I also have this disease. I don't have any friends since childhood because of this disease. But I am fine being alone. Now I have become used to it.
@ariseforneurofibromatosis2 ай бұрын
Please do not call this a disease, it's a genetic condition.
@ariseforneurofibromatosis2 ай бұрын
Many of us who have this condition are often seen being alone as others don't accept us due to our looks.
@atultanwar56902 ай бұрын
🙏🙏🙏🙏
@archanasharma2707 Жыл бұрын
Mujhe bhi aapki jaise hi nf hai, mai bahut dipration me rahti hun iski vajhan se
@ramnareshjharamya8 ай бұрын
Dost mujhe bhi ye hai doctor n bola iska koi ilaz nahi h bahut pareshaan aakela hoon
@ariseforneurofibromatosis8 ай бұрын
Doctor ne sahi kahan hai, isska koi permanent illaj nahi hai. Nf k vajhse kuch problem hoti hai, uska aap treatment karva sakte ho. Par NF ka koi illaj nahi hai.
@MandeepSingh-tu7lh2 ай бұрын
Par mem ji you tube pe video a rhi hai ke ilaj ho jaye ga bo sab jhooth bol rhe hai
@MandeepSingh-tu7lh2 ай бұрын
Muje b hai mem
@ariseforneurofibromatosis2 ай бұрын
Ap chaiye to kisi bhi doctor se baat karlo, woh aapko sahi guidance dege....
@richielucas68252 жыл бұрын
👏
@vimalpradeepkumar2711 Жыл бұрын
How can I reduce the size of neurofibromatosis? Plastic surgery is usually needed. The surgeon cuts the neurofibromas out of the body before resealing the skin. Depending on the size and location of the neurofibromas, they may be able to be treated with laser surgery or an electric current (electrodessication) instead.
@Krishnakrishna-gj2bs2 жыл бұрын
Mujhe bhi yeh problam hai
@ariseforneurofibromatosis2 жыл бұрын
We are with you Krishna. Stay blessed
@simmygupta9271 Жыл бұрын
Yee problem mere or mere maa hai or mere Nani main bhi thi
@singhsuraj80672 жыл бұрын
Mem meri sister ko hi age 20 hi Koi ilaj ho sakta hi Therapi se thik ho sakta hi kiya please ripley
@ariseforneurofibromatosis2 жыл бұрын
Iss disorder ka koi illaj nhi hai, aap cha he to operation karva sakte hai agar koi hissa taklif de raha hai. Plastic, cosmetic yah neurologist surgeon ko dihka sakte hai.
@ariseforneurofibromatosis2 жыл бұрын
Suraj aap hamare whatsapp group join kar sakte ho, agar aapki sister ko baat karna chaiye to humse baat karwa sakte hai .. hum
@imranawan8514 Жыл бұрын
@@ariseforneurofibromatosis ap apna whatsapp nbr dyn mam
@ariseforneurofibromatosis Жыл бұрын
aapka no. hume Email se bheje
@imranawan8514 Жыл бұрын
@@ariseforneurofibromatosis ni ja rha h ap apna nbr dyn plz
@kishorsahu6242 Жыл бұрын
Thank you for supporting me mem❤❤
@sathyavanishakthivel2489 Жыл бұрын
I have this problem too
@sathyavanishakthivel2489 Жыл бұрын
Please mom have medicine
@bulbulrajpu5 ай бұрын
Iska ilaaz to nhi h mgr kya or na bade iske liye koi medicine hai
@ariseforneurofibromatosis5 ай бұрын
Aap homeopathy try kar sakte ho, kitna growth kum hoga woh nai bol sakte
@NEUROFIBROMITOSISguruji4 ай бұрын
Koi proper medical nahi hai
@JAY235463 ай бұрын
हम कब NF मुक्त हो जायेंगे 😢 पोलिओ मुक्त हो गया जाने कितीनी बिमरिया के ऊपर इलाज आ गये लेकीन बारे मे भगवान भूल गये.......
@ariseforneurofibromatosis3 ай бұрын
पोलियो एक वायरस है और NF एक genetic disorder
@JAY235463 ай бұрын
डाग के साथ हमने जिना सिखा लेकीन tumor के साथ 😢😢😢
@JyotiiSaxsena2 жыл бұрын
We love you ❤️
@manjushridabhade2969 Жыл бұрын
Hello mem iam live in satara my problem is nerofaibro
@raghavannu9332 жыл бұрын
Yh sabhi ki ek jaisa hota h ya alag
@ariseforneurofibromatosis2 жыл бұрын
Yeh sab ko alag alag hota hai
@chitralekhaneogy8341 Жыл бұрын
Mam please aap mujhe apne whatsApp group me join kijiye. Mere bete ko ye problem hai he is 11years old, mam mai bahut kuchh aapse sher karna chahti hu meri family me kisi ko bhi nahi hai but mere bete ko hai ek bar vellore CMC me surgery ho chuka hai uske lungs, chest n hand me ye grow ho raha hai mujhe bahut dar lagta hai apne bachche k liye ki eska koi medicine nahi hai. Please🙏
@ariseforneurofibromatosis Жыл бұрын
Aap apna no. hume email par bhejye Ariseforneurofibromatosis@gmail.com
@PadmaPadma-f7u5 ай бұрын
Plz medam . medicine
@ariseforneurofibromatosis5 ай бұрын
Abhi tak adults k liye medicine nahi bani hai
@himanshuchouhan71532 жыл бұрын
Agr kese ko genetic nhi h fir bhi ho toh kya rigan h
@ariseforneurofibromatosis2 жыл бұрын
Yeh spontaneous mutation ke kaaran hota hai, kisi ek parent me galat (faulty) gene hone se yeh hota hai
@monaparmar4085 Жыл бұрын
Mujhe bhi he
@imranawan8514 Жыл бұрын
Mujia b h boht zada
@shubhendrabhatnagar8050 Жыл бұрын
Thek ho sakta hai
@imranawan8514 Жыл бұрын
@@shubhendrabhatnagar8050 ksy
@mktyoutubechannel1392Ай бұрын
@shubhendrabha tnagar8050 kise
@everlastinglyngdoh52054 ай бұрын
Mujhe bhi ap key dawa pine wala
@NEUROFIBROMITOSISguruji4 ай бұрын
Iska koi treatment nahi hai
@shahana3950 Жыл бұрын
Yae problem hae sirf mujhay hae
@ariseforneurofibromatosis Жыл бұрын
Yeh kisi ko bhi ho sakti hai, isse genetic mutation ke karan hua hai..
@arfanbasharat8454 Жыл бұрын
@@ariseforneurofibromatosisis ka treat mint h
@arfanbasharat8454 Жыл бұрын
Ap kdr sy hn
@sithusithu17012 жыл бұрын
Mem medicine tell me
@ariseforneurofibromatosis2 жыл бұрын
Koi medicine available nahi hai India me
@aroonaasakxena52172 жыл бұрын
Hi Sithu, there is no medicine for this disorder as of today. The research is going on...
@sithusithu17012 жыл бұрын
Preyar😭😭
@abhinavyadav555 Жыл бұрын
@@ariseforneurofibromatosis India ki bhar hay kya
@ariseforneurofibromatosis Жыл бұрын
Yes
@priya200072 жыл бұрын
Ager humko NF hai to humare bacho ko b ho skta h kya ?
@ariseforneurofibromatosis2 жыл бұрын
50-50 चांस है आपके बच्चों को हो सकता है
@ariseforneurofibromatosis2 жыл бұрын
Pregnancy ke pehle aap genetic testing karva sakte ho
@priya200072 жыл бұрын
Genetic test se kuch solution mil skta h
@aroonaasakxena52172 жыл бұрын
@@priya20007 Genetic Test aapko batayega ki baby ko NF hai kee nahi..Ilaaz kahin nahin hai
@ariseforneurofibromatosis2 жыл бұрын
@@priya20007 yeh bhi pata chal sakta hai ki aap yeh gene aapke baccho ko paas kar sakte ho k nahi.
@poojagautam3792 жыл бұрын
mjhe bi hai par koi ilaj ni h
@ariseforneurofibromatosis2 жыл бұрын
Nahi ji, iska koi illaj nhi hai. Research chal raha hai aur medicine bhi aa sakti hai isko control karne k liye
@poojagautam3792 жыл бұрын
kab thak aa gyi mai abi pregnant hun kiya mere bsche ho bi ho skta hai
@ariseforneurofibromatosis2 жыл бұрын
@@poojagautam379 50-50 chances hai k aapke bacche ko ho sakta hai.
@abhinavyadav555 Жыл бұрын
@@poojagautam379 ha ji 50/
@sithusithu17012 жыл бұрын
😥😥😥 i am nf. Mem please telme malayalam
@aroonaasakxena52172 жыл бұрын
Ok We will try to add Captions for you. Can we add in English
@anitashukla1978 ай бұрын
I want to finish my life can't deal with that
@ariseforneurofibromatosis8 ай бұрын
why you want to end your life?? Suicide is not a solution to this.... Everyone has some or the other problems or health issues. Than too they still live their life n face all the challenges they come across. Do meditation,, consult a psychologist, take help, find a way where you can divert your mind.
@anitashukla1978 ай бұрын
@@ariseforneurofibromatosis not only this I also had neurosurgery and many other problem.i wait for few month and after that attempt suicide I can't be a burden on my parents
@ariseforneurofibromatosis8 ай бұрын
I don't know how critical your NF is nor i do know how is atmosphereat home.... But, have you ever thought what would your parents go through after you attem such act?
@ariseforneurofibromatosis8 ай бұрын
I have gone through multiple surgeries... and still have few more to go, as you keep getting surgeries done, NF will regrow somewhere else. Unless not required don't go for surgeries try to avoid it. If possible try to work from home, if possible try to keep yourself busy if your health condition permits
@anitashukla1978 ай бұрын
@@ariseforneurofibromatosis feeling so depressed
@sithusithu17012 жыл бұрын
😥😥😥😥😥
@sithusithu17012 жыл бұрын
😥😥😥😥 prayer
@shabsarsal2 жыл бұрын
Sithu
@shubhendrabhatnagar8050 Жыл бұрын
Thek ho sakta hai
@ariseforneurofibromatosis Жыл бұрын
Nahi iska koi permanent illaj nahi hai
@ramnareshjharamya8 ай бұрын
Maam mujhe bhi hai y bahut pareshan hoon je krta h sucide kr loon
@ariseforneurofibromatosis8 ай бұрын
Suicide koi hael nahi hai NF ka.... aise kitn saare log hai jinhe NF hai, aur woh kafi hasi khushi reh rahe hai. Kisi ko jyada kisi ko kum taklif hoti hai NF se. NF ko accept kar lo aur normal life jeena seekh lo. Khuda ka shukar karo aapke haat pair salamat hai, aap kaam kar sakte hai, apna guzara kar sakte ho....
@vimalpradeepkumar2711 Жыл бұрын
Can homeopathy cure lumps? Belladonna not only helps in subsiding the pain but also in dissolving the lump fully. Thuja: This homeopathy medicine of lipoma helps in dissolving any fatty lumps developing anywhere in the body. In case the patient suffers from high cholesterol, then this is the best medicine to be administered.
@ariseforneurofibromatosis Жыл бұрын
Lipoma n neurofibroma are both different, NF are skin mass that bulges out on top of the skin, ( nerves ending) and lipoma are fatty lumps that are beneath the skin.
@ariseforneurofibromatosis Жыл бұрын
We donot recommend or endorse any kind of medication or treatment related to Neurofibromatosis.
@rajeshwarsingh91208 ай бұрын
Can we do gyming with neurofibroma? I have in my lower abdomen . Please reply
@ariseforneurofibromatosis8 ай бұрын
@rajeshwarsingh9120 sorry iska jawab humare paas nhi hai, aap chaiye to doctor se consult kare
@rushikeshmeshram35472 жыл бұрын
Madam iska Koi Ilaaj nahin hai kya.....? Science Mein ki tarkki Kar Li Kuchh To Hoga😢😢
@ariseforneurofibromatosis2 жыл бұрын
Yeh genetic disorder hai, research chal rahi hai, aur medicine chote baccho ke liye mil rahi hai
@nidhishah84142 жыл бұрын
Ye question ka answer Hume hr din kisina kisi ko denA pdta he. Jo hme bhot pain deta he.
@ariseforneurofibromatosis2 жыл бұрын
Hum samajh sakte hai aapki taklif, par yeh aap par nirbhar karta hai aap us sawal ka jawab kaise de samne wale ko aur unki baat par app kaise react karte hai.
@lakhansaraswat7806 Жыл бұрын
Meri bacchi ko bhi ho gya h
@mktyoutubechannel1392Ай бұрын
Muje ek Dr ne suggest thoda kam huvaa
@sabirsabi8169 Жыл бұрын
Madam please medicne😢
@ariseforneurofibromatosis Жыл бұрын
No medicine is available in india
@pushprajkumar35322 жыл бұрын
Hello..madam kripya aap apna number de
@ariseforneurofibromatosis2 жыл бұрын
Aap Hume humane email id par contact kare Ariseforneurofibromatosis@gmail.com
@aashikhan59452 жыл бұрын
@@ariseforneurofibromatosis ok
@pappuchauhan75342 жыл бұрын
Mem mujhe bhi neurofibromatosis hai iska koi upay batlayi nahi mujhe aap apna samprk number send कीजिए