My MS Symptoms

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Disney Mummy with MS

Disney Mummy with MS

Күн бұрын

Пікірлер: 33
@NeilBradleyMS
@NeilBradleyMS 5 жыл бұрын
Totally relate to the bladder issues.. also numbness in the feet is where my symptoms started all the way back in 2007. Winding forward, I now deal with constant 24/7 squeezing in both of my entire legs with significant weakness. Big problems walking, lower back weakness and pain also. That is to name a few. As you've no doubt guessed by now, I'm going through several of your videos, they're excellent.
@GeminiAuntie
@GeminiAuntie 3 жыл бұрын
Thanks for sharing! I haven't been diagnosed with MS but I'm getting ready to see a new neurologist after suffering from some of these symptoms for many years! I've suspected I might have MS but I'm not sure! My current neurologist just keeps throwing meds at the issue and we're getting no where so I'm getting a second opinion and I'm going to demand imaging. The new neurologist has hinted that they may be checking me for MS after I gave them a list of my symptoms! The fatigue and pins and needles in my feet are the worst. I get so drained and some days it feels like somebody is taking hot needles and stabbing them into my feet
@kristabrown2675
@kristabrown2675 2 жыл бұрын
Any update? Curious as I too have a lot of these symptoms and finally have a dr willing to explore and not just tell me I’m stressed
@kendregab7328
@kendregab7328 6 күн бұрын
Me too! I have the same sensations in my feet along with other symptoms. First neurologist said I have neuropathy and didn’t not want to do an MRI because I passed the physical exam they do at the office. Going to make another appointment with another neurologist because that was last year and I’m experiencing the same and more symptoms this year ugh 😩
@meganhenry5795
@meganhenry5795 4 жыл бұрын
Do you ever feel jittery inside as if you have drank 20 cups of coffee, or get those internal tremors that feels like your vibrating inside? Or, do you get muscle spasms?
@e.williams13
@e.williams13 4 жыл бұрын
I get that....i take ativan and it helps
@disneymummywithms
@disneymummywithms 4 жыл бұрын
More muscle spasms. but i do also get the buzzing feeling inside when i am feeling really poorly x
@sashagaines8451
@sashagaines8451 3 жыл бұрын
Like over reactive to any sound or movement it’s like a reflex all over
@RobertAA90
@RobertAA90 3 жыл бұрын
My Symptoms over the last year... Crippling Fatigue, Leg pain with cold tingling sensations Cervical spine area pain and burning tingling terrible migraines, partial loss of vision in my left eye, double vision in both eyes, constant tinnitus, Toilet troubles... when I need to go, I really need to go (within 30 seconds) On a bad day I can barely move.. On a good day (Rare) I look perfectly “Normal” although I am probably just dealing with the symptoms people cannot see and not the visually obvious ones... (They don’t see me collapse in bed at 6pm every day) The constant pain and fatigue are what I really struggle with.
@mark4tucker
@mark4tucker 3 жыл бұрын
@@e.williams13 Vibrating ! I have felt that many of times which I thought was so crazy that I never said anything .
@jessd956
@jessd956 5 жыл бұрын
Thanks so much for sharing your experiences!
@NeilBradleyMS
@NeilBradleyMS 5 жыл бұрын
Wow .. My muscle weakness also started in my right leg particularly above my right knee. Feel like my knee is being squeezed (just above), they lock and unlock out of my control. My right leg was always very weak and my left pretty strong.. but recently this last year or two my left leg is now significantly worse so I have to be really careful. Yes, my leg also gives way above my knee, when I walk it's quite often more like a bounce. By the way, no need to reply to all my comments, I know how time consuming it can be.. it's just nice to be able to relate to somebody.
@alrightwithms845
@alrightwithms845 5 жыл бұрын
Thanks for sharing. Can totally relate. Best wishes Nic 🤗
@disneymummywithms
@disneymummywithms 5 жыл бұрын
Thank you for watching x
@JimBob-kl5te
@JimBob-kl5te 4 жыл бұрын
Thanks for sharing your story. Hope at least the numbness in your feet hasn’t come back! Are your feet back to normal now? Only downside is the sensation tests on your feet by doctors if you are ticklish?!😂 Keep making inspiring videos 👍🏻
@disneymummywithms
@disneymummywithms 4 жыл бұрын
I hate the neuro tests my body always seems to tense up. Maybe it just doesnt like my neuro lol Thanks for watching
@JimBob-kl5te
@JimBob-kl5te 4 жыл бұрын
😂 Do you have pretty ticklish feet? Is it just the babinski tests you tense up with?
@ReBornArt80
@ReBornArt80 4 жыл бұрын
Thank you from another Mom ❤️
@johnbillings5260
@johnbillings5260 Жыл бұрын
I've had a lot of what could be MS symptoms over the years, but there have been recent events that are more concerning and the neurologist had no clue. For a period of a few days my legs felt like they were a foot or two in front of my body and it made me feel like I needed to lean forward so I wouldn't fall backward which ironically made me feel like I was going to fall forward. Another scary event was when I got total paralysis and lack of sensation in my leg while lying in bed. It lasted a couple of minutes and I was finally able to kick it with my other leg and it was like the switch flipped back on. I've had lots of numbness, etc. over the years and that was definitely not what this was. The MRI on my brain and spine were done without contrast so I hope they didn't miss lesions. My wife asked me if I maybe had MS and I kind of felt like that could be ruled out because of the MRI, but it makes me wonder how much of it can go under the radar. Thanks for helping in my search for answers.
@kendregab7328
@kendregab7328 6 күн бұрын
May I ask for an update. Were you diagnosed with MS? Hope all is well with you 😊
@johnbillings5260
@johnbillings5260 6 күн бұрын
@@kendregab7328 I had an MRI and full body CT. They didn't show delamination so it's not MS. I'm still working on getting everything figured out.
@byron2521
@byron2521 5 ай бұрын
Yeah, "snowflake" disease, different for everybody. With my MS I don't have pain but have tingling and numbness in my feet. I walk like a drunk and have strength issues in my legs. Walk with a cane in public, have a hard time with stairs (need to pull myself up with handrail), stepping up curbs, etc. But try not to use a cane if I can. Try to force myself to walk. I was in college part time this winter, only took 3 classes, 4.0, so don't think I have memory or cognitive issues..... yet! Have fatigue, worsens as day goes on. I worked this weekend, came home went to bed at 9:00 PM slept until 4:00 PM the next day. Have bowel and bladder issues. Mine are similar: I have leakage (bladder) but have trouble going when I think I have to go. Bowel is different: If I feel I need to go soon, I must go! Because there is a point where I cannot hold it. I will maybe have 20 to 30 minutes to start looking for a place to go if I am away from home. I also have speech issue (talk like I'm, drunk), comes on as I get fatigued. I ironically have chronic insomnia too. My vision issues may be unique, not heard anyone else that experiences this. Worn glasses for years, but sometimes still have vision go blurry or double vision that goes away after a few minutes. With glasses on.
@tammybreuker7831
@tammybreuker7831 3 жыл бұрын
God Bless you
@stitchedwithlovebyloretta4684
@stitchedwithlovebyloretta4684 5 жыл бұрын
I'm showing all the symptoms of MS and would just love someone to talk to.
@angc1456
@angc1456 5 жыл бұрын
Stiched, what´s your symptoms?
@disneymummywithms
@disneymummywithms 5 жыл бұрын
Im always happy to talk. What are your symptoms? have you spoken with a professional like a doctor about it so far?
@diceydaze
@diceydaze 5 жыл бұрын
Sorry dear
@joseeasselin-fightingms582
@joseeasselin-fightingms582 5 жыл бұрын
same bladder problems..annoying
@disneymummywithms
@disneymummywithms 5 жыл бұрын
Its so frustrating, especially at a young age. I was in Magic Kingdom at Disneyworld and it happened to me. I was close to tears but then had to smile and keep going for my little girls x
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