Long COVID Treatment Explained: A Comprehensive Patient Guide

[@spiritualkings]

This is the most accurate description of exactly what I'm going through. He hit everything right on the head. Every time I have a good day, I then have a 'setback' day. It's very frustrating. I have had symptoms for 4 months now. Right before I got covid 11/21/2023 I was in the best shape of my life. I was weight training and showing real muscle gain. I was becoming lean and mean and my cardio was doing great. Then I got covid and it has ALL turned to fat and I have lost everything that I have gained. Not only that, but the first 3 weeks I got covid, the 'FOG' sympotms were SO bad that I could barley even leave the house. It was so bad that I could hardly even hold a conversation without losing track of what I was even saying. The first 3 times I got covid it was NOT nearly this bad. This last time it has been just horrible. Luckily for me, I have gotten progressively better each week. It has been SO frustrating as I am a very active person and I thrive on physical activity and keeping up on my workouts. All I can do is pray and take it one day at a time and hope that I recover fully and be ready for spring. Ugh, this has been NO FUN at all. I will never forget this. I pray you are all getting better. God bless.

[@wesanderson7918]

I’m going on 6 months. Starting to feel like groundhogs day. Thanks for sharing what you’re going through. I pray you fully recover. I don’t mean this is a bad way but it’s nice to hear others are going through this. Makes me feel less crazy.

[@spiritualkings]

@@wesanderson7918 Thank you! The great news is the past 10 days I have gotten noticeably better. I'm at about 85% again. Thank God! I need to take it slow however. I'm learning how to not to get too far ahead of myself. Thanks again for your support!

[@kennethbrady]

@@spiritualkings So happy for your recovery! 85% is pretty darn good. I am at like 10% and going a little crazy, frankly. I think you understand. What kind of treatment did you receive? And how long after treatment did you see progress? Thanks very much!

[@BrownGuyGaming91]

I've been dealing with this since August 27th, 2023. Don't know when my long covid actually began to after initial infection. I've had all the crazy symptoms, fatigue, vertigo, tremors, sleep apena etc. 2 months ago I got here with these weird anxiety symptoms, shortness of breath and sleep anxiety/sleep insomnia. I had this the first 2 months and it came back. It's so frustrating because just when you think you're getting better you have a setback or symptoms come. I know how you guys feel. This has been the hardest time of my life. In January for 2 weeks I was really good and had no fatigue and all my energy was back. Then all of a sudden I got hit with fatigue again. Right now I'm sometimes dealing with sleep insomnia, it comes out of nowhere with chest tightness. Still a little bit of fatigue lingering, can I have a random headache now again on and off. And my body is constantly warm. Don't give up!

[@eliaslovstrom4791]

@@spiritualkings Hi, how are you feeling now? Did you take any special supplements that helped your symtoms?

[@genegarneau3822]

2 years for me. Now it is in my heart, lungs, nerves and brain fog, always forgetting. I am getting my energy back. I hope I do not have much longer to go. 2 years of this has been hell.

[@Kilodank1]

I hope you get there soon !! I can't wait to heal either

[@sushi_glory_hole]

It’s been nearly 4 years for me. I don’t so much have the brain fog, but definitely the other symptoms, which really aggravates my anxiety, and in turn makes my symptoms worse. Hoping to get accepted to a long Covid program. If I’m not accepted, I don’t know what I’m going to do, as it’s the only one in my area.

[@vanlo1178]

Oh man…. 2 and 4 yrs? I already had (have) fibromyalgia and CFS before long covid, but I was able to work. Now instead of just getting tired sooner and having bad muscle pain if I over did it, I’m stuck having body aches and feeling extreme fatigue all day. I’ve already been out of work 3-4 months.

[@vickijohnson9367]

@@vanlo1178 Because the me/CFS was a gain of function mycoplasma, patented by U.S. Army Lab. There is still 1 video up and running on the Asperger the microbiologist is Dr. Garth Nicolson. This one information is in a testimony for Germany Commission David Martin on Data Science Association July 2021 video hard to find also. And this is what this is kzbin.infoAztC633XUzs?si=AYcYkteiWfr4am5L

[@Kilodank1]

@vanlo1178 I've been out of work for 4 years and I'm only 31 I can hardly function being at my house . I still look fit and healthy tho but im in a wheelchair if I step foot out of my house . I can only walk 300 steps before my body completely shuts down then I have to rest for 2 hrs before I'm able to move or think straight again

[@GungaLaGunga]

First infection May 2021. Dysautonomia, tachycardia, devasating fatigue and post activity crashes. I'll feel better over a few months, try to get back to life, then crash again. What a nightmare.

[@JoBroughton-yw7un]

Same here crash after crash.Covid Feb 2020 again22 23 no jabs so I know it's covid, they say things worsen before getting better, this LC is far worse than plain old covid, I am 75 and I will not let it BEAT ME.

[@GungaLaGunga]

@@JoBroughton-yw7un oh thanks for sharin gyour own experience. i am only speculating for myself, but i am hoping for th eblood tests they are working on are available soon. blood test to either validate or invalidate my educated guesses of my experience: i think it is an autoimmune disease from covid virus damage My body was destroyed. could run two miles before i got my first and only covid infection. Now i get exhausted just doing very light chores. right now, i'm home bound. just going to the store today wiped me out. this is teaching me patience and perseverence i never knew i had. stay strong. i wish you well.

[@annerowell5050]

Same here

[@firstplayerfilms]

same with me, since Nov 2020

[@whisperingdeath308]

I got it in August of 2021

[@soal-lt9rf]

Thank you so much for your simple yet logical approach to deal with this silent and debilitating condition. Many doctors have chosen to dismiss it -hoping it will go away magically.I think part of the healing process is radical acceptance.

[@MelissaJ-i4f]

What a difference this video has made in my life!! From the bottom of my heart, thank you, Dr. Brode. Vaccinations and vigilance kept Covid at bay until Feb. 2024. 12 days out developed new onset hypertension. Medication is controlling it well. Fatigue and brain fog are biggest roadblocks. Your presentation is the best medical consult I have had!! I feel you have given me a logical and hopeful treatment plan. Priceless👍I will share this video!!

[@VeldaE12]

I had BP hypertensive crisis 5 days after P1. More side effects with 2&3, then had C19 and it’s been an ongoing nightmare ever since with a long list of symptoms I never had before- respiratory, cardiac, neurological - but every Dr has gas lit me.

[@sebek12345]

🎯 Key Takeaways for quick navigation: 00:01 *🩺 Long COVID Diagnosis and Testing* - Long COVID diagnosis relies on symptom patterns rather than specific tests. - Testing aims to rule out other potential causes of symptoms, such as diabetes or thyroid problems. - Diagnosis and testing methods are individualized based on medical history and risk factors. 03:23 *📈 Long COVID Recovery Trends* - Most patients with long COVID show improvement over time, with about 60% fully recovering. - Recovery typically occurs within the first one to two years post-infection. - Symptoms like fatigue, brain fog, and post-exertional malaise may persist but tend to improve gradually. 04:50 *💊 Fundamental Steps in Long COVID Treatment* - Treatment involves managing energy levels and avoiding post-exertional malaise. - Intentional rehabilitation focuses on physical, cognitive, and emotional strengths and deficits. - Symptomatic management includes using evidence-based treatments and medications to alleviate specific symptoms. 11:01 *🏋️‍♂️ Intentional Rehabilitation for Long COVID* - Rehabilitation encompasses physical therapy, cognitive therapy, and mental health counseling. - Balancing exercise to avoid exacerbating symptoms while promoting physical health is crucial. - Cognitive therapy helps in managing attention, memory, and breaking tasks into manageable parts. 12:29 *🩹 Symptomatic Management with Medications* - Evidence-based medications target common long COVID symptoms like fatigue, insomnia, and nerve pain. - Medications may not cure long COVID but can improve daily functioning for some individuals. - Treatment plans are tailored to individual needs and may involve trial and error to find effective medications. 13:54 *🎯 Exploring Targeted Therapies for Long COVID* - Experimental targeted therapies aim to address viral fragments, chronic inflammation, and blood flow issues. - Participation in clinical trials is encouraged to assess the efficacy of these treatments. - Patients should have thorough discussions with healthcare providers regarding risks, benefits, and costs of experimental therapies. Made with HARPA AI

[@jowiens32]

I appreciate you!

[@mogwaiz]

This disease has destroyed my life and the ongoing gaslighting and apathy from doctors has destroyed my faith in healthcare. The day there is a conclusive test or treatment I will cry for a long time of relief.

[@darlasue15]

You seem leaps ahead of the Baylor Long Covid Clinic where I am a patient. I appreciate your explanation and overview of Long Covid and it's treatment.

[@itsdavidmora]

This is the clearest explanation, from a doctor, about what works for managing Long COVID symptoms & why (on a high level). This completely matches my experience.

[@meaganmorin3344]

Thank you for this overview. Very clear and understandable. My biggest struggle is with fatigue, but also widespread weakness and occasional numbness. For a “healthy” person, it’s been quite debilitating and disheartening. Wishing all long COVID sufferers a speedy return to health.

[@dougfuller7314]

I had Covid-19 in September 2023. I still can't focus, have frequent major headaches, trouble sleeping and walk into walls when I get up in the morning since I'm so dizzy. I still work, but feel that my job is in jeopardy since I'm probably about 40% as functional as I was pre-Covid. This subject needs to be explored and I thank Dr. Brode for his dedication in research of this issue.

[@creativeperspectives2712]

Same here. I do not have the job also. Looking for a job.

[@lukepearson8851]

I'm a cross country athlete at the college level. Since Covid, I'd get these spouts of fatigue that'd last for a week then I'd be fine again. I'm a sophomore in college now and I've been fatigued with brain fog for the past 3 months straight. I haven't been able to run or compete. My life has been taken away. I've had various blood tests and sonograms done only to conclude I am "in perfect health." I'm finally trying to reach a long covid clinic, but I'm worried I'll never run again.

[@bennyb.1742]

We'll get there man. Ex-pro track cyclist here, so I know how you feel. It can be a long road, that will be longer and harder if you push too hard early on. I know how much it sucks, I know it feels like you've lost your life but you'll get it back. Even if it takes months or years, you're a young guy and have an other 60+ years of running ahead of you once all this is over and just a bad memory.

[@hutch73]

@@bennyb.1742are you back on your bike? Cycling was my life before this. Mountain biking hard 3-4 days a week. I did a 60 mile gravel race 2 months prior to getting sick. Going 14 months

[@Paragon62]

I would try hypobaric

[@thor8334]

Hi guys i feel horrified right now, fuck, i’m taking care of my self always have been doing all kinds of sports, i was just squatting 140 kg for 3 reps and weighted pull ups with 27 kg for 6 reps, running at least 5-10 kilometers 2 times a week … now i struggle to do those activities, i feel alone and upset… when i go do activities with my girlfriend i get tired super quickly, i don’t have the same drive as i used to when it comes to sex… Just an hour before this i wanted to cry my eyes out just from the incomprehension and stress this puts on me… Fuck i want to get my full life back ! I hope you guys can feel better very soon

[@lukepearson8851]

@@bennyb.1742 How's recovery for you?

[@AC_2.4-10]

What a helpful and thorough video - thank you so much! So validating and gives me a tiny bit more hope... Been dealing with ME/CFS for years, and now long COVID. My life has become so limited and if it were not for my faith and trust in God, I don't believe I would have made it this far. Every day is a challenge, and I often pray to just "make it through" another one. 😢

[@keegsmum]

Thank you so much for this organized, comprehensive and balanced overview of the subject. I am a 68 year old female triathlete dealing with long COVID symptoms, not from having contracted COVID, but rather from the 5 mRNA vaccines I got. Vaccine #5 (bivalent) pushed me over the edge. Still not recovered- I am 12 months out since my last and final vaccine), but I am now on a good recovery track using a variety of OTC supplements including botanicals (I tried each individually and assessed their usefulness one at a time- discarding some and replacing with others) because I was getting no guidance at all from my family doctor. Because there was no definitive test result (lab work, neurology, cardiology as you mentioned), no treatment approach or medication was offered to me, even when I requested same. I was left on my own to figure it out- with only the suggestion that I might have Chronic Fatigue Syndrome or some vague allergy. I asked about participating in a clinical trial re vaccine injury and got no where. I started making real progress in my recovery once I started to suspect the vaccine might have triggered a condition like histamine intolerance- MCAS even though my labs were negative for MCAS. Bioflavonoids, DAO and Augmented NAC have been the most useful supplements for me in relieving the neuropathy, cardiovascular issues and brain fog. I am slowly working back to regular cardio and strength work in short sessions, and I have to monitor how it goes, to avoid fatigue and relapse. My heat tolerance is still a challenge when I work out - it triggers bad brain fog for some reason, so last summer was pretty tough. A long road indeed...

[@jawaligt]

LC may very well be spike protein related in many cases. Spike protein has been demonstrated to end up all over the body, in some cases due to vaccination alone. And let's not rule out autoimmunity issues due to the MRNA method of delivery. Unfortunately, vax injured are even more likely to be gaslighted than PASC sufferers. But they often seem to benefit from the same things PASC sufferers do.

[@brendabrenner2891]

Am same leaky boat as u.. am vac injured , celiac, gut dsybiosis, long Lyme, mold inj7red, see 10 Drs none kno what I'm talking about.. going to start nati, berberine, choline, etc, but 1 at a time.. u encouraged me, ti. Neuro going to give me MRI.. no clinic here in RI.. 🙏❤

[@Richexperience1]

Dude that is really rough. I’m LC & vax injured. And this bozo on the vid is still recommending multiple vaccines. Job security I guess.

[@segunabati3256]

I feel i understand you. My wife has been on this painful journey and I would like to talk more with you

[@Elysian777]

I am part of a long covid group and the worst long covid cases were from infections that happened prior to the creation of a vaccine. We call them 'first haulers'. How do you know you didn't get asymptomatic covid?

[@Healingwearehere13d]

Thank you for the timely information and suggestions about covid-19 and where treatments are at this moment. I had covid-19 in March 2020, and January 2022. I have long-covid since the 2020 infection, I am not doing good. I need more medical help. I was already disabled before covid-19. I am 66, female, and I want and need help. My brain and energy is getting worse. I have doctors, however, they are saying that "people my age get these illnesses" but I did not have them before Covid-19, my prior MRI proves it. I keep my doctors appts. plus I have all my vaccines up to date. I have the muscle wasting you spoke about, I cry almost every day because I have life in my heart, but my brain and body says no more after 2-3 hrs. Please help me.

[@TheJoyQueenForever]

I would recommend showing both his videos to your primary doctor 😢...most have absolutely no clue...which angers me because the AMA is deafening silent ...❤❤❤

[@anitarespondek2356]

God bless you.. I have friends with these same problems 😢 and it is devastating 🙏🏼

[@kw7807]

Please let us know how you are doing? 😢

[@Healingwearehere13d]

@@kw7807 Hi, thank you for asking. How are you? I saw a ortho. doc for my left side SI JOINT 3 wks ago, he gave me a reducing dose pkg of medication because of inflammation, which did help while I was on it, ordered MRI/CAT scan, 1st appt available 9 FEB. I had the freakiest fall 28. NOV. '23, right knee did not make contact to surface, but twisted, and hurting really bad, 8 days later xrays showed no injury, just "age" arthritis, it kept hurting, I am limping, had MRI on 18th, waiting on results from doctor. I was told to bedrest my knee as much as possible, lol, I was already doing that, ice-packs helps. Thank you again, I hope you feel better soon.

[@Healingwearehere13d]

@@anitarespondek2356 I hope your friends are receiving help from doctors. Those of us with long-covid told doctors in summer 2020 that something was wrong, they are releasing much more research now, still no help. Congress (U.S.) had their first COVID long-haul less than 2 weeks ago, did you are your friends get to see/hear it? I did, but I still do not understand what they are going to do. Thank you for your concern.

[@jiayihuang6137]

So glad to watch this. Thank you doctor. The presentation and advice are so clear and helpful. Having these weird symptoms in my third year university study. I hope I can recover one day and become normal.

[@Falcon47-47]

Just starting my long Covid journey. Third round of Covid mid-July...took Paxlovid...fighting shortness of breath, arrhythmia (tachycardia), fatigue, brain fog, having bad days with an occasional good day, and depression. I was in very good cardio shape prior and now virtually disabled. I realize it's only been four weeks but I don't see a rapid recovery going forward. This video was very helpful.

[@poweredman]

There's supplementation that are really helpful: co-enzyme q10 particularly!

[@garyneilson3075]

"hold fast"! (1Thess.5 :21, the Bible)

[@Falcon47-47]

@@poweredman Just started co-enzyymes today.

[@kilikdudley]

Please look up Buteyko method. Shallow breathing practices have helped me greatly. It is counter intuitive, but shallow breathing simulates peaceful existence.

[@joannethompson3128]

Don't give up! It's been over 2 years for me. Pacing yourself is key however, understandably frustrating that getting back to base line seems impossible.

[@sharonkane1207]

He explained everything so well. Post exertion malaise for me is the worst and he reiterated all I've learned, from UK LC services, and I'm trying to apply. So complex and different degrees for everyone. Very informative, helpful and clear. Thank you.

[@JudyWilson-SiteShackDesign]

This is truly first-rate, excellent: Clear, plain language that fits amazingly well with what I have experienced since December, 2023 when I tested positive (my first time) for COVID. Following this positive test, I immediately developed asthma and bronchitis (which I have had randomly for years). I was not, fortunately, hospitalized and at this time (5/17/24) my asthma & bronchitis have almost completely tapered off. What remains is almost exclusively PEM. I have a tendency to begin to feel slightly more energetic, then rush off to "drain the battery" - complete numerous big and little tasks - tasks that become exhausting and send me quickly back to PEM and bed rest. This is perhaps my main challenge in trying to heal: Getting enough rest, tempered with a moderate, carefully planned exercise plan etc.👍👍👍

[@nicoleagostini7125]

Any improvement ?

[@jgonsalk]

Great video. Very thorough and provides clear priorities. Really appreciate it! I hit the wall too many times and need to slow it down. I have recovered about 60 to 70% but the recovery has slowed which is extremely frustrating. I want my life back but need to give my body time.

[@brendabrenner2891]

Any suppliment help.. going to start protocol, I at a time.. sure is a tough journey🙏❤️

[@felipebaena735]

what did you do for recovering?

[@jgonsalk]

@@felipebaena735 Rest is crucial, I try to make sure I don't push myself too hard. I also take a few supplements and medications. Antihistamines and tricyclic antidepressants have helped a lot. I also take vitamin C, D and B (complex), zinc, curcumin and probiotics.

[@aurorasurrealis1032]

Almost 3 years into long covid 😵‍💫 I'm getting better, but extremely slowly

[@TheParadigmShiftTV]

Are you vaccinated, if so which ones and how many doses?

[@mentirusco]

​@@TheParadigmShiftTVim vacinated 2 times pfizer. Anxiety and taquicardia episodes after jabs. And long covid after gettimg covid 1 year and half ago.

[@TheParadigmShiftTV]

@@mentirusco Sorry to hear. My dad has his booster shot and had a heart attack after. He's been struggling with long Covid symptoms ever since and that was a year and a half ago. Trying to find what works to get him over this.

[@mentirusco]

@@TheParadigmShiftTV In my case im feeling a lot better but im not 100% recoverd. In my case help. Stop a lot diet stop eating sugars.more keto type with healthy fats advocado fish. Magnesum Take sun vit D

[@anna-marieeasmus7529]

Me too, I am 4,5 years in. Improvement is there but so slow only I can see it.

[@marcobagut]

Unbelievable, you described me. I am now left with Chronic Fatigue, post exertions malaise and lightheadedness. The last one has improved lots. I have to say, the brain fog was gone after three months, but the lightheadedness/dizziness still there, although lately is much better!

[@Rose_19911]

hello, what help have you had?

[@soulistsvn]

How are you these days?

[@marcobagut]

@@Rose_19911 None!

[@marcobagut]

@@soulistsvn My post exertional malaise is gone a few months ago. All of a sudden I can shovel and dig etc. and I even feel better! Now I do need exercise. I feel much less fatigued, like I can keep my eyes open in the evening and even do some chores. I feel more present, more awake, but I still get this feeling tipsy. Maybe that is brain fog. It's noticeable when I go to crowded places, like supermarkets or large gathering. It's difficult to explain, because I feel physically unwell, when I have this feeling of being tipsy, but I don't really know how. Soon i should get blood tests results from a study at Derby University...

[@kimberlyhooss5661]

This video has been really affirming- my 24 year old daughter has been dealing with varying and chronic health issues for more than a year now and with practioners that don't seem interested in getting to the bottom of why she keeps coming in with illness and often. This is actually describing her symptoms and I only wish other Drs were trained in looking for this!

[@ravennataylor7174]

This is so well-done, and thank you for creating this comprehensive guide for patients and friends/family members. I’ve had LC for almost 23 months. I had hoped to have surmounted it by now, but it might be that another unrelated health issue slowed my recovery. My infection was in 2023, and I’d had every vaccine available, and paxlovid in the acute phase, so I’m not among the worst-afflicted, but I have all the most common symptoms, and it has been life-changing. I hope but do not expect there will be major breakthroughs in understanding and treatment in my lifetime. Thank you for making this guide for me to share widely.

[@JoBroughton-yw7un]

After 3yrs I had worked this out, now in 2024 and have a better understanding of my demise and do what you suggest it does work.

[@mattwoolley]

2 years 5 months here. Haven’t listened to stuff like this in awhile because nothing really new is coming out. Interesting to see these doctors catching up to what we experience. Dead on that after about 18 months there has been little to no improvement and that the big 3 are still going strong. Cognitive issues, fatigue and PEM. 4:45

[@emgutter]

May of 2020 for me. I got treated terribly by doctors. Extreme fatigue, brain fog, and the worst one fibromyalgia. The absolute worst pain everywhere. No treatment. Like someone else in here was saying it’s like I got my life completely taken away from me. I got sick being an essential worker and now the government doesn’t give two shits about me. Adding- forgot the extreme weakness

[@bnaiyer]

I am a doctor and I had Covid and was on Paxlovid for 5 days. 10 days later, I was having lightheaded feeling, once fell down and hit my head. My walk was unsteady. One of this talks explained that low Serotonin my be a problem. I has having cold and stuffy nose and I was taking Claritin and also Tylenol PM. So, I stopped both of them. My cold is gone and muscle weakness and unsteady gait is all gone and feel good now.

[@meghan5170]

Paxlovid stopped muscle pains too but i am having PEM

[@sylviawillars1430]

Thank you so much for this video! It is clear, informative and explains LC in such a way that a lay person, like myself, gains a real understanding of what has happened to my body over the last four years. I am making great strides in my recovery, but still have weeks when I crash completely and am confined to bed to rest. I try to pace myself and follow guidelines, but the yearning to be the fit, active woman I was for so many years prior to LC can be overwhelming. Thank you too for all your hard work and research into LC and let’s hope that one day a solution will be found to help all those of us suffering from this debilitating condition.

[@thegreenerthemeaner]

My SPO2 runs 90-91 at rest, 93-94 trying to be active. My CO2 gets high, the Tinnitus I never used to have gets worse. Then the Brain Fog. Some days aren't as bad but there's no consistency in activity level/time equals hitting the "Wall" or being wiped out for days. I use a BiPAP on it's lowest setting as I can't push against a CPAP on it's lowest setting. More than 6 hours a night on BiPAP wears me out the next day. I'm now 100 lbs overweight, eat twice a day, not healthy but not trash or excessive fats and processed foods. Grass fed beef from friends of my daughter, Venison, Grandson raises Chickens and Hogs so no hormones. I REFUSE to take any more steroids to get rid of any respiratory illnesses. The incessant coughing at times, the sporadic racing heart at times of inactivity to get more Oxygen in and CO2 out worries me. At 64, not able to work even part time, on Disability and struggling more every day which adds to the stress of life itself I think and feel will lead to a much shortened life. I don't want to be an experiment, I don't want the impossible. I don't know what else can be done but accept each day of life as it may be, good or bad.

[@ericcardenas9812]

OK. So exercise, but don't exercise to avoid the wall. LOL :) My docs don't really know what's going on with long covid. Seeing a specialized doc in a long covid clinic. she says skip exercise and concentrate on diet. But I do feel I'm losing muscle mass. I don't think rehab therapists will now how to advise on exercise to avoid hitting the wall. They'd just see out of shape me and think its all in my head.

[@anniemoureaux4839]

You might consider trying qigong..gentle, focused and healing. There are some good teachers available on line.

[@dryfastingclub]

I feel like without dry fasting I wouldn't heal long covid so thoroughly

[@Golfr2020]

Exercise.. Yes. Just much more balanced and not go full blast when you feel good only to crash the next day or two.

[@clockworkbike]

Thank you for this video. It is really helpful to hear the truth and see a way forward.

[@FreddieAP]

@uthealthaustin4585 Which medications are prescribed for fatigue/PEM ?

[@mamaking777]

It's been 3 years and multiple positive Covid infections on the job as a nurse, now kicked to the curb 😢 100% accurate description here I'm afraid my life will never be the same.

[@RobManser77]

I'm interested by what you say around 4 minutes into the video. Before Covid I ran 100km a week (that's an average of 10 miles a day!) and was finishing in the top 10-20 in half marathons. I also windsurfed, walked a lot, cycled and surfed. I had absolutely no pre-existing medical conditions, was a healthy weight, full of energy, and barely ever got sick from coughs and colds. I am now living like an average 80 year old, and it's been just over 2 years since I got Covid. I can't even jog 5km slowly. I am absolutely nowhere near back to normal - in your percentages that you quote I would guess I'm around 5-10% of my previous health, but I hesitate to use that scale because I can't run 10% of my old weekly distance - I can't run at all.

[@captainted696]

Rob. I am 80 yrs old also. Before Covid I could average 21 mph on my madone - trek and hold that for 30 miles. I got Covid on a cruise. It wiped me out. Couldn’t breathe. In hospital over night. They wanted to keep me for extra treatment. When my fever broke and appetite returned I wanted out of there. CT showed lots of fluid on the lungs. Initially had trouble sleeping because of breathing problems . They went away. It’s 6 months since and now it’s fatigue and brain fog.my symptoms aren’t as bad as so many people on u-tube.i was a runner all my life. Did Boston- other races would win my age group.Ran Philly broad street run - won my age group. 58:15 when I was 47 years old. Trying organic protein powder. Benadryl. CoQ10., melatonin. People have gotten good results. At this point I have nothing to lose

[@captainted696]

I thought u were 80 years😂. Rob. Sounds like have long covid for sure. I would try probiotics, look into antihistamines. Maybe ivermectin. Good luck

[@dryfastingclub]

Don't run anymore duh... You def need some dry fasting in your life

[@SeppeDeVos-md7jk]

I am in the same boat as a 19 year old who was on the verge of going pro in road cycling. Now I'm here and I can't even ride my bike anymore. Cycling is the only thing that gives me PEM. Very weird.

[@melissasmomglam]

Any doctors in Houston TX?? I’ve called about 200 and can’t find any. Any suggestions?

[@beoz658]

Last time I got covid Thanksgiving 2022. I was sleeping 10 to 15 hours a day for a week. Never been the same, I am 65 and have always worked out and have always been hyper. Now my lungs have scarring and 11 nodules and for 2.5 years extreme fatigue, not digging it . Tomorrow I go to pulmonologist for either PET scan or lung biopsy.

[@neachtarrsainn3216]

Very informative video, but you really dropped the ball on one of the main symptoms of long Covid and that is the effects that it has on your gut health. In addition to the fatigue, my gut microbiome has been completely destroyed. I have been to several gastroenterologist in my area whose main goal is to only treat your symptoms and not get to the root cause of the gut issues that are associated with long Covid. Also, another big symptom with long Covid that is overlooked or not associated properly is tinnitus. If you have someone that has been diagnosed with long Covid, the chances are pretty good that they are also experiencing ringing in their ears. Especially during a flareup of gut symptoms.

[@tyitinanot6130]

post exertional malaise is the term I have been looking for. Caught original covid Oct. 2019 at a high school football game. I sat between a guy who could not stop coughing and my ex-wife. Chivalry is not entirely dead. 4 days of sweating gallons and exhaustion sleep 4 to 6 hours at a time. Incredible brain scramble repetitive thoughts dizziness culminating in a day of diarrhea/vomiting. Took a month til I was back to carrying a decent armload of firewood without needing to drop it and gasp for air. Doctors told me A. respiratory infection or flu (this was 3 to 4 months before it hit the news) B. long covid they don't want to touch I presume due to insurance issues. Answer was well you're overweight and 57 years old. Just now getting over omicron JN1 4 years and 4 months since I had the original. My diminished energy probably 50% from the first go round has increased to more like 75% hoping it may improve. Brain fog way worse this time like I'm constantly stoned but only 2 weeks of fatigue and issues taking a full breath of air. I used to run 10K regularly and was very active outdoors kind of guy now winded walking 4 miles down my road needing a 2 hour nap after my (mostly) daily trip. Age and physical condition I think determined my outcome and I am grateful to still be above ground. 5 friends and neighbors 4 of which were younger than myself are no longer alive because of it. I'm certain it shaved off a few years damn it I had planned to live to 100. What are you gonna do.

[@mikejrexec]

I know exactly what you mean about the long naps after minor exertion. I wake up and take a shower. Then back to bed for a nap. Take an afternoon walk and back to bed for 3 hour nap. I told my doctor last week I think I am asleep more than I am awake each day.

[@mariannejrgensen4196]

3 years now.. It's so hard.. here in Denmark there is no help at all sadly..

[@wesanderson7918]

Thank you for discussing.

[@anna-marieeasmus7529]

This is very good, thank you. I work on my own recivery and in hindsight, this is also my approach but a little different order. 1. Energy management (pacing) 2. Symptomatic management ( looked at nitritional deficiency symptoms that looked familiar - a lot of long civid symptoms looks like vit. B deficiency and Magnesiumdeficiency). 3. Intentional rehabilitation. I am reintroducing foods that I had to cut out, one a month and see how it goes. Also increasing functional movement as appropriate). 4. With the help of someone knowledgeable in herbal remedies we are looking at my blood for specific things to try. 5. The last is to wait for the timenof healing, while keeping up with the plan.

[@siobhanrose1680]

2 years ago (Nov 2022) I had covid for the second time. It was very short, but very nasty. Literally 24hrs I was bed ridden barely conscious. Then in the morning, I woke up feeling great. Within a week or two I started noticing numbness on my lips/face, as well as pins and needles in my feet, those symptoms disappeared after a few weeks. Not long after that my hands started going numb at night when trying to sleep. I was very concerned and spent a good year trying to get a diagnosis (I have not had an MRI of my brain, but I have had ultrasounds and x-rays and even a cat scan in that time) I haven’t had a nerve conductivity test done either. I was diagnosed first with thoracic outlet syndrome (which is it true, I do have awfully tight scalenes and have for a very long time due to chronic anxiety) Then my doctor said, well you have tennis elbow (in both elbows?) then well you have cubital and carpal tunnel (in both hands?) basically I have a nerve condition, with nerve symptoms. I stopped going to my GP when I realised she really had no clue and could not offer me an answer. I was spending too much money, for no answers. Basically, I can’t exercise anymore, I can’t even walk my dog for more than 20 min per day, without my symptoms being exacerbated to a point where I get no rest. I have an internal buzzing in my limbs almost constantly. My shins and my forearms hurt almost always, but to a point where I can’t get to sleep at night, and, if I exert myself too much during the day (living anything other than a very gentle and quiet existence - ie impossible) then I will have numbness and tingling/buzzing in my hands when trying to sleep at night. I have had my spine x-rayed, I think I even had a CT scan of it. It all started when I had covid, and it’s taken a while to accept that maybe this damage to my nerves from covid. At first I continues exercising, and I had dead floppy arms all night every night, but I slowly realised that exercise was making it much much worse. So I went from being an active 37yr old, to being a pretty inactive 39yr old. It makes me so sad, I miss being active. I can’t even do yoga. It seems to be some issue between my muscles and my nerves, and anything that puts stress on my muscles or nerves, will cause me to have weeks worth of sleepless pain-filled nights. I have seen many types of “professionals” to attempt to heal; Physiotherapists (x2), osteopaths (x2), chiropractors (x2), TCM practitioner, massage therapists (multiple), naturopath, hypnotherapist, 2x psychologists. As well as scans, x-rays, blood tests, heart monitoring etc etc etc. It’s been a long 2 years. I do have other symptoms such as fatigue, tinnitus (started at the same time as the numbness and tingling), brain fog etc, but I was diagnosed with fibromyalgia years ago, so it’s impossible to differentiate symptoms of that and what I believe is long covid/covid damage. I am unva**ed. I am about to try ivermectin and fenben. I do no see improvement over time. In fact, it may be progressing, although it may just be staying the same, but I can’t determine that really.

[@sofiaguadalupe2008]

Tuve covid dos veces, la última en enero de 2022, todavía no se me pasa la fatiga física y mental. Me produce ansiedad y tristeza. No pude seguir trabajando. Hago ejercicio a pesar del la fatiga casi insoportable que muchas veces le sigue, dependiendo de la intensidad del mismo y también del estres social que tengo. Si no es long covid, no sé que tengo, los médicos que ví no saben porque estoy tan cansada. Gracias.

[@sfn-life]

I have had some kind of post viral illness for many years (have a dx of CFS/ME). The problem is...the energy envelope changes dramatically all the time -- even many times within one single day....so it is very difficult to meet a moving target....and....if you stay in bed (and I have been bedbound before...)....then you get deconditioned and make things worse....what research is currently happening that is leading to any answers? I've read about the spike protein being found in stool samples along with other potential latent reactivated virii like EBV... I also have read about the hypercoagulation that occurs in long covid.....and recently learned about lower levels of circulating serotonin (not in the brain but peripherally)....also there was the small study done whereby 4g of creatine were given administered daily for 6 months, and study participants reduced fatigue in a statistically meaningful manner....what do you think is going on there? What are some ways to increase serotonin or tryptophan uptake?

[@brendabrenner2891]

Serotonin made in the gut. Mine is a mess. Celiac + long cov, long Lyme, vac injured, Mt Sinai has massive grant w huge studies, but only 4 New Yorkers.. Dr David purtrimo.. think he sells supplements. Going to start protocol w nattokinase, serratepsee, choline, berberine, but I at a time.. healing prayers 🙏❤

[@torchpitchforkpac1593]

I'll be 62 this June and have had Long-Covid since Delta and Omicron. Covid was the worst illness I have ever had. And the first time I contemplated the inevitability of my own mortality. Scary, though I never had it too severe. The brain-fog was the worst, followed by fatigue, headaches, and general soreness. Methylene Blue (MB) - about a year ago I was having more bad days than good. Then I started taking Methylene Blue - 40mg/day. A test dose of 10mg/day for a week to identify side effects. The most notable is that your pee turns blue. And of course I add B-vitamins so now its neon-green. :) Too much fun. Anyway, I describe this treatment as a 'sports brace' for your mitochondria. It allows you to push a little against the PEM wall without crashing. Also, it helps with the brain-fog. I saw noticeable improvement during the 10mg test week. Titrating the dose took a few weeks, and finding a suitable delivery method took even longer. The MB powder I get (Amazon) comes in 1 gram vials. You can just mix it with water and add it to juice or whatever. Straight it tastes a bit metallic. I cut it with cornstarch for easier handling, and fill 24 capsules which yields 41 2/3 mg/capsule. Roughly 40mg due to losses. Much more than that and I start to get jittery. Also, MB and B-vitamins can exacerbate insomnia so I take them early in the day. Six vials of MB costs me $45, so about 35 cents/day. If you are taking regular medications it is a good idea to research interactions with MB. Not many, and the 10mg test shouldn't cause severe reactions, but any meds that don't play nice can have nasty side effects. Live long and prosper...

[@sofiaguadalupe2008]

Thank you so much. Me ayudó mucho escuchar estas explicaciones.❤

[@JohnPatterson-bt2ru]

I had COVID for 3.5 years, then brain fog then lost my short term memory. I was left to watch KZbin all day tilli found magasimum now a new life

[@prince_of_summer]

What did you find?

[@mric4069]

Magnesium I think. Id recommend taurate.

[@ThewaytoIslamstepbystep]

I use Magnesium glycinate, it's useful for depression and anxiety

[@denisetitchgregory5867]

Thank you for sharing this video, I no longer feel like I am stuck in a never ending nightmare! I have Lupus, Antiphospholipid syndrome and a cardiac pacemaker due to Mobitz type II heart block. Since contracting Covid I have barely been able to get out of bed :( Slightest exercise renders me straight to bed for up to 24 hours. I live in the UK and seriously considering asking for a referral to a long covid clinic.

[@cwolf8841]

Since docs in my area aren’t accepting new patients, my ‘treatment’ is vit D and electrolytes. I’d drive to Texas to see y’all, but I’m guessing you’re swamped. Cheers.

[@michaeljhonfantilanan3207]

3 years but still palpitations, anxiety and hard to get sleep lord jesus help us

[@beltalowda7897]

The insomnia is horrible. I think it’s the worst part. I was getting off of meds for insomnia, now I have to increase it because I’m literally not sleeping without it

[@I124q.....28]

March 2020 still suffering fatigue and nerve pain

[@jagererk65]

It was 6 months since this video came out, is there any prooved or very compeling treatment? I done 1000000 tests, spend over 5k to look for any wrong in my body but i found nothing wrong, but still i have worst time of my life in terms of how i feel sick

[@Mrs.atchley22]

I was hospitalized and had severe COVID lungs in 2020, When I got better about two weeks later I ended up having sleep apnea. About a year later, I got asthma. A year after that I got shortness of breath, Tachycardia, exhaustion, brain fog, severe depression, hypnic jerks, numbness and tingling, insomnia, night sweats and so on and so forth. Unfortunately, it's getting worse.

[@ja3482]

I had just started managing my own apnea to need a machine a year ago and then I got stricken. Now between direct effects and the indirect effects like weight gain and inability to exercise as much as needed, I need to use my CPAP every night and I'm going to need to bump it up to bipap for increased pressure. It just keeps getting worse. It's funny how they were able to rush the vaxx (coincidentally making money for pharma) but the long covid research is slooooooooooooooow.

[@waltwenzel9549]

Excellent video. Great info and on the level. My long Covid experience is going on 3 years, but I am seeing slow, gradual, definite improvement, and this video, in plain language, gives me hope that one day I may be myself again. Thank you.

[@michaelb1621]

Almost healed. Got it sept 2020. Almost killed me. I still got the fatigue but not the PEM so far. Worst part is if you have people in your life who don't even believe in this kinda thing. What a nightmare.

[@jabolbot9371]

I took part in a medicine trial via my local hospital system. It was overseen by Mayo Clinic. There was the choice of 2 “tracks” a mental/brain fog and then a physical symptom/fatigue track. Lots of safety blood work over the 6 months. The brain fog has mostly lifted. I would love to find a long Covid clinic to help get my physical strength back.

[@SrBachulas]

What kind of treatment did you receive? Thanks a lot

[@titanEM11]

Recently got covid. 21 days from initial symptoms still short of breath and fatigue. 😢

[@mikejrexec]

Just recently diagnosed with long covid after 2 years of GI symptoms with no findings after numerous tests. Now my body is attacking my T cells. The GI symptoms have eased quite a bit on their own but now left with extreme fatigue. This all started with what I thought was a really bad stomach virus so I never was tested for covid during my initial sickness. I thought covid was strictly a respiratory disease. I hope, like my GI issues, that the other symptoms will get better over time.

[@kristinbroughman2814]

If you have HSV , it can alter your T cells

[@joelsnake8]

Thanks for the video. I hope we all can recover soon

[@Dr.DavidVang]

Why not check for the Spike Protein? Then Detox the spike protein as Dr. Peter McCullough suggests.

[@marcelosinni]

Is there any treatment for fatigue ? 2 years after my infection and this huge fatigue and fibromyalgia (I didn`t have fibromyalgia before) just don't go away. Unfortunately I'm moving away from my social activities. Even to go to job, it's been hard to me. Thanks to remote work, I'm managing this but, if I need commute everyday, I don't what to do. I just don't have stregth or energy anymore.

[@SparkyKev]

I’m curious how many people with long COVID here have gotten the mRNA shots. I don’t know if there’s any correlation.. but I’m trying to figure out anything I can for my poor wife who’s been dealing with this for a year now. She got three shots.

[@marcelguldemond2523]

Nice clear summary thanks. Can you speak to how much frequent reinfections make the LC worse? I either get reinfected about once a month, or I’m just no longer able to clear it. Have you seen much immune dysregulation in your patients?

[@strideroflilacts]

Hi, if you're looking for summaries about immune changes after infections the app Turnto (a platform dedicated to long covid/ME) has a database that uses ai to compile research and then breaks it down in manageable ways making it easier to read. It's an excellent resource for staying up to date articles. It's worth checking out!

[@ThewaytoIslamstepbystep]

4 years of long covid and multiple infections. I suffer from fatigue, brain fog and depression. The best treatment I found is Piracetam for depression, Magnesium glycinate for anxiety, Curcumin for better mood and food that has high antioxidants

[@gittebukhpedersen72]

THX.. would be great if you could reach some MDs in Denmark

[@maryr7593]

Find the academic research paper and bring the printed copy to the appt. You could try sending them the video ...but my experience has been that they dont watch it before the appt. The dr will not have time to read article at appt....but having it on paper allows it to remind them that they need to get up to speed.

[@lawrenceober849]

Best overview on line. Thank you

[@romygime5822]

What is the treatment?

[@Logi_Queenie]

Never had Covid but had all rNA vaccines which triggered the worst symptoms of POTS I had diagnosed prior to pandemic. Lost 30 lbs in a year and I’m 40 and athlete my whole life. Thanks for talking about this

[@BasicBeachCommunity1]

i've been trying to help my wife. She refuses. It's very challenging.

[@RhondaVanvleet-c6c]

I have so many neuro symptoms Most you mentioned, but a few that Weren’t mentioned I am 59 years old and have an autoimmune disease for 40 years ( ulcerative colitis). I have been taking a biologic medicine since 2017. I had my first Covid in late July 2021. I had a pretty mild case compared to others, so I thought. I did lose my taste and smell, and then it returned pretty normal and then three months out, I started having terrible smell and taste issues where everything was distorted. ( October) Parosmia - many foods and even body fluids, don’t smell like they used to. They smell rancid or now, after 4 years of having these smells, I call them my “Mystery smell”. Used to be many many things that all smelled the same. Now it is mainly onions, ( even onion powder in foods and sauces), coffee, and biological smells like poop, my urine and my body odor, all smell different to me. I have read that it is usually the Olfactory nerve that has been damaged and causes this. The next thing neuro things that have been so heightened, are smells like air freshener and perfume. If someone sprays something in my home, it bothers me so much that I can hardly stand it. These scents used to be comforting and relaxing to me, but now they are awful. My eyes - they are blurry when I get tired and sometimes, all day. My feet are always freezing ! The peripheral nerves in my feet must be not getting enough blood. I don’t know, but I always have to have slipper socks on sometimes also a blanket. Sometimes my whole body is cold, where I stay in a sweatshirt all day long. I had a time, for about nine months where the tendons in my forearms were not able to stretch, and I was not able to extend my wrists backwards. Those were diagnosed ( just guessing) as eosinophilic fasciitis. There wasn’t too much they could do for it. I tried OT, we tried High dose steroids and methotrexate. I have terrible brain fog where I can’t remember things that are people have told me. Many times. I don’t remember whether I did something or not and I have to go back and look again to see if I did. This is especially common when I’m working on the computer, I have to Follow back and make sure that I did something and I almost have a panic attack when I think about it and think I haven’t done it and then I go back and check in. In fact, I did do it, which calms me down, but it disturbs me that I can’t remember that I did it. I can’t remember conversations sometimes, or I can’t even follow a conversation. If I’m doing anything else that takes my attention away, I don’t hear what people say. People get mad at me because they think I’m not listening to them. When in fact, I don’t have any control over not being able to follow along or remember what they are saying. I have often, chronic headaches for weeks on end. I am slugging on the couch most of the time because I don’t have the gumption or the motivation to get up and do anything. Many times I don’t get dressed all day. I just sit around in my slipper socks and my sweatshirts and work from home. I get short of breath when I go up and down steps too often, or walk longer distances. I am often moody, or I just sit quietly and watch TV to stay away from people. They constantly get upset because they don’t understand what’s going on with me. They just think I’m lazy and I don’t wanna listen to them or I don’t care about what they’re doing or saying. It’s put a terrible strain on my personal relationships. After my second booster for Covid I developed shoulder pain in my bicep where they gave the injection and that went on for a year. That pain would not go away. I had numerous steroid injections into my shoulder joint. I had physical therapy and massages and everything I could think of to try to help my shoulder feel better and it just wouldn’t. Nobody believe that it was caused by the vaccine into my arm, but it immediately started as a sore arm after my vaccine, and then just stayed there. It finally went away after two or three steroid injection straight into the joint. But I am convinced that it was caused by that vaccine, that time. My hair has also thinned out tremendously over the last 4 years. I think that is about everything.

[@Lakawanko]

I am in my 3 years now, and what ia have is head pressures. I hope you can find treatment for this. I am a nurse and I am trying to recover withiut any check up at all. I have this left which is pressure in my head. Thank God I am relieve which difficulty breathing, visual problems, walking, body pain, etc. At first I was struggling pushing to get better and then I slow it down. Keeping my day focus like normal days like before and then I got better slowly..It takes time. I hope someday it will all go

[@isaiahwilson2284]

I think I have long covid. Doing a bunch of testing. Feels like someone beat my head in with a hammer, disoriented, cognitive decline, poor memory, slow processing to the point where I feel like I can't drive in heavy traffic, nexk stiffness, random Chills, diminished taste n smell, metallic taste in mouth sometimes, low salvia production, and numbness throughout my body like I have nerve damage. This all happened after I got a root canal retouch on deployment 3 months ago. Going through testing and mostly everything is coming bavk clean.

[@eYeSoN3691]

I am in your boat symptom wise still no diagnosis!

[@isaiahwilson2284]

@@eYeSoN3691 dude I feel like I am dying man. Feels like parts of my brain chemistry has changed. I just want to go back to normal man.

[@eYeSoN3691]

@@isaiahwilson2284 I know man I honestly don’t even know what to do at this point just keep hearing different shit I thought I had CCI for a bit but just nothing!! But my the left side of my neck was hurting bad and like tense, I have a lot of pressure in my head and constant migraines that come in random spots, I had for awhile like a burning sensation on my hands and feet my body would get extremely cold or hot just randomly, I had like digestion issues or something, I had heart palpitations, I still have like brain zingers or like brain zaps, a lot of brain fog and no energy and yeah that metallic taste is real!!!

[@isaiahwilson2284]

@@eYeSoN3691 I am right with you man. I am seeing a neurologist. Thank god I am still on military orders and getting paid to be looked at. However, I think I am going to go to a nice hospital and see what civilian doctors say vs all the military docs/specialist I have been seeing.

[@eYeSoN3691]

@@isaiahwilson2284 yeah that’s nice!! But I haven’t had any success on my end I’ve seen 2 neurologist and nothing I’ve also seen multiple just regular MD’s it’s honestly crazy stuff because it’s a multi symptom issue. I plan on going to see a rheumatologist! But right now I’m going to try this FLCCC long covid recovery treatment it’s had massive success and at this point I’m desperate I will keep you posted for sure I’m starting tomorrow to see how it goes!

[@TheParadigmShiftTV]

All research into long Covid needs to take vaccination status into consideration. What percentage of long Covid sufferers are vaccinated and how many doses. My dad has been suffering with this ever since his 3rd shot.The vaccine causes your body to produce spike proteins without an off button.

[@MealsBeast]

2 and half years since I had Pfizer I have all these symptoms, previously very fit, got worse after catching covid

[@jewelleryaddict]

Very lucky can get disability help for l-covid. I have had severe cfs 30 yrs. We battled for first 20 plus years to try and prove we are disabled many gave up because your already tired and this process with usually a lawyer is expensive and takes forever, if you can ever get help Was many many years before we were heard and got help. Hope these people get help soon. This disease unfortunately lasts forever. The mental struggle is just as hard as the physical struggle. Put your armor on your up for big battle. Good luck. They never helped us.

[@Richexperience1]

I cannot imagine how horrible that was. So glad you all paved the way. If you didn’t things would be worse.

[@jenimcleod1553]

What happens if you are stuck on step 1 and it's been 4+yrs. I can work my full time job from home... but that is literally it. I sleep *almost* exclusively the rest of the time.

[@amandabricot]

This is a nightmare. I feel like my life was stolen from me before my eyes. Not sure if the second and last dose of the vaccine did this to me- or the harsh Delta variant I caught just 2 months after, in December 2021. It took about 10 months to start feeling slightly better…until I caught another virus in October 2023. Although the test was negative, it felt like covid and the GP consulted at the time said it was probably the current variant that went undetected. The first time- while sick- I had all the symptoms and ended up at the emergency for 24h. Never in my life did I suffer as much. Breathing was hurting me, my rib cage was hurting at every breath. Loss is taste, smell, 41 degrees fever, couldn’t feel my legs anymore and could barely walk (this happened as well right after the second dose, from which I took about 3 weeks to recover). I now have IBS, loss of short term memory/ brain fogginess, my speech is affected. Sometimes I sleep well, others I have insomnia and wake up at 2:00am before falling asleep again at 5:00am or 6:00am until I have to wake up for work. It’s so hard because it doesn’t show (I look super healthy, make up helps too + I always had healthy habits). I also try to conceal it so people don’t notice. It’s like no one really talks about it and no one really understands so I keep it to myself. The worse is the extreme fatigue and pain in each and every muscle of my body. The feeling that I’m burning from the inside, all à along my spine and in each muscle and joint. Even my hands, I have no grip anymore, my fingers and wrist are so weak. I feel like crying every day, as I live in a painful body where I can’t enjoy myself. What if I never recover?!?! My husband and I want a family, I’m way too young to live like this for the rest of my life. How am I going to go through a pregnancy in that state or even correctly take care of our baby?!?! We caught covid at the same time but thank God my husband was able to almost fully recover from it after a few weeks- thank God- but I’m still very affected. Lord help all of us suffering, this is unbearable 😢

[@Megan-vi5uu]

I caught the same variant in December 2021 and went positive again just a week before. I totally understand what you are talking about ... it feels like I have tried my best to recover, deal with all the losses while keeping it to myself because I need to continue school and work at the same time. It's like things finally got slightly better and it hit me hard again and everything just turned down immediately. I have no clue how I could start a family and go through a pregnancy while I am exhausted just to work 4 hours a day. I hope you get better soon and let's hang in there.

[@brad-fg9ss]

I had the long term Covid last year 2023.How long before I get over the fatigue.?I’ve had to take days off from work for it.Fatigue is the only symptom

[@TheTroothseekr]

Have you seen recovery from POTS?

[@rg1869]

Hello! Thank you for your videos. I tested positive 4 weeks ago and I am still feeling the fatigue where making the bed get me winded. Would this be considered long covid?

[@edjack5on]

No, most guidelines classify as long covid after 3 months. My advice would be to calm your nervous system and increase your immunity believing you will get better soon. This is the best thing you can do to not develop long covid.

[@jawaligt]

That's not true at all. Most guidelines consider LC to be present after 3 months of sequelae, some even go as low as 4 or 6 weeks. In many cases, symptoms actually seem to intensify or really present themselves 2-3 months after acute infection. That's been my personal experience and I've read many similar reports from other patients.

[@edjack5on]

@@jawaligt exactly, I wanted to write 3 months, you are correct.

[@brucedunn6845]

​@@edjack5on stop talking tripe , no such thing as long COVID, just a reaction to the poison they stuck in people's arms

[@stuffclusters]

@@brucedunn6845 stop being an idiot, i am not vaccinated and i had long covid for almost 2 years

[@MarkLetman]

I have fibromyalgia and its triggered that and i fatigue and breathlessness

[@almabollinger]

They lie about fibromyalgia my doctor told me it a name when they can't figure what you have mostly Lyme disease and those test don't work

[@barbietheemuslimah]

Yessss I’m still dealing with this from Covid in December 23 😢😢😢😢

[@KoolAidDinkyTV]

How are you now?

[@SumanAcharya-w3d]

doctor i am from Nepal.i am suffering covid 19 last 4 years .i takes different medicine . previous 2 years i takes oxen in ventilator . Remdiciver, meropenm, nindanim dfferent medicine i use but til now not recover. Sorth brething chest pain , etc held plz help me my god.

[@brunomachado9123]

THANK YOU SO MUCH!

[@garyneilson3075]

At least 3 years or so for me and it's exactly like this, the fatigue pattern and hitting that wall and crashing

[@garyneilson3075]

And yeah the brain fog

[@Me-yp7uo]

I wish healing was a year and a half. My daughter and I are going on 4 years and we most definitely have been getting progressively worse through the years

[@rdbchase]

No mention of mast cell activation or even of antihistamines?!? My long COVID was originally misdiagnosed as a sinus infection. I developed symptoms of asthma, but after several months, and a methacholine challenge test, asthma was ruled out. I was finally diagnosed with acute rhinosinusitis with nasal polyps and months later started on dupilumab; I flush my nose twice daily with mometasone in saline. I do experience some fatigue and minor postural vertigo, but in terms of debility, they pale in comparison to my sinusitis and diarrhea. While my polyps have receded, rhinosinusitis and diarrhea are my chief complaints and they don't seem to be getting better a year and a half in. When I complained enough about the former symptoms, I was advised to take quadruple doses of over-the-counter antihistamines. Taking a triple dose of loratadine and/or fexofenadine and famotidine too does seem to help, but I'm looking for better therapy.

[@FreddieAP]

I am stuck at 30 % after 19 months. Tops 2 short trips of 1.5 hours per week. PEM is what harms me most and has changed who I am.

[@FreddieAP]

@uthealthaustin4585 My PEM warning is a sense of feeling invincible, ecstatic, a sort of high I remember from certain medications, feeling my LC is over and I am better. If I act on that feeling of "strength" and do more, exercise longer, stay talking at an event (outside ofc) then I am ill for the next few days or week. It feels like a trick my body is playing.

[@dryfastingclub]

Pls look into dry fasting it can be the spark that sends you back into a healing trajectory

[@George-ze6dj]

I got covid in 2021 and it almost killed me, since then I have breathing problems fatigue and weakness my doctor have no idea how to deal with it.

[@nicolettemandelstam4780]

Patients with which variant gets better? From all the LC groups I'm on, I read that people with the 1st variant mostly stay sick and get worse. Those with later variants do get better, but relapse again. Please, please, please stop saying MOST patients get better without full context. How do they get better, what changes, do you track that they don't relapse? Did their bodies magically overcome the viral persistence? If so, how and why? I got Covid in July 2020 and never recovered, but could still function. Again in July 2021, 2 vax's, got much worse, Covid in November 2021. Everything just got much worse since then. Also have POTS. I haven't been able to work since Nov22, bed-bound, on oxygen, in constant excruciating pain, severe cognitive impairment, GI issues, etc. Get severe PEM from any activity: conversation, reading, phone call, short walk, shower. I get up and do things, knowing the consequences. But, I refuse to let LC win.

[@carlosgarcia3836]

What supplements have my fellow long haulers worked for them? Salmon oil has helped me, ivermectin, Probiotics, Nattokinase, Hydrogen gas inhalation, humic/fulvic acid cellcore detox. Sitting in natural springs has helped me the most, maybe because it grounds the body and stops inflammation.

[@jackjones3657]

What few of these people seem to discuss is successive bouts with the virus. The variants are often easy to catch. The initial illness can be minor, but then come the more severe, chronic and lingering "long covid" effects that can be so debilitating!

[@elizabethsamuel2219]

I am hearing the truth!

[@debra9040]

Thank you!

[@isaiahwilson2284]

The only weird thing is that every time they tested me once these symptoms started for covid it came back negative. Also had covid confirmed in 2021. Don't know If i really have had it since then.

[@davidlaney6153]

Yes on Serotonin...that's actually a good idea...

[@robbtaylor8833]

3 covid infections ... 3 years long haul ... Started low dose Naltrexone 2 weeks ago still titrating up to 4mg over next 8 weeks. Crossing my fingers

[@almabollinger]

4 for me and it's bad also my daughter 😢

[@Fiawordweaver]

4th Moderna shot and chronic fatigue 3 years later. I have Hashimotos and wish I had stopped after two vaccines. My life is drastically compromised.

[@Kathysart]

Thank you. 🍃🌸🍃

[@TheDonwiggins]

I'm not sure what helped me fix mine. I did so many things. I had all of the symptoms for about 7-8 months. I think changing to a whole food, mostly vegetarian diet helped the most. I used mullein tea, and many other herbal teas. I made my own sauerkraut and ate a lot of that. I took elderberry and echineacia, shilajit, raw garlic, fire cider, sea moss and any natural antiviral I could find. I basically put as much really good stuff in me as was reasonable. It seemed to help.