My son has Heterotaxy - 28 weeks pregnant

[@arafahbadrul5705]

Hi. This is my first pregnancy and I’m currently 32weeks pregnant. My baby girl was diagnosed with heterotaxy syndrome (left isomerism) with some serious heart defects. it is a very rare case to happen in my small country. My edd will be in Nove and I am so nervous, so clueless on how to face this journey. Thank you for this video. I’m here to absorb the positivity, the strength from strong women and also from the heterotaxy warrior. I try to avoid any toxic positivity especially from those who never experienced this. Now I’m following heterotaxy connection community to strengthen my mind. I hope things will get better for you , and us. May God bless and also protect the baby ♥️

[@Prospekt1587]

Hey there read your comment. Wondering how you and you baby are doing

[@iloverose10]

I feel like you’re reliving my life. My unborn daughter Peyton is due October 30th and we were told she has heterotaxy on last Friday 6/11/21. I’m terrified Truly. Thank you for sharing and god bless you all, I’ll be following you and baby Milo.

[@JennCrafts]

I recommend joining the heterotaxy connection Facebook group

[@joannecolajo]

Milo has the best parents... sending hugs to you and your family.

[@analizandocrimenesymas]

I am a father-to-be, and we were just informed of our baby's condition: dextrocardia and heterotaxy.

[@lisabernardi4309]

You got this momma! I know how amazing you are when you are determined. You guys are an unbeatable team!

[@sewlady070375]

I will be praying for you, your husband, and baby. I've been watching your videos and just yesterday made the small version project bag and today came back to watch the large version video to begin sewing when I saw this post. You are a very strong person and I know this child has the best parents ever. Thank you for sharing.

[@CCMakesPodcast]

So sorry to hear, but you are doing the right thing and educating yourself. Being prepared before he arrives will help so much. Thinking of you all and praying everything goes well. Stay strong and positive! ❤️

[@shirleyhasson5982]

Jenn, you are a true fighter! I found you through your Jenncraft 23.5 video (the vinyl project bag tutorial) and have referenced it many times when making bags. I went looking for the video yesterday and saw this one about Milo. Before I even watched it to see what exactly was going on, I started to pray for you. Your attitude surrounding this situation is right on. Everything does happen for a reason. God doesn't give anyone something they can't handle. Doesn't mean it will be easy but you will grow from it. Look how you are already reaching out to educate and support others in your situation! So very admirable! Stay positive, and for the times when that seems impossible, know that there are many lifting you up in prayer and wishing you the best.

[@JennCrafts]

Thank you so much! It truly means a lot ❤️

[@dawnusaus68]

I am so sorry you are having to go through this, but one thing I know for sure - Milo has the BEST parents. I’ll be sending positive thoughts your way each and every day. Stay strong ❤️

[@TrishaThreeOwlThreadsLLC]

You are so strong, mama! I'm so happy that you are choosing JOY during this time. I'm looking forward to more Milo updates. **hug**

[@karengrammieknitterbug7902]

You have this. Keeping you all in my thoughts and prayers ❤️❤️

[@michellehutchens1917]

You are an amazing mom already! You did an amazing job just making this video. Baby Milo is already incredibly loved. You've got this. I will keep you and your family in my prayers.

[@jenhooper5896]

I'm so sorry to hear you all have to go through this, but you can do this. Hang in there and know you have an army of people behind you and Milo.

[@jillybean1059]

You and your husband are so incredibly brave and strong, Baby Milo is very lucky to have you guys on his team! Will be keeping your family journey in my thoughts and sending healing energy across the miles to you. Thank you for sharing with us, our hopes are turned toward you and your baby having the most positive outcome❤❤❤

[@craftycatstitcher6658]

Prayers for strength for sweet Milo and for you and your husband. I admire your positivity. Thank you for sharing your story.

[@primthepurplefibrocrow2991]

As I was watching, there were so many things I wanted to say. Now I don't have any words. Team Milo!!!!! -Sabine

[@TessStitches]

You are showing amazing strength. Keeping you all in my prayers.

[@justbeverly85]

Thanks for being strong enough to post this video! I was told my baby girl may have this today at my 20 week anatomy scan. It's very hard pill to swallow but I'm trying to stay positive ❤

[@JennCrafts]

I’m sorry to hear that. I created a new channel for these updates. Feel free to follow me at gonzalez family channel. Link in description. Feel free to reach out

[@justbeverly85]

@@JennCrafts thank you. I found it and have subscribed ❤

[@jmfg1955]

You and your husband have a hard journey ahead of you. However, you can get through this. You have a great attitude. I can say babies are very resilient. I’ve seen premature babies go thru a lot of obstacles. Stay strong for your little one.

[@Leia_TheLabss]

You’re so strong. You got this! ❤️

[@stitchyrach6252]

I’m struggling to know what to write. My heart breaks for you. Your positive outlook on this is amazing and will help you and your husband so much. I have been in that sonography room when you know something is not right and they “just need to step out” I had two babies with fetal abnormalities. It is an upsetting and shocking experience and wouldn’t wish it on anyone. My heart goes out to you and your husband. You are right, you are a team and you will get through this with each other’s love and support. It brought my husband and I much closer together. In our case the abnormalities were fatal and therefore I never had to go on the journey you are now on, in many respects I think my situation was easier. I will keep you all in my thoughts and prayers for the next steps. You are clearly going to be an amazing mum that will never stop fighting. And as an end note, living in the UK, it is so shocking that you have to be thinking about finance at a time like this. It just should not be something that has to be taken into consideration when people are struggling through some of the most difficult times of their life.

[@JennCrafts]

So sorry to hear for your losses. Thank you so much for your kind words

[@stitchyrach6252]

@@JennCrafts Thank you. I think you are amazingly brave, you will give comfort to others by speaking. I think it can feel like a very lonely experience but you are not alone, there is a whole world of love and support out there. If it would ever help to reach out to a complete stranger feel free. Lots of love.

[@tica_crafts1448]

I am sorry to hear the news about your baby diagnosis. My son was born with autism and ADHD. He is enroll in EFMP and tricare ECHO . Take full advantage of them, especially Tricare ECHO; if it was for it we would have been able to afford all the therapies he went through when he was very young. Today, he needs Behavioral therapy and Tricare Echo covers all of the expenses. EMFP have helped us moving to bases where he can get all the help he needed and needs at the time. Sending all the prayers for you and your family. Thanks for sharing and honesty.

[@dayzemae9015]

Hear what they told you? They need him as strong as they can get him before they deliver him. This means this is your part. You need to be strong. You need to eat really well, sleep and rest. When you get upset, it is not good for you or him. Use that energy to educate yourself. Get a binder and write everything down. I have worked in the medical field, plus have worked with tons and tons of children and teens. I have worked with special education teens for twenty years. A lot of them have had heart surgery, brain surgery, etc. They can do the impossible with the heart. My little brother was one of the first “blue” babies that was studied at Stanford Hospital in 1958. Because of him, I feel they know more today about the heart. Anyway, you be strong and think good thoughts. I will pray for your family.💕🎚

[@chelseywalker7123]

I'm sending prayers for you mama. I'm a few weeks behind you. Hugs praying for milo

[@saballosj1]

Stay strong jen, having my emily having her heart vents infused together and she's having to see a Cardiologists for life just to make sure she's OK. It's scary knowing your child has anything wrong with them. All you can do is love them as much as you can and give them the best life ever.

[@JennyFleming]

I can’t imagine what you’re going through. I am so sorry that you’re experiencing this. I hope making these videos helps you work through your emotions and remember everything going on with precious baby Milo. All I can keep thinking about is Psalm 139:13-14... For you formed my inward parts; you knitted me together in my mother's womb. I praise you, for I am fearfully and wonderfully made. Wonderful are your works; my soul knows it very well.

[@stitchyreevo9768]

You will be a great mum, thinking of you!

[@judithlockhart7137]

I will be praying for you and your husband and baby! I learned to make project bags from you and just happened to see this today. It touched my heart and I will be keeping up with your story and progress!! Prayers and love to you!🙏🏻🙏🏻❤️

[@JennCrafts]

Thank you so much 🥰

[@crystalstitching2]

God has a plan...keep staying positive in this journey & be the best team you can be for your son...you all are in my prayers!

[@carollord9371]

Wishing for the very best outcome for you and your family. This is an extremely stressful time for you and your husband but try to stay strong and take good care of yourself and baby Milo.

[@MOMbudols]

I am 29 weeks pregnant and my baby fighter is also diagnosed with heterotaxy syndrome. I feel you. *Virtual hugs* Let’s stay positive and believe in miracle. Nothing is impossible with the Lord.🙏🙏🙏

[@JennCrafts]

Yes let’s stay positive! Babies are fighters ❤️

[@debbiedoud1723]

Prayers for your family. Be strong.

[@sharondauz880]

Sending prayers, love and positive thoughts. 🙏❤️

[@NafeesahSufeyan]

❤❤HeterotaxyMom......Stay strong! Our kids are warriors❤

[@crazhappy15]

I’m 5 months I’m having a girl and tomorrow I have an appointment because doctors advised me to terminate my pregnancy 😢I can not believe I’m going thru this and is mommas have to go thru something like this 😢

[@Prospekt1587]

Hey there. Wondering if there are any updates to this. Hope you guys are doing ok

[@JenniferGonzalez-r7e]

My son is doing good. He’s 2 years old and has had 2 heart surgeries. I will try to post an update in the near future

[@Prospekt1587]

@user-gj2bu8ks4n God bless! I'm currently pregnant and Mt son got diagnosed with this. Wondering what the outlook is for people in the same situation. How did he do after surgeries ? do you think he's recovered well from them?

[@SinaiW-m5c]

@@Prospekt1587how is your son now? My daughter has it too I’m currently 18 weeks

[@jeweledantlerful]

❤❤❤❤

[@jacquelineleibfried4691]

🙏

[@audrea5515]

❤️🙏🏼🙏🏼❤️

[@jessicaturallo5163]

Any update, what happened after delivery?

[@JennCrafts]

He was in the nicu for 2.5 weeks then was released home. However he had open heart surgery just before he turned 2 months. I’ll try to post an update soon. Please feel free to also follow updates on Instagram @milos_heterotaxy_journey thanks!

[@jessicaturallo5163]

I am 29 weeks pregnant and couple of weeks ago my baby was diagnosed with same condition.😢 Heterotaxy syndrome , Severe congenital heart disease , single ventricle etc. asplenia (missing spleen) with flipped organs on the other side. I am so scared for my baby . Good to know that you're baby is thriving ,hope my baby girl will make it too. 🙏