MS DIAGNOSIS | NEWLY DIAGNOSED | MY STORY | 2017

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Rhian Gibson

Rhian Gibson

7 жыл бұрын

Hi Everyone
This was bit of a hard video to make but I wanted to let you all know what has happened. Ive been diagnosed with MS, I'm in my twenties and it is a bit of a shock but definitely not the worst case scenario. I go through how I feel, my symptoms and possible treatments.
If anyone has any questions for me then please leave them below, thank you in advance for your support because I know you'll all be so lovely.
Thank you
Rhian
xo
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Hi everyone,
I'm Rhian, I live in the North East of England with my partner Steve, our labrador Oscar and our beautiful daughter Siena. My channel is full of mummy related videos, I love making videos and documenting my life through KZbin. We would love to have another baby so if you're interested in joining me on my journey, make sure you subscribe :)
Thanks for watching :)
Rhian
xoxo

Пікірлер: 318
@rhiangibson1544
@rhiangibson1544 5 жыл бұрын
Hello Everybody, My latest video about MS and how I’m coping now is up on my channel 🙂 kzbin.info/www/bejne/eIeZqWqcjZyMmsk Thanks so much for all of the support on this video, it truly does mean a lot x
@BC-tz1ym
@BC-tz1ym 6 жыл бұрын
I've had MS for over 17 years and am still going strong!!! Keep going in the right direction!
@Username-mi9ho
@Username-mi9ho 5 жыл бұрын
Anything about your body not working ? Do you still feel the same personality wise? Like do you feel like MS has affected who you are at your core?
@lastcall170
@lastcall170 5 жыл бұрын
How...do you improve? Please share
@lastcall170
@lastcall170 5 жыл бұрын
I have benign fasciculation syndrome and have many of these symptoms.
@hadawi00
@hadawi00 5 жыл бұрын
This is the second year for me having MS and I am suffering!! Doctors don’t care and I’m not settle physically, ever one of the telling my to Live Naturally just like you used to live but seriously how can i!!! i hope i will be strong just like you guys, a lot of support for you guys
@hadawi00
@hadawi00 5 жыл бұрын
Settled** , them**, I**
@Vitabella43
@Vitabella43 5 жыл бұрын
I have MS and was diagnosed at 21. I am now 32 and doing amazing! I take Betaseron and it has been wonderful! I haven’t had a relapse since my first one over ten years ago! Hope all is well and you are feeling great ! I believe in that positive attitude ! We are MSWarriors !! ❤️❤️❤️
@anissyafiqah1532
@anissyafiqah1532 5 жыл бұрын
hey im 18 and i just diagnosed with MS 3 weeks ago and the doctor ask me what kind of treatment i want to take. Im a bit scared to try betaseron since we had to give injection to ourself. Does it hurt?
@sarahmillson1594
@sarahmillson1594 2 жыл бұрын
Anis Syafiqah hey! I just read your comment. I hope you picked the treatment that has been working well.. I was diagnosed age 19, used betaferon for 5 years and didn’t like it at all!! It’s not a good thing to do self injection.. luckily there are lots of tablets now.. I haven’t started taking it yet but I was recommended by my doctor to take Tecfidera
@taijuannajaye919
@taijuannajaye919 6 жыл бұрын
I also have MS. Stay strong 💪 💖 💪
@mymiracle79
@mymiracle79 5 жыл бұрын
TaijuannaJaye Hi I think I might have it. I'm have extremely painful electrical pain on my right side of face that send me to ER twice. My dentist touch stays and said there is no infection but she this it's the muscle in my face. I have an appointment to see a family physician.
@truno7
@truno7 Жыл бұрын
Howve you been doing?
@OnceinaLullaby
@OnceinaLullaby 7 жыл бұрын
You are amazingly strong! And it's absolutely amazing that you are raising awareness and talking about it so confidently, I think if anyone watching this is experiencing something similar, watching this video would be really reassuring! x
@melindameler1366
@melindameler1366 4 жыл бұрын
Stay STRONG and keep reminding yourself that you are NEVER alone and you are a WARRIOR. I was diagnosed as well in December 2018. Thank you for sharing your video...everything you were explaining hit home for me. Sending Love & Light to you ALWAYS...I will be keeping you in my thoughts and prayers, dear one. Blessings to you.
@LauraSommerville1
@LauraSommerville1 6 жыл бұрын
My husband has the RR MS too, he was diagnosed two years ago and has been on medication since with ‘touch wood’ no symptoms. It was really scary when we found out as I thought he was having a stroke as we rushed up to A&E who were also amazing. I think everyone thinks the worst when they hear of someone with MS but sometimes it’s not the case and there is such a broad spectrum on how it affects different people. Our neurologist said to carry on and live our life’s as normal and to keep positive. You’re a lovely person and so good of you to make this video too! 😘
@mr.makedonija2627
@mr.makedonija2627 Жыл бұрын
How is he doing?
@alanafinn3941
@alanafinn3941 6 жыл бұрын
Thanks so much for sharing 🙌🏼 honestly listening to other people speak about this is so helpful, don’t know what I’d do without this platform to hear other people speak about it, I have the exact same thing when I bend my neck down!! 😩 You’re doing so well girl, stay positive ✨✨✨
@lauraironstalksms
@lauraironstalksms 4 жыл бұрын
I have MS too and so many of your symptoms that you have experienced, I have also experienced too. You seem like such a positive person and that's half the battle. Wishing you all the best x
@daxmas625
@daxmas625 5 жыл бұрын
You are a beautiful young lady! I was diagnosed with MS in 2002. My first issue was a seizure when I was at work. I am now disabled retired. Wish you the every best!
@PinkysPiggies
@PinkysPiggies 7 жыл бұрын
Stay strong! Watched your videos from the beginning when I was pregnant with my 3rd bubba she's nearly 7months now. Love your vids and must of took a lot to make this video. Hope your ok take care xx
@heyitsok1770
@heyitsok1770 5 жыл бұрын
Thank you for sharing your story I would of never known anything about MS before. Really lovely to hear your story and amazing for you to share such personal things xxxx
@roseyhome
@roseyhome 7 жыл бұрын
Oh hunny! I'm so sorry to hear of your diagnosis. You really had to fight doctors for it too. You are very strong and I know you will handle this. Sending you so much love xxxx
@BabiesandBeauty
@BabiesandBeauty 7 жыл бұрын
Oh Rhian so glad to hear both you and baby are ok & it's great to hear how positive you're being. You are such a strong lady, sending lots of love xxx
@rhiangibson1544
@rhiangibson1544 7 жыл бұрын
BabiesandBeauty Thank you lovely, I'm okay honestly and it's not the worst case scenario so that's what I'm thinking about 😊❤ xx
@madelinevicioso7980
@madelinevicioso7980 7 жыл бұрын
I'm so sorry to hear this. 😢 you are a strong women and God willing with the help of the right doctors you will recover. Stay strong for baby girl and the new baby. I will have you in my thoughts. Sending positive energy your way. ❤
@rhiangibson1544
@rhiangibson1544 7 жыл бұрын
madeline vicioso Thank you, that means a lot. I'm alright at the moment so I'm hoping it stays that way until I start treatment, fingers crossed 😊 x
@veritytill7542
@veritytill7542 7 жыл бұрын
Stay strong lady. You're such an inspiration to us all on so many levels. Xx 😘🤗
@rhiangibson1544
@rhiangibson1544 7 жыл бұрын
Verity Till Thank you lovely, all of the support has been overwhelming, it really means a lot. You just have to be positive don't you?! 😊 x
@oliviahayes5371
@oliviahayes5371 5 жыл бұрын
Yout strength and your children will see you through Hun. Much love,hugs and best wishes Xx
@shirleyforrington388
@shirleyforrington388 7 жыл бұрын
Your positivity is inspiring! Good on you for looking at the brighter side ✊🏼 sending loves and best wishes xx
@ursularose1367
@ursularose1367 7 жыл бұрын
You're so strong Rhian! Sending love!! xxxx
@pt8436
@pt8436 5 жыл бұрын
Thank you so much for shearing. I’m currently with the symptoms of MS. Not had the MRI yet. It’s a very long wait. I might have to go private. Wished you all the best 🤗
@billmccurdy2350
@billmccurdy2350 3 жыл бұрын
Thank you for your story. I was diagnosed a week ago and watching others stories really helps understand.
@melissaivory50
@melissaivory50 5 жыл бұрын
Hey, I found your channel because I've been researching MS. My story sounds very similar to yours. I've had nerve issues since ive been 20 numb spots here and there, and pain in my bones in my legs since I've been a teenager. After I gave birth to my second daughter that kind of gave my pain and symtoms a kick start. I'm 26 now and my symtoms fit with MS. Unfortunately I haven't been diagnosed and I just get pushed away, put on meds and just told to deal with it. I have been referred to the chronic pain team at the RVI. So hopefully I can meet a doctor who will actually want to help me and believe me. I'm glad you got a diagnosis, not because I want you to have an illness of course, but because you know have closure and I can understand what feeling relief and fear at the same time.
@sabrinarose6642
@sabrinarose6642 3 жыл бұрын
Did you ever get a diagnosis? How are you?
@terencegayle6015
@terencegayle6015 7 жыл бұрын
hey, thanks very much your video. It's very brave of you to come out and talk about your experiences. Hope you and baby and child are all okay. Well done you. Up the north-east
@LANOH89
@LANOH89 5 жыл бұрын
I got diagnosed in august 2017 and today is the first day i have cried about it. Just don't feel like me anymore. I started driving form the first time in a year and a half today, can't feel my feet properly and i cant move my eyes fast enough to see what is going on around me, today was a real eye-opener.
@rachabeff3212
@rachabeff3212 4 жыл бұрын
I suspect I have ms and I csnt drive and won't and hardly have. I never knew y but I can't rly feel my feet sometimes. My eyes suck and the hurt sometimes. Driving tired my leg n foot. So many reasons I hate driving. The vehicles' lights hurt my eyes and the sun does too. I get dizzy and it's scary to drive. Oh and loud noises make me feel ill.
@aroosatahir974
@aroosatahir974 3 жыл бұрын
kya kiye tha ap apni bimari ka sth
@KirstenMongie
@KirstenMongie 3 жыл бұрын
After getting an MRI for some vision problems, my doctor suspects I might have MS, but wants to run more diagnostic tests. It's definitely nerve wracking, but reading these comments and watching your video gives me hope!
@SadisticNinja
@SadisticNinja 2 жыл бұрын
What happened?
@isabelhomeandfamily9155
@isabelhomeandfamily9155 7 жыл бұрын
This video will help so many people. I have learnt a lot from watching this , thank you for sharing it.
@Myfussyeater
@Myfussyeater 7 жыл бұрын
Sending you lots of love Rhian. This isn't something I've seen talked about a lot on you tube so I know this is going to help lots of people going through it too. Xx
@rhiangibson1544
@rhiangibson1544 7 жыл бұрын
My Fussy Eater (Ciara Attwell) Thank you Ciara, I will talk about it more in-depth in the future I just wanted to sit down and get my thoughts out really. I'm feeling good about everything though so onwards and upwards 😊 x
@tishm8973
@tishm8973 6 жыл бұрын
Just found your channel. I was diagnosed with Relapsing remitting ms in June this year. I have a 13 month old son. Will be watching your channel & catch up on your vlogs. Lots of love 💕
@reissrobinson
@reissrobinson 5 жыл бұрын
I'm truly touched by your story. Thank you for sharing your experience and God bless u. I came to your video after researching lumbar puncture suggested by docs following partner's head injury cos she has pressure on the brain. But you have educated me about MS. Thank youuu seriously you're an inspiration!
@feelgoodwithkim
@feelgoodwithkim 7 жыл бұрын
Thank you for sharing, it is probably a hard thing to share but you will be helping other people in the same situation by talking about it! and at least now you know what your dealing with. Your a beaut x
@rhiangibson1544
@rhiangibson1544 7 жыл бұрын
If the baby allows It felt very natural to share it, if I can help even just one person then that would be amazing. Thank you so much 😊❤ x
@pshar8674
@pshar8674 7 жыл бұрын
omgoodness, thanks for sharing. really good to raise awareness, you're great and looking forward to seeing no2 pregnancy journey.xx
@katarinahogh4045
@katarinahogh4045 3 жыл бұрын
Thank you for the video. Just been diagnosed and seeing you being so positive helps me a lot. Stay strong.
@heathersbonnybows715
@heathersbonnybows715 7 жыл бұрын
Oh Rhian thinking of you hunny!! You are defo a strong woman! Sending love & prayers hunny 🤗
@rhiangibson1544
@rhiangibson1544 7 жыл бұрын
Heathersbonnybows I'm alright honestly, thanks so much, I really appreciate it ❤
@JKandCharlie
@JKandCharlie 7 жыл бұрын
Honey you're so brave and positive. Good for you. Without making this about me - for about 4 years I've had numb patches on my legs and I get a recurring buzzing vibration in the top of my spine. My googling has led to MS but I've been too scared to see a GP. Perhaps I should. Thanks for raising awareness and sharing your story xxx
@rhiangibson1544
@rhiangibson1544 7 жыл бұрын
JK and Charlie Thank you. Please see someone, honestly, I was worried but if you know what is causing the symptoms you can deal with it better. It could be something completely unrelated and simple but it definitely needs checking, ask to be referred to a neurologist and ask for an MRI. I hope it turns out to be something simple for you. Thank you for the lovely words ❤ x
@KirstyWinnettes
@KirstyWinnettes 7 жыл бұрын
Wow, I love that you are staying so positive. You are stronger than I would be! I hope your relapse passes quickly x
@rhiangibson1544
@rhiangibson1544 7 жыл бұрын
Kirsty Winnettes It's the only way I can be, I just focus on the fact that there are people who struggle with awful things every day and I'm so incredibly lucky to have what I have. Thank you for the kind words and support 😊 xx
@katherynhauser2439
@katherynhauser2439 4 жыл бұрын
Thank you for sharing, I watched your second video first. My aunt has MS and I’m currently dealing with things that you have dealt with/ are dealing with.
@EmilyCharlotte
@EmilyCharlotte 7 жыл бұрын
its so brave of you to film this, like you say it may help somone or raise awareness x
@SammyBirdArt
@SammyBirdArt 7 жыл бұрын
Such a lot to deal with especially while pregnant 😢such an inspiration, you're very strong about it. 😊 Ive just moved to the north east, 4 hours from where I lived before! Looove all the accents up here! Xx
@Kateplus_x
@Kateplus_x 7 жыл бұрын
So much respect to you for sharing this Rhian and pleased you have answers now. Sending lots of love to you xx
@rhiangibson1544
@rhiangibson1544 7 жыл бұрын
Kate+ Thank you, yeah I'm so glad to have a reason for feeling the way I do, at least I know I'm not making it up which is how I've felt at times 😬 Thanks again, much appreciated ❤ x
@Staceyleighfromthesoul
@Staceyleighfromthesoul 7 жыл бұрын
Sorry to hear lovely, love how positive you are being. So glad the baby is ok xxx
@rhiangibson1544
@rhiangibson1544 7 жыл бұрын
Stacey Leigh Me too, that was my first thought and I'm so incredibly grateful for my babies 😊 thank you lovely xx
@BobbyGonz
@BobbyGonz 7 жыл бұрын
Incredible inspiration! Keep it up! I almost lost my ability to walk at 29. KZbin community is amazing!
@kendrom
@kendrom 6 жыл бұрын
Thank you for taking the time to make this video. Very informative.
@donnalewis7446
@donnalewis7446 5 жыл бұрын
Hi Rhian.thankyou for sharing your MS story. Hope you're well my love xx take care Donna xx
@SHANxLIFE
@SHANxLIFE 7 жыл бұрын
I was recently diagnosed too! I was 21 at the time (still 21! LOL). but we can do it! it gets hard, but I believe we can do it!
@SHANxLIFE
@SHANxLIFE 7 жыл бұрын
I'm also moving to the UK in September!:)
@buddyclark1232
@buddyclark1232 4 жыл бұрын
@@SHANxLIFE what if there was a cure, what would you pay to get this cure?
@SHANxLIFE
@SHANxLIFE 4 жыл бұрын
@King A - sorry I just saw your comment! My first symptom was that I noticed that I couldn't type or text properly with my left hand. Dr. said it was carpal tunnel. then it went away. few months later, my right hand wasn't working. then shortly after 3 weeks of vertigo attacks. I hit my head on a cement wall and the emergency rushed me to get a head CT and then they saw artifact in my brain. and they did an MRI and confirmed it was MS.
@SHANxLIFE
@SHANxLIFE 4 жыл бұрын
@@buddyclark1232 to be completely honest. I would pay all that I had for a cure. I live a relatively normal life, but there are some days where MS hinders me. Right now, my worries with my MS is getting approved for life insurance. If I didn't have MS, I would have been approved by now.
@140Lumdee
@140Lumdee 7 жыл бұрын
You are freaking amazing. You are just so matter of fact. It must suck in many ways but I'd be the same, not a brain tumour! Science moves so quickly I really hope there is a new breakthrough soon and it can help when you relapse. You don't seem attention grabbing or dramatic but it saddens me that you feel the need to state that. But equally I totally get why you said it. We have to when vlogging. And in a random note that has nothing to do with anything... I want your hair! It's bloody lovely.
@amandaschmidt4703
@amandaschmidt4703 4 жыл бұрын
Lisa Lum j
@SleeplessinOC
@SleeplessinOC 7 жыл бұрын
I want to preface this by saying I have not watched your video but only read what you wrote- I already know I might end up in tears if o watched. Anyways, I am so sorry for what you have to go through . I'm such a wimp because pretty healthy still and yet I can barely function emotionally right now due to long term under employment and constantly being poor even when I had s full time job because I simply never made enough. And I'm intensely lonely from still being single at my older age. Still, I know my problems are nothing compared to your new diagnosis and my heart goes out to you. Thanks for sharing your story . If you wouldn't be offended, I'd like to suggest you to take a look at Dr. Terry Wahl's videos if you haven't already come across her videos. She too has MS and she shares how her diet has made a huge difference. Thank you.
@AdventuresOfAbigail
@AdventuresOfAbigail 7 жыл бұрын
You're doing so amazingly well to get your head around all this whilst being pregnant. So much respect for you. Hope your relapse clears soon. Xx
@anaramirez8234
@anaramirez8234 6 жыл бұрын
Thank you for your video. At this time I am waiting for my neurology appointment, which is in about a month from now. I am having a lot of the “ms” simtoms for the las 2 years and it scares me a lot. But I also know that there’s many treatments that will help me if it is the case. I have two kid and the idea of thinking that they can have this MS disease in the future, because of me, it hurts a lot.
@suhromania
@suhromania 7 жыл бұрын
I've got MS too. I'm 24 and I found out I had MS when I was 19. It was a shock obviously. I decided not to take the medication because it was making me feel really sick. I never had another crisis since 2011. I decided not to think a lot about MS and I've been really well. Sure there's some pain here and there but it's fine :) I've been watching your videos because I want to have a baby soon and I ended up loving your channel!
@andreifelea7205
@andreifelea7205 6 жыл бұрын
Suh Майами how are you now ? ..
@janejane6900
@janejane6900 5 жыл бұрын
Plis don't ignore it.. N pliss do ur treatment.. My mom is also hvng MS aftr diagnosing for 4yrs she got bettr n didn't go for check up n ignore hr medication now hr symptoms ia gettng worst den b4.. Now she's not able to gy a treatment lyk b4 s its affecting hr eyes.. If she continue taking iv injection den she wud go blind.. Her eyes pressure is gttng highr bcos pf hr medicine.. Plis don't ignore it
@alejandrovargas6510
@alejandrovargas6510 5 жыл бұрын
jane g thanks I have ms since 17 and did kinda the same but am struggling with work and life
@janejane6900
@janejane6900 5 жыл бұрын
@@alejandrovargas6510 don't give up.. I knw u figure it out sumthing.. Be strong n take care of yourself.. Evn if u r to busy, plis make time to take care of ur self bcos ur health is more important than anything else.. I'll also pray for ur health.. God bless U😘💕❤️
@alejandrovargas6510
@alejandrovargas6510 5 жыл бұрын
jane g thank you I really needed that
@dogpiss99
@dogpiss99 6 жыл бұрын
I go on Monday to find out if I have MS. I did the MRI of my lower back & for 7 years we’ve been going in a completely different direction so when the neurosurgeon looked at my last MRI of my lower back he immediately said I think you have MS. He did all the balance reflex tests you did & ordered a brain/neck & upper spine MRI. I find out the results Monday. I’m ok with it. I want answers after so many years of pain & problems. I just want answers so I can start treatment. Whatever that is.
@buddyclark1232
@buddyclark1232 4 жыл бұрын
If there was a cure for this in another country what would you pay for treatment???
@litiaraicebe325
@litiaraicebe325 3 жыл бұрын
Thanks Rhian for sharing your experience. Very encouraging indeed.
@Fermerswife
@Fermerswife 7 жыл бұрын
I'm to hear about your diagnosis but it's good to have an explanation for the worrying symptoms you were having. Thanks for sharing xx
@rhiangibson1544
@rhiangibson1544 7 жыл бұрын
Fermerswife Yes definitely, I'm relieved and now at least I have a plan in place. Thank you so much 😊 x
@staceyfrost7427
@staceyfrost7427 7 жыл бұрын
So sorry to hear this. Glad your ok. Glad the baby is ok. You are so strong xx
@rhiangibson1544
@rhiangibson1544 7 жыл бұрын
stac rae I'm feeling good about it all, it's a bit of a relief that it isn't something more serious to be honest. Thanks so much for the lovely words and support, I really do appreciate it ❤ x
@ashleybailie8867
@ashleybailie8867 7 жыл бұрын
Sending lots of love Rhian, glad you got your diagnosis, your a strong girl xx
@rhiangibson1544
@rhiangibson1544 7 жыл бұрын
ashley bailie Thanks Ashley! Hope you're well! That explains why I have been feeling so crappy for so long and my heels were hurting so badly in London! 😬😊 x
@jbrown8615
@jbrown8615 7 жыл бұрын
just subscribed to you as 26 weeks pregnant and need as much help as possible! Sorry to hear this news you seem very strong and positive though but it must be hard best of luck to you and your family love your channel! x
@rhiangibson1544
@rhiangibson1544 7 жыл бұрын
J Brown Thank you so much, that means a lot. Wow, congratulations! It's such an exciting time isn't it, I'm just starting to feel 'pregnant' now, getting a bit of a bump etc. I hope you're feeling well! Xx
@jbrown8615
@jbrown8615 7 жыл бұрын
Pop Rocks Mama first bit was sick all the time but now feeling much healthier it is an exciting time! xx
@missdoglover1644
@missdoglover1644 5 жыл бұрын
Thank you for this video. I was fobbed off by my GP after having numbness and tingling in my hands and feet for 2 years. It spread into my legs and I went to a private GP who said I should see a neurologist immediately. After an MRI I got the MS diagnosis and was put on treatment. GPS are great a lot of the time but they are not specialists. If you are worried tell them you want an immediate referral.
@SuperLeahhh
@SuperLeahhh 6 жыл бұрын
I’d just like to say this video is great! I’ve just been diagnosed a few days ago. Symptoms match everything you’ve described. Gives me hope that you’re being so positive can not wait until I’m feeling more accepting of it all 💗
@Tristan-fh5ui
@Tristan-fh5ui 4 жыл бұрын
How has it been?? I just got mri done last week
@sylvia7777
@sylvia7777 5 жыл бұрын
This is what I've been dealing with. I'm soon to be 25, I was scheduled to have an mri but never got an appointment. Been a and e and told its nothing. Had ultrasound and x rays to be told it's nothing. Glad that you got a result finally. A lot of what your saying relates but im not making any assumptions on myself, I just hope I get a result soon
@kylie5869
@kylie5869 5 жыл бұрын
I’ve had ms for 22 years now....Thank u for ur channel xx
@nahidehsan8579
@nahidehsan8579 4 жыл бұрын
Can u walk properly
@AwesomeHayden
@AwesomeHayden 6 жыл бұрын
Thank you so much for this video. My husband has an appt tomorrow with his neurologist. He believes this may be what he is suffering from. Your video was very helpful. God bless
@janicerees3502
@janicerees3502 6 жыл бұрын
Wishing you all the best lovely girl . Love and hugs from Wales x x x
@argojessica
@argojessica 6 жыл бұрын
I too have the visual issues that you described. The best way that I could describe is that it looks as half of a dingy window on the front of a car windshield. Thank you for your video. I was diagnosed in 2012. Then, in 2013, upon a second opinion, diagnosis was changed to Neurosarcoidosis (NS). Because NS is rare, I decided, after 5 years, to go and have another opinion. It just came back as "classic MS" last week. Such a long and frustrating process.
@briarrosette1664
@briarrosette1664 4 жыл бұрын
Your story is SO similar to what I'm going through. Even down to the Shingles episode kind of setting things off. I had shingles back in 2017. However, this whole Summer I've been getting worse and worse with the various body parts tingling, pain, and going numb, the eye film, etc. I'm currently playing the waiting game for getting testing done. I'm having a brain and neck MRI on September 20th, and I have a Neurologist appointment scheduled for October 22nd. My doctor mentioned my reflexes being heightened as well. I'm hoping if I end up having MS, it will be the relapsing remitting kind, because I've had spells on and off like this for years, but only this summer has it gotten severe enough for me to be worried. But yeah, the diagnosis waiting is the hardest part.
@maguifreitas
@maguifreitas 6 ай бұрын
Are you okay?
@georgekafantaris7807
@georgekafantaris7807 3 жыл бұрын
WELCOME TO OUR MS GROUP...ITS GOOD TO HAVE NEW MEMBERS,,
@hectorchavez1589
@hectorchavez1589 6 жыл бұрын
Thank you for the video! Brave soul!
@Joiful
@Joiful 7 жыл бұрын
You are so brave for doing this video and sharing your story! Thank you! I love your personality and how you deal with this so positively although it must be such a shock! But I can see how it must be a relief to have a diagnosis after all theses years as well! Sending lots of love from New Zealand! You are one strong Mumma!! ❤❤❤
@emilybarrett464
@emilybarrett464 6 жыл бұрын
Hope all is going okay for you, i got diagnosed when i was 22 so im with you girl. Stay 💪🏻 and yeah i get that tingly feeling when I put my head down... its called Lhermittes sign, so annoying! Appaz its an ms thing :/ Best wishes xx
@karalee4701
@karalee4701 5 жыл бұрын
I was diagnosed with MS this year at 24. My MRI showed ten lesions on my brain so I've had it for a while. I have been having a tough time dealing with it, so I am going to see a counselor ❤
@Julescoming
@Julescoming 5 жыл бұрын
What symptoms did you have?
@lisadixon8983
@lisadixon8983 7 жыл бұрын
Sending lots of love. Stay strong Mama ❤️
@rhiangibson1544
@rhiangibson1544 7 жыл бұрын
Lisa Dixon Thank you, Lisa 😊 x
@jennymarty7376
@jennymarty7376 6 жыл бұрын
Youre so strong!! ♡
@babyface6418
@babyface6418 7 жыл бұрын
I also have MS. I was diagnosed in June of 2016. I found out because I had numb toes and it went up to my knees and well I couldn't walk up the stairs and I had to physically pick up my legs when I got into bed. Btw I'm 15 so my parents took me to the ER and I was sent out to the children's hospital and I had an MRI done and I was diagnosed. I was put on steroids. I had to do about 4 months of various types of therapies. I was placed on a medication but sadly it's not doing what it's supposed to so I have to switch medicine. Now I'm back on the softball field and I'm glad. Thank god it wasn't anything worse. I wish you luck in your MS battle.
@Willowsilvermoon
@Willowsilvermoon 7 жыл бұрын
I'm a 52-year-old female. I've had symptoms off and on for years with every doctor either telling me I'm crazy, it's all in my mind...or...they can't help me. I've been with my current PCP for about 15 years now. Long story short, she has been telling me to see a neurologist for years and I never followed through because I thought a neuro would just tell me it's neuropathy, give me more gabapentin, and send me off. Well, this time after experiencing more and more balance issues, cognitive problems, and vision problems with my left eye, which I've complained about for years, etc., I followed through.....ALLLLLL the way through with EEG, EMG (upper and lower body), VER, BAER, MRI, memory tests and blood work. Long story short, a diagnosis of Relapsing Remitting Multiple Sclerosis. I am now on Copaxone injectable 3 time a week. We are MS Warriors. We can make it through this! Best to you!
@DearDana
@DearDana 5 жыл бұрын
Similar story .. Would love to connect... Just starting meds
@Finds_WorthKeeping
@Finds_WorthKeeping 5 жыл бұрын
With your vision, did you have tracking issues?
@lauraemma4402
@lauraemma4402 7 жыл бұрын
Oh lovely I'm thinking of you hope you have lots of support around you xx
@rhiangibson1544
@rhiangibson1544 7 жыл бұрын
Laura emie I do, thank you 😊 X
@sanambaheerreshad
@sanambaheerreshad 7 жыл бұрын
Wishing you well and lots of love 🌷🌷
@mygreatcomeback248
@mygreatcomeback248 5 жыл бұрын
It’s crazy how similar all of our diagnoses stories are!
@sylviaw4712
@sylviaw4712 6 жыл бұрын
Diagnosed yesterday feeling optimistic I guess what can you do
@lyndsaysrebornnurseryoffib4241
@lyndsaysrebornnurseryoffib4241 7 жыл бұрын
Thank u for sharing your story my friend mom has MS too!! Sending Prayers!! Just Subscribed!!
@AMundaneLife
@AMundaneLife 7 жыл бұрын
Sometimes it makes you feel better just having a diagnosis. I found that when I was finally diagnosed with Epilepsy. At least then you know what you can do from there, and there is an actual reason for the way you are feeling. You have to take every day as it comes as some days are better than others when it comes to chronic illness. Some days you will feel great, and other days you will just want to hide away and feel awful and that is okay. If you ever need anyone to chat to feel free to contact me.
@rhiangibson1544
@rhiangibson1544 7 жыл бұрын
A Mundane Life That's exactly how I'm feeling, it's such a relief to have a diagnosis after all these years. I'm so sorry you are living with Epilepsy, that must be tough. Thank you so much for the offer to chat, I'll remember that 😊❤ x
@uncommonpurestbeauty
@uncommonpurestbeauty 3 жыл бұрын
I'm 27 and just had my MRIs today, thank you for your video and bravery
@chinwendutony3326
@chinwendutony3326 3 жыл бұрын
Hey how are you today?
@emmabentley7945
@emmabentley7945 4 жыл бұрын
Watching this, as been wondering about talking to my Doctor about some sensations i have been having, My Legs I get slight numbness and the feeling of insects on my legs, and feeling like a spider is on my leg/feet, not sure what it could be... i have 2 friends with MS, Take care Rhian xx thanks for the info xx
@Lorena_Panda
@Lorena_Panda 6 жыл бұрын
I have MS I'm currently 16 and I found out that I had MS at 14 this helped me knowing that I'm not the only one
@consciousmind450
@consciousmind450 5 жыл бұрын
Lorena Andres u r soo young sweety But don't worry u will be fine Just be strong and optimistic and don't think about it a lot and enjoy life Try to be healthy as much as you can and avoid diary foods , play sports and specially swimming Don't exhaust yourself though and don't stress yourself Try to check Whals protocol Wish you a happy life sweety Hope you can tell us what symptoms did you have first and how r you feeling now Be strong ♡
@abbyclark7157
@abbyclark7157 5 жыл бұрын
How are you doing today panda?
@MeganMarie1
@MeganMarie1 5 жыл бұрын
I know this video is old, but I just came across it. Your story is incredibly similar to mine! I’m not officially diagnosed yet, but I have an MRI Friday.
@madhu927
@madhu927 4 жыл бұрын
Mam how r u now
@helendancer1930
@helendancer1930 5 жыл бұрын
My pal told me to check out the symptoms for ms... Your the first person to discribe the guitar string thing... Like a really quick ping but the feeling of like strumming the string on the guitar. It's so mad IV never been able to discribe that feeling. And my GP looked at me like I was crazy.... I have has spinal problems since my early 20s. And after my two babies it got considerably worse. I have degenerative disks L1 L2 . Siatica in both legs constantly. Also I get the hand and foot tingle's abit like how your hands feel going from cold outside to warm inside. I was diagnosed with fibromyalgia at age 30. Chronic fatigue is so real too .. I really feel your pain hunnie. I used to get little patches on my thigh's that were completely numb. And never knew why. Cos it was a little patch I never bothered with the gp. Today I woke up with a dead hand.. that has stayed numb all day. It's only half the hand tho so Google said trapped nerve. I just don't know.... Also have ibs ect. If I was a horse they would shoot me. Lol big loving warm hugs hun. And good luck with baby number two ❤️👌🙌
@sharklette5558
@sharklette5558 3 жыл бұрын
Love your hair and makeup Thx for sharing your story
@unsolvedcasesandnews
@unsolvedcasesandnews 6 жыл бұрын
Just started to follow your channel Thankyou for explaining the symptoms you have and your video
@lady_wasser
@lady_wasser 5 жыл бұрын
I have 22 demyelination spots on my brain, I’ve been to 3 neurologists in Houston where I live and technically should be the best place in the US if you’re sick....... 5 years ago I was diagnosed with fibromyalgia because I have this pain all over my body, pins and needles and numbness. I’ve had so many tests done, I do have all these symptoms and don’t know where else to go or what else to do. I’ve been in bed for the past week, so dizzy even my jaw is hurting. I’m glad you’re ok and was able to get diagnosed and treated if you have to. God bless you and your family. This felling of my back being electrocuted, I swear I can even hear it sometimes😩
@StorieDevereaux
@StorieDevereaux 5 жыл бұрын
God bless you! Thank you for transparency!
@harleyhynes2067
@harleyhynes2067 6 жыл бұрын
Thank you for sharing your story x
@ruffoloreads
@ruffoloreads 7 жыл бұрын
I'm so glad to hear you're currently ok! Will this get worse for you?? It's nice to hear kind of tingling is the only symptoms you've had? I know my grandmothers doctors have thought she might have this because of her pains in her back and sometimes difficulty walking. Hope everything gets better ❤️❤️
@rhiangibson1544
@rhiangibson1544 7 жыл бұрын
kelsi ruffolo I do have other symptoms, pain in my lower back, difficulty walking occasionally, balance problems etc, but overall I'm doing well. I'm not sure if it will get worse, it's a waiting game really to see if treatment works or not, I've heard lots of positive stories though so I'm hopeful 😊 Oh your poor Grandmother, that must be very difficult for her. Sending love, thank you for the kind words x
@chinwendutony3326
@chinwendutony3326 3 жыл бұрын
Rhian please when you say lower back do you mean your lower spine?
@arabslavegirl
@arabslavegirl 5 жыл бұрын
Im waiting for a diagnosis now. Brain tumor etc ruled out. Eye specialist floating the idea it could be ms..blind in one eye sort of...and your symptoms are very like mine. Bit overwhelmed. Thanks for sharing.
@barbaramoore8408
@barbaramoore8408 6 жыл бұрын
Thank you for sharing. I was diagnosed today with MS. I am just trying to find some answers about how people live their lives with MS. I wasn't told yet if mine is progressive or remissive?
@IsmailKhan88
@IsmailKhan88 7 жыл бұрын
Hey,I hope you are doing great now. your video has been very helpful. i just wanted to ask one question regarding the MRI.The MRI the you had was with dye or without dye. i am going through same symptoms so wanted to know. my prayers with you
@Alltheworld-blog
@Alltheworld-blog 7 жыл бұрын
SENDING LOVE & POSITIVE VIBES YOUR WAY!! XXX
@rhiangibson1544
@rhiangibson1544 7 жыл бұрын
Jessica AllTheWorldVlogs Thank you Jessica xx
@sammielawson7912
@sammielawson7912 6 жыл бұрын
I'm a 73 year old female and very active. I have a bad case of restless leg. I am on medication for RLS but sometimes I am awake all night. I have insomnia, tired all the time, I think I have verve problems because my right hand base of thumb will burn and hurt so bad it will wake me up. I see black spots so bad that I will look to see what they are. I have tingling in different places and it feels like I have a bug like a flea or small bug nibbling . My balance and clumsiness is terrible. The only numbness is on one side of my neck. I use to have a problem with one leg going completely numb and felt cool but that has passed. Did you have any of these signs? Your video makes me want to go to a Neurologist. You are very brave.
@bepositivealwayssmile6518
@bepositivealwayssmile6518 5 жыл бұрын
I recently discovered ur channel and this was the first video that i watched ... well i'm 20 years old and i was diagnosed with MS this year before one day of my 20's b-day ... is it going worst if my hands are shaking after carrying something heavy ? It's been a while that this is happening ... any answers or advices ?
@maureenfletcher1320
@maureenfletcher1320 5 жыл бұрын
Have you watched Andy Bailey m.s diary? He's so encouraging. Thanks for sharing your story.
@michellewatson9367
@michellewatson9367 7 жыл бұрын
Sending lots of love and at least you know what's wrong and now you can be treated. I'm glad it's not progressive MS. Xxxx
@rhiangibson1544
@rhiangibson1544 7 жыл бұрын
Michelle Watson Me too, that would be much worse and I know people who are very young with that type of MS and it must be so hard. Thank you, that really does mean a lot xx
@Marilynlaverne357
@Marilynlaverne357 5 жыл бұрын
I was diagnosed with MS almost 7 years ago. Stay strong!!! I’ll be sharing my story soon on my channel.
@biljanasokoleski8603
@biljanasokoleski8603 5 жыл бұрын
Do you takes medication for ms and if you take how you handled for this 7 years thanks
@Marilynlaverne357
@Marilynlaverne357 5 жыл бұрын
biljana lozanovska Hello. I started out with taking copaxone, went to getting the tysabri infusion and now plegridy shot every 14 days. I’ve changed my diet and that has helped me tremendously.
@biljanasokoleski8603
@biljanasokoleski8603 5 жыл бұрын
What diet you take my darling how can l find the good one on internet of l ask my doctor, thanks for your advice my darling all blessed as with Ms
@Marilynlaverne357
@Marilynlaverne357 5 жыл бұрын
biljana lozanovska I researched foods that were better for my blood type and started incorporating that into my daily meals. I refrain from dairy products and wheat. Research diet for blood types. Im O positive.
@biljanasokoleski8603
@biljanasokoleski8603 5 жыл бұрын
Thanks my darling l will find and for me thanks a lot many people said that diet is helpful for this illness God bless you 😘
@Ana77770
@Ana77770 7 жыл бұрын
Keep praying! God can heal!
@rhiangibson1544
@rhiangibson1544 7 жыл бұрын
Anupa De Gazon Thank you Anupa ❤
@TheAlfakitty
@TheAlfakitty 5 жыл бұрын
How were you diagnosed? Was your bloodwork positive for myelin antibody? Just curious because I just learned In have that and see Neuro soon.
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