Still coming back and watching your videos. We all miss you so much 💕💕
@debbiewagner87316 жыл бұрын
Wow, I just have to say how impressed I am with how put together you are for someone who is so sick! You poor sweet girl. You are so brave! I’m 45 and I’ve been sick with a multitude of illnesses, like you, and I’m having a hard time being sick all the time. But I saw you today and started watching, and subscribed. Thank you for the inspiration luv!💜🇨🇦🐾
@susanfisher7733 жыл бұрын
Your were an Incredible roll model and forever will be with your Videos. 💙. Thank you Tom for being so loving and supportive 💙
@Grant-vk6zo6 жыл бұрын
Such a beautiful young woman. I hate you have to manage all this but do know you are inspiring many through your channel.
@deanaf6 жыл бұрын
You are so awesome! I love how positive you are.
@_malibugenies_93086 жыл бұрын
I love you so much💖 I literally liked the video before I even watched it!! I knew it was going to be good💓
@ilariazanelli966 жыл бұрын
You're such a beautiful person! I hope all these people here on KZbin can make you feel a little bit better showing love to you even if we don't know each other 💕🌹
@TheSleepysleep5 жыл бұрын
As someone who has chronic nausea/vomiting THOSE SICK BAGS LOOK AMAZING! I've had to use some creative solutions in my day, and those look so convenient!
@clary_raven6 жыл бұрын
I love the hogwarts houses on your pill holder thing lol #ravenclaw
@ivaperic20216 жыл бұрын
yess but #gryffindor hahahah
@daisyemory6 жыл бұрын
#slytherbuff lmaooo shaneee 😂 Issa joke ok
@Kayla-nw3pr5 жыл бұрын
Gryffindor
@bowtiepotato5544 жыл бұрын
💙💛
@pianofreak916 жыл бұрын
You can get heat pads all over in Oz. I think even Woolies sells them. Definitely Chemist Warehouse and im fairly sure Priceline as well
@maddiefern12676 жыл бұрын
Yes, any chemist will definitely have them! There are a few brands...libra, dencorub, elastoplast all have them :) The priceline I used to work at sold heaps of them!
@frangray24466 жыл бұрын
the paracetamol tablets dissolve so easy in like 5ml and go down your tube and it's much less volume! all my meds are tablets and dissolve and go down my tube super easy x
@suzettesanborn56596 жыл бұрын
Fran Gray, I don't have my tube yet, but have appt. the 29th for consult. Just wanted to say all my meds are already either liquid or capsules which I open and sprinkle the contents in bit of applesauce, or anything soft or pureed or dissolved in liquid.
@Maturleyglam6 жыл бұрын
I LOVE that top!!
@jkatt90676 жыл бұрын
your videos are breathtaking it makes me really happy when I see such positive people as you despite their illness - you have my fullest respect
@imo54876 жыл бұрын
The brand 'Elastoplast' sells heat pads in Australia. Usually at any pharmacy, around all the sports and injury type stuff. Unfortunately, the pricing totally sucks - but they're there if you're desperate!
@jessicastonehouse6 жыл бұрын
I love your channel and your vlog channel, I don’t have any chronic illnesses but I am really interested in your life and how you cope with everything. Due to my interest, I was wondering whether you would go through your meds and reasons for taking them more in depth?
@mistymulcahy50096 жыл бұрын
I love that pill organizer I have one similar but it’s in a click in case not just a pull out. I don’t have the same problems but I’m on a lot of medicines a day. But I have to put mine in a locked safe since I have a 3 year old. Since my medicine would kill him.
@avogal36796 жыл бұрын
Try chemist warehouse for the heat pack, where I am they have them (if you have one near you! There a Melbourne thing but they may have one on your side) x
@sebastianrhodes6 жыл бұрын
love your videos!
@le96g5 жыл бұрын
I love your pills storage decorations, who doesn't love the good ol' Harry Potter, no? I also decorate mine, keeping it cute with rainbows :) I love your channel, Amy. You show people who suffer from chronical illness are not "poor things", but people like everyone else. Keep it up!
@SophieJackson19933 жыл бұрын
Münchausen by Proxy sufferers must be perusing these comments sections & videos for all the medical information. Hi girl! 👋🏻 Ps: You’re such a beautiful girl. What an inspiration honestly. 🧡
@lashawnablanton46496 жыл бұрын
I love the top you are wearing. You are so pretty! Great video, very helpful. I know when you are chronically ill you tend to have alot of medical supplies. Thanks for sharing!God bless!Love you!
@gizzysmomma12946 жыл бұрын
Love your videos! I love your pill organizer that looks like a wallet. Where did you get it?
@amyleefisher526 жыл бұрын
Amy Soto amazon I think xx
@nzkiwiange4 жыл бұрын
AMAZING!! How on earth do you know what to take and when!!! You are so upbeat about all your challenges!
@bumpybackroads15816 жыл бұрын
I think it’s so odd how different care is from one country to the next... For instance, the UK and Australia want you to keep your tube stuff sterile where as in the US they don’t because the food and things you eat are not sterile at all so your bowels aren’t sterile and are used to handling non-sterile things.
@chloeprint-lambert47506 жыл бұрын
Bumpy Back Roads your bowel is actually a very clean environment because the stomachs acid barrier kills bacteria and other pathogens in food/feed/fluids etc... so when you bypass that acid barrier you are introducing bacteria that your bowel doesn’t usually deal with and can cause SIBO. If you feed into your stomach it’s obviously fine as it’s the same as eating but your bowel is different 🙂
@bumpybackroads15816 жыл бұрын
Chloe Print-Lambert i know how the GI tract works... like i said. i think it’s interesting that here in the US, they don’t require sterile protocol. we flush with water from any normal tap. you clean your stoma with normal water from any tap. you don’t need to wear gloves when cleaning or flushing or anything along those lines unless it is your preference to do so (to keep tummy acid off your hands). this isn’t the only... medical care? sorry word block... this isn’t the only type of treatment in which the US and other countries vary greatly. and that was kind of my point.
@KashisLittleAngel5 жыл бұрын
In Germany, we also don't have to use sterile tools and tubes because the entire gastrointestinal tract is not sterile
@learnavan6 жыл бұрын
You truly are such an inspiring young lady!
@radhadas33396 жыл бұрын
You are very organized.
@CHERIEBLAIRWITCH6 жыл бұрын
Hi Amy♡ May I ask... Where did you get thoes adorable Harry Potter pill boxes from? I LOVE them.😊 Hope you're feeling well... *gentle hugs*
@SkyLivesey5 жыл бұрын
She made them x
@cp14876 жыл бұрын
Can you do a video about just your pots medication and treatment?
@allyred37355 жыл бұрын
I'm such a huge fan and I love your channel! I recently got a PI CC line and now I have a lot of medical equipment. This video helped me out a lot, but where did you buy you storage bins/containers? There so cute and I don't want to get ugly plain bins lol. Thanks for making your videos
@lottielovegood6 жыл бұрын
The little Harry Potter medicine pots are adorable
@deannafranklin99956 жыл бұрын
I love your shirt!
@Marie-gm9ql6 жыл бұрын
since you suffer from low bloodsugars have you tried the freestyle libre? I'm hypoglyemic and it works so well I cannot live without it anymore. I have around 6/8 hypos in the day/night
@itsanorristhing38254 жыл бұрын
Sorry i know this isnt part of the video LOVE the bed set!
@frangray24466 жыл бұрын
loved this video!!
@bryonyjones8013 жыл бұрын
Can you please do a video about the Australian health care system? Xx
@gabriellaviviana1034 жыл бұрын
This is reminded me of how much medication I used to be on Bez of my kyddney stones but now I'm on just víctimas there gross soon were gonna try tablets squished cuz I can't take tablet
@greeneyes123466 жыл бұрын
I would love to see that heat pad because I have found that I can have things shipped in from different places. I am from the United States but have helped other get their supplies in other places.
@zoeelleyn4996 жыл бұрын
Where did you get your hogwarts pill organiser from? :D
@SkyLivesey5 жыл бұрын
Zoe Vickers she made it x
@sherritrella52836 жыл бұрын
You are awsome person you help me get throw my health problems
@gboneske6 жыл бұрын
pots here too! its all a bunch of shit turning our houses into pharmacies!
@vais30978 ай бұрын
The new rules are a step toward the creation and development that would make it possible to make a difference for all the countries involved and the people involved to be part in this project in a positive manner in their own country in a way which will help the development and growth in their countries in a way they are confident 10:52
@SpoonieEtte5 жыл бұрын
Amy, may I ask.... where do you get the urine test strips from please? I have a horrible time with uti's due to my spina bifida and I've had issues with dehydration for the last few years now.
@kimreichling32545 жыл бұрын
I LOVE U SO MUCH!!!!!! You are so pretty
@kimreichling32545 жыл бұрын
🍉🍉🍉🍉🍉🍉
@mrsfarrellforever6 жыл бұрын
This might come across very rude which isn’t my intention but do you have to pay for all your prescriptions and feeds? I’m just interested that’s all because that would wipe you out ):
@theanimalkeaper5 жыл бұрын
CydnieBenbow X no you don’t pay prescriptions in the U.K. (well in Scotland anyway I’m pretty sure it’s the same in the south of the border too)
@BRMV25045 жыл бұрын
Amy i love your accent!!! Also may I ask what your tattoo stands for. Also your so gorgeous im so jealous.
@nzkiwiange4 жыл бұрын
It's the date her and Tom first met
@nicolebezanson87346 жыл бұрын
Love your videos Amy😊❤️
@Rose-ow3yu5 жыл бұрын
what brand is your pulse oxygen device ive been looking for one i like and yours looks nice, thanks :)
@Lifelungsandlaughter6 жыл бұрын
Those gloves are not sterile!
@vais30978 ай бұрын
Vaishali shiver
@ambercimburek68726 жыл бұрын
How do u keep so strong and keep going while u are so ill?
@Shirleyfaithmorey-ev8fo3 жыл бұрын
Hey amy stay strong hun❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤
@Shirleyfaithmorey-ev8fo3 жыл бұрын
I love you amy so much ❤❤❤❤❤❤❤❤❤❤❤❤❤❤
@klaudiafabbro6 жыл бұрын
I don't have all the medical conditions that you have but i have a blood disorder (itp) idiopathic Thrombocipenic purpura it means i have a low platelet count I've had it since 2016 i had to have my spleen removed because of my itp and I've had 11 ivig transfusions and my platelet count hasn't gone back up to normal my platelet count at the moment is 26 my blood specialist said splenectomy doesn't work for everyone I'm unfortunately I'm in the group of people where the splenectomy didn't work when i got first diagnosed in 2016 the blood specialist said it would mostly resolve on its own when that didn't work they put me on prednisone but that made me hear and see things so they stopped the prednisone and stared doing the ivig transfusions then they tried revolade which is a medicine that is meant to help with platelet growth but that didn't do anything so then i had to get my spleen removed which before the surgery i had to get vaccinated against illnesses i could catch after my surgery then i had my surgery to remove my spleen and now my platelet count hasn't gone up since then and because i had my spleen removed i now have a compromised immune system so i can get sick esaliy and get worse if i get sick i also can't take anything with ibuprofen or aspirin i also can't do sports or high intense activity's sorry if its to long to read
@Angie-rg2kp6 жыл бұрын
I love your shirt😻😻😻
@Emptynestballerina15 ай бұрын
I miss you 🥰
@ps3742495 жыл бұрын
Had a pair of panties in a biohazard bag after a surgery. Wonder what people would have thought had they seen it without knowing it was just the bag they had handy.
@erickahwatson22856 жыл бұрын
can you have a feeding tube even if you don't have EDS?
@dorate1003 жыл бұрын
I miss you 🥺
@nessbailey79316 жыл бұрын
I was wondering about your tattoo. I assume it’s a date. If you don’t want to discuss it, that’s quite understandable, I was just curious.
@Jodielou2226 жыл бұрын
Cora Bailey it’s the date her and her boyfriend got together I’m 90% sure :)
@Sallie136 жыл бұрын
where did you get the Harry Potter tablets containers ?
@Lucy123456heath4 жыл бұрын
Can you do a new video as now you have alot my equipment and supplies
@peterrose63835 жыл бұрын
Hi could you please tell me were you got your portable nebulizer from kind regards Peter Rose
@peterrose63835 жыл бұрын
@Bolt x thank you so much
@StarrAndrewsStrongHGactivist6 жыл бұрын
My room has so much wish I could have only 2 drawers
@lyt67324 жыл бұрын
Random, but do british people say “um” or “em” cuz i have a couple online british friends but they type and say “um”. amy is saying “em”.. Is it just an amy thing? 😂💙 Im canadian so forgive me for stupid questions lol im just genuinely curious if its just with a stronger accent or whatever
@MononokeOhime6 жыл бұрын
Where'd you get your shirt?
@user-eg6bl9kc9j6 жыл бұрын
Does she live in oz now ?
@itsanorristhing38254 жыл бұрын
.
@vais30976 ай бұрын
Vaishali shiver 15:23
@katelynbendinsky50806 жыл бұрын
Do you ever get to leave your tube out for awhile?
@hopelong42992 жыл бұрын
No
@mandy_lue_cookie5 жыл бұрын
What does your tattoo say?
@CC-hz1qm2 жыл бұрын
Why do ppl hide their prescriptions ??
@hopelong42992 жыл бұрын
Because it is private information
@ashleyayers17553 жыл бұрын
Why not show meds
@xSnappa6 жыл бұрын
❤️
@racheljukes39216 жыл бұрын
Does it fell weird having a tube
@sophiagrace32846 жыл бұрын
Rachel Jukes it does at first, but after a couple days you don’t even notice it anymore. Kind’ve like glasses or braces 😊 (I have all three)
@hopelong42992 жыл бұрын
It does I use to and I hated it I always pulled it out
@littlewitchleo6 жыл бұрын
damn girl you are a pharmacy lol
@curtisbemis66402 жыл бұрын
I am christian and I often ask God why her and not me. I would went for her . I hate living without her . She was such a beautiful angel . I don't ever wanna try to take her place with Sophie. I wanna just go . I love her and just want her to come back . So the world could be such a better place.
@perfectdisaster51686 жыл бұрын
💕
@sabertoohtiger93394 жыл бұрын
Can you please how to use medical
@filmhk1776 жыл бұрын
apart from the tube, you're just a normal person.(just visually ) really no cure? someone bring up some ideas
@sarahvincent34315 жыл бұрын
That a lot of drugs ,, do u have to pay for all ur meds
@emilycanty49214 жыл бұрын
I cant stop throw up
@noraah13286 жыл бұрын
ايش فيها ؟؟
@VIC14ful6 жыл бұрын
😘😘😘😘😘😘
@laurabutler45716 жыл бұрын
are you British or Australian
@amyleefisher526 жыл бұрын
laura butler British x
@macroberts69106 жыл бұрын
Thus is a bit of a weird question but do you still poop even though you have to take all of your food out
@annamarierodriguez206 жыл бұрын
Hateful Sith yes she does. She only empties her stomach if she feels like she is getting sick.