Neurologic Symptoms in People With Long COVID

Рет қаралды 48,463

Жыл бұрын

Dr Andrew Wilner and Dr Igor Koralnik discuss the range of neurologic symptoms that can persist after acute COVID-19. www.medscape.com/viewarticle/...

Пікірлер: 441

@karreenco.beautyhealthwell9806 9 ай бұрын

I’m 3 1/2 years post COVID. My life, body and mind struggle everyday. I need help! We need more Drs who care, instead of saying your just stressed and have anxiety.

@vickijohnson9367 8 ай бұрын

Find my post on what this, etc, kidney failure, etc heavily censored.

@cathrynp3491 6 ай бұрын

I hear you. I went through a ton of severe neuro symptoms for which conventional drs. didn't have any answers. I was all on my own. A chiropractor (Dr. Perry Nickelston_ and a Gastroenterologist (dr. Ross Hauser) on you tube. they steered me in the right direction. What has helped me the most is acupuncture. I'm telling you this as I wish someone had told me what to do to prevent months of suffering. Acupuncture helps with anxiety, depression, constipation and diarrhea plus pain, and other things. I can promise you'll get help. If you can find community acupuncture, it's quite a bit cheaper. It's where they treat two people in a room at once. I'm curious to see if you try this - let me know if it works. The cost for community acupuncture is $30-$50, depending on income etc.

@karreenco.beautyhealthwell9806 6 ай бұрын

Yes I agree, I am an acupuncturist and I just recently started treating myself. Thank you for you kind response

@cathrynp3491 6 ай бұрын

@@karreenco.beautyhealthwell9806 That's cool if you can do it yourself. I consider my acupuncturist a hero!

@narrativequestion 5 ай бұрын

post vaccine or post covid?

@francesnance9110 10 ай бұрын

I was extremely ill with covid and long covid for about a year. Now, my personality changed. I am more subdued. I am tired and can get exhausted having dinner with more than 2 people. Too much to deal with all at once. I get to bed by 9pm. My favorite activity is going to bed and getting a good night's sleep. I am anxious, and depressed. I feel that I slog thru life. I don't want to be engaged. I prefer to watch the clouds stream by. I am not the same person I was before covid. It sucks.

@danr13 5 ай бұрын

how are you now?

@francesnance9110 4 ай бұрын

@@danr13 Similar, I am a bit more active, but still slowed down and still easily overwhelmed with too much activity that stresses me along with too much engagement with people. Grateful to be alive. Sleeping is still a nightly challenge. I lived thru it and things are just different now...

@paulbolger5976 4 ай бұрын

Thanks for sharing. You have described word for word my experience of long covid. I feel exactly the same; long covid has now only affected me physically and cognitively but also my personality.

@danr13 4 ай бұрын

@@francesnance9110 Thank you for responding! I am sorry you are going through this. I am experiencing the same thing. Wishing you all the best. I hope we will continue to get better (or start getting better...)

@theresajg11 3 ай бұрын

Me too, a little over 1 year. My doctor just suggested a psychiatrist. WTF I work, do the bare minimum of household chores (when I can manage it) sleep. That’s my life now. 😢

@chestnutmair1 Жыл бұрын

Horrible symptoms. I have brain zaps, anxiety and panic, intense ear pressure, off balance, ackey shakey. This is a nightmare

@5000NATE Жыл бұрын

Look up Miguel from chronic fatigue syndrome I'm in a practice now meditation it's very helpful

@marcopoblete2592 Жыл бұрын

my son became suicidal for not knowing the source of his pain an panic attacks!

@cyndijohnson5473 Жыл бұрын

Last time I had brain zaps it was due to Prozac

@User98681 Жыл бұрын

I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins!!!! I have more supplements that will help, comment back and I will tell you!

@User98681 Жыл бұрын

@@marcopoblete2592 I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins!!!! I have more supplements that will help, comment back and I will tell you!

@laurakelly631 10 ай бұрын

I tested positive 5 times over 2.5 years with Covid. First time was most severe but no hospitilazation. I have been dealing with long covid since. The longest time between infections was about 10 months. I had just begun to feel improvement gradually over two months, from 8-10 months in my symptoms. But then was reinfected. Right now I am three months since the last infection. Strong constant fatique, brain fog, difficulty getting deep breaths, tiring very easily moving around (for example going up stairs) then gasping short of breath, strong somewhat migrating inflammation pain - all over but particularly in the lungs and neck- intense brain fog with post exertional fatigue, headache. It gets worse and better on different days without being able to ascertain why. Exertion definitely makes it worse. I am not obese and I look good to people. Thus many do not understand. All of this is invisible on quick glance. Unless people are actually with me all day and can see the impact of having a lively conversation for two hours then leaving me in bed with confused brain fog the rest of the day, feeling miserable. This is debilitating! Few people understand. I could feel this interviewing doctor's bias and lack of awareness...jumping to that standard easy and condescending conclusion when they don't know how to explain it - 'isn't it really in their head?' - trope. So irrititating and insulting. I don't waste my time with people who have that level of bias and ignorance about this. I will finally start treatment at UCLA Med Center in October where they have a clinic for long covid. I wish us all luck.

@brendabrenner2891 9 ай бұрын

Tu for this ❤️ am vax injured 3 times. 3years in, have xact same, but no help inRi, and too sick to go Boston.. cal has more.. would like to follow-up w u on your clinic journey, healing thoughts and prayers🙏💕😺

@stevegcq 9 ай бұрын

@@brendabrenner2891 exactly, well done for getting thru the algorithms.

@stevegcq 9 ай бұрын

All this fatigue, brain fog, difficulty getting deep breaths, tiring easily, inflammation pain, headache, all worsened by j_a_b.

@JakeAlsop 8 ай бұрын

Inflammation here

@vickijohnson9367 8 ай бұрын

@@brendabrenner2891 see my posts👇all labs, over & over protect kidneys.

@brobinson8614 9 ай бұрын

He just described M/CFS something most neurologists mocked and ignored for decades, Why now are they recognising post viral illnesses affect a patient neurologically?

@winniecash1654 2 ай бұрын

It's about effin time.

@acebacker1 6 күн бұрын

As a 66 year old orthopedic surgeon who contracted ME/CFS after a viral upper respiratory tract infection at age 54, I can only agree with you.

@winniecash1654 6 күн бұрын

@acebacker1 what can be done to get people who suffer from this help? I've been suffering for years, yet have forced myself to continue working as a mother with kids who was abandoned by my husband. I didn't have a choice but to work. Now the kids are out of the house, and it sure would be great to finally get some rest. But it won't happen. I work and collapse into bed every day. Why is this not taken seriously? We should be candidates for disability, but it's so easy to be gaslit.

@nightowl16201 Жыл бұрын

Thanks for sharing. I’ve been dealing with Post Covid almost 2 years. I have shortness of breath, extreme fatigue, short term memory, as well as heart palpitations. Covid has been an unbelievable journey.

@MF-Rell Жыл бұрын

@RR 6 are you sure

@MF-Rell Жыл бұрын

@RR 6 I'm so hot right now I want to cry. If I do something one day the next day, I'm completely exhausted. I don't know what to do.

@User98681 Жыл бұрын

@teatree6228 Жыл бұрын

I had these plus vertigo imbalance plus mental fogging in 2018 after 9 months of constant coughing 2018!!!! In Australia No travel history In 2022, i received my first moderna jab- 5 minutes after, i felt the mental fog lifted, was energetic cleaned out two houses snd gardens Never looked back since, had 4 other moderna jabs I had covid, i suspect in 2018!!!!

@teatree6228 Жыл бұрын

@@OMG-jv6vbay be your symptoms are not from the persistent low grade viral infection, but something else???? I really swear that within 5 minutes, after the jab, i felt a gush of blood flowed into my brain, and that was when i distinctly felt a fog was lifted off my brain. I am a medical doctor, was hesitant about taking the jabs, and i was working despite the symptoms i had, The symptoms i had were bad but they did not prevent me from working part time, and going to the gym. I also recalled there were times my face would flushed like a red balloon suddenly, A registered nurse who witnessed these flushes described them as a mast cell explosion or histamine explosion. All these have never recurred now Remember all these problems happened to me in 2018, long before any covid. The coughing i had and the post coughing symptoms were so covid-like- i did not have loss of smell but i gained heaps of fat, prior to that i was really really skinny, lean, with minimal subcutaneous fat, just born like that. I have now lost all those fat from vigorous walking on a treadmill.

@DS-nb5cz 9 ай бұрын

If a large group of leading academic physicians experienced chronic and severe fatigue, brain fog, and post exertional symptom exacerbation that interfered with their work, I think they would very likely dismiss the psychosomatic theory. With all due respect.

@DS-nb5cz 9 ай бұрын

and they are out there....

@thistree9028 3 ай бұрын

Check out Jarred Youngers research. He developed an infrared MRI which can potentially prove inflammation in the brain in fibromyalgia and ME/CFS. He had a small cohort, but is most hopeful in getting this with long Covid also.

@SperamusHope 7 ай бұрын

You need to treat inflammation. I had terrible fatigue, brain fog, memory cognitive issues after covid. I'm Still recuperating. New doctor treated me with I meg solumedrol IV steroid. Within hours of treatment the pressure I felt on top of my head lifted. Several days later I could think clearer my short term memory lapses improving. My fatigue also is much better. I nap once or twice a week once a day. Not every day twice or three times. Why do doctors ignore treating brain inflammation. It is documented on MRI scans. They know it's there but don't treat it. I thank God I finally found a doctor who treated it. Look for doctors who will give corticosteroids to treat long term covid inflammation. This is what causes long covid!

@loveKG26 Ай бұрын

Exactly before Covid even came I felt similar to all these symptoms. After steroids IV route it took weeks but one day I woke feeling great headache gone head pressure gone dizziness off balance feeling gone it was amazing. Unless someone has magic prayers actually working on me I have no other clue how I got better. This is after 10 yrs of so called epilepsy with the most recent 3 yrs with all those add ones I listed above it was scary. Years after that IV steroid with some antibiotics I’m still not as bad as I once was… Daily I don’t live with that severe head pressure dizziness and head pain. Even though the doctor seen my ventricles were huge it’s like the medical system is just too slow to use common sense in Canada. Chiari happens to people I mean my neck has been in pain since age 14. None of the doctors or specialists I’ve seen have the knowledge I attained looking for answers for myself. Hydrocephalus is dangerous and my head had so much pressure it was going to explode.

@Andre_Ons_Marshall 6 ай бұрын

I’m sorry to say this and don’t wish to offend anyone. But thank god for long Covid. Those of us who had CFS, Fibromyalgia and other autoimmune diseases that were not recognised decades earlier. We were told it was all in our heads, now they realise it is a chronic disease and hopefully we can find answers and maybe a cure.

@lranieri1 5 ай бұрын

Yes, that's ignorant and offensive and you should keep that to yourself!

@jewelleryaddict 4 ай бұрын

@@lranieri1disagree. many of us have suffered same symptoms as myself 30 years with cfs. we were thrown under the bus and disregarded. made fun of not taken seriously mostly because we are female. We do not want anyone else to suffer this hell of a life we have and hope long covid suffers are taken seriously and work continues to try and help them so 30 years later they are not still suffering the same thing.

@jewelleryaddict 4 ай бұрын

Yes 30 yrs later and I still suffer the same cfs symptoms as l. covid. I have done everything under sun to return to health. Have degree in Health Ed. and even have a study published in medical journal in hopes of helping find us help in 2010. But still nothing. We don't wish anyone this hell of a life and hope they just don't keep stringing these people along with no help like they did us. But after 2+ years it's looking the same. Lots of tests., lots money made at our expense and nothing yet.

@lranieri1 3 ай бұрын

@@jewelleryaddict thank you so much for taking the time to share your experience! I am a health coach and I tend to think healthy eating and exercise can help everyone, but I am wrong. Now it makes sense to me why why CFS community is hopeful for the new research so they can get long overdue answers!

@acebacker1 6 күн бұрын

I agree. As a 66 year old retired orthopaedic surgeon who has suffered ME/CFS for 11 years, following a viral upper respiratory tract infection, I have also endured the ignominy of an “unfashionable” illness. At least I can now say “I contracted long COVID before it was popular”. 🤷‍♂️. Unfortunately, the attitudes and beliefs of my medical colleagues are very difficult to change.

@valerieh.2886 8 ай бұрын

Thank you to the doctor! So many were exposed to Covid at work, and later when they thought they were recovered... experienced serious cognitive issues, weakness, malaise, etc.. numbness, vision problems, etc., and were terminated. Many were unjustly judged as incompetent, treated as if they had Alzheimer's...when they were perfectly healthy before exposure to Covid at work. It's cruel, and inhumane to GIVE someone an illness, humiliate and shame them on the job for it, and then terminate them. Many lost their jobs, finances, health insurance, and were abandoned with hefty medical bills, all due to coworkers giving them the illness. Employers are too quick to judge someone who may be struggling with REAL terrifying post COVID symptoms. Employers should be educated on the REALITY of COVID's cognitive and other symptoms. I also agree that those struggling with long COVID should receive significant govt assistance. Congress can cut their huge pay raises, wasteful spending and needless multi-million dollar witch hunts to do so.

@narrativequestion 5 ай бұрын

you silly sausage. research vaccine damage.

@reinventamerica Жыл бұрын

He’s forgetting, excessive sweating 24/7 most days, thoughts that are abnormal, extreme paranoia, insomnia, and major weight loss and muscle tissue. I had mild Covid, I was told. It was terrible! 25 months later with Covid twice, I’m worse than ever!

@User98681 Жыл бұрын

@Rahimitheking 11 ай бұрын

@@User98681 Fast is the best way let me know r u vaccinated or nonvax

@brobinson8614 9 ай бұрын

The neurologist just described M/CFS something most neurologists mocked and ignored for decades, Why now are they recognising post viral illnesses affect a patient neurologically?

@indigo57 7 ай бұрын

My husbands exact symptoms. I was afraid he might have prions or rapid progression of dementia.

@cherieelliot8938 7 ай бұрын

Check into Covid psycosis

@kevinj4656 5 ай бұрын

My wife has the most extreme case of LC which became worse and worse after contracting Alpha, followed by three or four other variants. She has some similar symptoms to lupus. She has been diagnosed with Inappropriate Sinus Tachycardia, POTS and Pollen Food Syndrome. She has a healthy heart muscle, but frequent heart episodes. She has bouts of extreme pain in her extremities, sleep disturbance, near dangerous levels of iron, and IGE. She has 9 specialists, and no improvement. In fact it’s getting worse. The Drs can’t approve disability status for LC in Canada and she is sick in bed. Can’t make ends meet in Toronto on one income. Really just at a loss here

@DennisMC1974 3 ай бұрын

🙏🙏🙏

@Tinyteacher1111 3 ай бұрын

I’m so sorry! I was going to ask what LC meant, but I get it. Duh. My adult son has Lyme and since he had covid, he’s had a horrible migraine 24/7 and has been having seizures and neurological problems.

@RodeoDogLover Жыл бұрын

Thank you for this video. Female in her 40s…no positive Covid test but suspect I was infected several times with mild symptoms. Been suffering from so many of what I’ve come to understand as possible long Covid symptoms. Recently went through thousands of dollars in multiple tests because of elevated liver enzymes. After several months went by my labs went back to normal. I was optimistic that was the end as I was feeling better, but as had happened so many times previously, after feeling mostly well for a week or two I was knocked down with fatigue among a number of other symptoms that are only manageable because I lead a simple life and have a desk job working from home. I cannot imagine how it would look if I had the demands so many others do. Just started LDN to see if that will provide any relief. But it does seem like whatever is going on with me could be autoimmune in nature. Hugs and understanding for all those out there that have had doctors shaking their heads while escorting them out the door with a stack of medical bills and no relief.

@User98681 Жыл бұрын

@stephangauthier911 Жыл бұрын

Your enzymes got back to normal by themselves? I'm going thru a phase right now which tells me my gut aint working well, among a laundry list of other symptoms. I'm losing a lot of strenght. I used to be an athletic cyclist.

@stephangauthier911 Жыл бұрын

@@User98681 good advice. Intermittent fasting with a strict no carb diet and some prolonged fasting. I just got out of a 5-day fast but wasnt in good shape from the start.

@RodeoDogLover Жыл бұрын

@@stephangauthier911 it seems that way. Inflammation is the key word to all of this, as far as I can tell. Recently put an earthing/grounding mattress cover on my bed and have been finding other ways to ground my body. Out of all of the things I’ve tried, this one stands out as being instantly helpful. Upon waking on the first morning I felt different-in a good way. Like more rested. Visible signs of poor circulation have also been improving. Haven’t been doing it very long, but it my limited experience this is one treatment that seems to work based on my personal experience. I know exactly how frustrating it can be to feel like you can’t have fun all the ways you’re used to. I hope you find some relief soon.

@cathrynp3491 10 ай бұрын

I wonder if I had Cov and didn't know it as I've had severe neuro symptoms including no appetite and Im already too thin. I'm 73 yo but have had excellent health until 7 mo ago. My liver enzymes went fromm 77 to now 20 (not sure how that happened) and also other markers go up like pulse, blood pressure and blood sugar even though I don't consume a speck of sugar. Elliot Overton on YT helped me eliminate most of my IBS with B1 (Benfotiamine). I've had now a horrendous problem sleeping. I told the dr. that the sleeping pills he gave me doesn't work - he just said to try it for a month even though I sleep the same with or w/o sleeping pills. I feel like a total zombee. I checked myself into the hospital because I wanted to make sure I'm ok with shaking etc. and I was told I could stay at that hospital for 2-3 days until a bed is available at a Psych ward and at a place that's 50 miles away. Even my GP said he wouldn't advise that. Going to drs has been worthlesss and I don't even think Mayo Clinic could help these symptoms. I am going to try two things: R alpha lipoic acid (the natural kind which is 40x more bioavailable) and methylene blue (start slowly on MB, doing 1 drop/day - added to an empty capsule to avoid blue on the tongue).

@arbrieltucker650 Жыл бұрын

Dr's should really stop dismissing long covid symptoms!!!!!!!!!!

@User98681 Жыл бұрын

@Vidis88 11 ай бұрын

@@User98681 I tried water fasting last year, but more 2,5 days, cant say it helped alot, but I feelt better for shore, during like 4-5 days after completed fasting.

@frcfun8328 Жыл бұрын

Please study long covid patients who develop POTS and PEM 🙏

@haotang2638 Жыл бұрын

That is me😢

@User98681 Жыл бұрын

@@haotang2638 I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins!!!! I have more supplements that will help, comment back and I will tell you!

@brobinson8614 9 ай бұрын

The neurologist just described ME/CFS, something most neurologists mocked and ignored for decades, Why now are they recognising post viral illnesses affect a patient neurologically?

@GungaLaGunga 8 ай бұрын

My two cents from my 15 month long and counting long covid nightmare: 55 year old male, main symptoms insane fatigue, brain fog, AND THEN: one year post infection(14 months post vaccination) had first episode of supratachycardia SVT that sent me to the ER and had to get cardioversion to reset my 160 bpm resting sitting heart rate. I see "tachycardia" very often when reading about long covid aka PACS Post Acute COVID-19 Syndrome.

@mattgericke4537 Жыл бұрын

Male in his mid 30's perfectly healthy before covid, Got covid bad twice in one year then a third time minor. I've had major GI issues, heart arrhythmia (AFIB and Flutter, and High and low heart Rate), pulsate tinnitus, and now weakness/muscle spasms in arms and legs. I've had pretty much every test done including MRI of heart and Brain and all come back normal. So I've been a covid long hauler for 2 years now. This all happened after my second run in with covid, which I also had the vaccine. Not which which actually caused this. I've gotten better with some things but then new things show up. It's a wild and expensive ride.

@User98681 Жыл бұрын

@cherylcarlson3315 Жыл бұрын

Have also tinnitus, finally found cricket sound bath by audiologist on you tube that gives relief for a while.

@stephangauthier911 Жыл бұрын

It's weird how the symptoms change over time. I'm going thru a phase right now where my GI is very much messed up and extreme weaknesses. Feels like I'll lose my ability to walk. Scary AF stuff. You're not alone in this man. Hang tight; it's gonna be a bumpy ride.

@jaynebailey Жыл бұрын

I really believe that it was the vacine that caused all this 2 days after second jab I got sick that was July 29th 2021 still have major problems it is now may 2 2023 you should all read the physer records they wanted it to remain silent for 75 years but the court demanded they release them now and they did frighting

@Rascal455 8 ай бұрын

My exact symptoms and age. Can i ask what you do for a living. Im looking for lifestyle connections. But i agree with long fast. Also, ive heard apheresis is really working. Also you should try pepcid and zyrtec 2 times a day each. It will be huge for the GI stuff and other stuff.

@RecklessRaichu Ай бұрын

I had covid back in August of 2023. It is now March of 2024 and i cant take it anymore. Raging headache, loss of of balance, vertigo, brain fog, insane fatigue, pain in the back of my eyes, really bad light sensitivity, muscle weakness.

@LoveMyBoys3 Жыл бұрын

I got Covid beginning of December 2021. It was horrible. I got the monoclonal antibody infusion. I have never recovered my senses of taste and smell since then. My spleen is enlarged and my internal organs actually hurt. I have left side facial twitching. I got Covid again in August 2022. It wiped out my memory and caused constant fatigue, severe anxiety and depression. I am convinced that my brain is damaged and I will have a shortened lifespan because of this bioweapon.

@User98681 Жыл бұрын

@LoveMyBoys3 Жыл бұрын

@@User98681 I do not see how fasting will help repair the damage to my olfactory bulb. I am not in the best of health. Supplements scare me. I am on thyroid meds and Zoloft. No way I can do three days existing on just water. 16 months with Anosmia and no recovery. I fear this is permanent.

@hnb4053 10 ай бұрын

@@LoveMyBoys3 3 days water fasting will cause drastic weight loss which is even more dangerous when you are already experiencing symptoms. It will only add fuel to fire.

@lucyzhang8572 10 ай бұрын

Try Magnesium chloride oil

@carolelegault9545 8 ай бұрын

IT'S REAL, yes it is! I hope GP's are watching this and stop dismissing us! I am back to about 95%, but it was a very rough ride!

@delivereddivanewlife8084 5 ай бұрын

Thanks for sharing. I'm in the thick of it & praying for healing as well❤❤❤❤🙏💪💋👠

@anson.meadows Жыл бұрын

These doctors have poor investigative skills. I was an Air Force officer before falling ill and have hyper documented and reviewed all of my labs, imaging, reports… I have positive NMO antibodies (AQP4), my neurotransmitters are negatively effected (particularly Dopamine), I have numerous reactivated infections, and a lot of endocrine and metabolic dysfunction. He’s also wrong about his presumptions regarding the vaccine and it’s risk/reward. Don’t let the suit/tie and white coat fool you. These are drones with no practical sense or effective discernment. Listen to the patients. Doctors often think they have a monopoly on intelligence and yet tend to have very poor investigative abilities.

@ArthurTheLibraryDetective Жыл бұрын

🙏💖💞💞💞👍

@User98681 Жыл бұрын

@stephangauthier911 Жыл бұрын

Im in the same boat as you my friend. It too broke my heart when he said he said to follow the CDC recommendations. They're SO corrupt.

@acebacker1 6 күн бұрын

As an orthopaedic surgeon 11 years down the track with ME/CFS after a viral infection, my advice to any medical professional (in respect of any patient interaction really) is “First, shut up and listen to the patient, and don’t interrupt them until they have finished giving you their history.” What patients give you is gold, and following that, only a few more questions may be required to narrow down possible diagnoses and guide targeted investigations. Unfortunately, after exclusion of specific diseases or disease processes, doctors have patients that have brain fog, fatigue, etc which cannot be easily confirmed - apart from perhaps functional MRI etc. And then, there is no specific treatment. Confirmation of real illness can be helpful for the mental health of the affected person, as is documentation for insurance. The most important diagnostic tool is the doctor’s ear, which if connected to an open mind not crystallised by dogma, rapidly makes the diagnosis of a post viral autoimmune problem affecting the brain. Simple really, but in my personal experience, rare.

@anson.meadows 6 күн бұрын

@@User98681 Thank you for the offer. I have a small feeling I may have at one point or another attempted the recommended protocol(s). I’ve tried nearly everything and have waded deeply in multi-chronic infection treatments, autoimmune treatments, mitochondrial dysfunction supplementation, etc. But I’m always welcome to new ideas…currently in a nursing facility and suffering symptoms that cross between Sjogren’s, Systemic Sclerosis, Dysautonomia, ataxia, and more.

@CalienteDesign 6 ай бұрын

I am having long COVID. I was initially very ill for 2 months, then I was able to get out of bed. Before COVID I worked full time, no neurologic issues. I have ankylosing spondylitis however, and was taking Consentyx when I I fell sick. I am only now able to work 1/2 day, and have to triple check my work as I feel like I did when I had a concussion and the post concussion syndrome. I went to a grocery store twice and forgot my groceries, pretty bad stuff. I'm also exhausted I have to nap every afternoon. I was vaccinated and boosted. I hope I can hang on long enough to get better. I too had crazy heart palpitations and very blurry vision.

@Tinyteacher1111 3 ай бұрын

Wow! I’m so sorry! I’m in the same boat with Lyme, and went through covid and I couldn’t find the right words for a long time. I don’t even shop anymore, but have my groceries delivered. I also have autoimmune diseases including AS. This thing is horrific!

@ciuffoarancione8929 11 ай бұрын

I am injured from 18 months, from 2nd dose of pfizer. My life is ruined, i was healthy and fit. Jabs ruined too many people... And doctors won't help people like me...

@lucyzhang8572 10 ай бұрын

Doctors are killing people. They got paid for pushing vaccine. try MMS.

@User98681 10 ай бұрын

@ciuffoarancione8929 10 ай бұрын

@@User98681 i ve tried 3 days... In the 3 days i was better, then when i restarted to eat way worse than before...i take nac, nattokinase, magnesium, zinc, selenium, b complex, d, c, probiotics .... From months... They seems to me useless..nervous system and immune system are damaged..

@Turtledove2009 Жыл бұрын

Thank you for this.

@User98681 Жыл бұрын

@sakinahabdulbari6884 Жыл бұрын

Thank you.

@KBHeal 4 ай бұрын

Have you looked at the problem that almost all the new long COVID cases have had the mRna vaccines?? All my unvaccinated friends have no problems at all, don't even get COVID any more. It has become a huge problem ever since vaccine rollout 😢😢

@stephangauthier911 Жыл бұрын

I still am suffering 2.5 years later. The worst was the jab. It's worse now that it was 1 year ago. I've tried so many things like strict diet, some products like artemesia, NAC and nattokinese, exercise, fasting. The health system is useless other than sign me a leave of absence from work (I'm nearly disabled). No tests come back positive. ECG, EEG (I had so many seizures with no priors), x-rays, complete blood tests, brain MRI.

@mundanesquirrel8687 10 ай бұрын

It breaks my heart, Stephen. Looking at the amount of published papers I am pretty optimistic that we'll find something pretty soon.

@TheVargaGirl 10 ай бұрын

I'm so sorry.... my husband is in the same disabled state after his forced vax's almost 2 years ago. Nothing is helping, especially doctors.

@john316-tetelestai 10 ай бұрын

Hello my name is Sarah.I have Long COVID and MS it is very hard but I trust in the Lord and He is with me. I am praying for all of you on here. Trust Jesus Christ today. He is coming soon for His bride. John 3:16-18 1 Corinthians 15:1-4

@haotang2638 Жыл бұрын

Thanks for this❤ best questions asked that I have been seeking answers. I am grateful that so far no one took my situation not seriously, as I lost 80-90%of my life, hope more long Covid patients being treated and heal soon. Any advice on things I need to do for faster recovery? I

@User98681 Жыл бұрын

@ark194 11 ай бұрын

look at the vitamin regimen for covid. I'm guessing you can find it online.

@jaynebailey 11 ай бұрын

@Liam Tytgat I will ask doctor and see if that is paid for in canada

@akersboys9898 11 ай бұрын

Yes thanks. Some of my family members don't understand why I am not better yet, thinking am faking my symptoms. My O2 was 41 when I went to hospital I am very lucky to be alive, but I still have a bunch of symptoms and the doctor s don't know what to do with me.

@journalingwhilecaffeinated7720 10 ай бұрын

I’ve had these symptoms for two years now after Covid (mild). Recently had a spinal tap due to optic nerve swelling and found to have very high CSF pressure and an ongoing autoimmune response . Diagnosed with IIH and papilledema.

@antonioortega2588 10 ай бұрын

My ex wife had the same in optic nerve swelling, constant fever for weeks, high CSF Pressure and also received the IIH Diagnosis 3 years after getting covid in late 2019. Also her left 2nd toe has been twitching constantly for 1¾ years. Non stop. Sometimes the twitch is just more powerful than others. This disease keeps on giving even after the respiratory symptoms go away.

@Tinyteacher1111 3 ай бұрын

May I ask what IIH is?

@jonathangraham6412 2 ай бұрын

You got IIH and papillaedema from covid?

@journalingwhilecaffeinated7720 18 күн бұрын

@@jonathangraham6412 Yes. Neurologist said it was an autoimmune response caused from the virus.

@journalingwhilecaffeinated7720 18 күн бұрын

@@Tinyteacher1111 Idiopathic Intracranial Hypertension, aka Pseudotumor cerebri...basically increased spinal fluid pressure, the symptoms mimic a brain tumor.

@chermarie332 9 ай бұрын

I had the first virus in early 2020. I started having peripheral neuropathy in my feet then. I then got the 2 vax in Feb of 2021. Then I got Omicron in April of 2022. I received the antibody infusion at the Mayo clinic in 2022. Neuropathy is much worse, all the way up my legs. Severe fatigue, tinnitus, brain fog, and can barely walk. I am seeing specialists through the Mayo clinic. Next test will be for arterial blockage in legs on the 20th. I am sure tired of this and wish there was something that would return me to normal.

@LisaL-yl9zm 7 күн бұрын

How r u feeling now? I'm dealing w neuropathy in my legs for 2yrs after getting covid

@chermarie332 Күн бұрын

@@LisaL-yl9zm Feet and legs are worse. Still have fatigue, brain fog, stomach issues. I just had bloodwork done last week. testing now for thyroid, hashimotos, celiac, A1C, C3 and C4, B12, etc. most came back normal except for the autoimmune stuff. Thanks for asking.

@LisaL-yl9zm Күн бұрын

@@chermarie332 I just got a blood test today to see if the spike protein from c-vd is still in me . Keep u posted

@GEM-eq9zj Жыл бұрын

I developed anxiety and panic attacks severe panic attacks where I would get hyperventilation and fatigue after such but now I'm taking antidepressants and I'm doing great so far

@User98681 Жыл бұрын

@brobinson8614 9 ай бұрын

Paroxitine is fantastic for stopping panic and aniety

@GEM-eq9zj 9 ай бұрын

@@brobinson8614 I’m taking escitalopram for anxiety and anxiolitic for panic attacks

@narrativequestion 5 ай бұрын

pharma has everything you need to mask symptoms of illness.

@GEM-eq9zj 5 ай бұрын

@@User98681 I've noticed that too, everytime I starve myself for a day or two, I feel fantastic on the other hand eating too much makes me feel uncomfortable

@haidishafik6761 4 ай бұрын

I am from Puerto Rico, female 70 years. I have been diagnosed with long Covid 19 vasculitis. I have varices in both legs, and bruises or hematomas in my arms. A constant headache with lost of vision. I was treated with paxlovid during the infection, last August. After visiting a few doctors, a hematologist-oncologist gave me this diagnosis.

@decafmocha211 9 ай бұрын

I do not have long covid but I have some of those symptoms. My symptoms started over 2 years ago after I got two covid shots on 2/21 and 3/21. So for the past 2 years plus I have had chills and sweats every day. The past 8 months the chills are freezing so that I have to take 3 hot showers a day just to increase my core temperature. I also have extreme fatigue and brain fog. So I am going to try some of these helpful ideas with regards to the treatment of long covid. Thank you Doctors for the information. From Don...Northwestern University Class of 1971.

@vickijohnson9367 7 ай бұрын

Don, you have post vaccination squalae, what everyone whether caught it or inje cted is calling long covid. The entire clade is man made gov’t funded wea pon ized.

@narrativequestion 5 ай бұрын

stop taking vaccines

@oibal60 Жыл бұрын

So glad I'm still in the control group.

@brigitteleafbarnes1441 Жыл бұрын

Me too. I agree with you that it's mainly V injury. However, I've gotten LC after getting C anyway. :( And there's LC sufferers from 2020, pre V.

@Mau365PP Жыл бұрын

Covid gives LC. The vaccine is pointless at this point. It was just a waste of time and resources

@User98681 Жыл бұрын

@Sabrina37 4 ай бұрын

I have been dealing with this for 3 years. My first COVID infection was January 2022. I dealt with dizziness, ear ringing, tasting salt with everything I ate or drank, racing heart, profusely sweating for no reason , randomly vomiting, terrible constipation, choking and brain fog. I saw a million doctors and no one even mentioned this was possible. After months of vestibular therapy the neurologist gave me a burst and titration of prednisone starting with 60 mg for three days, 50mg for three days, etc… it worked! I was mostly symptom free except for migraines 1-3 days a week. I had COVID again two weeks ago… and I am starting all of the same symptoms again. I am at wits end- waiting to be fired for missing work (I carry our insurance) and can’t see my neurologist until January 16, 2023. I’m so done. Just over it.

@Sectionmillionaire-fg8mm 2 ай бұрын

Sorry you’re having a bad run with this. I had some of the issues you’re dealing with and have been on a carnivore diet for over a year and it’s the only thing that works for me. It sucks. Just want to be normal. Not advise. Just a thought. Hope you get better.

@THE_END_OF_THE_WORLD Жыл бұрын

I got covid in 2020 and not hospitalized during that moment I experienced many symptoms like loss of smell and then I started to notice ringing in my ears, acid reflux and bloating, tingling in my feet, dizziness, blurry vision and eye floaters, heart palpitations and I feel exhausted and I can't do exercise because my heart rate goes very high, until now I didn't recover and just my sense of smell recovered

@mcmaviation4486 Жыл бұрын

same symptoms as you since june of last year plus i had panic attacks and depression, this sucks only thing i dont have is the tiredness

@THE_END_OF_THE_WORLD Жыл бұрын

@@mcmaviation4486 covid 19 affected me too much because i had depression and stressed before i got infected.

@User98681 Жыл бұрын

@Portia620 Жыл бұрын

Everybody has anxiety and depression during a time when the world was shut down, so I don’t like when they bring it up, that’s so goofy that’s a confounding variable

@User98681 Жыл бұрын

@brianpancotto8829 Жыл бұрын

those who have severe cases of pneumonia are vastly 65+ and are vulnerable to pneumonia just based on age and shown to have a longer time for immune response, thus making lung damage more serious. those with mild cases develop an immune response quicker, we have seen that antibodies produced allow entry into monocytes and macrophages where infection and replication of non infectious but foreign proteins are created and circulate the blood stream passing many major organs including the blood brain barrier, it replicates in numbers that overactivate the immune response causing healthy cells and tissues to be attacked in the clearing of viral proteins, thus causing scar tissue on many tissues/organs and death of cells which can lead to a copious amount of lingering symptoms and debilitations.

@motsy15 8 ай бұрын

The neurologist I was sent to wanted only one thing. To get my file off her screen. Sent me to a rheumatologist. Pass the buck..

@user-cr3vw7gj2i 11 ай бұрын

Why don't we have long sars for other viruses from.the same family? And why the long c symptoms are so similar to the cobra venom?

@robiny.4395 6 ай бұрын

Okay, you lost me when you said to rely on what the CDC says regarding the jab.

@Beenthere61 11 ай бұрын

This Long Covid has taken my life away from me. I have no appetite I am in bed do to fatigue and weakness just getting dressed takes all my energy . I feel faint when I go out to my pain doctors my legs feel like rubber I feel faint & scared. What do people do that have fibromyalgia also ? I can be setting up in bed & all of a sudden I get a dizzy spell out of the blue, sleeping is hard, everything is hard to do !!! & I feel like I am dying at certain points. I have a racing heart of a 136 beats per minute , that is like this when I have to go out or try & clean , so I have stopped depression is bad & so is my anxiety Thank God for my hubby who is amazing at taking care of me, I just feel bad because our lives are at a stand still….🙏 oh I hope others can relate to my situation & have some of the same symptoms…..🙏❤️✌️🌹

@Rahimitheking 11 ай бұрын

Hello sister r u vaccinated or unvax

@User98681 10 ай бұрын

@user-io1ks6zk5z 9 ай бұрын

How are you right now?

@safeeffective385 Ай бұрын

For those posting here about your struggles with long covid we are going to assume that you were fully vax'd and boosted, unless you indicate otherwise!

@jaimehart5108 Жыл бұрын

One thing glaringly left out was the role of autonomic solutions. I took 5 doses of the vaccine in order to NOT get long Covid as I have hyperadrenergic POTS from multiple surgeries to start with. You say there are no tests for long Covid but not once was neuro diagnostic testing mentioned. Depression and anxiety very definitely occur because people are marginalized, not believed and told it is all in your head. Unfortunately autonomic neurologists are few and far between and booked months out. Simple blood pressure and heart rate readings supine and standing will establish the baseline of POTS or orthostatic hypotension. Dysautonomia International has a wealth of webinars and sites related to this. And I am also a medical professional and do know whence I speak.

@annaquerrard Жыл бұрын

Mmp

@madelinesabatello1845 Жыл бұрын

Wow, you're a medical and you still took the vaccine???? I have that condition too and my cardiologist said ABSOLUTELY NO to the vaccine from day one!

@jaimehart5108 Жыл бұрын

@@madelinesabatello1845 Dear Madeline, I took all 5 because, for me, the chances of getting Long Covid were more daunting than the disease itself. Dysautonomia drives much of the Long Covid and Long Covid on top of dysautonomia plus an immune system that is seriously disturbed was much more of a risk than Covid-19 itself. People forget that all life on this planet works on the bell curve. There are always the outliers. So it’s always individual risks versus benefits. That’s why I did it. As well as my age, 76, dysautonomia, asthma, chronic pain syndrome. Russian Roulette at its finest. The same types of things happened other all other vaccines. And you should see clinical trials. That’s why I quit as a clinical pharmacologist, Big Pharma ethics. But the divisions in the world made it into a political issue. Be well.

@User98681 Жыл бұрын

@kd2533 6 ай бұрын

The vaccines caused POTS - diagnosed 3 weeks later with that. Then the infection itself caused Long Covid. Can't win.

@olgarodland3232 4 ай бұрын

I got long covid from vaccination…

@loufrando 4 ай бұрын

I had Covid (that I know of) 3 times and this all tracks. Mild infections (ie was never hospitalized) was in my late 30’s/early 40’s, otherwise healthy, etc… At 41 yrs old after the 2nd bout I developed a stutter. Which I’d never had before in my life & was extremely severe at first to the point I could barely speak/string 3 words together but has improved over the last couple years. There are so many other symptoms that you mentioned and I have ALL of them but I had depression & PTSD before COVID so no one is going to take me seriously. But, I’d recovered a lot re those issues through intense treatment before that & then they got 5 times as bad after. I just always figured it was the stress of the pandemic that set me back so far. I’m still dealing w this stuff!

@marcd1981 Ай бұрын

I've had Covid twice. I got it in February of 2021, right before the vaccines. First week couldn't get out of bed, fever, chills, aches, 102 to 104 fever for 5 days. Second week, fever broke, developed a sever cough and couldn't take deep breaths. Breathing deep hurt in my chest, and that's when I looked up the breathing exercises to do to stay out of the hospital and on a ventilator. Fortunately, I stayed out of the hospital, and it seemed to break after two weeks. Second time was March of 2023. I drove to and from Las Vegas that weekend, and Monday the 13th on the drive home, I developed a very severe headache. By the time I got home I had the chills and was feeling lousy overall. My wife said to take a test, and I was positive. I took a second one to make sure the next morning, and it was positive. I didn't get a fever the second time, but I still had chills, body aches and a headache for the first week. The second week I had a sore throat and mild cough, but most of the other symptoms were almost gone. Again, after the second week, it seemed to break and I felt close to normal. Last summer, first week of July 2023, one morning I had severe enough low back pain on the right side that my wife drove me to the ER. They were thinking kidney stones and wanted to run a CT scan. I knew it wasn't kidney stones, because two days prior to this ER visit, I had just been proclaimed to be "the epitome of health" by my primary doctor after we finished my annual physical. Two days prior, I didn't have a single medical problem, all of a sudden I'm in the ER feeling like I was being stabbed in my low back. Of course the CT scan showed my kidneys, as well as all of my other organs, were normal. No sign of stones, kidneys clear. Almost (9) months in now, March 25, 2024, I have seen (12) doctors and had multiple CT scans, Ultrasounds, and MRI's of my spine (Thoracic and Lumbar), my abdomen and pelvis (inner, for organs), my right flank and abdominal muscles from my right hip to my naval, X-rays of my right hip and spine, and not a single doctor can tell me what it is. They can all tell me what it isn't. What I'm dealing with is for (9) months, I have had pain / cramping in my right flank area, all day, every day, from when I get out of bed in the morning until I go to sleep that night. On the 1 - 10 scale for rating pain levels, my normal day is a 4 to 5 all day, as long as I'm awake. When it goes to an 8 or 9, then I have to lie down on my back. It is like having a calf cramp, but in your side. There is nothing I can take for the pain, as Norco, Toradol, and a Lidocaine patch all did nothing at the ER. So, Ibuprofen and Excedrin don't have a chance. That isn't even the end of it. My right flank area (I say "Love Handle", it gets the exact location across), the entire love handle, has been numb for the (9) months this has been going on. Totally numb on the outside, pain / cramping on the inside, (9) months, every day, all day. Not a single doctor I've seen want to touch that. They move on to something else, ignoring that I just told them I've had a body part numb for (9) months. One doctor literally almost ran out of the exam room when I told him this, he was saying my specialists had it covered, and he was sure they would figure it out. I still have pages to go, but I think the medical issue is there. There is so much more, about doctors lying to you, another blowing you off for a month (ongoing, Keck doctor ghosted me), and the ones that don't believe anything is wrong.

@romancerelics Жыл бұрын

are there any studies supporting patients developing focal seizures post covid

@stephangauthier911 Жыл бұрын

I went thru at least 60 tremor and seizure-like episodes, some of them rendered me unable to move.

@LeTrashPanda 6 ай бұрын

A friend of mine was told he had Alzheimer's (they assumed due to his age) and his dr told him he was "terminal" and drugged him accordingly (without any tests to confirm the diagnosis) for over a year until I kept at him to switch doctors to be tested and appropriately diagnosed. Turns out he simply has brain fog as I suspected. I've known him for over 20 years and could see that he had Long Covid like me but his ADHD & OCD made it look otherwise, but other symptoms (GI and new allergies, post nasal drip, etc) made it clear it wasn't dementia. If you are MALE you will be shuffled off to a nursing home if you are older unless you self advocate since Long Covid is less common for men. This is dangerous as far as medicine goes but that's what's happening "out there" and every one of us will have to be wary & fight against the "instant 5 min diagnosis" from the too busy doctors who are more than happy to dismiss us.

@lucindaayala4111 Жыл бұрын

Doctors, is it possible that the neurological symptoms may be a Molybdenum deficiency? As well as other vitamin depletions from where the body is experiencing an auto immune response . I consider covid a symptom . But the disease acts more parasitic in nature. Going through cycles of wellness and illness. Similar to the illness - malaria. Could it be that with infection people loose the ability to detox ? And lack the ability to also absorb necessary nutrients to improve wellness?

@stephangauthier911 Жыл бұрын

Bingo. Then those disbalances cause systemic symptoms by themselves.

@hnb4053 10 ай бұрын

Only the Chinese who created this biological weapon can answer. But they themselves are now facing karma as it has boomeranged on their own population. They can't find any antidote as the research team who created the virus themselves have perished it seems.

@ellenbruckermarshall4179 10 ай бұрын

The virus hides in the biofilms. Not regarded in allopathic medicine, but a real, actual force in trying to recover from Long Lyme, Long Civid, and others.

@safeeffective385 Ай бұрын

Long covid treatment centers are popping up throughout (heavily jabbed-up) California, by the dozens lately. What does that tell you, folks?

@bonniehuff3901 7 ай бұрын

I tried to warn people not to take it

@alphamoose4385 5 ай бұрын

Im not taking the jab but i do feel like im experiencing symptoms of long covid (about 8 months) is the brajn fog permanent? Is this just who I am now?

@Quenaelin 2 ай бұрын

Last year I had covid twice, first was in march, which caused cyst to form in by eyelid, surgery was needed to remove that and that has healed fine. Second covid was in december, now after two months from covid I have tingling and numbness in my legs and arms even after sleeping or sitting, this must be long covid attacking my nerve systems, never had these kind of symptoms so often. But what you could do for healing, eating more vitamin B ?

@TurtleMoonTube Жыл бұрын

I'm glad you brought up the many patients who were unable to get a covid test in the early days of the pandemic. April 1, 2020, I became sick and continued to get worse. Never could geta covid lost because I didn't have a cough. I became sicker than ever have been in my 55 years. still, was told not o came to docter or hospital unless I couldn't breath. Anyway, I have been denied access to the long-covid clinics hear me even with referral from my PCP. I'm in Alameda, CA and was denied at both Stanford and Davis. The clinics all apparently have too many pa tients. They complain that their doctors and students-doctors, are unable to do the other work they need to do because of the overwhelmcy number of LC / PASC patients. So, for that, they deny anyone without a positive PCR test just to limit access and limit number of patients. Any suggestions of where to go close to me. or at least in Californian, so my insurance can pay?

@jaynebailey Жыл бұрын

Be canadian and pay nothing sorry there is no cure

@User98681 Жыл бұрын

@jaynebailey Жыл бұрын

@Liam Tytgat I do not eat much seem food since the second fax has turned me off of dinners and breakfast I eat very little but you do make sense so tired of this now it's attacting my right side knee bone hurts shoulder bones hurts all on the right side even though the second jab in my left arm was painful and she went into the bone this time I yelled in pain firt jab no problem getting really tired of this crap I will try what you suggested had this Aug 2021 bone aches just started out of the blue 4 weeks ago it is now April 28th 2023

@ark194 11 ай бұрын

I also was sick and got a test in spring 2020. I live in a rural area and was one of the first in my area to get sick, so the ER just basically said eff it we have tests so we will test you. I had about 90 symptoms and still tested negative, so those tests were not accurate. Thank God my Dr. was always on my side. She was sick early on as well. I am pretty confident you could try Stanford again because a lot of patients are currently angry that the long covid clinic is no longer masking-yes you heard me right. Lot of long haulers are angry about that and are refusing to go there, so you might have luck getting in if you don't mind them not masking there. Many, including myself, find that insensitive to patients, so keep that in mind if you try to get in. I wish you luck. I have gotten much better, but still not the triathlete that I used to be.

@TurtleMoonTube 11 ай бұрын

@@ark194 thank you. Agree, it's insensative. But, I'd where my N95 in that type of setting.

@traiandanciu8139 Жыл бұрын

Did crioglobuline occur after SARS COV2 infection?

@marthamartin7177 8 ай бұрын

This was 7 months ago, Please tell us the results of two weeks of Paxlovid🙏🏻🙏🏻👏🏼

@johnshields6852 11 ай бұрын

Get this, I'm 63, I get sick usually every year, bronchitis or the flu, since covid I haven't been sick once, I've never had one shot, so the mask is still worn in public places.

@traiandanciu8139 Жыл бұрын

Did we know at what tissue temperature did SARS COV2 better replicate? At TWiV 659 at min29 virologist Christian Drosten indicate that to replicate SARS COV2 better ,must decrease incubator temperature. Theoretically, high mucoseal temperature decrease SARS COV2 replication May be, must not decrease fever ,If are not excesive to decrease SARS COV2 replication?

@annabaum7977 4 ай бұрын

How many of them were vaccinated?

@monnmar1 Жыл бұрын

what about those of us who sustained a vax injury and not a covid one ? i sustained severe small fibre neuropathy straight after and have done for past 12months - is there a possibilty of healing from this ?

@User98681 Жыл бұрын

@monnmar1 Жыл бұрын

@@User98681 thank liam - do you feel vax injury is just the same of long covid? the symptoms do seem to be similar but then some vary greatly - small fibre neuroapthy being my issue - i do take those supps and do infared sauna - fasting has been hit and miss based on how im feeling but will try a longer fast if possible

@User98681 Жыл бұрын

@@monnmar1 I am not vaccinated but suffering from LC I am about 75% back to fully healed. Vaxx injury and LC are 2 totally seperate things, both have similar symptoms. Fasting is good either way, it’s best not to get any vaccines. They are in effective and highly dangerous

@monnmar1 Жыл бұрын

@@User98681 thanks...but comments about it not being the best thing to do is not helpful when going through the ramifications of it . Plenty have been fine with their dosing....I just wasn't.... I can't go back in time and chnage that....no matter how much regret it brings

@User98681 Жыл бұрын

@@monnmar1 my prayers are with you Jesus loves you!

@Richexperience1 Жыл бұрын

No word on treatments…? wtf? A good summary of what LC is though, but no helpful information.

@vickijohnson9367 6 ай бұрын

Look at all the comments and reply’s. Mine are in here. I’ve had significant improvement through addressing every function impacted and reset by SARS. I describe what I’m doing and my process for dealing with all my PASC symptoms. Improving greatly by re-regulating dis-regulated, disrupted systems. A really good younger Endocrinologist who will address valid squalae symptoms. Diagnosis Code in U.S. is SQUALAE.

@wlfpac5607 Жыл бұрын

I think doctors should have an objective opinion about specific individuals in their healthcare. And when the bought and paid for CDC and NIH she'll for Pfizer and moderna - and maybe doctor should look at the objective data and not blindly follow the paid for establishment

@vickyj7834 Жыл бұрын

What will treat me

@mrfunkyman6860 9 ай бұрын

I wish my GP would watch this.

@narrativequestion 5 ай бұрын

your gp is a mug like you, no worries

@MejufferG Ай бұрын

I went to the doc which i never did. I was crying out of nowhere. I was so tired. Scared. Something was so wrong. I forgot names was scared outside. Didn t know where i was. Light and noises hurted me. I kept working till i could not. It was long covid he said. And it feels like a relieve. No excuse and feeling guilty for dismisisng dates with friends and having no strentght. Taking my rest. Sleep as long as i want. It is healing. I am broken. And it is ok. ...

@rbdesigner725 10 ай бұрын

Symptoms are not vague. THey run very similarly through all the long haulers I know.

@shaneschommer1074 4 ай бұрын

They are vague in a sense. The better term would be non specific. Evidence shows covid hides in the body and causes systemic damage. It's hard to pinpoint what is covid and what isn't when every system in the body is being affected. But you are right, there are symptoms that are more prevalent than others.

@rbdesigner725 4 ай бұрын

@@shaneschommer1074 It’s not hard and it is very specific. It’s a cluster of specific symptoms and damage.

@shaneschommer1074 4 ай бұрын

@rbdesigner725 whatever cluster and specific symptoms you think, may be true but in reality it is even more than that. It's not just fatigue. It affects the skin, hormones, organs, nerves, stomach. Not every long hauler will present the same way. But you're right many do. Doctors should be better at piecing the puzzle together.

@lipsticknlifewithmichelle8541 7 ай бұрын

I know someone who had it 3 times since 2019 & still no recovery

@carlotareyes Жыл бұрын

I developed RA 3 months after having COVID (previously vaccinated and boostered). No one that I know of in my family has ever had a history of RA.

@rosalbagarcia419 Жыл бұрын

I understand you I got covid last decemberber and after 2 months I developed RA too I feel sad

@stephangauthier911 Жыл бұрын

RA is a form of auto-immunity

@ex8280 10 ай бұрын

what is RA?

@carlotareyes 10 ай бұрын

@@ex8280 Rheumatoid Arthritis - Autoimmune disease.

@User98681 10 ай бұрын

@Tinyteacher1111 3 ай бұрын

Vaccines made my adult son worse, and now he’s had Lyme and long covid for way over 3 years with severe neurological problems, seizures, severe headaches and pressure, neuropathy, and autoimmune diseases. It’s worse than I can describe. No one will give him pain relief, and he’s trying to get ketamine treatments, but he keeps getting too ill to get to the doctor. What a shame.

@rohinihyde4766 9 ай бұрын

Is long covid due to the untested vaccinations or due to the virus as most people have had both. The vax does not stop infection like it was supposed to so it is certainly not effective may not be safe either.

@safeeffective385 8 ай бұрын

🤤

@djkurtstudio 5 ай бұрын

My life has been a nightmare since I had the jab with neurological problems developing a month after. 36 at the time, not exactly old and perfectly healthy, not a thing wrong with me at all, ever and it's completely ruined my life, I have a permanent tremor, mostly in my face and a list of other problems, unbearable tinnitus to name a couple (that's not even the half of it). I literally have the same symptoms listed off as long covid, which funnily enough, I started getting before I got covid but I had ther jab. I did get covid nearly 4 months after the jab but these problems had already started. My guess is everyone got the jab and had covid who has these problems and it's being palmed off as long covid to protect powerful peoples interests.

@rohinihyde4766 5 ай бұрын

@djkurtstudio Totally agree with you. I was a very fit 68yr old until I had my 1st covid shot over 2 yrs ago. Lost my ability to walk a few weeks after the jab and remain with severe balance problems and a semi paralysed right leg. Never had a covid infection so far.

@robertbernard651 5 ай бұрын

Long covid is worse than the actual virus, but I believe my mimic parkinson's is a vagus nerve issue, which ultrasound directly to the neck vagus nerves helps immensely

@joealitz4157 5 ай бұрын

I have the same style symptoms of Parkinson's. It started last year a week after my covid infection. My neck is constantly stiff thats why I know its the vagus nerve. Im 28. hopefully ill get my life back soon

@robertbernard651 4 ай бұрын

@@joealitz4157 Joe, look into an ultrasound machine, the small portable ones are not to expensive, you run your fingers from below the ear on the neck. The vagus nerve parallels the corrated artery on both sides, there is two more vagus nerves in the back of the neck, if it's inflamed you will notice slight pain with moderate pressure, I'm experiencing immediate relief of symptoms from the ultrasound for 5 to 6 minutes on each side, on 3/4 power, constant signal

@lorenecorn1390 Жыл бұрын

My mom had so much brain fog she couldn't do anything and So fatigue. SO WE PUT HER ON A DEMENTIA MED AND IT HAS ACTUALLY HELPED. Now she doesn't have DEMENTIA but it's actually working

@notyours1612 Жыл бұрын

What Med? Name.. Thank you!

@User98681 Жыл бұрын

@notyours1612 Жыл бұрын

@@User98681 Thank You!

@notyours1612 Жыл бұрын

@@User98681 Thank You!

@tallykaczynski3257 6 ай бұрын

2 years and 10 months for me. Horrible, bad thing. Ruined any quality of life for me.

@madelinesabatello1845 Жыл бұрын

You sound exactly like me, and I already had POTS so I'm a mess

@Mrs.Crawford2014 Ай бұрын

My husband and I have long covid for 2 1/2 years, I have 95% of symptoms listed by CDC. ( I was in the hospital for 31 days and then transferred to an acute rehab for 60 days.) But my husband was in the hospital for three weeks, and a regular rehab for five weeks,) He has fatigue and neurological issues. He isn't the same person that he used to be. I am so tired of the doctors telling us that they don't know much about Covid because it's a new disease. I can go on KZbin and see all the studies, why can't they? I just want my life back.

@ellenbruckermarshall4179 10 ай бұрын

What a boon to the medical practitioners who test and test and test. Then send us home to wait for the bills. Do not say this is psychosomatic. It’s way too much like Long Lyme & Co-infections. Bioweapons are a drag on the full economy for generations.

@vickijohnson9367 7 ай бұрын

At least you know the truth of the situation. (Your last sentence) It is what all of the last 50 years of chronic “new” conditions have in common. Understand the creation, then change the damage, by changing the test results, through eastern medicines natural components, you will know what is helping (like Berberine, Quercitin, EGCG from green tea, type 1 & 2 histamines taken together, etc). do research on optimizing function of disrupted function. Understand how the patented agents function through your own research of them, your pathways disrupted

@tamb7587 2 ай бұрын

The interviewer here reminds me of the jerk doctors my daughter has seen who have told her her symptoms were just her having panic attacks or some other useless crap. My 27 year old daughter after having COVID had an attack where out of nowhere she had a group of strange symptoms hit her .. From the onset many more symptoms followed . Loads of tests have been done but nothing show up yet my healthy, happy working daughter became debilitated.. For months she could not work , drive or anything that she did prior to this attack that came on the tail end of having COVID.. We finally found a rheumatologist who was willing to treat her with autoimmune meds which has helped her tremendously but NOT cured her. She has been able to get back to work , a work from home job and now drives again etc… We need to go to one of these clinics..

@adamcrosby4031 Жыл бұрын

Do the massive changes in our lives eg. Lockdown, social isolation, have any effect?

@stayathomegeek Жыл бұрын

In some cases, those circumstances you mentioned certainly don't help. They are awful all by themselves. But these symptoms of Long Covid are caused directly by the virus, and they're very severe

@co9familyvtrt.v605 Жыл бұрын

I think I have a long covid I am waiting for my blood works from allergy and asthma specialist 😢

@stevemarshall3986 5 ай бұрын

Reading some of the comments i see that depression is a common factor which could also lead to symptoms like fatigue.

@jewelleryaddict 4 ай бұрын

This is a silent horrible disease. I have had diagnosis of chronic fatigue syndrome 30 years with similar symptoms. It's a soul sucking life sucking disease. Leaving patients with unpredictable symptoms that are hard to manage. Causes loss of jobs and friends and sometimes family. Not to mention life choices and possible accomplishments that put hope of getting relief out of reach, causing further depression and who wouldn't be depressed with no help from anyone only disbelief. Please help these people more then you have helped us with CFS we have been forgotten thrown under the bus.

@Leash23 17 күн бұрын

My mri I says - idiopathic intracranial hypertension but it has to be from Covid. Had it about 3 years ago no jab. That’s when the pain started. Lost my smell. Was in hospital right guy after I had Covid be cause of crazy headaches. Four days in icu.

@cherieelliot8938 7 ай бұрын

What do you know about Covid Psycosis?

@bobthebuilder9553 10 ай бұрын

If anything the jab may be causing or exacerbating autoimmune responses. That's the jab and not just a bout of corona virus.

@brobinson8614 9 ай бұрын

Depressed people don't have strong hopes dreams aspirations and desires. Compared to Long Covid and ME/CFS who have lots of hope desires aspirations, dreams, in fact we have more than healthy people as they are stuck in a 9 to 5 rut.

@24321619 4 ай бұрын

I wonder if people have heard of post polio fatigue that can start to happen 20-30 years after the start of the infection. Long Covid might do the same thing.

@samkitty5894 Ай бұрын

I never got jabbed. I did have a mild case of covid. The only symptoms I had was a slight loss of smell and taste. Year later I developed severe peripheral neuropathy no doctor can explain. Foot drop, loss of knee jerk reflex...swelling and pain in feet and lower legs. Loss of balance... If anyone has an idea how to help, let me know.

@aeonparker-white9306 5 ай бұрын

I have met a number of people who were diagnosed with long covid, all had been vaccinated and those with the worst symptoms had actually had covid prior to the vaccination. How many here were and still are unvaccinated but have been diagnosed with long covid?

@citizenlocal5436 4 ай бұрын

no one will answer that....i suspect 95% lol

@Portia620 Жыл бұрын

My understanding is a friend of ours was diagnosed by a neurologist of the conditions. He was diabetic and he only had a mild condition of Covid and then he was diagnosed with something similar to MS and now he does infusion therapy, but they did diagnose him so that’s probably where you can tell whether it’s psychosomatic or not it’s because you’ll actually have a diagnosis I would assume because it seems like it’s triggering different types of autoimmune diseases that I wonder if it’s just in our own DNA and somehow this virus is triggering it possibly I don’t know interesting because my doctor said that I have it and I’m like no I just got tingling in my feet, and then I have a lot of other weird, not a lot, but a few other weird things happen

@THE_END_OF_THE_WORLD Жыл бұрын

same here ! I got covid in 2020 and not hospitalized during that moment I experienced many symptoms like loss of smell and then I started to notice ringing in my ears, acid reflux and bloating, tingling in my feet, dizziness, blurry vision and eye floaters, heart palpitations and I feel exhausted and I can't do exercise because my heart rate goes very high, until now I didn't recover and just my sense of smell recovered

@User98681 Жыл бұрын

@stephangauthier911 Жыл бұрын

Lots of ppl suffer to a degree and have symptoms without even knowing it. I can easily spot them.

@JuliePangowish Ай бұрын

I started having allergies, headaches, diahrea,vertigo,depressed

@rachaelt3294 11 ай бұрын

I still can't smell or taste over 2.5 years of catching covid for the first time. I had a mild sickness. I have brain fog as well and push through my fatigue. I think my daughter has problems from catching covid last year. Her legs are numb and painful and she has constance dizziness. We are not jabbed.

@User98681 10 ай бұрын

@AlexMentalGrowth 9 ай бұрын

same symptoms, no taste/smell for 3 years :/

@narrativequestion 5 ай бұрын

youve been quangoed

@hermanfreadrich3015 3 күн бұрын

AND IT WAS SUPPOSED TO BE SAFE AND EFFECTIVE 🧐🧐🧐

@ShavinMcCrotch 7 ай бұрын

My aunt disregarded all warnings and got covid 2X. She wound up with severe vertigo for a week, then early dementia symptoms, brain fog, confusion, and seizures. She has lost her driver’s license, and she still says the covid "hype" was ridiculous. "It was just a flu." I think we should be studying the effects of Trump on Boomer brains. 🤨

@lranieri1 5 ай бұрын

Agreed! And they would rather suffer and die than admit they are wrong!

@narrativequestion 5 ай бұрын

Aliens have landed ,Please give generously to ukraine peace fund thankyou please.

@dane9093 4 ай бұрын

it was actually leak of Fauxi’s loss of function research. I identify as a long covid Fauxi research beagle

@brendacurrie358 Жыл бұрын

I have long covid since 3/2020 :(

@Rahimitheking 11 ай бұрын

R u vaccinated or unvax??

@User98681 10 ай бұрын

@asustransformer28 10 ай бұрын

I've had nothing but constant twitching since covid all over my body my abdominal area is bad

@FinanceFan_ 8 ай бұрын

Have you seen any doctors? What did they say? Any improvement? I’m in the same boat.

@asustransformer28 8 ай бұрын

@@FinanceFan_ waiting on mnd test but looking at what's going on I reckon it's caused me to get benign fasciculation syndrome. I'm sure it's not mnd after this long

@FinanceFan_ 8 ай бұрын

@@asustransformer28 there is a forum on Reddit, BFS, dedicated to this. I can’t believe this is happening to so many people. Most people on the chat have had it start since April. I had Covid in May. Could be a new strain?

@narrativequestion 5 ай бұрын

did this happen before you took the v? my bet is that the twitching happened after the v.

@themadtripper 5 ай бұрын

The vaccine caused my immune system to go haywire and now I have chronic EBV and have had shingles. I’m on antivirals now but the whole experience has been pretty awful; the depression during a “flare up” is a nightmare.

@misovuletic 2 ай бұрын

There is only antiviral protocol my feiend. No classic medicinal cures. It is impossible to lower down EBV load. I have the same issues....Tottaly understand you...

@KBHeal 4 ай бұрын

Wow - so you don't do many important tests that would show results much clearer???? Surely this is the problem why we are losing trust in the system 😢😢😢