Long COVID Treatment Explained: A Comprehensive Patient Guide

[@spiritualkings]

This is the most accurate description of exactly what I'm going through. He hit everything right on the head. Every time I have a good day, I then have a 'setback' day. It's very frustrating. I have had symptoms for 4 months now. Right before I got covid 11/21/2023 I was in the best shape of my life. I was weight training and showing real muscle gain. I was becoming lean and mean and my cardio was doing great. Then I got covid and it has ALL turned to fat and I have lost everything that I have gained. Not only that, but the first 3 weeks I got covid, the 'FOG' sympotms were SO bad that I could barley even leave the house. It was so bad that I could hardly even hold a conversation without losing track of what I was even saying. The first 3 times I got covid it was NOT nearly this bad. This last time it has been just horrible. Luckily for me, I have gotten progressively better each week. It has been SO frustrating as I am a very active person and I thrive on physical activity and keeping up on my workouts. All I can do is pray and take it one day at a time and hope that I recover fully and be ready for spring. Ugh, this has been NO FUN at all. I will never forget this. I pray you are all getting better. God bless.

[@wesanderson7918]

I’m going on 6 months. Starting to feel like groundhogs day. Thanks for sharing what you’re going through. I pray you fully recover. I don’t mean this is a bad way but it’s nice to hear others are going through this. Makes me feel less crazy.

[@spiritualkings]

@@wesanderson7918 Thank you! The great news is the past 10 days I have gotten noticeably better. I'm at about 85% again. Thank God! I need to take it slow however. I'm learning how to not to get too far ahead of myself. Thanks again for your support!

[@kennethbrady]

@@spiritualkings So happy for your recovery! 85% is pretty darn good. I am at like 10% and going a little crazy, frankly. I think you understand. What kind of treatment did you receive? And how long after treatment did you see progress? Thanks very much!

[@BrownGuyGaming91]

I've been dealing with this since August 27th, 2023. Don't know when my long covid actually began to after initial infection. I've had all the crazy symptoms, fatigue, vertigo, tremors, sleep apena etc. 2 months ago I got here with these weird anxiety symptoms, shortness of breath and sleep anxiety/sleep insomnia. I had this the first 2 months and it came back. It's so frustrating because just when you think you're getting better you have a setback or symptoms come. I know how you guys feel. This has been the hardest time of my life. In January for 2 weeks I was really good and had no fatigue and all my energy was back. Then all of a sudden I got hit with fatigue again. Right now I'm sometimes dealing with sleep insomnia, it comes out of nowhere with chest tightness. Still a little bit of fatigue lingering, can I have a random headache now again on and off. And my body is constantly warm. Don't give up!

[@eliaslovstrom4791]

@@spiritualkings Hi, how are you feeling now? Did you take any special supplements that helped your symtoms?

[@GungaLaGunga]

First infection May 2021. Dysautonomia, tachycardia, devasating fatigue and post activity crashes. I'll feel better over a few months, try to get back to life, then crash again. What a nightmare.

[@JoBroughton-yw7un]

Same here crash after crash.Covid Feb 2020 again22 23 no jabs so I know it's covid, they say things worsen before getting better, this LC is far worse than plain old covid, I am 75 and I will not let it BEAT ME.

[@GungaLaGunga]

@@JoBroughton-yw7un oh thanks for sharin gyour own experience. i am only speculating for myself, but i am hoping for th eblood tests they are working on are available soon. blood test to either validate or invalidate my educated guesses of my experience: i think it is an autoimmune disease from covid virus damage My body was destroyed. could run two miles before i got my first and only covid infection. Now i get exhausted just doing very light chores. right now, i'm home bound. just going to the store today wiped me out. this is teaching me patience and perseverence i never knew i had. stay strong. i wish you well.

[@annerowell5050]

Same here

[@firstplayerfilms]

same with me, since Nov 2020

[@whisperingdeath308]

I got it in August of 2021

[@soal-lt9rf]

Thank you so much for your simple yet logical approach to deal with this silent and debilitating condition. Many doctors have chosen to dismiss it -hoping it will go away magically.I think part of the healing process is radical acceptance.

[@meaganmorin3344]

Thank you for this overview. Very clear and understandable. My biggest struggle is with fatigue, but also widespread weakness and occasional numbness. For a “healthy” person, it’s been quite debilitating and disheartening. Wishing all long COVID sufferers a speedy return to health.

[@dougfuller7314]

I had Covid-19 in September 2023. I still can't focus, have frequent major headaches, trouble sleeping and walk into walls when I get up in the morning since I'm so dizzy. I still work, but feel that my job is in jeopardy since I'm probably about 40% as functional as I was pre-Covid. This subject needs to be explored and I thank Dr. Brode for his dedication in research of this issue.

[@creativeperspectives2712]

Same here. I do not have the job also. Looking for a job.

[@Falcon47-47]

Just starting my long Covid journey. Third round of Covid mid-July...took Paxlovid...fighting shortness of breath, arrhythmia (tachycardia), fatigue, brain fog, having bad days with an occasional good day, and depression. I was in very good cardio shape prior and now virtually disabled. I realize it's only been four weeks but I don't see a rapid recovery going forward. This video was very helpful.

[@poweredman]

There's supplementation that are really helpful: co-enzyme q10 particularly!

[@garyneilson3075]

"hold fast"! (1Thess.5 :21, the Bible)

[@Falcon47-47]

@@poweredman Just started co-enzyymes today.

[@kilikdudley]

Please look up Buteyko method. Shallow breathing practices have helped me greatly. It is counter intuitive, but shallow breathing simulates peaceful existence.

[@joannethompson3128]

Don't give up! It's been over 2 years for me. Pacing yourself is key however, understandably frustrating that getting back to base line seems impossible.

[@genegarneau3822]

2 years for me. Now it is in my heart, lungs, nerves and brain fog, always forgetting. I am getting my energy back. I hope I do not have much longer to go. 2 years of this has been hell.

[@Kilodank1]

I hope you get there soon !! I can't wait to heal either

[@jasonm.3933]

It’s been nearly 4 years for me. I don’t so much have the brain fog, but definitely the other symptoms, which really aggravates my anxiety, and in turn makes my symptoms worse. Hoping to get accepted to a long Covid program. If I’m not accepted, I don’t know what I’m going to do, as it’s the only one in my area.

[@vanlo1178]

Oh man…. 2 and 4 yrs? I already had (have) fibromyalgia and CFS before long covid, but I was able to work. Now instead of just getting tired sooner and having bad muscle pain if I over did it, I’m stuck having body aches and feeling extreme fatigue all day. I’ve already been out of work 3-4 months.

[@vickijohnson9367]

@@vanlo1178 Because the me/CFS was a gain of function mycoplasma, patented by U.S. Army Lab. There is still 1 video up and running on the Asperger the microbiologist is Dr. Garth Nicolson. This one information is in a testimony for Germany Commission David Martin on Data Science Association July 2021 video hard to find also. And this is what this is kzbin.infoAztC633XUzs?si=AYcYkteiWfr4am5L

[@Kilodank1]

@vanlo1178 I've been out of work for 4 years and I'm only 31 I can hardly function being at my house . I still look fit and healthy tho but im in a wheelchair if I step foot out of my house . I can only walk 300 steps before my body completely shuts down then I have to rest for 2 hrs before I'm able to move or think straight again

[@sharonkane1207]

He explained everything so well. Post exertion malaise for me is the worst and he reiterated all I've learned, from UK LC services, and I'm trying to apply. So complex and different degrees for everyone. Very informative, helpful and clear. Thank you.

[@JudyWilson-SiteShackDesign]

This is truly first-rate, excellent: Clear, plain language that fits amazingly well with what I have experienced since December, 2023 when I tested positive (my first time) for COVID. Following this positive test, I immediately developed asthma and bronchitis (which I have had randomly for years). I was not, fortunately, hospitalized and at this time (5/17/24) my asthma & bronchitis have almost completely tapered off. What remains is almost exclusively PEM. I have a tendency to begin to feel slightly more energetic, then rush off to "drain the battery" - complete numerous big and little tasks - tasks that become exhausting and send me quickly back to PEM and bed rest. This is perhaps my main challenge in trying to heal: Getting enough rest, tempered with a moderate, carefully planned exercise plan etc.👍👍👍

[@nicoleagostini7125]

Any improvement ?

[@darlasue15]

You seem leaps ahead of the Baylor Long Covid Clinic where I am a patient. I appreciate your explanation and overview of Long Covid and it's treatment.

[@lukepearson8851]

I'm a cross country athlete at the college level. Since Covid, I'd get these spouts of fatigue that'd last for a week then I'd be fine again. I'm a sophomore in college now and I've been fatigued with brain fog for the past 3 months straight. I haven't been able to run or compete. My life has been taken away. I've had various blood tests and sonograms done only to conclude I am "in perfect health." I'm finally trying to reach a long covid clinic, but I'm worried I'll never run again.

[@bennyb.1742]

We'll get there man. Ex-pro track cyclist here, so I know how you feel. It can be a long road, that will be longer and harder if you push too hard early on. I know how much it sucks, I know it feels like you've lost your life but you'll get it back. Even if it takes months or years, you're a young guy and have an other 60+ years of running ahead of you once all this is over and just a bad memory.

[@hutch73]

@@bennyb.1742are you back on your bike? Cycling was my life before this. Mountain biking hard 3-4 days a week. I did a 60 mile gravel race 2 months prior to getting sick. Going 14 months

[@Paragon62]

I would try hypobaric

[@thor8334]

Hi guys i feel horrified right now, fuck, i’m taking care of my self always have been doing all kinds of sports, i was just squatting 140 kg for 3 reps and weighted pull ups with 27 kg for 6 reps, running at least 5-10 kilometers 2 times a week … now i struggle to do those activities, i feel alone and upset… when i go do activities with my girlfriend i get tired super quickly, i don’t have the same drive as i used to when it comes to sex… Just an hour before this i wanted to cry my eyes out just from the incomprehension and stress this puts on me… Fuck i want to get my full life back ! I hope you guys can feel better very soon

[@lukepearson8851]

@@bennyb.1742 How's recovery for you?

[@sebek12345]

🎯 Key Takeaways for quick navigation: 00:01 *🩺 Long COVID Diagnosis and Testing* - Long COVID diagnosis relies on symptom patterns rather than specific tests. - Testing aims to rule out other potential causes of symptoms, such as diabetes or thyroid problems. - Diagnosis and testing methods are individualized based on medical history and risk factors. 03:23 *📈 Long COVID Recovery Trends* - Most patients with long COVID show improvement over time, with about 60% fully recovering. - Recovery typically occurs within the first one to two years post-infection. - Symptoms like fatigue, brain fog, and post-exertional malaise may persist but tend to improve gradually. 04:50 *💊 Fundamental Steps in Long COVID Treatment* - Treatment involves managing energy levels and avoiding post-exertional malaise. - Intentional rehabilitation focuses on physical, cognitive, and emotional strengths and deficits. - Symptomatic management includes using evidence-based treatments and medications to alleviate specific symptoms. 11:01 *🏋️‍♂️ Intentional Rehabilitation for Long COVID* - Rehabilitation encompasses physical therapy, cognitive therapy, and mental health counseling. - Balancing exercise to avoid exacerbating symptoms while promoting physical health is crucial. - Cognitive therapy helps in managing attention, memory, and breaking tasks into manageable parts. 12:29 *🩹 Symptomatic Management with Medications* - Evidence-based medications target common long COVID symptoms like fatigue, insomnia, and nerve pain. - Medications may not cure long COVID but can improve daily functioning for some individuals. - Treatment plans are tailored to individual needs and may involve trial and error to find effective medications. 13:54 *🎯 Exploring Targeted Therapies for Long COVID* - Experimental targeted therapies aim to address viral fragments, chronic inflammation, and blood flow issues. - Participation in clinical trials is encouraged to assess the efficacy of these treatments. - Patients should have thorough discussions with healthcare providers regarding risks, benefits, and costs of experimental therapies. Made with HARPA AI

[@jowiens32]

I appreciate you!

[@keegsmum]

Thank you so much for this organized, comprehensive and balanced overview of the subject. I am a 68 year old female triathlete dealing with long COVID symptoms, not from having contracted COVID, but rather from the 5 mRNA vaccines I got. Vaccine #5 (bivalent) pushed me over the edge. Still not recovered- I am 12 months out since my last and final vaccine), but I am now on a good recovery track using a variety of OTC supplements including botanicals (I tried each individually and assessed their usefulness one at a time- discarding some and replacing with others) because I was getting no guidance at all from my family doctor. Because there was no definitive test result (lab work, neurology, cardiology as you mentioned), no treatment approach or medication was offered to me, even when I requested same. I was left on my own to figure it out- with only the suggestion that I might have Chronic Fatigue Syndrome or some vague allergy. I asked about participating in a clinical trial re vaccine injury and got no where. I started making real progress in my recovery once I started to suspect the vaccine might have triggered a condition like histamine intolerance- MCAS even though my labs were negative for MCAS. Bioflavonoids, DAO and Augmented NAC have been the most useful supplements for me in relieving the neuropathy, cardiovascular issues and brain fog. I am slowly working back to regular cardio and strength work in short sessions, and I have to monitor how it goes, to avoid fatigue and relapse. My heat tolerance is still a challenge when I work out - it triggers bad brain fog for some reason, so last summer was pretty tough. A long road indeed...

[@jawaligt]

LC may very well be spike protein related in many cases. Spike protein has been demonstrated to end up all over the body, in some cases due to vaccination alone. And let's not rule out autoimmunity issues due to the MRNA method of delivery. Unfortunately, vax injured are even more likely to be gaslighted than PASC sufferers. But they often seem to benefit from the same things PASC sufferers do.

[@brendabrenner2891]

Am same leaky boat as u.. am vac injured , celiac, gut dsybiosis, long Lyme, mold inj7red, see 10 Drs none kno what I'm talking about.. going to start nati, berberine, choline, etc, but 1 at a time.. u encouraged me, ti. Neuro going to give me MRI.. no clinic here in RI.. 🙏❤

[@Richexperience1]

Dude that is really rough. I’m LC & vax injured. And this bozo on the vid is still recommending multiple vaccines. Job security I guess.

[@segunabati3256]

I feel i understand you. My wife has been on this painful journey and I would like to talk more with you

[@Elysian777]

I am part of a long covid group and the worst long covid cases were from infections that happened prior to the creation of a vaccine. We call them 'first haulers'. How do you know you didn't get asymptomatic covid?

[@sakinahabdulbari6884]

Thank you for the timely information and suggestions about covid-19 and where treatments are at this moment. I had covid-19 in March 2020, and January 2022. I have long-covid since the 2020 infection, I am not doing good. I need more medical help. I was already disabled before covid-19. I am 66, female, and I want and need help. My brain and energy is getting worse. I have doctors, however, they are saying that "people my age get these illnesses" but I did not have them before Covid-19, my prior MRI proves it. I keep my doctors appts. plus I have all my vaccines up to date. I have the muscle wasting you spoke about, I cry almost every day because I have life in my heart, but my brain and body says no more after 2-3 hrs. Please help me.

[@TheJoyQueenForever]

I would recommend showing both his videos to your primary doctor 😢...most have absolutely no clue...which angers me because the AMA is deafening silent ...❤❤❤

[@anitarespondek2356]

God bless you.. I have friends with these same problems 😢 and it is devastating 🙏🏼

[@kw7807]

Please let us know how you are doing? 😢

[@sakinahabdulbari6884]

@@kw7807 Hi, thank you for asking. How are you? I saw a ortho. doc for my left side SI JOINT 3 wks ago, he gave me a reducing dose pkg of medication because of inflammation, which did help while I was on it, ordered MRI/CAT scan, 1st appt available 9 FEB. I had the freakiest fall 28. NOV. '23, right knee did not make contact to surface, but twisted, and hurting really bad, 8 days later xrays showed no injury, just "age" arthritis, it kept hurting, I am limping, had MRI on 18th, waiting on results from doctor. I was told to bedrest my knee as much as possible, lol, I was already doing that, ice-packs helps. Thank you again, I hope you feel better soon.

[@sakinahabdulbari6884]

@@anitarespondek2356 I hope your friends are receiving help from doctors. Those of us with long-covid told doctors in summer 2020 that something was wrong, they are releasing much more research now, still no help. Congress (U.S.) had their first COVID long-haul less than 2 weeks ago, did you are your friends get to see/hear it? I did, but I still do not understand what they are going to do. Thank you for your concern.

[@jgonsalk]

Great video. Very thorough and provides clear priorities. Really appreciate it! I hit the wall too many times and need to slow it down. I have recovered about 60 to 70% but the recovery has slowed which is extremely frustrating. I want my life back but need to give my body time.

[@brendabrenner2891]

Any suppliment help.. going to start protocol, I at a time.. sure is a tough journey🙏❤️

[@felipebaena735]

what did you do for recovering?

[@jgonsalk]

@@felipebaena735 Rest is crucial, I try to make sure I don't push myself too hard. I also take a few supplements and medications. Antihistamines and tricyclic antidepressants have helped a lot. I also take vitamin C, D and B (complex), zinc, curcumin and probiotics.

[@MelissaJ-i4f]

What a difference this video has made in my life!! From the bottom of my heart, thank you, Dr. Brode. Vaccinations and vigilance kept Covid at bay until Feb. 2024. 12 days out developed new onset hypertension. Medication is controlling it well. Fatigue and brain fog are biggest roadblocks. Your presentation is the best medical consult I have had!! I feel you have given me a logical and hopeful treatment plan. Priceless👍I will share this video!!

[@skooflefloofandfriends4557]

Whats sad is if you work for yourself there is no disability qualifications. You just cant work as much and then you struggle

[@latestlindsey5620]

I work for myself too I feel you . 😢

[@AC_2.4-10]

What a helpful and thorough video - thank you so much! So validating and gives me a tiny bit more hope... Been dealing with ME/CFS for years, and now long COVID. My life has become so limited and if it were not for my faith and trust in God, I don't believe I would have made it this far. Every day is a challenge, and I often pray to just "make it through" another one. 😢

[@deniseingram6210]

Normal EKG, but horrible chest pain and pounding palpitations Normal chest XRay and CT of lung showed clots. Chest pain, Takatosubu showe later You feel no one believes you. Next stop the psych ward

[@marilyncook658]

I feel your pain! I have intermittent tachycardia that debilitates me. I get dizzy,breathless, feel like I am going to pass out. I spent 3 days in hospital where they did all the heart tests. Everything was fine. But I am not .

[@bestjobdaddy6736]

Same here my friend, been to the cardi, have a loop recorder implant now. I'm middle aged, night sweats, joint pain, heart issues, fatigue, nerve issues...doctors can't find anything.

[@almabollinger]

​@@bestjobdaddy6736 same

[@amandabricot]

This is a nightmare. I feel like my life was stolen from me before my eyes. Not sure if the second and last dose of the vaccine did this to me- or the harsh Delta variant I caught just 2 months after, in December 2021. It took about 10 months to start feeling slightly better…until I caught another virus in October 2023. Although the test was negative, it felt like covid and the GP consulted at the time said it was probably the current variant that went undetected. The first time- while sick- I had all the symptoms and ended up at the emergency for 24h. Never in my life did I suffer as much. Breathing was hurting me, my rib cage was hurting at every breath. Loss is taste, smell, 41 degrees fever, couldn’t feel my legs anymore and could barely walk (this happened as well right after the second dose, from which I took about 3 weeks to recover). I now have IBS, loss of short term memory/ brain fogginess, my speech is affected. Sometimes I sleep well, others I have insomnia and wake up at 2:00am before falling asleep again at 5:00am or 6:00am until I have to wake up for work. It’s so hard because it doesn’t show (I look super healthy, make up helps too + I always had healthy habits). I also try to conceal it so people don’t notice. It’s like no one really talks about it and no one really understands so I keep it to myself. The worse is the extreme fatigue and pain in each and every muscle of my body. The feeling that I’m burning from the inside, all à along my spine and in each muscle and joint. Even my hands, I have no grip anymore, my fingers and wrist are so weak. I feel like crying every day, as I live in a painful body where I can’t enjoy myself. What if I never recover?!?! My husband and I want a family, I’m way too young to live like this for the rest of my life. How am I going to go through a pregnancy in that state or even correctly take care of our baby?!?! We caught covid at the same time but thank God my husband was able to almost fully recover from it after a few weeks- thank God- but I’m still very affected. Lord help all of us suffering, this is unbearable 😢

[@Megan-vi5uu]

I caught the same variant in December 2021 and went positive again just a week before. I totally understand what you are talking about ... it feels like I have tried my best to recover, deal with all the losses while keeping it to myself because I need to continue school and work at the same time. It's like things finally got slightly better and it hit me hard again and everything just turned down immediately. I have no clue how I could start a family and go through a pregnancy while I am exhausted just to work 4 hours a day. I hope you get better soon and let's hang in there.

[@ericcardenas9812]

OK. So exercise, but don't exercise to avoid the wall. LOL :) My docs don't really know what's going on with long covid. Seeing a specialized doc in a long covid clinic. she says skip exercise and concentrate on diet. But I do feel I'm losing muscle mass. I don't think rehab therapists will now how to advise on exercise to avoid hitting the wall. They'd just see out of shape me and think its all in my head.

[@anniemoureaux4839]

You might consider trying qigong..gentle, focused and healing. There are some good teachers available on line.

[@dryfastingclub]

I feel like without dry fasting I wouldn't heal long covid so thoroughly

[@JoBroughton-yw7un]

After 3yrs I had worked this out, now in 2024 and have a better understanding of my demise and do what you suggest it does work.

[@jiayihuang6137]

So glad to watch this. Thank you doctor. The presentation and advice are so clear and helpful. Having these weird symptoms in my third year university study. I hope I can recover one day and become normal.

[@marcobagut]

Unbelievable, you described me. I am now left with Chronic Fatigue, post exertions malaise and lightheadedness. The last one has improved lots. I have to say, the brain fog was gone after three months, but the lightheadedness/dizziness still there, although lately is much better!

[@Rose_19911]

hello, what help have you had?

[@JohnPatterson-bt2ru]

I had COVID for 3.5 years, then brain fog then lost my short term memory. I was left to watch KZbin all day tilli found magasimum now a new life

[@prince_of_summer]

What did you find?

[@mric4069]

Magnesium I think. Id recommend taurate.

[@michaeljhonfantilanan3207]

3 years but still palpitations, anxiety and hard to get sleep lord jesus help us

[@beltalowda7897]

The insomnia is horrible. I think it’s the worst part. I was getting off of meds for insomnia, now I have to increase it because I’m literally not sleeping without it

[@waltwenzel9549]

Excellent video. Great info and on the level. My long Covid experience is going on 3 years, but I am seeing slow, gradual, definite improvement, and this video, in plain language, gives me hope that one day I may be myself again. Thank you.

[@barbietheemuslimah]

Yessss I’m still dealing with this from Covid in December 23 😢😢😢😢

[@tyitinanot6130]

post exertional malaise is the term I have been looking for. Caught original covid Oct. 2019 at a high school football game. I sat between a guy who could not stop coughing and my ex-wife. Chivalry is not entirely dead. 4 days of sweating gallons and exhaustion sleep 4 to 6 hours at a time. Incredible brain scramble repetitive thoughts dizziness culminating in a day of diarrhea/vomiting. Took a month til I was back to carrying a decent armload of firewood without needing to drop it and gasp for air. Doctors told me A. respiratory infection or flu (this was 3 to 4 months before it hit the news) B. long covid they don't want to touch I presume due to insurance issues. Answer was well you're overweight and 57 years old. Just now getting over omicron JN1 4 years and 4 months since I had the original. My diminished energy probably 50% from the first go round has increased to more like 75% hoping it may improve. Brain fog way worse this time like I'm constantly stoned but only 2 weeks of fatigue and issues taking a full breath of air. I used to run 10K regularly and was very active outdoors kind of guy now winded walking 4 miles down my road needing a 2 hour nap after my (mostly) daily trip. Age and physical condition I think determined my outcome and I am grateful to still be above ground. 5 friends and neighbors 4 of which were younger than myself are no longer alive because of it. I'm certain it shaved off a few years damn it I had planned to live to 100. What are you gonna do.

[@torchpitchforkpac1593]

I'll be 62 this June and have had Long-Covid since Delta and Omicron. Covid was the worst illness I have ever had. And the first time I contemplated the inevitability of my own mortality. Scary, though I never had it too severe. The brain-fog was the worst, followed by fatigue, headaches, and general soreness. Methylene Blue (MB) - about a year ago I was having more bad days than good. Then I started taking Methylene Blue - 40mg/day. A test dose of 10mg/day for a week to identify side effects. The most notable is that your pee turns blue. And of course I add B-vitamins so now its neon-green. :) Too much fun. Anyway, I describe this treatment as a 'sports brace' for your mitochondria. It allows you to push a little against the PEM wall without crashing. Also, it helps with the brain-fog. I saw noticeable improvement during the 10mg test week. Titrating the dose took a few weeks, and finding a suitable delivery method took even longer. The MB powder I get (Amazon) comes in 1 gram vials. You can just mix it with water and add it to juice or whatever. Straight it tastes a bit metallic. I cut it with cornstarch for easier handling, and fill 24 capsules which yields 41 2/3 mg/capsule. Roughly 40mg due to losses. Much more than that and I start to get jittery. Also, MB and B-vitamins can exacerbate insomnia so I take them early in the day. Six vials of MB costs me $45, so about 35 cents/day. If you are taking regular medications it is a good idea to research interactions with MB. Not many, and the 10mg test shouldn't cause severe reactions, but any meds that don't play nice can have nasty side effects. Live long and prosper...

[@wesanderson7918]

Thank you for discussing.

[@TheParadigmShiftTV]

All research into long Covid needs to take vaccination status into consideration. What percentage of long Covid sufferers are vaccinated and how many doses. My dad has been suffering with this ever since his 3rd shot.The vaccine causes your body to produce spike proteins without an off button.

[@joelsnake8]

Thanks for the video. I hope we all can recover soon

[@sfn-life]

I have had some kind of post viral illness for many years (have a dx of CFS/ME). The problem is...the energy envelope changes dramatically all the time -- even many times within one single day....so it is very difficult to meet a moving target....and....if you stay in bed (and I have been bedbound before...)....then you get deconditioned and make things worse....what research is currently happening that is leading to any answers? I've read about the spike protein being found in stool samples along with other potential latent reactivated virii like EBV... I also have read about the hypercoagulation that occurs in long covid.....and recently learned about lower levels of circulating serotonin (not in the brain but peripherally)....also there was the small study done whereby 4g of creatine were given administered daily for 6 months, and study participants reduced fatigue in a statistically meaningful manner....what do you think is going on there? What are some ways to increase serotonin or tryptophan uptake?

[@brendabrenner2891]

Serotonin made in the gut. Mine is a mess. Celiac + long cov, long Lyme, vac injured, Mt Sinai has massive grant w huge studies, but only 4 New Yorkers.. Dr David purtrimo.. think he sells supplements. Going to start protocol w nattokinase, serratepsee, choline, berberine, but I at a time.. healing prayers 🙏❤

[@lawrenceober849]

Best overview on line. Thank you

[@beoz658]

Last time I got covid Thanksgiving 2022. I was sleeping 10 to 15 hours a day for a week. Never been the same, I am 65 and have always worked out and have always been hyper. Now my lungs have scarring and 11 nodules and for 2.5 years extreme fatigue, not digging it . Tomorrow I go to pulmonologist for either PET scan or lung biopsy.

[@jewelleryaddict]

Very lucky can get disability help for l-covid. I have had severe cfs 30 yrs. We battled for first 20 plus years to try and prove we are disabled many gave up because your already tired and this process with usually a lawyer is expensive and takes forever, if you can ever get help Was many many years before we were heard and got help. Hope these people get help soon. This disease unfortunately lasts forever. The mental struggle is just as hard as the physical struggle. Put your armor on your up for big battle. Good luck. They never helped us.

[@Richexperience1]

I cannot imagine how horrible that was. So glad you all paved the way. If you didn’t things would be worse.

[@denisetitchgregory5867]

Thank you for sharing this video, I no longer feel like I am stuck in a never ending nightmare! I have Lupus, Antiphospholipid syndrome and a cardiac pacemaker due to Mobitz type II heart block. Since contracting Covid I have barely been able to get out of bed :( Slightest exercise renders me straight to bed for up to 24 hours. I live in the UK and seriously considering asking for a referral to a long covid clinic.

[@sofiaguadalupe2008]

Thank you so much. Me ayudó mucho escuchar estas explicaciones.❤

[@jagererk65]

It was 6 months since this video came out, is there any prooved or very compeling treatment? I done 1000000 tests, spend over 5k to look for any wrong in my body but i found nothing wrong, but still i have worst time of my life in terms of how i feel sick

[@MealsBeast]

2 and half years since I had Pfizer I have all these symptoms, previously very fit, got worse after catching covid

[@neachtarrsainn3216]

Very informative video, but you really dropped the ball on one of the main symptoms of long Covid and that is the effects that it has on your gut health. In addition to the fatigue, my gut microbiome has been completely destroyed. I have been to several gastroenterologist in my area whose main goal is to only treat your symptoms and not get to the root cause of the gut issues that are associated with long Covid. Also, another big symptom with long Covid that is overlooked or not associated properly is tinnitus. If you have someone that has been diagnosed with long Covid, the chances are pretty good that they are also experiencing ringing in their ears. Especially during a flareup of gut symptoms.

[@elizabethsamuel2219]

I am hearing the truth!

[@jazziered142]

I am exhausted and the brain fog is still there. Three years later.

[@jenimcleod1553]

What happens if you are stuck on step 1 and it's been 4+yrs. I can work my full time job from home... but that is literally it. I sleep *almost* exclusively the rest of the time.

[@BasicBeachCommunity1]

i've been trying to help my wife. She refuses. It's very challenging.

[@davidburian5095]

Again no word about ME/CFS... WTF is wrong with medicine

[@Richexperience1]

Lazy siloed thinking and big checks from Pharma.

[@brendabrenner2891]

I joined this group, long cov much like fibro, me/cfs (pcp denied I have it) just found great new research going on for me/cfs,, as it parallels long COVID 🙏💖

[@maryr7593]

Look up mast cell activation syndrome (mcas). Same symptoms...

[@debra9040]

Thank you!

[@brunomachado9123]

THANK YOU SO MUCH!

[@gggg5-pg4dm]

The many who took the injection have sadly passed away. So many friends, friends of wife, friends of friends. Two neighbours recently.

[@TheDonwiggins]

I'm not sure what helped me fix mine. I did so many things. I had all of the symptoms for about 7-8 months. I think changing to a whole food, mostly vegetarian diet helped the most. I used mullein tea, and many other herbal teas. I made my own sauerkraut and ate a lot of that. I took elderberry and echineacia, shilajit, raw garlic, fire cider, sea moss and any natural antiviral I could find. I basically put as much really good stuff in me as was reasonable. It seemed to help.

[@RobManser77]

I'm interested by what you say around 4 minutes into the video. Before Covid I ran 100km a week (that's an average of 10 miles a day!) and was finishing in the top 10-20 in half marathons. I also windsurfed, walked a lot, cycled and surfed. I had absolutely no pre-existing medical conditions, was a healthy weight, full of energy, and barely ever got sick from coughs and colds. I am now living like an average 80 year old, and it's been just over 2 years since I got Covid. I can't even jog 5km slowly. I am absolutely nowhere near back to normal - in your percentages that you quote I would guess I'm around 5-10% of my previous health, but I hesitate to use that scale because I can't run 10% of my old weekly distance - I can't run at all.

[@captainted696]

Rob. I am 80 yrs old also. Before Covid I could average 21 mph on my madone - trek and hold that for 30 miles. I got Covid on a cruise. It wiped me out. Couldn’t breathe. In hospital over night. They wanted to keep me for extra treatment. When my fever broke and appetite returned I wanted out of there. CT showed lots of fluid on the lungs. Initially had trouble sleeping because of breathing problems . They went away. It’s 6 months since and now it’s fatigue and brain fog.my symptoms aren’t as bad as so many people on u-tube.i was a runner all my life. Did Boston- other races would win my age group.Ran Philly broad street run - won my age group. 58:15 when I was 47 years old. Trying organic protein powder. Benadryl. CoQ10., melatonin. People have gotten good results. At this point I have nothing to lose

[@captainted696]

I thought u were 80 years😂. Rob. Sounds like have long covid for sure. I would try probiotics, look into antihistamines. Maybe ivermectin. Good luck

[@dryfastingclub]

Don't run anymore duh... You def need some dry fasting in your life

[@sofiaguadalupe2008]

Tuve covid dos veces, la última en enero de 2022, todavía no se me pasa la fatiga física y mental. Me produce ansiedad y tristeza. No pude seguir trabajando. Hago ejercicio a pesar del la fatiga casi insoportable que muchas veces le sigue, dependiendo de la intensidad del mismo y también del estres social que tengo. Si no es long covid, no sé que tengo, los médicos que ví no saben porque estoy tan cansada. Gracias.

[@Logi_Queenie]

Never had Covid but had all rNA vaccines which triggered the worst symptoms of POTS I had diagnosed prior to pandemic. Lost 30 lbs in a year and I’m 40 and athlete my whole life. Thanks for talking about this

[@bnaiyer]

I am a doctor and I had Covid and was on Paxlovid for 5 days. 10 days later, I was having lightheaded feeling, once fell down and hit my head. My walk was unsteady. One of this talks explained that low Serotonin my be a problem. I has having cold and stuffy nose and I was taking Claritin and also Tylenol PM. So, I stopped both of them. My cold is gone and muscle weakness and unsteady gait is all gone and feel good now.

[@mariannejrgensen4196]

3 years now.. It's so hard.. here in Denmark there is no help at all sadly..

[@marcelguldemond2523]

Nice clear summary thanks. Can you speak to how much frequent reinfections make the LC worse? I either get reinfected about once a month, or I’m just no longer able to clear it. Have you seen much immune dysregulation in your patients?

[@strideroflilacts]

Hi, if you're looking for summaries about immune changes after infections the app Turnto (a platform dedicated to long covid/ME) has a database that uses ai to compile research and then breaks it down in manageable ways making it easier to read. It's an excellent resource for staying up to date articles. It's worth checking out!

[@rramirez3555]

Sorry doc, but this video isn't portraying the reality we patients have. You tell people to do exercise, and yet that's what most of us can't do. You're ignoring what you said in the previous video that the body isn't producing energy, so how come you recommend exercise??? What Your described in your previous video is exactly that I lived. I had en effort test and my heart just went crazy and I needed about 30 minutes to recover in the bed of the doctor's office so that I could be taken in a wheel chair to my my car and be driven back home. The cognitive therapy??? How does that help a physiological issue?? If it was a psychological issue, maybe, but how will usar heal my muscles, etc?? Then you speak about de-conditioining- many of us where very active before this illness hit us. Running and cycling one day, and on a wheelchair or bed bound the next. The issue is that something happened to the body that prevents us from doing things, but that we suddenly we decided to not do anything and hence got de-conditioned. So, if scientist find a way to give us our energy back, I can assure you many of us will be more than happy to exercise our way back to our normal selves. The issue is that such lack of energy prevents us from exercise. And also, there are so many people who hit infected since early 2020, like me, and still are doing very poorly. You also didn't take into account multiple infections causing huge relapses. I'm not sure I explained my self clearly; however, I hope you do read this and that it's helpful to your medical approach in helping long haulers. Thanks a lot for your interest in helping doc.

[@luciantendogaming]

You did explain really well what a LOTTTTT of us going through... The extreme weakness is insane and no amount of exercise can help when we can't exercise the heart wants to come out our mouths. It's unbelievable that we living like this back in early 2023 was when I got covid I was 36 now mid 2024 I'm about to be 38 my life has only gone down and down and down since I got Covid the heart the energy the fog the palpitations the pain in my back like if everything there was super inflated I feel like some organs push with each other and make pressure my legs and arms swollen due to what I assume bad circulation due to the stupid covid vaccines.... My life was great 2 years ago super healthy yeah one thing here one thing there but nothing like this never as bad as this kind of life after Covid.... I hope that before our end we find something that helps us recover But don't get me wrong I have someone that has helped me through all of this and thats my Savior Jesus Christ our Holy Father that takes care of us even when the doctors say there's nothing else to be done... Put your faith in Him tell Him everything and ask for forgiveness my Father listens and the peace that you will receive beats the worries and awful life we living in this conditions May God bless you all 🙏🏻

[@SumanAcharya-w3d]

doctor i am from Nepal.i am suffering covid 19 last 4 years .i takes different medicine . previous 2 years i takes oxen in ventilator . Remdiciver, meropenm, nindanim dfferent medicine i use but til now not recover. Sorth brething chest pain , etc held plz help me my god.

[@dominicsofia7357]

Anyone have twitching?

[@garyneilson3075]

At least 3 years or so for me and it's exactly like this, the fatigue pattern and hitting that wall and crashing

[@garyneilson3075]

And yeah the brain fog

[@FreddieAP]

@uthealthaustin4585 Which medications are prescribed for fatigue/PEM ?

[@brad-fg9ss]

I had the long term Covid last year 2023.How long before I get over the fatigue.?I’ve had to take days off from work for it.Fatigue is the only symptom

[@rdbchase]

No mention of mast cell activation or even of antihistamines?!? My long COVID was originally misdiagnosed as a sinus infection. I developed symptoms of asthma, but after several months, and a methacholine challenge test, asthma was ruled out. I was finally diagnosed with acute rhinosinusitis with nasal polyps and months later started on dupilumab; I flush my nose twice daily with mometasone in saline. I do experience some fatigue and minor postural vertigo, but in terms of debility, they pale in comparison to my sinusitis and diarrhea. While my polyps have receded, rhinosinusitis and diarrhea are my chief complaints and they don't seem to be getting better a year and a half in. When I complained enough about the former symptoms, I was advised to take quadruple doses of over-the-counter antihistamines. Taking a triple dose of loratadine and/or fexofenadine and famotidine too does seem to help, but I'm looking for better therapy.

[@isaiahwilson2284]

I think I have long covid. Doing a bunch of testing. Feels like someone beat my head in with a hammer, disoriented, cognitive decline, poor memory, slow processing to the point where I feel like I can't drive in heavy traffic, nexk stiffness, random Chills, diminished taste n smell, metallic taste in mouth sometimes, low salvia production, and numbness throughout my body like I have nerve damage. This all happened after I got a root canal retouch on deployment 3 months ago. Going through testing and mostly everything is coming bavk clean.

[@eYeSoN3691]

I am in your boat symptom wise still no diagnosis!

[@isaiahwilson2284]

@@eYeSoN3691 dude I feel like I am dying man. Feels like parts of my brain chemistry has changed. I just want to go back to normal man.

[@eYeSoN3691]

@@isaiahwilson2284 I know man I honestly don’t even know what to do at this point just keep hearing different shit I thought I had CCI for a bit but just nothing!! But my the left side of my neck was hurting bad and like tense, I have a lot of pressure in my head and constant migraines that come in random spots, I had for awhile like a burning sensation on my hands and feet my body would get extremely cold or hot just randomly, I had like digestion issues or something, I had heart palpitations, I still have like brain zingers or like brain zaps, a lot of brain fog and no energy and yeah that metallic taste is real!!!

[@isaiahwilson2284]

@@eYeSoN3691 I am right with you man. I am seeing a neurologist. Thank god I am still on military orders and getting paid to be looked at. However, I think I am going to go to a nice hospital and see what civilian doctors say vs all the military docs/specialist I have been seeing.

[@eYeSoN3691]

@@isaiahwilson2284 yeah that’s nice!! But I haven’t had any success on my end I’ve seen 2 neurologist and nothing I’ve also seen multiple just regular MD’s it’s honestly crazy stuff because it’s a multi symptom issue. I plan on going to see a rheumatologist! But right now I’m going to try this FLCCC long covid recovery treatment it’s had massive success and at this point I’m desperate I will keep you posted for sure I’m starting tomorrow to see how it goes!

[@jackjones3657]

What few of these people seem to discuss is successive bouts with the virus. The variants are often easy to catch. The initial illness can be minor, but then come the more severe, chronic and lingering "long covid" effects that can be so debilitating!

[@Me-yp7uo]

I wish healing was a year and a half. My daughter and I are going on 4 years and we most definitely have been getting progressively worse through the years

[@mattwoolley]

2 years 5 months here. Haven’t listened to stuff like this in awhile because nothing really new is coming out. Interesting to see these doctors catching up to what we experience. Dead on that after about 18 months there has been little to no improvement and that the big 3 are still going strong. Cognitive issues, fatigue and PEM. 4:45

[@melissasmomglam]

Any doctors in Houston TX?? I’ve called about 200 and can’t find any. Any suggestions?

[@robbtaylor8833]

3 covid infections ... 3 years long haul ... Started low dose Naltrexone 2 weeks ago still titrating up to 4mg over next 8 weeks. Crossing my fingers

[@almabollinger]

4 for me and it's bad also my daughter 😢

[@titanEM11]

Recently got covid. 21 days from initial symptoms still short of breath and fatigue. 😢

[@Fiawordweaver]

4th Moderna shot and chronic fatigue 3 years later. I have Hashimotos and wish I had stopped after two vaccines. My life is drastically compromised.

[@mikeleschber1316]

4 years of brain fog, exhaustion, shortness of breath and memory loss. My doctor says there is nothing wrong even after a heart attack and continued effects.

[@isaiahwilson2284]

The only weird thing is that every time they tested me once these symptoms started for covid it came back negative. Also had covid confirmed in 2021. Don't know If i really have had it since then.

[@Kathysart]

Thank you. 🍃🌸🍃

[@drhayesmt1]

This is very interesting, but for those of us that I’ve had it since the beginning of the pandemic, the horses have already left the barn and so telling us what we should have done is not extremely helpful. I think you need to consider having advice for people that have been dealing with this for four years.

[@carlosgarcia3836]

What supplements have my fellow long haulers worked for them? Salmon oil has helped me, ivermectin, Probiotics, Nattokinase, Hydrogen gas inhalation, humic/fulvic acid cellcore detox. Sitting in natural springs has helped me the most, maybe because it grounds the body and stops inflammation.

[@jackieporter5705]

Dr Patterson has a definitive test!

[@FreddieAP]

I am stuck at 30 % after 19 months. Tops 2 short trips of 1.5 hours per week. PEM is what harms me most and has changed who I am.

[@FreddieAP]

@uthealthaustin4585 My PEM warning is a sense of feeling invincible, ecstatic, a sort of high I remember from certain medications, feeling my LC is over and I am better. If I act on that feeling of "strength" and do more, exercise longer, stay talking at an event (outside ofc) then I am ill for the next few days or week. It feels like a trick my body is playing.

[@dryfastingclub]

Pls look into dry fasting it can be the spark that sends you back into a healing trajectory

[@thatoneperson77742]

Find an integrative health or regenerative medicine physician if you actually want to get better. Requires supplements and IV drips to gain ground quickly and recover. You want to actually HEAL, not simply manage symptoms and add on prescriptions unless absolutely necessary.

[@MarkLetman]

I have fibromyalgia and its triggered that and i fatigue and breathlessness

[@almabollinger]

They lie about fibromyalgia my doctor told me it a name when they can't figure what you have mostly Lyme disease and those test don't work

[@brendabrenner2891]

Tu for this succinct, informative,spot on capsulation of the complex hirror of long cov, i follow dr sayid Haider(tx) + other outstanding drs such as yourself..see 10 drs here + none know what im talking about..was pre med..going to start prticol, SLOWLY, ..ur sage advice is a kight in the dark tunnel🙏💖

[@romygime5822]

What is the treatment?

[@sharlene4mylife]

I’m at 20 months and am worse! So I guess I just end it

[@Lupusandme]

I'm exactly the same nothing is helping me iv given up now

[@ark194]

Ha! My dr has never done anything for me. I had no idea there was fatigue medication.

[@safeeffective385]

For those posting here about your struggles with long covid we are going to assume that you were fully vax'd and boosted, unless you indicate otherwise!

[@floriscorner6482]

I'm not vaccinated and have had problems for more than a year, here you go.

[@safeeffective385]

@@floriscorner6482 That's great! At least you're honest about your status there, unlike the vast majority of posters here.

[@marcobagut]

Now I am trying HBOT.

[@I124q.....28]

March 2020 still suffering fatigue and nerve pain

[@Fowlweather24]

What about long vax? The people I know who didn't get the vax and got covid have done well where the ones who got multiple covid vax got covid have issues.

[@treysavage9262]

I know lots of people who got the vax and are completely fine from Covid, and I know some who didn’t get vaxxed who are more fucked up than me. Everybodies genetic makeup is different you just don’t know your body is gonna react to the vaccine or virus. But the virus causes way more problems.

[@gittebukhpedersen72]

THX.. would be great if you could reach some MDs in Denmark

[@maryr7593]

Find the academic research paper and bring the printed copy to the appt. You could try sending them the video ...but my experience has been that they dont watch it before the appt. The dr will not have time to read article at appt....but having it on paper allows it to remind them that they need to get up to speed.

[@jdrex5039]

I fully recovered until I got reinfected 😢

[@maryr7593]

Look for info on mast cell activation syndrome (mcas)

[@thekmfdmmachine3919]

Watch new Tucker interview. He has a explication and a treatment thats been helping his 1500 patients.

[@eYeSoN3691]

What interview??

[@thekmfdmmachine3919]

@@eYeSoN3691 YT pulled it down very quickly because he was blaming the V,a X for everyones issues. His name is Dr Pierre Kory. He has a website.

[@davidlaney6153]

No MRNA vaccines....

[@xanderchanning]

I never got vaccinated and got long covid bad. I got covid before the vaccine was released in June 2020. And I was and am still skeptical of the vaccine because of some instances I've seen of people close to family. Still, the virus in itself has paid a huge toll on my body..

[@Paragon62]

They knew all this 4yrs this video is an absolute waste of time well done.

[@Youtubeuser1aa]

I’m only 6 weeks out but have debilitating brain fog. Like 30 IQ points down.

[@davidlaney6153]

Ok I think he is right about the malaise wall...

[@kylecocktails]

Nattokinase, Serrapeptase, Nac < help alot

[@drhayesmt1]

FYI, it is not the adults with disabilities act it is the Americans with disability act. It covers all ages..

[@thetranscendedman]

I think you should touch upon expanded access here. Promising clinical trials will go up in mid-2024 for things like existing monoclonal antibodies. There are groups trying to push the use of a central registry of novel treatments as well known as CURE ID that the FDA uses. There is research suggesting this is a promising treatment available today for specific long haulers through expanded access, but it is limited use due to the current circulating variants.

[@lindawatkin9667]

My doctors say rest.I do this and I still cannot bounce back