The Link Between ME/CFS and Long COVID

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In this week’s episode, Haylie Pomroy is joined by Dr. Nancy Klimas, renowned immunologist and expert on ME/CFS, and Dr. Ana Palacio, Professor of Clinical Medicine at the University of Miami and Co-Director of the Long COVID Clinic at the Miami VA.
Together, they explore the challenges of long Covid, comparing it to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). They discuss their impacts on the immune system and their triggers, like viruses and mold, emphasizing the need for thorough testing and better access to care for those dealing with these illnesses.
Tune in to hear Haylie, Dr. Klimas, and Dr. Palacio share hope, useful advice, and simple explanations to help you understand and manage long COVID and ME/CFS.
Key points:
00:00 Introduction
02:19 Dr. Palacio’s personal journey with long COVID
03:57 Challenges parents face in getting a correct diagnosis.
04:11 The process of evaluating a new patient.
06:05 The importance of studying diverse populations.
07:36 The complexity of ME/CFS.
08:27 The similarities between ME/CFS and long COVID.
11:55 The systemic immune response in ME/CFS.
12:55 The hypervigilant state of the immune system.
14:37 COVID as a trigger for immune responses.
17:13 Environmental toxins’ impact on the immune system.
19:34 Why we should prevent repeated hits to the immune system.
20:35 The lack of access to comprehensive care.
22:14 COVID-UPP Study: Recruitment process.
25:14 The lack of widespread knowledge about ME/CFS.
27:23 Why patients should document health changes.
30:16 Doctors need to be reeducated about ME/CFS and long COVID
32:36 Long COVID vs. ME/CFS: Rapid development
33:37 Existing ME/CFS research helps long COVID research.
35:37 COVID-UPP Study: Contact information
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Dr. Nancy Klimas, M.D., is the Director of the Institute for Neuro-Immune Medicine where she directs a group of remarkable interdisciplinary scientists and clinicians. They collaborate to discover innovative strategies for treating and preventing chronic illnesses, while also focusing on training the next generation of clinicians and scientists. With 40 years of professional experience, Dr. Nancy Klimas is internationally recognized for her work in multi-symptom disorders, including ME/CFS, GWI, fibromyalgia, and Long COVID.
LinkedIn: / nancy-klimas-49255178
Dr. Ana Palacio is a Professor of Clinical Medicine at the University of Miami, Miller School of Medicine, and Co-Director of the Long Covid Clinic at the Miami VA Health Care System. She holds an MD from Universidad Católica Santiago de Guayaquil and a Master's in Public Health from Johns Hopkins University. Dr. Palacio completed her residency in Internal Medicine at the University of Miami/Jackson Memorial Medical Center and a post-doctoral fellowship in General Internal Medicine at Johns Hopkins.
Her work focuses on understanding and addressing long Covid, emphasizing patient-centric care and bridging the gap between research and clinical practice to improve healthcare outcomes​
LinkedIn: / ana-palacio-91183665
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#longCOVID #MECFS #COVID19 #PostCOVIDSyndrome #chronicfatigue #myalgicencephalomyelitis #clinicalresearch

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[@ChristineHampson-mo6uq]

I am just so grateful to have become a recent patient of INIM and am just starting my journey to hopefully a better life. Local doctors dismissed my low immune numbers after several years of me telling them something is wrong with me suffering from PEM after minor activity. I was able to avoid covid until late 2022 but after that my symptoms worsened to the point where I could hardly get out bed for a year. I was lost until I finally saw doctors under Nancy’s group and now have some hope. So grateful for the institute’s work and everyone working on solving ME/CFS/long covid. They developed treatment for HIV, it’s time for us now.

[@Gina-dn6xm]

ME/ CFS can come about with different viruses and bacteria infections, not just covid. I was diagnosed with ME/ CFS with a late diagnosis of lyme-disease. I had a positive test after 2 years of symptoms.

[@ceeemm1901]

Have you teased out the stats between people with vaxxed long covid sufferers and non-vaxxed long covid sufferers?

[@tanyawieczorek6603]

I'm interested in this too.

[@justinf1343]

I am a lifelong athlete who has had covid 3 times, and I have developed terrible PEM. I am contemplating trying a 3-5 day water fast as I just don’t know how to get rid of it.

[@PurposefulPorpoise]

Get ur vit D checked. Covid depletes D with every infection. They are finding that around 80ng/ml is optimal for health, as opposed to the standard 30 ng/ml.

[@tanyawieczorek6603]

Did you try it?

[@magdalenafernandezsaravia6409]

What does ME/CSF stand for?

[@SarahNelsonWA]

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

[@ceeemm1901]

I just Googled it. Took me a few weeks.It's- Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

[@lessons9745]

what does it matter what color you are or language you speak ? If you have ME/CFS there is little to no help anyway.(regardless if you're rich or poor ) and hardly anyone gets better.

[@tanyawieczorek6603]

Alot do get better..!

[@lessons9745]

@@tanyawieczorek6603 actually the recovery rate from long covid is much better than the recovery rate from me /Cfs /pots .

[@rowaneisner6802]

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