My Quarantine Flare Up with POTS, Hashimotos, and Fibromyalgia while Pregnant

[@mehvishparveen3327]

I really wish good health for you. May The All Mighty heal you completely.

[@Aimee_Esther]

Thank you!❤❤

[@kristenherron7252]

Hello , your videos are lifesaving for me. I am currently struggling with POTS. I used to be a very energetic and healthy women but last year my life change after a GI infection I developed the most horrible dizziness while standing. Now my symptoms got a lot worse to the point that I wasnt able to stand up , take a shower or even go to the restroom. My symptoms are diziness 24/7 , I feel like a heavy weight pushing me down, extreme fatigue , palpitations , chest pain , problems with temperature sometimes mostly being feeling hot. I feel like my life is ending. I FEEL VERY DEPRESSED :(

[@lifeisjusthowidream9414]

How are u doing now? I know this video is 1 yr old, hopefully you’re doing better! I have pots also, fibro, and other issues. Your comment relates a lot.

[@lauriewingerter3628]

Bless your heart, I just found you and your videos lately. You inspire me and have lifted me up to hope. If you can have all these illnesses and still feel happy you’re a miracle and I’m taking yr chronic iill class!

[@karenmoran7117]

I don't have POTS but I do have active Crohn's disease, pcos, endometriosis, migraines, etc. I really appreciate you taking the time to share your experience, even the bad. I am also having a bad flare of my conditions during isolation for similar reasons. It is super helpful to hear from other's in similar positions. Thanks!!

[@Aimee_Esther]

So sorry to hear your suffering! Hoping you have better days soon!!

[@lindawallace369]

Thank you for posting this video! I am new to POTS and I am having a bad flare day. It helped to see how someone else handled their bad days. Thank you! I am looking forward to when you are finished with the program you are working on. It sounds like just what I am looking for! Thanks again!

[@Aimee_Esther]

It's finished now :) www.aimeeesther.com for all the info!

[@XXO-Rosie]

I love this format!

[@bosszoneboi2270]

Hi dont worry I am lying in the same position. And people dont know how we feel. Worst thing is my partner dont even know. I am glad u made the video as u show the true symptoms of this. I am 12 weeks and suffer from Fibromyalgia and the fatigue and bloating is killing me slow...Take care and God bless. Danielle

[@shanellecauchi6037]

I know the feeling fellow potsie here and you are two weeks pregnant ahead of me and I absolutely love watching your video I'm also a mum to a 2 year old boy and currently pregnant with another little boy. I love having someone to relate to

[@Aimee_Esther]

Hey there! We are in the exact same boat it sounds like! Not happy you have to deal with this too, but happy that I have a friend who understands. Keep me updated on your pregnancy! :)

[@shanellecauchi6037]

@@Aimee_Esther will do I really look forward to watching more of your videos and best of luck with your pregnancy 😊

[@tinatimthompson3115]

I explain the pain as my muscles being ripped from the Bone.... Im in a bad flare right now..... 4 days and counting cant think straight!

[@Aimee_Esther]

Wishing you the best!

[@jnisrud254]

Your videos are a life saver for me... ❤

[@jamiecomia9643]

Thank you so much for posting this. It was so relatable I'm so glad you posted on a bad day it made me realize that what I'm feeling really is what you feel. With going through this quarantine and having three family members still working in it and teens still hanging out with a friend i have been flaring a lot! Yesterday it took me over half a day to even get where i could sit on a bar stool to do dishes

[@Aimee_Esther]

Yes! I feel the same way. Sitting up is so hard! 😬

[@quiltgirl]

Oh my I’m with you both. I sit in my wheelchair and try to do the dishes but lifting my arms up into the sink is almost unbearable I get so out of breath even though I’m sitting down!🤗

[@s4r4b34r]

👏🏼👏🏼👏🏼can't wait for your program! 💪🏼💪🏼💪🏼

[@wow-dw7gh]

I'm flaring up real bad too! Thanks to you, I found out I had POTS ( never heard of), only been misdiagnosed with Fibromyalgia. Now I've looked into POTS I am certain I have undiagnosed POTS and Sjorgen's Syndrome, which makes me sad that I cannot see a doctor about it. I'm only 23 but this isolation is killing my spirit, as is the awareness of POTS and my super red feet. On top of that I identified my 'heat rash' as Erythromelalgia, makes me upset with doctors again not recognising it because it's easier to call it a heat rash. Thanks for your videos Aimee, I love the company you give me in my symptoms and out-of-breathness. It's hard for me right now but because of your POTS videos I'm ordering some compression socks.

[@Aimee_Esther]

Yay! So glad i helped you find answers!!! This message just made my day. I remember the first day i put on compression socks. I felt like i vould run a marathon i had so much energy haha!! I hope they help you. please keep me updated!!!!

[@larrylester9785]

I saw you post. I know it's several years old but I too have untreated Sjogrens dysautonomia and emotional symptoms that are constant and overwhelming. I would be surprised if you replied but I'm hopeless beyond words. I just now stumbled on this video and saw your comment.

[@wow-dw7gh]

@@larrylester9785 Hi, I'm so sorry to hear that. 😔 It feels like forever since I left that comment! My current doctor thinks I have Scleroderma (autoimmune) instead of Sjögren's syndrome. They share a lot of common skin and dryness symptoms. I have hope I'll have a diagnosis soon. Unfortunately the tests only diagnose your body when it is really damaged, which make take years. Good news is the compression stockings really help me and I would recommend them to anyone with dysautonomia. I'm really sad to hear you are feeling hopeless. I have been there many times. This health condition brings with it more emotional suffering than anything else and I have been on the edge of despair with no return many times. Please trust me, you are not alone. If you have no one else to support you right now, I am here to listen at least. Trust your body, don't give up. I have had many 'crazy' symptoms diagnosed since my last comment through advocating for myself. I have Erythromelalgia (burning extremities), exercise/vibration induced hives and now blue anaemic lips. As well as many other health issues that all have one root cause. For my own sanity, I've made a medical history that I bring to doctors because it's too complicated to explain. Maybe you'd like to try that. Hugs ❤️

[@larrylester9785]

@wow-dw7gh Thanks. Major brain fog because I just got out of bed. You're reply means so much to me. I'll reply later if that's ok. Nauseous too. ❤️

[@bobtreduis2737]

Why would you have a child knowing the high risk of passing on your suffering to a child.

[@kelliepalm6824]

So needed the encouragement that I'm not alone. Feeling like garbage for the 3rd day in a row now.

[@Aimee_Esther]

We are in this together!

[@atthecrosshealing]

I’m in a bad flare right now. Constant spitting up acid and food that won’t digest from early today. Couldn’t eat dinner. Tried a couple bites of food and got sick again. Heart rate was about 108. I just got it to go down to 62 laying still for awhile. But if I get back up sick it jumps way up. Sucks. I just took zofran because nothing is helping. It’s harder when you have kids especially little ones.

[@Aimee_Esther]

SO sorry! Keep fighting friend!!

[@s4r4b34r]

Better lighting is nice!😘😘😘 Do you have blood sugar issues with the shaking and nausea? I was diagnosed with reactive hypoglycemia which when I eat, my body stores ALL the sugar instead of using it so after I eat, my sugar levels drop lower😖😖😖 I get really bad word jumbles and brain fog too! My kids just laugh but it's really frustrating!

[@Aimee_Esther]

Yes, thats what we think is happening. Just got back from the dr and he prescribed me a blood glucose meter!

[@s4r4b34r]

@@Aimee_Esther does he think it's pregnancy related?

[@Aimee_Esther]

We think its POTS related but getting worse from being pregnant. Its really hard to say. But thats our best guess.

[@s4r4b34r]

@@Aimee_Esther that would make total sense though!

[@TheBlondiekitten]

Awwww I know that feeling. You cope much better than I do.... I struggle and get grumpy with others...... may I ask if you get grumpy? If I feel so bad I can’t lift my head, I have to hav3 quiet and I sleep for an hour. I always put a timer on so I don’t over nap. Your video totally resonated, bad days are the ones most people don’t see... I have hashimotos, ME/CFS, essential thrombocytosis, bile salt malfunction and rheumatoid arthritis. I do strength training too, I pace myself and I take betain and pepsin to help my low stomach acid. I’ve just found your channel and think you’re really wonderful. I hope you coped ok for the rest of the day. You have way more things in your life than I could cope with I think. Xxx

[@Aimee_Esther]

Yeah i occasionally get grumpy when im sick too but i have found ways to be really happy even on bad days. I teach how i do this in a program i created. Www.aimeeesther.com for more info 😊😊

[@janeshipley6993]

hi, aimee - wow, did your video ring a bell for me! from 30 (!) years ago. thank goodness for television at times like this, when you're a young mom. i had a crazy thought - i understand that showers are difficult for many, as they depend on their compression socks - would it be too strange to leave them on during your shower? would that help? you could take them off after your shower, and sit on your bed and sponge your legs clean. i realize that they might be even harder to take off while wet (though being poly, they might dry pretty quickly), but maybe you could survive a shower with them on? keep up the good work, aimee!

[@Madddweird]

I have been needing to get tested for gastroparesis which 3/4 pots patients have and it cause intolerance to every food because your stomach takes longer to digest it. I get leg cramps in both legs that feels like flu like aches and that I think is related to neuropathic pots and nerve damage from blood pooling in the legs

[@Aimee_Esther]

Ugh. So sorry you are dealing with that! Keep me updated on your testing!

[@amandashinaberry3450]

To start off, may God touch your body and heal you and give you strength to get through days like this. Also I know you're pregnant and probably not taking no medication right at the moment, but do you take anything for your POTS? Or any of your chronic illnesses? Just curious. Love your channel btw.

[@Aimee_Esther]

Thank you!😊 And no i dont take any medications. I am very sensitive to medications, if theres a side effect i get it. Ive tried a lot but they are never worth it for me.. I treat all my chronic illnesses naturally, with diet + lifestyle changes + supplements (except i change my supplements when pregnant though)

[@amandashinaberry3450]

@@Aimee_Esther How long did it take to get diagnosed with all your chronic illness?

[@s4r4b34r]

Have you ever tried piyo? Strength exercise using your own body...🌷🌷🌷

[@Aimee_Esther]

I havent i should give it a try! I cant find any weights for sell!!

[@mkrp4]

Stay safe!

[@quiltgirl]

I was a teacher had my own Montessori school for 10 yrs. I collapsed at work I could never go back that was in 2010. But I spent three years before that going to tons of doctors integrative doctors specialist nobody knew what was wrong. I got misdiagnosed I think with Lyme! Went down that road for 6 years thousands spent on treatments supplements etc... I’ve been in a severe flare for about 7 weeks . I can’t sit up much and no standing at all. I had a severe back injury beginning of feb pots came on about a week after injury. My autonomic doctor said it’s from physical or emotional trauma... these things plus inflammatory traumas like surgeries anesthesia ,vaccines . Watching you is like watching myself I am so sorry you’re dealing with this my dear especially being pregnant and having a little one running around. I just can’t imagine and I pray that you have a lifting of all of these symptoms🙏

[@quiltgirl]

kzbin.info/www/bejne/n2avY5KLn8-Bgdk

[@Aimee_Esther]

Praying for you too! Thanks for sharing your story! :) We will fight this together!

[@Nuverselive]

quiltgirl 7777 what’s an autonomic doctor. ?

[@tinatimthompson3115]

When you said you get sick standing , does it feel like all your energy draIns and your gonna pass out if you dont sit?

[@Aimee_Esther]

Yes and yes!

[@shahilagh]

If you have all these pains and your daughter needs your attention now how you want to bring another child? Is it fair? Many healthy ppl decide to have one child to give their attention to the importance of raising one child ..forget about ppl who have chronic list of problems...

[@Aimee_Esther]

That's the great thing about this life! We all get to choose what's best for ourselves and our families. That's great that some people have one child, if that's whats best for them. You only see a small snippet of my life here on YT, so you probably can't see it but I am a great mom and my daughter gets all the attention she needs. You are welcome to your opinions, and I am going to keep mine. I am an amazing mom and can 100% care for my children. :)

[@quiltgirl]

Aimee Esther I can see your a great mom! and you are devoted to that title God our creator gave you! I Admire you.

[@Aimee_Esther]

@@quiltgirl THANK YOU! :)

[@shahilagh]

Aimee Esther I m sure you are! I didn’t mean that! Don’t take me wrong! But I wonder if you have alll these pains how you r gonna do this! I m so sorry for saying that but I then wonder if you really have all these pains ? Once again don’t take me wrong. My question comes from a place of pain too. I see these channels of ppl with chronic pain and they all complain but they have a normal social support etc. Once again I like you and I wish you be the best etc but these r questions that come to my mind

[@quiltgirl]

shahilagh I know it’s hard for people to understand invisible illness.. but this illness is real and it’s taken my whole life as I know it away. I can’t drive I can’t work many days I can’t even get to the bathroom I have to go in the trashcan next to my bed. Then I might have better days where I can stand up for five minutes without feeling like I’m going to black out. All this going on inside my body that nobody can see but it is happening and when your brain is not getting blood or oxygen it thinks it’s going to die. Even though you know you’re not gonna die your brain can’t decipher all it knows is it doesn’t have oxygen or blood So the symptoms begin!!