My Parkinson's Disease Diagnosis

[@venkatadrinarayanan2693]

madam,i am from india, an early parkinson patient. i am thankful to you for this optimistic video,god bless you, you are very dear to all of us madam

[@SDWP]

Hello! I'm sorry you are dealing with PD as well. I do think it's important to take each day as it comes and make the best of it. I wish you the best and God bless you as well. :-)

[@talkswithtasha419]

As always, you inspire me. PD has surely met its match. Nothing in you has ever been the type to “give up” so it doesn’t shock me that you’re taking the same stance. Thank you for the transparency in your journey. You’ll inspire so many more. ✨

[@SDWP]

Thank you so much for the kind words. Love you girl!

[@SpiritRobert-gq3pl]

I have found exercise to be the best weapon against the effects of PD. Fast walking or treadmill Fast walking is very helpful in the battle against PD. Thanks for your sharing!

[@SDWP]

You're absolutely correct. I notice a huge difference if I start slacking.

[@erikahemstad7339]

We have very similar PD symptoms. Frozen shoulder, gait on left side, left hand weakness, typing slowness, minimal arm swing. I was diagnosed officially two months ago but have had symptoms for at least four years. It’s such a weird, almost claustrophobic experience. I have to remind myself that my body is still my friend, not my enemy.

[@SDWP]

I’m glad to hear you finally got an answer. Hopefully the medication (if you got in it) has helped bring some normalcy back to your life. Yeah, we gotta just keep moving forward and not let it get us down.

[@mercedessomeillan6287]

Thanks for sharing your story. I was diagnosed with Parkinson's disease a year ago and i'm trying to deal with it but it is very difficult. The neurologist put me on a medication that makes me dissy all day long. I was extremely active and now i find myself being worthless. I have an appointment with the doctor next week. I am very depressed.

[@SDWP]

Try to take each day at a time and don't dwell on the future. Try your best to stay active. I notice when I start slacking, my body feels worse. Take up hobbies and get out and do stuff with friends/family. Whatever you do...don't let yourself sink into depression and succumb to apathy. I'll pray for you. Best wishes.

[@stevemarshall7661]

It’s such a punch in the gut to any doctor that can’t figure out someone has Parkinson’s disease yet the patient can! This is my story for almost 3 decades, Doctors in general in America are dumbed down by the American Medical Association. I’ve had a Neurologist get pissed at me because I kept asking him to explain why I have Rigidity in my hands and fingers and he couldn’t explain it. Suing him for Malpractice now to make an example out of him!!

[@SDWP]

That's crazy that a neurologist couldn't figure it out. Good luck with the lawsuit.

[@jks3943]

I just came across your video. I have recently been diagnosed with PD. Lookin back mine started probably 10 yrs ago and its my right side. It would just stop working and i would fall. Luckily i got in to a movement dr and after my DAT scan it confirmed it. Now after my denial and acceptance party i have joined the Michael J Fox research program. Im 65 and have no desire to just lay down cry. I have things to do and places to go. Just wish i had the desire to post my story. And i have multiple stories. Thanks Keith

[@SDWP]

I'm sorry to hear about your diagnosis's. I love your attitude though. It takes work to think positive, but the more you do it, the easier it becomes and before you know it, you're enjoying life more. I wish you the best.

[@kathyrosecrans2738]

Thank you!! I also figured it out myself. I got my diagnosis 4 days ago from neurology. No surprise!

[@SDWP]

I’m glad you got it figured out. I hope things go well for you and the meds kick in quickly.

[@nedaward3032]

At 45 in may on 2020 I started to tremor. I attributed this to stress. This was in my right hand. At the same time I was dealing with bad pain in my left shoulder. I went to a neurologist where he said I had an essential tremor. Tried a few meds that just didn’t help. I soon lived out of state from Missouri to Virginia. I started with a new primary who wanted to rule out a pinched nerve in my cervical spine. So we did Another mri. My previous mri showed several hyper intensive flairs. The cervical one came back the same as the previous. I eventually, after several months saw the neuro who said I didn’t have an essential tremor but a resting tremor. After the Datscan showed the blunting and confirmed Parkinson’s my husband and I wanted to hold off for a beat. I also lost my sense of smell four years before. I also have insomnia, orthostatic hypotension and after a six hour test it showed I have cognitive impairment. I started with Trihexyphenidyl but it messed up my gut and decided to bite the bullet and try Carbidopa Levadopa and after months of nausea and vomiting we added more Carbidopa and now tremor is doing much better. Have to take trazadone to help sleep. And gabapentin for the restless legs and am now feeling as close to normal as I can. I, like you have the frame of mind the I may have Parkinson’s but it doesn’t have me. This is a very involved disease. It needs respect but it also needs to be put in its place. Keep up the fight!! Keep moving! ❤❤

[@SDWP]

Thank you for sharing your story. I'm sorry to hear you had struggles with the medication. I've been using Trazadone since about 2004 and thankfully that helps me get through the night. The insomnia was soooo bad before getting on it. It's unfortunate how long it takes to finally get to the diagnosis. I'm glad you finally know and are working towards things that help with it. It seems the best thing to slow it down is consistent exercise. I keep up with the exercise and try to stay busy....anything that keeps me from sitting on the couch for hours at a time. I wish you the best!

[@nedaward3032]

@@SDWP isn’t it a bit funny how looking back it all fits? Like along the way we were just sitting too close to the screen to see the big picture. Now we can see all the things we’ve been experiencing all pointed to this lovely mess that is Parkinson’s. I mean, it’s not like we’re doctors but even most didn’t see it. But it fit. Anyway, I appreciate you putting yourself out there. YOPD is a different breed than the original. It helps to have others to relate to. Thanks For sharing!

[@SDWP]

@@nedaward3032 Yes, great way to describe it. Thank you for the kind words. I plan on making another video soon....so keep an eye out. Check out some other YOPD videos from Jeremy McDonald, Parkinson's Wiggles Project, and Life with Parkinson's (Dave Gebhart). They put out a lot of great stuff.

[@defrank1870]

​@@SDWP I had the same problem! I think it may have been due to COVID or the shot. At any rate, my step dad had it. And when he died, a study was initiated on the drug AMBROXOL, which produces enzymes that fight Parkinson's. Check Michael J Fox and Google for that. At any rate, after the pandemic, I got tremors, and severe fatigue in my shoulder. I bought AMBROXOL on Google and it actually helped! But then the FDA banned it, because it was a drug only available in Europe. At that point, I started looking into how enzymes break down food and toxins in the body. I also looked into the microbiome, which is the eco system the enzymes work in And I looked into if there are other things I could take to boost enzymes, in addition to sealing any possible dysbiosis that could exist due to enzyme deficiency. Long story short, Benfotiamine helps boost enzyme production and Bovine Colostrum can help fight dysbiosis. Try both of those. Lastly, with Parkinson's, due to poor metabolism, heavy metals can build up in the body. You'll need to take a chelator to remove it from your bloodstream, otherwise, what's there will stay in your system, bentonite clay will help here. Please try these, and if you're single, let's talk - you're cute 😉

[@realself9599]

Wish you the best...your inspiring and brave.

[@SDWP]

Thank you!

[@alananthony7053]

This is probably neither helpful nor relevant, but may I just say that you are the most gorgeous Parkinson's survivor that I have ever seen?❤ ❤❤

[@SDWP]

Ha ha! Thank you!

[@RobdeKlerk-qg6lc]

Does Parkinson's disease causes people forgetting to breath...? ​@SDWP

[@SDWP]

@@RobdeKlerk-qg6lc not that I know of

[@iCanHearUSign]

@@RobdeKlerk-qg6lcParkinson’s can impact autonomic body functions such as breathing.

[@RobdeKlerk-qg6lc]

@@iCanHearUSign thank you....

[@louisegreen5711]

My husband held off as long as he could before taking the meds. As it's correct, what you said about the meds.

[@SDWP]

I ended up getting on them right away. I think I mentioned the update in the comment. It really made a difference right away. I am dealing with a little dyskinesia, but at least I can function more normally. Most people do say not to wait. I hope he's doing well now!

[@1tennismama]

Your video was reassuring to me, I didn’t initially recognize the non motor symptoms. Now I see them as the bigger problem to manage.

[@SDWP]

I agree they are the bigger problem. Glad I could help.

[@SouLightness]

Amazing. Your symptoms are almost exactly as mine and at the same time...

[@SDWP]

I'm glad you were able to get a diagnosis as well. It really helped knowing what it was that was causing all the issues. Wish you the best!

[@steveswoodworking2504]

Thanks for the info, and best of luck to you. I'm going thru some symptoms, tremors, loss of smell, and yes, trouble sleeping. Intestine issues, and yeah, I've fainted too. I think a lot of this may just be very early on, no diagnosis yet.

[@SDWP]

I hope you get in to see a neurologist soon so you can get to the bottom of it. Best wishes!

[@JeremyMcdonald]

Thx for being so honest! I look forward to watching more of your videos.

[@SDWP]

Thanks! 🙂

[@lorrainebevins2822]

​@@SDWP ĺ⁰9 Ni ķ

[@GoProGoalieUzi]

Nice to see you! Thank you for subscribing to my channel my dear❤️ PD is definitely a battle I share the same symptoms as you. I don’t have tremors yet, but few days ago had a slight limp in right leg. For the next three days at work, increase heart rate, and sweaty. I ended up going to emergency the next morning as my heart rate was pumping. I had a panic attack!! First time ever!! In January it will be 5 years into my battle. I exercise every day, and mountain bike. Stay safe my dear and see you on the next one 🤙🏽🇨🇦

[@SDWP]

Sorry you had a panic attack. I've had one of those before...so I know how awful it feels. Keep up with the exercising. BTW, look into Red Light Therapy. I bought some panels and I believe it has helped with the pain! I'll make a video on it soon. Best of luck!

[@GoProGoalieUzi]

@@SDWP will do. My mds called me today on her vacation. She prescribed me mirtazapine 15mg to help with my sleeping..I just can’t get a solid sleep for many months now. Hopefully that will help me out.

[@SDWP]

@@GoProGoalieUzi I've been using Trazadone for sleep. I've been on it since about 2004. Before that...I could never get through the night. I hope your new prescription works for you!

[@johndonaldson5126]

All of this sounds so familiar. It was 7 years between me thinking I had PD and finally having a clinical diagnosis. I have about 20 non-motor symptoms. Only in the past month have motor symptoms begun to creep into the picture.

[@SDWP]

It is quite amazing how many symptoms are linked to PD. I'm so glad that the medication has helped bring back some normalcy. Hopefully meds are working for you as well. Best wishes.

[@jillfrost1803]

How far Have a happy, Michelle

[@LifewithParkinsons]

Hi Michele, great video about your diagnosis journey. Thanks for sharing.

[@SDWP]

Thank you and you're welcome!

[@sylviafleet6650]

I had similar response when I first started getting symptoms mild tremors that progressed ,I mentioned possible Parkinson’s to my doctor on several visits , he told me in no uncertain terms that I DID NOT HAVE Parkinson’s , it was essential, tremor , it got so bad I saw a different doctor who straight away told me I had Parkinsons & referred me to a specialist who prescribed me medication that has turned my life around I am angry that for several years I put up with symptoms because of wrong diagnoses

[@SDWP]

That’s awful. I’m sorry you went through that. I’m glad to hear you are doing much better! God bless you! Wishing you the best.

[@thomasalundago6332]

I pray they find the cure.

[@marielalichasalomon6332]

I suggest that you watch Dr. Mark Hyman’s interview of a Neurologist who is documenting how patients of neuro-degenerative diseases (including Alzheimer, Párkinson, ALS and MS) improve when their Microbiome issues (particularly Clostridium difficile) are tackled.

[@SDWP]

Thanks for the tip! I’ll check it out.

[@marielalichasalomon6332]

In fact, Dr. Mark Hyman has interviewed two renowned Neurologists who attest to the crucial role of diet and particularly Microbioma, in the amelioration of Neuro-degenerative diseases. Of course, diminishing stress, exercise and improved sleep are also important.

[@rossmiles7169]

Thank You for Sharing from a PD patient 🙏

[@SDWP]

You're welcome.

[@MikeMercury]

I still go to the gym 3 times a week. / important to stay active even if its sometime tough

[@sammyelliott5554]

Identical story of my brother. Took 2 years for him to find out what he had. He is exercising to stay in shape and mobile.

[@SDWP]

That's great he's staying active. It does make a huge difference! Best of luck to him.

[@jamesphillips558]

Thanks for sharing. I am newly diagnosed. Still staying active and living my life and have a number of symptoms. Once I had tremor on my left hand I realized that I had this disease which has recently been confirmed by a neurologist

[@SDWP]

Glad to see you are still keeping an active lifestyle. I wish you the best!

[@cornelisredmond8877]

​@@SDWP9:18

[@cornelisredmond8877]

❤❤❤❤

[@j6453]

Thank you for sharing your story :)

[@SDWP]

You’re welcome ☺️

[@trevorbates8972]

Like many other people I have/am having health problems...fully explored medically when and as required...but, at the end of the day, it is the patient who continues to suffer. My experiences tell me that our liver becomes less efficient as we progress through life and loses muscular strength so that it becomes, numb, inefficient, and a dead weight hanging off vital organs that depend upon it's good order. I find Jesus Christ my greatest aid...who taught me how to sip water in a therapeutic way, and this helps me.

[@SDWP]

Jesus is who brought me out of my depression. I prayed often for the dark cloud over my head to be lifted and one day it was gone. I suddenly felt happy, no longer depressed and I continue to feel that way. I plan on mentioning that in my next video. Mark 10:27 is my favorite verse. Best wishes.

[@scoop123456789]

Stay strong and beautiful! See you next Monday.......virtually that is..... :)

[@SDWP]

Hello! Thank you. I look forward to meeting the group. Thank you so much for letting me in the circle. 🙂

[@MikeMercury]

thank you so very much for sharing .....will follow you all the way

[@SDWP]

Thank you!

[@brandonlefler5226]

I see my primary in April....then aftervthat hopefully the specialist....1st thing I noticed with me is no more natral arm swing in my right arm anymore , and now both my hand jerks or shakes whenever it feels like....then forgetfull stuff and gas and runny nose more often. Anyways I am thing I have what you have and I am ready to find out what I am really dealing with....Thank you for your videos it helps me understand the logic of it all

[@SDWP]

I’m glad I could help. I’m sorry you’re dealing with these symptoms. I hope the doctor can properly diagnose you and you can work towards getting better. God bless you. Best wishes.

[@MikeMercury]

I have problems with my right side and balance too

[@SDWP]

Glad it's just one side

[@skookum86]

Thank you 🙏 VERY helpful.

[@jorgemariogiacobonelopez9328]

Thanks for Sharing

[@SDWP]

You're welcome!

[@LillySan-p5k]

Thanks u

[@SDWP]

You’re welcome

[@MikeMercury]

youre a fighter......

[@orangeziggy348]

My toes have been weirdly stiffening up like a cramp and I have to push them back into place which I told my Dr about but she didnt say anything. My whole body has suddenly felt weaker just in the past few months and my muscles feel weaker and my left hip joint has become very weak almost seeming to give out. Not sure what I have I am not diagnosed but my mother has parkinsons and I am 48.

[@SDWP]

Definitely keep pushing your doctor for answers and get referrals to specialists, if necessary. Don't let them make you feel like it's all in your head, like mine did. Are you a woman or a man? I ask because if you're a woman...look into menopause symptoms. Apparently there's A LOT of symptoms related to menopause.

[@anneperry3661]

Take the meds. It makes you so much better. The disease progresses with or without the meds. They don’t make you worse. I resisted taking Sinemet for 6 months. When I discovered dancing was difficult at my daughter’s wedding I decided to try it. Results were amazing. I’m nearly normal if I stay on schedule. That was 6 years ago. We all react differently and present with different symptoms. The little yellow pills work for me. I recommend the meds.

[@SDWP]

I actually did get on them right away. I think I had an update under the video. Yeah, it was night and day and I'm glad that I did start right away. I'm glad you are doing good as well too. Best wishes!

[@eddieramos6883]

How are you doing now ? Are you in full Parkinson ? Please up date us .

[@SDWP]

I’m doing well. Thanks for asking! I’m pretty much the same. Maybe slightly more dyskinetic on occasion, but it’s not too bad. I stay up with exercising and red light therapy so that probably helps. I live a fairly stress free life so I’m sure that helps too. I hope you are well. God bless.

[@MikeMercury]

recently experienced fatigue in the last few months

[@SDWP]

Hope you’re feeling better

[@MikeMercury]

merci dear

[@MikeMercury]

from montreal canada

[@macclift9956]

I'm just wondering if you've been on any kind of vitamin/mineral supplements for a long time. My father had Parkinson's so it's in our gene pool.

[@SDWP]

No, I haven’t. Best wishes for your father.

[@waynebenoit7135]

Hi Michelle, I watched your video on dating. I too was looking for someone as well as I have PD. I would like to some how meet you in person or online. Just sure how to contact you. Wayne

[@SDWP]

Best of luck on you PD journey.

[@Rogelio_007]

Would a desk you can adjust from sitting to standing help you?

[@SDWP]

I do have one of those and it’s helpful.

[@Rogelio_007]

@@SDWP That's great! ❤️

[@coursepro1]

Hi, do you feel shaky legs and thighs while walking ? Please let me know.

[@SDWP]

Hello! I don’t. I get more of a limp when my medicine starts wearing off.

[@waleyefish9026]

In your youth did you smoke a lot of weed? Some of the Weed had Paraquat Herbicide in it. This could be your problem you have been poisoned.

[@SDWP]

Actually no, I didn't. Interesting though!

[@astrozoo]

More often it's stimulants like cocaine and methamphetamine the induces these symptoms, wears out dopamine production

[@27mailam]

do you have continous trembling?1:40...most of the people write and type with 1 hand from childhood...

[@SDWP]

I don't have continuous tremnbling.

[@27mailam]

good luck... i have all symptoms except trembling from 10 years and i keep trying many tricks to help my condition...can you give some tips about some natural remedies which make you feel better@@SDWP

[@rosemaryclarke6250]

How are you now?

[@SDWP]

I'm still in a positive headspace. I take each day as it comes and make the best of it. Thanks for asking!

[@DrummingWithParkinsons]

Hi there I'm thirteen years since YOPD diagnosis. Your mindset at this stage of the PD journey is on point (similar to mine) and will get you through the tough times ahead 🦾

[@SDWP]

Thanks for the encouraging words. I’m glad you’re doing so well. Very cool you’re teaching yourself the drums. Best of luck.

[@DrummingWithParkinsons]

@@SDWP thx Michele. KZbin is my tutor! How fortunate are we to have this space where we can share and learn for free?

[@SDWP]

@@DrummingWithParkinsons it is pretty great