My Relationship with Food with IBD and an Ostomy | Ostomy Chat

[@silviaflores4720]

Laura, your first video on how to change an ostomy was my first tutorial I watched after my late fiancé Antonio had his emergency ostomy surgery because of his colon cancer we found out he had. I remember showing him your video and saying See she’s living her life with an ostomy! He also had a fear of food in the beginning because his first ostomy was performed by a general surgeon and was an innie so many bag leaks and skin burns. Eventually he had another surgery performed by a colorectal surgeon and we finally had a beautiful budding one. I used the tips from your first and then your updated video to help him with the bag changes. This video was wonderful and exactly what I believe he would have loved to have listened to because while he was happy to see you doing so well among other ostomates I would talk to him about he felt like he was alone in his fear of food and blockages. He had so many like you because of the scar tissue too. Even a hernia at one point. There’s so many people who probably think like he did that they’re alone in their fears and their ostomies are not perfect that to hear that you have struggles like them will no doubt be comforting to them! Share it all, girl! Thank you for being so open.

[@Ostomystory]

Silvia Flores Thank you so much for saying this. This comment made me cry! I agree that sometimes just knowing your not alone in struggling is enough to make a bit of a difference. I am so sorry for your loss. It sounds like you were such an incredible partner to your husband during such a difficult time. Sending you so much love. ❤️

[@tonyoheidhin6509]

nice to see you doing videos again Laura , your earlier videos were really helpful to me post op , they gave me hope when I had very little , totally agree about food issues and the fear that comes with eating , just want to say a BIG thank you for giving me hope .

[@muas1727]

You're such an inspiration! I'm a medical student, and through your videos I learned so much about stomas. More than any medical book could have taught me. It really helps me understand the patient side of things. And hopefully the info would be put to good use!

[@ArcticAirUltraPro]

That makes a lot of sense, i live with a chronic illness and often feel like i know more about my condition than the doctor. Personal eperience gives you so much depth of understanding. I'm so happy there are people who are open in sharing their stories on youtube. It is healing!

[@yekaterinachizhova5058]

All those psychological and GI issues are so real, so intertwined, so complex and so often misunderstood or not understood even by doctors... You described the turmoil really accurately!! Thank you!!! ❤️

[@VeganOstomy]

😍😍 Thanks for the mention. You better believe I still watch your videos, Laura! Having a fear of food is something I absolutely went through before my surgery (when my Crohn's was out of control) and even for a few years after my surgery. Not so much now, but I can completely empathize with the anxiety, fear, and disordered eating that comes with it. And for the record, during the times I wasn't able to eat, you bet I was watching recipe videos! 😂😂

[@vsraghavan62]

Great talk. Having had Ileostomy 09 years back, I completely relate to what you have said. Though a Vegetarian, I eat everything including all foods and vegetables. Indian food being the staple, spices have not troubled me at all. No separate food is made for me and have the same food laid on the table. During gatherings elsewhere too, have the food being served. This contributes to the psychological well-being too as nothing separates me from the normal and I feel normal too. Living in India, I travel a lot here by Car/Rail/Air, Have travelled extensively in Europe and in a limited way in the US without any additional preparation and help. I consider myself as normal/abnormal as anybody else

[@jrgoddess]

The Food channel is the only thing I watch in the hospital, especially when I'm NPO. I fantasize about cooking the meals I see. I thought that I was the only one who did that😂. I usually get blockages after being taken off NPO status, because I eat too much afterwards.

[@njayswal]

Thank you Laura for sharing. When I was sick with Crohn's, my diet has only 4-5 items and I used to stay in bed watching food channels all day. My diet after my ileostomy surgery was very limited and I got ileus too, which really scared me. After a few months when I got better, I really just wanted to eat anything and everything I could find, but after being punished a few times for being reckless, I stopped eating foods with skins and seeds, popcorn etc. It's still hard to keep myself from trying out things I want to eat. I try to do my best. Thank you so much for sharing your story!!

[@lissettfrias2784]

Hi Laura! Just had my ileostomy yesterday, I have been watching all your videos until now, you were truly a inspiration to me, because of you I felt courageous and confident and ready to live my life as a Ostimate 🤗

[@debbie.mckenzie]

@@lissettfrias2784 Hugs to you. Have you named your stoma yet? Mine is Stephanie Stoma.

[@lissettfrias2784]

@@debbie.mckenzie Thank you Debbie, I named my stoma Journey, because from now on it will be me and my stoma on this journey tho my 2 little boys wanted to name it Miss Piggy 🐷

[@IdkIdk-gw3qo]

bhai please reply i am having ostomy surgery soon nd want to talk to you?

[@Preciouschildvic]

My doctors laughed when they would come into my room and I’d be watching the cooking channel and always when I couldn’t eat.

[@pinkmonkeybird2644]

Laura, I’ve been a paraplegic for 40 years, and I’m still figuring out how to live my best life from a wheelchair. It’s a very personal journey. I just had an emergency colostomy a few months ago, so I’m still adjusting to this new part of my life but it’s been so much easier than my other major life-altering surgeries, even with all the post-op complications I’ve experienced. I don’t have the same emotional relationship issues with food that you’ve had and continue to have because I didn’t have digestive disease for years and years, but I can understand where you are coming from to a certain extent. And yes, green olives on pizza are the best things ever! I miss those...

[@debbie.mckenzie]

I'm one of the lucky ones who can eat anything as long as I CHEW CHEW CHEW. Or at least so far. I also keep ice water handy all the time. The one food I've avoided for the past 4.5 years is apples. And I used to eat one every day. But that changed this summer. Now apples are on the menu again. Laura I really can't imagine this ostomy life without you, Eric, Megan, Sara and so many other KZbin friends. You are the first person I watched change an ostomy bag and I remember thinking... gosh that's not so bad...she's such a trooper! This was right after my Chrons diagnosis before I ever thought I could be an ostomate too. I wish you the very best!❤

[@heidipetrowics2052]

Thank you for posting this video, I’ve had my ostomy for a while and I’m still having to find different ways to eat the foods I like . Juicer broke so going to get a new one, love smoothies! You are great! Please keep doing your videos!

[@SaberBenSalem]

I visited your videos 6 years ago, Very happy to see you again after this long :) GOD bless you and wish you all the best from deep of my heart :)

[@lyssaearland618]

I have Ulcerative Colitis, too! Thank you for sharing your life, and showing that it's not scary. Like you said, there's struggles, but it's meant to help you, not "ruin" your life.

[@sensboy1]

Glad to know you're alive and well :) I know exactly how you feel. Blockages can be really scary, and eating with a stoma can be annoying and limiting sometimes. But it's just a small price to pay in exchange for being healthy overall. I wish you the best of health ☺

[@Lisalivinginthelight]

Thank you for sharing! (Hugs) It brings comfort which sounds weird, lol, just to know we’re not alone. I’ve had my ileostomy the same amount of time as you. While I haven’t thought about the times I was hospitalized and wasn’t able to eat, I do remember that I was absolutely famished! It literally bordered on obsessive thinking. It was so bad that I made my friends and family promise to call me after they had a meal to describe to me what they ate! My husband felt bad eating in my room so he would go and eat somewhere and come back after. That was until I insisted that he eat his meals in my room so I could watch him eat and smell his food. 😂 I would watch any food channel I could find on those 10 channel tv’s. I remember being memorized by the infomercial on the Magic Bullet. I Begged my husband to buy, TWO, not one! But 2 Magic Bullets! I pray good health to you Laura!

[@alyssahall9479]

Thank you so much for sharing your story, it is very inspiring and helpful.

[@jessicasopolis3904]

You are an inspiration to me. I have been struggling with digestive disease for a few years now..flared up from other congenital defects that have just now come to a head as I've become an adult. A spinal tethered cord not being discovered till i was an adult and its ensuing surgery created nerve damage in my bowel n bladder. My bowel is no longer functional and i have a temporary lap ileostomy surgery coming in late June. I completely relate to the fear of food / craving food paradoxical emotion. It can be horrific at times because like you said, "food is life". All I can stomach at the moment are these melon meal replacement smoothies my husband makes me n even those make me sick a lot of the time. My GI tract is lined with ulcers due to my bowel issue. I'm actually really wanting this ileo surgery ASAP but I AM nervous. It would be temp to see if it will help my symptoms n if it does, it's colectomy time!! Yay! I'm also no stranger to surgery. I've had countless. I wonder how you are now, darlin. Thinking of you and hoping you are happy n still rock climbing!! ❤

[@ArcticAirUltraPro]

You are so inspiring and like a role model. How you navigate mental health and share your experiences with your physical health helps me so much, thank you! I want to be more positive while also validating those hard emotions in the reality of my condition ^_^

[@Mischievous_kittenv]

Thank you for sharing.So Brave! ❤

[@geeg7202]

I know the old video but my gosh you’re speaking my whole mind. Thank you for letting me know. I’m not alone the battle with food. Yeah I want to eat salads. Yeah I want to eat everything on my pizza. I wanna taste it so spit it out.

[@PTBBLOGPODFILES]

When I was on TPN , I watched Tasty videos obsessively. My nurse said allot of folks do it 💛

[@nuts529]

Your smile is really inspirational ❤️

[@philippicard3652]

You are an amazing person!

[@MikeSmith-cy5ip]

This is a wonderful video, this is helping me to figure out the right types of foods for me to eat, with major stomach issues, would you be able to make a video on the other end of digestion, I have a huge amount of shame when it comes to pooping, especially outside of my home. there is such a stigma around poop, and people with IBD have trouble explaining it to others, because of the fear of other people believing it to be gross or taboo, let me know any thoughts, and a video would be great if possible, I've seen all of your videos, they really do help me.

[@teganwhite8917]

I'm sorry to hear that I suffer from cystic fibrosis and have NG tube feeding as i can't keep my weight

[@angelacevedo3696]

Laura god bless you

[@ПавлоПавільйон]

Здоровя вам і Госродньої допомоги Ukraine

[@savedbygrace9268]

Thank-you

[@rightpath7780]

Where’s Laura??

[@zach7608]

Hey Laura my name is Zach and I really need to ask you some questions is there anyway I can reach you to talk?

[@ПавлоПавільйон]

Здоров я вам і Господньої допомоги Ukraine

[@Nozverah2]

You are so goddamn beautiful😐💕

[@junochen5557]

Why not carnivore? Cures lots of autoimmune diseases!