Had my first 50/50 infusion and now my first full infusion and my second full in May 2019. I didn’t have any side effects at all. I have to leave 5:30 AM drive 200 miles and spend 5 hours in hospital doing the infusion and ten 200 miles back home after infusion. Makes for a real long day. I’ll get my first MRI since starting the process on February 1 2019. I still have balance, fatigue, cog fog issues. Not worse may sometimes a little less. But hey! I’m alive and doing fine!
@ldjt61845 жыл бұрын
Sheridan Rose And how are you doing now, in May 2019?
@melodicseaweed3877 жыл бұрын
Wow! Thank you Robert Bermel and Cleveland Clinic, that's quite a breakthrough.
@Cork_UO4 жыл бұрын
I heard a lot of may do this or may do that. Basically means they are guessing. I really hope this drug works well and doesn't cause more issues with long term use.
@Petra44YT3 жыл бұрын
Thank you for explaining! Still, it scares me bc I feel I'm running out of options here. Antibodies against Interferons, Tecfidera doesn't work all that well anyway and Tysabri is pretty much ruled out by the JC antibody count. ... Sometimes, I just wish homeopathy would work as well as its supporters claim it does. But then, it won't. :-(
@verynice1004 Жыл бұрын
How are you nowadays?
@cherimatyjaszek20177 жыл бұрын
Receiving my full treatment on the 8th of November.
@amirardat10686 жыл бұрын
Cheri Matyjaszek how do you feel now?my wife is looking to go on it.
@spooky12926 жыл бұрын
Cheri howe is with that new cure, is it better? i have PPMS and europ union approved that medication and i wait till octobar 2018 to take it! Pleas tell me howe is it!?
@nopro694 жыл бұрын
Can anyone tell me about can we use alcohol with Ocrevus i mean i had an infusion 4 months ago and i used alcoholic beverage yesterday is it fine
@Lisa-ny5ke4 жыл бұрын
Yes, you can drink, just not on the day of the infusion and maybe one day after (my Neuro told me that)
@nopro695 жыл бұрын
Can we haavr a immunosuppressive drug after an immunosuppressive treatment? Thanks
@gwarner5722 жыл бұрын
My wife was diagnosed in the mid-1990s with MS. April 4, 2022 she finished the 2 part first infusion for Ocrevus. She can't tell if it's doing any good. She has already questioned getting the second infusion. Has anyone had similar experience and it got better?
@slotigy2 жыл бұрын
What do you mean got better? It’s to halt progression not to reverse MS damage.
@sonsofanarchy53165 жыл бұрын
Ocrevus is for my forms ms pp tysabri for relapsing remiting
@richardlisacki22507 жыл бұрын
I am 70 years old and was told that the benefits of MS drugs decrease after age 55 and the risks out way the benefits. Studies that are conducted when a drugis approved are done on younger people, 40's and younger. Is this true?
@JoeD607 жыл бұрын
They are giving it to all ages.
@catswalkjpgr6 жыл бұрын
I wasn’t diagnosed until I was 50. I believe I had it for almost 20 years before.
@ldjt61845 жыл бұрын
YES, IT IS TRUE.
@slotigy2 жыл бұрын
You could always take nothing and end up wheelchair bound.
@khaledhany37226 жыл бұрын
where can I get this presentation PowerPoint??
@Sbannmarie2 жыл бұрын
Good luck
@sonsofanarchy53165 жыл бұрын
I need ocrevus
@melindalewis95325 жыл бұрын
What are the side effects/untoward effects of this drug?
@melindalewis95325 жыл бұрын
Also, specifically, how is this drug better than Rituxan?
@jason09985 жыл бұрын
I heard it’s more direct than Rituxan
@OlgaMesh6 жыл бұрын
What is better Tysabri or Ocrevus?
@MSHotMess-ed3ku6 жыл бұрын
Olga Mesh Big O is supposed to be a much better treatment. And there isn't supposed to be a risk for PML. BUT there have been patients who have developed PML after starting Ocrevus, but they can't pin point if it was caused by the use of prior treatments of Tysabri or Techfidera. Before I started it I did and still have been doing a hell of a lot of research on this and from what all I've found ALL monoclonal antibody targeting treatments carry a risk of PML.
@sonsofanarchy53165 жыл бұрын
Ocrevus îs for ms primar progresive and tysabri for ms relapsing remitins rr
@jason09985 жыл бұрын
Ocrevus and Tysabri are both good
@Lisa-ny5ke4 жыл бұрын
@@sonsofanarchy5316 no Ocrevus is also for RRMSa Both are great, the best two medications right now
@mobleyMobley4 жыл бұрын
@@sonsofanarchy5316 ocrevus is approved for both.
@dannyboy99267 жыл бұрын
they have left out the side effects - the brain infection etc that odds do increase over time.
@jason09985 жыл бұрын
There hasn’t be a single case of PML on Ocrevus. That doesn’t mean that it won’t occur though.
@ldjt61845 жыл бұрын
If he would STOP saying things like "THOUGHT TO BE" and "MAY" all the time and start saying things with 100% certainty I'd have a lot more confidence that ms neurologists are even sure themselves about what they're talking about and telling others about medications. For God's sake, stop messing around with our health!!
@abigail.r.snyder774 жыл бұрын
Kelly J well that’s the thing they don’t entirely know. That would be why there is no cure hun. It’s not easy for them to do this stuff....🤦🏻♀️🤦🏻♀️🤦🏻♀️
@roberture59032 жыл бұрын
@@abigail.r.snyder77 very well said Abigail. Prayers and blessings to you.