Nephrotic Syndrome 101 - NephCure Kidney International

NephCure Kidney International and the National Kidney Foundation hope that this video helps you gain a better understanding of Nephrotic Syndrome and the rare diseases that cause it.
For more information and resources, visit nephcure.org.

[@fredjkuo]

Thank you for creating this and to the people who shared their story. Helps me better articulate and share my 2 year olds battle with FSGS.

[@yoyo21926]

Hi, buy food grade diatomaceous earth. mix a (non metal) 1 tea spoon a day in a cold drink. do this for a few weeks. Also add it to your bath, about a half a cup full. There is a high chance this will fix your condition. Also other things to do is buy some msm(sulfur) to make diatomaceous earth even more effective. You should also get a good multivitamin with copper

[@ritiknikunj8352]

Thank you so much. Within a year I Will be doctor and it Will be so prestigious to help humans

[@lp59pete]

I recently learned I have N. S. Thanks for this video.

[@yoyo21926]

Hi, buy food grade diatomaceous earth. mix a (non metal) 1 tea spoon a day in a cold drink. do this for a few weeks. Also add it to your bath, about a half a cup full. There is a high chance this will fix your condition. Also other things to do is buy some msm(sulfur) to make diatomaceous earth even more effective. You should also get a good multivitamin with copper

[@mak_ri]

I have fsgs and I've learned a lot for my disease thanks for the video

[@elayaraja8750]

There is no treatment for N S

[@yoyo21926]

Hi, buy food grade diatomaceous earth. mix a (non metal) 1 tea spoon a day in a cold drink. do this for a few weeks. Also add it to your bath, about a half a cup full. There is a high chance this will fix your condition. Also other things to do is buy some msm(sulfur) to make diatomaceous earth even more effective. You should also get a good multivitamin with copper

[@lillystarich1429]

I have it and I am 11 and I finally learned

[@vjcrisis]

I'm from the Netherlands and my son has minimal change Nephrotic Syndrome. Because he keeps getting relabs after 1 month no prenisone. They want to try a treatment that has positive results for others, it's called Rituximab. Does anyone have any experience with it?

[@yoyo21926]

Hi, buy food grade diatomaceous earth. mix a (non metal) 1 tea spoon a day in a cold drink. do this for a few weeks. Also add it to your bath, about a half a cup full. There is a high chance this will fix your condition. Also other things to do is buy some msm(sulfur) to make diatomaceous earth even more effective. You should also get a good multivitamin with copper

[@CrebitKarma]

My son has experience with Rituximab he is 11 years old with Minimal Change NS. The Rituximab stopped him from relapsing for a year and a month. This year he got another infusion of Rituximab and is tapering prednisone.

[@MaryAnnVicariato]

May bb also is nephrotic syndrome her en the philiphines

[@samanthafuller4616]

my son has nephrotic syndrome and he is 10 years old he was diagnoasted at 7 years old

[@MaryAnnVicariato]

😢