Noah Needs Surgery

[@MelCarterr]

Breathe Stephanie. You are doing great. Please take care of yourself, please. You’re the most important. I always tell myself if I’m not good my kiddo isn’t good. Kinda like a if a plane was crashing and there’s only one oxygen mask who would you put it on you, or your kiddo. I swear I’m convinced you have super powers. I truly admire your strength ❤️

[@Taylorevaaa]

I have had low muscle tone and ADHD my whole life and super bad joints, I was diagnosed with EDS as a teen (I think you said Noah doesn’t have it, but there is a surprising correlation with eds and autism in my research) but now at 28 I’m 98% sure I’m also autistic. I just have to say that all the surgeries I’ve had have helped me gain back movement SO much. When I had my hip done I felt like a new person. I hope Noah feels that way when he gets his surgery.

[@jennifergordon4495]

My daughter has autism and several signs of EDS. But they won't say for sure that she has it. Her fingers can literally bend back and touch the top of her hand.its crazy

[@smallbeginning2]

Yeah I have ADHD and EDS. if you have hEDS it won't come up on blood tests.

[@Disneymom1218]

Autism is fairly common in people with Ehlers-Danlos Syndrome. I have EDS and have passed it on to all 3 of my autistic children. I tried to get an autism diagnosis for myself but my psychiatrist stated that diagnosis is only for treatment and for those under 18. So I am self diagnosed. My knees sublux all of the time and I had to have a total hip replacement last year due to severe osteoarthritis that started when I was 15 and I also had to have open heart surgery at the age of 15. Look into Ehlers-Danlos, Stephanie!!

[@elfstarsaka]

I personally find it helpful when you have a lot going on and choose to share it because my family (multiple autistic adults + two autistic kids with other medical stuff) has a lot going on too and it helps me feel like someone out there gets it

[@lilyfaith6932]

Don’t feel pressured to share anything you don’t want to, but also, never feel ashamed for being real. We knew all along there would be challenges but it’s real life and your doing everything you possibly can as a mother to help them which is truly beautiful. So who cares if the videos aren’t 100% positive, it’s your dedication to your kids that’s so uplifting to see ❤️

[@miriamwalker2244]

Stephanie I am so sorry but you are doing a great job. Noah and your children are so blessed to have you. As much as is it’s hard our autistic kids need us to be strong ! ❤️❤️we love you

[@Iamfrowgy]

You sitting in your car, holding back tears girl - so raw, real and necessary. Necessary for me to hear that I'm not alone during the uglier times. I was recently diagnosed autistic and have at least one autistic child. Thank you for articulating my inner thoughts so well. More importantly, I hope that vulnerable expression of your thoughts and feelings was necessary for your processing. Xoxo

[@stephanymiller7252]

I’m sorry you’re going through such a stressful time. You are a great mom and you got this! I also love hearing from Noah, and can’t wait for his room tour!! He always brings a smile to my face!

[@shaunalea823]

Oh darlin I wanna give you a hug. You are the best mama for your children.

[@kellimurphy755]

There are just not enough words in my mind right now to be able to tell you, what you deserve to hear. I am just sending so many hugs, prayers, positivity and love to you.

[@isagc8129]

Don’t worry about only showing positive things about autism, beauty is mix of pain and happiness. We will be here to listen and if it helps to let it out of your chest and it keeps you being the amazing mom that you are, do it.

[@sarahpreston1478]

Thank you for doing these vlogs. It helps so much and makes people in similar situations feel less isolated. My daughter has chromo 15 disorder, autism, low tone etc and is 25 years old now and I react exactly the same as you do. I have tried to do different things to stop the overwhelmingness but nothing helps, you have to go through the panic, anxiety, sad, giving up, can't cope, overwhelming bit to pull through and get going again. It is so helpful to see other mums in this situation and know we are all doing ok, we wobble but we get back up. xx

[@annaangrisano348]

Stay strong stephanie you can do anything you put your mind to

[@miniwinchesters]

You are going to be okay. You are doing great. Stay strong. Big big hug.

[@annmariefrank8803]

BREATHE......PRAY..........AND LOVE coming to u

[@jennyann5405]

Thank you for sharing. Sorry that so much is happening and causes a lot of stress. You are strong and do so much for your family. :) Thank you for being on KZbin. You help a lot of people.

[@kezrave2982]

I just want to reach in and give you a massive hug and let you cry and cry. It is good to let yourself feel this grief. I did laugh with you about sedating Noah for the car ride...had many of those thoughts myself! It is overwhelming and remember that you can only take care of others when you take care of yourself first. Thanks so much for sharing your reality ❤️❤️

[@michellepelkey51]

Take a breather- your a great momma!!! Kids are stressful. Your doing awesome with all that’s on your plate!🥰

[@dianekarper8196]

You're very brave , I'm sorry your family is going through this.

[@Brooke00755]

Awe just remember you are so strong. You’re a good mom and Noah will be okay. Hang in there Steph. We’re here for you.

[@LizzS17]

Noah's voice has changed since the last time he was on video. It's deeper. He's growing up!

[@jeanmorgan5410]

Stephanie we are here for you hang in there. You are doing great. You are a great parent you are an inspiration to me.

[@healingwithniki5049]

We love you and your family Ms. Stephanie. I'm so glad to meet you yesterday!!! I'm sending positive vibes and love to you and yours Love the Fishers

[@samiog5695]

Autism is not always beautiful and we shouldn’t hide the hard times it’s VERY hard a lot of people don’t get it I’m so sorry noah is going through this praying for yall

[@channelmar15]

HOW DARE YOU say that. Autism is a GIFT. They don’t need a cure, they need ACCEPTANCE.

[@dannyphantommm]

​@@channelmar15 they didn't say anything wrong. Autism can be beautiful but it can also be tiring and scary. No one said anything about a cure, they are just saying it's not all sunshine and daisies

[@channelmar15]

@@dannyphantommm I was being facetious. Many in the “neurodiversity” crowd will shun you if you say that autism isn’t a gift or “the next step in evolution.”

[@dannyphantommm]

@@channelmar15 ohhh okay haha i thought you were being genuine! Now that you explained it tho that's funny

[@erinadams6749]

I’m so sorry things are tough right now. You definitely put positive spins on Autism and life in general, which is amazing! But…you are also human and moments of crying are good and necessary. Hang in there Landing Crew! You have a beautiful family and prayers for all of you! ❤️

[@Brooke00755]

Don’t feel bad about sharing the realities( if you’re comfortable). It’s how life is for you.I’m sure someone will relate. It’s like one thing after another with many of our kids. I totally understand.

[@elainethorne4200]

Just want give you big hug you very strong mum keep going you do it xxx

[@nunyas]

Life is an ocean with waves of every size and kind. You ride them as you can and enjoy the calmness when it also comes. Your strength is deep and unseen. You will get through it all. Stay in the moment.

[@Abwavey]

This too shall pass!! I hope everything works out and that everyone can live happy and comfortably

[@sarakeith5480]

Thank you for all of your updates!! I can see you are having a tough time!! I send you love, hugs and prayers!!

[@emilyt.2317]

You’re handling everything really well. Is there a Child Life Specialist at the hospital that could meet with Noah and walk him through the MRI process too help ease his anxiety a little.

[@kristinemcmanus3452]

All the hugs and good vibes to your family

[@callumortiz6723]

Our love and good vibes are being sent to you. We are sending positive energy your way.

[@sydneilove4698]

The thing I love about your videos is watching the kids grow I’ve been watching for like 5yrs and Noah is so big now it’s adorable 🥰

[@laurennicole8822]

I’m only 1/2 way through & I had to pause it because Steph, uh, it’s so much stress & I wish I could just run to you & hug you! You’ve always blown me away with how amazing of a mama you are & I know you’ll get through all of this too, but please please please take care of you & take whatever time you can carve out for yourself, to love on you because you need that too. Sending all my love to you Steph! ❤️

[@megj7637]

You’re doing a great job mama! Hang in there!

[@carriejones1956]

Steph, I have followed you and your family across many platforms and I have to say you have softened my witchy heart and I am forever grateful for you. I guess what I'm saying is you make a difference in this world.

[@OurLANDingCrew8]

Aww thank you so much Carrie :)

[@carriejones1956]

@@OurLANDingCrew8 if you ever need a friend in Southern California I got you

[@brittgiroux15]

Noah is so funny. Best wishes to you and your family ❤

[@mistyk.8084]

Praying for you all Stephanie

[@prettyfar33]

I'm sorry!!! Thinking of you and how troubled your life is...but how wonderful it is too!!! May you be able to just relax!!! I see it for you in your near future!!!

[@amandalovesscents627]

You got this honey one minute at a time ❤️all the good vibes prayers all the things for all of y’all

[@josephcraig1372]

Noah is such a sweet caring soul. I wish him and y'all nothing but the best! Y'all are so strong and I miss working with Noah. Please tell him I said hello 😁

[@jennybiddle-smiley7173]

Sometimes life is hard sometimes there are just too many darn bumps in the road. I am personally very thankful for you sharing the true reality of the up and down feelings. When I started watching you a couple of years ago I had no idea I was going to walking down a similar path with my youngest. He wasn’t even a person yet lol. Watching your videos has been so helpful in understanding what it’s like to raise a kiddo that has extra needs. Learning how to celebrate his differences and learning how to be okay that my kiddo is not where the rest of the kiddos are. You’re an amazing mama and I am so thankful that you are open to sharing. If you need a break from this we all understand. I don’t comment a lot however I am sending all my love and positive thoughts in your direction. Thank you for being you!!

[@teresawright4424]

Sending up some prayers for your family and you as always. You are such a good mom and you do an amazing job with your kiddos and you help all of us who have special needs kids. We know it is not always easy. Love to you!

[@bethanypaxton9982]

It's reassuring to have a mother show raw emotion, tua is real in all of our lives struggling with autism and other disabilities. And it really seems like you have a lot on your plate. This little family here in West Virginia will be praying for you. And yours. My husband works in Illinois. And I have a 4-year-old little girl nonverbal autistic. 6-year-old boy nonverbal autistic. .... The struggle is real but at the same time like you said for your friend they encourages you embrace the gifts there triumphs... I just subscribed to your channel today so I hope to see more of your empowering videos. God bless you.

[@kristen40.20]

I wish i could give you a big hug. ❤ You are a warrior. You have such a heart of gold. You're such a good mom being there for your kids. It's ok to show emotion, not feel strong, and show you're going through a lot. Never apologize. I wish i had a mom like you when i was growing up and even now. I'm on the spectrum and other than the support of my sister in my family i feel so alone. Take care of yourself. Much love and support for you all. ❤

[@mrssunnyface]

It’s a lot Stephanie we are all here to support you

[@PiebirdFilms]

Change is hard! Keep trying to give yourself the slack you would give your kids. Also, many people don't read their comments. It's OK if you dont read them when they are adding to the stress. We are here rooting for you.

[@emmabicheno]

You are so informative and explain things so brilliantly. You are amazing ya know xx

[@ellie_grace_gymnast7720]

I was diagnosed with global low muscle tone at 18 months old and hypotonic cerebral palsy by a neurologist at 3 years old and I am also autistic, and have some hyper mobility but gymnastics has helped me gain muscle

[@juliewest2254]

Just keep swimming! You’re doing amazing.

[@LaurStar25]

Sending you so much love and virtual hugs.

[@simplyshannon9053]

Maybe Noah can Vlog his MRI appointment/journey( not that you have to post it) but maybe if he is excited about vlogging himself (when not to sedated) and then he knows you will vlog him when he is unable it will help with distraction and possibly lift his spirits? I think his interest and sort of passion about vlogging you talk about is amazing and I also love how you lean into it and support him in it. What a great motivational tool for him and possibly as he gets older a way for him to with support be self sufficient in earning An income I bet that would make him feel wonderful inside!

[@amandapitre8757]

I just had surgery to place a G Tube on June 22nd. Next week, my surgeon is switching it to a Mickey Button. I thank God that I have one.

[@nasharityanderson7956]

Stay encouraged Stephanie, you are an AWESOME MAMA 😍

[@fionascheibel977]

Big hugs. I have had MRIs and I was stressed out with doing them. So I feel for Noah and how scary it might be for him. Laying still was a mega challenge for me along with all the other noise etc. A friend's son just had knee surgery and being autistic was definitely an added challenge for him with the operation and recovery. So I hope this whole thing goes better than you fear for Noah.

[@donnabaker2287]

I raised one autistic son. I pray for you. And. I don’t pray for anybody. You are beyond strong, but very few people could understand the overwhelming stress, sadness, and devastation of trying to raise. Just one . If there was anyway I could take away some pain, I would. Sending you love.

[@auftragsigel6134]

I wish you and your family the Best. Please take a break from KZbin if you need it. It's okay. We understand!

[@hollyrichardson6218]

Oh Stephanie :( you have so much on your plate. I am ‘neurotypical’ and really struggle with MRI’s myself! I hope everything goes as well as it can. ❤️

[@dnv1225]

Sending prayers for noah and some fellow momma love to you

[@leezafeyisetan2774]

How are you this strong. I need some of your positivity and energy. May God continue to give you strength and peace ✌️.

[@OurLANDingCrew8]

I'm not strong. I just edit it to look like I am LOL

[@thedrewbear4]

Sounds like he could use Ativan, to help keep him calm for all this, I'm sure they would give that to him.

[@Intothelight94]

I agree, I get mildly sedated for MRIs because I’m claustrophobic. A lot of people have anxiety around them. Hugs to Noah I think they will have something for sure to help him get through. My son needed one very young and they had no choice to sedate because he wouldn’t have stayed still.

[@donnagarwood6495]

You are such an amazing mother!!! Keep staying strong Love you guys!!!💛💙❤

[@francescadominique3943]

praying for you ❤️ it's just a tough season right now. I'm praying with you guys

[@kaylaklover]

I do this same melt down when it comes to my daughter needing to do anything medical. I think all of us with special needs babies fear the appointments. The doctors don’t understand the rides, after care. All the things that “ normally” happen for others happen for us way way way more on a harder level. I melt down with to many things shift and change also. You are not alone. But you are stronger then most of us!

[@acromiss]

"See ya noobs" Was funny tbh

[@eileendoherty2836]

Good for you Stephanie ❤️💕🤗👏👏👏

[@DiariesofaDisabledmom]

Breathe steph. Ur strong, u will get thru this.

[@Belushi87]

your doing great. your doing everything your supposed to be doing. sometimes life doesn't go as planned, but we just have to take a step back and remember that if it had to happened, it rather be done ASAP then later, especially since Noah's still young and is well known enough to heal faster. maybe surgery will bring Noah some sort of comfort, hopefully he'll have less pain.

[@louiseleonard1992]

Sending you lots of love and hugs Stephanie i know you have been through so much i hope you can hear me from Australia i am always here for you and please look after yourself

[@beckypeak9373]

Prayers for you all

[@emmy6830]

My 7 yr old daughter calls me noobs 😂😂 Noah’s voice got DEEP!! Holy man!! 🤗🤗🤗 hugs mama!! I live in Wisconsin and I have two kids with ASD. I’ve been following you since Lex was a baby. If I lived closer I would definitely say we need to meet for coffee or something. Just to vent to each other 🤗🤗🤗🤗🤗

[@jennifergordon4495]

They gave my daughter Ativan (take home) to calm her the night bfor and morning of her mri and surgery. She is moderately autistic.. her medical meltdowns are horrific. The Ativan really helped. Then the next time we were given a script for something a bit stronger. That helped much better. Like she was giggly. And very cooperative. We were given a liquid option that was easy to give. Mabey ask about something of this sort.

[@conniewhitmarsh712]

You are an awesome mom. Yes your going to have days when your stressed out because you are human try not to be so hard on your self. Prayers going up for you and yes everything is going to be ok. Love your videos so glad you come back. And when you have to take a break then take a break your peeps will wait for you to come back.

[@racoulow]

Thank you so much Stephanie for ur genuine honesty and openness. I really appreciate. As a fellow specialized educator working with adults with intellectual disbilities my heart is with you. Even though im in Montreal Canada If there's anything don't hesitate it will be my genuine pleasure. Hugs friend! Xxx - Rachel -

[@earendil0888]

We all go through low seasons in life. If everything seems a lot right now, it probably is and that’s ok. Remind yourself it’s a season 😘

[@nicolewatson638]

I get it And you will get through it. I've been there. I have three kids all special needs and high needs. I have health problems like you and more.. you will survive because as mothers that's what we do. I think we are a lot alike in that's way. It also doesn't mean it's not hard and emotionally draining or sometimes alittle hopeless. We just got to keep going

[@Bihgtits]

I love you stephanie!!!! You’re an amazing mom keep it up!!!!

[@teresanorris4769]

We are here to support you. Can they give Noah a pill to relax him before going to the appointment? I know my son got one before getting his wisdom teeth out. It really helped him relax. Whatever happens you can do it. I know how strong you are. You can do anything your kids need because you are strong.

[@kaija-liisalaakso8266]

Yes, a pill would help. And being able to listen to his favourite songs, stories or shows.

[@tays..editss1]

Much love to you Stephanie

[@debras2845]

Hey Steph I am not here to say you are strong all will be fine. Your reaction and feelings are expected. Wish you had a friend or companion who could go with you on some of your visits. A lot to handle at any age. Bless you Steph. Stay well.

[@torishajackson2670]

So happy Melissa will be able to help you with Noah’s MRI hopefully goes as smooth as possible! Completely forgot about Danielle’s hand 😳 I hope it’s feeling better now!

[@Rose-zy6vv]

You are an amazing mom. I understand what you are saying and can relate. My three boys have Autism and there are challenges with each them. As they get older it doesn’t seem to make a difference the age and some things get worse. It can be very overwhelming. I am so sorry you have to deal with all this at once. It’s ok to say you are upset, there are ups and downs. I really appreciate your honesty, thank you.

[@michelleleverenz6229]

Has Ehlers Danlos ever been a diagnosis for Noah? Sending you prayers.

[@mayag8469]

from what I understand it's low muscle tone plus complications from toe walking, not eds.

[@mcrchickenluvr]

@@mayag8469 low muscle tone is a symptom of EDS.

[@seventysangel]

Everything is going to be ok just know they are doing what’s best for your son Noah And the outcome will look brighter when all is done hoping this will prolong his wheelchair use Noah and your family are in my prayers Stephanie much love and thoughts kirsty in Australia xx

[@Angela-yo8pn]

You have so much on your plate…. Add daily vlogging, that’s a lot! You definitely need to take care of yourself ❤️. Give yourself some grace!

[@benfistner8288]

Good luck noah on your recovery!

[@carstorm85]

lol silly Noah, "See ya noobs". U should let him fully do a vlog one day, I bet it would actually come out good!

[@chrislanstelly7709]

Sending prayers this chromesome stuff is a whole other thing it is so hard hoping everything will work it self out

[@shivanabernard6739]

Lots of love for you ♥️💙♥️

[@maddex2000]

My son, who turns 15 next month has begun having a lot of joint pain. He has autism, SPD, ADHD-Inattentive type, and hypotonia. We have an appointment in a couple of weeks to get a referral with ortho and find out how bad it is. My granddaughter (21 months) is currently in Birth to Three for speech therapy and though I suspect it, she hasn't been diagnosed yet with autism. Watching your videos is like having a friend who understands. I know it's hard to film but I hope you continue on at least one platform. Sending love and positive thoughts for what you are dealing with.

[@lissioida]

We love you Staphanie ❤❤ (and the Crew of course incl. the coolest Noah 😎) - but take the time you need, take care of yourself, you're kids are so so lucky to have you as a mom, even if life isn't always simple, but you have great kids and in the end it's all gonna be fine

[@xLauren8199x]

Breathe your a wonderful mom.

[@TORITHEGUMMYBEAR]

You are doing great despite the hard things and obstacles you guys have to go through. As someone with disabilities myself and a child with special needs I understand a portion of what you are going through. I have similar issues with my knees like Noah. In fact, the brace he was fitted with was the first type I ever got ironically. Now I have a really complicated, high-tech one. I'm 21 now and I use a wheelchair for distances more than a quarter mile. I can't say it gets easier because it doesn't but it does get easier to deal with over time. It's not a fun part of my life but my quality of life is still good despite these issues. I'm sure it will be the same for Noah and I wish your family luck with all the medical procedures and appointments.

[@comocha9277]

Don't feel bad about not making it seem like autism is beautiful like you did 2 years ago like you said...I know people agree it is, but there are always negative things for everything, so it's ok to show those aspects even if it's constant for awhile. Not everything is always sunshine and rainbows and that's ok. Use us as an outlet, we are here for you so vent to us. I am very surprised about Liam as I always thought he was such a good eater, I can't imagine how frustrating it must be for you. Wishing Noah, Liam and you the best throughout this hard time.

[@kathymacellis9478]

NOBODY is as cool as Noah !

[@autismvlogger1697]

Awe Stephanie you made me want to come through my phone and give you a hug and just cry with you. I've had a stressful month with moving, becoming an aunt and losing my grandmother I loved my grandma she had cancer. Last weekend I ended up having a meltdown that was so bad if lasted for well over 2 hours. Like I said I kimdof know how stressed you are right now and I wish I could come in there give you a big hug maybe lay on the couch with you and chill. Please tell Noah I'm thinking of him and I don't like hospitals either I use to fight my parents, but let him know after it's all said and done its one less thing to worry about. I wish I could give Noah a hug too

[@aherna224]

Ur not ALONE I have 2 girls w autism and I had a mini breakdown yesterday it’s hard and draining but Ur really not alone ❤️

[@SierenH]

Good luck guys! I love u guys

[@louiseleonard1992]

Noah i am sending you big hugs from Australia xxxxxx

[@marisolfernandezmelo3043]

Hi 👋 god’s blessings everybody’s I’m praying 🙏