My test results, I have a diagnosis!

Just talking about my diagnosis and where I go from here.

[@lindsaygreer8487]

So happy for you! Finally a diagnosis you can tackle. Wishing you all the best in your health journey.

[@angelgirl6966]

I'm glad you got your diagnosis it took me 13 years to get mine I have Ehlers Danlos syndrome

[@clairemckinley691]

Angel Girl Hey there! I have EDS as well (type 3 but with significant classical overlap) and it took me ages to get diagnosed. Being 17, I guess you could say that it took 17 years for me to be diagnosed as I've had it my whole life, but it's probably more accurate to say it took me 5 years to get diagnosed, as I was actively seeing doctors during that time. It's nice to find someone else with eds! What type do you have?

[@normahockenhull8002]

I have EDS too, Classical type. Also took me 13 years.

[@lydiakies9053]

Having had poor doctors who WOULDN'T test me for things, I understand your relief with a diagnosis.

[@destinyreidel]

I've been following you for years and I'm so so happy for you! Good luck on the next leg of this journey, you're so strong, you got this girl!

[@urnottamei2624]

Random thought continued..... If you were able/capable of being so driven to succeed in business, life, dance, etc. while your body was being attacked constantly by several illnesses simultaneously, I'm so excited to see what you'll accomplish once your illnesses are treated!!! We all hear generic stuff like, " The sky's the limit! You can do anything you set your mind to!!! " but You are the actual 1st person that I whole heartedly believe can accomplish ANYTHING you set your mind too!

[@TieDyedSquishy]

The Lyme disease bacteria can hide in your blood. You can be tested repeatedly and it not be found. It's so very hard to diagnose. I'm glad you were able to finally get your answer!! 💗

[@elizabethw.454]

Greene Turtle Very true! Lyme is a very intense diagnosis and I hope Bryony gets proper treatment after all this time.

[@Coccinelf]

I TOTALLY understand! I finally got a diagnosis too after 8 years! I was so happy! It's not like we will magically feel better without the diagnosis so I don't see any negative. We can now start to look for solutions!

[@monicarowles9854]

That's fantastic news Bree! I have been watching you for a long time. Happy to hear and thanks for sharing, will keep watching for your results on how you are doing. Hugs from Houston, Texas 🐂🐃🌵

[@jeannieleasa1579]

Congratulations on your answers. I suffer daily and a simple cold that most people just push through and usually don't even miss work knocks me back on my bed for over a week. I have EBV, ME, Chronic Fatigue syndrome, whatever you want to call it. I have had a cold and couldn't get out of bed for 7 days straight. Sorry for the rant, but this illness is frustrating. Congrats on finding the problem. Treatment is so very important with Lymes. A cousin of mine waited too long for treatment and some of his mental symptoms are permanent.

[@FollowMyFrench]

Very pleased for you! This is a great example of why you should never give up when you don't have a satisfying answer 🙂

[@sprinklefriend]

I always thought you might have it, but you had said you were tested so I figured you didn't & it just was similar to what you were experiencing. Glad you got some answers!

[@thecakefate]

I'm about to get tested for Lyme also. Glad you have an answer now!

[@ambergypsy9]

I am so glad you have a diagnosis. The worst is not knowing and feeling so terrible. I know the feeling well and it was such a relief to find out what was wrong. Heal soon xx

[@juanitasparkes3374]

I am so glad that you finally have a diagnosis!!!! The not knowing what is going on is so hard. But now you have the knowledge and a battle plan. I look forward to updates on how you are feeling. Stay strong and have a great weekend!!

[@urnottamei2624]

I'm so happy you FINALLY got a diagnosis!!! I do mean that in a supportive and positive way just to clarify! I have enjoyed watching you on both channels for quite some time now. You must have felt a tremendous wave of relief, and vindication when you received those results!!! I'm grateful that you have answers, a strong treatment plan, and a positive outlook! Hmmmm just a random thought....... If you were able/capable of being so driven to succeed in business, life, dance, etc. (Tbc)

[@IonIsFalling7217]

I'm so happy for you! It's wonderful to know it's treatable! It helped me so much just to have a name.

[@saraschwalm4560]

I am very happy you finally have an answer and a direction in which to direct your treatment!

[@saartan2437]

I'm so so happy for you that you finally have a diagnosis! Hopefully the treatment will go well (don't know why it wouldn't :p). I wish you lots of luck

[@CanisLupus1987]

I'm so Happy for you! I hate to see you suffer in and out of the Hospital! I really have my fingers crossed for you! You were so young when I started watching you and to see you finally getting answers is long overdue! Good luck!

[@sophiethorne8765]

I'm so glad you have finally got a diagnosis. I have always thought it could be Lyme disease, my brother was diagnosed after having the same test. He was originally tested by his GP which came back negative however it was only after paying for the more in depth test that it came back positive. X

[@emilieeneal6697]

congratulations on your diagnosis, I totally understand how frustrating it is being so ill and not having an actual diagnosis. I am so glad you have a recovery plan and I wish you the best in your recovery!!

[@hannahrobin7449]

I'm so glad you've got a diagnosis and will be getting treatment soon! I wish I could pay for that test to be done but I just don't have the money which is so frustrating as I know that there has to be something going on with my immune system.

[@penguinsjd]

im in a similar situation. ive had fibromyalgia and m.e. for 3 years. I'm glad you've found an answer, unfortunately I'll never be able to afford a test so expensive :(

[@barbrovaage7585]

My son was suffering from this desease for å decade. One time he slept from thuesday until friday. He got help and today he is doing so great. Never give up!

[@chesh1rek1tten]

it|s so great that you have a diagnosis and can do something about it! I'm so happy for you!

[@brittneyvankoevering548]

So happy for you! Glad you found answers & they are treatable!

[@yumyum215]

congratulations on your diagnosis and I'm happy your getting treatment

[@hamsterloverforever1]

Oh my gosh Bree! Finally! You were probably ready to scream and jump up and down knowing you have an answer. I'm battling something right now with my health and they basically tell me there is no other options anymore. After all this time too I am still doing this. I have been watching you for so so long and seen you come so far and oh my gosh you finally have an answer. Best wishes and big hugs!

[@janegreen9378]

Its so wonderful you finally have answers! Can you you let us know what the test you had was actually called? I want to see if its available in Australia. Nobody seems to offer us any extensive blood tests like you mentioned, maybe with a name it might help.

[@callabeth258]

Jane Green Lyme disease isn't recognised in Australia so you can't get tested for it here

[@FurbyGender]

This is my first time watching your videos, this one was on my recommended list. I was quite shocked by the British accent, I was expecting an accent from the U.S. but anyway, I just wanted to say that I'm sorry for what you're going through however, I'm glad that you found a doctor you like and who can do anything to help you out. You've earned a subscriber!! Take care

[@nicci24]

So pleased for you to finally have an answer x Best of luck with the treatments

[@sineadfell]

I have gone through a similar experience and I am so happy you have a diagnosis!

[@bethanylorna]

It makes you wonder how many people are out there who have been diagnosed with ME/CFS but are harbouring viruses or have Lyme Disease, particularly in the U.K. where our NHS, whilst absolutely wonderful and vital, is so underfunded and cannot support these tests. So happy for you that you finally have answers :-)

[@hollietingz]

So pleased for you! Best of luck with all the treatments xx

[@redkatsound23]

Happy for you that you found your diagnosis. I really enjoy watching your videos... I discovered you through Precious Stars Pads and now enjoy your vlog channel as well.

[@elevenbyfive]

i'm so excited for you finally getting an answer. I totally get it about feeling happy to have a diagnosis. It's awful when you either don't know what it is or there is no definitive treatment. It seems like this is the missing piece of the jigsaw. I hope this treatment regime will kick it to the kerb for good and you'll feel a new normal that you forgot even existed. Cheering you on xoxox

[@madtingz2288]

I'm 100 positive I have M.E and have had it for over 6 years. I just remember it starting back when was 12, I just couldn't focus properly anymore, I found it so hard to do everything sometimes just getting out of bed was such a struggle, it has never really got better I always just feel this way. I've been to the doctors so many times, they've thought it was depression (which I may have as well) they've also said its just a "teenage thing" or I wasn't getting enough vitamins but nothing was adding up. Everyday was and is a struggle for me and I've missed out on so many things due to this. Do you think it may be M.E? I'm glad you got your diagnosis on Lyme disease x

[@cateyearabia]

I'm sooooo happy for you!!!!! I hope it all turns out well!!!

[@StitchingJoanne]

Wow, that test sounds amazing! I can't believe it's 'just'' Lymes Disease! I look forward to seeing if you feel better. I've had panic attacks for 14 years, triggered by hormonal changes (in my opinion) and the doctors have never been willing to test my hormones.

[@Opetheric]

www.spooky2-mall.com/usertestimonials/

[@aa_edwards]

I'm in a similar situation with health problems and am waiting on test results to figure out what's wrong and it can be excruciating, so I feel u on this one. You find yourself hoping that you get a diagnosis, even if it's something incurable, just so people know you're not exaggerating. So glad for you that you got your diagnosis. Btw I would love to see a video about reusable menstrual products/periods that is geared towards men in our lives or male partners of women with periods, similar to what you did with your video for parents but instead it's informing husbands/boyfriends/dads about periods/period products :) I think some men are still freaked out about periods and period products so the best way to tackle that is to inform and educate them that's it's not gross and include them in the conversation. And obviously there are trans men who haven't transitioned so still have periods themselves, which must be hard for them to talk about

[@FrankieFrankenstein7]

Glad that you finally have answers💜!

[@tiarichards4548]

Bree, you suffered so long. I'm glad you are getting treatment!!

[@lizziejean1218]

Congrats on the diagnosis!!

[@sssophie9292]

Great video. I'm happy for you that you finally have an answer 🍈🍐🍏🍋 Hope these treatments work well for you :)

[@lizZLupin]

I will keep praying for you. Lyme can turn ugly. I'm referring to potential long term complications. But you seem to be doing well so hopefully you keep progressing. :)

[@sierrah1295]

That is awesome! Im so happy the dr's finally figured it out!!! Didn't you originally become plant based/vegan to help you feel better? Will you continue on that diet now knowing that you don't have a chronic illness? I think if it wasn't for your plant based/ vegan diet you wouldn't have went to the dr that finally did the right test! Either way, Im glad to have been on this journey with you and I'm ready for the next too! ❤️❤️❤️❤️

[@cautionconinc.gaming3382]

congratulations im so happy for you i hope that it gits better for you . this gives me hope that i can find out whats wrong with me.

[@akeny1]

Oh I'm so happy for you, I know what it's like for doctors to skirt around answers like with me I've been having daily headaches since I was maybe 12 ish I'm so glad that I discovered that corn, bright lights and the thing that's in diet sodas where what was causing my crippling migrans with is five to ten times worse than a normal migrans , at 18 I was diagnose with OAS oral allergies symptoms on a mild sever level I can only a few items that are fresh

[@amandamedina5663]

I'm so glad you finally got a diagnosis! I'm sure its such a relief to finally know that it's not all in your head. So happy for you. Hoping you finally feel better 😊

[@ariel5376]

I've been struggling with an undiagnosed chronic illness for 4 years now and I was wondering what kind of test was it that you took? I know the struggle I've been to so many doctors and at this point they blame all my physical problems on anxiety because I'm "too young" (26) to have all these issues since all of my tests come up normal. 😩

[@elizabethw.454]

The Patches Do you live in the U.S.?

[@ariel5376]

Emily Blackstone Yes I do!

[@elizabethw.454]

The Patches You will want to ask your doctor for an Igenex Lyme/co-infections test. Igenex is the most accurate Lyme test as opposed to the Western Blot. You will need a doctor who is receptive to finding out the cause of your systems. If he's not, please find one who will listen to your concerns and wants you to get better. I recommend an Internist MD or a Functional Medicine/Integrative MD doctor.

[@ariel5376]

Emily Blackstone Thank you SO much for the information and recommendations! I have been through so many doctors and specialists hoping to find the right one I've pretty much given up on them. I will definitely be looking into those doctors you mentioned and I'm meeting with a new PC Doc next week so I'm going to keep my fingers crossed that he will let me get those tests. Some type of diagnosis would be wonderful even if it turns out to be ME I just want to know what is going on with me that has made it so I haven't been able to work for the past 4 years. I truly feel for everyone that has an invisible illness. The majority of the medical community just doesn't take us seriously. 😞

[@elizabethw.454]

The Patches It's definitely very difficult to live in agony when no one is giving you any answers. Unfortunately there are a lot of doctors that don't have the time nor ability to find the root cause of a person's illness. If you're lucky enough to find a really good one it can make all the difference in the world. I hope you get some relief soon. Hang in there.

[@MsMadKim]

Damn! I have been following you for years and always thought that maybe you have Lyme disease and now you have evidence that you do! There have been increasing amounts of Lyme disease cases in Europe which may be due to climate change. There needs to be more public awareness on this disease because preventive measures can be implemented to prevent from being bitten by ticks.

[@Zoe-my6vv]

I'm so happy for you. I've been watching you for ages and you made me decide to change to cloth pads. are you going to continue your company and KZbin videos or are you going to get a job or go to college.

[@kellyhinde4048]

That's great news hunny great vlog I wondering the other day if you got your test back xx

[@suze4944]

I've watched a lot of your videos... you really don't make much sense to me Bryony! Your continuing illness, was (ME)... but now (Lyme disease), just don't sound right at all. I was diagnosed with ME back in the 80's when I was 18, I'm 50 this year, and I'm still suffering with the illness. I know all there is to know about the symptoms of ME and have also known many other people with the illness too. When I saw you talking about your ballet/dance classes, I knew you couldn't possibly have ME... you just would not have had the energy to do that if you did. I used to do ballet and was very active in a local theatre, but when I became ill I had no strength left to continue those loved activities... and they suddenly caused me a lot of pain too. Everyone I've known with ME has had the same experience, it leaves the sufferer so sick and lacking energy they can barely deal with a daily routine, any other additional activities have to be given up. I know friends who tried to keep up various activities and made themselves seriously ill in trying to maintain the life they used to have before the illness... it's not possible!! But you... you appear to have all the energy you need to live a normal life, dancing, a child minder (yes, I did that too... it takes serious mental and physical energy) plus you have a business and two You Tube channels. That's a full packed life... this is crazy, that you want viewers to believe that in-between all of that you are ill, that you actually have Lyme disease. You have got to be kidding! I also know three friends who have suffered with Lyme disease for over 10 years... experiencing high levels of pain, chronic digestion issues, and a serious lack of energy and ability to concentrate.... they can't live a normal life like you are living. And to say it is treatable is not entirely true... antibodies can continue to cause chaos in the body long after the infection is gone, a serious low state of health can continue for many years. There is no way any of those sufferers I know have the health and stamina to accomplish these things you do in your life. You're an illusion my dear, you are painting a picture for sympathy, because we all know sympathy works incredibly well on foolish minds who surf online looking for others to sympathise and connect with. (All very good if it's genuine, but not if it's a fictional illness). If you carry on the way you are now, with your misguided beliefs on these illnesses, I predict you'll end up one of those 'exposed vloggers' one day. Time reveals a lot, and time won't be kind to you if you are not telling telling the truth. Seriously Bryony... you're a young vibrant woman with a great future ahead. You do some worthy things in this life that cannot be disputed... concentrate on those things, live life positively, and be glad you do not have a serious illness that leaves you unable to live a normal life. Live Bryony... leave the illusion, and be truly alive.... people will love you for that.

[@jazzyrobot]

I find it quite worrying that you were diagnosed with a chronic illness incorrectly. So many people could be out there suffering from a treatable illness that they believe they will be stuck with forever :/

[@Una2]

jazzyrobot That's what happens when people shop around for diagnosis. Her GP told her repeatedly she did not have ME.

[@jazzyrobot]

Una2 Really? That''s awful! How do you know?

[@Badfishtooo]

jazzyrobot She was not. I have been watching her forever, I don't believe one word of this. She never had CFS, I've literally been saying this for 2 years.

[@Badfishtooo]

holley meaney She ABSOLUTELY shops around for a diagnosis! She has a new problem every week. She never had it!

[@sneekz07]

Maybe she shops around for a diagnosis because her previous ones weren't correct!? What a concept.

[@humuhumunukunukuapuaah1121]

I'm so pleased for you! There have been times in my life that I've thought 'this can't just be CFS!' As I'm sure many here have. I've been suffering for 15 years now. From the age of 12. Sometimes I really wish a dr would give me a life changing answer like this!

[@arlyandjay]

I'm so glad you have answers. I've been battling fibromyalgia but wonder if it's not along with something else or something pissing it off more. What was the name of the tests they did for viral etc? I'm in the USA so I may have been tested for it yet and it called something else but would like to check anyways

[@ChronicallyCassidy]

Bryony, from the beginning of you sharing your medical problems, I KNEW you had Lyme disease. I have chronic Lyme disease. I'm your age. I am not surprised, are you talking about the IGENEX test in California?

[@hannahtaybooks]

I hope your ok Bryony x

[@ChronicallyCassidy]

Often you can feel worse before you get better with treatment but it depends how severe you are.

[@Merelf]

I'm so happy for you! What was the name of the test they did?

[@ChronicallyCassidy]

Please watch the movie Bryonony called Under my Skin!!!! Please watch it. It's a life changer.

[@RussellTHackjrnm1k]

get well soon

[@cheekymeeky9018]

Im in the same boat. I know something is wrong but my dr says just aches and pains with exhaustion. I used to love walking and playing volley ball but now Im a real bitch about it

[@JC-ly8pz]

Have you looked into ozone therapy to kill the Lyme? Also do a chelation provocation heavy metals test. A lot of people have heavy metals but don't know how to properly test

[@mimsc2914]

Try GcMAF (or Gc protein-derived macrophage activating factor)

[@debragalvan1600]

I know what you mean you get to thinking your crazy because they say you have nothing wrong with you but on the other hand when you find out you say good im not crazy but then you say oh thats what wad wrong with me so always listen to your body no matter what the Dr say

[@alittlepreachy]

I would look into Bizzie Gold and buti yoga as well as eating grain free and dairy free

[@mirandamidwifeuk8330]

Please can you say the name of the tests you had. I have been looking for something similar .

[@MazzyMadness]

My friend was misdiagnosed with ME for years and years before realising it was Lyme. He's recently flown to the US to have stem cell transplants because his Lyme is too bad to treat now, because they left it so long. Cost him over 30 grand. Hope yours is a lot lot easier!

[@katielp97]

I have M.E and eds type 3 I am constantly exhausted and in pain x

[@jenhargreaves4252]

i feel so sorry for you

[@QuietMarch]

I was thinking Epstein-Barr virus makes so much sense! I have type 1 diabetes and I have a feeling I have EBV too. So looking forward to hearing how your treatment goes.

[@janetatum8966]

Can you share the name of the test so we can explore it for ourselves? I have ME/CFS, POTS, etc. I know there are 2 different broad spectrum viral tests in the U.S. w/ 2 competing companies and I just missed the window to get it done during the trial. They aren't commercially available last I checked. I'm always so low on Epstein Barr tests that that isn't the cause. HHV-6 I had but not real high test. I was tested for Parvo Virus B-19 about a yr or 1.5 yrs after I got sick and they said it was still elevated to a point where it could have caused my initial illness like a yr or so before. But cause has been a bit of an unknown. Btw, I have elevated DHEA-S, but normal ovaries. Wondering if it's from the Florinef (acne is a side effect and I had acne even before it...Florinef increases aldosterone, a type of androgen steroid hormone) I take for POTS or the stress of POTS.

[@para-mentischannelbypiggsy4240]

Colloidal Silver may help

[@TheGLOSSette]

Is it possible for someone to have ME/ Chronic Fatigue Syndrome and not have any other underlying/ undetected illness or disease?

[@ashleythechemist]

It's possible because usually that's the diagnosis they give when they can't find a specific cause but we still don't have all the answers in medicine and so there may be explanations for these conditions in the future when they do more research.

[@keke8880]

Is there a name for the test you took?

[@TheNails3]

Hey Bryony, were you bitten by a tick?

[@guinp4858]

Hi bree

[@palomaharper2810]

You look like Peter Pettigrew

[@maryellenmcquown3338]

so there is a cure

[@momsagainstmedicalbullying6154]

Was is following vaccination that you acquired this rare disease?

[@naturallygifted2002]

look into coffee enemas Gerson Institute website

[@naturallygifted2002]

Bree, Do some research on Coffee Enemas. I think that should help with you chronic illness, as well as the lime disease, Candida etc.

[@cuedan8700]

Bree what is ME? multiple sclerosis?

[@IndigoJo]

Raquel Mosepr Myalgic encephalomyelitis - commonly (and inaccurately) called chronic fatigue Syndrome.

[@amyfussell4504]

Raquel Mosepr I can't remember what it stands for but it's Chronic Fatigue. Multiple Sclerosis is MS

[@IndigoJo]

Amy Fussell if Raquel is a Spanish speaker, then EM will stand for both.

[@cuedan8700]

Thank you!

[@millietrusttum3125]

How old is she?

[@rnslove]

I believe 19/20.

[@ChronicallyCassidy]

For more information on Lyme you can follow my Instagram chronicallycassidy, KZbin chronically cassidy and fb page Fight Lyme for life where I post a lot about chronic Lyme

[@elliemccarthy5672]

Why don't you just delete stuff off your phone? A video can't be more than a few gigs.

[@darussianping61]

you have symptoms of vaccine injury. limě disease and chronic fatigue as well. i woudnt be suprise if you have high metal level. you need a very good detox. ask your doctor to test you for heavy metal like aluminium,mercury,arsenic. seriously.

[@Sophie-gj9ft]

Bree think you suffer from health anxiety hypochondriac

[@lindsaynicole925]

Yay!!! Finally so me closure for all that you've been through medically! Good luck on ur recovery!!