my POTS diagnosis story | how I got diagnosed 💙

hi friends! welcome back to another video! in this video, i take you through my entire POTS diagnosis story all the way from when i was six years old until now. i hope you enjoy!
xx, madison
MY EVERYDAY JEWELRY -
Keep Going Bracelet: rstyle.me/+7Vv...
Barbie Girl Bracelet: rstyle.me/+6Dp...
Gold Pinky Ring: rstyle.me/+QDP...
Bead Ring (Thumb): enewtondesign....
Thin Gold Band: enewtondesign....
Gold Textured Band: enewtondesign....
Gold Studs: enewtondesign....
LET'S CONNECT -
Instagram: / (official IG account now)
LIKEtoKNOW.it: @missmadisonstrong
Pinterest: / ​​
Chronic Illness TikTok: / chronicallymadisonetsy Shop: Etsy.com/shop/madisonscupoftea
My Diagnoses:
Lupus (skin and joints)
Hypermobile Ehlers-Danlos Syndrome
POTS
Gastroparesis Chronic Migraines
Fibromyalgia
Chronic Fatigue
Subscriber Count - 592 (thank you everyone for subscribing. it means the world to me ♡)
Let me know if you would like to see chronic illness videos, weekly or daily vlogs, get ready with me, cleaning, or fashion videos. I want to know what you want to see so let me know in the comments!!

[@Dulcimerist]

Thanks for the video! POTS was the first sign of my Ehlers Danlos syndrome. It took a lot of trial and error on medications before finding what works for me. Clonidine/Guanfacine and Adcirca are what ended up to be my combo. I also take Pyridostigmine for my EDS digestive motility issues, but that also helps a bit with the POTS as well. It seems counterintuitive to take medications which lower blood pressure when POTS causes blood pressure crashes, but these medications actually stabilize my blood pressure. With EDS, it's dangerous to take medications which jack up blood pressure. Wearing compression calf sleeves like the marathon runners wear also helps, and I sometimes get saline infusions during the hot months of the year.

[@markbelluo8841]

I just got pots. What do you do to make sure the dizzy odd skull feeling. It's scary

[@MadisonStrong]

I make sure to intake a lot of salt to help with the dizziness. But I also have medication prescribed by my doctor to help!

[@beverlyquigley6608]

You could also have hyper POTS.

[@MadisonStrong]

I don’t believe I do because my blood pressure drops when I stand, it doesn’t rise like it would for hyper POTS!

[@Dulcimerist]

@@MadisonStrong I have hyperadrenergic POTS, which causes an initial spike followed by a blood pressure crash as my body overreacts and overcompensates.

[@vocalsbymohsin]

Pls help me, i have same situation but no one can help me here in this part of world. Pls help. Pls.

[@tomm2330]

Wanted to say you are one of my heros it means a lot that you care and ask how I been doing

[@andreahultman8272]

👋🏼 from another POTSie! Mine is from a trifecta of T1D, EDS spectrum disorder (HSD), and ME/cfs. And sadly, I moved from an area that had a dysautonomia center of excellence to an area that is better for EDS overall but not for dysautonomia. So getting diagnosed is a long journey, figuratively and literally. Hope your journey to improved symptoms continues on a positive track! 💖💖💖

[@MadisonStrong]

Hi!! I love connecting with other potsies!!! I hope you are still able to get the treatment you need!! Thank you so much! 🤍

[@sherristrong4596]

Very informative video. I like the way you took everyone through the whole journey.

[@MadisonStrong]

Thank you so much!!

[@timstrong106]

even though you are going through hard times it is awesome to see you never give up... very encouraging!!! ❤️

[@MadisonStrong]

Thank you!! ❤️

[@timstrong106]

❤️❤️

[@juliejones8555]

Have you looked into Lyme disease it causes all those symptoms and pots is caused by something. When you treat the symptoms get better .

[@MadisonStrong]

I’ve been tested for Lyme and it’s negative. I have hypermobile Ehlers-Danlos syndrome and it’s what causes my POTS.

[@Dulcimerist]

@@MadisonStrong Interestingly enough Lyme is a very common misdiagnosis of Ehlers Danlos syndrome.

[@Dulcimerist]

Ehlers Danlos syndrome causes POTS.

[@ruby3200]

Wow that’s rough! I’m sorry!🥹❤️ Funny you mention trying to get diagnosed with POTS and the doctor thought you had a problem with your hearts circuits. I have that heart condition,I have no idea what it’s called.🤪 I inherited it from my mom. Basically my heart beats super fast and hard (like 180 beats a minute).It usually happens when I’m nervous or stressed. Because my body is always under stress from CFS, it’s frequently an issue. I’ve also had chronic illness symptoms all my life. I used rock climb, and with it was doing brutal workouts, but I always felt like I was going to pass out and felt light headed. I guess my body was trying to tell me I was fighting CFS.😂

[@MadisonStrong]

I wish I could remember the name of it but I still can’t have the name come to mind 😂 and yes totally understand feeling like I was going to pass out during workouts. I wish I would’ve listened to the signs earlier 🥲

[@Dulcimerist]

If there's any sort of silver lining to CFS, at least you don't have the joint instability, POTS, fatigue, and other stuff that's associated with Ehlers Danlos syndrome, on top of the CFS.

[@ruby3200]

@@Dulcimerist lol. This is an old comment. I found out I have EDS and POTS.