My Kidney Journey

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Bea Rose Santiago

Bea Rose Santiago

3 жыл бұрын

This is my story, lets start from the beginning. I want to share my story so people have a better understanding, sympathy and to educate about kidney diseases.
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Пікірлер: 273
@samajp
@samajp 6 ай бұрын
Hi! I am just turned 29 and I found out 4 weeks ago I have stage 5 kidney failure due to IgAN. I recognize a lot of feelings you have. Specially the feelings about feeling that I am indestructible, feeling like my body can handle anything. Now I see that life is so fragile. I currently have 12% of my kidney function but I am determined to life my normal life. I am still working 100% waiting for my kidney to fail and it is super scary. Right now the worst parts is the tiredness and even worse for me is that I am freezing, my body is shivering all day. I am so grateful that I have family that wanna help me and that my wife is really supportive. I am grateful to live in Sweden where I have free health care and the donation list is short (if no one of my family can donate). I am grateful that I am young and healthy and educated. Hearing your story is helpful! Thank you!
@jobnavarro4334
@jobnavarro4334 3 жыл бұрын
Nothing is impossible with God. Claiming and declaring healing in Jesus' name.
@adamrichardlatoja1051
@adamrichardlatoja1051 3 жыл бұрын
Ive been following you since your MI journey and I am happy that you are recovering little by little! SUBSCRIBED! Please stay safe queen! ❤️
@jasperdantes8593
@jasperdantes8593 3 жыл бұрын
Be strong Bea! You will be ok. Stay safe and God bless! 🙏🏻🙏🏻🙏🏻
@thestoryfactory3281
@thestoryfactory3281 3 жыл бұрын
Truly a champion, a queen by heart. Brave woman. Love you, Bea!
@Cjcael
@Cjcael 3 жыл бұрын
If there is really something that I admire about this queen, it is her strength. Above all the success, beauty, and fame, what she went through and how she faced it gave me a different view on how to deal with such issues that I was also going through myself with a couple of family members (cancer and aneurysm). She displayed vulnerability yet she was very courageous, her fighting spirit and positivity was inspiring and her hope was contagious. I love how she spread awareness on social media and displayed a will of never giving up despite the circumstances. I have been following her journey since day one and I am so happy to have finally given a chance to meet her in person just recently at an event. She is very humble and does surely lights up every room she walks in. Thank you Bea for sharing with us your journey, I wish you well! :)
@carennpenetrante4443
@carennpenetrante4443 3 жыл бұрын
Hello Miss Bea! Thank you for sharing us about your Kidney journey. It will surely raise awareness. 💜💕
@monthymayor4720
@monthymayor4720 3 жыл бұрын
Thanks for sharing Bea! Can’t wait for the next vlog! Keep fighting! 💐❤️❤️💐
@jonmatubis
@jonmatubis 3 жыл бұрын
Keep the faith! Stay strong. We are all praying for you! 🙏
@matzserolf6064
@matzserolf6064 3 жыл бұрын
Praying for you ms Bea. Stay strong!. God bless. ❤️
@iveealvarez6290
@iveealvarez6290 3 жыл бұрын
Im kidney dialysis patient for 5years. Still going strong. Fighting for all of us!
@kevinjohnthomas452
@kevinjohnthomas452 Жыл бұрын
💙💪
@MrBacolod1
@MrBacolod1 3 жыл бұрын
My wife had the same problem with IgA Nephropathy. I commend how brave you are. The dialysis alone is disconcerting. Hang in there and once you get your new kidney, things will change magically.
@superwomomjo
@superwomomjo 3 жыл бұрын
My queen has a brave heart .. iloveyou and always prayin' for you ❤😘
@reggiemeriales4923
@reggiemeriales4923 3 жыл бұрын
My thoughts and prayers, Bea! Stay safe! 😃❤
@lesliearano7679
@lesliearano7679 3 жыл бұрын
You’re such a strong woman ❤️ praying for you
@yannamendoza758
@yannamendoza758 3 жыл бұрын
Be strong and courageous God Loves you!
@killmepls110188
@killmepls110188 3 жыл бұрын
I will include you on my prayers Miss Bea 🙏🙏
@jhayraacibes470
@jhayraacibes470 3 жыл бұрын
Pray for your healing journey Ms Bea, Ask Jesus for Healing by Trusting Him all the way. Ingat po kaau
@andybarney5450
@andybarney5450 3 жыл бұрын
Keep fight Bea! Looking up to you... stay strong! You got this girl xx
@roberttualla3491
@roberttualla3491 3 жыл бұрын
God is good Ms. Bea.. Bukas mawawala din ang sakit mo po. Amen Im from Masbate City.
@teamflo00
@teamflo00 3 жыл бұрын
Hugs Ms Bea!!! Praying for your speedy recovery!
@rovicruise
@rovicruise 3 жыл бұрын
Keep the faith and stay healthy our very own Miss International, Bea Rose!
@aloha6441
@aloha6441 3 жыл бұрын
Praying for your speedy recovery, Queen!
@wilmamarquez1223
@wilmamarquez1223 3 жыл бұрын
Thanks for sharing this video, coz I got 30% with my kidney, and I'm alone leaving here in Toronto but I thank God for the medical benefits here. More videos pls, and stay safe and God bless.
@eduardochavacano
@eduardochavacano 3 жыл бұрын
love the color of the background...
@ArtbyMomshieRaqs
@ArtbyMomshieRaqs 3 жыл бұрын
i have a friend whose a dialysis patient for 10yrs. now. she is still fighting despite of struggles not just in financial and also to its emotional aspects. the good thing she is brave and still strong for her children. God bless u Ms. Bea and may God healing hands be upon you. and to all people suffering in any disease God will heal u.
@shotiismyname4006
@shotiismyname4006 3 жыл бұрын
Praying for your healing. Keep Fighting and keep Safe always
@anmrdsunsky
@anmrdsunsky 3 жыл бұрын
Cried so much. My mother died last March 8, 2019 due to kidney failure after 1 year dialysis. And you are right life is short and we should enjoy every moment. Miss her everyday. Thank you for sharing this so much love ♥️ Godbless and Take care always! Love you Queen✨ Stay strong
@jayzledelapena54
@jayzledelapena54 3 жыл бұрын
Take care always Bea. I can relate to your story I've been diagnosed with IGA nephropathy last year from then on I've been doing quarterly check up of my urine and blood test.
@nune12tine89
@nune12tine89 3 жыл бұрын
"God is good all the time"
@aubreydayon9776
@aubreydayon9776 3 жыл бұрын
U are Beautiful, smart and strong Miss Bea.. keep fighting!
@senyoraangelita5711
@senyoraangelita5711 3 жыл бұрын
keep fighting bea! my hubby is a dialysis patient too.
@emilo3676
@emilo3676 3 жыл бұрын
Get well soon Ms. Bea.. we'll pray for your recovery 🙏
@darieldoytabucol7759
@darieldoytabucol7759 3 жыл бұрын
So inspiring!!!
@wahyutjan
@wahyutjan 3 жыл бұрын
Thanks for sharing your experience lady. I just wish you could be back stronger in the future. Jesus bless you.
@libertyrosit6667
@libertyrosit6667 3 жыл бұрын
Prayers for you Ms.Bea🙏❤️ God is good, God bless 🙏💕
@rowenatirol738
@rowenatirol738 3 жыл бұрын
You are a kind person. I know God will heal you.
@chalitasaupan7584
@chalitasaupan7584 2 жыл бұрын
Your such an inspirational miss bea! happy birthday and I pray that you will get better soon 💕
@ironmags001
@ironmags001 3 жыл бұрын
Your health will be restored, i can tell. =) Whatever happens, good nor bad things, will contribute giving sense to whom you'll be molded as a person and to shape you in being the best version of yourself. Looking forward seeing you getting your kidney transplant and inspire more people. Update us. I was on dialysis for 5 yrs and 8 months. I got a transplant 1st quarter this year.
@aeronsystem8400
@aeronsystem8400 3 жыл бұрын
Praying for your fast recovery, queen Bea!
@limgl.7526
@limgl.7526 3 жыл бұрын
Eto yun isa sa mga kinakatakutan kong sakit... kaya mo yan miss bea. Lahat ng nangyayare satin my dahil at si papa jesus lang ang nakakaalam. Pagaling po kayo. God bless po.
@mmsisters606
@mmsisters606 3 жыл бұрын
Thank you for sharing your story Miss Bea
@hyacinth8522
@hyacinth8522 3 жыл бұрын
God bless you Bea and family! ♥️
@rachellecovarrubias2122
@rachellecovarrubias2122 3 жыл бұрын
Stay strong Bea. Praying that you will find your match soon. 🙏❤️
@melconstantine1715
@melconstantine1715 3 жыл бұрын
Everything is taking care of. May the Lord Almighty give you the strength, wisdom that you need during this time. God Bless you. 🙏🏻
@queensarahforever7679
@queensarahforever7679 3 жыл бұрын
Sending virtual embrace... i had a kidney stone few years ago.. the pain was too much..
@katrinasindayen3860
@katrinasindayen3860 3 жыл бұрын
Oh sorry you have to come to this... your a brave woman! God heal you! And bless you !
@kervi
@kervi 3 жыл бұрын
Stay strong, queen 👑♥️
@yhang9154
@yhang9154 3 жыл бұрын
Hi Ms.Bea,just keep fighting for all our love one in life,by GOD's grace we can make it!!!!Im also a dialysis patient just like u....stay strong and GOD BLESS
@christiancapuchino8891
@christiancapuchino8891 3 жыл бұрын
Same with my cousin he was diagnosed June 2016 and died Dec 5 2016. God will heal you soon. Keep Fighting
@SoutheastCartel
@SoutheastCartel 3 жыл бұрын
Keep fighting! We are here if you need us.
@Poortvtvtv
@Poortvtvtv 3 жыл бұрын
Parang i cant comment anything about this disease. Ang hirap lang. I will just pray for you always ms bea. Laban...
@JoanneEdrada
@JoanneEdrada 3 жыл бұрын
Stay Strong!! Hoping you get a match for a transplant! 😁 Im a dialysis nurse and I agree that health should not be taken for granted. I have seen many success with home/pd hemodialysis as well as transplant!! *hugs*
@princess4763
@princess4763 3 жыл бұрын
God bless you Ms. Bea. laban lang po. meron po c God always sa atin
@mheasenyahan92
@mheasenyahan92 3 жыл бұрын
I can relate❤ Because my husband at the young age has IGA too, that leads to have a kidney transplant. We're lucky that he's doing well now and going 4 yrs as KT.
@TheVilosFamily
@TheVilosFamily 3 жыл бұрын
You bring tears to my eyes I can definitely relate to your situation I had IGA Nephopathy and I am 10 weeks pregnant but I don’t want to live with fears imagine people died from Covid and we still lucky to be alive keep fighting💪🏻💪🏻💪🏻 we got this💖❤️💖
@NechelleP
@NechelleP 3 жыл бұрын
dont worry i got pregnant twice while while having Iga. everything will be alright. praying for you ;)
@roy667
@roy667 3 жыл бұрын
Laban lang Ms. Bea! ❤❤❤
@JaysonTAbiog
@JaysonTAbiog 3 жыл бұрын
Be strong! God bless 💓😇
@liamnigelvergara7355
@liamnigelvergara7355 3 жыл бұрын
Will include you in my prayers🙏🙏
@cjlee-diaz7223
@cjlee-diaz7223 3 жыл бұрын
God is good! Just trust in him. This brought back a lot of memories. I had my kidney transplant more than 11 years ago and I believe that you will get through this.
@bakehero808
@bakehero808 3 жыл бұрын
Dun ako timaan sa 17:50 ganda ng message ganito ako mag isip. Thank you sa advice
@judeadrian7794
@judeadrian7794 3 жыл бұрын
Hi Ms. Bea, I admire you being brave and speaking about your situation. “I felt it when you said, live life to the fullest, appreciate life as much as you can because life is short and life have a lot of surprises and you’ll never know.” I believe God is up there, watching and He will always guide and support you all the way. We are all praying for your fast recovery. Please don’t give up and be brave still. Keep safe always and stay healthy guid Ms. Bea. Bato guid! 😊💪🏻
@BaBiandMamaXy
@BaBiandMamaXy 3 жыл бұрын
Be strong BEA ❤️ Brave QUEEN 👸
@kylejie5704
@kylejie5704 3 жыл бұрын
Fighting! God is good all the time.
@anniesolayao744
@anniesolayao744 3 жыл бұрын
Just keep on praying my dear,God is always good..
@solestellamaebabas9933
@solestellamaebabas9933 3 жыл бұрын
Stay strong Ms Bea. You are a great person I know Heavenly Father with bless you more. I can't forget when I met you in person you were so kind even if I'm just an ordinary person.
@kylecasino1094
@kylecasino1094 3 жыл бұрын
Get well soon queen! God is with you
@isobel8587
@isobel8587 3 жыл бұрын
I am bawling , just hit me because a ckd patient as well and my doctor at Toronto gen is getting my mind ready for dialysis. I am fighting with this disease for 11 yrs already.
@onlynice9567
@onlynice9567 3 жыл бұрын
Fighting!!
@VincentRecal
@VincentRecal 3 жыл бұрын
Keep the faith... aninvite.blogspot.com/2018/03/amazing-ckd-stage-5-dialysis-patient_1.html?m=1
@aishapenalosa1816
@aishapenalosa1816 3 жыл бұрын
I remember our show in Durham you wer in the car & they told me you weren't feeling well but you came anyway. Gosh you're so strong B, I'm so glad you're okay now. Regards to your beautiful mom❤️
@marybethmayorga4239
@marybethmayorga4239 3 жыл бұрын
I pray for your healing Ms Bea!!
@KuyaJoe
@KuyaJoe 3 жыл бұрын
I love what you said near the end 😊😘😘
@antoinettebernaldez7058
@antoinettebernaldez7058 3 жыл бұрын
Be strong queen My grandfather Is now in his 10th year as a dialysis patient 2 times a week sometimes thrice. He is 80 years old now and still fighting. anyway I just wanted to say that You can do it!!! I know you cannn!!! You are braved than your what if's. I love youuuuuu🥰❤️
@caselynflores2332
@caselynflores2332 3 жыл бұрын
My Bro in law has kidney failure as well keep fighting po God bless 🙂
@NechelleP
@NechelleP 3 жыл бұрын
this making me cry as an iga neph patient. take care and Merry Christmas!
@sheiladelarosa5888
@sheiladelarosa5888 3 жыл бұрын
Hi Bea you are so brave for posting something like this and sharing with all of your kidney disease journey. I know Its not easy I myself is going thru what youre going thru right now, its not easy but first thing that you need to do is to accept that your life will never be the same, went into depression/paranoia the first 6 months from my diagnosis, i would be paranoid in regards to what i eat to a point i would only eat boiled or blanched veggies, drastic weight loss came after it, from 135 lbs i went down to 82 lbs in less than 2 months. I did not want to talk to anyone even my family, i shut off my friends, was just basically work and home and on my days off ill be lying in bed crying. But slowly i came to realize that what im doing to myself is not helping my situation either, so I started educating myself about my kidney disease talked to my nephrologist more and asked them if I could speak to a dietician for a kidney friendly diet, and from that point on everything got easier. Its been 12 years since my initial diagnosis of glomerulai nephritis, and i thank god everyday that so far I dont need to have a kidney transplant just yet. Kidney is still functioning at more than 50% right now. Just keep having a positive outlook in life no matter what and just pray. God bless you always ❤
@JIMAPRILYN
@JIMAPRILYN 3 жыл бұрын
I feel you miss bea my wife also is dialysis patient 6years and still fighting.Godbless you.
@kvrt17
@kvrt17 3 жыл бұрын
Hi. Kevin here! I'm from your IG. I'm the one always asking how are you doing. God bless Ms Bea!!! 143
@lizaofalda7769
@lizaofalda7769 3 жыл бұрын
Be strong ms.Bea God is good❤❤❤
@mariaklara7877
@mariaklara7877 3 жыл бұрын
Napakatatag niyo po. Salamat sa pagbibigay ng pag-asa. May you be healed in Jesus name.
@manghudart1329
@manghudart1329 2 жыл бұрын
You are inspiration po. Hindi madali ang napagdaanan niyo. Napakatapang. Napakatalino niyo po. And even with a lots of problems, maganda at mabuti pa rin po kayo. Stay positive! Stay happy! May God bless you po! Ingat palagi!
@charleymae29
@charleymae29 3 жыл бұрын
Dialysis patient represent.. ESRD is not easy but God is always with us.. 4 years in Peritoneal Dialysis or Home dialysis while 2.5 years on Hemodialysis in Fresenius kidney center here in CA.. godbless you queen and all the kidney patients we got this! #fighting
@gladysgarcia2544
@gladysgarcia2544 3 жыл бұрын
Soooo strong, Queen
@keyti6149
@keyti6149 2 жыл бұрын
Good luck, Miss Bea!!!
@janemisa7225
@janemisa7225 3 жыл бұрын
Virtual hugs for youuu 💕
@misse9013
@misse9013 3 жыл бұрын
I wish you well queen. Thank you for sharing with us your story.
@bembem_777
@bembem_777 3 жыл бұрын
Praying with you Bea 💜🙏
@shoeesss8161
@shoeesss8161 3 жыл бұрын
There is always hope. Will pray you.
@wildfire6910
@wildfire6910 3 жыл бұрын
My mom is a dialysis patient. It is hard but I am thankful that there is something to keep her alive.
@VincentRecal
@VincentRecal 3 жыл бұрын
There's hope for a healthy solution. Watch this video @ kzbin.info/www/bejne/iHmogJuXrK2bm6s More testimonials @ facebook.com/intrapilipinas +639158432474 WhatsApp
@lotisgutierrez8371
@lotisgutierrez8371 3 жыл бұрын
Hi Miss Bea, same here po. Kidney patient din po ako. Fighting like you po and hoping for KT soon! I admire you a lot Miss Bea, following your kidney journey po. Sana po gumawa pa kayo ng maraming inspiring video why not to give up on life and continue to fight kahit mahirap. Isa po kayo sa inspiration ko thru out my kidney journey din po. Keep safe and godbless po , Miss Bea! Love you! 💕
@baleileimgomez
@baleileimgomez 3 жыл бұрын
hello ms bea stay strong💚 fellow warrior here💚💚💚
@sarahreyes4933
@sarahreyes4933 3 жыл бұрын
I feel u bea rose!!! I am also suffering kidney failure IGA nephropathy at my age now. So young. But still fighting and longing for a transplant next year. Thanks for your vlog cause i also went disappointments and deppression. But now I am surviving. As u said life is short. So much cry as i watch this video reminiscing all our hardship to fight this battle. 😭😭
@louiefranco993
@louiefranco993 3 жыл бұрын
God bless you🙏🏻🙏🏻🙏🏻
@borjbuitizon3134
@borjbuitizon3134 3 жыл бұрын
Same case with my mom and my best friend, it was really really hard. Unfortunately my mom didn’t survive because she’s too old, right now my best friend is doing well she had her surgery last 2015 and everything is back to normal, she’s working and a mom now. Last nov i joined and signed the petition to extend dialysis treatment from 75 session to 100 plus, coz here in the Philippines the treatment is soooo expensive!! Bea, i’m praying for you and to all the people who is currently going some tough times, this is just a challenge. God will never leave us, you will survive and Our Lord God will heal you.
@lezahnnahannah8253
@lezahnnahannah8253 3 жыл бұрын
Be strong gorgeous 💐🙏
@inpaucafidelis
@inpaucafidelis 3 жыл бұрын
My good friend and classmate in Poveda in the early years Deena passed away 2 years ago from complications after her kidney transplant! I miss her so much! She was my prayer buddy, my counsel and my calm! I’ll pray for you and will ask Deena to intercede for you in prayer!
@RNGunding
@RNGunding 3 жыл бұрын
I understand how you feel Ms. Bea. I hope that you're okay. Laban lang po!
@claimercado8316
@claimercado8316 3 жыл бұрын
sending virtual hug Bea ♥️😘
@serenitybeauty
@serenitybeauty 3 жыл бұрын
You’re such a brave soul Bea. Thank you for sharing this journey with us. Thank you for sharing so many wisdom. Indeed life is short. I pray that God will heal you soon. God hears every prayer and sees every tear. 🙏 Himat po kag paayo ka.
@arrianealado3219
@arrianealado3219 3 жыл бұрын
Get well soon Ms. BEA! 🥺
@timdella92
@timdella92 2 жыл бұрын
I was just diagnosed with IGA a few minutes ago and went directly on this video because I remembered you immediately. I want to have a confirmation that there is hope. Thank you very much. I am also from Toronto and thankful ako kasi kahit papano free and healthcare dito sa Canada.
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