Predicting My MS I Full Documentary I NOVA I PBS

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NOVA PBS Official

NOVA PBS Official

2 жыл бұрын

Official Website: to.pbs.org/3oYfoiV
A filmmaker with a rare type of multiple sclerosis explores the mysterious causes of MS.
Read how Epstein-Barr infection may increase one's risk of multiple sclerosis: to.pbs.org/3wgDutB
In 2005, filmmaker Jason DaSilva was diagnosed with primary progressive multiple sclerosis, a rare type of MS that has no known cure and inflicts a host of progressively debilitating symptoms.
In this moving personal film, DaSilva looks back on the challenges he’s faced, delves into the science behind MS, and investigates the potential risk factors that may-or may not-have contributed to his rare diagnosis. Refusing to be labeled as a “tragic” case, he continues to advocate for people with disabilities and to pursue his career as an artist and filmmaker.
(Premieres Wednesday, February 23 at 10:30PM ET on PBS.)
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Пікірлер: 109
@smyelinwhitetiger1776
@smyelinwhitetiger1776 2 жыл бұрын
I was diagnosed with multiple sclerosis in 96 right after my 18th birthday. I was pregnant and experienced complete paralysis. I regained my ability to walk and care for myself. It has been a long hard road. I'm glad to see programs like this. The more awareness brought to ms the better. Thank you for sharing this
@needles1975
@needles1975 Жыл бұрын
100% All miserable chronic painful neuromuscular collapse mental psychological emotional skeletal orthopedic spinal diseases have the exact same cause Americanism ... male dominance. The Cure for Americanism is the opposite Female dominance.
@mr.makedonija2627
@mr.makedonija2627 Жыл бұрын
How are you doing now?
@billbillards569
@billbillards569 Жыл бұрын
This is actually part of a full movie called Why I Walk.
@demoskunk
@demoskunk Жыл бұрын
Thanks for developing that app. I've had PPMS for 7 years and my walking ability is getting worse.
@mascadadelpantion8018
@mascadadelpantion8018 2 жыл бұрын
This is such a wonderful thing to have the full episode of online for free!!!!! So interesting and so thought-provoking. This is clearly the reason why I will always never stop supporting PBS
@tyronefu7396
@tyronefu7396 2 жыл бұрын
that was difficult for me to watch simply because I am going through it currently, but it was inspiring to see all that you have accomplished. Keep going strong in your journey in making this world a better place.
@OrphanRed
@OrphanRed 2 жыл бұрын
Look into the newly found link between parasites and MS. You may find some relief from taking anti-parasitics (like fenbenzadole perhaps?).
@RobAce
@RobAce 2 жыл бұрын
Saw it online with my husband...Very interesting (MS is similar to my rare and progressive neurological condition, Spinocerebellar Ataxia)...One thing that has helped me cope is my effort to move on...I'm not interested in knowing how I got it...I am lucky to have Jason to talk about his MS...
@marmarmar145
@marmarmar145 2 жыл бұрын
kzbin.info/www/bejne/o3bbZZd3dtKJebM
@kdlofty
@kdlofty 7 ай бұрын
Jason, you're an absolute legend, and truly inspirational. Keep rockin' and rollin' bud.
@EvenSoItIsWell
@EvenSoItIsWell 2 жыл бұрын
Thank you Jason and Nova. Spreading awareness about MS is so important. I am 15+ years into my Ms journey and, like you, am hopeful.
@melissamillar800
@melissamillar800 8 күн бұрын
I suffer from MS and am now in the progressive stage...thank you for sharing your journey. What a lovely person you are, and continue your quest. A positive attitude is everything!
@Honestchild436
@Honestchild436 6 ай бұрын
I left from Greece at 35 years old and moved to the Netherlands , almost immediately i felt bad depressed from the weather and darkness, 8 years passed with many neurological issues and low vitamin D , i am in and out the hospital looking for answers
@h.frohlich5495
@h.frohlich5495 2 жыл бұрын
Thank you Jason for all you do and as one who also has primary progressive MS these last couple of years I have gone through similar introspective exercises. Thinking about one's condition and actually completing something can be a stretch. Many things get in the way (fatigue, brain fog, constraints of being in a power wheelchair similar to a paraplegic etc.) I am close to 79 years of age this year and I do all I can to help others . I'm impressed with the amount of energy that you have been able to focus. May you continue to be a positive force in the MS community.
@jimsperlakis5634
@jimsperlakis5634 10 ай бұрын
I am 71 and have ppms also. Ancestors were from Crete. I was diagnosed @52 just prior to 3 of the worst neck surgeries ever. Never thought about ms because I just didn't have time to be sick. We'd just fight thru the oddball pains and try again the next day until a quack chiropractor almost paralyzed me. Then I got the 1st MRI. The surgeon didn't want to tell me about my ms but he gave in. An ms specialist ok'd the surgery never thinking that it would push my ms into high gear. I've tried most all of the available meds with no slowing it down. The Lemtrada infusions were the only thing that helped but 6 days @ CTCA and $736k, followed by 3 days @ $534k really could bankrupt most people.
@Green_Roc
@Green_Roc 2 жыл бұрын
My mom died of complications from MS. Some people thought she was going crazy. Fine one day, not fine the next, then fine again. There is a real physical thing happening to the brain. I am afraid of getting MS myself.
@Green_Roc
@Green_Roc Жыл бұрын
@@mr.makedonija2627 2017. Thank you.
@kevindamron5441
@kevindamron5441 Жыл бұрын
I was diagnosed with PPMS this past July at the age of 50. It's unsettling to not know the rate of progression. Still able to walk but both legs from knees down are stiff and numb. Thank uou for the documentary.
@famasmaster2000
@famasmaster2000 2 ай бұрын
I'm in the same boat , diagnosed at 50 and my leg function is getting worse. I never take a day off from working out as I believe it is keeping it from progressing faster.
@QuintusAntonious
@QuintusAntonious 2 жыл бұрын
Almost every male on my mother's side of the family has MS. I'm one of the only ones who doesn't have it (yet at least). It's a tough road and I wouldn't wish it on anyone.
@1life857
@1life857 Жыл бұрын
EAT MEAT AND YOU WILL BE HEALTHY AND MS FREE!!!
@rickr9936
@rickr9936 2 жыл бұрын
You keep fighting, my brother-
@evolvingtech1
@evolvingtech1 2 жыл бұрын
Jason, Thanks for this terrific resource. It helps to shed light on understanding MS.
@PokeMama23
@PokeMama23 2 жыл бұрын
Yet some people can have all of these possibilities and never get it. Keep fighting ❤
@carhall56
@carhall56 10 ай бұрын
I feel your journey, we have to continue moving forward and embrace our life.
@jenhaze
@jenhaze Жыл бұрын
Thank you for sharing your diagnosis and journey. I needed to see this ❤❤
@Amandavg
@Amandavg 2 жыл бұрын
I am female, I was obese as a child, I have low levels of Vitamin D, live in upstate NY, and had Mono at 18. Great
@pamelalabrake7622
@pamelalabrake7622 2 жыл бұрын
Jason excellent documentary. I started with symptoms in my 20's, now in my 60's. I have many of the "risk " factors such as where I live (NY) all of my life, smoking, first cousin with MS, exposed to toxins etc etc. I decided on an "alternative" medication called low dose naltrexone and I have seen improvement in my Relapsing Remitting MS. Thank you for sharing your journey and educating other. Wishing you the BEST in the future.
@1life857
@1life857 2 жыл бұрын
DON'T USE ANYTHING 'ALTERNATIVE' FOR THE REAL DOCTORS HAD TO ENDURE DECADES IN REAL MEDICAL SCHOOL AND KNOW BETTER!
@pamelalabrake7622
@pamelalabrake7622 2 жыл бұрын
@@1life857 It's a REAL medication just used "off label" and at a much lower dose. I decided on it after REAL PEOPLE living with MS described how they were improving on it with virtually no side effects and it's very affordable. Within days after starting it my balance improved and I was less fatigued. Been on it all these years the BEST decision I made for myself. Even my neurologist is surprised how well I am doing. People have to trust their instincts.
@mr.makedonija2627
@mr.makedonija2627 Жыл бұрын
​@Pamela LaBrake how are you doing now?
@pamelalabrake7622
@pamelalabrake7622 Жыл бұрын
@@mr.makedonija2627 not too bad but under ALOT of stress due to my hubby on hospice and other family health issues. I still continue to use LDN and also I am on Vit D supplement as my levels were VERY low. Now they are in the normal range. Thank you for asking.
@pattiepitts5893
@pattiepitts5893 2 жыл бұрын
Wow very interesting. I have disease that’s in the ms family,it only appears in the feet and in some cases the hands. I’m embarrassed to even mention how very painful it is. How about you are in pain God I hope not. You are so positive it honestly made me snap out of my pity party. But we have some similarities that I thought were odd. My ancestors were also Russian, German Jews,Born and raised in sunny Florida still live there, and Vitamin D Deficient and I’m very brown and outside all of the time and I still have to take Rx Vitamin D. In my mind this is we’re our troubles began. You are amazing I hope you continue to do art in some form and film work. God Bless you really are an inspiration
@sharonnicholson8547
@sharonnicholson8547 Жыл бұрын
Hi Jason,I also have Ms but mine is secondary progressive. Still all the same kind of symptoms.My first symptoms was drop foot in my twenties.Im now in my fifties.I carry something called the jc virus,I was told 50%of people have it& rest don't.This was because it can have a very bad effect on certain kinds of treatments,worse being death.Im now bad on legs ,can walk a few steps,arms& hands very weak.My memory is very bad & I'm in a lot of pain all of time.Intake so many medications&have lymphodema as a result of slow movement etc.I wish you well in your search & being on here brings us all together.God bless you Jason.xx
@corporateraider77
@corporateraider77 2 жыл бұрын
This was very hard to watch since I have MS.
@bigrigchristfollower9020
@bigrigchristfollower9020 Жыл бұрын
I was diagnosed in December of 2022, still need a Lumbar Puncture done before the Nuerologist will start any medication.
@palmyrapalmyra1681
@palmyrapalmyra1681 Жыл бұрын
Thank you so much for this. Bless you.
@morryswigs2005
@morryswigs2005 6 ай бұрын
Good video. Keep doing it Jason.
@cintianascimento5963
@cintianascimento5963 Жыл бұрын
Wonderful documentary 🙏
@cathyburnside
@cathyburnside 24 күн бұрын
No mention of vaccine injury .. the toxic foods, radiation wifi etc
@concettaworkman5895
@concettaworkman5895 5 ай бұрын
Get a spinal tap, have a microbiologist look at the fluid, you'll see the parasites.
@wynacht
@wynacht 2 жыл бұрын
DX aug 2021 at age 47 with 20+ lesions but none in spine thankfully ❤️ I always lacked Vitamin D and am from a darker place in alaska. I believe in the geological theory.
@1life857
@1life857 2 жыл бұрын
WHAT IS YOUR DIET LIKE? HAVE YOU THOUGHT ABOUT THAT TOO?
@mr.makedonija2627
@mr.makedonija2627 Жыл бұрын
How are you now?
@mary-vy3mo
@mary-vy3mo 5 ай бұрын
you should have hsct done before you worsen...
@kaym9882
@kaym9882 2 жыл бұрын
God bless him.
@alrightwithms845
@alrightwithms845 Жыл бұрын
Very brave - thanks for sharing 😊
@ice13cube77
@ice13cube77 2 жыл бұрын
Bro I read MS as mangekyou sharingan first time I saw it💀 All love bro, wish only the best for you and ur fam❤
@marmarmar145
@marmarmar145 2 жыл бұрын
kzbin.info/www/bejne/o3bbZZd3dtKJebM
@monicaz4949
@monicaz4949 7 ай бұрын
Your mindset is just like mine. I want answers and look backwards. Lyme? Mold exposure etc
@carminepetracca7518
@carminepetracca7518 2 жыл бұрын
check out the connection between mononucleosis and multiple sclerosis.
@NatashaVincent
@NatashaVincent Жыл бұрын
Mononucleosis is Epstein-Barr virus, which was mentioned in the documtary (where the cheerleaders are on-screen 23:16 )
@jeffdavis5723
@jeffdavis5723 2 жыл бұрын
*That’s so **#SAD** and **#HORRIBLE**‼️* 🙄😳😯😮
@verily360
@verily360 Жыл бұрын
I have RA but before I was dx I had mono shop up in a blood test. Also I had become hyper sensitive to chemicals ex cleaning fluids and hair colour vapours etc
@mypinkrabbit
@mypinkrabbit 2 жыл бұрын
Informative and a Powerful message of giving back, gratitude, and dealing with adversity. But MS presents in different ways can be or is insidious, elusive, and unpredictable. With all the technology and research, there will be some that will claim cure but for now, I’m Not missing out on my Life and among other things, Just for today, I will take care and be Well, One Day at a time☮️
@nupurdeshpande2889
@nupurdeshpande2889 9 ай бұрын
Its the mother, the family, the stress of being an immigrant outsider, the low level of vitamin D, being a male(ppms is more common in males) and travel thats contributed to his progression i think.
@timisaak6751
@timisaak6751 Жыл бұрын
You didn't check the rate in Canada
@kathydoherty6383
@kathydoherty6383 2 жыл бұрын
Does Jason or anyone else know if there is a similar map for Canadians whom are disabled showing public accessibilities like the one shown in this video?
@RachelJane101
@RachelJane101 2 жыл бұрын
AXS Map is crowdsourced. The ability exists for anyone to rate any location anywhere in the world. Whether those ratings exist depends on users inputting that data.
@jasondasilva7398
@jasondasilva7398 2 жыл бұрын
@RachelJane101 said it perfectly. AXS Map is available all over the world. In fact some of the most data we have gathered has been in Canada. So keep it up!
@neilakili9268
@neilakili9268 2 жыл бұрын
I found out I have MS in 2021 at the age of 35.
@OrphanRed
@OrphanRed 2 жыл бұрын
Look into the newly found link between parasites and MS. You may find some relief from taking anti-parasitics (like fenbenzadole perhaps?).
@1life857
@1life857 2 жыл бұрын
WHAT IS YOUR DIET LIKE? HAVE YOU THOUGHT ABOUT IT BEING A CONTRIBUTING FACTOR?
@TeeganPlayz_8903
@TeeganPlayz_8903 Ай бұрын
@@1life857CALM DOWN GOD ME WHAT MS HAS TO DO WITH DIET IT HAS UNKNOWN CAUSES
@tasidasilva7897
@tasidasilva7897 Жыл бұрын
wow we have the same last name! barely see any dasilvas
@OrphanRed
@OrphanRed 2 жыл бұрын
Look into the newly found link between parasites and MS. You may find some relief from taking anti-parasitics (like fenbenzadole perhaps?).
@ogfight
@ogfight 2 жыл бұрын
Perhaps Ivermectin too?
@1life857
@1life857 2 жыл бұрын
@@ogfight BOTH HORRIBLE 'ADVICES'. YOU ARE NOT A DOCTOR, PLEASE STOP!
@realitateatm
@realitateatm 7 күн бұрын
@@1life857my “doctors” are refusing to treat me, because my MRI shows no change since I was diagnosed, yet I experience many symptoms. These “doctors” only care about protecting themselves, not for the patient.
@annberlin5811
@annberlin5811 2 жыл бұрын
There is link between celiac and ms
@marmarmar145
@marmarmar145 2 жыл бұрын
kzbin.info/www/bejne/o3bbZZd3dtKJebM
@1life857
@1life857 2 жыл бұрын
DIET MUST PLAY A BIG ROLE IN MS AND CELIAC, ESPECIALLY THOSE WHO FOLLOW THE CULT CALLED VEGANISM!
@khalidbelhaj7834
@khalidbelhaj7834 2 жыл бұрын
Khalid 12
@priyasingh-po5yr
@priyasingh-po5yr 2 жыл бұрын
pls chk the below link from well known virologists on MS
@bendershome4discountorphan859
@bendershome4discountorphan859 2 жыл бұрын
Should look at ancesteral trama famines
@marmarmar145
@marmarmar145 2 жыл бұрын
kzbin.info/www/bejne/o3bbZZd3dtKJebM
@valeriealv7503
@valeriealv7503 Жыл бұрын
Why do u have that kind of wheelchair
@parvinvaladkhani4036
@parvinvaladkhani4036 Жыл бұрын
خسته نباشيد
@texanleons
@texanleons 2 жыл бұрын
pandemic
@1life857
@1life857 2 жыл бұрын
DEAR JASON, I WATCHED THE WHOLE DOCUMENTARY AND I WANTED TO SUGGEST YOU LOOK INTO YOUR DIET. I DIDN'T SEE IT MENTIONED ON IT, NOT ONCE, BUT I TRULY BELIEVE THAT DIET HAS A LOT TO DO WITH MS. I'VE WATCHED COUNTLESS PEOPLE WHO HAVE BEEN DIAGNOSED WITH MS THAT FOLLOWED THE CULT OF VEGANISM, WHICH IS IN FACT, VERY DESTRUCTIVE TO YOUR HEALTH! I WISH YOU WELL, YOU ARE BRAVE!
@verily360
@verily360 Жыл бұрын
I'm sure he has always eaten healthily anyway. Do you know how many vegan youtubers have cancer? I'm shocked. Some of them ramp up the juicing thinking it will cure cancer...
@jeffbros9203
@jeffbros9203 2 жыл бұрын
SIMPLE FACTS LIKE THIS PROVE ALL YOUR CHEMICAL LOBOTOMIES/VACCINATIONS ARE WORKING
@MA-zg2pz
@MA-zg2pz 2 жыл бұрын
Did you watch the video at 22:00 onward where they address this? MS existed lonnng before vaccines ever did. There’s no proof they’re connected negatively. They said vaccines can reduce your risk of MS.
@jeffbros9203
@jeffbros9203 2 жыл бұрын
@@MA-zg2pz thats a lie and so are you.not long from now you will be destroyed by the truth
@dyscea
@dyscea 2 жыл бұрын
@@jeffbros9203 Except when we’re not.
@glormoparch5154
@glormoparch5154 2 жыл бұрын
You're why he's stuck like that. Maybe we don't exist in a human run universe ..... Science tries to give him back autonomy but superstitious conspiracy take away. Try plague out in middle ages
@glormoparch5154
@glormoparch5154 2 жыл бұрын
You fix him with your prayers or try silence
@anna-leighlondon8383
@anna-leighlondon8383 Жыл бұрын
Remember the importance of nutrition! 🥬🥦🥒🥕🍠🍅🍓🍒🍍🥑🥭🥥
@demoskunk
@demoskunk Жыл бұрын
It's not related to MS. I ate lots of fruits and veggies, but still developed MS.
@clouuu4206
@clouuu4206 28 күн бұрын
​@@demoskunkdo you know Matt Embry and Prof Dr. Terry Wahls
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