Myelofibrosis: Symptoms and Emerging Treatments for this RARE Blood Cancer! | The Patient Story

Ruth shares her decades-long journey living with myelofibrosis symptoms like fatigue, migraines, and bleeding episodes. She provides a valuable real-world perspective on the challenges patients face.
Myelofibrosis is a rare blood cancer that affects the bone marrow. In this insightful discussion, patient advocate Ruth Fein Revell joins top specialists Dr. Angela Fleischman and Dr. Ruben Mesa. They explain what myelofibrosis is along with first symptoms and the latest emerging treatments.
They also highlight recent advances in myelofibrosis treatments, from early therapies like hydroxyurea to the explosion of JAK inhibitors and combination regimens over the past few years.
Full story & transcript → thepatientstor...
Thank you to GSK for their support of our patient education program!
#myelofibrosis #rarecancer #MPN #cancerresearch #bloodcancer #cancertreatment #myeloproliferativeneoplasms #myeloproliferativeneoplasm #fightmyelofibrosis
#raredisease #bloodcancer #hematology #diagnosis #treatment #clinicaltrials #jakinhibitors #combinationtherapy #transplant #advocacy #hope #cure #research

[@sheliadean9548]

Thank you for sharing your knowledge

[@gaz3]

Hi all I have mylofibroasis.. it’s been hard on the body for me.. I am 40 year old male .. my spleen is massive but I have received radiotherapy to bring the spleen down which has worked .. I was just on ruxolitinib and then that didn’t work to went on to fedratinib .. now I am off both and awaiting my stem cell in 5 days in Scotland.. it has been a massive strain on my life from really tired blood transfusions every 2 weeks for the hemaglobin ..they have found a donor who is a 98perent match from Germany he is 23 I am 40 so this will be interesting 🤨.. I just want this fixed and gone for good like anyone I suppose .. any questions please msg me thankyou ps thanks for the video guys ❤