New Beginnings- My M.E/CFS Story

Hello & Welcome to my channel! trying my best to explain what M.E (Myalgic Encephalomyelitis) and CFS (Chronic Fatigue Syndrome) is and a bit about my story with this illness. It's also my (sort of) official introduction to KZbin,
I hope this helps/educates at least one person :)

[@zomerkoningin9354]

Thank you for your post. I am a 54 dutch woman. I have suffered from me/cvs for more than 20 years. There a so man things I haven't been able to do due to this illness. And most people do not understand what I am going through. .. Good to know we are not alone! !

[@SusanBrooklyn]

I was diagnosed with CFS and FMS for decades, when in reality what I really have going on is Adrenal Fatigue. Please don't suffer needlessly like I did for so many years. Please look up Heath Revovery. He does a lot of great videos on how to get your heal back.

[@kirstenv1279]

Thank you so much for putting this on KZbin! I have cfs too and fibro and I can relate to everything you said. I also dropped out of college which was really hard for me. There is so much more that comes with Me. People don't understand that talking for a long time is soo tiring. And the fact that it's an invisible illness makes people think you're faking it. I am glad you're sharing your story. It makes me feel less alone ❤️ I wish there was a cure for this. Thank you for raising awareness! You did an amazing job, don't be nervous about it! 💖✨😘

[@ChronicallyHannah]

Thank you so much for commenting, it means a lot! I'm sorry to hear that you're suffering from it as well, such a horrible illness! Completely agree with you! Thank you 💜💜

[@christianp.a.ferraro9272]

+HannahLouise I understand how you feel totally... especially with The Lightsenitivity and Brain Fog lightheadness and Dizziness and Isolation..... The Key to survival is know you are in Control and Find your Comfort Zone Also know that God is on Your side be a warrior you not alone I'm praying for you God Bless!!

[@MeghanRobyn]

I had glandular fever 3 years ago and ever since then I'm convinced I have M.E. Sadly, my doctors are STILL saying I'm not sleeping enough/not exercising enough etc. But I literally tick every box on the list for M.E! I'm so glad I found this video because I'm glad to see someone else with the same symptoms I do so I feel a little less alone in the universe! Hope you're doing well today and I'm sorry you're suffering xxx

[@ChronicallyHannah]

Hi Meghan, thanks for commenting! I'm so sorry to hear that- hopefully your doctors will soon pick up on your symptoms and see that they are the same as people suffering from M.E . I'm glad my video was helpful to you, I know what it feels like to think that you're alone in this and how frustrating it must be for you that you aren't being diagnosed with the illness you think/know you have! I'd be more than happy to answer any other questions you may have or just want to chat about it :) x x x

[@amandawilliams5050]

Totally understand you it's a constant battle, robs you of so much and people don't get it I've had it for over 20years but you learn who your true friends are, just keep smiling take a day at a time focus on your achievements xx

[@annabel9736]

Thank u for this video I am sixteen and was diagnosed with cfs at the start of the year I've missed practically missed a year of school nearly I hope u recover soon stay positive x

[@Jacki79]

I'm so sorry for what you're going thru, my heart goes out to you, I'm struggling with a illness that's also invisible and believe it to be chronic stress and fatigue along with my hypoglycemia. it really helps me to watch videos of people who are going thru similar things, even tho we aren't going thru the same thing, your video was still a comfort to me, I also feel like the world is going on with their lives when I'm stuck inside and in bed most the day, but I am clinging to Jesus and know he's going to get me thru this. I am praying for you to have a fast recovery, Jesus cares so much for all you're going thru

[@squibitbessy7382]

thank you for posting such an honest video. I've had CFS for 11 years now it started when I was 14 I also had to drop out of school, the life I wanted was taken away by this stupid disease. seeing your vid just helped to remind me I'm not alone going through this.

[@ChronicallyHannah]

Beth Manito 11 years? Wow that must be really tough, sorry to hear that! I'm glad my video helped, it's nice knowing there's other people who are in the exact same position as you. Thanks for commenting! :) x x

[@iaokka]

Thank you for sharing your story and being so open about it. I'm also suffering from cfs and i would really enjoy seeing more videos from you! Greetings and Blessings from Germany!

[@ChronicallyHannah]

Thank you so much, I appreciate you commenting! xx

[@sarahreedy9558]

Loved this video, such a honest and accurate explanation of it- I have most of the things you mentioned! Thank you for raising awareness! Xx

[@ChronicallyHannah]

Sarah Reedy Aw thank you 😊 Sorry to hear you're suffering from M.E/CFS too. Thanks for commenting! X x

[@lizlucy92]

Hi Hannah, I have found your video through posting my own m.e video! I'm so sorry for your suffering and i really wish you all the best for the future ( and keep the videos up they are fab!:) x

[@ChronicallyHannah]

Thanks so much for commenting, it means a lot! I'll definitely check out your video ☺️ x

[@SamsIndieDrumCovers]

Thanks Hannah :) You have helped a person even if it was only me. I'm an ME sufferer in the UK, and I'm only 19 I guess similar age to you. It's really debilitating being so young seeing your friends doing stuff and we just have to take it slow. But you've done the right thing because there are 250,000 of us in the UK so there are so many people to talk to and I want to thank you for making this video and spreading the word. I also want to spread the word that there's a clinical trial of a drug called Rituximab going on in the UK at the moment and the drug has a pretty high success rate apparently. You can't get it get but you can donate to the trial on Justgiving if you can Lets stay in touch!

[@kirstenv1279]

I completely agree with you. I'm 19 years old too and it's so hard to see your friends going to uni and seeing all their pics on fb about all the fun events they attended too. I'm happy for them but it's hard to realise that I can't and I'm housebound. I'm going to physio and taking meds but so far nothing seems to help. I wish people of our age would be more understanding cause I feel like an alien sometimes 👽 also, when people are asking me when are you going to get better or you don't look sick, it frustrates me so much cause I would love to be healthy again! I hope more young people start being open about their illness and I hope a lot of them see this video because they get isolated. Wishing you the best! 💜

[@ChronicallyHannah]

Hi Sam, thanks so much for commenting! Thank you ☺️Yeah I'm 18, can 100% relate to that as well! Wow 250,000? That's one thing I did not know, thanks for sharing :)

[@SamsIndieDrumCovers]

+Fibro Fairy I feel you! It is really difficult but it's comforting to know that there are quite a lot of us in the same position with a great support network, at least, online! I couldn't of written what you said any better... Everything you said is what I'm experiencing. Except for the uni stuff - I don't mind that some of my friends are at uni because I've had a job as a web developer which I'm lucky to be able to do because I can do it in bed! It's a good job if you have the energy to learn it.. helps fund any treatment for the illness! What medication are you taking?

[@SamsIndieDrumCovers]

+HannahLouise No problem :) Yeah it's a lot of people! I know one day we'll be good as new, but for now we've all got each other and I guess that support is what counts... Currently writing this all brain fogged which ain't fuuuun! What are you doing to help your M.E atm? x

[@ChronicallyHannah]

+Sam yeah same ahaha, brainfog is the worst! Currently, I I have appointments with a psychologist and a physiotherapist at an M.E clinic and I'm really weak at the moment so have to do basic exercises. Also doing graded exercise therapy which isn't going so great... What about you? X

[@kathystoner5239]

I just saw your video and relate so so much to everything you have said. Thanks for sharing. I have been housebound with ME for 2 years.

[@lyndsaysrebornnurseryoffib4241]

Thank you for sharing your story! I have Fibromyalgia & CFS for 9 years now. Just subscribed!

[@ChronicallyHannah]

Daniella Olson Fibromyalgia Warrior Hi Daniella, thanks for commenting! I'm so sorry to hear you've been suffering from M.E and fibromyalgia for so long, I hope you're currently doing okay :) xx

[@lyndsaysrebornnurseryoffib4241]

Your welcome! I could be better but I am ok I have mine days where I have no flare ups!

[@lisajones5996]

We are so similar thanks for sharing! X

[@johnmarcus93]

Hello A year ago, after going through several doctors, I was diagnosed with CFS I am currently following the latest research on this disease Such as phase III with the immunosuppressant rituximab in norway And the dr lan lipkin in usa I am from peru, How did the chronic fatigue syndrome begin in your case?

[@kairagaiters1344]

I have almost all of these symptoms. I have a few questions.

[@Thundersnowy]

This highlights how ME wastes good lives I hope you get better. But if you continue with ME as I have for. . 19 years, I've still been able to have many joys in life. I just had every plan for my life stolen from me m my daughter got it too a couple years ago. That is unbearable to watch. I know what she is going through. I know what you're going through too. Nobody knows the reason for our suffering, we are still alone.

[@keira763]

I got the news that I might have m.e that's why I am watching other vids about people lives with it and I don't like what is happening and yours is much worse so I feel for you an I hope soon you would be better