The Parkinson's You Don't See: Cognitive and Non-motor Symptoms

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Davis Phinney Foundation for Parkinson's

Davis Phinney Foundation for Parkinson's

Күн бұрын

Пікірлер: 769
@farzan000
@farzan000 9 ай бұрын
This Doctor is a fantastic professor! 👏👏 English is my second language and I have been having problem undestanding some Americans and British accents, but I understood easily 100% of what she said. Literally! She speaks standard English and should be a role model for all lectures who want to present an intelligible lecture on the any international arena!
@davisphinneyfdn
@davisphinneyfdn 9 ай бұрын
Thanks for this comment! We'll pass along your feedback.
@farzan000
@farzan000 9 ай бұрын
@@davisphinneyfdn It is appreciated! 👌🙏
@RG-hf4et
@RG-hf4et 2 жыл бұрын
Patients with Parkinsons do much better under the care of a neurologist than other md's. As soon as my dad's hand tremors started, I got him to a neurologist. He has had Parkinsons for about 10 years & now is 90 years old. He is doing a lot better than some 70 year olds!!! I am in the health care field & understand Parkinsons very well....Also, most patients are slower in the morning. My dad's best time for md appointments is 1:00 pm. Then we go to lunch, maybe stop at Home Depot or Costco, we return home & he is ready for a nap. Don't overschedule & try to do 2 md appointments in one day unless they are in the same building. Costco & lunch are fun things after a doctor appointment. Sometimes he wants to do both. Other days if he is tired, we just do one. Be flexible as a caregiver.
@davisphinneyfdn
@davisphinneyfdn 2 жыл бұрын
These are really great strategies for care partners. Your dad is lucky to have you!
@RG-hf4et
@RG-hf4et 2 жыл бұрын
@@davisphinneyfdn Thanks for your reply. I am the lucky one. My dad has always been there for me & has been a wonderful father my entire life. I couldn't ask for better dad. I will do anything I possibly can to try to make his life easier & fullfilling for the rest of his days. I have been blessed & feel very,very fortunate to have him as my dad.
@MusaShide-h1r
@MusaShide-h1r Жыл бұрын
Mother is having parkinson for six good yrs.what is ur advice it get worsen daily
@dynoranch1205
@dynoranch1205 9 ай бұрын
​@davisphinneyfdn I'm 36 and just got diagnosed with it, it has started with my short term memory and my wife kept telling me it's fine, its fine your over worked, and stressed and I told her I'm not over worked and somethings off I need to get in and figure this out. We'll I'm kinda getting the answers to these questions.
@SimonRajan
@SimonRajan 8 ай бұрын
K​@@dynoranch1205
@vonshango6311
@vonshango6311 2 жыл бұрын
PD impairs: *ability to think flexibly *ability to problem solve *ability to initiate behaviors *behavioral regulations *cognitive problems changes in personality 50% unusual anxiety 90% sleep disturbances autonomic system dysfunction *bladder *constipation *heat problem, temp regulation *saliva/tear production 30% pain syndrome that cant get figured out 5:00 95% experience cognitive changes (in thinking) 25-30% develop some frank dementia; impairments that (temporarily) disrupt routine daily functions. executive and organizational function language and communication executive dysfunction affects *problem-solving *planning/organization *decision-making *retrieval of words (ex when excited) *cognitive flexibility initiation/motivation to engage (ex exercise or socialize) visual spacial dysfunction *depth perception (bump into things) *hallucinations speech/language problems 10:22 memory, difficulty retrieving (ex old memories), but once retrieved does not go lost again as in alzheimers. 11:00 personality changes *greater irritability *difficulty with frustration *anxiety *lack of motivation 13:30 dopamine therapies can cause sleep disorders *random daytime sleep attacks (dangerous in car, at work, if standing/walking) mixed with anti-histamines can cause confusion and higher risk of falls 14:50 you are not crazy or lazy; you have PD 16:15 movement disorder specialists grasp the complexity of PD and how Rx impact it all 19:36 speech therapy 20:20 exercise is as beneficial as any PD Rx 24:22 early DBS treatment may lower need for dopamine therapies later which can relieve/benefit non-motor challenges. DBS deep brain stimulation involves a brain implant invasive surgery.
@ElinWinblad
@ElinWinblad Жыл бұрын
How is this different than adhd
@xyz-gx9oy
@xyz-gx9oy Жыл бұрын
Why does she keeps lifting up her arm every so often?
@lorieauchter5880
@lorieauchter5880 Жыл бұрын
Thanks for putting this together. It helps to see it written down, especially in a list format.
@Katie-vy5rd
@Katie-vy5rd Жыл бұрын
Thank you so much
@Vbluevital
@Vbluevital Жыл бұрын
It is incredibly nice of you to do clearly outline thee entire content. Great Appreciation!!
@BruceHulslander-wt6dw
@BruceHulslander-wt6dw 10 ай бұрын
Best Parkinson disease presentation ever. Now showing it to all my patients and their families who deal with the disease.
@sandym4494
@sandym4494 Жыл бұрын
My husband was just recently diagnosed & this video explained it all… I had SO many questions! Thanks much… valuable info!
@AngelaMcCarthy-zz1fq
@AngelaMcCarthy-zz1fq 9 ай бұрын
1:22 my son in 1:52 law just diagnosed
@AngelaMcCarthy-zz1fq
@AngelaMcCarthy-zz1fq 9 ай бұрын
What can I do to help??
@Rachel57294
@Rachel57294 2 жыл бұрын
Thank you for your video. My father has Parkinson's Disease caused by Agent Orange while serving in Vietnam. One day my father stopped talking. He would just whisper. He whispered for about 4 months then stopped talking all together. I'd give ANYTHING to hear his sweet-caring voice. 😢 It's awful watching him choke and aspirate while he wastes away. We are doing everything in our power to keep him well and pain free. 🇺🇸
@bluecube7247
@bluecube7247 Жыл бұрын
Well, now I know... no longer in denial 🙌 😌 thank you for explaining everything we are experiencing because of Parkinsons... wow, jaw drop, sigh.
@MichaelHarrisIreland
@MichaelHarrisIreland 7 жыл бұрын
This is the best video on Parkinson's I've seen because the person knows what they are talking about. And that makes all the difference.
@parusudi1
@parusudi1 4 жыл бұрын
I wish someone had talked to me like this 32 years ago...
@OriginalAcefanatic
@OriginalAcefanatic 3 жыл бұрын
This is the best video I’ve found about Parkinson’s. I highly recommend it to anyone who knows anyone with Parkinson’s.
@sandrahelmantoler7098
@sandrahelmantoler7098 3 жыл бұрын
Ok
@barbarasherrick3007
@barbarasherrick3007 3 жыл бұрын
@@sandrahelmantoler7098 i agree. I dont know how many people ive referred to this video. My husband has watched it a number of times
@Kenfederalway
@Kenfederalway 3 жыл бұрын
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@Kenfederalway
@Kenfederalway 3 жыл бұрын
@@barbarasherrick3007 io99o0 ooo ooooooiioop8
@annetjiebothma1442
@annetjiebothma1442 2 жыл бұрын
Hoe is pd se progmode
@williambarr2898
@williambarr2898 2 жыл бұрын
No one has said what I deal with every day so well as this Lady has and made me understand it better. GREAT JOB.
@patriciatan1258
@patriciatan1258 Жыл бұрын
O] I] {;;
@marylamb128
@marylamb128 Жыл бұрын
How did they diagnose u did u have a tremor?
@terrieladow6423
@terrieladow6423 7 ай бұрын
Helpful for my family and I. Finally found out 4 months ago. I've gone through so much and now it's maintenance. I'm 60
@myheavenlynails
@myheavenlynails Жыл бұрын
I love this!! I have several clients with Parkinson but 1 with a rare Parkinson. I love working with all walks of life #elders #Parkinson #heavenlynailsonthegospa #love #blessings
@docrexaudilover5974
@docrexaudilover5974 5 жыл бұрын
She managed that I kept on listening until the end of the presentation. It lasted a very long while because I was stopping the video and made plenty of notes. I learned a lot. Awesome presentation. Thanks a lot.
@debraj819
@debraj819 3 жыл бұрын
Thank you for this video…can you provide one for Parkinson’s without tremors?
@fauzanahmad3943
@fauzanahmad3943 9 ай бұрын
Loll same. Double sided
@lyndafeig7465
@lyndafeig7465 2 жыл бұрын
So thankful to be reminded of this reality with Parkinson's Disease. My husband was diagnosed in 2017. Like this presentation, reminders of the "hidden" realities of Parkinson's helps to remind me that my husband is not perposefully choosing to be difficult. I will share this with family and remind them once again that Chuck does not necessarily have control over his resistive responses toward us. Thank you!!
@marylyndurie7313
@marylyndurie7313 2 жыл бұрын
😊
@carolynsole4651
@carolynsole4651 2 жыл бұрын
I have exactly the same with my husband. It is very hard to deal with someone who also does not accept help and gets aggressive. Im 59 and he is 73 and we have been together for 34 years. It is his inability to accept his situation, our situation, that is so frustrating for both of us and his behaviour towards me is so different to what he projects to others even our children. I have been trying all of these techniques, I think this video will certainly be very useful for him too. Thank you.
@annesquire8616
@annesquire8616 Жыл бұрын
@@carolynsole4651 l llll, m,😊😊
@nirmalakallianpur3191
@nirmalakallianpur3191 Жыл бұрын
? 😊😊
@awolff1342
@awolff1342 Жыл бұрын
z and guide 😊 l
@judemorales4U
@judemorales4U Жыл бұрын
I was just diagnosed at age 69. Honesty I am scared. I have to say this speaker has done a beautiful job, making an advanced topic be comprehensive. Simply brilliant.
@timbiglow9676
@timbiglow9676 Жыл бұрын
I had my family watch this as they didn’t believe I had PD as I’m tremor free. Hang in there, Jude.
@judemorales4U
@judemorales4U Жыл бұрын
@@timbiglow9676 thank you so much
@muniraddas9743
@muniraddas9743 Жыл бұрын
Porn you guys can get the car 🎉 nmmmmmmm my uh hey hi hi uuuuuhhjhhhhhh😢😢😢
@PattieWalker
@PattieWalker Жыл бұрын
@@judemorales4Umy
@johnseymour1225
@johnseymour1225 Жыл бұрын
4:26
@VioletSpence-p8i
@VioletSpence-p8i Ай бұрын
My name is violet. I was diagnosed with Parkinson disease a year ago! Thank God for you! Sometimes I feel so sad and alone!
@chaseme9860
@chaseme9860 Ай бұрын
Always tell yourself, you were fortunate not to get ALS.
@TheMrPandabeast
@TheMrPandabeast 29 күн бұрын
@@chaseme9860Both diseases are dogshit. My grandpa has Parkinson’s and he pretty much isn’t himself anymore and at night he goes full demon mode. Sucks to see the person you love just lose himself and go nutty. He’s not a person you want to be around anymore.
@chaseme9860
@chaseme9860 29 күн бұрын
@@TheMrPandabeast If they are, then Parkinsons is a dry hard one in the winter, and ALS is explosive diarrhea on a white shag rug.
@billzager4874
@billzager4874 5 жыл бұрын
Nothing short of brilliant. Twenty-six life altering minutes for some people. Limitless thanks, Dr. Hamilton.
@erinreagan1054
@erinreagan1054 Жыл бұрын
Iiiiuiuuuuiiuuiuuuiuuuiuiuiuuiiuiuuiuiuiuuuiiuuiuuuuiui😅
@alisonseaman5027
@alisonseaman5027 Жыл бұрын
i agree excellant
@charmcoop1
@charmcoop1 Жыл бұрын
I was diagnosed about a year ago and have to say thank you for addressing these issues. Mostly people look for visible signs and the only ones I had were falling for no reason. You addressed nearly every symptom I experience.
@angelacharlebois6567
@angelacharlebois6567 4 жыл бұрын
Being a Health Care Worker to someone with Parkinson's, i found this to be the most informative video i have seen. She is so well spoken. I am going reccomend this video to anyone i know affected by this complex disease.
@barbaracollier8751
@barbaracollier8751 2 жыл бұрын
Excellent! I fear I haven’t been diagnosed with PD. I plan to bring it to my physician’s attention as well as my family’s. I must be pro-active.
@roberttomasetti3654
@roberttomasetti3654 Жыл бұрын
Excellent presentation. I would welcome corresponding with you, Dr. Hamilton. My first indication of PD was "loss of smell."
@symbyxbiome
@symbyxbiome 2 жыл бұрын
Great lecture. In our opinion not enough discussion and awareness of the difficulty of managing the non motor symptoms, and also the side effects of some of the medications for PD. Thank-you for posting this.
@helenblyshak7015
@helenblyshak7015 6 ай бұрын
We need something positive
@RAINYDAYS00505
@RAINYDAYS00505 3 жыл бұрын
I have been struggling WITH everything you have talked about...I wish I had known this, you changed my life...I would just put myself down and say I must be lazy, stupid and a )big baby concerning pain). I was diagnosed two months ago....out of the blue. Thanks to my "abnormal movement's"!
@marykaymorley8551
@marykaymorley8551 5 жыл бұрын
Thank you for putting this on You Tube. My husband has Parkinson's. This explains so very much. Thank you.....
@rosemaryclarke6250
@rosemaryclarke6250 10 ай бұрын
Excellent presentation. Thank you
@jamesvanzant-s3t
@jamesvanzant-s3t Жыл бұрын
Thank you for that! I’m 38 and I have been told that it’s probably Parkinson’s! Some of the things that you’ve mentioned resonates for well. I’ve always been very healthy, and always been strong guy. Many of the points that you have pointed out have not been addressed with my movement specialist, especially the pain in different parts of my body that have been undiagnosed. No doubt you have truly taken time to think about and analyze this disease. I’m the baby of a eight children and no one else has this disease but me. I appreciate that you truly are trying to understand and sympathize with peoples feelings. Even though it doesn’t seem that you are coping with this disease it’s nice when someone tries to empathize with you. Thank you again,
@davisphinneyfdn
@davisphinneyfdn Жыл бұрын
We are here for you! If you haven't registered already, consider signing up for updates and to receive links for our monthly Meetup: davisphinneyfoundation.org/event/webinar-series-living-with-parkinsons-meetup/
@JohnJenner-pb6ue
@JohnJenner-pb6ue Жыл бұрын
Hl
@thepinksidewalk
@thepinksidewalk 7 ай бұрын
Hi, very nice presentation. I am 84, and in the “do I or don’t I have Parkinson’s”. I have gone to 4 movement neurologists/Dr’s and are 2 to 2. NEGATIVE DAT scan. I tend to be, I don’t have or I am in denial! I am doing ok, normal disintegration we all have. Trudge on, my main problem is “organization”. Bless you, and I am sure you are doing well. SteveH
@jalang63
@jalang63 2 жыл бұрын
Great instructional presentation. I sent to my immediate family once I was diagnosed. This explains the internal symptoms
@kennethnoseworthy8125
@kennethnoseworthy8125 2 жыл бұрын
A man I very much admire has Parkinson’s. I have been trying for many years to explain my thoughts to him. After watching this, it o cures to me that as important as he has been in my life. I may actually be aggravating his situation by trying too hard to explain how important he has been in my life. This video explains many things that I really didn’t understand about what he going through.
@TheOriginalKilamanjaro
@TheOriginalKilamanjaro 5 жыл бұрын
Im 45 & was diagnosed this yr with this. My mood swings, & over all total body exhaustion is really hard to deal with. On maximum dose of medication for it & it helped the 1st month with my mind was clearer & i could think of each step to do thru the day. Now tho I'm already slowing down with thinking again. The anxiety & depression is just so crazy too
@frederictudor3882
@frederictudor3882 4 жыл бұрын
Wry clear and rational presentation recognizing many issues of PD.
@maryfitzpatrick6331
@maryfitzpatrick6331 4 жыл бұрын
This is an excellent presentation especially for patients and their families recently diagnosed with PD.
@hettieels5540
@hettieels5540 2 жыл бұрын
Thankyou 💕
@SamuelJLupica
@SamuelJLupica 2 жыл бұрын
Good friend of mine was diagnosed recently and as those of us within his inner circle prepare for the future this was a truly helpful presentation… thank you 🙏
@bonniekerr6890
@bonniekerr6890 2 жыл бұрын
Bless you & your friends for making a plan to help. This man is very fortunate.
@shanemckenzie8681
@shanemckenzie8681 Жыл бұрын
Bless you. Parkinson’s people are the best people. They always have the biggest heart.
@lourdesorellana9343
@lourdesorellana9343 2 жыл бұрын
I am very happy to heard someone can explain Parkinson disease so clear and even make us feel secure optimistic, thank you for an excellent explanation! I wish more people can listening specifically those like me that have a son 27 years old now going in our 5th anniversary with PD and discovering so many of the topic she explained this disease is not only a tremor or walking slow is a lot more and definitely we all need to be educated
@davisphinneyfdn
@davisphinneyfdn 2 жыл бұрын
Lourdes, I'm so glad you got value out of this presentation. We are al about continuing to educate the community on ALL of the symptoms of Parkinson's, not solely the most commonly represented. I hope you continue to find our content valuable.
@Cruella-Deville
@Cruella-Deville 4 жыл бұрын
you are a lovely person ,so many things i recognise with my Parkinson’s
@SirGeraint
@SirGeraint 8 жыл бұрын
EXCELLENT video. The best I have seen so far.
@averyholmes1790
@averyholmes1790 4 жыл бұрын
4+
@evelina2363
@evelina2363 4 жыл бұрын
Excellent presentation. Unfortunately I confirm many neurologists treating Parkinson limit their work to prescribing drugs to address motor symptoms and don't ever inform the patient and the family of the other symptoms or drugs side effects, so when those happen they are even more terrifying to witness because they are completely unexpected. Actually, I feel often doctors do not even recognize non-motor symptoms as relevant symptoms that can greatly impact the quality of life and should be addressed.
@JohnJenner-pb6ue
@JohnJenner-pb6ue Жыл бұрын
18:20 18:21
@cosmichealth3907
@cosmichealth3907 3 жыл бұрын
Thanks...brilliant presentation Along with the diet , vitamin and minerals have played a huge role in the recovery of clients...
@ronloom3757
@ronloom3757 Жыл бұрын
Packed with information and so very helpful.
@elisabethmorre-deen3506
@elisabethmorre-deen3506 Жыл бұрын
Thank you. Makes so many moments clear for me.
@tedfuetsch7564
@tedfuetsch7564 3 жыл бұрын
I found this presentation to be precisely accurate. My wife and I watched it together. I worry that my current neurologist doesn’t seem interested in the non motor aspects of my experience.
@stevewinter1058
@stevewinter1058 7 ай бұрын
Exactly! My movement disorder neurologist is at one of the top five Parkinson's treatment and research facilities in the Country. He is very well respected in the field when it comes to evaluating and treating the non-physical symptoms of the disease but has very little advice regarding non-motor symptoms. Fortunately, I have had a long-term psychiatrist treating my ADHD who has a lot of experience treating people with non-motor symptoms of Parkinson's.
@terikc2012
@terikc2012 8 жыл бұрын
I was just diagnosed and this really fits me to a T. Best video I have watched so far.
@rogueveteran77
@rogueveteran77 5 жыл бұрын
Stop with the BS please
@rochellekovar8764
@rochellekovar8764 4 жыл бұрын
@@rogueveteran77 ANCD Andshajai3.
@heleningvalson2003
@heleningvalson2003 2 жыл бұрын
This video is filled with helps for a Parkinson’s caregiver. She understands the problems very well.
@wilmabozenhardt5175
@wilmabozenhardt5175 2 жыл бұрын
This is the best info on non motor symptoms of P D I hv ever heard. It is concise and clear and gives help to caregiver in learning how to respond and help your loved one.
@ravenelder7325
@ravenelder7325 4 жыл бұрын
Wow. This might be the most helpful video I've seen so far. She's amazing. She explains things so perfectly and I felt like she was speaking my story.
@Anonymous-lq2bs
@Anonymous-lq2bs 3 жыл бұрын
Thanks, my mom has Parkinson’s and I’ve been looking for a solid video to educate myself.
@SlothyWoffy
@SlothyWoffy 5 жыл бұрын
Best parkinsons video I've seen yet. She done great. What an amazing speaker.
@kerryevermann1626
@kerryevermann1626 4 жыл бұрын
Ll
@elliekahn1681
@elliekahn1681 4 жыл бұрын
As a care partner, it has been difficult for me to be as helpful as I can. Thank you for your detailed explanations along with ways to handle/deal with them as a partner and for my husband as well.
@skylerstraight7697
@skylerstraight7697 3 жыл бұрын
Can i ask you question?
@drmarkusmaur6745
@drmarkusmaur6745 3 жыл бұрын
This may help, kzbin.info/www/bejne/l5zYcoisjtWNbLc
@davidik1
@davidik1 2 жыл бұрын
@@skylerstraight7697 qqqd D C C Cccccc
@melissamelancon1153
@melissamelancon1153 Жыл бұрын
I was diagnosed last November, 2023. I am 70 years old and have suffered with anxiety and panic attacks all my life. I take meds for that. I am generally a fun happy person but lately I seem to be depressed terribly and I exercise every day, play ping pong, pool, foosball, take a rock steady boxing class twice a week. But my anxiety has really interfered with my daily functions, that scared feeling. I am going to seek help tomorrow to see a psychologist to get help for that. I love your book. It has helped me a lot. I have a sign on my bathroom wall that says rising helix because that is what I want to be for others! God bless you!
@davisphinneyfdn
@davisphinneyfdn Жыл бұрын
Thanks for your comment. We hope your visit went well and you found it helpful.
@GailRiley-k5n
@GailRiley-k5n 7 ай бұрын
what about mobility?
@onfriendsd
@onfriendsd 4 жыл бұрын
Thank you for the presentation . Helped me and my family
@ingridakerblom7577
@ingridakerblom7577 5 жыл бұрын
Studying to be a practical nurse, this was really helpful! Thank you!
@luzangeles3829
@luzangeles3829 4 жыл бұрын
ifmy parkinsonsdisease deterioted, do i accting like crazy do i acct violence? tnx.
@stevenkingsley101
@stevenkingsley101 4 жыл бұрын
Help us come
@victoriakendrick6906
@victoriakendrick6906 3 жыл бұрын
I found this very useful and interesting.....right to the end of video.Im a part time support giver for a friend who is 7yrs down the line with Parkinsons Disease.I recognise much of what was discussed.This learned woman put it into words for me.
@Floppy-u6l
@Floppy-u6l 8 жыл бұрын
This is a very good talk. Thank you for posting it.
@16borabora
@16borabora 6 жыл бұрын
2008 I was diagnosed overactive thyroid problem 8 years ignore this disease 2016 February one day I was watching tv suddenly my both hands was numb I couldn't open my hands I was panic suddenly hear massive sound from my head it was mini stroke my tongue was shaking my face was red ! My thyroid level was high and I'm diagnosed Parkinson disease ! Silent stroke cause Parkinson disease ! Suddenly happened I was shocked unbelieveable
@pattypeas2897
@pattypeas2897 Жыл бұрын
I was diagnosed with PD just over 5 years ago and this video explains most of what I personally have gone through. I shared it with my friends and family hopefully they get it and understand it a bit more . All you Parkies out there remember to take ur meds in time and get your buts out of bed stretch, move your muscles , get some sun on your face , drink lots of water and smile cause your not gonna let this PD own you !!!! Ok nap time 😊
@danielherlihy4685
@danielherlihy4685 Жыл бұрын
Thank you so much for this information
@paullockton6005
@paullockton6005 Жыл бұрын
Which video is mentioned in the comments and quotes
@gulserentekbas555
@gulserentekbas555 Жыл бұрын
,❤
@vernaperreira2146
@vernaperreira2146 5 ай бұрын
Thank you.❤
@lucylu0615
@lucylu0615 2 ай бұрын
😢😢 my husband was just diagnosed. I’m scared of what’s ahead as I’m also sick😢
@jo-annchase3529
@jo-annchase3529 Жыл бұрын
Great 🎉presentation 👏 👍. Thank you very much.
@lewiswazniac8977
@lewiswazniac8977 3 жыл бұрын
I would have benefited from this 10 years ago.
@fransdecock8933
@fransdecock8933 2 жыл бұрын
Frans De Cock I was diagnosed 10 Years ago. In a few minutes now I recognised my own non motor disorder. A partnerrelation meanwhile ended because of compulsiivedysorder and family discussions about mental health lay behind.Watched twice in tears. Now time to move on, exercise and work, challenge together.
@davisphinneyfdn
@davisphinneyfdn 2 жыл бұрын
Frans, so glad you found value in this video. I hope you realized you are not alone! Don't hesitate to reach out should you have any questions.
@cathleeneichhorn9358
@cathleeneichhorn9358 2 жыл бұрын
I was diagnosed with PD 9 months ago but I know now I had symptoms starting about 5 years ago. My tremor is mainly only in my left hand so not a big problem when I am not stressed. I used to be very organized and would enjoy taking on projects. Lately I have given up my volunteer position because I don’t feel I can do a good job any more. This video helped me immensely to understand some of the symptoms I was not aware of.
@patricianorman7302
@patricianorman7302 Жыл бұрын
One of the most difficult[t symptoms is speech and the loss of speech or jumbled speech and not being understood It means I have to carry note paper and trying to get understood . The problem most of life is done at a cracking pace from the supermarkets to getting problems fixed. It is alright if you have someone who does not work that can go with you
@rosebowala8547
@rosebowala8547 Жыл бұрын
Thank you very much madam
@garyyoung1141
@garyyoung1141 Жыл бұрын
😅😅
@garyyoung1141
@garyyoung1141 Жыл бұрын
😊
@subh1510
@subh1510 Жыл бұрын
Did you have sleep problem fatigue or smell problem or constipation before any motor symptoms.
@roscoro
@roscoro 2 жыл бұрын
Excelente charla. Reconoce la importancia del ejercicio y además dice la verdad acerca de los agonistas, producen efectos no deseados. Es difícil para los cuidadores y familiares entender los síntomas no motores, pero para el paciente es mucho más difícil ya que tiene que convivir con ellos sin entenderlos tampoco.
@LSander153
@LSander153 7 жыл бұрын
Extremely well done presentation. This lady knows her stuff.
@jimgallagher5902
@jimgallagher5902 5 жыл бұрын
Agreed 100%. I have frontotemporal dementia and I wish I had seen this video before I got the diagnosis.
@timwheeler7545
@timwheeler7545 4 жыл бұрын
I am having my daughter and son-in-law (we live together now for financial and mental support.) watch this video so that we can work together and communicate better concerning my Parkinson’s.
@loismorehouse137
@loismorehouse137 4 жыл бұрын
Lou Sande
@sheliacockerham-pi7tj
@sheliacockerham-pi7tj 6 ай бұрын
The best explanation I have ever heard. thanks ⚘
@johnnyaranda605
@johnnyaranda605 10 ай бұрын
❤thanks for the update 🎉❤❤
@Thrivebeyond65
@Thrivebeyond65 4 жыл бұрын
Thank you, for this fabulously informative video about the many complications of PD I had no idea about.
@markkoons7488
@markkoons7488 Жыл бұрын
Helpful. Thank you.
@annemccarty7361
@annemccarty7361 5 ай бұрын
Wow! Amazing resource for family members or caregivers who have a loved one with Parkinson's Disease. As a caregiver I wish I had discovered this video much sooner. Even though it is ten years old, the info still completely relevant. I deeply regret that I misjudged my husband's behaviors labeling them as spiteful and intentional and that I attributed his lack of commitment to exercise as 'laziness.' I can only imagine the frustration he must feel hearing me say "What?" each time he tries to speak and I don't hear him. The information in this video is very valuable, especially the part about trying not to overbook activities. Thank you for posting it. I hope this link makes it's way into the APDA Connecticut website.
@davisphinneyfdn
@davisphinneyfdn 5 ай бұрын
Thanks for your comment. We're glad you found value in this video!
@junkantiques
@junkantiques 2 жыл бұрын
Excellent information. Excellent speaker.
@marlagenise2200
@marlagenise2200 Жыл бұрын
Thank you so much for the informati have parkinson's And it's hard more days than others , I have no family, no support. Could you please send me some literature that would help me...? Sometimes I feel so alone with this disease and I would love to find out if there's any support groups to attend, thank you once again.
@jojoo4827
@jojoo4827 3 жыл бұрын
Great info. My husband goes to a cognitive clinic and I think a Parkinson’s clinic doctor would be better at managing his meds. He was diagnosed with Lewy Body Dementia and everything you addressed he has. He does have difficulty walking fast as he did in the past and complains of stiffness in his thigh muscles, .
@alicesamekbenoit5990
@alicesamekbenoit5990 3 жыл бұрын
*Check: **kzbin.info/www/bejne/l5zYcoisjtWNbLc*
@pberndt33
@pberndt33 9 жыл бұрын
I live with PD and one of the hardest things is family gatherings for me like holidays. The hard thing is that feeling of pity that comes from family members you have not seen in awhile as they watch you tremor, eat, walk and so on. The facial expressions and stares make the holiday not quite as enjoyable. I am happy to see them but I have to keep reminding myself its they who have the problem not me.
@susiepoo51
@susiepoo51 5 жыл бұрын
pber57 Imagine if it was one of your relatives with PD. Knowledge is power, and anything that is new to us is new to us, and we don’t know how to respond. Just a thought. I’m sure they must not be aware of their facial expressions. If they did I think they would try and change it. Anyone with staring problems should be talked to. I think if we were more open with each other, it would be so much easier. Maybe explain to them about your general issues, and I’m sure they’d be less curious and more relaxed in your presence. Blessings
@henrilou
@henrilou 5 жыл бұрын
@@susiepoo51 I totally agree with that..I have PD...but before i had it I didn't have a clue...I have a friend who has Rhemutoid Arthritis..before I knew her I thought it was creaky joints..its not its pain..all the time..but she complains that no one knows...of course not..why would they...I don't blame people for not getting what is often an invisible illness...on the other hand there is nothing wrong with explaining..not lecturing..and informing people about this...most people think PD is tremors..and we all know..at least the PD people and folks who live with them that is just one part.so Pber57..it is what it is..enjoy yourself..live your life..and like the tree who has a root that stops working find a new path..be an advocate...and tell your relatives about what PD is...and what you are doing in your life to try..against ridiculosuly difficult odds to make it better...good luck to you
@timothymason6783
@timothymason6783 4 жыл бұрын
Doctors do no want to hear , I read, or I saw this video. I was told 6 years ago I was to young for l dopa. I take Klonopin for the anxiety. I also have spinal stenosis with extreme pain. I have been prescribed several SRI and Tricyclics and wind up in the ER with serotonin syndrome. Where do I go from here??????????
@bikerslow2598
@bikerslow2598 4 жыл бұрын
May be be upfront about this. My dad just got diagnosed and I'm.sire he won't want any pity looks! I admire people who manage to stay strong. Live well and thank you for the comment.
@andrejackie1122
@andrejackie1122 4 жыл бұрын
Herbal treatment is 98% guarantee for disease/ viruses & cancer cure, the reason why most people are finding it difficult to cure these disease/infection is because they believe on medical report, drugs and medical treatment which is not helpful to cure it. Natural roots/herbs are the best remedy which can easily eradicate health related issue totally. that am very sure off, because I was cure from 6years prostate cancer, via herbal medication from Dr.hopkins.. for more information about virus ilness or any other incurable illness write Dr. Hopkins for any health challenge E-mail : DR.HOPKINSHERBALCURE00@GMAIL.COM you will be amused yourself..
@rbmedd
@rbmedd 5 жыл бұрын
Should be required viewing for every PCP, neurologist, and psychologist who deal with maturing adults!
@michaeldickeos3783
@michaeldickeos3783 3 жыл бұрын
X
@helenblyshak7015
@helenblyshak7015 6 ай бұрын
I agree 200 percent.
@randytans1
@randytans1 8 жыл бұрын
Good presentation. I still believe one of the main causes of PD is an infected brain. I had meningitis before. I suffered PD for 9 years and my breakthrough improvement came when I started bio-resonance therapy to eliminate the pathogens. After each treatment I see improvement in my movements and my shaking hand becomes more flexible and less stiff.
@rickraybourn7456
@rickraybourn7456 4 жыл бұрын
Look at the one about Biden, Joe Biden is sick
@mariamarfil1620
@mariamarfil1620 4 жыл бұрын
@@rickraybourn7456 We have to wait...
@windhorsepixy7784
@windhorsepixy7784 3 жыл бұрын
Soon Heng Tan - my husband with PD also had meningitis - long previous to his diagnosis.
@sandrasmeenk5811
@sandrasmeenk5811 2 жыл бұрын
O
@caralinehowden2951
@caralinehowden2951 Жыл бұрын
@@rickraybourn7456 That comment is truly disgusting and no need to put this here or anywhere for that matter. Try thinking about how it would feel if you had parkinsons and forget what you might think others have, heavens forbid you get it, its horrible truly horrible. There is no need to respond because you have had enough to say as it is.
@melvaperunko5902
@melvaperunko5902 4 жыл бұрын
Thank you for this! I’ve experienced all of these symptoms but couldn’t relay to my neurologist or family. I just thought I was losing my mind. I’ve now discussed this with my spouse and that’s a big help. The most stressful part of PD are family members that say “Well you don’t wobble all around like Michael J Fox so the diagnosis is wrong”. These ☝🏽are the unseen issues that are difficult to deal with.
@sandrafox367
@sandrafox367 5 жыл бұрын
Thank you clarify cognitive issues our gang of specialists never address or mention.
@judymccarthy9423
@judymccarthy9423 4 жыл бұрын
Thank you so much for this talk. Exercise so important.Yes. So many great tips and information. Helps me to know what to do for my husband. Staying active. YEP!
@davesmithshaman23
@davesmithshaman23 9 жыл бұрын
Thanks for this presentation very informative answered a lot for me and my Parkinsons issues
@maryedgerton9183
@maryedgerton9183 2 жыл бұрын
This is such an informative presentation which we have shared with family and friends to help them understand what their loved one may be experiencing. Thank you!
@jeanettesdaughter
@jeanettesdaughter 4 жыл бұрын
Families ALWAYS develop denial. So glad she included the reaction responses of “ normal” people without the diagnosis. It puts the people diagnosed in a much more humane context. We all have brain tics, n’est ce pas? I like her humble approach to conditions of rather hard facts that can be harsh and disruptive to live with.
@dmitchell9453
@dmitchell9453 2 жыл бұрын
Excellent webnair about general "What is Parkinsons
@seanmacentee7214
@seanmacentee7214 Жыл бұрын
Loss of p0wer in my legs
@seanmacentee7214
@seanmacentee7214 Жыл бұрын
Killexiaw
@christopherwadsworth1930
@christopherwadsworth1930 Жыл бұрын
​@@seanmacentee7214I
@Vbluevital
@Vbluevital Жыл бұрын
Yes indeed, it is both heartbreaking and difficult.
@bomartin
@bomartin Жыл бұрын
going to show this video to friends and family, maybe they will see what is happening and understand better, thank you
@davisphinneyfdn
@davisphinneyfdn Жыл бұрын
We love this idea, and we hope it is helpful! Thanks for your comment.
@jvargas454
@jvargas454 5 жыл бұрын
Thank you, I found this very useful. Three years with PD.
@leassiaturner7724
@leassiaturner7724 4 жыл бұрын
Great video! My father had PD and he died a month ago today. I would love to share what I observed as the care giver with DPF if you think it would help with research.
@nikhilsinha4327
@nikhilsinha4327 4 жыл бұрын
My father has PD. His cognitive ability has gone very slow. It was really disheartening to see him cry today because he has lost hope. Please tell me something that can help him. What should I do.
@GoProGoalieUzi
@GoProGoalieUzi 3 жыл бұрын
@@nikhilsinha4327 depending on what other symptoms he has, he might want to do DBS. Deep brain stimulation. Works great check it out on KZbin
@sharmaarunasalam7071
@sharmaarunasalam7071 2 жыл бұрын
Yes. I would like to know your sharing
@leassiaturner7724
@leassiaturner7724 2 жыл бұрын
@@sharmaarunasalam7071 let me know how...
@puchieat49
@puchieat49 2 жыл бұрын
I like this video. Great professional information. It's easy to understand. She explain very well and made it easier to understand. Thank you
@ellenplotkin8124
@ellenplotkin8124 6 ай бұрын
Great speaker, teacher and clarifier.
@kathleendowner6506
@kathleendowner6506 10 ай бұрын
Great video
@debargus9196
@debargus9196 4 жыл бұрын
Thank you so much for your Insight and knowledge. I have nursed for 42 years. Your sound advice and humanity is absolutely welcome and astounding.You are a great listener and I will practice your kindness in my work.
@siobhanjohnson8088
@siobhanjohnson8088 Жыл бұрын
Thank you for this lecture.. it has really helped me understand what could be happening to my husband as he undergoes tests for possible Parkinson disease 💕
@davisphinneyfdn
@davisphinneyfdn Жыл бұрын
You're welcome. Please let us know at blog@dpf.org if we can help moving forward. You might find value in this content: davisphinneyfoundation.org/new-diagnosis-aid/
@salmailyas7760
@salmailyas7760 4 жыл бұрын
I work with people with parkinsons and dementia and this is very interesting and worth watching and learning everything she said is spot on its very hard for someone to live a normal life and its heartbreaking to watch someone with the both parkinsons and dementia it breaks my heart xxx
@eileenancona8374
@eileenancona8374 2 жыл бұрын
So informative & clearly stated. Thanks for always helping.
@safinasliving
@safinasliving 4 жыл бұрын
Great information.My mom is suffering a lot with this disease.Try to find best treatment for her. Love her so very much😔❤
@nourahk3262
@nourahk3262 4 жыл бұрын
Thank you for explaining this!
@kathysmith8330
@kathysmith8330 6 жыл бұрын
And here I thought I was just turning into the laziest woman in the world! I've had the strange gift of this diagnosis for two whole weeks. I'm the same person I was before, except I've lost the comfort of my denial. This talk has given me hope.
@ambriadaniels-dovolis7496
@ambriadaniels-dovolis7496 5 жыл бұрын
Good luck Kathy
@gregorymalchuk272
@gregorymalchuk272 4 жыл бұрын
Has medication helped at all?
@mombotron58
@mombotron58 4 жыл бұрын
Me too! I used to be very physical. I miss it.
@drmarkusmaur6745
@drmarkusmaur6745 3 жыл бұрын
This may help, kzbin.info/www/bejne/l5zYcoisjtWNbLc
@vonshango6311
@vonshango6311 2 жыл бұрын
teaser 24:22 early DBS treatment may lower need for dopamine therapies later which can relieve/benefit non-motor challenges.
@ShinobiEngineer
@ShinobiEngineer 8 жыл бұрын
Thanks a lot for this upload! A family member was diagnose one year ago and this video was very helpful.
@kathleendowner6506
@kathleendowner6506 10 ай бұрын
Thankyou
@slick1ru2
@slick1ru2 Жыл бұрын
Have had symptoms for years, and I'm only 60. Started with a tapping rt foot, then the right hand tremor. Then the left side. I'm bedbound because of a bad back which just adds more problems. My wife is my caregiver and she was sent by heaven.
@davisphinneyfdn
@davisphinneyfdn Жыл бұрын
We're glad to hear that your wife is helpful for you! Care partners are angels, indeed. Does she participate in our Care Partner Meetups? davisphinneyfoundation.org/event/parkinsons-care-partner-meetup/
@LynneCropley
@LynneCropley 9 ай бұрын
She is very good and explains the hidden side with solutions I'm sure she's been inside brain
@waltwiesenhutter2784
@waltwiesenhutter2784 5 жыл бұрын
Never realized all my symptoms of other things are really part of Parkinson’s. She really has researched Parkinson’s.
@Shortkonner
@Shortkonner 5 ай бұрын
My dad has it. I'm starting to think i very well do too i have adhd, addiction issues and offers. I'm just like thinking yes yes yes yes, check check check check.
@bethwolford3652
@bethwolford3652 2 жыл бұрын
The first video I have found which is actually helpful!
@mosecall9046
@mosecall9046 6 жыл бұрын
I just subscribed hope you do more videos on different illnesses you are a good send of information and mindset you are so beautiful inside and out your way of saying what is fact is very nice and whoever needs information about this will get it good bless you and love your videos
@CBU-j2v
@CBU-j2v 4 ай бұрын
I'm 7 years into diagnosis and my progression is steady. Lord, just let me get my son raised, then I'm ready.
@davisphinneyfdn
@davisphinneyfdn 4 ай бұрын
We are for you, now and in the future. As an aside, you might find value in this story: davisphinneyfoundation.org/family-dynamics-kirste-elliott/
@anunpopularstance
@anunpopularstance 10 ай бұрын
I am 37 and was just diagnosed. I have had so many of these symptoms for years and drs kept ignoring my concerns. The last year my arm suddenly hurt and felt odd at random times, I'd forget things constantly, my sleep went from bad to non existent even on 50mg of ambien, then my hand started to shake at times. Next my leg got "stuck" at times. It was like Id think to move and it was delayed by a 1/10th of a second. Others couldnt tell but I could. The worst part so far isnt the physical but the effect is has on your mind imo. Thank you for posting this. I have wanted to explain to my wife what this is like and this I think will help alot.
@davisphinneyfdn
@davisphinneyfdn 10 ай бұрын
Thanks for your message. We're here for you. If we can help in anyway or if you have any questions, please reach out to us at blog@dpf.org. You might consider joining us for our Living with Parkinson's Meetup, on the third Thursday of every month. More information here: davisphinneyfoundation.org/event/webinar-series-living-with-parkinsons-meetup/
@candicemirisha912
@candicemirisha912 9 ай бұрын
I’m having the same symptoms but the neurologist says it’s probably not PD. I don’t know what to do.
@suzanwilmshurst3020
@suzanwilmshurst3020 2 жыл бұрын
This is great. I was beginning to think I was losing my mind prior to seeing this. Mood regulations, sleep issues, personality changes and cognitive etc were really worrying me
@davisphinneyfdn
@davisphinneyfdn 2 жыл бұрын
Suzan - Yes, unfortunately, it is common. I'm sorry you are experiencing these symptoms, and I hope you will take a few ideas from this talk and see if they work for you.
@edraymond4338
@edraymond4338 2 жыл бұрын
Excellent. I learned a lot!
@robinszoo
@robinszoo Жыл бұрын
This is 100% on point she nails it. I have pd every moment is a new experience
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