My visit to the doctor about ME/CFS ( Chronic Fatigue Syndrome )

My visit to the doctor about ME/CFS ( Chronic Fatigue Syndrome ) - Diagnosis, Symptoms & treatment.

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Күн бұрын

Пікірлер: 38

@thereseschab5042 5 ай бұрын

Me also...30 years. Never give up. Pacing, get rid of toxic people, strict carnivore, iodine, supplements, I had stem cell treatments, rest rest rest......simple life, prayers, herbs for brain oregano, cinnamon, clove......I did urine therapy for awhile. I'm now about 90%. It is so debilitating, so get ride of people who have no empathy.

@livmathis2378 5 ай бұрын

Hi love what is urine therapy and do you mind sharing where you got stem cell? I’m suffering badly from this :/

@thereseschab5042 5 ай бұрын

@@livmathis2378 Urine therapy is the ancient healing modality of drinking your urine, which also has stem cells and many elements including hormones. There are many books and sites you can find. I received my placental stem cell therapy here in central Mexico where I live, about two hours from Mexico City. It wasn't cheap, but I believe it gave me a big boost at the time.

@veggiegirl3340 5 ай бұрын

I am glad carnivore is working for you. I too feel better on carnivore (former vegan) I have fibromyalgia and possible ME. Pacing is really important so you don't crash.What helped me a little was having a cold shower at the end of my regular shower just for a few seconds to start. I never did more than 30 seconds of cold water.

@PowerofCarnivore 5 ай бұрын

Thanks for the tip @veggiegirl3340 I'm glad carnivore is helping you too 👍

@saveyourselves5923 4 ай бұрын

M.E sufferer for 5 years. I know the misery all too well. Started off mild, was able to go for light walks, even though I felt like I had a permanent hangover and old ladies would overtake me. Doctors just said I was unfit. Then I had a real bad crash and I've been housebound ever since. The loss of independence has been really hard to deal with, I can't do hardly anything for myself. Bad enough being ill, not knowing what's happening to you without all the gaslighting from people. No wonder many disabled folks go have so many chips on their shoulders, getting treated like dirt is exhausting. Carnivore has helped with the inflammation, pain and depression side of things. Sleep is hit or miss. Electrolytes help.

@PowerofCarnivore 2 ай бұрын

Hi, I don't know how I missed this comment. How are are you doing now, are you still on the carnivore diet? Have you tried supplementing with Iodine? I've been a week now using Lugol's drops 12%. It turns out that on the carnivore diet especially lion diet, there is very little iodine. Also with me/cfs sufferers, they can also be low thyroid. Blood tests are not that accurate as they don't show the T3 hormone levels, so even if you have T4 in the range your T3 could still be low because the T4 may not be converting correctly, I've read about 80% of me/cfs people are hypothyroid or have low level hashimoto disease. I did a recent video talking about it some, (its a bit of a long vid though), & will be doing some more better ones soon 👍

@curlers8798 5 ай бұрын

30 years living with ME and its conditions at peak level has been a life sentence i have hated each and every day. People who dont know or understand this condition will never ever understand the pain, stress and demands it takes on your mind and body as you have to combat several different symptoms of this condition which can flare badly at ant given time. Its hard enough to live with CFS and the nightmare sleeping pattern and severe lack of energy you have to cope with but you can add to that extreme sickness that lasts years, brain fog making you struggle to think properly, overall body pain and headaches and anxiety leading in y case to panic attacks when in public. At 52 this month i will have had this condition and seen the issues with doctors who dont accept its real or people who dont know what the condition really is when you get a referral to speak to someone. My heart breaks for anyone who suffers this as it can be deadly and people suffer long term pain and isolation before they pass and more needs to be done to highlight this condition so that we have someone and somewhere to go for some sort of treatment

@PowerofCarnivore 5 ай бұрын

@curlers8798 I 100% agree 👍Another problem is that people with this can look healthy so doctors just think it's all in their minds. I've had some really bad days after I've done too much exercise where I've been in bed for days and actually felt like I was dying and kept thinking that if I keep getting ill like this one day it could kill me. Carnivore has helped a lot, but there needs to be more help and understanding of the condition available because my social life has deteriorated with this and when the pollution gets bad I don't want to leave the house, so it can be socially isolation, making anxiety symptoms even worse.

@curlers8798 5 ай бұрын

@@PowerofCarnivore Mate i have has to deal with suicidal thoughts year in year out because you get SO LOW that it seem the only way out is doing that. I agree people look at you and dont see a person with missing limbs and assume your healthy when the reality is anything but. The longer i have went living with this condition the more impactive its become and thats something people who have this condition need to know and understand. When i think back to my initial period of sickness with this i was 8 months bed ridden with my old doc not understanding what i was dealing with. 15 years of sickness where as soon as i ate something i would have an hour of will it stay or will i be sick again. ME is one of THE worst conditions to have and its an awful thing to live with as its a fight you deal with alone all the time

@PowerofCarnivore 5 ай бұрын

@@curlers8798 I had so many problems with my family because so many smells were making me ill, but my own family all thought it was all in my head. They were just adding to the pain of it. At least my family have become more understanding these days. How are you these days, are you improving?

@curlers8798 5 ай бұрын

@@PowerofCarnivore No and the reality is after 30 years living with this condition i will never be free of it. At least now my family understand how the condition works so someone cooks for me to allow me to be able to eat without the smell of food making me gag when the symptom of ME flares up. I live now more or less housebound on very strong meds to try and deal with this condition and its miserable as fuck but thats what i now have to deal with that and the brutal fight for benefits to boot. Being ill now is a crime to many a politician.

@PowerofCarnivore 5 ай бұрын

@@curlers8798 you could try the carnivore diet, lion diet us best only beef, lamb and water, see if that helps you. There are quite a few people on carnivore with ME/CFS who are feeling quite better on carnivore, here is one girl with a good interview here: kzbin.info/www/bejne/nl7PipttqMSHppo 👍

@MrDukeeeey 5 ай бұрын

Look into dental infections. Root canals cavitations etc, it's the metabolic waste from anaerobic bacteria that destroy the bodies enzymes

@mike7920 5 ай бұрын

Don't do this. It's an infinite rabbit hole

@MrDukeeeey 5 ай бұрын

@@mike7920it's how I and many others goy better

@PowerofCarnivore 5 ай бұрын

Link to my previous ME/CFS video I made a couple of days ago here: kzbin.info/www/bejne/Y5rMemOjisR1qZY

@Truerealism747 5 ай бұрын

Ive read a paer cfs been linked to tongue my father had lioncancer whi has cfs though he had it prior to

@musicmusic6595 5 ай бұрын

carnivore diet and plenty of red meat is always a good start. Look into fermented foods like sauerkraut and raw kefir too if tolerable, very good for energy production. Supplement a good b complex and calcium magnesium, zinc, all fantastic supplements i recommend Endo met laboratory supps but their a bit expensive.

@PowerofCarnivore 5 ай бұрын

Thanks for the advice @musicmusic6595 👍

@heathergardner5001 5 ай бұрын

Have you been tested for lyme disease? It causes extreme fatigue along with a host of other symptoms.

@PowerofCarnivore 5 ай бұрын

@@heathergardner5001 Thanks 👍I will check about this next time I go to the doctors 👋

@Truerealism747 5 ай бұрын

@@PowerofCarnivoreget a private test it's only 60 percent accurate

@Truerealism747 5 ай бұрын

@@heathergardner5001have you got it from lyme

@Truerealism747 5 ай бұрын

You have mcas had it all my life but now diagnosed autism ADHD causation genes at 44 27 yeaes cfs fybromyalgia 6 same illness my father also has cfs