My Journey with Wegener’s - Symptoms, Diagnosis, Treatment & Life with an Autoimmune Disease

[@ernestojajan1419]

Thank you for doing the video. I've been dealing with this wonderful disease since early 2020. Your experiences and strength are inspiring. Thank you

[@CindyLadd]

Thank you for this video. I was diagnosed in the ICU at the beginning of 2022. Very similar experience, though mine dragged on for a year prior to my diagnosis, which occurred only after my kidneys and lungs failed. I appreciate the time you took to share this.

[@MC_Hammerpants_]

Hi. Thanks for doing this video. I have the same disease as you with a similar experience. Way to go, you warrior! ❤❤❤

[@Lifebykori]

I have wegners as well since 2008. It went into remission for 13 years but came back in Dec 2022 attacking my sinuses. It was deteriorating my septum. So I've been on prednisone since Dec and I'm about 2 months into methotrexate but I'm about to start fasting 3 days at a time every 2 weeks to start to reset my immune system. I use hypnosis at night for healing and I meditate regularly envisioning myself already healed. I also sleep on a grounding sheet to keep my inflammation down. It's a lot but all together it helps a lot. I wish you well on your journey!

[@johnwills8187]

I was married to a wonderful woman for a few years, and she was diagnosed with Wegner's back in the 90's! They didn't know much about it then and it attacked her lungs first. They did surgery then and gave her 6 months to live. I met her in 2012! We got married the following year, and she unfortunately passed over 6 years ago! Thanks for sharing!

[@BitsandBiteswithBets]

I’m so sorry for your loss. It’s a nasty disease for sure. 😢

[@carolyndonoghue267]

I also have this disease, similar story but mine attacked my sinuses and lungs. Diagnosed in August of 2021, but symptoms started in April of 2021. Still trying to get in remission. I do not wish this upon anyone.

[@christinamaddy6551]

My mom was diagnosed in 2001. Thanks for sharing your story.

[@caracaplinger1860]

An answering service is a great job possibility, I hadn't thought of that.

[@MidwestMamasAdventures]

Hey girl! Did you get any of that snow that went through your state? I’m still praying for a miracle for you. Get better soon! 😘 I’m having a knee replaced 3/20.

[@chrissybell5796]

💕🙏