Ocrelizumab: What to Know About the First Agent Approved for Primary Progressive MS

[@sheridanrose9880]

Had my first 50/50 infusion and now my first full infusion and my second full in May 2019. I didn’t have any side effects at all. I have to leave 5:30 AM drive 200 miles and spend 5 hours in hospital doing the infusion and ten 200 miles back home after infusion. Makes for a real long day. I’ll get my first MRI since starting the process on February 1 2019. I still have balance, fatigue, cog fog issues. Not worse may sometimes a little less. But hey! I’m alive and doing fine!

[@ldjt6184]

Sheridan Rose And how are you doing now, in May 2019?

[@melodicseaweed387]

Wow! Thank you Robert Bermel and Cleveland Clinic, that's quite a breakthrough.

[@Cork_UO]

I heard a lot of may do this or may do that. Basically means they are guessing. I really hope this drug works well and doesn't cause more issues with long term use.

[@Petra44YT]

Thank you for explaining! Still, it scares me bc I feel I'm running out of options here. Antibodies against Interferons, Tecfidera doesn't work all that well anyway and Tysabri is pretty much ruled out by the JC antibody count. ... Sometimes, I just wish homeopathy would work as well as its supporters claim it does. But then, it won't. :-(

[@verynice1004]

How are you nowadays?

[@cherimatyjaszek2017]

Receiving my full treatment on the 8th of November.

[@amirardat1068]

Cheri Matyjaszek how do you feel now?my wife is looking to go on it.

[@spooky1292]

Cheri howe is with that new cure, is it better? i have PPMS and europ union approved that medication and i wait till octobar 2018 to take it! Pleas tell me howe is it!?

[@nopro69]

Can anyone tell me about can we use alcohol with Ocrevus i mean i had an infusion 4 months ago and i used alcoholic beverage yesterday is it fine

[@Lisa-ny5ke]

Yes, you can drink, just not on the day of the infusion and maybe one day after (my Neuro told me that)

[@nopro69]

Can we haavr a immunosuppressive drug after an immunosuppressive treatment? Thanks

[@gwarner572]

My wife was diagnosed in the mid-1990s with MS. April 4, 2022 she finished the 2 part first infusion for Ocrevus. She can't tell if it's doing any good. She has already questioned getting the second infusion. Has anyone had similar experience and it got better?

[@slotigy]

What do you mean got better? It’s to halt progression not to reverse MS damage.

[@sonsofanarchy5316]

Ocrevus is for my forms ms pp tysabri for relapsing remiting

[@richardlisacki2250]

I am 70 years old and was told that the benefits of MS drugs decrease after age 55 and the risks out way the benefits. Studies that are conducted when a drugis approved are done on younger people, 40's and younger. Is this true?

[@JoeD60]

They are giving it to all ages.

[@catswalkjpgr]

I wasn’t diagnosed until I was 50. I believe I had it for almost 20 years before.

[@ldjt6184]

YES, IT IS TRUE.

[@slotigy]

You could always take nothing and end up wheelchair bound.

[@khaledhany3722]

where can I get this presentation PowerPoint??

[@Sbannmarie]

Good luck

[@sonsofanarchy5316]

I need ocrevus

[@melindalewis9532]

What are the side effects/untoward effects of this drug?

[@melindalewis9532]

Also, specifically, how is this drug better than Rituxan?

[@jason0998]

I heard it’s more direct than Rituxan

[@OlgaMesh]

What is better Tysabri or Ocrevus?

[@MSHotMess-ed3ku]

Olga Mesh Big O is supposed to be a much better treatment. And there isn't supposed to be a risk for PML. BUT there have been patients who have developed PML after starting Ocrevus, but they can't pin point if it was caused by the use of prior treatments of Tysabri or Techfidera. Before I started it I did and still have been doing a hell of a lot of research on this and from what all I've found ALL monoclonal antibody targeting treatments carry a risk of PML.

[@sonsofanarchy5316]

Ocrevus îs for ms primar progresive and tysabri for ms relapsing remitins rr

[@jason0998]

Ocrevus and Tysabri are both good

[@Lisa-ny5ke]

@@sonsofanarchy5316 no Ocrevus is also for RRMSa Both are great, the best two medications right now

[@mobleyMobley]

@@sonsofanarchy5316 ocrevus is approved for both.

[@dannyboy9926]

they have left out the side effects - the brain infection etc that odds do increase over time.

[@jason0998]

There hasn’t be a single case of PML on Ocrevus. That doesn’t mean that it won’t occur though.

[@ldjt6184]

If he would STOP saying things like "THOUGHT TO BE" and "MAY" all the time and start saying things with 100% certainty I'd have a lot more confidence that ms neurologists are even sure themselves about what they're talking about and telling others about medications. For God's sake, stop messing around with our health!!

[@abigail.r.snyder77]

Kelly J well that’s the thing they don’t entirely know. That would be why there is no cure hun. It’s not easy for them to do this stuff....🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️

[@roberture5903]

@@abigail.r.snyder77 very well said Abigail. Prayers and blessings to you.

[@sonsofanarchy5316]

Copaxone✌️✌️✌️ 😵😵ocrevus do not exist în Romania