My life expectancy changed...and it's overwhelming

Trikafta has changed my life, but those emotions are overwhelming.
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[@MorganSolo]

I've tried to shoot this video a couple times, but always tried to downplay the negative mental or emotional baggage that has came with being "fixed" because I felt guilty for even seeming like I was complaining. But, I've always wanted to be as real as possible, and after speaking with some other people with Cystic Fibrosis who feel a lot of the same, I felt in my heart I needed to lay it out there and get it off my chest.

[@windwhisprz]

I appreciate you sharing, and as always your honesty.

[@helenmurphree3434]

This should be a sequel to the movie about Claire to tell your story and all the things that come with this new world for you and other cf patients. Thank you for sharing.

[@madie72451]

You are part of a huge blessing! In fact we actually all are with the vaccines out there! My husband had polio. He is lucky to be alive. He has one leg that has been affected. Many ppl died because of it. And 2 ppl are still in an iron lung!! Our children never have to worry about polio! You and Stefi are part of the blessed. Don’t feel guilty.

[@bettyjolly4573]

Awww Morgan,😉 you're doing so well Bud... only others going thru this truly understand but tho your head is loud and busy,you actually work thru it.🤘never doubt how strong you are, you will always rise to the challenge cz thats what you do 👍💖 plz say Hi to Steffi for me 🖒💖💖✌

[@jeanniesherman3591]

YOUR DOING SO , SO GOOD both you n Stephi !!!Now. . . . Go out there , n keep having a fun time , dont FEEL guilty , you two have both, been to HELL ........n......BACK . you've EARNED THIS NEW LIFESTYLE , SO GO OUT AND LIVE IT !!!!!

[@Jacobyy8]

I’ve never seen something more relatable in my life. This is exactly how I feel. I’m 16 with cystic fibrosis and for all my life I was told I was going to die, and I always lived that way. I still struggle with that mindset too, my grades reflect that too. I don’t have the motivation for something’s anymore. I always move at a fast pace. When I got put on trikafta I was told I could live a Normal life. It didn’t seem real, I didn’t feel real. My head got the best of me and things got good until they didn’t. This video changed me morgan. Mark my words, I am going to change and live my life with the realization that I have time. I can slow down with everything. I really appreciate you morgan, thank you for this video.

[@alliethomas6813]

This seriously couldn't have been posted at a more perfect time, for me personally. My husband is dealing with and navigating THIS exact thing. His depression has become more severe since the realization that Trikafta has given him such an extensive future, that he had never imagined possible . He has started weekly therapy sessions and is now also taking medication for his depression but as his partner, it is incredibly difficult for me to try and figure out how I can help him. I understand that when it comes to depression, the work is internal and there probably truly isn't much or anything I can do... but it breaks my heart because of course I saw/see all the exciting new possibilities for us as partners (buying a home, having a family, traveling, etc.) and he is trying to just simply understand and grasp his new reality.

[@tiff2106]

As someone with a partner that is also fighting depression I wish you strength! We are often overlooked but do not hesitate to reach out for help! Yes, it is devastating for him but it is also hard for you and the two as you as partners! Your dreams are not dead, just put on hold! 💜

[@mary-piergaudet3323]

As CF myself who always had difficulty to be in a relationship because 'one day I'll be gone', I hear ya.... I believe we are split into two parts and not easy to live with.... One part of us is super passionate by life and the other one is always rethinking the way we are living.... Our strength come from being CF. But if we are not ill anymore... WHO ARE WE ? I believe the right approche (maybe Im wrong here... I just share what I would expect a partner to be there for!). Is to be reminded OFTEN with all the thing that I am. Don't get me wrong! being CF diagnosed is still there! and we still have access to this strength ! just need to be reminded of it I believe..... Also, having help on organizing priorities (for me at least) is of enormous help! Because I consider EVERYTHING to be a priority, I never learned to put things in order. (if that makes sense). but if you guys want to go somewhere together (buying a house, building a family, etc...) it is crucial that your partner is able to recognize is desire (WHO HE/SHE WANTS TO BECOME).... once that is integrate within, the actions and the vision of life will shift........ ALSO! as organs start to detox, A LOT OF TOXINS comes out and are in circulation in the body.... (I have always suffered from mental illness UNTIL I started to detoxify regularly (as needed or at least once a week, with right supplement and enemas), The mental race started to decrease... and I was finally able to understand my mind (feeling myself again)....... Just my two cents here. But I hope it helps somehow.... keeps your head ups! xx

[@peterburschinger5976]

I feel you man. I never thought I could even have a life. I almost died from CF at 21. Now I'm 23 with the whole world in front of me and at times it is both overwhelming and there is survivors guilt. I think about Claire Wineland who was the same age as me. The best we can do is just to keep trying to figure it out. Keep living. Keep breathing. Much love to you my man.

[@oddanneout]

Morgan, you’re giving me big Counselor vibes here. You’re so articulate and that really helps people find words of their own. Your experiences relate to everyone who has a “I was like that before and now I’m navigating where I am now”. That’s almost all of us. ❤️ Good work, stay true.

[@lorieknupp7499]

I have CF and I feel all of this. I am much older than you (62) and was relatively healthy until 15 years ago. As I went downhill I felt that I would not have to worry about growing old and needing retirement money etc. I started Trikafta last January and have gotten my life back. I have had a 20% lung improvement of which I am so grateful. I can do things I haven't been able to do since my 40s. While it is so wonderful now the future is scary, I have retirement around the corner something I never thought I would have to worry about long term. You have time to start your life, enjoy it and treasure it but plan for your future. I don't think that anyone is really addressing these feelings or really understanding what having this miracle occur means for us. You said it straight!

[@mineiswaifu6032]

I started trikafta almost 2 years ago and it's changed my life and I'm 25 me and my wife couldn't be any happier 💗

[@salientia]

This video is so beautifully put and really explains the feelings ive been feeling since I have imporved in my health. I went from using a wheelchair 90% of the time and my stomach was failing to being a professional cook who just got her culinaru degree. Its a lot.

[@BonTonBunny]

My dude... having negative emotions about positive things isn't wrong, you aren't spitting in the face of your lost loved ones. Why? Because you are allowed to feel what you feel, you are allowed to be depressed or freak out when your whole ass world has been turned upside down. Let it all out negative, positive, angery, etc. What ever you feel it's fine.

[@akeridae]

Thank you for this comment

[@amiek9269]

Bless you and Stephi. Please know the people who passed already, would be so happy for you to have gotten this second chance. Live and live big to bring honor to those who wish they’d had this medication but so happy for you who got it. Do them proud. 💕💕💕

[@2listening1]

Sending you much love, Morgan. By the way you’re going through what a lot of young people go through, but like ten years later and a hundred times bigger. I mean the part about the fight between settling down vs. constant adventuring. I looked your channel up today because I hadn’t caught a post lately. I wondered how you and your mom are. I have the same thing where losing so many friends did finally break me, very largely. I was also laughing about the time a medication made you see things and it looked like Toucan Sam was flapping his wings. You’re really a great comedian about that stuff and a really good serious speaker, too. I’m gonna keep praying for you. By the way, my mom and I used to collect money for CF and also for other lung diseases because of my asthma. You’re the best. Please hang in there! What helps me is turn all tv, media, etc. off for three minutes, or even a couple of hours, and just accept the fast or slow stream of thoughts without thinking you have to obey them. Love and respect to you, Sir.

[@Chrise501]

I get it (as much as possible) it would be completely life changing and total mind fk. I’m getting older and it’s a weird process. At 62, I try not to think about the fact that it’s more than half over or that at any time a one ton Acme weight (like the coyote in cartoons) could drop on my head. I think we all tend to take life for granted at times. I live with chronic pain for the last ten years. It effects my mental health as well. It’s been an interesting ride so far.

[@XxSakurafairy24xX]

You never really think about what happens to a person when they're given the opportunity to extend their life. Thank you for this eye opening video! And always wishing you the best.

[@patricialynnmoore]

Hey. Trying to catch on your life. That mind crap is the worst part of this Earth Journey. I am so grateful you brought all of this up. The negative conversations that go on in on head, the guilt, the shame etc. is unreal. With this major shift happening in your life, it will be difficult to stop the head traffic at times. But you will find your life balance in this 2nd chance just as you had one before. One thing that I know that help silence the head traffic is to learn and practice Mindfulness and Meditation. Mindfulness helps you to just be the silence right now, and keep coming back to the very now moment of silence. Meditation teaches you quiet, intentional focus on your breath to the extent that all other thoughts vanish. Two great practices to slowly implement into you life. Amazing video! Thank you for sharing from the depths of your heart that other may be afraid to share. It reveals so many perspectives that someone may have not thought of before. Namaste. 🙏

[@breathingwithcaity]

Hi Morgan! Fellow CFer here, have been following your journey for a few years. I feel like it is very important to note that the modulators are not a cure. There is still much progress to be made. I, myself, have been on Kalydeco and then Trikafta. Secondary to side effects with Trikafta, I had to go back to Kalydeco. Much benefit isn't seen with both for me. Not to say, it is not a miracle drug. It has changed countless lives and given people a second chance at life. I just want those in the CF community and those not in the CF community to stop their efforts in raising money to fight for a cure. Although this is progress, cystic fibrosis still plagues generations. Not to mention, the modulators only cover CFers in a certain gene pool. Thank you for your point of view and sharing your life on here. It has brought more awareness than anything and has helped through dark times. Happy Holidays! - Caity

[@thegastroparesisgoofball1030]

I don’t have CF, but I do have a different genetic condition, and I relate to so many of the feelings you expressed. 💕

[@kristinamerical3559]

My daughter is the 1st person in 3 generations to have CF. Going through pregnancy with her, having the thought that im just going to lose her anyway was haunting. we've been lucky having amazing dr.s being so aggressive with prevenitive care, knowing that in a few short years she'll be able to start trikafta.. gives me hope that she can do whatever she wants. Thank you for posting this video. My 2 year old cant express her feelings about this, but you can. :)

[@ashleybish0p]

Happy 1st Rebirthday♥︎

[@beexv8857]

Thank you so much for this video. I don't have CF..but i want you to know that these insights on your world view...really help me and many other people appreciate life more and take a step back to be mindful and just live...whether slow one day or fast the other, I love the new direction of this channel.

[@susanpigeon6072]

I don't have CF but I do have mental health problems to say the least and I completely feel you here. I resonate with what your saying about navigating a new life, cosmic shifts, life ultering changes, etc. .. this meant a lot to me real wise and emotionally. Thank you for being brave and speaking your truth. Your not alone. Life has a funny way of throwing curve balls. It sounds a bit like inner child work needs to be done. Holding honour and space for your loved ones passed, they are never gone. Integration. Much love

[@bethhanley6761]

Hello I have been following you through your journey for years now. I am a mother to a 14 year old daughter with CF our lives in the last 2 years have changed so drastically also that I am left speechless but I have moments also that I cant believe that I really only have to worry about all the "normal" things mothers worry about with the teens. I have spent the majority of my daughters life helping her fight and teaching her how to take care of her CF and also making her life full and amazing that now just the day today seems almost not enough. Your post today makes so much sense to me and helps me help her. I thank you for your honesty and your genuineness. You are doing life right!

[@bryendavies6742]

I have CF and this was as close to home as it can get. I felt everything you said and sometimes it’s scary not knowing what the future holds. Very well worded Morgan.

[@jmbtrain1]

Morgan Great video. How true it is to feel this way as a CF'ER. We have only known how to deal with the hand we were dealt. Yet now we have to live with the new deck. But we still have the memories of the old hand to deal with mentally. Not an easy thing to deal with all the guilt. Thank you. Love the open honesty.

[@iwasfloyd]

I can't even begin to imagine what you are going through. I can only say that I am so happy for you to even get a future.

[@mitsim]

What a thoughtful and intelligent and honest look at your new life since Trikafta. I can't imagine what it would be like, but your mental struggles are so real. I've read some of the comments, and, wow, you have validated so many people who are going through the exact same thing you are. You said it all perfectly. This should be seen by every CF patient (or PTSD victims) everywhere. Thank you, Morgan. Maybe you should become a motivational speaker. (Yeah, I know that's not your bag, but you did great!) Take care.

[@ragnhildmkhamar3433]

I needed to hear this🥰🥰 I have a chronic ilness and I can totally relate. I crave a normal life and that freedom. I have servere fatique and i grief that the old me is gone 😭

[@kirstied4]

I don’t have CF, but I do have a very rare chronic illness that is also life threatening. I can relate to that class box(really everything you said), but I haven’t exactly left that box, fully. Having the organ transplant I had had given me more time. But my body is still basically shit, and trying to kill me lol. So happy for you & you’re looking so good 😍

[@beebop3734]

Spiritual whiplash …. what a vivid expression!

[@Anna-sl1jo]

I’m only 15, and I have CF I know a lot of what you’re saying Morgan, though I can’t totally relate. With the whole friends thing I don’t have any friends with CF, so I can’t talk to anyone about it. I my family tries to talk sometimes with me but they just don’t get it as deep as they think they do. I know how it is to expect a short life because it’s what you’ve been told and what you’ve expected. But all of a sudden we have a longer life to live and there isn’t much we CAN’T do now, so I get how it’s overwhelming. What you’re feeling, is not wrong, it’s okay to feel what you want. I love your videos man! Keep it up!

[@katib9032]

It is kind of hard listening to this because you put into words exactly what I feel. I am sitting here saying 'yes! yes!' every few seconds... This touches me on such a deep level, i just want to say the biggest THANK YOU! You give so much to the cf world. 💜

[@janeofvirginia153]

You are not ungrateful. You were prepared for what was considered an inevitability and then the breakthough we all prayed for came. You have still suffered much and thirty years of your life was inextricably linked to CF. Now, you have the gift of a life you didn't completely plan for, and the expenses, which are significant, for this drug combination. I pray for you, and hope that you and the others here, find a new song to sing, and redefine your life. My seven year old son has CF and already has verbalized some of the things you have said. God bless you.

[@marisasilberman332]

My husband was diagnosed with Cystic Fibrosis in less than a week after he was born. He was active as a child, and he "took care" of people who were bullying him. He lets the water roll right off his back. Things don't bother him. I wish I was like that too! He had a sister who passed from CF after 2 days. When we were dating and then we got married I learned more and more about CF. I've had a lot of time to understand everything. Another thing that's interesting. When my husband and I were testing for possible disorders for a baby. It turned out that I have the same gene for CF. It's the SAME! I just wanted to mention that my husband will be 57 in June. I think it's amazing how my husband has passed through so many life expectancy years. Through thick and thin we take care of each other, and that's what it's all about!

[@jendomski]

It's ok to be not ok and "survivor's guilt" is hard af!

[@mary-piergaudet3323]

I hear ya!!!! About to start Trikafta this coming December 17th 2021.... Who am I without illness ? Where will I found the courage to go through life without explanation on why and how to ? I have lived an entire life before, not putting myself into confortable or not thinking too much and just do it! My CF is primary digestive. So pancreas liver, guts and sinises are my main issues... Will I be able to keep working on health (liver cleanses, detox phase, fasting...) that I know helps and works for me? or am I going to go back to accomplishments and 'doing stuffs' ?..... I hear you buddy. We have to acknowledge that as super sensitives, we don't need as much external stimulus anymore. We need to respect our needs for going inside and ... breathe! I think of you both guys. and I am happy you share your stories. xxx

[@Backwardsman95]

I've had kind of the opposite experience. I was diagnosed with sleep apnea last year as an adult. A chronic condition sure, but certainly not on the same level as something like CF. I have had the symptoms for years but am just now processing being a "sick" person. Other diagnoses are new to me as well. Part of me wants to be tough knowing others have it much worse even those with the same condition. I am kind of realizing that I'll have this for the rest of my life and while it's not a death sentence, there are some scary stories out there. Thanks for sharing your story!

[@idapedersen3622]

Hi My name’s Ida and I also have Cystic Fibrosis. I live in Denmark where treatment is very good but I also struggle with mental health stuff and I can one hundred percent understand the feeling you have. I’m happy to see someone speak about it and this video inspired me to tell a bit of my own story. I wish you the best and hope that even though it feels overwhelming right now, you’ll still find happiness in this new chance.

[@Fuckhellout]

Hey hey Morgan thank you for posting your videos your videos have been very helpful for me learning how to deal with a chronic illness it sucks but you know don't let your brain go to the dark side your videos I mean a lot to me not in a weird way or anyting just make me feel better when I don't feel great but thank you for posting them and have a good Christmas

[@52Paulis]

Thank you for this. For me, I was just someone with severe depression that went through life thinking I wouldn't make it to 30, or 40. Then I hit a wall, rock bottom, and I got treatment. Decades later with therapy and medication, I still have some days where I look back and say how am I here. I have read a lot about Second World War paratroopers and front-line soldiers from Vietnam. They did not expect to survive. Some missed the adrenaline rush, some were just happy they survived, others lost who they were and they never found themselves again. For the record what you do with this channel is epic. These are important thoughts the world needs to see. All of the friends you lost would just be happy that you are still here. Morgan, you're strong, it takes strength to talk about these things. I am grateful you post these videos.

[@BartBourg]

You got this brotherman. If you can inspire us, just to be better people then I believe you have it in you to inspire yourself from within and those around you. On A Side Note: I can relate to the head noise. I don't talk about it much, but I have OCD, and it plagues my thought so much that my brain never shuts off. People saying thinking is a good thing. Well, not when you obess over every little thing. Sometimes I struggle just to complete a sentcne because I keep interrupting myself due to my thoughts going a mile a min. I can keep on going and going, but you get the jist. Just keep being you or the you, you inspire to be. Enjoying listening to what you have to say. ✌️

[@erikedward1]

Thanks for all the insight Morgan. I felt like I didn't know enough about trikafta until I watched.

[@ChaplainAmy]

Wow! This is powerful! A whole shift in our mindset. Everything we “Know” is different- even what being “sick” is or looks like. I so wish our loved ones had this opportunity

[@olgakolarik9081]

I hope everything is well. Your story is inspiring, your fight is a huge achievement, you've done enough. Don't fall into the trap of feeling like you need to achieve more or less, whatever you choose to do is enough as long as you learn to enjoy the journey. You deseeve to focus on having a laid back, easy life without having to face a life threatening disease. Nobody knows how long they have, sometimes ignorance is bliss. All anyone has is this moment, today. We are all brave and weak at the same time. Many of those who are not born with a chronic disease do not appreciate their life for whatever reason and that is the unfortunate thing that almost noone has the awareness they need to live in the moment, to appreciate what they've been given, and to embrace life and all it's ups and downs. I know everything you've been through has given you much more wisdom and insight into what is important and meaningful. Simple things in life are as meaningful as big achievements. Who are we doing these things for? For ourselves or to prove something to someone else? We have nothing to prove. To me, the most meaningful thing anyone can do is be kind to themselves and find own happiness and that will reflect on everyone around us. You are someone who already touched a lot of people with your story, I am inspired by your story and I wish you peace and joy.

[@robinrupert1805]

I needed this so much today ❤️ I struggle with mental health and my life is in a shift right now things are hard, I appreciate you sharing your thoughts on this journey of life no matter the path!

[@BethinnEvans]

You articulated yourself so well in this video. I made a video a few months ago which expressed a lot of similar thoughts and feelings so it’s comforting to hear from another person. Wishing you all the best as your navigate this journey :)

[@sharondavies9760]

Thank you so much for being so open and honest in sharing your experience. Whenever we learn even a little about It helps us understand

[@pitking8912]

I couldn't have said it better brother! I feel the exact same way! Love you man!

[@rainbowbrit]

I am happy for the health change and I understand the overwhelming changes that you are going through. Love and light to you Morgan and Stephi as well

[@hannahhonn5190]

Holding space for you on this. This is deep and raw and I appreciate you sharing your feelings and validating so many others feelings that they may be questioning. Much love. 💜

[@KaySlavich]

Thank you, Morgan, for this video, for sharing, for the realness. All feelings are valid, it's okay to be not okay. I'm sure you can handle all of that, it can be tough, but always possible. You're just incredible!

[@Hannah-hx5sp]

i have chronic illness and this message really speaks to me in a lot of ways. Everyone should speak up about their feelings and we can normalise both sides of the coin. ive been on drugs that have kept me in remission for almost 14 years, and it still feels like no time at all. And ive been through the having to come off the drug scenario, they do huge amounts of long term damage, a lot of the side effects arent even known. It's scary but you just have to think about it as a "i'll deal with it IF it comes my way." Love your videos

[@mikaylabianchin3736]

I’m 21 and I just started Trikafta 1 week ago. I can’t thank you enough for this video and the timing of it! I needed this, need a friend right now to understand how I feel, you got it exact! Best of luck to you Morgan.

[@mariefurie9241]

Thank you! I don’t have CF, and yet I was able to relate your words to my current situation cutting off contact with my abusive parent. Please keep posting these new style videos, each one is better than the last.

[@laurelldockall2399]

This was very profound. Thank you for sharing your feelings. I never would have thought of this perspective. I think everyone with CF and their loved ones should see this and be offered free help or therapy right off the bat to work through these things. You are one of the first individuals to experience this and you really hit the nail on the head. Much Love always.

[@EstroJen30]

This is a great video, I’m sure it was tough to film and edit. It’s so hard for us to admit when we aren’t feeling ok or when we are trying to process big things but it’s so empowering once we do. Sending blessings your way xoxox

[@JordanAK907]

I don't have CF, but what you're saying makes total sense Morgan. I think anyone in your position would struggle with the same things. You're definitely not being ungrateful or disrespectful, it's just so much to process. I hope it gets easier as you develop comfort in your new life. Wishing all the best for you and Stephi 💕

[@ChaplainAmy]

We have to deal with grief & loss of our lives as we knew it. All the areas of our lives

[@patricial1004]

Thank you for sharing this ❤

[@Satellitegirl41]

Have you ever thought about being a counselor? You speak so well and are very thoughtful. You've been through a lot. You'd be awesome at it.

[@kittygartland5305]

Morgan you explained your thoughts perfectly !!! You literally had to learn a new way to live !!! You are grieving the old Morgan because he is all you knew . We as "normal lives" people could not relate but I have a more understanding now . Thanks for sharing !!!

[@mellameow5892]

Thank you Morgan for being so true to yourself and thank you dor sharing your life with us. Mental health is so hard to navigate. Struggling to just exist some days. Sending love from South Africa 🇿🇦

[@sarahknoth933]

Thank you for sharing your story. I couldn’t imagine having to reprogram your brain from a perspective you’ve lived from a couple months old until now. However, I am glad you are still here. Try to give yourself grace and let yourself sit in your negative feelings when they come, from what I’ve learned they pass by easier when you stop fighting them. I wish you all the best Morgan!

[@cynthiagarrison9663]

Thinking about the future was not in the cards. We literally just tried to make it through the day. Now it's like I can plan for the future and it is so scary.

[@siennaskye6760]

hey Morgan!! in 2018 I wrote a letter to you that I never ended up sending. I had a birthday card in it for your mom and a remake of a painting I made for my friend with cf. he loveddddd your videos. he passed away before I wrote you and I was gunna write you because he never did. it was a later the was about 10 pages long about my love for Ryan (cf friend) and his love for you and my struggles in life. back then I used to watch you and stefi and now im so glad to see you guys together. sometimes I get mad that trifekta wasn't around back then but im just so glad that its now a thing and has changed so many lives. love, Sienna

[@kcjones6034]

"I had rather be shut up in a very modest cottage with my books, my family and a few old friends, dining on simple bacon, and letting the world roll on as it liked, than to occupy the most splendid post, which any human power can give." - Thomas Jefferson

[@racheaburchfield6466]

My son has CF he’s 9 about to be 10 in February 😊 he on trikafta and it’s helped him so much !!!!!

[@leahquispe4569]

As someone who was in a car accident and recovering for almost 3 years and also had a tumor and when they opened me up I had extreme endometriosis... Complete hysterectomy... And this is a small part of an overwhelming life.... You never know what's coming..... Hugs...My friend died from C.F..... Being able to Speak your TRUTH is important.... I wish she had been able to try such a drug.... Live On...Live Well.... P.S. It helped when someone validated that yes I was going THRU EMOTIONS.....and I realized I don't have to Live THERE!!!

[@claudiarinehart9544]

You are a special soul!!!! I’ve followed for years…..

[@erikedward1]

Thanks for the reminder Morgan. I will be living these last days of my life to the fullest

[@jflowers41]

The way you describe how you think and feel now is almost exactly how I think and feel after escaping an abusive marriage. I’m overwhelmed now with navigating the real world after my entire adult life was controlled and managed by my husband. I have a lot of mental health issues including cptsd. I hope you have a support group and/or a therapist. I’m glad you’ve got Stephi too. Thank you for sharing. Even though it’s very different circumstances, I can completely relate to how you’re feeling.

[@hondafreedom9329]

You don't sound crazy nor ungrateful; I get it. Makes total sense.

[@tay_craycray]

To say I related to every word, I would start thinking one thought and within a minute you would be saying the same thing. Thank you for putting my very scattered thoughts into a very articulate video.

[@Teashot786]

I’m so happy for you Morgan, it’s crazy that you can even say “life after cystic fibrosis” because it for so much of your life you’ve been told that this condition can kill you and now your fucking almost cured. Best Christmas/new years present ever, I’m beyond grateful for your channel and you sharing all your struggles with us. You’ve helped me through so much 💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜

[@TraumaSurvivorCynthia]

Thumbs up #58 for you Morgan!!💙 Our family realized how precious life is and don't take it for granted after my Stepdad 🏀 Dave Sanders was killed at Columbine High school on April 20, 1999 along with 12 students.😇 Hoping to spend New Year's Eve Livestream again this year with you and Stephi Lee.🎉⛄🎄 #davesandersstepdaughter

[@elliotelephants60]

Morgan, I don’t have CF so obviously I can’t relate to this exact experience, but I just want you to know that you don’t sound ungrateful at all and that it makes sense in a way that you would be experiencing these mixed emotions. Change- good, bad, and neutral- is always an adjustment and can always be hard. You loved your whole life with a certain understanding of the world and how you fit into it and now you’ve had that turned upside down. I haven’t experienced a change quite like this, but I’m autistic and I always struggle with change, even change that I feel like I “should” have no problem with. But I have also sort of thought more about change than many of my peers. With any kind of change, there can be a sense of grief for the past, even if, objectively, the change was good.

[@ilovemybigbro]

Hey Morgan long time viewer of your channel I don't have CF but I have Spina Bifida which caused me to be born paralyzed from the waist down but as of 7-3-21 I randomly got feeling from the waist down and it is beyond scary I don't know what to think Drs Don't have an explanation of why it happened so thank you for this video I love you!

[@ElvenQueen854]

There are two sides to every situation. Thank you for sharing the more complicated side of being on trikafta.

[@kerriprest3446]

Hey Morgan, I have never experienced anything like what you are experiencing but I have so much respect for you putting this video out. I know this has to be so helpful for more people than you know. Just being authentic and genuine on a platform like this is so admirable. I have so much love for you and Stephi both and to see you both adjust to this new life you've been given is just beautiful. We all have our own paths and where you are right now is exactly where you should be. Love yourself and be in the moment as much as you can. 💛

[@muggle394]

I think you’re putting too much pressure on yourself, you don’t have to live for anyone but yourself 💜

[@gaygrandpa_]

Just want you to know that everything you're saying makes complete sense, without any shame! I have no doubt it's a bit of a mind fuck, but I'm so glad you're on this earth and sharing your journey in this way with us!

[@lagatitabruja]

Dont ever be content with just settling in life. (If thats what you figure out you want of course) Do what feels right to you. Not all of us are born to just be "content" with the status quo. But at the same time, don't beat yourself up for just existing and doing normal everyday dull shit. I dont have a chronic illness and I feel exactly the same way. I think its a process of being in your early 30s also and just a process of growing up? Its a combination of a variety of factors of course but you can still do all the fun spontaneous shit and get your life together on paper. Having a mental illness complicates it all on top of it. So glad to see you and Steph getting better with Trikafta! I can imagine its a big relief to have someone who is going through the same thing as you to experience it all with. Life bonding for sure. Im sure with time you will settle into this all. :)

[@Brandi.65]

In a way it is having freedom, knowing you didn't have to worry about your future. Then all of a sudden the world is complicated. Love your videos 🤗🤗

[@samanthareid9013]

Don't ever feel bad for struggling with positive change. Your feelings are always valid and your feelings are yours and for no one else to comment on. Just because something is a struggle doesn't mean you are ungrateful for the fantastic future you have ahead. ❤

[@catloverKD]

You make complete sense. You're craving your normal, because as much as it sucked, at least you knew how to live it. If a regular person gets seriously ill then recovers, they can go back to at least a similar version of their life before. You don't have a before, you don't have a reference for how anything is supposed to go or work and us normal people can't really relate. But yes, most of "normal" life is the mundane and boring routine, with the occasional crazy thrown in. You'll find your new rhythm, and the good news is, there's no deadline anymore, you take as long as you take. And we'll be here for you. Hugs

[@mendozahugoalberto]

Tomorrow is never promised, enjoy every minute of the ride.

[@CoolInOlympia]

Totally understandable! It's a journey to discover how to do life after you live past what you thought!

[@thewanderingwolf7116]

I don't have a chronic illness, but I think it's common to have big dreams when your life expectancy is so short. I feel like a lot of people that don't have shorter life spans have less extravagant dreams, like being able to come home from your 9 to 5 just to relax. Being complacent isn't taking your life for granted, it's just living. You don't need to follow giant dreams to be fulfilled. imo.

[@susanmargaretwills6432]

Morgan ur character/personality is that of the "discontent" Gotta-Be-Doing-Something non 9 to 5... u'd be that way even without CF; I'm 66 yrs old & only in recent years have I "calmed down" - my daughter is the same as me, my granddaughter also - sometimes I feel guilty about not having been a "9 to 5" person but then I tell myself that it takes all sorts to make a world (in Italy we say "the World is Interesting Because It's Varied") - & also we're not delinquents, just people who others want to be around & be friends with cos we ARE interesting! So Morgan from now until u turn 60 carry on being ur whirlwind self - then enjoy ur "settled-down" way of life (as I am doing) with ur memories, some good some bad but they were (and always will be) LIFE

[@elainehardy3502]

I'm glad Trikafta is working for you .

[@ydnasje]

Thank you for this video

[@sxcredjones4034]

I Don’t get comfortable with my CF life knowing anything can happen like being taken off Trikafta and go back to base Cystic fibrosis life. I will always praise this medicine but knowing the side effects of it I always get scared that they could effect me some day and they will just take the medication away from me so I still look at my life like it’s limited I won’t lie😭😭😭

[@sheenaaikins4939]

As someone also with a lifelong medical condition and mental illness, I was told by my counselor that just because someone's situation may be "worse" than mine (because with my own birth defect, it's a HUGE range for all of us and I'm one of the "lucky" ones), that doesn't mean my feelings, emotions, and experiences are any less valid or important. We all go through things and experience things differently. And that's okay.

[@fatherofthewhitewolf8560]

Claire has been my inspiration throughout, she's an angel, i wish I can meet her up in there😌 She had more severe type i guess, i hope you fight back to absolutely normal. The only regret I'll ever have in my life is to be unable to meet Claire. I've been late , so the only chance is the after death life😌😇

[@SulemaRegina]

Take it easy, continue to live life to the fullest, take in all the negative thoughts & turn them into your strength moving forward! Noone should judge you for being you.....anyone can judge, but unless you're going or went through it, they shouldn't feel any type of way....do you, live life ✌🙌

[@lilbev1876]

I used to be really healthy and now I'm not. I'll have my illness forever and its so heartbreaking to have to change everything about your life because of an illness. And I can imagine it being the other way around is just as daunting and can absolutely mess with your head

[@brunacastro5466]

I think that is very understandable. You had 30 years living in a different reality and you are supposed to be a okay in 1 year after everything changes?? No. Take your time. It might take 3, 5, 7 Years for you to get your new rhythm but you ll get there. The good thing is that you and Stephi are together in this. I think she may be able to get you like no one else, and that is great to have. So just take it day by day. The world is a wonderful place filled with great people (some lol). For me, serving people brings me peace. Makes all the sense in the world. Find your reason!!

[@27Tigress]

I have a mast cell disease and I’m allergic to literally everything and can’t get infections or I could die because I don’t have antibiotics to take as I’m allergic to most all of them. I’m can’t be in public and outside and now with pandemmy it makes it worse. I understand the mind fukery that you speak of even if I don’t have cf. it’s exhausting to manage and be processing so many symptoms. And now that your physical symptoms are a lot better your mentally able to finally process your whole life. Cause often when physically sick your mental processing of things doesn’t do as much. I feel for you and think your valid in how you feel. You aren’t weak or dumb or rude for saying anything you have in this video. You got this!

[@shadowfigure3749]

MCAS/MCS here too.. the glass room is very accurate.

[@susanmargaretwills6432]

Spot on Morgan - We've all seen the film "Bubble Boy" right?

[@tracymurray7314]

I couldn't begin to know what it's like to be you but I can imagine that being told all your life that you have a limited life expectany and your life will be one way and then suddenly you get told something completely different.That is going to be a total shock to the system....just take it one day at a time dude. Wishing you and Steph good health and happiness.

[@sasukeminion]

Hey Morgan, I'm a teacher and I think a lot of my students could benefit from hearing some of the points you make, especially regarding mental illness. Would it be okay to show a portion of your video in my classes? I've been following you for awhile and have loved you and your content. Thank you for being so transparent 💜

[@haleyramey583]

Man I always want to go into stor time with you. I was fine for 18 years an d then I developed lung issues and developed asthma. It really sucks. I feel like I didn't take care of myself enough ad took this life for granted because I think it's fucked up to struggle to breathe. I done a gallery of my art in college of "enjoy the little things" and it was to tell people to slow down from your job and smell the flowers. To take a break of what's "so important" and do something you want to do.

[@williamgainey4300]

My Mom committed suicide thirty three years ago. I have had depression for thirty three years. I have found a balance between traveling and home life. Just remember with your employer everything is negotiable. Good luck to you.