Hi my brother also diogonized IGAN. Can u advise a food chart

Old man

My daughter is suffering nephrotic syndrome 7 year old 1 epoised nephrotic syndrome is cureable please reply me..

Nephrotic syndrome is curable please reply me …

Am a stage 4 and diabetes and high blood pressure, with protein in the urine i was 180lb I'm now 160lb and on plant base diet need a diet book to cook

Just confirm with igan. Any new updates on treatment

ACTHAR GEL

Thank you for sharing D.B. Marshall's journey. It’s truly inspiring to hear about the challenges faced and the strength to keep moving forward. This video is a great reminder of how important it is to listen to our bodies and seek help when needed. Wishing D.B. and others on a similar path all the best in their journeys to better health!

I am 28 years old nearly 3 weeks into dealing with MCD. I also went blind for 2 days with glaucoma and this video gives me a lot of hope to continue pushing on. I hope this ends for me soon.

Okay so where's the recipe?

OMG THATS ME

There is no reason to be so scared of the needles. I have had 3 renal kidney biopsies, first at age 9, then at age 13 and then at age 17! Its not as bad as you might think.

I was diagnosed in 2014 at the age of 9, and at that time, the doctor diagnosed it as MPGN type 1 with nephrotic syndrome. But after the reclassification, It's known as C3GN. I have been dealing with these kidney complications for more than 10 years now and just recently did my doctor say my proteinuria had dropped below the Nephrotic range which is <3 grams per day as my proteinuria was around <1.3 grams per day, and the doctors said this is what is considered sub-nephrotic range proteinuria. Since i was diagnosed, I have had 3 renal biopsy procedures, been on steriods, Immunosuppressive drugs, ACE inhibitors, and so much more. They never found the cause for my diagnosis so it was idiopathic. One thing that i experienced which I don't know if anyone else has experienced is that when I was diagnosed, I was given cyclosporin, which is commonly used in treatment of glomerular diseases, but I had a very huge reaction to the medicine cyclosporin, became severely hypertensive, had PRES syndrome causing me to lose my memory and then I ended up in a coma. My nephrology team said my third biopsy showed much less inflammation but one new thing happening and that was the beginning of seeing thinning of the renal cortex which again I understand just shows disease progression. Recently, after turning 19, I started to take over complete responsibility for medication, appointments, tests, etc, instead of my parents taking care of everything for me. I have my routine appointment coming up in December at Toronto General Hospital GN clinic where i was shifted to after turning 18 last year because I was no longer able to have treatment at the previous hospital, SickKids Hospital. This disease really changed my life, it changed me, the people around me, the way people treated me, it changed everything. I really hope the new scientific and technological advancements can help us find new cures for many rare diseases.

Is there a way for me to obtain the transcript?

Great talk. Thank you!

Thomas Dorothy Young Daniel Martinez Anna

Williams Jeffrey Thompson Lisa Wilson Jose

This is tough… I’m 27 and have had this for about 8-9 years now… eGFR is at 34 currently. Always been a sports person always ate healthy nobody knows why I’ve got this. Using an ACE inhibitor and forxiga as my doctor said there is a very low chance immunosuppressants will work in my case. Day in day out I try to understand why this is happening to me and how I can combat it but it’s very hard on my mental… especially dealing with leg swelling as it kinda reminds you that you are sick… if anyone has any tips or any support groups please share. I wanna create a family and live a normal fulfilling life but most often this discourages me and leaves me hopeless…

Great presentation..thankyou x

What helped with my swelling, dizziness in school was compression stockings to help increase blood flow.

Ive been spilling protien for about 2 yrs. Im scared.

Just diagnose 3 months ago with IGAN

Thank you for all your stories. And thank you NephCure for supporting us warriors.

I was diagnosed in 2014 at the age of 9, and at that time, the doctor diagnosed it as MPGN type 1. But after the reclassification, It's known as C3GN. I have been dealing with these kidney complications for more than 10 years now. Have had 3 renal biopsy procedures, been on steriods, Immunosuppressive drugs, ACE inhibitors, and so much more. They never found the cause for my diagnosis so it was idiopathic. One thing that i experienced which I don't know if anyone else has experienced is that when I was diagnosed, I was given cyclosporin, which is commonly used in treatment of glomerular diseases, but I had a very huge reaction to cyclosporin medicine, became severely hypertensive, had PRES syndrome causing me to lose my memory and then I ended up in a coma. Just recently, after turning 19, have I started to take over complete responsibility for medication, appointments, tests, etc, instead of my parents taking care of everything for me. Just got a requisition to get blood test done, and I have my routine appointment coming up in December.

Chef Duane should write a CDK cookbook! That would be awesome!

Thank you for this wonderful , informative, funny presentation! I found I had ckd from reading my hosp discharge paper (from a-fib) in June. Freaked me out! This has given me a lot of encouragement with what to eat and enjoy it!

I was diagnosed with C3GN, another very rare type of kidney disease at age 9. Now its been 10 years, I am now 19 and have gone through a lot of crazy stuff over the years but just recently started college and had to talk to student advisors for accommodations id need over the time of post secondary education. I have been given steroids, immunosuppressive drugs, ACE inhibitors, i have at 19 already had 3 renal biopsies, been in a come, had PRES syndrome near time of diagnosis causing me to lose my memory completely to the point where i didn't know my own mothers name.

Amazing young man

Thanks, helps understand more about this rare condition I have been diagnosed with

😭😭😭😭 my baby suffering from nephrotic syndrome

When my dad was diagnosed with Nephrotic Syndrome, we wanted a natural approach to his treatment. That’s when we turned to Planet Ayurveda. Their herbal remedies have been so effective. I believe their treatment is the best for this condition.

Seeing a loved one suffer from Nephrotic Syndrome is really tough. My sister went through it, and we didn’t know where to turn. Luckily, we found Planet Ayurveda. Their herbal remedies worked wonders, and she’s finally feeling like herself again. I highly recommend their treatment-it’s truly the best.

What is the term he is using, soluable upar?

Im in the middle of still fighting for insurance, its been years but fl is not helping at all. It i didn't have friends and family to help here and there i would have been left to die by FL healthcare and insurance system. Its been and is aweful.

I'm sad :'( I live in 3rd world country . I hope those medicine will be available in the Philippines soon. :'( it's tough it's really tough .I hope we can live in US so we can a have a better fight with this IGan

Can you make Indian dishes

Did she have minimal change disease before the fsgs

😢🥰

You are healed in Jesus name

😢

May bb also is nephrotic syndrome her en the philiphines

Doctors want to put me on Farxiga but I am afraid of side effects.

Very Informative video, Thank you.

recipe?

From diagnosis to kidney failure took me 12years. Tried many options, helpless. Luckily got kidney, filling better but got another problems using anti rejection pills, at least I'm alive

I was diagnosed with FSGS at age 4. They want to put me on dialysis soon.

What is the initials of your disease mean? I've never heard of it

Please send a list of foods good for kidneys Delores Wright

I also agree with the moderation, today this tomorrow another suggestion. Almighty God is ONLY our Healer.

Thanks