new dr appt anxiety, more gj tube issues, fall fun! | gastroparesis days in my life

[@DynamicallyDisabled]

I totally relate to your anxiety. One thing that helps me is remembering that preventative care is so important, and at least establishing a relationship with a physical medicine doctor is helpful for in the future if your joint pain gets worse and you do need more help managing it. It's so much easier to go over your medical history and establish that relationship when you're feeling good than compared to when you're in pain.

[@bekahdans4650]

Nothing is worse than seeing a new doctor, I dread it every time they send me to a specialist. Do not let anyone, including yourself, invalidate anything that causes you pain or effects your daily life, even if it isn't constant. It's part of your reality and every professional should treat that with respect and compassion. I'm so thankful you had a positive experience, I know that doesn't always happen. I'm so sorry you are having so much pain with your tube. I had many ulcers with my tube and it is excruciating. So proud of how you advocated for yourself and your need for peace of mind and a solution. That can be really difficult in a medical setting but it sounds like you handled it like a champ! I know that by the time we are seeing this you already had your procedure. I hope you are recovering well and that they were able to find answers and provide a solution to decrease your pain. Keep your chin up and take it easy! Btw I am doing the genetic testing for EDS and that is in part of you sharing your journey. Thank you for including us in your story, it helps more than you know. Have a good weekend!

[@KennaKrueger]

Thank you so so much for the support! Feeding tubes can definitely be a pain sometimes and I’m so sorry you also had to deal with complications!

[@KRYSAXXPOSED]

Don't play girl go to er I went septic same issue with abcess

[@KennaKrueger]

I ended up going later and I’m okay now!

[@KRYSAXXPOSED]

@@KennaKrueger k I was worried glad ur ok

[@christinanicole6328]

Girl… are you me? My GI docs f****d my head up. I was so sick, and they made me feel like I was a hypochondriac. I always feel like I’m being dramatic when I’m actually sick, even after a doc has told me I’m sick. A lot of doctors assume every pt is making up their symptoms, and these docs are unfortunately never held accountable. I’m actually hoping the new generation of docs/PAs/Nurses/NPs/etc are more compassionate and aware. I’m a dental hygienist, and I see young people coming out of medical school a lot because I work near medical colleges, and they seem far more kind and open minded. I keep putting off going to a geneticist because I feel like I’m being dramatic even though my neurologist told me she supports me going. Glad we can all be there for each other!

[@haileyhudson4157]

Your doctor was just joining in the fall fun 👻👻👻👻👻👻

[@marisaspencer4565]

It’s nice and reassuring to know that other people have the same worries as you before seeing a doctor, I really appreciate you sharing Ik it can be extremely hard sharing what your feeling but it does truly make a difference to people going through similar problems,Thank you💚😁

[@KennaKrueger]

You are so kind thank you so much!

[@marisaspencer4565]

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[@marisaspencer4565]

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[@crabbyabby]

im glad your doctors appointment went so well! those pictures of you were adorable and i love the fall vibes. i really hope your tube pain gets sorted out, that does not sound fun :(

[@KennaKrueger]

Thank you so so much!

[@goombakisses7398]

OMG I want to say I am so sorry that you are going through so much. I hope it all worked out well and you are better. I know it helps me so much to be able to relate to someone else. I am so glad you open up and share. By the time you read this it will all be over but I want to send you healing vibes and a huge hug! I loved that place you all went. SO pretty. I want to look it up. The flowers were amazing. And wow the pics of you...dang girl! I suffer from appointment anxiety too. I just wanna go to Orlando and be there freaking out with ya. Hah! Hope you found the answers and are better. Take care sweetie.

[@KennaKrueger]

Thank you so so much! And my feeding tube issues are slowly improving :)

[@marzettik]

Medical anxiety is a thing for sure. And meeting new professionals is always rough too. But doctors can be mega pricks. Like I had an appointment last week with my gastroenterologist and I told him that I had the support of my primary care and my registered dietitian to explore the option of a feeding tube. The words he replied to me with blew my mind, he said “you don’t have the RIGHT kind of gastroparesis to get a tube”. I know gastroparesis patients fall into one of two places, under weight or overweight. He said because I was overweight that no doctor would consider giving me one. But I been monitored in the hospital for oral intake of food and I don’t get enough. It’s so frustrating. He also made me feel like not responding well to the typical drugs was my fault, he was like “your just one of those patients”. Sorry for the rant but being told “you can’t be helped” and “your out of options” just consumes the space in your brain.

[@loislaine2762]

I understand feeling nervous before seeing a new doctor. I think we feel like that because of dismissive doctors that told us we had anxiety instead of listening to us. However, I love my physical med doctor. He helps me so much! I hope your tube/stoma issues get fixed quickly.

[@KennaKrueger]

Yes exactly! And thank you!

[@andreal4364]

I am so glad you posted this! I have the same inner dialogue with feeling like a fraud even though I am chronically ill and STRUGGLING to have quality of life at all. I have hEDS too, I will look into this, sounds very interesting and helpful. And also, girll don’t wait!! My joint issues took a turn for the worst so fast and out of nowhere, is better to prevent than regret. ✨Always expecting the worst so you’re not disappointed if it goes bad✨ is so relatable😭😓 that’s what medical trauma does to you

[@julietannOsfan1972]

I’m really sorry that you’ve been going through so much pain. I hope it’s improving for you now. x Thank you for being so real in this video. Sometimes because of fb etc all I ever see are messages like stay strong & you’ve got this etc. Why should anyone feel like that they have to be strong when they’re in pain? This is the one reason why I find it hard to open up & trust people. I hope your endoscopy went ok. When you have one do you go to sleep? Here in the UK on the NHS they often don’t give enough sedation, so you are aware of everything. I hate endoscopies. The Christmas ads are really getting to me at the moment. All that lovely food & all I can manage are pigs in blankets or gravy. I’m really sorry that I’m being so negative but having GP is so hard at times. I’d love to feel hungry again.

[@KennaKrueger]

Thank you so much and the pain is improving and the endoscopy went well! They sedate us enough where we don’t remember thank goodness I can’t imagine being awake for that. And you don’t have to apologize for being negative! The situation you are in is not ideal at all and it’s hard to stay positive. Just go easy on yourself and take things one step at a time!

[@Junes.dreams.uk_]

Girl how fortunate that your pain isn’t too bad, when you think EDS has been named one of the most painful illnesses and loads of us are on very strong meds and unable to function. But that doesn’t make you a fraud ! It just makes you a lucky girl for now and doing physical therapy now will KEEP you filling “ok” for a while. Well done for overcoming the anxiety 🌸. Hope the endoscopy went well, I don’t get why they are not drowning culture out of what the tube is oozing… hope you don’t have an infection.

[@KennaKrueger]

Yes I am so thankful for that and thank you so so much! They didn’t draw any cultures but they drained the abscess and I was started on antibiotics!

[@Junes.dreams.uk_]

@@KennaKrueger thank goodness for that! I am glad they are finally doing something, I was started on antibiotics a week ago for a J-tube infection+ abscess so all my sympathy and compassion goes to you. Hope it’s not draining you too much (ab can do that..,) 🌸🌸🌸

[@samiyahleanne]

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