My sarcoidosis story

[@teddybear8571]

Thanks for your sarcoidosis story. I’m going though a lot of the same symptoms and anxieties having Neuro-Sarcoidosis in my spinal cord, which has affected my nervous system & eyes. Stories like your gives others encouragement. Take care.🙏

[@markellwilliams3594]

Hi sarc sister.. I’m so sorry that you are dealing with this. I have it in so many places like heart bones, lungs and now kidneys. I use to live in Minneapolis Minnesota. I am in Houston now. The cold was making me hurt even more but I still love it there. I’m here with you in spirit. Hope we can meet up real soon. I’ll be going visit my grandkids there sometimes later this year. Thanks for sharing and I hope and pray 🙏🏽 you have a blessed weekend darling 💟💟💟💟💟💟

[@adammiller5122]

Becca, if you are still here, keep fighting.. I'm 7 years in now and fighting it every day...

[@jenamyallen]

Hello Sarcie sister!!!! 💜 Thank you for sharing your story!!. Reading about, listening to and talking to others with this helps me feel less alone. Gentle internet hugs to you!!! We can do this!❤🙌❤

[@rebekahcaddy6674]

Hi my name is Rebekah i have had it for 4 months now would love to chat if that’s ok

[@Lieveheersbeestje1962]

Dear Rebecca ..... Thank you so much for your heartfelt story ... I'm a sarcoidosis patient as well .... :-( I found out last yr 12th may .. For me it was FINALLY a reason / explanation for all my some what "vague" complaints ... ( for about 2 years !! ) But yet .. it remains a verdict shall we say ... It really interferes with my day to dday living .. My surrounding family and friends suffer as well to some degree .. There's like you mentioned "NOTHING" they can do for you to help you get better ,,... They can however make you feel better by giving you the support you need ... Especially to stop you from becoming depressed .. And then there is also the process of accepting it yourself .. having allways led a sort of normal life in which you could pretty much do anything you wanted .. and now leading a life full of pain , tiredness ... hospital visits .. medication ... etc ........... I have RESPECT for you ... as I do for all the people in the world suffering from this horrid depleating chronical disease .. I send you strength and the will to fight on ! Love from Herma from the Netherlands .. ( I am Australian though ! Melbourne ) ... In Holland we have +- 7500 people infected with Sarcoidosis .,.... Love to you ... XXX

[@cherrysimmons9694]

Just diagnosed Rebecca , thank you for your story!! I have Sarcoid in my left eye and it's a struggle

[@michellerackleyruehling1108]

Just diagnosed! Thank you for sharing your story.

[@zozansinde9610]

What kind off tast to do

[@Allon2324]

Thank you for your story. I have the chronic kind.

[@moniqueholmes2263]

Thank you for your story just found out a couple of months i have it

[@zozansinde9610]

How are u doing can u tell me what kind of Dr I have go for this thank u wish u full recovery

[@user-qp5fz3eo9e]

Hey do give a try to yoga pranayam It would really help

[@sillytubeify]

Stress n sugar are my enemies. I use cbd oil that helps my sarcoidosis flares. What made you decide to try remi over humira? I've done methotrexate, azothiaprine, and have been on humira for 7 years. It knocks me down for two days every injection. What made you change from humira?