Observations on long COVID through an ME/CFS lens

[@billtoogood4979]

Thank you! Very helpful information. I've been dealing with covid longhaul issues since September of 2020. Finally seeing a "Longhaul" physician in February. Finger's crossed.

[@LDR01]

Please let us know how you are! I've been struggling with ME/CFS for years, so I understand. Sending you good wishes.🤞

[@LestoFremo]

How u doing.?

[@josephtpg2205]

THANK YOU. Your advice has helped me with my long covid. Since March 2020.

[@denisabytyci9202]

Thank you so much for this! Good work!

[@printerpr0n]

Long hauled twice. A year the first time and second time was worse. Recently found the MCAS protocols and now almost back to normal.

[@mustafanaser9789]

What are the mcas protocols?

[@marionharris5952]

?

[@Ex-expat]

Most likely Mast Cell Activation Syndrome. Mast cells are the controllers of how the immune system gets triggered. 1. D vitamins/ NAC/ Bioflavonoids may help 2. FODmap diet to find trigger foods. 3. Avoid histamine or histamine triggers (anything not fresh or like aged meet, salami, red wine, Whisky etc are high in histamines) 4. Other triggers may be heat or other

[@Whocares0009]

@@Ex-expatDamn you’re expert on this, thanks pal.

[@bell4textu973]

Long covid and post infectious ME/CFS is the same. Both make people disable, even mild to moderate illness.

[@bell4textu973]

Yes, and it is an autoimmun disease.

[@sherrybutts5947]

Why are they not studying the pathology of cancer and the blood coagulation similar in both diseases

[@Turtledove2009]

@@sherrybutts5947 They are.

[@SweetiePieTweety]

This was OUTSTANDING 👍👍👍

[@lasarod]

I have ME/CFS and now my son is having Long COVID symptoms. 😔

[@angelanicholson951]

Same

[@traiandanciu8139]

May low temperature agglutinine occur after SARS COV2 infection and induce erytrocyte aggregation at low blood temperature? inducing capillary subobstruction.

[@traiandanciu8139]

At TWiV659 at min29 Christian Drosten indicate low tissue temperature better to replicate SARS COV2.

[@c.k.1530]

Try L Arginine for Chronic Fatigue Syndrome gave to my dad he seems better not as tired

[@FORTRAN4ever]

I can be called a ME/CFS long Hauler. I got "sick" back in 1988. I have gotten better but nowhere where I was when I fiat got sick. Some symptoms like chronic sore throats and swollen glands have gone away others have been less severe such as night sweats and cognitive dysfunction (though still very disabling). However, my intolerance to aerobic exercise will result in a crash that will set me back for several weeks. Also what has changed is a medical community that remains skeptical of the actual existence of ME/CFS and blow me off by saying "so what else is going on with you?", despite mountains of evidence that ME/CFS along with Long COVID are metabolic disorders resulting from dysfunctional mitochondria. I am sure that when a definitive ME/CFS diagnostic test is made available, doctors will be forced to get out denial about the existence of the disease and be forced to take their ME/CFS patients seriously.

[@bitegoatie]

Thanks for the video, but please, please stop dropping -al suffixes. It’s distracting listening to science talks with the combination of adjective overuse combined with truncated suffixes in those gratuitous adjective instances. It’s a community problem in the sciences, and it has begun to creep outward into other fields by way of the web. Do your part. Say “immunological”, for example, because chopping off the suffix results in a word with no use (unlike the noun “logic” for example - generally, the raw -ic and -ics words are nouns, not adjectives). On content, thank you - this is good stuff.