OUR BABY WAS DIAGNOSED WITH A “LIFE LIMITING” GENETIC SYNDROME | OUR TRISOMY 18 STORY

Our precious baby girl, Lebone, was diagnosed with Trisomy 18 after she came into our lives. Trisomy 18, also known as Edwards syndrome, brings challenges affecting various parts of the body and causes developmental delays. While it's considered a life-limiting condition, we've chosen to embrace every moment with her.
During pregnancy, we opted not to undergo genetic testing. For us, termination was never an option, and we wanted to cherish the journey without unnecessary worries. We firmly believe in the sanctity of life and that each child is crafted by a loving Creator with a purpose.
Learning about Lebone's diagnosis filled us with fear. The doctors painted a bleak picture, warning us not to expect much and preparing us for the worst. The possibility of losing our baby shook us to our core.
Yet, Lebone has shown incredible strength. Despite spending 45 days in the NICU, she's now home where she belongs. Her sisters adore her, and our hearts overflow with love for her. This journey has taught us to trust in the Lord's plan, knowing that He has good intentions for us and for Lebone.
In the midst of uncertainty, we've witnessed God's guiding hand and find solace in the belief that He's writing our story, and it will be beautiful.
If you are facing a similar diagnosis and would like to connect with us, email us on [e-mail]❤️
#trisomy18 #geneticdisorder #edwardsyndrome

[@menniekumalo3276]

My niece also has Edward’s syndrome, we were told she won’t live long, and prepare for the worst. She turned 1 year last month. She is a miracle, even her Dr gets shocked every time my sister takes her for checkups. God is indeed God of miracles. We see his greatness daily!

[@khwezimabunda]

This is so powerful! Thank you for sharing this

[@Nokukhanya.Khumalo]

Thank you so much for sharing we bless the Lord Jesus Christ❤🙏

[@rosiempembe]

❤❤

[@glenngwenya1084]

Thank you for sharing this massage it gives a lot of parents hope❤❤

[@nwabisapbodlo3246]

Wow that’s amazing. To happy more birthday for your niece 👏🏽 God is good ALL the time

[@Agnetha.K]

Everyone deserves a husband like this. He's so attentive and so considerate, bless his heart 🥺❤️

[@leratodyani1586]

I agree hey🥰

[@gabsilemtsweni628]

Thats true hey ,its a gift from God having a supporting partner

[@stephaniebrown3712]

She shall live and not die. He is the God of all flesh there is nothing too hard for Him to do His grace is sufficient I will continue to pray for your strength.❤ 🖤💛💚🇯🇲

[@stephaniebrown3712]

This is a beautiful story about a beautiful baby girl whose life is going to make a difference in this world 💖✨️ VICTORY BELONGS TO YOUR BABY GIRL ✨️💖 I am bless and encouraged by your baby girl story

[@nthabelengsethole]

Thank you for sharing your journey...trust in the Lord with all your heart ❤don't rely on your own understanding.

[@mapulemagdelene2558]

I was born with two wholes on my heart, I never thought I'd live long but im now 29 married with kids ...let's give God the 🖋 pen , and let him write the beautiful testimony , the God of impossibilies, nothing takes him by a surprise!!!!! His the beginning and the end of everything! He says submit everything to me and I the Lord will make ur paths right!

[@motheowalerato701]

Woooow❤❤❤ 🙌🙌🙌

[@Bokamoso_Kaisara]

❤❤❤❤❤❤❤

[@ShalomHazel]

🔥🔥🔥🔥🔥 Yuuuu

[@gabobofanemonchwe4855]

My son was born with a hole as well , it was repaired last year and will be turning seven on the 6th of May 2024. We thank God for His mercies 🥺 ❤❤❤❤

[@pulelady]

I’m sending you a big hug, may God continue to bless you with long life ❤

[@kabelontobo303]

When you get a chance, find yourself a prayerful spouse.

[@sayless1445]

💯

[@motheowalerato701]

Amen🙌

[@missthuli6901]

GOD is more powerful than doctors. When my nephew was born, we were told he wouldn't live to the age of 1, 2 latest. He turns 22 this year and just graduated. Praying for you guys and your family 🙏🏾❤️

[@cynthiahillian]

Amen. We believe the report of the Lord!!!!

[@neosjournal_]

Glory be to God!

[@motheowalerato701]

🙌🙌❤❤

[@mondetessa]

Yooh Nkulunkulu uthembekile, thank you for sharing 🎉

[@wishingyoupeace]

Statistics are a set of numbers that are a true calculation but no doctor ever knows or will say where you will land because they can’t. They can only provide statistics.

[@ketie_]

Lebone will one day tell her story of how she beat every odd... Lebone is that girl!!! ❤...

[@luphelelemavuso8594]

❤beautiful ❤ and Amen

[@mamogomaponya7301]

Amen!

[@angelahTomtom2710]

Faith ✨💡

[@motheowalerato701]

Amen🙌❤❤❤

[@UnathiMinenhle]

Light ❤ her name speaks

[@natashahlongwane8037]

I remember when my little brother was born fentse,my mom was told the he wouldn't be able to walk and he would not lead a normal life,my mom was shattered as the big sister i had to step in as young as I was at the time i had unbelievable faith and that's what the baby needed we took a journey,if i tell you the impossible happened when i began to train him how to sit and strengthen his back i believed with all my heart that he would walk and lead a normal today when i tell God is faithful he is walking and he is going to normal school till this i day i testify the goodness of the Lord..Trust in God family for nothing is impossible with God❤

[@resolofetsediphalane3179]

This is a beautiful testimony. God is at work all the time🙌🏽

[@bomkazizuma6397]

God is faithful🙌🙌🙌

[@omolemokodisang157]

This is such a beautiful and much needed testimony, I hope they see this

[@glenngwenya1084]

❤❤❤❤

[@faithsdollsville2662]

This is powerful! Glory to God.

[@gracemabusela6432]

Not me sobbing right now. My daughter has the same. She's turning 7 in November. Seven years of literally trusting God for her next breath. I don't even want to start talking about schooling, peers etc. But that's when we experience the full grace of God❤ all the best guys

[@nakkymutambo7805]

Look at God. Glory be to him alone

[@mamokonelelimo8573]

Jesus..... We thank you...❤❤❤❤

[@mantumomongalo5457]

Amen.. Thank you Lord ❤

[@motheowalerato701]

❤❤❤❤

[@ntebomkontoane]

❤

[@sinelizwinkwali9845]

Since the clip dropped on IG, Lebone has been mentioned in thousands and thousands of prayers, one after another, and let me tell you that girl is fully covered by the blood of Jesus and surrounded by the Dream Team's prayers. We will continue to hold hands continuing to pray in support of the breakthroughs she's going to get through. In the name of Jesus, she will lead a normal life like her other siblings do. Stay blessed 🙏

[@motheowalerato701]

❤❤❤❤

[@zandilencube3328]

Amen Amen Amen. God bless you dear

[@nunkumlambo7446]

Amen

[@achobijanet4932]

Lebone will live. Lebone will not die. Lebone will live and declare the goodness of God in the land of the living. Her entire body is perfected. Her heart, brain, bones, ligaments, and joints are perfected. Lebone will live and outlive her parents. I believe that so strongly. There's no fear in my heart about this.

[@nametsomarumoloa1757]

Amen

[@lesegokesegofetsemanowe1352]

AMEN!!!

[@ayandanofumba9865]

Amen

[@chessranebezuidenhout9137]

Amen

[@tendanipelaelo6293]

In Jesus' name! AMEN

[@boitymellow]

What a testimony "Her condition was hidden from us but God knew her form". Love and light to baby Lebone.

[@Goodness222]

🥺 I understand what you mean. For an entire 9 months I went for scans because I wanted to know if my baby is healthy, and I would get a response that she is healthy and they couldn’t pick up that my baby girl has a Club hand syndrome and when I gave birth and looked at her hands I saw that my baby is disabled so that is true that her condition was hidden from us and everyone but God knew her form.

[@_Palesa_M]

Mellow 🤍

[@keolebilemmoke60]

God really made a perfect choice for Lebone's Parents ❤

[@Miss_Zimm]

I was literally thinking that too.

[@keolebilemmoke60]

@@Miss_Zimm right , I think their state of mind and strong faith in God is just making perfect sense to parent Lebone la ga Makhetha May our God continue to give the sttength ❣️

[@Tshegohatso]

amen ❤❤❤

[@glenngwenya1084]

​@@keolebilemmoke60I wish I can like your comment 50 times❤❤❤

[@FindingNeli]

He knew when He knit Lebone in her mother’s womb. He is a Sovereign God.

[@starblack1323]

Drs can be insensitive at times😢I remember in 2007 wen diagnosed with non hodgkins lymphoma my oncologist told me that I have 6months to live if I'm lucky🙄it's now 16yrs later and I'm still going strong..... We serve a living God and Lebone is gonna be a testimony that God is faithful afterall all things work together for good to those who trust the lord and are called according to His purpose 🙏

[@violetphahlamohlaka8011]

The same spirit that raised Jesus from the Dead, it will completely heal Lebone in Jesus name

[@motheowalerato701]

Wow🎉🎉 Amen 🙏🙌❤❤❤

[@JamieleeSelamodi]

I saw an adult with Trisomy 18 , I have faith that Lebone will too live a full life into adulthood, doctors can say whatever but God has the last say

[@motheowalerato701]

Amen and Amen 🙏🙌

[@palesapalesa938]

Being Christian demands you to go against the grain, when you face adversity your response is "thank you" not why me. Thank you guys for just showing the world what Christianity is what it means to walk with christ. Let God show himself strong the way he chooses to. Praying for Lebone ❤

[@glenngwenya1084]

@palesa thank you for such a gentle Godly reminder I did that when I lost my girls I asked why me and I thought God allowed me to be a laughing stock and when people felt sorry for me I felt like I was really a certified laughing stock of my hood. Thank you❤❤❤

[@palesapalesa938]

@@glenngwenya1084 ❤️❤️

[@palesapalesa938]

❤❤

[@motheowalerato701]

Amen🙌🙌

[@sweetnessgyamboe4897]

I can literally see the heaviness in Mr Makhs eyes. He is by all means trying to be strong for the family. The Lord will see you guys through!

[@ladyqngomane]

Literally😢

[@Jesuslovesme137]

And His disciples asked Him, “Rabbi, who sinned, this man or his parents, that he would be born blind?”Jesus answered, “It was neither that this man sinned, nor his parents; but it was so that the works of God might be displayed in him. - John 9:2-3

[@Grow-at-home]

Powerful!!!!

[@yolandamzizi4138]

❤❤Amen!!!

[@vuyolwethumabengu4673]

Amen

[@katmodi]

🙌🏾🙌🏾🙌🏾

[@favouresmeralda1946]

Amen

[@leratomolele]

am i the only one who felt the presence of the Holy Spirit whilst watching this. Ebenezer! ❤

[@motheowalerato701]

Right 🥺🙌🙏❤❤❤

[@duduzilemn6597]

"Termination was not an option." Your faith, guys, it just renewed me.

[@motheowalerato701]

🥺🥺🥺🥺

[@sitdownswithsphiweLevenim6417]

your wife`s aura is so pure and peaceful man, love her so much

[@neosjournal_]

I know right🥹

[@NtsikiManson]

Chief Kgaogana le go rata basadi ba batho😂 next thing every woman you meet, Phetolo becomes the barometer you'll be referring to.

[@sitdownswithsphiweLevenim6417]

@@NtsikiMansonI am not a man, I am a woman and a happily married woman at that🙄

[@motlatsomoloi]

This is such a beautiful testimony. I’m 25 years and I have a 6 year old with Down syndrome. He has had a kidney related surgery and an open heart surgery. We were told that by the time he is 6 his one kidney that’s left in his body would start failing and he would have to go on dialysis and ultimately a kidney transplant. But God is so faithful and we can trust him. He hasn’t been to the hospital in 2 full years, he is happy and healthy, going to school, going to therapy, going to swimming and easily being the joy and light of our lives. God is our most trusted physician, a creator who makes everything perfect and a good father who gives us only good and perfect gifts and it is his report alone that we believe. I wish you all the best in your journey mom and dad. May God increase your capacity to raise your beautiful light and heal her in a way only He knows how to. ♥️

[@Maria-yp6le]

God bless you

[@Woman_Of_Substance]

Amen and Amen ❤❤

[@nomlilomthembu9526]

Our God! Is a FAITHFUL GOD. ❤

[@thembisilelettysibanyoni811]

God bless you ❤

[@motheowalerato701]

🙌🙌🙌💃💃💃🎉🎉🎉❤❤❤❤

[@preciousgwamanda3602]

I'm watching this and I'm crushed . Thinking that I've done abortion and then conceived and everyday guilt was eating me. Everyday I was worried about what ifs. I gave birth to a healthy baby boy. God I'm so sorry for everything I have done. People who love You to their core are being tested. Oh Lord I'm truly sorry forgive my deeds. God I pray for the Makhs and I ask you to show yourself to them God and baby Lebone in Jesus mighty name 🙏.

[@Grow-at-home]

God is faithful❤️ and the scripture says “ He is faithful and just to forgive our sins” if you have confessed God has forgiven you. He casts our sins into the deepest of seas never to remember it again. Satan wants you to feel defeated. Christ died for all our sins. You have victory in Christ. Don’t feel defeated. Use your testimony to encourage other woman. You brave for sharing. God heal you ❤️🌸

[@LocalEdits_v8j]

God has forgiven you! It is now time you forgive yourself too, beating yourself into a mistake you made because you didn’t know better won’t make others have healthy babies, don’t get stuck in self condemnation, that is what the Devil wants, use it as learning lesson to glorify God & like Jesus said “go & sin no more”

[@motheowalerato701]

❤❤❤❤

[@siyamthandaphiri9102]

I have a daughter with down syndrome. She is 15 years now.God chose me for a reason same with you.Its great that this child has two parents that love each other and support one another. ❤

[@maggiemofokeng5270]

Lebone needed a family, a mother, and a father, and God knew that you were the perfect parents to love and care for her for the days of her life. Many are the afflictions of the righteous, and God will deliver them from them all. Much ❤️ 🙏

[@motheowalerato701]

Amen 🙌🙏

[@khanyi_ng]

I cannot imagine how hard it was for you to even record this video. This was painful to watch but what is comforting is the level of faith I see throughout the video. What I see here are parents who fully trust in the will of God, parents who have decided to find solace in God and His word where disappointment would have wanted to thrive. Oh dreamteam, there is truly a God in heaven who is bigger than a medical diagnosis and you will continue to testify, this is only the beginning of your testimony. ❤

[@Loralou4455]

❤amen

[@palesakhabanyane3682]

Yhuuu I cried so much😢😢

[@motheowalerato701]

Amen 🙌

[@fulufhelomatodzi649]

I am a paediatrician and my heart is so touched. We need to change

[@rethabile9908]

Please...

[@mpoimatete7269]

This is a heavy comment but it really carries alot of truth and sadness 😊😢

[@molokorapholo]

Sis. I thought the exact same thing.

[@CbosEasyRecipes7]

Hi Fulu 💞

[@nomlilomthembu9526]

A WORD!

[@nkolopk]

You guys are about to be Pastors!! Are about to lead people!!! ..sometimes God prunes you 1st hand to not just speak out of knowledge but experience!!! His probably testing your Patience, your commitment, your ability in trusting in him enough!!! Might look tough now but I see this a training for the journey you about to take! Endure it, Love you guy❤

[@reabetswem_]

So true 🥰

[@lalachidi6479]

couldnt agree more

[@rofhiwamashige4764]

You took the words right out my mouth,I was literally just thinking the exact same thing🥹

[@Amahle361]

You are sharing this, that's exactly what crossed my mind. I even said that, maybe they will be the Pastors of a church I will attend, as I have been without a church for two years now. Maybe nje I am waiting for them to start pastoring.

[@MissNomps]

Thought of exactly the same thing❤

[@JenniferLange-tq5rr]

My Baby Girl Matilda was diagnosed with T18 in the first trimester. We decided to continue the pregnancy and let her decide how far she wanted to go. Me made it through all the pregnancy and we had the most beautiful unassisted delivery. She was born in heaven 25 hours later! It was the most precious time 🩵 we love her very much. Hugging you

[@Andrea__Moodley]

I balled my eyes out. I lost my 11 day old baby last month, Zachariah was born in Mauritius, where my husband and I live. After we lost him, we thought if only we came to SA to deliver him, that could have saved his life but now I see that God knew his condition before we did. We prayed, our church prayed and God's will was done... I have to accept it 🙏🏼 I was searching for other parents who have had a trisome baby and Lebone story has really helped me. May The Lord be present, I love the part where you said you are proud of her ❤ God strengthen you all 🙏🏼🙏🏼🙏🏼

[@claudinemofokeng4025]

❤bana baka, le hapile moya waka. Authentic, selfless, gracious and full of God's love. Bon Bon wa Ouma. I love u with all my heart. May God's will be done in your life. Such LIGHT!!!?

[@motheowalerato701]

❤❤❤❤

[@busisiwesibozo1731]

By the stripes of Jesus Christ we are healed. Lebone is healed, loved and designed for a purpose. When God created man He declared that it was “VERY GOOD”. Lebone is a very God design of God❤ I am rooting for you Makhs family. Those who hope in the Lord will have renewed strength. You shall never lack strength because your hope is in the Lord❤

[@asandabikitsha6586]

❤❤❤❤❤

[@leboholomiss148]

❤❤🙏

[@motheowalerato701]

Amen 🙌🙏❤❤❤

[@Agnetha.K]

"You need to do everything to protect your wife" the video barely started, and I'm already crying 😭

[@RayOfLetsatsi]

Phetola really won here🥺😭

[@nkosana_wongama]

I literally wanna copy&paste her prayers bc what a husband!!😭❤❤❤

[@mammusomanale7598]

It’s so emotional, but their believe & strength are unmatched ❤️‍🩹

[@tamimaphangwa8161]

I had an unplanned c-section, the Dr said straight to my eyes that my baby's heart has stopped beating so you know what that means and I said No.. My baby was in NICU for 2 weeks coz she couldn't breath on her own.. Today my daughter is 13 months old and healthy.. God will see you through and baby Lebone will be healed ❤️

[@motheowalerato701]

Amen 🙌🙏❤❤❤

[@Bazzooooka]

I’m a better person after watching this. I could have watched you all day, as I stay up past midnight buried in my medicine books. As a Christian and future Doctor I must say this tugged at all my heart strings. Learning about the trisomies is all about passing an exam to us at this point, but thank you to your beautiful baby for changing that dynamic. I look forward to journeying with you . Glory to the living God

[@Loralou4455]

Thank you for this, hopefully people like you will change the medical fields in terms of the compassion needed. Stay blessed and all the best 🙏🏽

[@motheowalerato701]

❤❤❤

[@fhumulanicathy]

She is a real Lebone in your family😭🙌🏽she came and changed your relationship with God.

[@N.e.n.e.z]

What does Lebone mean?

[@Tshegohatso]

Amen. Glory to God ❤❤❤

[@ronellecandice1536]

😭😭😭😭🙏🙏

[@nthubekhimakondo6384]

@@N.e.n.e.zLebone means Lamp

[@rebajardine9544]

John9:1-4 keeps coming to my mind while listening to your story…. ”While He was passing by, He noticed a man [who had been] blind from birth. His disciples asked Him, “Rabbi (Teacher), who sinned, this man or his parents, that he would be born blind?” Jesus answered, “Neither this man nor his parents sinned, but it was so that the works of God might be displayed and illustrated in him.“ ‭‭John‬ ‭9‬:‭1‬-‭3‬ ‭AMP‬‬ May Jesus walk with you on this❤❤❤

[@lebogangmaphopha8934]

Family...be strong we are in prayer with you. I gave birth to my son weighing 900g and drs said he will not live beyond 5months. It was not easy i would only cry i couldn't pray i couldn't do anything. He stayed in hospital 11 months. He underwent 8 operations. Today he is 13 very handsome boy, very intelligent....my prayer partner. Sometimes we go through things because of our callings as part of the training. Lebone is not going anywhere. She will grow to tell her story....she is a great woman of God. You are in our prayers The Makhs

[@NeneShabangu]

Wow what a testimony. Glory to Jesus Lebone will get to tell her story...you read my mind. She's a woman of God

[@tumimasibi2366]

Man, this comment really touched me 😢you’re so kind and we thank God for the gift of life I see Lebone telling her story too. Thank you for sharing ❤

[@MapuleXimba]

That's so beautiful, Modimo wa metlholo. Praise God. May he grow for the Kingdom of God.

[@MmeChuene]

Ay😅

[@motheowalerato701]

Woooow❤❤❤❤

[@ntokozontsele8194]

Praying for you family. I've experienced the same journey. It was twin pregnancy, born at 32 weeks. One twin (a girl) is diagnosed with Williams Syndrome, the other one (a boy) is normal. Good has been so good, they are 10 and both perfectly normally. Even though I'm still a special needs mom, I have never been so grateful for her. That child has saved me so much from myself in so many ways. Forgot to mention that, the week I delivered them, was the same week my mom started Chemotherapy, so I was so alone in this journey, and sadly she (my mom) passed away 18 months later. So nje, life has been giving me lemons but the girl played a huge role in my healing. So family, we are here to listen and support you. God is also good, He knows Lebone is exactly were she belongs, with you. You are the chosen ones, so consider yourselves special for being chosen. God has entrusted you with His precious treasure. We are special in God's eyes, because of these special beings ❤❤❤

[@misskay3862]

🫂❤️

[@pelisantisana4191]

Sending you love and light🫂

[@hazelshozi9072]

🫂♥️🫂

[@dineomakgobatlou2434]

🫂 🫂 ❤

[@njabulisomthimunye]

Sending you a huge hug , and love ! Those babies are lucky to have u as a mum.

[@sophiabrown2838]

Lebone is healed by the blood of Jesus, may the hand of Jehovah Rapha touch her in Jesus name. Lebone's life will be a living testimony of God's glory🙏♥

[@SimpleFaith-G]

Lebone has already stolen my heart. She is a beautiful baby. Lebone will prove Medical Science otherwise. She is going to he living proof that we serve a wonderful God. I have so much faith for her. She has conquered this!! You guys are blessed to be trusted with her life. It only gets beautiful from here …. ❤️

[@motheowalerato701]

Amen 🙌❤❤❤

[@thembinkosisijabulile3723]

This family just earned their self a subscriber. I have a Syndrome as well ,known as Ehlers Danlos Syndrome (EDS) I have the very rare one type 4 and 5. According to the doctors I wasn't gonna make it, my mom says she'd always check if I am still alive. She lived in fear that I would die any day, I just turned 26 last month and I've done beyond what was said about me I even graduated last year (BSc in Biomedical Scientist) the list is yet to get long because we serve a living God. When it comes to doctors we need to not view ourselves in a way they see us or what they say or how much they know, at the end of the day it's only God's will that matters. And somewhere in John He says "God chose us to come bare fresh fruits, that lasts long" I believe God chose Lebone to come and shine the light that she carries despite the diagnose and with God it gets better, I promise. ❤‍🩹❤

[@motheowalerato701]

❤❤❤❤

[@sukithenjiwemwale426]

The Great Physician will heal her in Jesus name

[@ronellecandice1536]

The great Physician 😭😭😭

[@unpackingwithcebo]

Oh He will🥹🙏

[@CindyWahaMakhado]

Jehovah Rafa 👏🏾

[@thelteemathe8657]

Amen and Amen 🙏🏽

[@motheowalerato701]

Amen🙌🙌

[@setapartbutterfly9142]

1hr video and This is the most quiet I’ve ever seen Lerato, even ending the video he had no words. Reminds me of my husband during our journey and loss. As women we speak, we cry, and they just process in their own way. Praying for you guys and our beautiful Bon Bon on this journey. The World will know her, many will be healed through her story ❤️

[@dianadoinglife]

I watched your video last year. May God continue to heal you

[@loiskubvaruno0919]

Thank you for sharing Lebon story may God give you strength through this, may God heal the little one ❤

[@setapartbutterfly9142]

@@dianadoinglife thank you so much ❤️❤️

[@motheowalerato701]

🥺🥺🥺🥺

[@LindyLanga]

“Lebone’s life has SO MUCH PURPOSE.” God is up to something wonderful and very special.

[@Sinesipho94]

Exactly what came to my heart

[@Fadzies_Baked_Bliss]

Amen

[@motheowalerato701]

Amen 🙌

[@moocowtv]

She has already stolen a piece of my heart..my new internet niece. We stand in agreement that she will live a long prosperous life. I pray for you guys..I pray that God continues to strengthen this family and that He continues to show you how amazing He is.

[@motheowalerato701]

Amen 🙌🙏

[@calvyntecia]

As a person in the medical field l am truly sorry 😔 about the treatment you got during your birthing process. The comment “google it”really doesn’t sound professional, don’t know if the individual made it as a joke or what but it honestly doesn’t sound like that doctor has empathy.

[@tumeloramolula8495]

"if you love Lebone the way you love her, how much more do I love her?" God 🥺🥺🥺

[@Dimpho_Smithfield]

Exactly!!❤

[@Elle_Tee_MrsM]

I just want take the weight off of Leratos shoulders and give Phetola a hug. His strain is written all over his face and his silence is so loud. I know its not the same but Drs told us to come say our goodbyes to our dad. We refused and prayed hard he woke up and till today hes referred to as the Miracle man. The Drs & Nurses escourted him on the hallway with song, prayer and claps as he left all in disbelief. I have the same faith for you and your family. Regardless of how things go....GOD WILL ALWAYS BE GOOD. Keep the faith. We love you

[@lebogangramela7093]

Me watching this as a medical dr really breaks my heart..we really need to work on our patient care😭

[@Loralou4455]

❤

[@RubaJust]

Is it because you work with these patients daily that you see them as objects?

[@anesugweshe5978]

I have just confirmed that no prayer just goes....You prayed fervently and consistently during your pregnancy,and your daughter has complications but it is those prayers that are giving your strength!

[@MbusoMaphumulo-t9m]

When I was pregnant 2 years ago after they did the genetic testing I was told that my daughter has a high probability of having down syndrome. I then offered further test to confirm, but the Dr was adamant that she is more than likely to have down syndrome. I even remember I had to sign a disclaimer that the Dr had informed me of this. My daughter is now 2 years old and she doesn't have down syndrome. She has no health conditions that are serious in fact she is very healthy. My point is even the test's themselves can be wrong. It is my belief that you have a very gifted and special child, cherish your moments with her .My daughter's name Kganya Lebone

[@luyandzasimelane467]

This gave me so much hope. Thank you

[@siphelelemdakane]

Lebone is here to break all human protocols and be a living testimony of why Jesus is Lord!

[@Maria-yp6le]

Amen

[@manaledimojalefa1868]

Amen❤

[@tamiymcharis]

Yessss! Come on now 👏🏽🙏🏼🙏🏼🙏🏼🙏🏼

[@motheowalerato701]

Amen 🙌🙏

[@mmatsie_tsotetsi]

For the fact that she made it to full term and she's 8 weeks it's a testimony on its own. God is able, he's a miracle worker and can do wonders. We will pray for you and Lebone❤

[@PatienceMajasi]

Lebone girl we love you. your aunties and uncles are here sending you love. We cant wait to celebrate birthdays with you. We thank GOD FOR YOUR LIFE.

[@pamelangwenya2547]

You know while listening to this video ,am already seeing her, celebrating her birthdays, her 1st,2nd,3rd,4th, 5th, 10th ,21st birthday and many more birthdays because we serve a living God ❤who just wants us to keep believing in him.

[@motheowalerato701]

Amen 🙌🙌🙌

[@MathebaShibu-mz1nu]

According to medical study Lebone was not even supposed to make it to full term but because God is the only one that knows the end from the beginning we got to meet this beautiful little ngwana,what a fighter she is ❤ Ausi Pheto stay strong My love,Jehova Rapha will do what he said he will do .

[@palesamakhetha1169]

Thank you for your honesty and your vulnerability fam. Too many of us as black families specifically attach shame to our "imperfect" children. This channel has been a ministry from day 1 and it's inspiring that even in this challenging time, you have both stood on integrity and shared even that which doesn't glitter. Lebone is a miracle and her purpose is great. Thank you for sharing her with not only us as her family, but with the world. Koena, Rakgadi loves you and couldn't be prouder of the life that God blessed our family with. Halala Koena.

[@CbosEasyRecipes7]

❤️❤️❤️

[@motheowalerato701]

❤❤❤❤

[@serametlhaganeng1258]

Gynecologist are going through a lot, our went through a lot during our 1st pregnancy, our son was diagnosed with IUGR, I have never been stressed like that in my life, my wife is a medical Dr, she was making things worse when she was explaining some of those experiences of fetal not growing in the womb, we prayed a lot, I stopped drinking that time, my wife was crying always she was admitted for a month, I was checking her everyday but the feeling of seeing her crying everyday was not nice, I was even afraid to take her calls. All our scans were abnormal, birth weight was 1.8kg but God answered our prayers,. Our son is healthy 19 months now even though we struggled about feeding, he was rejecting every milk, spitting, couldn't sleep flat, he was always on our chests for 7 months. He is very naughty and doesn't want to eat😂😂😂 We are currently on 20 weeks pregnancy, we took blood month ago and last week our daughter was diagnosed with trisomy 18, our gynecologist and specialist are stressed again. We went to do scans yesterday and are normal, we checked everything, we waiting to do amnio fluid test, the needle one. We stressed a lot during our 1st pregnancy, I told my wife that we leave everything to God's hands, whatever results we accept. Lebone will be healed in Jesus Christ name, will put her in our prayers. God said I knew you before you were born, He is aware of your journey.

[@PabiMathiba]

"God saw all that He had made, and behold, it was very good..."

[@FindingNeli]

Mmmmm. It was VERY good ✨

[@nthabi_royaltymasango4915]

Oh Lord....🙌🙌

[@pinkysizani8753]

“Lebone’s healing doesn’t rest in my hands” I felt that🥹. The battle is indeed not ours but the Lord’s 🙏🏾

[@motheowalerato701]

🥺🥺🥺

[@LadyK09]

Your loyalty was definitely tested... God is truly going to honor that you stood in his word when it hurt the most 💯

[@Jubileerivombo1]

Lebone is her name. She is already a light in our world. Above all, God is good. I love you fam so much Thank you to the Makhs for this vulnerable video. We pray for strength, speak life and health in the name of Jesus .❤

[@motheowalerato701]

Amen 🙏🙌

[@skillscatalyst9949]

Hi guys, i never comment on social media pages, but this story broke my heart. The first pic on this video brought nothing but pain and tears to me. I am a believer, and a mother of 3 girls. I had all my babies with natural birth, so i relate to everything including the refusal to go for scans because i also refused because i was told that if there was anomality they would not change that. So what's the point because i wasn't going to terminate. So i can understand the disappointment after praying so hard. For a minute i asked God why, and he took me to the story of Job. He did everything right but he still got tested...Job:13:15 says Though he slay me, yet will I trust in him: but I will maintain mine own ways before him. Hallelujah. God chose you guys, and this is part of your ministry especially because you are perfect storytellers. God wants to use you guys, and the journey has started... Such a beautiful name "Lebone". Light shall indeed shine on your path. Job22:28

[@simphiwemunyaka4768]

Very uplifting

[@asandakalipa5794]

Oh mommy ❤

[@motheowalerato701]

Amen 🙌🙏

[@ditebohoitumelengmolefe675]

"She's ours. We're proud of her" ❤❤❤

[@ItumelengParage]

This ❤

[@motheowalerato701]

🥺🥺🥺

[@bopilaopila931]

I am sitting here and it just blew my mind how many woman go through similar journeys with without this kind of support. Both of your are blessed to have each other. May God continue to cover your guys in his grace❤️and baby Lebone her life indeed is a testimony ❤️

[@joyshokes6182]

A faith like this is as unique as Trisomy 18.

[@frankytalks7941]

She was full term and she is now 8weeks, that is a miracle on its own. Continue to be Lebone baby girl. I recall awaiting my NIPT results while pregnant, it was hard, could not even tell anyone we were pregnant as i was 39yrs at the time, the results came back negative but the process of do you prepare & accept or terminate its a hard conversation to have. My faith is renewed in uour testimony

[@Tee-mz9nu]

I don't know if it's ok to say this but Lebone has already started saving her purposes because already she has taught me to be grateful. Thank you Lebone for having such an impact. Stay strong mum and dad

[@shantellfredericks]

To: Lebone 💐 Psalm 139:14 I praise you because I am fearfully and wonderfully made; your works are wonderful, and I know that full well. Love from Namibia 🇳🇦

[@motheowalerato701]

Amen 🙌🙏

[@MisuZama]

When a man barely has words, you hear his heart. MrsMakhs, your witness to praying fervently reminds me of scripture saying "not by your own doing, so that no one may boast". In this moment, it's so difficult to understand God, but all we need do is TRUST & LEAN into Him. With prayer & supplication, giving thanks to God. He is sovereign. He is on the thrown. He knows you. He knows her. ... Mercy, Grace & Peace to you & yours ❤

[@EvidenceofChange7]

I honestly believe your prayers to God during pregnancy are what are keeping her today still... as much as she didn't come out healthy as per norm but those prayers are answered already because she has already bit the odds. I believe she'll be healed. She is healed. ❤

[@Pulliefabulous]

So much strength and grace in this video 😍 as a paediatrician,Edward syndrome is so rare and complex. We are taught to break bad news as a protocol,it has to be direct and avoid confusion however we have to be present and supportive. I think Lebone’s Dr was thrown off,it’s a difficult diagnosis to pick up and get all the specialists in in a matter of hours. Faith takes over where medical science is uncertain because truly no one knows how long but God♥️

[@kagisomamabolo6775]

"Be strong and courageous...The Lord your God will be with you" Joshua 1:9

[@SuperSlindz]

This has broken my heart and also healed me in so many ways. I lost my first baby 6 months in utero and my second born is autistic and non verbal. i had (have) a lot of questions and disappointments but watching you guys has been somewhat healing ❤❤ I thank God for you and your precious baby and i pray that God sends you help from His sanctuary and grant you all the support you need ❤❤

[@ruthkamwi_youtube]

🫂

[@SuperSlindz]

@ruthtebuhokamwi Thank you beloved.

[@Loralou4455]

❤

[@nomthandazothobela4945]

🫂

[@SuperSlindz]

@@nomthandazothobela4945 🫂 🤗

[@nthabi_royaltymasango4915]

"I was disappointed at God"😭 i felt that hit hard.😢

[@amukelanimaswanganyi4838]

Felt that coz I have been there, I felt failed by God when I lost my baby girl😢

[@motheowalerato701]

🥺🥺🥺❤️❤️❤️

[@TAKEOFFYOURSHOESPODCAST-re5sn]

when an experience takes you back to the cross , it has surely fulfilled its purpose.May God renew you strength everyday according to His word.

[@motheowalerato701]

Amen 🙌

[@lesegostorom7779]

Same story. Or should I say i relate. My daughter was diagnosed with autism. She taught me all about autism. My son and I went throught this together. But glory to God, we are born again christians. That's how I pulled through. As a single parent it was more than tough.❤❤Lebone is beyond blessed that God graced her with such loving parents and siblings❤❤

[@motheowalerato701]

❤❤❤❤

[@maphuthegophaswana7788]

This was sooo raw!! 😢... There are authentic couples, and there are The Makhs!... Shuu do we really deserve this? I appreciate this family so much... You guys are building a nation here

[@luciamoshoeshoe8145]

Why do I feel God's presence and readiness to perform miracle in this whole situation? God is so strong please be strong parents our God makes a way where there is no way. In our thoughts and prayers ❤❤❤ the Light in Lebone's life is going to brighten up and change so many people's lives, watch the space.

[@motheowalerato701]

Right🥺🥺❤❤

[@YabanathiNtlali]

Your marriage is so beautiful 🥺❤️❤️

[@theeTinyikoTee]

Lebone will live to testify of the Goodness of the Lord in Jesus's name!!!

[@arianatshepiso86]

This is a testimony that darkness cannot comprehend light. Her name alone is a testament of the amazing grace of God. Lebone is a miracle child. She will live. She will live strong. She will live strong. She will live to see the goodness of the Lord in the land of the living. Her name carries her assignment. Love & Light to your family ❤

[@motheowalerato701]

Amen 🙌

[@simphiwemabelane170]

Go and tell them, "I am that, I am" He never fails family... 🙌🙏

[@Nozipho_N]

My brother's first child had the same condition, the Lord held us through ❤❤❤❤ I'm genuinely sending you love and prayers. I will put you guys in my 12 midday daily prayers. Jesus is till on the throne❤ I'm glad you are rooted in Christ ❤❤ I love you both and your family

[@Tshedza623]

She is so gorgeous my word 😭😭😭😭

[@mananataunyane6510]

She is sharing the same birthday with my first baby girl got her this year your story is similar to mine and my baby only survived for 12days and now she is an angel😭😭😭😭😭😭😭😭

[@tumimukhola2174]

❤

[@daphneyphoshoko3075]

Our son was in icu for two weeks after giving birth to him,I couldn't take take him home which us traumatizing for my first pregnancy 💟doctors were telling us his not responding to treatment and he might be brain damaged. We prayed as family and by God's grace and mercy, his alive and healthy, yes his got autism but his an amazing boy. We love him just way he is ✨👑thank you for sharing your testimony inspiring.

[@bavuyisedweba6899]

Homies with extra chromies are literally the happiest people on the planet. Never met one of them who didn't exude joy. God has blessed you with the capacity to meet all her needs and that's all she needs. She's going to LIVE up to that beautiful name you gave her ❤❤

[@maponoanemetsing3158]

This is very true. They are God’s purest form

[@nosa9475]

The fact that you you thought about your wife and her feelings after the baby was born and you protected her because you wanted her to think of the positives was very beautiful! Thank you guys for being vulnerable and sharing your story ❤️🙏✨

[@zeebucie1875]

She is so beautiful and perfect.God is good. Bhut Lerato you touched me so much when you said "God is good that even in pain and in confusion he shows up"thank you guyz for your testimony🫶🏾

[@rozettameyer4145]

Almost similar to my story, my daughter is 11 years today, she did heart surgery , so many things i had to deal with, she autistic. Good or bad , He's still your GOD. The devil will test you, PRAY ALL THE TIME

[@motheowalerato701]

Amen 🙌🙏❤❤❤

[@Busi_official]

When Phetola said God is kind, Yoh! Being able to praise God in the season of pain is Mercy❤❤ Love and light The Makhs❤❤

[@Loralou4455]

I bawled my eyes out 😭🙏🏽

[@motheowalerato701]

🥺🥺🥺

[@charmainemoyo1072]

Jehovah Rapha....Miracle worker....lover of our souls....Jesus have your way. lm in tears and blessing God for who He is and expectant of the miracle He wants to show us through Lebone's life.❤❤❤❤

[@mhigama9820]

We speak life over your precious baby Lebone in Jesus name ❤

[@ntsikidladla692]

Watching this made so emotional zange ndakhala kanje. and all this took me back when I gave back to our premature son he stayed in NICU for 2 months. Me and my husband we fully depended in GOD and we spoke God's word upon his life and God showed us grace and mercy. He's now 12 years health and very intelligent. So I know your pain Sisi continue trusting God he will most definitely make a way for you Family. We speak life upon Lebo e she is indeed the light to the world. We love you fam❤

[@kyln9136]

I went through a similar journey with Trisomy 13, it was back in 2010, but the video of everything that happened at birth doesn't fade from my mind. I understand what you are going through and my prayers are with you and with Lebone. In this life, we might never understand all things, but may you be encouraged in that God knows all things, and allowed this to be your journey, He will see you through it.

[@motheowalerato701]

Amen 🙌🙏

[@neliswaphiri5886]

We miss you Makhs❤

[@mukilegratitude3820]

I can't wait for lebone to grow up and share her story. ❤️ May God give you strength to raise her.

[@mpumitshabangu17]

“Le lesedi la lefatshe. Motse o hahilweng hodima thaba o sitwa ho pateha; 15 LEBONE le lona ha le ke be le hotetswe le kwahelwe ka nkgo, empa le bewa sedulwaneng sa lona, le kgantshetse bohle ba ka tlung. 16Lesedi la lona le ke le kganyetse batho jwalo, ba tle ba bone mesebetsi e metle ya lona, ba be ba tlotlise Ntata lona ya mahodimong.” LEBONE - something that illuminates LE _ BONE - A command to see THANK YOU FOR NOT HIDING YOUR LIGHT FROM US, WE SEE YOUR GOOD WORKS AND THERES NO OTHER WAY TO RESPOND BUT TO WORSHIP GOD. I LOVE AND ADORE LEBONE

[@shalatimachimana334]

“Lebone is loved and she is ours” We love baby Lebone and praying for you family 🤍🤍🤍

[@keneilwedibakwane4954]

Lebone La Bakwena is testament that we serve a LIMITLESS GOD!! May the joy of the Lord be your strength for when you are weak you are then strong

[@kaones5928]

I miss you guys so much ❤

[@kellyzamo]

Lebone is mommy’s twin and she has already stolen our hearts 🩷🤍❤️