My Perfect Family: Perrones

Bee Perrone lives with the invisible disability Ivemark Syndrome; a rare condition where internal organs are malformed or unusually placed, and the spleen is either absent or multiplied - Bee has seven. It is so rare that not much is known about Ivemark, and understanding it is a continuous journey for the whole Perrone family. Due to the complex nature of the symptoms, Bee is no longer in school, and is supported fulltime by mum Elizabeth. Showing early talent as an anime artist, Bee has attracted the attention of a mentor at Weta Workshop.

[@persiancandy9050]

You can tell the mother is very supportive and optimistic. I love that. Everyone dealing with disabilities should have this support.

[@river8760]

She’s great! I really appreciate her honesty and owning her behaviour and decisions.

[@foofookachoo1136]

She’s got the best mother anyone could ever have!!! What lovely people the WHOLE family seems to be!!! Bea is very lucky!!!

[@hunnybee_]

“all the really did was teach anxiety” that hit 🥺

[@Leahla333]

Bee’s mom is so amazing! What a great teacher and example for her kids.

[@ramona3840]

Say it louder for the people in the back!

[@megz239]

What a great mom and mentor. She exudes love and empathy. Bless her.

[@amhall1970]

I wish that I had a mom like her

[@werebilbyj4449]

Trust me, I have several chronic illnesses and people look at me strange when I have to rush to the disabled toilet due to my chronic illnesses. Sometimes I wonder if I need to have the disabled wheelchair sign tattooed to my forehead! before people will understand that not all disabilities are external. What a lovely family.

[@Hippiechick1321]

So true, I look healthy but have stage 4 cancer. My adult daughter has Crohn's disease and several other chronis illnesses. It's not only that people don't see her challenges, but even once they hear what she has she never gets the same empathy and sympathy people give me when they hear the big C word.

[@werebilbyj4449]

@@Hippiechick1321 Yep it's absolutely crazy. Yep I have Crohn's and other chronic illnesses and people just don't understand that you can have these issues. I'm sorry to hear about your Cancer though.

[@nunabug1203]

I honestly understand because before I had my walker people would never really know I have multiple disabilities and this one time in gym class we had one of those fitness test. And I can't run for a long time nor stretch my limbs (I have a rare form of arthritis and and two lung diseases and some other things) so told my gym teacher but she thought I was lying so she literally forced me to stretch my legs while I was tearing up from the pain (I can't scream). My classmates finally told her to stop and she did. Later I had to go to the nurse for my 504 plan and showed her. She went oh well you're failing this class. After multiple years of dealing with similar issues (one of which that got me kept back. I put myself in an online school. And if you're wondering where my parents were let's just say my parents are literally the absolute opposite of hers.

[@foofookachoo1136]

@@nunabug1203 I’m sorry u had that terrible incident in school from that narrow minded teacher!!! I prayed for u to get better and for your parents to be more understanding and loving towards u!!!

[@BlueBabyAkaAj]

Same. I faint from looking down and I need to use rails

[@dagnydo2472]

For someone that's supposed to have a, "limited vocabulary", Bee seems to do exceptionally well with communication. May not have been the case if not for the support of this incredible fam! ❤

[@DieAlteistwiederda]

Might also depend on the day, situation and mood. This kind of stuff sometimes works like that, I for example would call myself very eloquent but on worse pain and/or mental health days I just can't speak. I can't it's like my words are locked in my brain and I can only get out the bare minimum.

[@dagnydo2472]

@@DieAlteistwiederda Awesome insight. Thank You. 😊

[@foofookachoo1136]

@@DieAlteistwiederda Something that probably wouldn’t have crossed my mind!! Thank you for pointing that out!!!

[@OceanEsthers]

I hope the mom gets her book published one day, I would love to read it

[@victoriousvalentine9779]

Oh, if only every person on this planet could be raised in such a loving, accepting and supportive environment. The family is blessed to have Bee and she is equally blessed to have them🥰

[@laurac7623]

How Bee's mum talks about Bee's life, disabilities, hobbies, gender, sexuality etc with so much compassion and understanding makes my heart so happy. Yes it's how every parent should feel about their children but unfortunately it's not always. She seems like a beautiful woman and mother and Bee seems like a wonderful person too. Our disabilities while limit us they don't have to define us. Also I hope Elizabeth doesn't feel too guilty about forcing Bee into school. As she said we do the best with the information available to us at the time and it's not as if doctors or the education system provide any alternatives and solutions to people who do fit the mold. 💖

[@vickyvkusnyatina6126]

That is Soo Messed Up that someone would make you show you're disabled to just use a dang restroom!! That is NONE of their BUSINESS!! You are BEAUTIFUL, BEE & PERFECT THE WAY YOU ARE!! ♡♡

[@vickyvkusnyatina6126]

I'd go thrift shopping & hang out with you in a HEARTBEAT!! Your style is SO COOL & I'd so be your friend!!

[@MzClementine]

It's happened to me before. So I'm embarrassed the hell out of the teacher. She never questioned me again. All my friends knew what was going on. Actually everyone knew. I went to a great School everyone was friends. Even though that they were separated in their Little Jock groups preppy groups trench coat Mafia you know segregated in their own little way everybody loved each other. Yes there are people out there that are really messed up.

[@emilywiebel3238]

Agree 1000%!

[@3beaglemom372]

?⁰⁰1111111111110⁰

[@DieAlteistwiederda]

That has happened to me too just that I can't even show my issues because my hip joints are weird and misshapen and I don't know how I would show that other than with an x-ray. I don't walk with a limp either because both sides are symmetrical messed up and limping only would make it hurt more.

[@staceyk8072]

The parents are so amazing, if there were more people like that in the world then maybe we wouldn’t have so much hate

[@jessewru6425]

I couldn’t agree more

[@kaebmunson]

Omg these loving and accepting parents!! And they are Christians, refreshing to see this kind of acceptance! I’m not Christian, with lgbtq children…but I just think it’s beautiful they have found such peaceful joy between their faith and just unconditionally loving their children, wherever they fall on a gender/sexuality spectrum or with or without disabilities. I applaud them!!!

[@unicornmadness6286]

"Don't complain about it, unless you're willing to get up and do something about it" As soon as I heard the mother say that, I knew I was going to love this mini documentary. ❤

[@its_mi.]

But complaining can be fun, too! And really stress relieving. It just shouldn't take over your life. The way we handle it as flatmates is that whenever someone starts complaining the other asks "are you looking for solutions or just to release some pressure?" Whenever it's the latter we go on a short rant together and usually feel better 5 minutes later :)

[@susanc257]

I love this mother. She’s doing everything she possibly can to make it work. This daughter is truly loved! And she’s beautiful!

[@jodihafner6348]

My 17 year old daughter suffers from autism, epilepsy and a learning reading disability. So I totally understand the struggles and just be use someone doesn’t “look disabled” the world assumes your 100% “ok”. We also go threw so many people who judge. (We r also home schooling)❤️ what a awesome family! And you hang in there Bee!! Your imperfectly PERFECT!!❤️🙏🏼

[@Stardust_7273]

As a disabled queer person, I REALLY appreciate this mother even more, being so accepting of her children and being active in the LGBTQ community and being a disability advocate. We need so many more people like her! Far too often, our only spokespeople are people within the communities, and that's great to have them, but we need more Allies to step up and show their support, and be that bridge for people outside the communities to understand more and open their minds.

[@freekpeet]

Bee seems such an interesting and intelligent person. So strong, and courageous to be open with their obstacles. And what a wonderful family. Overall great video, thank you

[@morgancalvi6675]

Bee is her own worst enemy. Who, just who is going to want to do anything?

[@XxXEmmaXxXBethXxX]

Fibromyalgia and Chronic Fatigue are horrid conditions, i could never imagine everything else on top. Bee and their family are amazing. Such supportive parents and siblings.

[@camarojai6832]

Cheering Bee on. They’ve come so far, and there’s endless possibilities. Wishing them luck on the art, very creative and talented.

[@shansins359]

I have 3 permanent disabilities. There are days I need a cane and days I need a wheelchair. But with therapy for years those days are less. But I can't walk far or for long. I also have chrohns. So days I'm walking ok noone can see my disabilities. I get dirty looks when I park using my disability placard. I get dirty looks if I've been walking for too long and need to use the store cart. It's like only for older ppl, ppl with visible walking implements or obese ppl. I get dirty looks using the disabled restroom when my chrohns is flaring up. I've got a tattoo that says not all disabilities are visible I got so tired of it. This girl is so young and so strong and courageous. Her mom is amazing. The sister and dad too. They accept her for who she is and that's amazing. She doesn't have to worry about extra stress from that. I hope she makes it with her art and her mom with her book. Great episode.

[@samryon3615]

i can relate. i have multiple disabilities. I also have Crohns and UC. when i go shopping(1 time a month) sometimes i have to use the cart as i have severe anemia and am on oxygen 24/7(they see the oxygen tank) but people still give me looks. i wouldnt wish crohns and uc on my worst enemy. last year my health was so bad i was put on hopsice and i was grateful because my hemoglobin rarely gets over 7 and thats with weekly blood tranfusions and iron infusions. most days i just feel really sad that people judge me becuz i dont look sick. i shouldnt have to prove i am sick. i think it is wonderful she has such a loving, caring mother. i have found much joy with art.

[@shansins359]

@@samryon3615 I'm so sorry. I couldn't even imagine have uc on top of chrohns. And it's so dangerous. I hope you are stable now.

[@asmongoldsmouth9839]

@@shansins359 Sorry to hear about your trials and struggles. What others think of you doesn't take your health or your shelter. So it means absolutely nothing. 😉

[@CommonOddity_]

What a wonderful family! I am so impressed with the mom being able to learn and grow herself. I feel so bad that she feels guilty about sending Bee to school.

[@HCSAgirl99]

Bee is so admirable. Their bravery to speak out and educate others is really inspiring

[@dianesquires9987]

What a loving family. I like Bee because of their unique personality.

[@josephnellums2691]

never let your problems define who you are, because you are truely special

[@jedjones5406]

Very true

[@telsa100]

Isn’t that literally what she’s done?

[@isabellac1117]

This is an Excellent video/documentary…. Invisible disabilities, especially when having more than one to cope with is very challenging! Watching the mother stand by he child, and learn without judgment, and give such positive ongoing support is truly amazing! Bea, is a beautiful, and talented youngster! There’s so much our societies need to do, while creating more inclusive environments for people with all types of disabilities, and for our LGBTQI communities as well!

[@ritasue6866]

WHAT A LOVING MOTHER BEE HAS

[@suethomas6719]

I admire the mother who supports Bee with her travels through life. I can see that Bee's talent is growing. Wishing Bee continues success with the anime art. The family is great with their support of Bee. And I'd like to say that I admire Bee as dealing with a majority of disabilities is daunting.

[@luticia]

I like them. A very loving and supporting family. Each of them.

[@mooonlightrose]

So awesome to see someone so similar to me be able to bring awareness to their disabilities and identity! Especially because it wasnt the only thing focused on, bee's style and interests were still talked about. Im also chronically ill, love alt fashion and happen to live in nz, so it made me so happy to bee getting to share about it all! If they have any social media I would love to be able to follow them!

[@jessi7405]

Bees style slaps! I love the wing harness Jeez what a baddie

[@phoenixhart9189]

The mom is so amazing, and Bae has such a artistic cool style

[@yuinathiel2243]

Wow.. this mother is so kindhearted ♥️

[@persiancandy9050]

Not gonna lie, she looks like a rock star!

[@foofookachoo1136]

I think Bea is very cute!!! I noticed she doesn’t wear makeup!!! I’m glad, because she doesn’t need it!! It’s glad she an her sister seem to have a good relationship!!

[@molz1231]

they**

[@molz1231]

Sue Brashears they** not she

[@isabellamontano6308]

I am glad the show only mentioned how she identifies as demi and went on to talk about her as a person. It seems we allow our gender identity and sexual preference to be all we are now a days. I liked that we got to focus on her medical struggles and also what she loves that makes her life manageable.

[@ashleedodd6775]

Bee uses they/them pronouns. It's not that hard to be respectful. If you are a straight/ cisgender person imagine how you'd feel at being assumed gay and called he/him. Maybe you'd want to clarify that part too.

[@crymearyvah]

Accidentally clicked on this video while watching another one, glad that I stayed.

[@emmyali920]

Bee is an awesome young lady who has wonderful parents. I have no doubt Bee will be successful in life. She’s strong and determined with a great family supporting her along the way.

[@finnaboo797]

Does bee have social media where they post their art? i wanna follow them! :)

[@david-stewart]

They seem very supportive parents

[@joannekerr3]

If the doctors who told this mother that her pregnancy wasn't viable could see this video!! Doctors told my parents not to expect me to graduate from high school but they didn't listen or tell me about any of that. I am a successful business owner and have a wonderful and loving husband and a beautiful life! God bless our parents for believing that we could persevere and live beautiful and fulfilling lives! 😁🥰

[@buffya8012]

Doctors told my parents I’d never walk again and would have permanent brain damage....I went on to walk again and have a normal brain,as I not only graduated high school with honors but did 5 years of university....I now work 12 hour shifts as a nurse in a pediatric ER/ICU and on the pediatric oncology unit where I was treated and told that I’d never be able to do the job I do...just shows that if we persevere ,live life to the fullest and prove doctors wrong we can do anything ☺️

[@joannekerr3]

@@buffya8012 amazing Buffy! Thank you so much for sharing your story with me!

[@buffya8012]

@@joannekerr3 you’re very welcome 😊

[@pinkmonkeybird2644]

@Juicy MamaLove Do you know Bee? Do you know their family? Are you that much of a hateful person that you think you know what a person believes after only watching a 20 minute video about them? I don’t know them, and I don’t presume to know what they believe about such a personal topic, and nor should you.

[@caraevans2609]

Wonderful, amazing parents! Bee you are very talented!

[@aleyahmalone5012]

Dude I just realized that her father didn't speak at all. But I felt their emotions eitherway. 13:09 when he finally did. Bee looks like a rockstar

[@edenkammerer6428]

I’m so happy that Bee has such a wonderful support system! Bee will definitely go far! You go, Bee!!!!! You rock!

[@hopelessly.hopeful]

THAT is the kind of mother we all need! 🥺💜🥰

[@v33kirikino84]

They (bee) are Unique with amazing parents and supportive family, Thankyou for sharing.

[@jokl89]

@Juicy MamaLove wanna be what? They seem amazing with all the obstacles.

[@hhasnohope8488]

@Toast Malone Hehe more like wannaBEE buh dum schhhh

[@itsapplepai]

So cool to see this channel being inclusive and respectful of the more niche queer identities! ❤️Bee is a badass, love this whole family.

[@AHD2105]

Oh wow. Bee is amazing. Ive met two people like that. One was completely upside down and jumbled inside. One had organs opposite way around. He use to laugh about if he ever got shot they'd shoot the wrong side. They both looked really normal.

[@georgieeve2026]

What an incredible mother ♡

[@Emmy4ShortStack]

Bee reminds me of mum and I, I rely on her for everything as I am also very chronically ill. What a lovely family

[@theembersinside1420]

So touching to see such a supportive & loving mum. 💖

[@GreenAndTheToe]

You guys are so understanding and loving

[@GreenAndTheToe]

Thank you for sharing your story!

[@betsylutch3]

Dear B’s Mom…you are an amazing, loving and incredible parent. You go B!

[@susanurbanczyk9084]

Bee is amazing and has the most loving and dedicated mother. I am so moved by the whole family. I have fibromyalgia, Lyme disease, migraines, asthma, arthritis and other things that could, if I let it, make me want to give up. I love my life though and know it is precious. Bee just shows how precious life is and how your disabilities do not define you. Bravo Bee.

[@susanurbanczyk9084]

@Juicy MamaLove How wrong you are about me and my life.

[@erinaa9486]

I'm sorry that the only response to your comment was nasty and judgmental. You are an admirable person for continuing on despite your struggles. Good luck to you and I hope someday soon medicine finds cures for all diseases including yours!

[@jcbuso]

She's so talented! I wish I could draw half she does

[@bmoisgood3228]

Wow, I'm happy Bee has so much support. So important.

[@gillianharrison-gates7181]

Our family has invisible disabilities too and people suck. Mind your business please!!! Huge hug to Bee and her family. You guys are amazing!

[@foodvixxen3292]

What a loving and wholesome family. I wish them all the best. This was lovely to see them supporting bee and I wish her to be truly happy.

[@siamesevrsbalinese4103]

What an amazing mother! Bless her. Bea is lucky to have her.

[@sunsetamor302]

Omg this is the most amazing thing I’ve ever watched. Bee is so strong, beautiful and talented. Thank you for inspiring me 🙏💕

[@pinkmonkeybird2644]

Bee seems like a very interesting and unique person; I think they’d be a great person to get to know over time. I admire their ability to vocalize their identity so well. I have the same problem with pronouns with my own child who is not a standard cis-gendered person. It’s not grammatically correct, but we can certainly change our thinking to accommodate everyone. It isn’t a big thing to ask of ourselves. I was so sad to hear they are so defeated about continuing with their education and finding employment, though. Every single person deserves an education, and we know that everyone has the capacity to learn. I think the school system did not know how to teach people with various intellectual disabilities, and as a result Bee feels like they failed, when in fact the school system failed Bee. Same for finding meaningful employment. Bee has plenty of skills, and they could be put to use helping others in a sheltered and monitored environment. Everyone has value, and everyone deserves a chance to grow and contribute to the world.

[@noahb8730]

Using they/them pronouns singularly is actually grammatically correct! We use them all the time without realizing it. For example, the way Facebook will give you a notification on a friend's birthday, "it's (blanks) birthday today! Wish them a happy birthday"

[@rassvet7]

Yep, they referred as singular is used since a long time!!

[@pinkmonkeybird2644]

@@noahb8730 Oh I know the usage has changed over time, since language is constantly evolving as we do. I am an older person who was taught very strict grammar rules in school, so it still feels odd to me. I think a lot of older people feel the same way, and it isn’t meant as disrespect. It’s just an old habit, but I’m working on it.

[@millacernemusic]

I mostly agree with you, but I’m not sure if they actually have an intellectual disability. Sure, cognitive disability, because their language and memory are impaired so it absolutely affects them cognitively. But to actually have an ID you have to score less than 70 on your IQ. But I know that ID:s are pretty stigmatized, so Bee may not mention that part, but I think Bee seems quite intelligent. But don’t trust my autistic brain on reading people...

[@Anonymous-54545]

What is taught it primary school is the simplest case; it is not intended to apply to every grammatical situation. Linguistics is descriptive, not descriptive.

[@shoshannafachima1306]

Wishing them the of luck in their art career,as bee truly has a gift with great potential

[@wowzatrishiebunz]

Her mom is amazing! This family is amazing. Bee is so strong.

[@ashleedodd6775]

Their :)

[@gabygotay5640]

I love bee’s style is so cute and unique!

[@silfig9717]

Beautiful young lady and I love how her parents are so supportive ❤ Beautiful family.

[@Ronnie.13]

What great parents they have, so supportive. That's so great 💜

[@Angel-jt2pl]

I love Bees style so much!!! They are so cute and so is their name 💛💛

[@lifewithsomari3923]

This was so inspiring. I would definitely buy that book when it gets published

[@oneraksakal]

I am so inspired by her and proud of her. She should have her own clothing line.

[@brittanycrowe9167]

Bee you’re a sweetheart and so strong!! What a Wonderful supportive family you have too! You’re so loved 🥰

[@jimmcintyre4390]

Amazing family!

[@ashley_aquarius]

Thank the universe for loving mommas & supportive parents 💜

[@rebareebs]

Bee is amazing and same with the mother! What a loving relationship! 💜

[@Lily_Catt-]

This is really cool. I love this, luv ya Bee x

[@9sheri9]

Bee is intelligent & adorable with great style, and Elizabeth is an incredible mom! This family is so wonderful and unique. 🦄🌈💕

[@judyparedes22]

This is really beautiful what an amazing family bee you are loved

[@Flyingtaco82]

What lovely people. I wish them all the best. ❤️

[@lloyd081877]

What a strong person! Bee you are bee-youtifull! Your mom is great too. Much love to you and your family from Savannah, GA. 😘

[@kezsovreign]

What a beautiful mum n dad... i love this family so very much!!!❤❤❤

[@MADEbySOUL]

Honestly this is a beautiful faith! To be optimistic and face/manage obstacles without hurting oneself. Especially with understanding and fully supporting family members whose love looks a little differently than we experienced.

[@thebeautixbar]

There’s definitely something extraordinary & special about Bee and her Family!

[@juliejordan6968]

What an amazing young person! Even at my age they are someone I can look up to. Much love!

[@BleachLoverApril]

Seeing their mom being so kind and patient with Bee made me both so happy and sad at the same time. I relate to Bee a lot on a few different levels but it makes me sad because I worry how life will be after their mom may no longer able to care for them.

[@kezsovreign]

Im so glad i found this chanel! And from my country 😊 this whanau is the business!!! What an incredible young lady you are Bee! And just an aweome bunch ❤❤❤

[@kindnesscupcakesandcrazy4720]

What a fabulous family. So loving.

[@annalee117]

These parents are angels!🥰🤩

[@vivstevens9525]

Bee your art work is amazing

[@yeababywelive5340]

I love her style

[@marleysankor]

What a beauty~full and strong young lady! The relationship she has with her mother is lovely~ I wish this entire family only the best in every area~ 🌬💓💓💓💓💓💓💓🙏

[@justlikehoney1859]

Bee is so cool and has amazing skills in art. I love her style

[@victoriakyte4782]

Good luck in the future B !!! What an amazing mother you rock 😘👌🙏

[@sukalameko4956]

Mahalo 💗 Thank you Perrones family! Thank you for sharing your story Bee; you are well & truly supported with Aroha from your whanau! Ughh I'm too teary watching this! To the people who disliked this video, I hope you run out of toilet paper, and I hope you stub your damn toes every time you come cross a sharp corner. 😂💕💗

[@walkingenmity]

you're doing great, bee!

[@jessicarenae5107]

*Wow this disease is interesting! I'm glad they've shared this bc I'm fascinated by the way our bodies work and different issues and it's wonderful when ppl share their stories bc no matter what, there's always someone out there that it'll help but I also think it's important for everyone else to understand issues like this! It's terribly sad seeing ppl have to suffer with health issues of course but this family is awesome!! They just seem like the most amazing, chill, and fun kinda ppl!!*

[@tonyagarten4404]

That's an amazing family! I'd much rather watch these types of videos than the horrible negative things all over! This was interesting and positive...good job parents and big sissy!!!

[@thts.my_voic]

Bee is an inspiration, there's no limit for this young lady. The parents Mom and Dad, are so loving and patient. It's awesome how the whole family support's Bee, when/if Bee sells her painting's I definitely want to buy one, and possibly more. She's very talented 💖 and Beautiful. Love her style.

[@sunnydazer]

i think bee is an amazing person! they inspire me to communicate more too :)

[@paulaharlfinger829]

Bee, you are lovely!♡

[@robertdesmarais3821]

Beautiful girl and very Talented keep going with your drawing!!!

[@eduardopadilla5505]

Excellent for you Bee an for your familly! :D

[@80sgirl93]

I am amazed every single day and this family, this strong, pstient and wise mother and her unconditional Love should be a lesson to us all. Life is short, our children, our families are ALL that matter. Beautiful way to Love.

[@dawnlynch7691]

Mum and Dad you must be proud of how far your daughters come and you must be proud of yourselves she's come a long way