жыл бұрын
You are funny! Your mother had MS, you knew what MS as you clearly had all the symptoms. At the same you still denied that you might have it? When I found myself at age of 22 blind and paralyzed at a hospital and the doctor told me I have MS I had no clue what he is taking about.
@shireenramnarain4005
@shireenramnarain4005 Жыл бұрын
Yes i agree My mum was diabetic soò the doc did those tests n everything was fine ....no testing for ms was done My dad had asthma n i did not have those symptoms so no tests were done No one i knew had ms soo no history of tests were done But most diabetes symptoms r like ms...tingling ,tiredness I never thought i would have ms
@southernplayero112
@southernplayero112 5 жыл бұрын
This is a very serious condition . Is she still alive ?
@laland5752
@laland5752 4 жыл бұрын
People usually live a long time with MS.
@lizichell2
@lizichell2 8 жыл бұрын
My mother died of this deplorable malady.
@funkyflights
@funkyflights 5 жыл бұрын
Typical , insurance company getting in-between you and your doctor....
@ericott2561
@ericott2561 Жыл бұрын
Me too!!!!!
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