Not strong, not inspiring & I think I've been lying to you...

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Heather's Hikes & AdVANtures

Heather's Hikes & AdVANtures

Күн бұрын

Пікірлер: 107
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
Lately, I've found myself feeling like a big phony! While many of you returning to the channel know something of my health struggles and my having had to pause most of my life and travel plans this year due to unexpected chronic illness, autoimmune conditions, and further complications... I think I may have misled or failed some of you while sharing my story. While it's always been my intent to be open, transparent, and vulnerable no matter the content I choose to share on this platform, I realize now that I've inadvertently kept a big piece of this whole process private and hidden from you. So let's talk about it briefly... the good, the bad, the ugly... the WHOLE TRUTH!! Please be gentle with me, I'm coming off of a very difficult month & I'm trying to regain some of my optimism back, but I had to come clean first. Thank you for being here - especially if you've been sticking it out with me since the beginning 💚💚💚💚 Hopefully we'll be back to camping and cool advanturers soon!!!
@sparkie3231
@sparkie3231 3 ай бұрын
@ritaosborne9449
@ritaosborne9449 3 ай бұрын
I hope you find out soon what is causing the problems, prayers 🙏🏻💕
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
Thank you!!
@Blair332
@Blair332 3 ай бұрын
truly refreshing to see someone who is kind and sincere. just a beautiful individual.
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
💕💕💕💕💕
@janeensharbono9715
@janeensharbono9715 3 ай бұрын
Okay, you seriously need to stop beating yourself up. You have been an inspiration, at least to me. I am in my 60s, and I have lived with chronic pain since my twenties. I have been diagnosed recently with afib, and I have days where I feel like crap and where my heart's beating like crazy and days I can't move. I am kind of new to watching your channel, but I have been binge watching all your old stuff, and I am up to January of 2023. You have inspired me to go car camping. I booked one already at a state park, and I was at Fort Desoto for a couple of days and just got back because I saw one of your videos there. It's not always easy traveling or putting on a good face when you have chronic illnesses and especially when you're putting it on KZbin for a bunch of people to watch. I live in Central Florida as well, and I love watching your videos to find new places to go that I've never been to. And you don't always have to be happy and unafraid all the time. Show your real side. It's what makes you human. Maybe go to county parks in your area or show how people who have disabilities or illnesses could still get out and do things on a smaller scale. We are still going to keep watching you. At least I know I will. Take care of your health first, and the rest will get easier as time goes on.
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
Thank you, I really needed to read this today!! I'm so happy you made it to Fort De Soto - it's such a great place!
@ErinFoferin
@ErinFoferin 3 ай бұрын
The fact that you do all of these things to try to keep some "normalcy" in your life, want to continue being a good mother etc, verifies that you ARE a strong, positive warrior. So many people would give up on life if faced with the same battles and you have not. You really are a fighter and a true inspiration. Hang in there, beautiful soul. ❤
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
💕💕
@jennergy7
@jennergy7 3 ай бұрын
You are human and strong and brave for sharing your health struggles!
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
I'm definitely human, but I sure don't feel very brave or strong!!
@annaroberts3976
@annaroberts3976 3 ай бұрын
Heather...You ARE an amazing person who is strong and inspirational. You are a Chronic Illness Warrior like me and many of your followers. Each and every one of us can empathize with all that you are feeling and describing. We all try to present ourselves to the world in the most positive way we can...But, sometimes we just can't put on that mask and pretend. Sometimes we are just feeling too badly, either physically or mentally. Those are the times we scream, cry and wish it would all just end and that would just go to "a better place". But, because we are Warriors, we somehow get through all the shitty cards we have been dealt, and we push forward. YOU do even more than most of us because you spread awareness and you do help other people. Your genuinely loving and caring nature shines through everything you do. YOU HELP SO MANY PEOPLE. WE APPRECIATE YOU. WE PRAY YOUR HEALTH IS RETURNED.❤️
@virginiawedell9715
@virginiawedell9715 3 ай бұрын
That was a beautiful comment. ❤
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
You have such a gift with words Anna. Thank you, my friend. Hugs!!
@Mimis7Hearts
@Mimis7Hearts 3 ай бұрын
What an amazing video. I can only empathize with what you are experiencing. Thank you for all you do and for allowing yourself to be so publicly vulnerable . You are stronger than you realize. Thank you for being you💜 You are perfectly imperfect ❣️
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
Thank you so much 💕💕
@Myyt6908
@Myyt6908 3 ай бұрын
I am praying that you get the answers you are seeing. God Bless you Heather.
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
Thank you!
@deborahhuckaby4623
@deborahhuckaby4623 3 ай бұрын
Hi Heather. I think those of us that have watched your videos before you became ill and have watched since all of these things have started happening to you, do not see you as a fake or a pretender or putting on an act. You're not supposed to share your whole life with us, but, what you do share with us these last months have shown us how strong you are and you are strong because if you weren't, you wouldn't still be in front of a camera talking with us about your life. But you are human, and it's okay to be scared. I can't imagine waking up in the mornings and wondering what betrayal my body is going to do during the day. Of course, we never know what to expect every morning we wake up, but when you are going through what you've been going through, wow. Just know you have subscribers who care about you and are concerned for you and hope you get answers to what's happening to you. Just never give up. You are going to be okay. ❤❤❤
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
You always know exactly the right things to say to make someone feel better. That was not my intent with putting this out there, but thank you for being you!! 💚
@LisasEnchantedLife
@LisasEnchantedLife 3 ай бұрын
Girl I have gone through and am still going through everything you talked about in this video. I don’t even want to get into the time had surgery and the afterwards while in the hospital they insisted on giving me a medication I’m allergic to. What a mess! You do not have to be Miss Happy Sunshine all the time because frankly you are growing through crap and you feel like crap. Those of us who get it, get it. Those who don’t need to feel lucky they haven’t been through this. Love to you 💜
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
It's so frustrating how many mistakes are made even when we do our due diligence. I'm so sorry you had/have to deal with all that, too. Sending love & strength back to you! 💚
@jenxu2
@jenxu2 3 ай бұрын
You are doing the best you can. Give yourself some grace. Don't beat yourself up. Just keep doing what you can. Praying for you 🙏🙏🙏
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
Thank you! (I'm finding that more difficult to do than I should for some reason!)
@ramonapuckett3059
@ramonapuckett3059 3 ай бұрын
Sending love and prayers 🙏🏼🩷
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
Thanks so much!
@hsoderberg6505
@hsoderberg6505 3 ай бұрын
You have posted the kindest replies to comments I've made at my lowest points. You are an inspiration!
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
That means so much to me to hear. I'm so happy you feel that way 💕💕💕
@abdullahbabkhan2401
@abdullahbabkhan2401 3 ай бұрын
You are brave, strong and beautiful. You will overcome your illness, God willing, and you will return. we Enjoy beautiful videos, camping and wonderful views. I wish you recovery and success in everything you do. 💕
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
Thank you so much for your kind and supportive words!!
@virginiawedell9715
@virginiawedell9715 3 ай бұрын
My dear sweet Heather, I hope the words of everybody who commented get through to you. Most of us know the horror of dealing with chronic illness and the despair that entails. Most of us know the failings of our healthcare system and the dangers we face when hospitalized. Most of us know the horrible feeling that we have when faced with the unknown. We have all sobbed in despair and fear of what will happen next. I’m sorry to contradict you darling, but you are a warrior. Anyone who has been through what you have and keeps going, not giving in to the temptation to just withdraw from life is a true warrior. Don’t sell yourself short my dear girl. Keep putting one foot in front of the other, keep doing the best that you can do even if that’s just wiping away the tears and refocusing your energy on yourself and getting better. You are a brave heart, Heather. You are helping people to not feel so alone in their struggles with their own health issues. Maybe that is your calling right now. Please just give yourself a break and know that we care about you and we are here for you. 💙🩵💚
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
Thank you for giving me a new way to look at this phase, and for your supportive and kind words. I appreciate them!!
@Michelle-bw1xg
@Michelle-bw1xg 3 ай бұрын
Heather, you are strong and an inspiration, and good, real content...I marvel at what you are doing with all you're going through. No one has a perfect 24/7 life, especially not those facing true challenges and there is no expectation that you be anyone but yourself. Produce what you want to, in the capacity you are able. I'm facing different medical issues, suffering every failure of the medical system, and when most ill having to dedicate nearly all my (short) leave in advocacy for myself instead of rest and actual treatment. Your videos have helped me not feel alone. We are all entitled to privacy and to confer with our support system when we need it most. Best to you and your future adventures...
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
I don't think people realize just communicating and jumping through hoops is required for short term claims, leaves, disability in general. It's literally a full time job when we most need the rest. It's such a vicious cycle! Sending good vibes your way as well!
@bobbiolah2320
@bobbiolah2320 3 ай бұрын
❤❤❤❤❤ Love YOU..
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
💚
@-miekeb-
@-miekeb- 3 ай бұрын
Very reconizable all the mistakes in healtcare and Your feelings! Really hope you get a right diagnose soon so you can find good treatments!! 🙏🤞 Greetings 👋
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
Its so frustrating when you feel time be wasted sitting around waiting or having to backtrack b/c you weren't listened to initially. I'm trying to focus on only going forward & not driving myself crazy about past things. Thank you 💚💚💚
@-miekeb-
@-miekeb- 3 ай бұрын
@@HeathersHikesAndAdVANtures I got my official diagnose in januari, after more than a decate of struggling, the past 2 of basically shut down... and being on the doctors, clinics, hospital train with many 🫣 wrongs. My mothers friend (she is a doctor now on pension) came with the answer... October last year I had an operation were my gut and uterus were disconnected, they were 'glued' together which will happen again but for now I'm doing oké! My energy will stay low, I can't eat many things but I am pretty stable now without pharma medication... 🫣 Food, vitamines, minerals, oils help and I'm going to have hypnotherapy sessions... (also lost my job offcourse) Pls keep on your toes but the answer will come and it will get better!! 💜
@ricksgypsy2512
@ricksgypsy2512 3 ай бұрын
I understand what you are saying. I have multiple health issues that include 2 strokes, diabetes,high blood pressure, and a rare condition called Acromegaly that resulted in a brain tumor. On the outside I look fine so people think I am exaggerating when I have one of my bad days. Keep your head up and focus on your physical and mental health . You are doing the best you can and that's enough. Your videos are always honest and informative. I pray your good days always outweigh your bad days.❤🙏
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
It is definitely frustrating and hurtful when people minimize or negate your struggles just b/c they aren't visible to the nake eye. It's definitely been a difficult lesson in accepting that I'm not responsible for other people's ignorance & unfortunately the only way those people will realize their error is if they end up experiencing it themselves. 💚 Thank you for sharing - sending love back!
@tonihughart9885
@tonihughart9885 3 ай бұрын
Heather, please go easy on yourself! I am so very sorry that you are going through all of this! I think others will agree that we just like hearing from you. You're hilarious, "that's what she said," and your personality is delightful! Keep advocating for yourself and please talk to us when you need us! If viewers don't want to be there then they will go on to the next video but some of us will listen and reply! You ARE brave and an inspiration! Maybe you can't get out right now but maybe you could plan and create videos about future "dream" trips and why you would love to see certain parks/areas, just a thought. We would love watching those videos too! My Dad says "sometimes the best part of a trip is the time spent looking forward to going on said trip." Anyway, we care and we are here to listen, pray, fight, and dream with you! Best wishes!
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
Thank you! And these are some great ideas!!
@TilFurtherNotice
@TilFurtherNotice 2 ай бұрын
Can totally relate to this 💕💕💕 you are a warrior!
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 2 ай бұрын
Thank you!! 💕
@fondatruelove2330
@fondatruelove2330 3 ай бұрын
Hey me personally I want you to know that I consider you human if you didn't have these days you wouldn't be normal we all go through this and just what you share with us we emphasize with you and we know that better days are going to come for everybody and sometimes we have bad ones it's just nice to be able to feel like you're a friend
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
Thank you! I really do feel like I'm just talking with my friends when I get on camera to talk to you all, so I love reading it feels that way to you too!
@Arlene_witha_y
@Arlene_witha_y 3 ай бұрын
No one thinks you’re a phony Heather, at least no one should be. We all should know that even depression has smiles. Suffering illness as debilitating as it may be doesn’t mean you don’t have good days and making content obviously it makes sense to post then. But of course I’m sure we can all imagine the difficulty, the pain, the fear, the sadness, the confusion, the anger. There’s a A LOT that people don’t see and that’s ok, that’s normal. You don’t have to show your most vulnerable moments for you to be authentic. You’re allowed to have privacy. You’ve always been very transparent and that’s why you posted this but you owe no one an explanation for your experiences. I sincerely hope that your treatments work and help you feel better to live a quality of life that you feel satisfied with! Aka, advanvturing and hiking and taking photos! I wish so much healing and good life for you! Edited to add : I am SHOCKED and disgusted that an ultrasound tech or radiologist made that error!! I am an ultrasound tech and I’m sorry but how do you not see a thyroid gland or see that it’s gone and make one up?? It’s not that difficult! A tech should know better and a radiologist too! Unless it was a clerical error and someone else’s results were put into your chart! That’s still scary as hell!
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
About your edit, it really is scary, and makes it hard to trust any results sometimes, to be honest. I've talked to so many people that have had similar stories. I know how overworked and understaffed the whole medical industry is currently, and that everyone is stretched thin & tired, but the costs keep going up, and peoples lives are on the line, so it's scary how much you are essentially putting your life in someone else's hands that might not be paying attention, or just copy & pasting to get through paperwork! Also, thank you for your kindness and support 💕💕💕
@missroxanne7123
@missroxanne7123 3 ай бұрын
You hang in there girl! Praying for a diagnosis. ❤
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
Thank you!
@cindyjohnston3134
@cindyjohnston3134 3 ай бұрын
your dealing with an unknown illness plus raising your kids...girl...you are a strong woman and strong for your kids and that is being a human and a mom...huge hugs :) Let your kids keep you going...they are your rock!!!!! I have been thru hell and back and it was my kids that got me thru the bad times (((huge hugs)))
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
💕💕💕💕
@Zorazora1234
@Zorazora1234 3 ай бұрын
Ohh girl you’re wayyyy too hard on yourself Auto immune disease are hard to diagnose I love your videos .. I’m going to get a van and get out I have Lupus ( so they say but the doctors can’t figure it out, now they’re telling me it’s connective tissue disease, along with those other accompanying autoimmune dx …. Raynaud’s Syndrome .. it’s crazy I work 60+ hours a week.. it’s very very hard .. stay encouraged You have to stay on top of what you plan covers and they do document wrong. I work for a huge insurance company.. you will get stuck with bills , don’t trust if they say they’re in-network .. I could go on let me stop … it’s exhausting Only thing that I do know for sure is… once I pass on from the life, I don’t ever want to past this way again.. it’s all too much
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
I completely feel you on the "its too much".... it really is!!
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
But thank you for your kindness. Sending you love and strength as well ✨️
@Zorazora1234
@Zorazora1234 3 ай бұрын
@@HeathersHikesAndAdVANturesMuch love and support to you
@Michael-gq2yi
@Michael-gq2yi 3 ай бұрын
Your showing your true inner self. That is why people like or love you .Keep the faith there is a battle thru the storm. You are doing Great you have people behind you. Accept this everything will work out ok it just takes time. Keep up the positive vibe. the mind is a powerful thing. When I was small I couldn't get rid of warts on my hands. I tried everything doctor's gave me to no avail. My Grandmother told me look at the warts and say go away. Within 2 weeks later they were all gone. My family said how did it go away I told them I said what grandma told me and they left. They said he thought it would work and it did. They were amazed. So keep up the faith.
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
Thank you for this! I appreciate it, and the perspective. 💚
@terrilane2973
@terrilane2973 3 ай бұрын
Do not beat yourself up. We do the best we can, we all realize that you would rather be having your normal happy optimistic self. I , personally, am very proud of you.😊
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
Thank you so much, that really means a lot! I so want to get back to filming nature and hikes and wildlife again!!
@Nomadicnico
@Nomadicnico 3 ай бұрын
❤ God will direct you to the right people and you will find the help you need. You will be in my prayers
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
💕💕
@William2N
@William2N 3 ай бұрын
Prayers always! Try to stay strong, it’s not easy!
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
Thank you friend!
@WanderingWithWanda
@WanderingWithWanda 3 ай бұрын
We know you put on a brave face for us. We know you are struggling and yes Heather, you are a brave warrior. Anyone who struggles every day is a warrior. Facing every day and fighting this battle makes you a brave warrior. There is nothing fake about you. My heart breaks for you and I pray for your recovery. You have a lot on your plate and you are dealing with it all like a champ. Its ok to feel sick, frustrated, cry and be scared. Chin up my friend! Hugs!
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
Thank you so much my friend!
@jenniferbrown-west782
@jenniferbrown-west782 2 ай бұрын
It's so good to see you advocate for yourself. Remember doctors are just humans, they make mistakes. A lot of them think they've perfect and I've had one doctor fly into a rage when I advocated for myself and corrected him, mind you, with respect. I've just begun to follow you, a year or so is the furthest back I've seen. I commented 2-3 times. As always I pray for your health and finding answers. I see you're are strong, not everyone would keep pushing as you do. Understandably you have your day's, that's normal. I'm here to stay. Thank you for sharing honestly.❤
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 2 ай бұрын
Thank you so much, I really appreciate this. It's been one of my biggest challenges so far through all this, forcing myself to keep advocating, even when I don't feel like I have the energy or mental strength. Sadly, your experiences are too common I think (doctors getting immediately defensive and abrasive if they think you're questioning them, etc...). Sending you hugs for your battle as well!
@janiceyoung7106
@janiceyoung7106 3 ай бұрын
🙏🏼🙏🏼🙏🏼❤
@sherylshaffer8410
@sherylshaffer8410 3 ай бұрын
Baby girl, I understand, during those bad times, bestill and believe that this time to shall pass. Also crying and praying is cleansing. You will be able to deal with anything that comes your way. I believe in the power of prayer. May God bless you with all that you need.
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
💕💕
@dianeschmiane
@dianeschmiane 3 ай бұрын
Hang in there, Heather, stay strong… ❤
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
Thank you Diane!
@kirstenstrobel4387
@kirstenstrobel4387 3 ай бұрын
I agree with everyone’s comments that are here so far. Give yourself grace. You are doing everything you can. It’s not like you’re sitting around and not being proactive. You are doggedly trying to get to the bottom of this complex medical issue. I so agree with you about medical professionals glossing over things and not listening to patients. If you don’t fit into the slot/category they think you should, it doesn’t seem to register with them. Soon you’ll have more answers and can know better what you are dealing with. Time for the next foot in front of the other!
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
You are so spot on about so many medical professionals. It was also very eye opening for several of fhe doctors (including both that examined me in the emergency room) immediately went to the same diagnosis I feel is correct, without me saying a thing! But b/c the MRI doesn't definitively confirm it (or rule it out) it's like they're not even entertaining it yet. To me, if you meet all the symptoms/criteria, have abnormal tests you would expect to have, and it explains all of my (previously "unrelated" symptoms) as well, you would think they would proceed with a working diagnosis & try to treat accordingly for now (especially since the treatment they tried in the emergency room & hospital helped the way it would be expected to with my diagnosis! ) it's so frustrating how bureaucratic it all is!!
@kirstenstrobel4387
@kirstenstrobel4387 3 ай бұрын
@@HeathersHikesAndAdVANtures My thoughts exactly! We are in central FL also and came here only for the medical care. If we could be almost anywhere else, we would leave the heat and humidity behind. We were previously driving 2 hours to go to Vanderbilt University and Nashville docs; not too impressive. Our daughter insisted we would have better results here, and we have. A couple of our docs are just okay, but several are amazing in all ways. We keep saying they can’t all graduate at the top of their class and it is the “practice” of medicine after all. But we feel we have really lucked out.
@juliehoot3916
@juliehoot3916 3 ай бұрын
Hi Heather, all that shenanigans with the medical world is BS and for the doctor on top of all those mistakes takes an attitude with you shame on him! Shame! You are no phony. You are not telling us anything we didn't already know that yes you are human. But guess what? You are a human, positive, inspirational, warrior! Thank you so much for helping us! Please, no more phony talk! 🙏❤️💪💕
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
It really is such a frustrating process, and feels like you're wasting all your energy jumping through hoops sometimes! 💚💚
@ZeldaMontaigneNailKorner
@ZeldaMontaigneNailKorner 3 ай бұрын
❤ I been watching since you started But doctors Sucks!! I was in the hospital for seizures. They kept saying I had a gallbladder and I did not. There's a big old mess. I did not feel safe at all. I hate doctors especially when you need them. I pray for you honey and I pray that everything works out with you soon. Turn off 130 lb I did have an extra weight on me but I lost it in 5 months. Your health can be scary. I will keep praying for you and I will keep supporting your channel sweetheart!❤
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
It's so frustrating and scary when you're putting your life in people's hands that you don't feel are listening to you, or care enough to make sure the records are accurate 💚
@wincharles1195
@wincharles1195 3 ай бұрын
I’m trying to fix my outside so that it can match my inside we’re getting now but I need help and now my knees messed up because I fixed my back and so yes, I’m trying to fix my outside to match my inside. Thank you for the words this morning.
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
It's so frustrating when you feel like your outsides don't match your insides and your body is betraying you. 💚
@HelenaWalker-w3c
@HelenaWalker-w3c 3 ай бұрын
Dear Heather, as many have already said….you are being too hard on yourself. You don’t owe anybody any explanations or apologies for being human. In saying that, sometimes it helps just to get it „”out” and you have so many that are here and we listen. You ARE doing the best you can. Some days will be better than others but hold onto those days; every one of them is important. Each one is a step forward.
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
Thank you 💕💕
@RLeeVanCamps
@RLeeVanCamps 3 ай бұрын
You just being real girl! Yes be your own advocate when medical care is necessary. I’ve heard contrast Is shellfish based. Did you have any reaction to shellfish prior? People who really care will still follow you. Remember each day is a gift, untie the ribbons😊 So sorry for all the sh_t the medical field is putting you through. They do a great job for emergencies and trauma. But from my experience they are lacking in the search for areas. I know you are overwhelmed. Just do the best you can one day at a time. It’s all we get❤
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
No shellfish allergy, but that's very interesting, I didn't know that! One of my sons does have one, so I'll have to keep that in mind if he ever needs any MRIs! And thank you! 💕
@MrsLaurieLong
@MrsLaurieLong 3 ай бұрын
I'm new to your channel, what autoimmune disease do you have? My husband has IBM and we're hitting the road full-time this week. Inclusion Body Myositis is very rare and hard to diagnose. Keep us up to date on your health and how it affects your life. We're all here to help each other. ❤️
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
So far the autoimmune ones confirmed are alopecia, fibromyalgia, and most recently POTS. They also think my skin condition of Lichen planus is caused by autoimmune response as well. They are still evaluating me for MS, and did a lumbar puncture to look for any autoimmune diseases or other conditions that originate in the central nervous system. Because of my chronic migraines, vision changes, and other GI and heart issues, they think those are all related to either my POTS or another condition they haven't identified yet, instead of being separate issues. It's such a process!!
@deeplansandbudgets
@deeplansandbudgets 3 ай бұрын
Our Medical Care in this country causes so much misery. I do hope they get to the bottom of this soon. You will get through this, it will take more strength, but, that does not mean you have to be strong all of the time.
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
That is the truth! The amount of horror stories I've heard from my friends and others since all this with their experiences & those of loved ones. It's disgraceful. I know there's a shortage of doctors, nurses, and staff, and that it results in mistakes, delays, and things getting missed. But it's frustrating when those "things" are life altering to you! Thank you!!
@andelbee
@andelbee 3 ай бұрын
Oh Heather. You are no poser. When you deal with chronic illness, especially the mysterious sort that’s not visible to the observer, some days “courage” means finding the energy to brush your teeth. Some days “Warrior” means actually getting the dishes done. I’ve had mornings, way too many mornings, when “champion” meant being brave enough to let my excruciating feet touch the floor and bear my own weight. It doesn’t take courage to do the easy things. What you’re doing, every day, whether we see it or not, is courage, even if you do it while weeping, even if you do it when you’re filled with despair. You soldier on. Not every minute, not even every day. But you keep getting back up. It isn’t the falling that defines you. It’s the rising again and again. And to be clear, some days it will take all the rising you can do, just to lie in bed and breathe and not panic, and not decide that breathing isn’t worth the trouble. The fact that you actually make the effort to share any of it with us, to pass on some of the things you’ve learned in the course of suffering, to also try to share what it is about life that makes you keep fighting to live it-that’s what makes you inspiring. And that said, let me also say this-your first job, your most important job, is to listen to your body and give it what it needs. So if you need rest, don’t feel like you should be making a video. It’s not Xena the (fictitious) Warrior Princess we care about. It’s Real Heather the Human. If you posted a video that just said, “Still here. Still trying. More soon!” we’d all still give it a thumbs up. And oh how we will rejoice with you, when you finally get some of the answers you need. So as you face these unspeakably hard days, please remember that Real Heather, on the best of days and the worst of days, is exactly the Heather we love.
@virginiawedell9715
@virginiawedell9715 3 ай бұрын
@@andelbee that was so beautifully said. It seems we have a lot of old souls in the comments, a lot of people who have a way with words. I have never seen such lengthy posts from viewers who truly care on any other channel. Old souls have been through a lot and have a wealth of knowledge and experience. I love this community.
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
This made me cry, so beautifully said, thank you!! 💚
@MaterMultis
@MaterMultis 3 ай бұрын
I don't know what prompted this video but people are weird and use someone they perceive as below them to stand on to make themselves feel good. I'm terribly sorry that you are seeing that in our world. I think your ideas to send texts is a responsibile idea. Especially because you don't know if these things would extend to breathing or heart at any moment. ❤
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
Thank you!
@kareniceland
@kareniceland 3 ай бұрын
You need to be strong for your kids. Maybe you should ask your doctor about all the things he thinks you should go to the er for. Hang in there life can get better.
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
That is the frustrating thing for me, is I have tried to get them to spell it out, but a lot of the "signs" they mention I remind them are things I already regularly experience, so the best they have distinguished for me is if anything feels new or different or much worse than normal.... so I always end up iffy about it!
@peggynichols6191
@peggynichols6191 3 ай бұрын
I always tell them my allergy to Latex even if they put the bracket.
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
You can never be too careful!!
@wincharles1195
@wincharles1195 3 ай бұрын
iPhones and androids have it to where you could call the emergency department in your state
@HeathersHikesAndAdVANtures
@HeathersHikesAndAdVANtures 3 ай бұрын
Good tip, thanks!!
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