Other symptoms of spinocerebellar ataxia type 11

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[@patsyriggs3915]

I am 75 in November but still mildish symptoms. my diagnosis is presumed idiopathic cerebellar ataxia. I have most of the symptoms you describe especially the height issue. I choke on my own spittle or food without warning. Taking a drink from a tray gives me the wobbles and same when greeting people. My immune system seems ok but if I do get a cold, it is very debilitating. My cerebellum may be under developed rather than shrunk due to me be premature birth but this hasnt been investigated as records for 1942 are difficult to obtain. My speech isnt slurred but I have to make effort to speak up to be heard. I didnt start falling over till my late 50's and have worked from 15 to 60 years of age doing jobs to numerous to mention but mostly typing. I have donated a couple of pounds to Shaky Life ... you are doing a great job and I wish you luck with your claim.

[@Myshakylife]

Thankyou so much Patricia. I'm really interested to hear your story so thanks for sharing, i'm glad to hear your symptoms aren't too bad at the moment because it gives me hope! Also thanks for your donation, it means a lot to me.

[@patsyriggs3915]

you're very welcome .. I I'm looking forward to hearing more from you. Patsy x

[@abdelhalimloukil7315]

Hi, just a small message to encourage you... we are working on SCA11 to see how the mutation affects primary cilia. good luck dear friend

[@Myshakylife]

Thank you that's great news.

[@sub4228]

I have Ataxia .... I alway feel like I just got off ride beside the falling into stuff ... but I also get the rush your talking about I thought it was just me, my speech gets jumble up the word come out back wards but one thing that never stops in me is my humor glad your on here

[@Myshakylife]

sub4228 we're all in this together my friend, thanks for watching

[@OzTerri]

Please join our SCA support group!!! We need your loveliness.

[@ajaylack4252]

Thanks so much for your vid. You summed up so many things that happen to me but nobody ever twigged that it was all part of this. The vertigo is huge! Also, tinnitus. I couldn't walk for ages but taught myself to walk again then just today I forgot how to walk and it's so scary and depressing sine I was just getting my shit together. I have sporadic ataxia but first they diagnosed MSA. Thanks for articulating all the things that go along with this weirdness.

[@OzTerri]

Thank you so much "'Shaky" ... I will share on a big FB group which is for SCA support. You rock.

[@Myshakylife]

Thanks

[@OzTerri]

It is entirely up to you of course, but our group of people with SCA ( 2,600 around the world) will benefit hugely from your videos.

[@Myshakylife]

Oz Terri yeah I'd love to be involved

[@OzTerri]

may I join you to our group? I prormise no weirdos :)

[@Myshakylife]

Oz Terri haha I hope not and yes you can

[@jaitegh6735]

it's amazing how u fight through them keep it up

[@Myshakylife]

Thanks I will, appreciate the comment!

[@kennethdarlington682]

Just finish speaking to a friend of mine who was suffering from Ataxia 🤒🤒for years but after a recommendation of Madida herbal center’s treatment to him, all his symptoms and ataxia was reversed with him completely restored to he normal self….

[@titabebe7101]

Hi I have a 3 year old daughter tat has spinocerebellar ataxia I have been looking for treatments even though doctors say its a on going progressive illness I don't know which type she has I came across Stem Cell treatments is that something you've thought of trying?

[@Myshakylife]

I've heard about it but according to any doctor or specialist I've spoken to it's not worth the money because of how complex the condition is, I understand that the videos on youtube make it look good but I can't see it doing much at the moment.

[@lisapartridge9079]

I was just told that I have spinocerabeller ataxia. I fall backwards a lot. I get mussel trimmers. I walk like I'm drunk How long have you had it ?

[@Myshakylife]

all my life

[@OzTerri]

hi carmen, please do not waste your time or money on stem cell treatments, it is just a scam.

[@ceekay7535]

Fred how does this affect your life as a much in demand male model?

[@Myshakylife]

Depends what i'm doing, walking down the catwalk is a struggle but boudoir shoots are fine.