My Story - Living with NF, Neurofibromatosis Awareness

This channel is created and managed by a group of people who are affected with Neurofibromatosis (NF) for the people who are affected with NF. Our mission n motto is to create awareness regarding this genetic conditions among all the individuals races, cast, community.
If you want say something or share your story on NeuroFibromatosis, write to us on below mail ID:
[e-mail]
#Neurofibromatosis #NeurofibromatosisIndia #NF1 #NF2 #Schwannomatosis #NFawarenessday #Worldneurofibromatosisawarenessday #Neurofibromatosisawarenessday #Neurofibromatosisawarenessdayindia #Plexiforma #scoliosis #arisesforneurofibromatosis #EndNF #livingwithNF

[@rajeshputhanparabil3327]

😢😢😢

[@mikehayward4423]

Your a beautiful person,and brave .I’m 57 and have nf 1 .thank you for shearing.

[@Raksha_writes]

I also have nf1. And my kid also has nf1

[@ariseforneurofibromatosis]

Ooh, how old is your child

[@Raksha_writes]

@@ariseforneurofibromatosis 7 yr

[@nusratjahan8175]

Bache ko bhi hona h plsss bataye mjhe bhi h to kya meri baby ko bhi hoga

[@Raksha_writes]

@@nusratjahan8175 yes. It is not advisable to plan a child if you already know that you have this disorder

[@yogi5060]

Agar shuruaat me ilaj ho to ye thik ho jayega Kaya ??

[@ariseforneurofibromatosis]

Yeh genetic, aap iske side effects ko badh ne se rok sakte hai medicine ke jariyeh, par iska koi bhi permanent illaj nai hai

[@yogi5060]

@@ariseforneurofibromatosis medicine ka name Kaya he or kaha milegi🙏

[@ariseforneurofibromatosis]

India me available nahi hai or bahar se magvane k liye doctor ke prescription lage ga. Yeh medicine kafi mehengi hai....

[@amitvyas114]

I am also suffering from same

[@ariseforneurofibromatosis]

Which type of NF you have?

[@Assop4657]

Me also

[@Assop4657]

NF1

[@anithaanu77]

Me also plz give me any help plzz

[@ariseforneurofibromatosis]

What help you need?

[@abhinavyadav555]

Are bhai dava hay

[@ariseforneurofibromatosis]

Koi davai nahi hai

[@abhinavyadav555]

@@ariseforneurofibromatosis acha ji🙏

[@rajkumarbalasubramanian7755]

illaj ya Dava kya hai ? Can u elaborate

[@user-yj6fm6it7w]

Ma'am, in my body more Bumps are visible...i am 20 years old, not sure how live in this society Please guide me🥳🥹

[@ariseforneurofibromatosis]

Yes, can understand your pain. To leave happily is accept yourself and try to be positive. Involve yourself into work or any hobby that makes you happy. That's the best way to meditate n keep yourself away from negative thoughts

[@anithaanu77]

Any medicine is available or not