Thank you for sharing your journey. You (and Selma Blair) have given me the courage to share mine as well. The more I learn, the more I realize MS has been a major part of my life for an extremely long time. But we are warriors! We will adapt and continue to live life to the best of our ability.
@LifeofSebMS3 жыл бұрын
Thank you for your comment! And indeed, I want to show the world that our lives still carry on however difficult we may have it!
@dianeamaral81517 ай бұрын
Yes I have had Ms for almost twenty years now
@jaysee44475 ай бұрын
@@dianeamaral8151are you mobile? I'm not diagnosed with anything. I just have crazy tingling that doesn't go away.
@shrutijoshi5533 жыл бұрын
As a psychologist, I understand all of your pain.., the depth of disease. I pray to God to give courage & strength to all of them who are suffering. You are strong enough dear people.
@laurieberry1623 жыл бұрын
Shruti, you don’t understand unless you have multiple sclerosis. I think you want attention. You aren’t powerful and special.
@reeqonmedia3 жыл бұрын
Saying "I understand" is really unprofessional for a psychologist. Word it better, "I can only imagine" since you don't have MS yourself. I wouldn't want to sit with a psychologist with that type of mentality or reckless wording.
@j.l.starling89342 жыл бұрын
I'm glad the two previous replies see through the bullshit of your comment. You can be familiar with the pain, perhaps through observing/working with other clients, but you cannot truly understand individual pain from their point of view. Seriously, wtf were you thinking by flexing you were a psychologist. "I understand all of your pain". Wtf??
@austinbandy58182 жыл бұрын
A psychologist who chats wishes to an invisible sky fairy who gives cancer to kids is not someone who'd I'd let anywhere neat my ailment lol
@DancingTehani Жыл бұрын
100% @krux I agree. As a person who suffers from these symptoms AND goes to therapy with a real professional, her words that she “understands” deeply is insulting to me, given she has no experiential lived reality. Thank you for speaking the truth. It is unhealthy when people misrepresent themselves this way - it makes creating safe spaces for others even more difficult
@melymichu67314 жыл бұрын
I didn't know the exact symptoms of MS till I saw Selma Blair talking about them. I am a huge fan of hers and seeing her go through such a debilitating disease and fighting it, just impacted me hugely. My heart goes to everyone suffering from this disease. I admire also all the people coming out and posting these videos and sharing their stories to create awareness and more understanding on this. I hope one day there will be a cure. Blessings to all
@reynasanchez6745 жыл бұрын
My mom was diagnosed when I was in the 6th grade.. I’m 32 yrs old now and still blessed to have my mom in our lives. I do not wish this on my worst enemy, hate this disease
@jamesemerson41024 жыл бұрын
MS does not cause death... your mum will be fine. We need to stop this Stigma of MS being this horrible deadly disease. It is not. The treatments available now are amazing.
@MeikeBC3 жыл бұрын
I got diagnosed with a ridiculous amound of lesions yesterday because of the exact same reason; double vision and loss of speech and walking. it is very nice to listen to other people right now to get through the initial shock. In the hospital now. I very much hope you are doing good and well. thank you for uploading this video.
@LifeofSebMS3 жыл бұрын
Omg stay strong sister!! 💪🏻🧡
@KetchupSamurai Жыл бұрын
Hope you're well. I've had MS for 22 years now. How are you coping 1 year later?
@adamslilith-art Жыл бұрын
how are you doing now if I may ask?? I was diagnosed almost 6 months ago...
@anubala6421 Жыл бұрын
@@adamslilith-art do you have some symptoms?
@adamslilith-art Жыл бұрын
@@anubala6421 of course I do... how would I have been diagnosed if I didn't have symptoms?😅
@mandypdx5 жыл бұрын
My mom had MS!! The most beautiful human in the world...she has past but will forever be my hero 💜💜💜
@mellydodge5 жыл бұрын
I too have MS. After years of various symptoms I was finally diagnosed in 1998. I don't have any medication but have a vit b12 injection every 3 months. I have a positive attitude, even when I am having a bad time. It's holistic and I will not let it rule me....well, not my mind anyway. Good luck to you my man.....🙂
@rosesandthorns19594 жыл бұрын
What r your symptoms do your skin burns
@Heavenangel22904 жыл бұрын
Hi, I was recently diagnosed with secondary progressive ms and I am not sure about medications. Did you follow any specific diet? Are you still without any medications now? Thank you.
@maureenlawler57653 жыл бұрын
My mum had ms for about 25 years had the b12 injections every 3 months went into nursing home January 2020 because all mobility had gone but happy in there she was getting the best care for her.then COVID took her on 1st November 2020 she was only diagnosed with Covid on the 24th of October so quickly.but my point is some people can live a long time after being diagnosed with ms 💕
@cindy79923 жыл бұрын
Hi, I was recently diagnosed with MS and I did some research on alot of things , and when I did my research on the list of medications I could try , I am very nervous to start on a medication because of some of the harsh side effects, and when my blood tests came back everything was fine except my vitamin D3 was very low and I also had gotten covid 19 which sparked a trigger in my immune system, and then I did some more research and it saids that having low vitamin D3 can trigger an Ms attack and getting a unknown virus can trigger an Ms attack and stress can be a trigger and eating unhealthy can trigger for an Ms attack , so I decided that for a year im going to eat really healthy and get as much sunlight and eat alot of rich foods in vitamin D3 and exercise because exercise is really good for the body to avoid an Ms attack and naturally you body wants to heal itself but if you have alot of toxins and other issues your body has to fight off first then the body cant heal what you want it to heal, and in that year if doing my very best of staying healthy doesn't work and in my MRI tests shows that I developed more lesions then I will consider taking an medication, alot of those medications have liver side effects and possibly brain infection side effects that can cause death and I seen alot of things that saids that the medications could be used for chemo for cancer which is very strong to take and the medications make your immune system very weak which can be scary and some of the medications that you can take can make your Ms worse if you got off of it so that's another concern and the doctors want to say that you'll be fine but my doctor wanted me to do a medication that can cause an brain infection and he didn't tell me that side effect the pharmacy had told me about it so I would say make sure you do your research as well , and the doctors want to say that they don't know what causes Ms but I have a very strong feeling that it's from not being healthy , having alot of inflammation in your body can cause Ms triggers and can cause other diseases as well , alot of the process foods that people eat have alot of chemicals in the food that your liver and body have to detox from it and if you eat constant process food your liver and body can go on overload and act out of wack , your hormones act out of wack and your immune system will act out of wack as well, vitamin D3 is probably the most important vitamin to have and make sure it's not low ever , I understand that I could put myself in risk for a year by doing the holistic porch but I would like to at least try that way first and if I know that I tryed my very best to be healthy and if it still doesn't work then I guess I will try a medication.
@LifeofSebMS3 жыл бұрын
Take the medication as early as possible. Healthy eating won’t stop the progression. Hope you make the right choice 🙏🏻🧡
@KatiiieCakes8 жыл бұрын
Wow 20 lesions, you poor guy! I'm recently diagnosed but only had 3. My attack/relapse was very different from yours. Tingling from the neck down then paralyzed on the right side for just over a week. I see a lot of people arguing in the comments. This disease is individual for every single person. It is not a competition. If anything we need to ban together. Thank you for sharing, it helps hearing peoples stories.
@sleekcartim7 жыл бұрын
yes def gotta stick together! My first doc said he thought only young girls got MS, i said NEXT! I only had 3 lesions also, my neuro said i cant have MS cuz i only had 3 LOL. I said i know MS confirmed ppl with NO lesions. I try not to get jaded but damn ive had my share of bad docs... After 7 MRIs, 2 LPs I STILL havnt got an official DX, after years of living with it there isnt anything else it could be....recently ive heard very interesting things like ambien (the sleeping pill) for dramatic improvements in brain injury, stroke patients etc...i wonder if MS ppl can benefit?! another one is QUALITY coconut oil for cog fog & fatigue, i like it. I take 1 tablespoon a day with food or in hot drink, some ppl say the saturated fat isnt good but why not cut down on other fat (like crisco, lard, butter) when cooking, use better for you coconut oil instead.... 5K to 10K a day Vit D (infused WITH Vit K) with biggest meal of the day, make sure you eat calcium rich foods daily as it helps Vit D absorb. these are just a few things to get you curious to research for yourself
@eilrahc1017 жыл бұрын
Sleekcartim .sleekcartim
@sleekcartim7 жыл бұрын
?????
@danashyaaa7 жыл бұрын
If you don't mind me asking, were completely paralysed on your left side for a week?
@sleekcartim7 жыл бұрын
Daniel im assuming your asking me that question... No i wasnt paralyzed on my whole left side. I had left head / face numbness tingly, my left foot is very numb & sensitive to stimulus. I have various degrees of numbness in about 40% of my body btw. time to take coconut oil i feel fatigue coming on... lol
@S1996-j3w6 жыл бұрын
Hello everyone best of luck fighting against ms I got diagnosed when I was 19 I had complete paralyzes on the left side of my body I couldn't speak either and I had optic neurits all in one attack I'm 22 now starting treatment soon relapses have been on and off affecting walking speech and vision . However I'M currently studying two degrees and working part time , we are all in this together and I believe that by sharing our stories we are encouraging each other to keep going . Healthy diets everyone without saturated fats and excerise . Keep positive 😉
@Taii257 жыл бұрын
I also have MS. Stay strong 💪
@BMax-no9mg7 жыл бұрын
TaijuannaJaye I am also a KZbinr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
@maamenyarko146 жыл бұрын
How are you feeling taijuanna? You're on any medication?
@bigboyhova6 жыл бұрын
Hi taijuanna hope you are well and doing better?
@shaydarnell3565 жыл бұрын
i do to
@TB-uf6tb5 жыл бұрын
@@BMax-no9mg 😍
@Iambrittanyisis5 жыл бұрын
Wow, your bravery gives me chills. I’m still learning to accept MS and the way it will affect my life, and yet, I persist on living my best life! I hope you will too!
@shonai50134 жыл бұрын
I will help cure multiple sclerosis! megalayner100@gmail.com
@remikkamaxwell2 жыл бұрын
I haven’t been diagnosed yet but I’m waiting to get answers from my neurologist. I plan on doing the same
@missymogfossy75044 жыл бұрын
Hope you're doing well now. I've had MS for over 25 years, no disease modifying drugs in the past ten years. Stay strong and keep a positive mental attitude. x
@BevRother3 жыл бұрын
Hi, what made you stop taking the medication? I was diagnosed 6 years ago but think I've had MS for longer. I refused all treatment, I'm just a very holistic person, I prefer a good diet and yoga. What have you found helps?
@27TaLisa2 жыл бұрын
Great
@Skybluewindcool2 жыл бұрын
@@27TaLisa What are the symptomps of MS ?
@anubala6421 Жыл бұрын
@@BevRother do you have some disability without any medication or treatment? Please reply
@BevRother Жыл бұрын
@Anu bala hi, my balance is off but I'm working on it with tai chi, my legs get tired when walking uphill, I have a neurogenic bladder but seem to manage 90% of the time.
@MsMOLLYKINS8 жыл бұрын
Hey sweetheart, I am 46 and have lived with lupus all my life . I now have ms because lupus attacked my Milan sheath . It's hard some days and I struggle walking these days and my eye sight is very poor . Never give up hope and faith because that is what gets us through the hard days. Stay strong and keep blogging I am listening xoxoxo molly from Sydney Australia
@najibcasa27457 жыл бұрын
Kudos for the video content! Sorry for chiming in, I would appreciate your initial thoughts. Have you heard the talk about - Liyaraah Sclerosis Redemption (should be on google have a look)? It is an awesome one off product for overcoming the symptoms of multiple sclerosis minus the normal expense. Ive heard some pretty good things about it and my best friend Jordan after a lifetime of fighting got astronomical success with it.
@wijnruit6 жыл бұрын
I hope you get better..
@mooood46496 жыл бұрын
Hi molly I'm percocet from US
@sharonsteele38175 жыл бұрын
Molly Mayor I have the same thing
@PokemonTenLV5 жыл бұрын
look up Dr terry wahls
@Naveen.Jayananjachar4 жыл бұрын
My Daughter got diagnosed with MS today, She had double vision. Continuous hiccups, pain in legs. We r treating her. Thnx for sharing your story. Stay Strong. Miracles happen you will be fine in one day.
@LifeofSebMS Жыл бұрын
So sorry about your daughter! Hope you two are staying strong 💪🏻🧡
@hebneh4 жыл бұрын
This is the 2nd spinal tap scare story I've encountered in these videos. I had one when I was 6, and it was nothing. That was 60 years ago. Now, I can be grateful.
@LifeofSebMS Жыл бұрын
🙏🏻🧡
@mcw98535 жыл бұрын
I'm here watching this video after falling in love with someone living with MS.... Thanks for sharing 😘
@metaspencer8 жыл бұрын
hey, I just wanted to let you know that, after watching your "my MS story video," I finally got off my a#% and posted my own. so thanks for the inspiration! :)
@LifeofSebMS8 жыл бұрын
+metaspencer Hey metaspencer! I'm very happy my video incited you to make your own. I think everyone with MS, no matter how different, can find something to relate to in these experiences and that makes us feel less alone. Keep it up!
@sonsofanarchy53164 жыл бұрын
@@LifeofSebMS thanks, Seb, in my vision, i have also stories. I have a Chanel Sons of Anarchy, with stories about Marilyn Manson, rock singer. 👍👍👍👍Keep on touch
@michaelmcdonald1374 жыл бұрын
have you tried pine bark?
@shonai50134 жыл бұрын
I will help cure multiple sclerosis! megalayner100@gmail.com
@metaspencer3 жыл бұрын
@Storm Media good stuff!
@adishmaryahu25794 жыл бұрын
Wow! I can so relate to your story and symptoms. I hope you are managing well with this disease. Don't lose hope. I was diagnosed with relapsing-remitting 27 years ago and I am currently very active.
@anubala6421 Жыл бұрын
Mam do you have some disability during the span of 27 years? Please reply
@LifeofSebMS Жыл бұрын
You’re an example of strength! 💪🏻🧡
@DStabs7205 жыл бұрын
My grandma lived with MS for 50 years
@samsmobilepressurewashing84224 жыл бұрын
My mother had it for about 16 years and died a miserable death from it at the age of 44. The most debilitating thing I have ever seen.
@DStabs7204 жыл бұрын
Keldor Miro surprisingly she did great for a long time. She was in a wheel chair and luckily she could afford a nice van and everything to get around. We were very lucky to have her around for all those years. She was the best grandma ever!
@margaretneanover33853 жыл бұрын
Let's hope if it's a correct diagnosis ..its a treatable situation.
@nanceb4him7 ай бұрын
@@DStabs720 Such a blessing for many other Grama's and people to hear this. You are loved and special still, and so very important to your loved one's. ❤
@anagasa5 жыл бұрын
You guys are all brave. I have a cousin with progressive MS. May god give you all strength 🙏🏻🙏🏻
@黃祐宇4 жыл бұрын
I’m 16 and I have MS too Let’s fight it together
@shayrose77054 жыл бұрын
白龍布萊克 how are you going with it? I am turning 17 and have had symptoms for years and am getting tested after this covid crap is over... I am terrified.
@taytastrophe9904 жыл бұрын
@@shayrose7705 what symptoms do u feel? Im also 17 and my legs have been feeling weak for 2 days. Im terrified too
@shayrose77054 жыл бұрын
taytastrophe ou god I have a whole list. Mainly, major hip and back pain, like I can’t lay down. Extreme fatigue, I can sleep 17 hours and still need to lay down for a bit. Really bad heat intolerance- especially during summer and warmer weather I can’t go out. I also lose a lot of feeling when typing on my phone and my hands tingle a lot. My legs are also really restless and I get these major spasms on my right leg always under my knee, where I feel if I move I will start seizing ( they’re bad haha ). I pull muscles 24/7 and always am in some sort of pain. I also have a lot of little symptoms like rapid eye movement and vision loss sometimes, aswell as slurred speech etc etc. frankly I don’t think there is a single symptom of MS I don’t have.
@shayrose77054 жыл бұрын
taytastrophe and agh I’m sorry to hear that
@taytastrophe9904 жыл бұрын
@@shayrose7705 omgg I'm so sorry to hear that too. I hope u you will get tested after this quarantine. There are also other people on KZbin who share their experiences and struggles with MS. Some of them said that they had early and subtle symptoms before but they ignored it. Then, 5 years or 3 years after the symptoms will come back and become more palpable according to them. Haysss
@jackyeastwood92945 жыл бұрын
What kinda of a person puts a dislike?. You are extremely strong and brave. I have a brain disorder. It's not MS but very similar. You are amazing to have carried on functioning. Inspirational x
@treasurecompanion8 жыл бұрын
Gorgeous man I'm so sorry to hear of your health struggles and just want to wish you love n happiness.
@Judas88-f3m5 жыл бұрын
I'm glad were all sharing! My first attack was December 2012 i was working for a Watch Company it was very busy. I noticed my right side of my body was slowly going numb started in my feet & worked its way all the way up and lasted for two weeks, Keep in mind am working like crazy! I was 24 years old at the time i was diagnosis in early 2013. The doctor told me you have Stage one MS after going though a lot of tests now i'm 30 and feel alright i take one pill everyday for my MS.
@Bella_03032 жыл бұрын
Hi. What Med are you taking?
@anonymousgirl7997 жыл бұрын
You're a beautiful man...I've just been diagnosed in the hospital in the last few days. Woke up to a dragging foot and needing to use a walking stick. MS is not fun. Hang in there and stay prayed up, Doll! Im too afraid to trust pharmaceuticals due to side effects. I'm going to try a plant based diet and pray to God for healing. Bless you, Seb
@amandabruce75965 жыл бұрын
I am really sorry you were treated like a specimen not a person,then spinal uuuweee and more tests!!!!I have messed up immune system,No spinal but tests and Drs.&tests,ugh.finally after yrs.got lupus dianosis,Rheum.arth.osteodegenerative arth.thyroid issues,now after being not believed I thot had Parkinson's disease ,My.rheum.sending me back to neurologist cause thinks I do!!My dad died in 2000 from it.i got symptoms shortly after that,but not believed,tests don't always show,but was ruled out what u have frm.mri.i have had 4 @20yrs.then&suddenly I can't get up good walk good sleep good memory leaving me or can't say correct words.and can't take steroids like prednisone so I take plaquenil. Now I'm 62,so told my daughter no more tests&prob.no more added meds.but I'd let them officially diagnosed me to help with care&disability. I live with her.i have strong faith& days are sometimes long.hope you the same.....faith&hope.♥️
@jakethedog43975 жыл бұрын
Anonymous Girl plant based diet and low sat fat kept people in a Canadian study symptom free for over 30years!!! I was dx’ed 12 tears ago - I have no symptoms. Look up the study!!!
@1life8574 жыл бұрын
@@jakethedog4397 Plant based/vegan diet is what caused MS. Stay away from plants and wake up!
@aabracadavra3 жыл бұрын
@@1life857 Disgusting. You should crawl back under whatever rock you've been living under. Plants are the most nutritious and healing foods on the planet. Let me guess, you think keto is conducive to health. It's not like Atkins died of a heart attack, or that Baker's bloodtests are disastrous. I'm afraid the only way you've woken up is by waking in another dream. You're in deep, deep sleep.
@TASIAawful13 жыл бұрын
@@1life857 I’ve been plant based for over 40 years it’s the most healthy way and no I don’t have MS I’m listening for a friend who may have it
@Faith37able5 жыл бұрын
Hi, thank you for sharing your story. I was diagnosed with MS four years ago and I completely understand when the symptoms become so aggressive you can not ignore them anymore. I pray your journey gets better and manageable.
@wmccullough19888 жыл бұрын
Thank You...I'm starting my journey, I noticed symptoms about a years ago. The constant pain, especially my back, legs, arms and neck, headaches, vision changes, my balance, and this uncontrollable sleepiness and walking slowly with a cane now...It's shameful 2 doctors thought I was faking! Going to see specialist in major city next week.
@cha07able2 жыл бұрын
it’s bad really bad when ppl does that. sorry to hear this hope you’d found the better doctors and got better. I know this I went through the same situations.
@thesimplelife9635 жыл бұрын
I have muscular dystrophy fshd. We all have something.... just keep moving forward and have faith. Every day is a blessing no matter what our bodies do.
@RkristinaTay5 жыл бұрын
God bless you for your wisdom.
@jesusoctaviomiramontes42176 жыл бұрын
Same here however I got diagnosed with my MS at eleven years old & I’m twenty one years old so for ten years I’ve been battling it!👌🏼
@curiousbystander91934 жыл бұрын
weird,11, unheard of 20 years ago
@kiaraellis48994 жыл бұрын
Jesus Octavio Miramontes May I ask what you felt that made you go to the doctor? And how has your life been since being diagnosed?
@shonai50134 жыл бұрын
I will help cure multiple sclerosis! megalayner100@gmail.com
@kaycausey9804 жыл бұрын
I want to tell you and everyone that was so brave to tell your truth about MS. I am more inspired to tell my truth about MS. for the last 3years I have been so ashamed of my diagnosis. I've cried many days because I felt so alone and voiceless. I am a mother to 2 boys and to see my children worry about me makes me feel less than a mother. Every weekend were our playdates game days but being depended on a Walker breaks my heart. Hearing my children tell me I'm still as perfect as I was when God created me melts my heart. Continue to keep me in prayers and I will pray for my entire MS family❤
@tsomoyangchen49384 жыл бұрын
stay strong dear, prayers to everyone suffering from MS,
@kaycausey9804 жыл бұрын
@@tsomoyangchen4938 thank you so much❤🙏
@LifeofSebMS Жыл бұрын
You’re amazing 🙏🏻🧡
@sofiyapiercy24442 жыл бұрын
I'm 16 and was diagnosed with MS just a month ago, after experiencing 3 months of symptoms. It's very unnerving knowing that you have to live with a chronic disease, but I'm staying strong! Hopes and prayers for everybody else out there suffering with this - you are not alone!
@leximohamed95322 жыл бұрын
Did u try vitamin B1 Check out DR Berg on vitamin B1
@jibrialyusuf34482 жыл бұрын
Try dr wehls diet, wim hof cold therapy include vitamin + minerals like B1,6,12 magnesium, zink & vitamin D over 3,000
@miguelcardenas24132 жыл бұрын
@@leximohamed9532 have you tried not to follow an advise from someone who is not a real doctor .
@joydarling314 Жыл бұрын
Dr. Berg is better than a REAL doctor. You know real doctors get more business with sick people
@joydarling314 Жыл бұрын
There is a girl who said her moms MS went away she went vegan it helped her
@henriettesteyn63885 жыл бұрын
My daughter has MS now for 29 years and she is very frail and bed ridden. Just keep strong and take it Day by Day.
@havencook62607 жыл бұрын
you are an amazing person im 17 and have ms it is verry hard living with it but it was good to hear your story becouse ms has taken me out of school and made me very depressed thanks for sharing its verry helpful
@jorgevega72777 жыл бұрын
Haven Cook do you have trembling in ur hands and all over ur body??
@BMax-no9mg7 жыл бұрын
Haven Cook I am also a KZbinr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
@toeders16 жыл бұрын
Hi I'm 25 and have had multiple sclerosis for 10 years. Thank you for sharing your story
@lunaestrella5315 жыл бұрын
@@toeders1 but everyone has specific signs patients of ms are not the same
@toeders15 жыл бұрын
@@lunaestrella531 I know
@shrushtigawade6216 жыл бұрын
I am a Med student here.... watching ur story gives a diffrent perspective than books... May lord give u immense strength...
@AndrewLida4 жыл бұрын
If you have MS, you may have been misdiagnosed. Check list: Do you have Mercury Fillings? Have you had root canals? These are the 2 Leading Root causes of MS. And curable. Get with a biological dentist for proper removal.
@xtina-ah6 жыл бұрын
My mom has had MS since I was little and I worry that I may have it as well because there are some concerning symptoms that I have... I’m happy to see more people online talking about it and living normal-ish lives :)
@adamslilith-art Жыл бұрын
did you get diagnosed if I may ask?
@yunalee135 жыл бұрын
I suffer from MS too :) Thank you for sharing with us your story Seb! :) It's been 10 years that i live with MS and everything was fine till i started suffering from unbelievable headaches, migraines and ear pain 1 year ago. I quitted my job, my social life, my personal life but not because I was depressed. I'm really in much pain so i can't do anything. But i do believe that everything is going to be alright for all of us. We have to be patient and strong physically n mostly psychologically :) Greetings from Greece :)
@gregoikonomakou1362 жыл бұрын
🙏❤
@adamslilith-art Жыл бұрын
hey how are you now if I may ask??
@a.j.madkins97245 жыл бұрын
Dear God, I pray for you and others that Are faced with MS. I thank you 🙏 for sharing your story; please hang in there as I pray for a cure.
@YPNOBATHS3 жыл бұрын
My mom has been diagnosed with ms before eleven years. When my family announced me that she had this dissease i lose my world. But after months I learned how to help my mom. I become "friend" with this and in my country we have the sentence whatever you dont kill you, make you powerful. I hope all people in the word and more specific in my country face this dissease as health issue and not as stigma Many kisses from Greece
@LifeofSebMS3 жыл бұрын
So inspiring!! Thank you 💪🏻
@kayw49918 жыл бұрын
my spinal tap was completely painless.. im so blessed I had a good experience with it
@sleekcartim7 жыл бұрын
ur very lucky!
@Bedfordmdb7 жыл бұрын
kay w. you are very lucky !! my spinal tap was horrible. the Dr couldn't get the needle in the right spot so they sent me to x-ray and another Dr did it. my right leg started flopping around. the pain was excruciating. never again...
@kykkelikokos7 жыл бұрын
Lucky! For me they didnt get it right and my foot kicked by it self, and it came blood out of the spinal test.. i asked for something so i could relax because i had to take a new one.. but they didnt give me anything (they are very strict in norway when it comes to valium ecs, so the simply didnt have it where i was).. so they just had to take a new test right afterwards. I was 24 and so scared. Felt the same as when i gave birth without medication.
@Jefff727 жыл бұрын
My first was painless followed by headaches. My second, they were trying to find why I lost muscle on my right arm, hurt like hell but hardly any headaches.
@philcartier9946 жыл бұрын
My spinal tap was virtually painless. They gave me a mild sedation and anesthesia. I couldn't feel a thing and was surprised it took only around 15 minutes.
@anelisamorgan85905 жыл бұрын
I know that you posted this year's ago, I identify with many of your symptoms and can empathize. MS is a thief that steals pieces of us, you seem like such a genuine sincerely sweet young man. I'm really hoping you go into remission, and have peace. *Big Hugs* to you, your Canadian sister 💕
@saraandersen81207 жыл бұрын
I'm struggling with MS for almost 15 years mainly my attacks related to my vision, thank you for sharing your story 💐 ps. You're so handsome 😎
@BMax-no9mg7 жыл бұрын
Sara Andersen I am also a KZbinr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
@user-lg5uo4fg3j6 жыл бұрын
My mom got diagnosed today, she has blurred vision in one eye. Does every one with MS loose their ability to walk?
@BMax-no9mg6 жыл бұрын
im a bad youtuber No, MS is different for everyone & about two thirds of people with is never lose their ability to walk without assistance
@BDubyaD6 жыл бұрын
Bullsh*t
@coralrain63326 жыл бұрын
Sara Andersen ❤️
@billymccaughey37415 жыл бұрын
Love and strength to all that suffer.♥️
@polinaxpolarbear5 жыл бұрын
I've gone through 3 different treatments for MS in the past 4 years and Tysabri has helped the most. I do not have any more active lesions and all of my symptoms come from numerous lesions that remain as scars in my nervous system. Possibly becoming JC positive is one of my biggest fears at the moment and so sorry to hear that you had to stop Tysabri due to that reason. But I'm so happy you've shared your story!! Thank you!
@jonathangraham6412 Жыл бұрын
Are you saying you no longer have ms symptoms after the treatment?
@anthonydelgado7316 жыл бұрын
Thank you for sharing your story. I have a girlfriend with MS. She’s been diagnosed over 20 years ago. She’s been on Tysabri these past few years but will have to come off it soon. She was doing remarkably well until and unfortunate accident at Work. She’s been recovering slowly since. Most people including myself don’t understand the full spectrum a person with MS goes thru. Particularly the ups and downs, I keep her moving forward but often forget how difficult things can be. Every now and then you need a reminder to realized how resilient people with MS are and focus on what they get accomplished rather what they can’t on a given day. Thanks again for sharing
@originalitalian4 жыл бұрын
I loved the part when you talked about the handsome doctor 😂. I had a similar experience. I have Crohn’s disease and had 2 surgeries in the past... The first one was the worst and I had to be hospitalized for 5 weeks. Prior to the surgery, I had lost 12 kilos, felt so powerless and looked terrible. One day, while I was recovering, this super handsome doctor came into my room and just seeing him made my day, but at the same time I started thinking “shit, why am I meeting such a gorgeous guy now that I look like shit?!” 😂.
@LifeofSebMS Жыл бұрын
Hahahaha 😆🧡
@pegah74823 жыл бұрын
Thank you for sharing your story , i just got diagnosed with ms and I thought like my whole life is falling apart but seeing all you guys in the comments make me feel like this isn’t such a big deal after all and i can live my life like most normal people do although it may be more difficult to do so
@LifeofSebMS3 жыл бұрын
Exactly!! Stay positive 💪🏻🧡
@ashtaylor41075 жыл бұрын
My grandfather has had MS since before I was born (I'm 21), and he's still going strong even though he has his struggles. Now, they are thinking I might have MS, which is a bit scary, but I know I can get through whatever life throws at me!
@adamslilith-art Жыл бұрын
love your attitude!!!! 😁
@anubala6421 Жыл бұрын
Do you have some issues ?? Reply please
@adamslilith-art Жыл бұрын
@@anubala6421 you could have just checked out my channel.. I have many videos about this
@jowestbury4 жыл бұрын
I can’t thank you enough for this!!!! My middle school sweetheart just reached out to me and asked if we could just do the wild relationship because he doesn’t have much time left and has always been in love with me. He explained he has MS and just wants to live out the end with the woman he’s always loved. I’ve always loved him but I didn’t know what to expect and wanted to know what he was going through because a really private and humble person. Thank you so much for being so authentic and open with your journey. Seriously...thank you. I know this has been YEARS since you’ve posted it. I hope in all hopes of hope you’re doing well.
@LifeofSebMS4 жыл бұрын
Thank you for sharing this beautiful story, Jo! Give him all the support you can from the love you have for him. Best of luck to you two!
@tnh42355 жыл бұрын
Our family is also affected by MS. Hope you are doing well and continuing to inspire others.
@milayhurtado55604 жыл бұрын
I also have MS. Stay strong. Stay focused. Stay motivated! 🙌
@LifeofSebMS Жыл бұрын
💪🏻🧡
@andreameeuwsen60604 жыл бұрын
My dad did a special diet called The Swank Diet. Low fat with fish, chicken and not much for animal fat. He stayed healthy well into his 80s and just passed away at 89. You are an inspiration to me with your positive attitude! Keep it up :)
@drngpawanakumar66372 жыл бұрын
Was he diagnosed with MS, could u please me details of diet,,thanks in advance
@LifeofSebMS Жыл бұрын
I do hear wonders about that diet! 🙏🏻🧡
@Szminsky6 жыл бұрын
My mother got the absolute worst kind of this disease in the 80’s, when few even knew what it was. She died at home, almost 20 years ago when I was very young, and it traumatized me for years. Fortunately, nowadays there are good treatments and medication for this disease, the prognosis is a lot better, and you can live a fruitful life.
@mattielovell30986 жыл бұрын
My mother has MS too, thank you for sharing your story and getting awareness out! You are so handsome, keep up the good videos!
@ivorwindybottom73643 жыл бұрын
My father has MS, wheel-chair bound, I'm going through the diagnoses stage at the moment. I've had a couple of attacks and my balance and vision, along with brain fog and shooting pains, sensations etc. Seems each episode leaves a different problem behind. Where-as my dad, has terrible ataxia. Really is different for everyone. Thank's for sharing, it helps people who may not otherwise have known what thier suffering could be, and prompt a visit to the DR.
@LifeofSebMS Жыл бұрын
🙏🏻🧡
@wyndella72124 жыл бұрын
I have Ms as well couldn't walk for 6 months. I was ready to overdose and die. My oldest daughter who was in college asked me to get rid of all pharmaceutical drugs and try natural medicine. I went to my grandmother who is 110 today. She's Oneida Indian she was able to help educate me on plants n herbs. 7 years later and I've haven't had any more problems with m.s. Thanks for sharing your journey. I wish you the best and stay healthy.
@ThatThing16754 жыл бұрын
If you wouldn't mind sharing some of the more common plants and herbs that you used? Thanks
@Klres5 жыл бұрын
my mom has had ms for over 20 years. it got really bad once i was born. the doctors were dumb and thought chemo would help it back in 99’, it didnt. i’ve seen my mom deteriorate my whole life and i’m 20 now. she’s on a scooter and needs help getting into bed, showering, going to the bathroom, ect. i wish everyday that i could’ve seen her walk and could’ve had a normal life with her. it makes me so sad. good luck on your journey, ms hits everyone differently.
@ianmangham45703 жыл бұрын
God bless you xx
@carolineb61448 жыл бұрын
Thank you for this video. I'm 17 and was recently diagnosed, however, I experienced symptoms years before around the age of 13 that I just brushed off out of fear. It wasn't until around six months ago when I had an attack that numbed and weakened the left side of my body that I was finally diagnosed.
@BMax-no9mg7 жыл бұрын
Caroline B I am also a KZbinr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
@toeders16 жыл бұрын
I had such a similar experience. I hope you are well. X
@vickyblaskovich92655 жыл бұрын
MS is a horrible thing to have. My brother had it for 20 years before passing away. I watched his decline by inches all those years. My prayer is that someday they will find a real cure. Stay strong.
@mbear88324 жыл бұрын
I'm sorry to hear that. My brother passed with MS, having it only for 9 years. Agressive cases are rare thankfully. I take my hat off to the many people who have MS and other illlnesses, they are true Warriors of life 🙏
@jamesemerson41024 жыл бұрын
You don't fucking die from MS stop spreading such depressing messages to other people. Ms has nothing to do with life expectancy. My mum and brother have it and so do i.
@DavidSmith37503 жыл бұрын
@@jamesemerson4102 There are MANY different Types categories some have both lesions brain and spine some lesser yes some unfortunate pass please dont be RUDE Do your HOMEWORK I Pray your family and yourself a recovery GOD help You
@jamesemerson41023 жыл бұрын
@@DavidSmith3750 please don't be rude? Piss off. I have MS myself. Don't tell me to do my homework.
@jamesemerson41023 жыл бұрын
@@DavidSmith3750 People who make general statements about MS being horrible should be told to shut up. They are contributing to the stigma that I and others have to be a part of now every day. I know there are many types. I HAVE the disease, and I am fortunate to have one of the best neurologists in my country. I am here trying to tell young people who have been newly diagnosed not to fear, and there are people on here telling them otherwise. What good is that going to do? You don't tell a young newly diagnosed person about your terrible, awful experience with MS. It's common sense. Wake up.
@BloodyNoraaaa8 жыл бұрын
Thank you. You have made me feel 'less scared' ..... perhaps even 'less alone' ......... I was diagnosed just yesterday. A whole new chapter for me .... though I have been living with MS for a few years .... I have not known. Until that diagnosis yesterday. I hope your tomorrows are better than your todays. xx
@liuska19917 жыл бұрын
Sue Randle I've been diagnosed today after all scans and I've got a similar symptoms.. I hope I will stay strong enough to fight MS back... wish u all the same xxx
@BMax-no9mg7 жыл бұрын
Sue Randle I am also a KZbinr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
@supriyabhaskar12306 жыл бұрын
Bravo !
@richardrivera73174 жыл бұрын
Hello. I was diagnosed in 2014. Tried 2 drugs & nothing made me feel better. Went from an EDSS of 0 to 5.5 in about 18 months. Having nowhere to run I opted to go abroad for HSCT. I had the treatment in 2016. 25 months after being diagnosed. It’s 2020 now so I’m about 44 months post treatment & my EDSS is now 3. Haven’t done an infusion or any other MS drug since 2/2/2016. Feeling the best since being diagnosed. My balance is slightly off now. No more fatigue, no more heat issues or brain fog. There’s hope for those who really weary it.
@glg6175 жыл бұрын
OMG!! I suffer from this debilitating disease as well! I understand your pain and frustration. It’s awful! But all we can do is TRY and be strong. Take care❤️
@dianaalbice60247 жыл бұрын
I was just diagnosed and i found your story very comforting i have been telling my dr for 3 years something is wrong with my balance and my feet going numb, finally i know i am not crazy thank you
@girlmyrna70987 жыл бұрын
HI Seb. Hearing you speak about your story makes me reliving mine. I recognize so much, I have been struggling for years to go with the flow but I just can't anymore. SInce november 2016 I am on sick leave because of serious fatigues . I am doing better than months ago, less dizzyness, but always tired and I can't handle stress anymore. We have to remember were are not alone in this battle. I am still having trouble accepting this whole MS thing. Stories like yours give me strength, Big hugs !!
@BMax-no9mg7 жыл бұрын
Girl Myrna I am also a KZbinr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
@bonsaitherapy14685 жыл бұрын
I have MS also. Diagnosed in 2005. Two MRIs set for this friday. Stay sharp!
@derekf4257 жыл бұрын
I'm so sorry this story makes me sad! I pray the Lord Jesus heals you and helps you with your pain. May God bless you!
@KodieGregory4 жыл бұрын
That man you are praying to for help, is the man who technically gave him the disease. Ever think about that?
@minamohabbatforlovefriends91894 жыл бұрын
Lord Jesus? Trinity 3in1 God? So whoch one is God? The Actual God? or Jesus? How comes your lobely God had 1 amazing son, and he decides to KILL his 1 land only oving son for You? for Hitler? For All the Criminals?
@deirdremorris92344 жыл бұрын
JESUS came to save souls not flesh. Thats the reality of Christianity.
@jennyq49794 жыл бұрын
I'm so sorry that you've had to go through all of that. I will pray for you.
@LifeofSebMS Жыл бұрын
🙏🏻🧡
@robert_6-_8965 жыл бұрын
You got a good doctor when I reported my symtoms the doctor checked my temp and heart rate and said i was fine
@tapanpatra69353 жыл бұрын
What can I say. I got diagnosed, MS a year ago. But the body challenges I was experiencing, were way older than I thought. Almost 8 years before my diagnosis and subsequent treatment. I can totally relate to your situation my friend. I get emotional when I see others jogging at the park, knowing I was an athlete once and can't do this anymore. And recently my wife left me because of my condition was the worst of all. But I know there is hope and there is nothing you can't achieve. I wish you good health and more power my friend. Stay positive and keep smiling 🙂 Would love to meet you one day 🙏
@LifeofSebMS3 жыл бұрын
Oh no, so sorry to hear about that 😞💪🏻
@LifeofSebMS Жыл бұрын
Thanks for sharing 🧡🙏🏻
@ShoresProductions5 жыл бұрын
I was diagnosed at 15, my MS was so extreme they put me on Prednisone(6 months) and ran tests for about a week. My spinal tap was the single worst experience of my life. I was immediately put on Tysabri and I have had a semi normal life for the past 7 years.
@susiepoo515 жыл бұрын
I’m so sorry you had to endure the stress of all those years of not knowing. Blessings to you ❤️
@zach99305 жыл бұрын
Just got diagnosed with this today. I’m nervous on What to expect, I’m only 16
@brandonvlogsbarber34333 жыл бұрын
do u have it
@Eloise_Please3 жыл бұрын
Know you're not alone even though it feels like it sometimes. I was born with chronic illness and things really started going downhill at 14. I'm 24 now and still struggle with progressive symptoms and what it means for my life, but we have to play to our strengths and know it's totally okay so be sad and angry sometimes. Life with chronic illness is different, so is youth, and though it's closed some doors for me, I've found things I love that I may never have discovered without it. I know you didn't ask for my comment and it's been a year, but I was really helped by others in the chronic illness community who reached out so... spoonie solidarity 🥄
@zach99303 жыл бұрын
@@Eloise_Please hey, thanks so much for the comment. May I ask which kind of MS you have?
@Eloise_Please3 жыл бұрын
@@zach9930 hi :) I'm not yet diagnosed with MS and may have something different, but I started getting neurological motor function and cognitive issues 6 years ago and in the past year paralysis (among loads of other stuff) and am on a waiting list, so I don't claim to have any personal experience with MS, just progressive neurological illness and chronic illness. I was born with EDS, VSS and have CFS and Fibromyalgia, and honestly a long list of diagnoses, mostly neurological conditions! I've been watching lots of MS videos to learn more, even if it isn't the answer to what I have I still want to be more aware and knowledgeable :) sorry that's long 😅
@cherry26193 жыл бұрын
@@Eloise_Please I had a migraine for 2 months which was very abnormal for me and that made me get an MRI which showed that i have 5-6 lesions in my head, most likely it's MS. I'm 20 yo and i never noticed any of these MS symptoms in the past, i always thought that any never pain i had was related to my kyphosis, but i'm not so sure anymore. I don't even have any walking or balancing problems.. yet.. the future seems gloomy.. i was supposed to start studying in a really hard program this fall but now i'm questioning if i should even do it, i guess i'll try
@AkSonya10106 жыл бұрын
I don't know how your video came across my feed but I am feeling blessed by your words. Thank you. I was diagnosed four years ago but I have a Dr that has kept telling me my issues aren't MS related. (She is amazing and helps me in so many ways that I haven't questioned her.) I have been in so much pain and I feeling like I am losing my mind. I related and recognized so many things in your video and I think it's time to find another Dr. I have been questioning that all day and your video gave me the answers I needed, thank you.
@carolkimball12146 жыл бұрын
AK Sonya 80i769
@AkSonya10106 жыл бұрын
Carol, I don't know what that means.
@alexismunoz70546 жыл бұрын
Good video! I have MS (10 years now) was diagnosed at the age of 11. It was a scary time in my life for sure. I went through 3 different medications (avonex, rebif, tysabri) I am now on retuxan and have been on it for a few years now. I am doing extremely well, my last relapse was in the year 2011 🙏🏻
@anubala6421 Жыл бұрын
Sister, How are you now ??? Do you have any type of disability?
@pedrocavalcante16307 жыл бұрын
I Hope God help you to stop the progression of your disease or at least slow it down. You're definately an example of human being, very brave. And thank you for sharing your feelings with us. All the best!
@bibit38568 жыл бұрын
So brave....and gorgeous 😊. Sending you good vibes. .. and hope you find the right treatment. .. Thanks for this video.
@LifeofSebMS8 жыл бұрын
Best vibes to you too! And thank you :)
@peterlebouel98 жыл бұрын
Bibi T 😎
@peterlebouel98 жыл бұрын
Bibi T 😎
@peterlebouel98 жыл бұрын
Bibi T ♠♥😎
@peterlebouel98 жыл бұрын
Bibi T 😎😍
@michelelynn14283 жыл бұрын
I have the same MS.. 21 lesions.. took 5 years of supposed fibro and then finally an MRI and a diagnosis.. been 9 years now.. my left side sucks but.. I’m glad to be alive ❤️
@LifeofSebMS Жыл бұрын
Beautifully said 🙏🏻🧡
@barbaraellis51028 жыл бұрын
May God heal you!! We have a friend who was diagnosed 20 years ago and he was on expensive medication for years, and now the Dr. tells him that he no longer has MS. !!
@jeathtunes7698 жыл бұрын
erm, as far as im aware there is no cure for MS just yet. So either the person was misdiagnosed, or managed hes decease very well. well done!
@lisanelhiebel56697 жыл бұрын
which medication?
@noneya31616 жыл бұрын
Praise God!
@Broxine5 жыл бұрын
Barbara Ellis which medication? Could you ask him? You could do us all a big favor
@lunaestrella5315 жыл бұрын
I know too my friend after year she can walk and she will be she is so fine and strong without cure just only with ability
@mickshellyhanks65654 жыл бұрын
I have had it for over 30 + years. I am 64, have a broken hip in two places and 2 herniated discs in my back. GET UP AND KEEP MOVING... NEVER LET IT RULE YOU!!!! EVER!!!!I still work and spend at least 1 1/2 hours a day in a gym.
@LifeofSebMS Жыл бұрын
So true!! 💪🏻🧡
@montanerdz5 жыл бұрын
Thank you for putting your story out. It's eerie but also comforting to hear such a similar story
@debbiecooke16513 жыл бұрын
I've had ms 26 years but it's getting bad for me now. Stay strong and keep fit.
@LifeofSebMS Жыл бұрын
Stay strong sister 💪🏻🧡
@debramoss22674 жыл бұрын
New healing solutions are found daily, I hope one surfaces for you, soon. 'Always hope' ,keeps me going (I have CRPS and PTSD) .
@vincentramirez874 жыл бұрын
I remember my spinal tap, I got to watch ,the nurses held several mirrors angled so can see.it was cool.the needle was huge.i didn't know there was liquid in your spine. its feels really good hearing other people's stories. it reminds you that you are not the only one. KEEP FIGHTING WARRIORS!!! KEEP MOVING FORWARD!
@rosered3919 Жыл бұрын
I had 1 , 2 weeks ago. It is cool. Yeah, it's not pleasant at all, but you get the results you need. I was shown the fluids and saw them as crystalline light fluids. Amazing.
@LifeofSebMS Жыл бұрын
Yeeees 💪🏻🧡
@electriceyeslide59597 жыл бұрын
First off - God bless you. You’re very brave to make a video describing your ordeals with MS. Very brave. You should be commended. You’re doing the world a lot of good in showing people that a handsome young man such as yourself can be afflicted with MS. You’re a very courageous man and your upbeat attitude and humor shine quite bright. It sounds like you had Trigeminal nerve involvement (specifically v2 and v3 branches). If you ever come down with Trigeminal Neuralgia (TN), I highly recommend you contact Dr. Ronald Brisman, a New York City based doctor. Brisman is one of the world’s foremost experts on the disease and has arguably the highest success rate in treating it. God bless you my friend. Given your indomitable spirit, I predict a life filled with success and happiness for you. :)
@BMax-no9mg7 жыл бұрын
Electric Eye Slide I am also a KZbinr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
@jigyasapandey16083 жыл бұрын
last year i got diagnosed with MS. I had vision loss and i was really shocked as I was 15 and i didn't knew something like this can also happen to me at such a age
@LifeofSebMS3 жыл бұрын
Oh no, stay strong 💪🏻
@glenyskemp60525 жыл бұрын
I too have MULTIPLE SCLEROSIS hope things go ok for you.
@Noodleydoo5 жыл бұрын
I am so sorry, pal. Same boat here. I fell twice in the past 7 months breaking 9 ribs. One thing I learned is that at night, my depth perception was terrible and I would reach out for a wall I thought was six inches away but it really a foot or more away. I'd fall. What stopped the falls was leaving several lights on at night, or just turn on my big screen TV for light, and I'd be okay navigating to the bathroom or kitchen. I hope this trick will help other MS people. Good luck, Seb.
@tracywhited5 жыл бұрын
Being tested right now. Bless you and thanks so much for sharing.
@JilieBoe2 жыл бұрын
I have MS since I was 15 years old, now I am 26. I have numbness in fingers of my right hand, i had many others, there was tbe time when my right arm was out of function, so I has to do everything with my left, there was time when I couldn't walk alone, i I couldn't get up and I was tired and sleepy all day long. Now, thank God, I am on Gilenya medicine and I can run (not like before but I can). I I'm sending you lots of hugs, and support, positive thoughts. We are heroes. ❤️
@LifeofSebMS Жыл бұрын
🙏🏻🧡 yes we are! 💪🏻
@msfighter6127 жыл бұрын
Proud of you keep strong ... Hope God will save us soon from MS
@carlalb61826 жыл бұрын
God doesn’t give us anything life does God gives us strength to deal with whatever life gives us
@amberowens88165 жыл бұрын
My mom has had MS for 37 years now. She was diagnosed at 19 while pregnant with my sister. ❤
@claramarone55105 жыл бұрын
Amber Owens hi is your mom on all kinds of meds? Wow that’s a long time. God Bless. I’m starting to notice strange symptoms n I’m scared crazy. Just starting research. Omg.
@amberowens88165 жыл бұрын
@@claramarone5510 She is typically takes steroids during a relapse and otherwise takes shots in her legs nightly. MS is different for everyone but it can be managed if you take care of yourself. Best of luck to you!
@claramarone55105 жыл бұрын
Amber Owens thank you
@idraculaa3 жыл бұрын
Oh my goodness, much of this is what's been going on for me as well. Even typing this my left hand is tingly and numb. Going to the doctor tomorrow. Hope that you are doing well :) Thanks for sharing
@LifeofSebMS Жыл бұрын
Hope you’re well today! 🙏🏻🧡
@andrikos19885 жыл бұрын
an MSer here from 2005..keep strong!! I also remember at my first spinal tap I was screming and 4 people were trying to keep my body stable for 45 minutes...Then I would feel such an awful dizziness for more than a month..With Tysabri I would feel so fine for 3 years and then with Gilenya for 5,5 years...but when my body got really got used to it and it didn't have anything more to offer...I wish u the best mate!
@peacelovecookies566 жыл бұрын
When I had my spinal tap I was so anxious I couldn't stop panic laughing. Thank you for sharing you're experiences
@TheDude420.695 жыл бұрын
SecretMermaid yeah I got some drugs before mine it was fun enough
@shonai50134 жыл бұрын
I will help cure multiple sclerosis! megalayner100@gmail.com
@nabiarahim25243 жыл бұрын
My nime is khattab Iraq.MS 7years
@khadeejamazhar77077 жыл бұрын
& this made me cry because i had so much of these in a year! one after the other. knowing it that i have MS kills more then having the pain. MS is a mess! i count the days. 2years & the world swinged upside down! never let your strength get low! what i learnt so far.
@BMax-no9mg7 жыл бұрын
khadeeja mazhar I am also a KZbinr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
@khadeejamazhar77077 жыл бұрын
i will!
@tomvalveede68084 жыл бұрын
I will keep you in my prayers. Thanks for posting your story, l hope you can be as symptom free as possible, for many, many more years. May God bless you.
@erinekoepke33275 жыл бұрын
OMG- you are the male version of me... we have identical stories. Stay strong my friend.
@xThePianistx148 жыл бұрын
You are so strong I'm on my journey for MS diagnosis but here on the UK they take so long. Hope you're doing fine with no more attacks, I know they can be awful. It's been suspected MS to me, excuse my english, pronunciation, so I'm waiting to see my doctor to see what she says. Hope that if indeed is MS, I can get it diagnosed and treated sooner rather than later 'cause I'm stuttering, numbness and tingling on my legs and arms as well as stiff legs, balance and coordination problems, and the other day I was walking with my friends and my right foot kept dropping and making me almost fall each time. Very embarrassing. I've been living with MS, not 100% confirmed, for about 8 years or so. Keep strong. Your support would mean very much to me, all the best and hope you're doing fine :)
@Someone-jf1ei8 жыл бұрын
XxThePianist & ViolinistxX I'm sorry but what did u mean why ur legs were dropping ?!
@BMax-no9mg7 жыл бұрын
XxThePianist & ViolinistxX I am also a KZbinr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
@xThePianistx146 жыл бұрын
My foot kept dragging on the floor during the relapses. It's called foot drop. Hope that clarified it :)
@xThePianistx146 жыл бұрын
Thanks for the people leaving sweet comments. this has been a year ago I posted here I will certainly follow you hehe :p :) I got into day vlogging so u can check that out and I did some vlogs on explaining what's happening now. which I'll upload the rest in due time xP :)
@larasmith29315 жыл бұрын
🦋that’s why it’s so important to not ignore your feelings. If one person says no get another opinion. I knew something was Brong even when doctors were telling me you’re fine got to seek a second opinion or third or fourth if you know in your heart something is not right
@MissBellaaa18 жыл бұрын
Hi, Sab, your story is very similar to mine and I had almost the same attaches. My type of MS is also RR and because of my 27 lesions my doctors in Spain directly gave me gylenia which I've been taking for 2yrs now.Stay strong.
@nitunnair34787 жыл бұрын
MissBellaaa1 hi i m also having gilenya foe last 6 mnth.how u doing n how long u have to continue?? it's very costly n not affordable without insurance.
@RobertF-7 жыл бұрын
You might find the book and website called "Overcoming Multiple Sclerosis" interesting. Take care, and God bless.
@nitunnair34787 жыл бұрын
Robert thanku
@BMax-no9mg7 жыл бұрын
MissBellaaa1 I am also a KZbinr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
@s.a.chafoux65145 жыл бұрын
I am so sorry hon. I know what it's like. I was born w/Chiari Malformation & was diagnosed w/MS in 2001 w/20 something brain lesions. I then was told that they found no MS cells after having a horrendously painful LP. I have many of your symptoms, but 6 specialists have not been able to accurately identify the demylinative process I'm suffering, on top of a congenital heart condition, 2nd-3rd stage second hand C.O.P.D., multiple issues w/my spine, sciatica, 5 liver tumors, gastric/peptic ulcers, & a plethera of other debilitating medical conditions. My heart goes out to you, as I became too symptomatic at the age of 19 when I was training professionally for the 1984-88 U.S. Summer Olympic games. That of course, became just that, a dream. I am praying for your good health, my brother. You are beautiful, & very well loved...