नेऊरऑफईबरोमटोसिस अवेर्नेस (हिन्दी ) Neurofibromatosis awareness (hindi)

[@maheshlagad5882]

I also have this disease. I don't have any friends since childhood because of this disease. But I am fine being alone. Now I have become used to it.

[@ariseforneurofibromatosis]

Please do not call this a disease, it's a genetic condition.

[@ariseforneurofibromatosis]

Many of us who have this condition are often seen being alone as others don't accept us due to our looks.

[@atultanwar5690]

🙏🙏🙏🙏

[@archanasharma2707]

Mujhe bhi aapki jaise hi nf hai, mai bahut dipration me rahti hun iski vajhan se

[@ramnareshjharamya]

Dost mujhe bhi ye hai doctor n bola iska koi ilaz nahi h bahut pareshaan aakela hoon

[@ariseforneurofibromatosis]

Doctor ne sahi kahan hai, isska koi permanent illaj nahi hai. Nf k vajhse kuch problem hoti hai, uska aap treatment karva sakte ho. Par NF ka koi illaj nahi hai.

[@MandeepSingh-tu7lh]

Par mem ji you tube pe video a rhi hai ke ilaj ho jaye ga bo sab jhooth bol rhe hai

[@MandeepSingh-tu7lh]

Muje b hai mem

[@ariseforneurofibromatosis]

Ap chaiye to kisi bhi doctor se baat karlo, woh aapko sahi guidance dege....

[@richielucas6825]

👏

[@vimalpradeepkumar2711]

How can I reduce the size of neurofibromatosis? Plastic surgery is usually needed. The surgeon cuts the neurofibromas out of the body before resealing the skin. Depending on the size and location of the neurofibromas, they may be able to be treated with laser surgery or an electric current (electrodessication) instead.

[@Krishnakrishna-gj2bs]

Mujhe bhi yeh problam hai

[@ariseforneurofibromatosis]

We are with you Krishna. Stay blessed

[@simmygupta9271]

Yee problem mere or mere maa hai or mere Nani main bhi thi

[@singhsuraj8067]

Mem meri sister ko hi age 20 hi Koi ilaj ho sakta hi Therapi se thik ho sakta hi kiya please ripley

[@ariseforneurofibromatosis]

Iss disorder ka koi illaj nhi hai, aap cha he to operation karva sakte hai agar koi hissa taklif de raha hai. Plastic, cosmetic yah neurologist surgeon ko dihka sakte hai.

[@ariseforneurofibromatosis]

Suraj aap hamare whatsapp group join kar sakte ho, agar aapki sister ko baat karna chaiye to humse baat karwa sakte hai .. hum

[@imranawan8514]

@@ariseforneurofibromatosis ap apna whatsapp nbr dyn mam

[@ariseforneurofibromatosis]

aapka no. hume Email se bheje

[@imranawan8514]

@@ariseforneurofibromatosis ni ja rha h ap apna nbr dyn plz

[@kishorsahu6242]

Thank you for supporting me mem❤❤

[@sathyavanishakthivel2489]

I have this problem too

[@sathyavanishakthivel2489]

Please mom have medicine

[@bulbulrajpu]

Iska ilaaz to nhi h mgr kya or na bade iske liye koi medicine hai

[@ariseforneurofibromatosis]

Aap homeopathy try kar sakte ho, kitna growth kum hoga woh nai bol sakte

[@NEUROFIBROMITOSISguruji]

Koi proper medical nahi hai

[@JAY23546]

हम कब NF मुक्त हो जायेंगे 😢 पोलिओ मुक्त हो गया जाने कितीनी बिमरिया के ऊपर इलाज आ गये लेकीन बारे मे भगवान भूल गये.......

[@ariseforneurofibromatosis]

पोलियो एक वायरस है और NF एक genetic disorder

[@JAY23546]

डाग के साथ हमने जिना सिखा लेकीन tumor के साथ 😢😢😢

[@JyotiiSaxsena]

We love you ❤️

[@manjushridabhade2969]

Hello mem iam live in satara my problem is nerofaibro

[@raghavannu933]

Yh sabhi ki ek jaisa hota h ya alag

[@ariseforneurofibromatosis]

Yeh sab ko alag alag hota hai

[@chitralekhaneogy8341]

Mam please aap mujhe apne whatsApp group me join kijiye. Mere bete ko ye problem hai he is 11years old, mam mai bahut kuchh aapse sher karna chahti hu meri family me kisi ko bhi nahi hai but mere bete ko hai ek bar vellore CMC me surgery ho chuka hai uske lungs, chest n hand me ye grow ho raha hai mujhe bahut dar lagta hai apne bachche k liye ki eska koi medicine nahi hai. Please🙏

[@ariseforneurofibromatosis]

Aap apna no. hume email par bhejye [e-mail]

[@PadmaPadma-f7u]

Plz medam . medicine

[@ariseforneurofibromatosis]

Abhi tak adults k liye medicine nahi bani hai

[@himanshuchouhan7153]

Agr kese ko genetic nhi h fir bhi ho toh kya rigan h

[@ariseforneurofibromatosis]

Yeh spontaneous mutation ke kaaran hota hai, kisi ek parent me galat (faulty) gene hone se yeh hota hai

[@monaparmar4085]

Mujhe bhi he

[@imranawan8514]

Mujia b h boht zada

[@shubhendrabhatnagar8050]

Thek ho sakta hai

[@imranawan8514]

@@shubhendrabhatnagar8050 ksy

[@mktyoutubechannel1392]

​@shubhendrabha tnagar8050 kise

[@everlastinglyngdoh5205]

Mujhe bhi ap key dawa pine wala

[@NEUROFIBROMITOSISguruji]

Iska koi treatment nahi hai

[@shahana3950]

Yae problem hae sirf mujhay hae

[@ariseforneurofibromatosis]

Yeh kisi ko bhi ho sakti hai, isse genetic mutation ke karan hua hai..

[@arfanbasharat8454]

​@@ariseforneurofibromatosisis ka treat mint h

[@arfanbasharat8454]

Ap kdr sy hn

[@sithusithu1701]

Mem medicine tell me

[@ariseforneurofibromatosis]

Koi medicine available nahi hai India me

[@aroonaasakxena5217]

Hi Sithu, there is no medicine for this disorder as of today. The research is going on...

[@sithusithu1701]

Preyar😭😭

[@abhinavyadav555]

@@ariseforneurofibromatosis India ki bhar hay kya

[@ariseforneurofibromatosis]

Yes

[@priya20007]

Ager humko NF hai to humare bacho ko b ho skta h kya ?

[@ariseforneurofibromatosis]

50-50 चांस है आपके बच्चों को हो सकता है

[@ariseforneurofibromatosis]

Pregnancy ke pehle aap genetic testing karva sakte ho

[@priya20007]

Genetic test se kuch solution mil skta h

[@aroonaasakxena5217]

@@priya20007 Genetic Test aapko batayega ki baby ko NF hai kee nahi..Ilaaz kahin nahin hai

[@ariseforneurofibromatosis]

@@priya20007 yeh bhi pata chal sakta hai ki aap yeh gene aapke baccho ko paas kar sakte ho k nahi.

[@poojagautam379]

mjhe bi hai par koi ilaj ni h

[@ariseforneurofibromatosis]

Nahi ji, iska koi illaj nhi hai. Research chal raha hai aur medicine bhi aa sakti hai isko control karne k liye

[@poojagautam379]

kab thak aa gyi mai abi pregnant hun kiya mere bsche ho bi ho skta hai

[@ariseforneurofibromatosis]

@@poojagautam379 50-50 chances hai k aapke bacche ko ho sakta hai.

[@abhinavyadav555]

@@poojagautam379 ha ji 50/

[@sithusithu1701]

😥😥😥 i am nf. Mem please telme malayalam

[@aroonaasakxena5217]

Ok We will try to add Captions for you. Can we add in English

[@anitashukla197]

I want to finish my life can't deal with that

[@ariseforneurofibromatosis]

why you want to end your life?? Suicide is not a solution to this.... Everyone has some or the other problems or health issues. Than too they still live their life n face all the challenges they come across. Do meditation,, consult a psychologist, take help, find a way where you can divert your mind.

[@anitashukla197]

@@ariseforneurofibromatosis not only this I also had neurosurgery and many other problem.i wait for few month and after that attempt suicide I can't be a burden on my parents

[@ariseforneurofibromatosis]

I don't know how critical your NF is nor i do know how is atmosphereat home.... But, have you ever thought what would your parents go through after you attem such act?

[@ariseforneurofibromatosis]

I have gone through multiple surgeries... and still have few more to go, as you keep getting surgeries done, NF will regrow somewhere else. Unless not required don't go for surgeries try to avoid it. If possible try to work from home, if possible try to keep yourself busy if your health condition permits

[@anitashukla197]

@@ariseforneurofibromatosis feeling so depressed

[@sithusithu1701]

😥😥😥😥😥

[@sithusithu1701]

😥😥😥😥 prayer

[@shabsarsal]

Sithu

[@shubhendrabhatnagar8050]

Thek ho sakta hai

[@ariseforneurofibromatosis]

Nahi iska koi permanent illaj nahi hai

[@ramnareshjharamya]

Maam mujhe bhi hai y bahut pareshan hoon je krta h sucide kr loon

[@ariseforneurofibromatosis]

Suicide koi hael nahi hai NF ka.... aise kitn saare log hai jinhe NF hai, aur woh kafi hasi khushi reh rahe hai. Kisi ko jyada kisi ko kum taklif hoti hai NF se. NF ko accept kar lo aur normal life jeena seekh lo. Khuda ka shukar karo aapke haat pair salamat hai, aap kaam kar sakte hai, apna guzara kar sakte ho....

[@vimalpradeepkumar2711]

Can homeopathy cure lumps? Belladonna not only helps in subsiding the pain but also in dissolving the lump fully. Thuja: This homeopathy medicine of lipoma helps in dissolving any fatty lumps developing anywhere in the body. In case the patient suffers from high cholesterol, then this is the best medicine to be administered.

[@ariseforneurofibromatosis]

Lipoma n neurofibroma are both different, NF are skin mass that bulges out on top of the skin, ( nerves ending) and lipoma are fatty lumps that are beneath the skin.

[@ariseforneurofibromatosis]

We donot recommend or endorse any kind of medication or treatment related to Neurofibromatosis.

[@rajeshwarsingh9120]

Can we do gyming with neurofibroma? I have in my lower abdomen . Please reply

[@ariseforneurofibromatosis]

@rajeshwarsingh9120 sorry iska jawab humare paas nhi hai, aap chaiye to doctor se consult kare

[@rushikeshmeshram3547]

Madam iska Koi Ilaaj nahin hai kya.....? Science Mein ki tarkki Kar Li Kuchh To Hoga😢😢

[@ariseforneurofibromatosis]

Yeh genetic disorder hai, research chal rahi hai, aur medicine chote baccho ke liye mil rahi hai

[@nidhishah8414]

Ye question ka answer Hume hr din kisina kisi ko denA pdta he. Jo hme bhot pain deta he.

[@ariseforneurofibromatosis]

Hum samajh sakte hai aapki taklif, par yeh aap par nirbhar karta hai aap us sawal ka jawab kaise de samne wale ko aur unki baat par app kaise react karte hai.

[@lakhansaraswat7806]

Meri bacchi ko bhi ho gya h

[@mktyoutubechannel1392]

Muje ek Dr ne suggest thoda kam huvaa

[@sabirsabi8169]

Madam please medicne😢

[@ariseforneurofibromatosis]

No medicine is available in india

[@pushprajkumar3532]

Hello..madam kripya aap apna number de

[@ariseforneurofibromatosis]

Aap Hume humane email id par contact kare [e-mail]

[@aashikhan5945]

@@ariseforneurofibromatosis ok

[@pappuchauhan7534]

Mem mujhe bhi neurofibromatosis hai iska koi upay batlayi nahi mujhe aap apna samprk number send कीजिए

[@ariseforneurofibromatosis]

Aap Hume email kar sakte hai