NAUSEA & NEEDLE PROBLEMS... ANOTHER DAY IN THE HOSPITAL 🏥 (9.19.18)

It's day 9 in the hospital...
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[@thefreylife]

That was...unfortunate 🙀 But you know what?! We conquered it, and here we are! I’m sending you a high five as you conquer today!

[@nadiah4315]

You are just amazing. You got on the exercise bike after that, like WOW. Major high five!!! X

[@shadowfigure3749]

They need to give Mary ginger ale. Ginger is literally amazing for nausea and while it's not water, she'll be getting fluids that hopefully won't make her more nauseous.

[@roseragan-mcwain2395]

High five, You Three! I Still can’t find the SONG!***###%%%•••

[@sarahsherrod2012]

The Frey Life I pray you continue to improve to the point of discharge! I know you’re working so stinking hard to get those kidneys back to normal. Just keep hanging. That’s what me and my mom say! Lol . Have a great night you guys!

[@91jjaaddee]

✋🏻right back at ya.

[@conniehuynh5531]

Peter, what you said about how a lot of life is mundane reminded me of this Brene Brown quote, "Joy comes to us in ordinary moments. We risk missing out on joy when we get too busy chasing down the extraordinary." I think it really captures how the important part of life is the more boring parts of it.

[@JayJay-gi8qc]

I commented this yesterday but I wanna day it again because I’m hoping it could help you as much as it helps me. I have GI illnesses so nausea is a constant factor to me. On top of doses of anti nausea meds I use peppermint oil to keep nausea at bay. It settles your stomach and it makes me feel a lot better. Anything with peppermint oil really. I use icebreakers cool mint flavor and it is a life saver!! Mints are what make my life bearable I swear. I recommend trying it for your nausea I know how awful it can be ❤️❤️

[@purrbugaloo]

I agree mint lifesavers or the xmas style peppermint round candies help me too. Great suggestion! I hope they see it 💚

[@LisaMichele]

I've had chronic nausea and I agree, mint helps a lot! Also drinking, even sipping water, and eating small, infrequent meals. I find letting my stomach get completely empty between meals really helps for GI healing.

[@staceycotton2728]

I agree also with this. I have GI illnesses and I use peppermint oil beadlets from Dõterra, my Mother sells. My GI illness is so bad that I had to have surgery last year due to the stomach acid burning the end of my esophagus. Another thing is I drink ginger tea and take ginger candy. This is along with my prescribed medication.

[@AP-sx4nx]

I also have GI illnesses and hard candies work for me too. Prayers!!

[@trishab2147]

I recently got peppermint too for this. I've been having nausea like crazy lately (GI issues)

[@eli-710]

Mary I am also in the hospital! I am a transgender guy and I have a chronic condition(well, multiple actually. I also have ehler danlos and crps!) called Endometriosis. Yesterday I got my uterus out and my abdomen checked for endometriosis growths and everything bad got burned out. This surgical pain is less severe than my cramps ever were!!! As someone disabled with a chronic condition you help me through my hospital stays, and every point in between. Thank you for existing mary

[@MrsPastelDaisies]

You are both in my prayers Mary you are so strong through everything you go through and so are you Peter being so incredibly supportive. You both just make the best team, keep fighting 💗💙

[@chanlerbeckham2093]

Stay strong you guys are amazing and such great people and you deserve the world 💛

[@annabelday3380]

Makes my day when I get the notification that you have uploaded a video! My favourite part off the day xx

[@CatCaffeine]

Mary, if you have to undergo another full anesthesia surgery would you consider asking the doctors to move your port? Praying with you

[@Justaroundtheriverbend]

I’m sorry you are feeling so nauseous Mary! Hoping this stay in the hospital takes a turn around soon!

[@Winter_Dream]

Sorry but I just have to share this very random and pointless fact, in Norway we have also a version of the name Peter, but it's Petter and pronounced the same as Better but with a P, and in the intro every time the song goes "Don't you think we're better together" it marched perfectly up with Peters name appearing in the screen and I always sing don't you think we're Petter together! Haha I don't know why xD

[@kittymervine6115]

Way to go Peter! Move that port! I love how he jumped in there to help out. Mary is a team effort!

[@thirtyflirtythriving]

throwing up is my biggest fear. i don't know how you do it mary and remain so calm about it. you are beyond strong

[@familyframe7192]

“Embracing the mundane, ooo look at the clouds!” Lol. The clouds were pretty! Keep up the work, hard days will pass.

[@janaye7iverson]

Colby’s songs are so amazing that I bought the album. So thankful for her and her sharing the Lord through her talents. Love ya’ll

[@ejdoug8328]

You guys get thrown a curve ball and you hit it out of the park anyway. That is what I love about watching your videos. I think going through something with God rather than without God makes the difference. Both of you are an inspiration to me and I'm sure many others. Thank you so much for making these videos. I look so forward to watching them. Both of you are in my prayers. Have a great tomorrow!

[@ipickedjake]

You guys perk me up. Mundane life? We are retired, our life is pretty dull most days. Actually like it. Your life is full of stuff, not always good. And you keep positive. Hugs and prayers! Give Ollie a hug for me.

[@eej1983able]

I love a quiet but happy life. Im only 35 so i do need to work but I love being at home too

[@user-wy1hm4hz4p]

I love that Peter stays with you throughout your stay at the hospital. Heal quickly Mary.

[@karengravel9650]

How can anyone vote against these two amazing people. They do so much good work while battling illness. They love each other deeply. I wish they were my neighbors💞

[@penelopepolinsneemeyer4757]

Mary Girl, your raw courage never ceases to inspire me xxxxxxxxxxxx

[@rmjames83]

Seasons of waiting, and embracing the mundane-Ur so right Peter!!! And ur right, u have a superstar wife-we are all proud of you Mary!!!

[@lauradarter1327]

Prayers your way little lady! Bless you Peter!

[@djlawlz4041]

You talking about reflecting on when you were a college student made me reflect and boy, do I miss college. I’m trying to go back to Bunkerhill Community College for my EMT class this coming month.

[@TheCandiceh2]

I absolutely love y’all!!! You seriously have no idea how much you guys encourage me especially with my hubby’s recent Stage 4 Rectal Cancer diagnosis at age 38!!! I did my first pump disconnect today and I was sooo nervous but I rocked it. I prayed first and God covered me completely cause even though I may be well versed in the medical field I’ve had ZERO training and when it’s your spouse it is def more terrifying than if I were doing it on myself. Btw I don’t think I commented yesterday but I LOVED Colby’s song and sent to my hubby as well! Such an amazing inspiration!!!

[@melaniemcaulay9748]

Sorry to hear about your husband

[@TheCandiceh2]

Thank you! ♥️

[@natalieheidgerken]

Praying for you! You are awesome!

[@TheCandiceh2]

Thank you Natalie! ♥️

[@leisapertesis4206]

Mary and Peter I admire the way you both handle the load that you have been given..... God chose the right people to spread this message when he chose you two! I have only been following you since your July/August hospital stay but your message of hope and perseverance in the path of this insanity called cystic fibrosis. Thank you and please give Ollie a big hug and kiss from us here in Florida.... with much love in the Lord, Leisa, Juno & Nimh

[@Lyn4817]

There is one fortunate thing to be thankful for guys. That you are available fully time Peter, to remain with Mary, while she is in hospital. My poor husband hates being with me in hospital. I am lucky to get a normal daily hour visit. At present I have been recalled to the hospital after a test showed abnormal cells. Just hate the the anxiety of he unknown. Like will it jean more surgery? I have had over 40, so I have stop counting. Unfortunately being in a regional centre, I have to wait till my Specialist flies in. Which is only once a month. This time around must be such a strain on both of you as between your last admission and this one, plus on IV antibiotics at home, in between? It is no wonder you are both exhausted and fed up, it has been so long. Things have to start getting better. I miss your fairy lights on your headboard Mary. Least Peter got your blankets and pillow. Hang in guys. The tide will turn shortly, patience.

[@lyndadenford6292]

You’re so courageous, both of you, for me you inspire me to see things in a different way. I’m not as worried about my medical problems, it’s all in the perspective, which you have gifted to me through sharing your attitude to life. Remarkable, thankful and it humbles me truly. Wishing you a better day tomorrow xxx

[@alaurenmarie3390]

I love the positivity of both of you. I deal with Lupus and MCTD.. and half the time I spend angry at the world, but there’s nothing we can do but deal with the hand we’re dealt. Whether it’s good or bad, just wanted to say that I wish I could be as strong as you. You are a light in a dark room. 🧡

[@terriehumphries6028]

I don't want this for you anymore. I pray for you daily. You are an inspiration.

[@AP-sx4nx]

When I had AKI I was extremely nauseated and throwing up, so that certainly could be adding to it. Many prayers!!!!

[@Jane_Snow_]

Mary, I feel like you with the water, my urologist wants me to drink 3 litres of water a day! All I do is drink drink drink. (and wee wee wee, lol)

[@wirinaholstein4076]

But thank goodness the urologist is demanding you to drink water and not to control your fluid intake to a minimum. Whenever that happens, and you no longer are allowed to drink more than 400 ml pr day, its because the kidneys are worse and its so hard living with a chronically dry mouth and always be thirsty. Ive heard my mom say that she sometimes almost prefers to just pour herself that glass of water she is so thirsty for and accept that she might die from it because this is unbearable to live with. Personally, I easily drink a gallon a day due to medicine which makes me thirsty and Im sometimes border lining drinking too much as well.

[@djlawlz4041]

Jane Snow My neurologist and PCP want me to drink no less than 3 liters a day and I look at them both like “what am I? A water tower??? I can’t consume more than 3 cups a day without having really bad acid reflux and stomach pain.

[@hilda1170]

Bless both of you. Mary do your parents come to see you when your so sick? They love you so much and as a parent myself it is very hard to see your child so sick.

[@cjconrad3494]

Mary, you are so beautiful, and Peter, I see the spirit of our Lord in you, I struggle daily with some health issues, and watching your graceful attitude in the midst of the dark days is a blessing. We serve a merciful and loving King, and I pray His divine healing will see you home soon. 🙏🏼💕🙏🏼

[@cleoh666]

Always so encouraged by your vlogs 💕 God is with us all, even the mundane!

[@caitycaitcaitbrown2329]

Please stay the amazing strong person who you are! You're such an amazing trooper. You give all of us who are sick motivation and strength and determination to make it like you to be okay

[@wolfsrule100]

Just remember God has got this and so do you! Prayers for y’all both! Peter talking about the seasons of waiting really resonated with me because I’m halfway through healing with my broken ankle and so tired of it all, but I remember that it WILL get better.

[@daedae1123]

Thank you for all your vlogs! I've been watching you while in the hospital. Your husband is so supportive. You are so blessed to have the support system you have.

[@chronicinokla]

I will have to say. I am always so inspired by your fight . You are so incredibly brave. There are so many low moments with chronic illness. The unknowns, the constant guessing , the appts, calls. It's definitely a full time job. Anyway sending love and hugs to you all. New shirt " that which is beeping Belongs to me"

[@bonnieletson3043]

That would be a good saying on your shirts "Just do what ya gotta do" hoping you start feeling better Mary. 💜Ya's

[@UnKNowNZeRo8976]

I'm sorry you are so nauseous! Stay as strong as ever. You guys will be in my prayers. Ilysm Mary, Peter and Ollie!

[@heathersmith4774]

Have you ever threw up so hard that when you looked what you threw up and said to yourself I don’t remember eating that? Lol Just a funny thing my daughter and I talk about after she has her two- three day vomiting spell. We say that sometimes when she throws up hard. As always god bless you all and have a better day today than you had yesterday !

[@sandrafraser7015]

I have, and it's painful when it comes from the pit of your stomach even after there is nothing left to throw up.

[@eej1983able]

Oh yeah. It's like everything you ate that week comes up lol awful

[@Winter_Dream]

There always seems to be pieces of carrot in it... I never ear carrots.

[@allisonc7069]

I’m so impressed by both of you!! You’re both fighting so hard and are so admirable! Thank you for sharing your mundane day!! Sometimes mundane is a good thing I think..

[@lisahaser7]

Continued prayers...thank you for sharing your experience and being such an inspiration...❤

[@donnathierjung6266]

You are both such a inspiration to so many people including myself. Keep fighting and God bless you both. Prayers!

[@cynthia97701]

How does Peter support the both of you financially. It’s nice that he’s always in the hospital with you but, how was he able to work and provide for the both of you?

[@lauravegh4274]

Peter is a pastor. Plus they have the shop and this channel :)

[@junbh2]

If I remember right, a lot of his work is writing and preparing things on his computer, so for that stuff I would assume he can bring it with him.

[@MayimHastings]

🎶 to flush those kidneys back to might!🎶 I was your first like! Hi Peter, Mary & Ollie!

[@stephanieg.1969]

Good work today Mary! Bike after 🤮 is like amazzeeeee! Can you share why you guys don’t watch a lot of TV?

[@luisa1551]

Mary, I have a weird question for you. I am curious: do you get a runny nose when you eat very hot /spicy food? I get that but since your ion pump on the epithelial cells works differently, I was wondering if you get the same reaction or not with very spicy food. Hope you feel better and that you kidneys start to show recovery signs soon.

[@servicedogumentariesstarri9373]

I hope you feel better soon! I used to be in healthcare as a registered respiratory therapist. Don’t have CF, but had patients with it. Hang in there, keep smiling! Prayers from California from me and Sheldon!!! Get that CPT goin ❤️

[@LiveASMRTime]

Early again 😁 Surley they can fix your port? You seem to always have problems with it It's chilly here too,been raining here all day 🙄 I really hope you get better soon Mary Xxxxxx

[@Mialinna7]

Thank you for making daily videos, you make my day

[@vernaspraggins644]

Y’all are an inspiration! I ordered so more stuff, can’t wait for it to get here! 🙏🏼😘

[@magyar5615]

Prayers for you both, thanks for sharing this. Please know that it is an inspiration every day to watch you overcome and basically deal with life with such grace.

[@karendefosse3219]

Keep on fighting ❤ love you guys.. gona follow you.. i cant go to bed.. bevor i know how you are❤ its always 9 oclock in the evening when you post it hehe

[@arnolddavis1281]

FreyLife Rules!!! You're such a super trooper Mary..Yup,awesome you are Paul..

[@FreebirdTMH]

It's been in the 90's here in Georgia!! Praying for y'all!

[@sayswice5621]

I needed to hear the "seasons of waiting" blurb. Thanks for that insight ❤️👍🏻

[@veersharma7819]

I have CF so I know how it's like but the one right and only way to deal with it is to fight it and I think that you guys are doing it better than anyone could've done....

[@FunsizedStyle]

Keep on keepin’ on girl!! 💪🏻✨

[@RRR-kn6sy]

Stay strong. Thinking of you both. 🌸❤️🌸❤️

[@sarahtennyson7260]

What an inspiration you are particularly to those of us with ongoing health issues! We are thankful for good days because our tough days make us feel nasty! God’s grace truly is sufficient! Continuing to pray and thank you for your ministry to so many! I see Jesus in you! Take care as you continue to trust God on this journey! I look forward to seeing what rainbows He gives in this storm!!

[@jerryskeepero]

Rest little angel and feel better

[@kathryna2143]

Mary and Peter i watch your vlogs every day and I am praying for you every night. Feel better soon Mary

[@servicedogumentariesstarri9373]

Oh yeah! You guys are SO ADORABLE!!!

[@bethl4674]

As always both of you are in my prayers and thoughts. Today I HAD to do something that was very hard for me physically and was super painful and it was going to take me 4 to 5 hrs to complete.. I was wanting to give up and I thought of Mary and I kept going and I got the home project done. I doubt you guys know this tune as I learned it over 40 yrs ago at youth group. "I can run through a troop and leap over a wall" (can't remember the rest lol) and I just kept singing that out loud. Peter please post your talk to the college kids on your channel. What you were saying was hitting spot on with me and I would love to hear more. Thank you Mary & Peter and Ollie :)

[@lynnrose7562]

We're all here sending our love and support. God bless you both!

[@nessa_amo8077]

You are so strong! 💜

[@hannahmariellewellynllewel7128]

I hope you get feeling better soon Mary

[@SuperMaradyWorld]

Made my day when Mary started singing Got My Heart Set on You 😝 I've been listening to that song a lot lately😍

[@justdaisy15]

You are doing AMAZING Mary and I’m cheering you on from NY

[@blairmarie9872]

💚💚💚💚💚 hope nausea gets better and no more fevers!

[@thirtyflirtythriving]

thank god for sweet nurses

[@micheleanne1405]

god bless you mary. my university raised over $13,000 Canadian, on Shine Day for Shinerama, in support of CF Canada!

[@alaurenmarie3390]

Also another question: does Ollie ever bark? 🐾 is he standard poodle?

[@Marie_Lynne]

lol i don't think i've ever heard ollie bark either... but yes he is a standard poodle, i remember them saying that in several videos

[@helloiamparker]

Sometimes, mundane days are the best things to wsh for, no unpleasant surprises! I hope you have a good evening, Mary! Ive been putting out good wishes for you!

[@jackiehoward7300]

Prayers for you all

[@cheyenneyoung4136]

Worried about you :(

[@charlotteandniamhschannel4480]

I know how you feel Mary, I (Niamh) suffer from a chronic cyclic vomiting syndrome and even though I know the difference between a side effect from my current headache and bolting it to the bathroom, it’s horrible every time. Today is the first full day I haven’t vomited in 2 days, I started Tuesday morning before school and didn’t end for another 30 (ish) hours 😪

[@kristenbrazil173]

you both are so amazing..love and prayers from North Central Texas

[@oneseeker2]

Great points Peter!

[@annatanner1810]

Stay strong been praying for you guys ❤

[@Flo-cy4xc]

How do you Have so much facilities in talking Peter?? How do you put things so easily into words ?? Gosh

[@djlawlz4041]

Amy Gn I mean, he is a Pastor so maybe it just comes naturally for him.

[@kimberlyhayes6006]

I'm in the hospital too. Been here since last night, then I had emergency surgery to remove my second port.... I'm not doing good at all. I'm praying for you Mary.

[@shelleylondry8959]

Keep pushing through Mary....God is working on making you feel better....keep smiling always....Love & Prayers from Georgia 🍑

[@lilac1397]

When's the next time you will get a new port placed? Seems like this one is giving you tons of trouble

[@josephinekungu4048]

Hi guys all will be well u are so strong en God is in control.... Am from Kenya... I love u guys

[@denisenj3320]

Life is mostly laundry and grocery shopping, walking the dog, brushing your teeth, etc. But in between the baseline stuff there are roller coasters and illness, births and death, highs and lows. You get to rest during the boring parts. I wish you guys lots of boring days of rest. :)

[@eej1983able]

Nausea is the WORST. I usually feel nauseous and then don't puke but when u puke u PUKE ugh. I'm so afraid of barfing i have emetaphobia fear of vomiting so poor Mary I am praying!

[@Marie_Lynne]

i have that as well. i know there are much worse things in life but it is always nice to meet other people who share the same irrational fear as me!!!

[@julielemesurier9846]

Hey guys! I just wanted to say I love watching you guys you are so inspararional! I also wanted to know, if Peter ever gets frustrated or sad? He always seems so level-headed ! Stay strong ❤

[@EmilysLifeOnWheels]

Since you have all these issues with the port being annoying and stuff would you ever consider getting a new one I mean I know that that’s probably not how it works but since it’s causing you so many issues do you think they can just place a new one in a different spot

[@FkD814]

The world loves you! Keep doing your best...

[@NormalLifeGaming]

Wow I haven't had that yet with my CF. hope your ok now

[@MissTupsy]

Oh Lord Mary!! That's the worst!! So glad you're nurses are so amazing!! Still praying for you and praying your kidneys will start doing their job!! Stay strong.....one day at a time girl!! You're doing it!! Love you all!!💕💕💕

[@rmjames83]

Dodgy port placements are a pest!!! Praying it hangs in there!!!!

[@samster4955]

You can do this Mary! Much love from Kansas!

[@chloemahr]

Thinking of you guys! Keep on keeping on or just keep swimming ^_^ lots of love from Australia

[@lezup]

Throwing up, ugh! I hope you are feeling better soon. I hate throwing up in public. It happened to me twice in high school due to a neurological condition. I am still embarrassed. Keep flushing those kidneys. That port needs to start working right. Happy to hear that you slept. AGT, good show. There were a lot of talented people this year. Out with Ollie, he looks happy to run around. Keep trucking along.

[@curiousone626]

I must say, you have above average nurses, I have NEVER felt " cared for" while throwing my guts up! They shove a receptacle in your face and move away. At least that's been my experience. You are very lucky Mary, to have such good care. Do you think your "celebrity " makes them treat you better? I mean, they don't want you talking about a mean nurse on your vlog, right? Just a thought, whatever the reason, I'm glad you have compassionate nurses, I know it can make a difference in how you feel.

[@sunglassesgirl]

Of course, it could be 1000 different things, including the fact that Mary might be choosing to not mention the occasional nurse who might be having a bad day (or something) and happens to be _that mean nurse_ that we all dread... but I'll speculate a couple of reasons as to why she always seems to have "above average nurses": 1. When she's inpatient, she's staying in a children's hospital, so there's a decent chance that the nurses on the floor are generic child / adolescent nurses. I might be wrong, BUT something tells me that a nurse that works with kids is going to have difficulty keeping a job is they have the reputation of being the mean, scary nurse. (FWIW, I'd argue that Mary's primary diagnosis could be very easily classified into the category of "childhood diseases", so it does makes sense for her to be in a children's hospital.) 2. Mary ALWAYS brings her own "help" (usually in the form of Peter) with her to the hospital. Put yourself in the nurse's position for two seconds, and (from a purely selfish standpoint) this one should make a lot of sense -- _every single little mundane thing_ that Peter is able to help Mary with is something that the nurse doesn't have to drop what their doing, and help Mary with. In other words, from the nurses' perspective, Mary is an "easy patient" who they know is NOT going to be needy and annoying (to them). And the sad reality is that when a hospital is understaffed and nurses are underpaid, almost EVERY adult patient is probably going to be labeled needy and annoying IF they hit the call button more than occasionally. =(

[@curiousone626]

Sunglasses Girl I can't disagree with anything you've said. I think the fact she's in a children's hospital is the biggest factor. Only a very special nurse could work with seriously ill children. When I've been in patient, I've had my spouse at my side 24/7 , frankly it's not safe to be in the hospital alone. My husband tended to every single of my mundane needs. The only thing I needed the nurse to do was administer my medications. And that's ALL she did. Believe me, I totally understand about being short staffed. I think Mary is very lucky to have good compassionate nursing care.

[@sunglassesgirl]

_frankly it's not safe to be in the hospital alone_ That's my experience, too. Because when call buttons get ignored, you MIGHT need the person that you brought with you for the purpose of 'babysitting the happenings of the hospital' to go pace outside your door for 30+ minutes until ones of the nurses figures out that you are already 30+ minutes overdue for your next dose of pain-reliever for that major surgery that you had yesterday. I was 18 at the time, and I'm pretty sure that those nurses were very lucky that my mom is pretty good about biting her tongue (in the moment)... If someone wanted to know how the USA treats its sickest / most chronically ill / most disabled people, I think your statement (italicized) sums it up pretty well...

[@1hotmesstanya381]

I love you guys and am praying for you.

[@LauraFunFunFloweries]

Speaking of anti-nausea meds, I gotta stop being so lazy, & go to the gastric doctor, for some refills of Zofran, otherwise & super randomly, I get horrific & debilitating nausea; w/out it, Pepto, curled up into the fetal position, & 4-5 HOURS later, I'll start to feel better. During such episodes, I have to hold still & not open my mouth, or jostling/mouth open, is a direct invite for barfing up all my insides. Yummy I'm sorry, I just remembered I gotta get some more, or else

[@SpookyNugs]

At what point do they redo the port needle position cause the surgeon out it in the wrong spot?