Overcoming Barriers to Access Care, Dr. Bateman October 2019

[@annettewhittemore7116]

This is an excellent resource for those who face the challenges of ME/CFS whether you are a patient or a caretaker. Thank you, Dr. Bateman, for taking the time to provide this helpful information to the public. I hope that others will share this video with their family members and physicians!

[@apple369]

Thank you very much! This was a lot of succinctly presented information and I'll be drawing significant support from it. I'm newly diagnosed with ME although I can see evidence of it going back 30 years. I was diagnosed with HIV in the early 90s and anything that I brought forward to my doctors went into the HIV basket. BUT I always knew there was something else going on. Last month my HIV specialist finally said, "there might be something else happening here." She's given me a referral to the ME/CHF clinic in my city and there's a 28-month waitlist! I've been doing a lot of research and this video has been the most helpful in giving me tools to communicate my symptoms and my day-to-day experiences. I'm going to start documenting the things that you specified as well as find a GP who I can work with until I get into the clinic. Again, thank you!

[@danashannon8234]

28 month waiting list!!? Omg. We don't have a cfs clinic in my state. I'm totally alone. I can't even get to appointments now. Its so hard.