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Our son was diagnosed with Cerebral Palsy

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JJ Time

JJ Time

4 жыл бұрын

Today Leon had a doctor appointment with a new doctor and he got a new diagnosis, then I read Leon a bedtime story before putting him to bed.
Music by: www.epidemicsound.com/music/f...
Sound effects by: www.epidemicsound.com/sound-e...
Song titles: Between the lines ; Fairy lights
Mailing and PO Box information:
JJ Time
11954 Narcoosee Road., Ste. 2
PMB/# 501
Orlando, FL 32832
Baby Registry information:
Amazon.com
Jody John
Orlando Fl
www.amazon.com/baby-reg/jody-j...

Пікірлер: 260
@sharonmorris1742
@sharonmorris1742 4 жыл бұрын
No matter what Leon is diagnosed with, he has purpose and value and he is happy. Look at all of us that he brings so much joy to! 🎆
@pinklickpony
@pinklickpony 3 жыл бұрын
I’m 54 years old and was widowed in 2011 since when I’ve been ill and lost my profession and my children have left home. I’ve been depressed and lonely and alone, Leon reminds me to *try and find something positive about each day. He is so happy all the time, so yes, he has immense value to those of us around the globe who love to follow his story. He is as deserving of love and acceptance as any other person. Xxx
@CyberFutureCash
@CyberFutureCash 4 жыл бұрын
Leon’s eye rolls when jody says *”We going to doctor”* and Leon doesn’t want some miss birthday shoutouts
@Saras_place
@Saras_place 4 жыл бұрын
I know i love his eye rolls!!!
@jjtime
@jjtime 4 жыл бұрын
Hahaha he was like really mom really 😂
@gailrodgers3079
@gailrodgers3079 4 жыл бұрын
I was so touched to hear Leon say Momma. I don't know if he has been doing this for awhile or not but the first time I heard it. I will never forget the first time my youngest so who is autistic came over and patted me on the check and said momma. It was two weeks before his second birthday and and it was his first word. He made up for lost time though as he never did babytalk and was speaking in whole sentences and paragraphs within a couple of months. He had started therapy long before autism was well none, actually before most people had ever heard of it. He was 19 months when the therapist came to the house to works with him and what a fight to put a three piece wood puzzle together. The teacher recommended that we get him some as the one she was using was hers. We were poor then and didn't have the money for toys. I was telling the ladies at church about how he was doing as he was so obviously different than the other ones his age. I mentioned the puzzles and wasn't asking for one, just mentioned it as a recommendation. The next Sunday one of the women had bought him a brand new wooden puzzle for him. My son is turning 37 on Sunday and is completely independent. Lives on his own, makes and saves his own money, has no debts works a full time job that when the boss is away he is in charge and he works part time for a grocery delivery business which this pandemic has made him some real money this year. I am no expert on autism, but I can usually pick a kid with it out of a crowd. I've never had that feeling about Leon. He is missing a lot because of his hearing problems. Definitely his CP diagnosis is going to help him get into more and better therapies. But as I have watched your show this year, I have seen Leon do things that I never could get my son to do. He never enjoyed opening presents and had no qualms about saying so and/or saying why did you get me this, I didn't want it. The very first Christmas that I ever saw him actually enjoying opening presents, he was 19 so when Leon dives into packages and envelopes I am seeing something I never got to see with my youngest. I hope that as he gets more therapy, will leave his hearing aid on so he has an easier time learning to talk, etc. things might be easier. BTW I am a retired RN so not some silly mom. From HS on, I enjoyed reading books about children with unnamed disabilities and how they were helped. I feel now that God was very much preparing me to be the mother of a child with that sort of disability. I learned with him, the usual child raising things never worked. I never once got to rock him to sleep in my arms, he did many odd things, and repeated the same sounds over and over. I still remember that at age 10 he still could not tie his shoes. One day he came home from his grocery store job and told me how he had seen and old lady toddling along with both her shoe strings untied. Scared she would trip and fall, he stop her and tied her shoes for her. I cried and just thinking about it brings me to tears all over again. But what we did must have worked. I hope that your little guy will surprise you as well.
@theboguesandthensome3975
@theboguesandthensome3975 4 жыл бұрын
Your story is so inspiring! Independent and makes his own money! I know you are so proud of him. My daughter has hydrocephalus and cerebral Palsy, but she is mild and has mild learning disabilities.
@lkjhb1
@lkjhb1 4 жыл бұрын
My uncle is severely autistic. He was diagnosed with autism back in the 1960s!
@mrrd252
@mrrd252 3 жыл бұрын
Dear JJ time I have cerebral palsy you don't need to worry about leon
@elizabeththomas6571
@elizabeththomas6571 4 жыл бұрын
My ❤️ melted when I heard my lil buddy Leon say "mama" I felt like the proud mama, I can just imagine you Jody! Just from watching Leon, I had always wondered about C.P. and Autism myself. I am so happy that he will be getting more of the help he needs and deserves. It will be such a blessing for him. Can't wait to see him blossom even more!
@barbibutton9619
@barbibutton9619 4 жыл бұрын
I know and no odys really mentioning it in the comments. I felt like a proud grandma hearing him say it!!
@elizabeththomas6571
@elizabeththomas6571 4 жыл бұрын
@@barbibutton9619 he touches everybody's ❤️!! I just can't get enough of his giggles.
@jjtime
@jjtime 4 жыл бұрын
Literally the best word he could ever say ❤️ he has said it for about a year now but it's very rare and he has only said it on about ten separate occasions
@elizabeththomas6571
@elizabeththomas6571 4 жыл бұрын
@@jjtime I am super proud of Leon! He is so intelligent!
@TheBabybobby2010
@TheBabybobby2010 4 жыл бұрын
My son was diagnosed with cp too even though he didn’t suffer any brain injuries but because of his seizures he has low muscle tone and that is considered cp, but having a cp diagnoses definitely helped with getting equipment that he needs.
@jennjeffs4893
@jennjeffs4893 4 жыл бұрын
I swear you guys are the sweetest ever, and John, its NOT boring!! Some of us enjoy seeing you all, I know for me, it brightens my day, and lately I have needed that! So thank you!
@amyfarry
@amyfarry 4 жыл бұрын
Your right John is NOT boring
@jjtime
@jjtime 4 жыл бұрын
Thank you ❤
@maryq4546
@maryq4546 4 жыл бұрын
Share that registry! Everyone really enjoys watching your family, We know your arent asking for things. If others want to buy things let them, You will need that bigger RV for sure! Besides it will be like an online baby shower that we can be part of!.
@colleengibson4934
@colleengibson4934 4 жыл бұрын
I am an adult with CP and there weren't many services when I was growing up. If Leon had to be diagnosed with this I am glad it is now so that he can get all the services and equipment he needs to have a fulfilling life. Hang in there Mom and Dad, you got this plus a new little baby on the way. 🌟💙
@stephaniebrown5001
@stephaniebrown5001 4 жыл бұрын
I love you guys and Leon I’m so happy that he getting a wheelchair.
@melodyfranklin2287
@melodyfranklin2287 Жыл бұрын
Absolutely adorable your son Leon is so sweet and happy and this family definitely brought me happiness.. they brought back the smile that I lost. Kindest truest loving words melody aka lostgirl 💕😊😊
@ArianaPizzati
@ArianaPizzati 4 жыл бұрын
As a Cerebral Palsy warrior myself, I love your family! This is a big diagnosis and even bigger step. #CerebralPalsyWarrior
@donnabannon8339
@donnabannon8339 4 жыл бұрын
I'm a cp warrior too
@lindadickson783
@lindadickson783 2 жыл бұрын
I’m glad you found that out about Leon. Praying he gets all the help he needs to make life better for you all.
@jansullivan9662
@jansullivan9662 4 жыл бұрын
Love the way Leon says mom mom
@jjtime
@jjtime 4 жыл бұрын
Omg yessss ❤
@liztrainer895
@liztrainer895 3 жыл бұрын
I was so proud of him because I never heard him say any words before.
@simonesolas2672
@simonesolas2672 4 жыл бұрын
Jody John is right about people needing to know , people will buy you random gifts so it's better that you get things you need . You need to understand how special you guys are and people want to show they care . This world needs more of this kind of kindness .Don't feel guilty or embarrassed you deserve to be shown how lovely you are and what a good job you are doing. You live with integrity and joy and these qualities are to be treasured and celebrated. 🐨💕💕💕💕💕🦋🦋🦋🦋🦋
@debsav63
@debsav63 4 жыл бұрын
You may find it hard to accept people buying things, but trust me - they wouldn't do it if they didn't WANT to. Let yourself kick back a little and enjoy being preggo without worrying. :) People LOVe you!
@kristiesmith776
@kristiesmith776 4 жыл бұрын
So glad the visit was good! Good night sweet boy!! Prayers always and much love from Alabama!!!!
@annephilipsien72
@annephilipsien72 4 жыл бұрын
I can’t wait to see him scooting around in his new wheels!
@kiffanyevans4979
@kiffanyevans4979 4 жыл бұрын
You two are just the best parents! Leon is one lucky boy to have you both!! 💕 And of course you're both lucky to have such a precious sweet little boy!! 💙💙
@jjtime
@jjtime 4 жыл бұрын
Thank you so much ❤
@marcygoubeaux174
@marcygoubeaux174 4 жыл бұрын
You got this Mom,Dad and sweet Leon!!!😘
@estherhostetler1554
@estherhostetler1554 4 жыл бұрын
This brings so many memories of our son ,so many dr appointments, therapy, etc
@barbibutton9619
@barbibutton9619 4 жыл бұрын
When Leon was laying on his bed, he looked just like a picture of one of my brothers as a child. Now I have to dig that picture out lol. He looked so sweet. Wow, guys, not sure if the diagnosis helps determine his therapy and progress. I bet u have many emotions right now. Thoughts are with you. I had wondered about the autism too because I noticed certain behaviors. But hearing him say mama. I almost cried. God bless you sweet boy. Mommy & daddy got your back no matter what your diagnosis as do many of us viewers. Glad u read the book! What a great gift.
@catladyz3460
@catladyz3460 4 жыл бұрын
I’m so sorry to hear about Leon’s diagnosis, I understand what you mean it’s nice to have a diagnosis so you know. Your doing great both of you , just continue being as great as you are xxxx
@aubrievernon7078
@aubrievernon7078 4 жыл бұрын
My little sister has this, she was born premature at hardly a pound and wears braces on her feet! it will get better little buddy!
@theboguesandthensome3975
@theboguesandthensome3975 4 жыл бұрын
How old is your little sister? She is lucky to have you. My daughter is cp and wears braces.
@aubrievernon7078
@aubrievernon7078 4 жыл бұрын
The Bogues' My little sister is three!
@obduliamarquez8118
@obduliamarquez8118 3 жыл бұрын
@Sebastian Mullenix b be hi🎂
@lankyb23
@lankyb23 4 жыл бұрын
Leon is so adorable💙💜
@lossiejones6482
@lossiejones6482 4 жыл бұрын
I was so happy to hear Leon say momma❤️❤️❤️y’all are fantastic parents❤️I’m praying for y’all and Leon🙏🏻Leon is a little hero,Much love from Kentucky 💙💙💙
@anxious3mpath
@anxious3mpath 4 жыл бұрын
Leon is seriously the coolest little dude ever! That little man is always happy and smiling and just put gold matter what. ❤️You LEON!!
@suziethunderchicken8704
@suziethunderchicken8704 4 жыл бұрын
Beautiful little boy. Beautiful parents.
@lisafriend1427
@lisafriend1427 4 жыл бұрын
That giggle melts my heart ❤
@rebeccabernard8579
@rebeccabernard8579 4 жыл бұрын
I have cerebral palsy, I am 20 years old . I am actually going to school for social work. There is so many different types CP.. Leon is amazing. He understands a lot more than a lot of people give him credit for. I will support you guys and anyway can
@craftmom5302
@craftmom5302 4 жыл бұрын
Loved hearing him say Mama ❤️💜💙
@sangitang694
@sangitang694 4 жыл бұрын
Leon is a blessed child. Sad to know that he has cerebral palsy. It's hard for parents. But you guys are awesome......... Can't say this enough. Hope Leon gets enrolled soon. Wish you all the best. Wish I could send gifts but difficult from India. Love you guys loads and loads 😘😘😘😘😘😘😘😘😘😘😘
@brendariley1303
@brendariley1303 4 жыл бұрын
Leon learning you have c.p.isnt going to slow you down you got this sweetie,show us you are moving on up.
@jjtime
@jjtime 4 жыл бұрын
❤️
@amyknutson8118
@amyknutson8118 4 жыл бұрын
That is so awesome and has to melt your heart that he said momma!! Leon is a sweet little angel on earth. I am sorry that he has another diagnosis.He is still PERFECT IN EVERYWAY.
@jjtime
@jjtime 4 жыл бұрын
He has only said mama about ten times but it's wonderful every time he says it ❤️
@pathughes7823
@pathughes7823 4 жыл бұрын
I love your family. You are honest and beautiful. Leon is so adorable. Love from Virginia.
@taybaye
@taybaye 4 жыл бұрын
I love when Leon rolls his eyes lol it’s too cute
@sharronbrauer6116
@sharronbrauer6116 4 жыл бұрын
Such a happy little guy💕
@insight9354
@insight9354 4 жыл бұрын
That is so sweet of people to want to know the baby registry.
@jjtime
@jjtime 4 жыл бұрын
Omg YESSS I know, people are so amazing ❤️
@NayandKamiya
@NayandKamiya 4 жыл бұрын
His eye rolls are everything🥺♥️
@CandyGirl07
@CandyGirl07 4 жыл бұрын
Little man Leon lights up my day 🥰 Jody and John you both are great parents and no matter what health issues Leon has, you guys have a handle on it and are doing awesome. You both encourage me to tackle my days with my granddaughter who is special needs. Love you guys!!!
@jjtime
@jjtime 4 жыл бұрын
Thank you ❤
@crystalnicole1287
@crystalnicole1287 4 жыл бұрын
I love his eye rolls lol Precious Boy!
@lindaduggins1594
@lindaduggins1594 2 жыл бұрын
Hi jj time I just started watching you all over the past few days and I love watching you all leo you are so sweet keep being the awesome little kid you are
@lynnw9268
@lynnw9268 4 жыл бұрын
Love the videos... I hope you enjoy what I chose from your registry! :)
@jjtime
@jjtime 4 жыл бұрын
OMG thank you sooooooo much!!!!!! You have no idea how much we appreciate it ❤️❤️❤️❤️
@snowspacecake2738
@snowspacecake2738 4 жыл бұрын
This is first time I hear leon saying words :o
@jjtime
@jjtime 4 жыл бұрын
He has only ever said mama but that's the best word he could ever say in my opinion hahaha ❤️
@christinaewing7082
@christinaewing7082 4 жыл бұрын
Awww so sorry that you got the news you did about Leon ,but you knew as you said now you know and all you can do is get your son more help to keep him mobile and so on best to you .
@lornasharp
@lornasharp 3 жыл бұрын
Leon is so cute and giggle is so adorable 💙💙💙
@sunshinelove364
@sunshinelove364 4 жыл бұрын
Love u guys. Thanks so much for sharing with us. 💜💚💙🌸
@sologhost1234
@sologhost1234 4 жыл бұрын
JJ family your so awesome Leon full of energy lol hugs
@michellerose3120
@michellerose3120 4 жыл бұрын
My son dose the some things but I know from watching y’all in my Harte he will walk in he will talk at his on time it coming. My son didn’t start talking to he was 3 in a half years old in his so cute. I love watching y’all guys
@Cosmo_the_swiftie_cat
@Cosmo_the_swiftie_cat 4 жыл бұрын
You guys are soooo lovely, sending hugs to ye all 🤗
@greken5857
@greken5857 4 жыл бұрын
i just love you guys 😭❤️
@lozzahinchliffe705
@lozzahinchliffe705 4 жыл бұрын
Awwwwwwwwww Leon is adorable he melts my heart ❤️❤️💝💝🌍🌍💖💖
@michellerose3120
@michellerose3120 4 жыл бұрын
Just keep up the good work y’all are great
@theresabollman8061
@theresabollman8061 4 жыл бұрын
I will pray that having the diagnosis will help things go easier and help Leon reach greater potential and comfort in his life. God Bless him.
@itsjustwaterweight978
@itsjustwaterweight978 4 жыл бұрын
Im so glad you and John moved to Florida because there health care is going to help Leon so much. Leon deserves the best doctors .
@sophiie8061
@sophiie8061 3 жыл бұрын
Awww Melt My Heart When Lean Is Mom 😍😍
@keepitREALalways2181
@keepitREALalways2181 4 жыл бұрын
Like you said girl atleast you know and he can get the right care and your always in my heart and prayers but I'm putting in extra because I know that its still a hard thing because we always want to make everything perfect for our babies but that doesn't change the HAPPY little guy at all...lots of love!!
@aggynancy4920
@aggynancy4920 4 жыл бұрын
Leon is blessed to have you both I'm blessed to watch you all Leon is smart
@jjtime
@jjtime 4 жыл бұрын
Thank you ❤
@roslynnoah9598
@roslynnoah9598 4 жыл бұрын
Leon is so adorable regardless of his diagnosis . I hope he can get into therapy soon. You guys are great parents . As long as he is healthy and happy that's what counts and he has lots of family and medical support.
@jjtime
@jjtime 4 жыл бұрын
Thank you!
@lavenderlove1212
@lavenderlove1212 4 жыл бұрын
I work for UCP so definitely get involve with the Orlando chapter!🥰😘..I am awed how well you are so loving and receptive at a young age parents! Thank you for sharing your life as it shall helps others! GOD works MIRACLES! Back up on Autism dx at this point. Education is just as important to ❤🤗. Someday I will tell my story! He is so excited and ❤ that's why! Look how much he wants to talk!! He knows all of us now! No not boring! You are both educating others! STOP excuses! U R good! AMEN! GOD BLESS YOU ALL!😘😘😘
@barbibutton9619
@barbibutton9619 4 жыл бұрын
Jodie - there's a channel I watch called Chateau Diaries. People send her so many gifts that EVERY Monday, she does a gift opening video. It makes folks feel good to give because they WANT to. I get how you feel But it truly is a way for viewers to thank you for letting us into your life and you've created an atmosphere with your blogs that makes us all feel included and a part of and we just want to send you guys some sunshine back. And some just maybe want to thank you with all the work u guys put into your channel or maybe some of us know that it can be challenging to have a child with special needs and just want to feel like their helping or just spreading love but give yourselves credit for creating a family channel that is so genuine that people want to send gifts. That's quite an accomplishment. I'm being too wordy only because I hope you guys feel happy that you've created a channel that makes us feel that close to you. Does that make sense?
@djjourney472
@djjourney472 4 жыл бұрын
Hi you two ,as usual hugs to leon🤗💕
@briankinney4814
@briankinney4814 4 жыл бұрын
You guys are amazing your not boring
@jjtime
@jjtime 4 жыл бұрын
Thank you ❤
@briankinney4814
@briankinney4814 3 жыл бұрын
JJ Time your welcome guys
@melissasharer400
@melissasharer400 4 жыл бұрын
Why, why, why is Leon soooooo stinkin cute!!! Loooooves hearing him say mamamama! He really is very smart!!!
@taneekasmith6722
@taneekasmith6722 3 жыл бұрын
I love your videos
@123jesseg
@123jesseg 4 жыл бұрын
Great blog today
@jjtime
@jjtime 4 жыл бұрын
Thanks ☺️
@maryguad13
@maryguad13 4 жыл бұрын
Love y’all ❤️❤️❤️❤️❤️❤️❤️
@jeanclaflin9147
@jeanclaflin9147 4 жыл бұрын
I have a lot of fun waching you all
@slushy2806
@slushy2806 4 жыл бұрын
Love u guys so much I will always which u guys and good luck on u guys have a good day bye bye
@jjtime
@jjtime 4 жыл бұрын
Thank you ❤
@aidengagnon7458
@aidengagnon7458 4 жыл бұрын
I haven't even watched the video yet, but I have cerebral palsy as well. That's my only diagnosis. I was diagnosed with it at birth and I'm 26 now. I know with you guys as his parents Leon will lead a rich and fulfilling life, regardless of whatever diagnosis he's given. By the way, I've been watching you guys for about six months. I actually went back and watched all your old videos from the beginning, and I've got to say that you've quickly become my favorite KZbin channel. PS: I also have satellite Internet, so I know your pain lol. Watching a movie on Disney+ is a task! For some reason, Netflix works good, though. I don't know if you guys have the same issue, but it makes no sense because it's essentially the same concept.
@jjtime
@jjtime 4 жыл бұрын
Thank you for sharing about yourself with us 😊 and ugh satellite internet is the worse! Thanks for such a kind comment ❤️
@juliegardner6806
@juliegardner6806 4 жыл бұрын
Hey John Jody and Leon I'm going to write you guys a letter love watching you guys especially Leon he is so cute and he,s going to be a Awesome big brother and very protective to love you guys so much ps Julie
@nicholeelliott1291
@nicholeelliott1291 4 жыл бұрын
Ive been so slammed at work just now trying to catch up on your vlogs awe he was saying mama too cute we love yall
@caraevans2609
@caraevans2609 4 жыл бұрын
From three to five they were trying out different things with my mobility like first a walker then crutches. I was born with Spina Bifida, not sure if I had mentioned that before. Well with the walker, because I was so little, every time it would get caught on something I would just drop to the floor and continue on crawling. It wasn’t until I got my first pair of crutches that i took off.
@meganmartinez5567
@meganmartinez5567 4 жыл бұрын
Hearing a diagnosis can be hard, but you seem to be taking it all in and processing it very well. As parents, we know our kids and can sense when something is different. It's great that you found a doctor to help you get that sense figured out. You guys are doing amazing with Leon. He's very lucky to have you as parents. Stay vigilant. And as far as the baby registry goes, i absolutely get where you're coming from I'm the same way. But if people are asking you for the list or saying they already wanted to get the baby something they know you want/need, just give in with giving out the list. Just keep counting your blessings that there are caring, loving people out there that care for your family. I love your family and you're just amazing. You rock!
@jjtime
@jjtime 4 жыл бұрын
Thank you so much ❤
@luckylady44111960
@luckylady44111960 4 жыл бұрын
my love and prayers are with you all. i just love love u all...
@dmichellejohnson2
@dmichellejohnson2 4 жыл бұрын
I hope the new baby is as cute as Leon.
@juanitajahnke7855
@juanitajahnke7855 4 жыл бұрын
I still love him
@emmabedow2642
@emmabedow2642 3 жыл бұрын
Leon is so cheeky and funny
@tierrab0929
@tierrab0929 4 жыл бұрын
I suspected he might have it. I see some signs that that my parents said that I had when I was younger (I'm 28 now). He's going to love his wheelchair!
@elizabethpotter4854
@elizabethpotter4854 4 жыл бұрын
So cuteeee I can'tttttt wait until the baby is here❤❤
@jjtime
@jjtime 4 жыл бұрын
I can't wait either!!!!!!!!!
@elizabethpotter4854
@elizabethpotter4854 4 жыл бұрын
@@jjtime 💝💝💝💝💝💝💝🥰🥰🥰💕💝🥰
@kellybrown5593
@kellybrown5593 4 жыл бұрын
Leon you are a star my grandson has cerebral palsy. One thing o found that help him was a puddle jumper float going swimming with It n doing his physio in the pool. He is on 3 and a half.
@kellybrown5593
@kellybrown5593 4 жыл бұрын
Ty jody and John I wasn't sure you'd see the comment. Do you have an email address as I've loads of craft ideas that kids love n one makes a wonderful Christmas card xx
@susanphelps8003
@susanphelps8003 4 жыл бұрын
I think leon is so cute it doesn't matter what leon has he is cute an i think its awesome that leon has awsome parents
@jessicabragdon2016
@jessicabragdon2016 3 жыл бұрын
He is so gorgeous little man my grandson was born 6 weeks early
@MustLoveDon
@MustLoveDon 4 жыл бұрын
I want to say sorry to hear about Leon’s CP diagnosis. But I totally get why you’re happy. Sometimes you just need answers so you can get the best help. And now you have the answers, Leon will get more of the help he needs to develop. I just love the way you see outside of the box, and you treat Leon just like any parent would treat a child without disability. You encourage him to try everything he wants to try and that will give him so much independence. I have so much respect for you. I’m not a doctor, but due to my illness (Congenital Rubella Syndrome), I have a lot of experience with autism and autistic behaviours as it’s part of the syndrome. Some CRS people are on the spectrum, I’m not. But I do have some autistic traits. Many relating to the need for routine and clarity. Some memory problems. Communication problems, which drastically improved with therapy and I can sometimes be over stimulated by certain noises. Also, I would have no problem hanging out next to Leon playing with his sensory blanket and pillow. I’m an adult. But certain types of sensory input is relaxing. All of my traits/behaviours are due to multiple sensory loss (deafblindness) caused by the CRS. I understand why you feel like seeing Leon line up cars, flap his hands and enjoy sensory play might be autism related. But I know Charge Syndrome also causes dual sensory loss. And that may very well be why Leon exhibits the behaviours. The therapy might help with some of that. So don’t worry. You’re great parents and everything will turn out good in the end. 🤗 Greetings from the Netherlands. CJ.
@jennjeffs4893
@jennjeffs4893 4 жыл бұрын
A wheelchair can be great help! Especially as they grow and get heavier to carry. Just please don't give up on him walking! (I know you won't) Share the info hun, If people don't want to do something they won't. If someone wants to give a gift, it's ok! :)
@jjtime
@jjtime 4 жыл бұрын
We actually advocate for his wheelchair to ONLY be used for transport and NOT therapy, play, or any activities, I think he will walk independently one day with his walker because every time we put him on his feet he starts taking steps, he wants to walk soooooo bad
@sallybrown359
@sallybrown359 4 жыл бұрын
Sweet Leon❤️
@natalierivera3198
@natalierivera3198 4 жыл бұрын
He is so cute I love him so much❤️❤️❤️❤️
@jasminebell5165
@jasminebell5165 4 жыл бұрын
Love you xxx
@FjIrwin
@FjIrwin 4 жыл бұрын
What a gorgeous lil boy. It’s my birthday on Sunday btw. X
@barbibutton9619
@barbibutton9619 4 жыл бұрын
JOHN - IT WASNT BIRUNG AT ALL. There was a lot going on. Big diagnosis, a lot of answers, Leon saying mama, being silky, got to hear Leon's new book read and birthday shout outs. Definitely NOT boring.
@hihi-ml9eb
@hihi-ml9eb 4 жыл бұрын
Hi love you guys tell Leon hi
@thechallengerrivera4753
@thechallengerrivera4753 3 жыл бұрын
Leon rolling his eyes because he had to get dressed for his drs appointment lol too cute and so smart!!!!
@jjtime
@jjtime 3 жыл бұрын
haha he was like really mom really
@kimmielillylillianrosie8368
@kimmielillylillianrosie8368 3 жыл бұрын
I feel your pain Leon
@sharondingle1607
@sharondingle1607 4 жыл бұрын
Leon just loves his car 😂
@craftmom5302
@craftmom5302 4 жыл бұрын
You have to request autism testing I had to fight for Greyson's testing and I'm glad I did mother's intuition!!!
@melissagreen1117
@melissagreen1117 4 жыл бұрын
No apologies needed Jodi You We all understand. You n ur fam should always come first. We will b here. We all luv u guys n this is why we want to buy stuff for you. We absolutely don't think or feel u are begging for us to do this. It's all out of luv. I'm sure it hard to get used to. We know u would do it for us if u could. Luv Yas. Hav a good nite🌛
@autisticrebornmommy
@autisticrebornmommy 4 жыл бұрын
Leon is so sweet saying mom mom mom and hes so cute I havs autism ans I watched youtubers wade there kids has it and relized I have it and got tested and im level 2 autism plus one-day I hope to meet all of u
@jjtime
@jjtime 4 жыл бұрын
We would love to meet everyone one day ☺️
@ioletmcfarland3017
@ioletmcfarland3017 3 жыл бұрын
I have cerebral palsy myself but you can't tell if I have it love you trishie wishing
@takiyiahjones5681
@takiyiahjones5681 4 жыл бұрын
I love yall so much 💗💙💙💙💙💚💛🧡🧡🧡🧡💛💚💙💙
@dawnmoebus8781
@dawnmoebus8781 4 жыл бұрын
John ,Jody and little Leon i like your family so much ..Jody you have such a sweet personality John you do also. Leon is such a funny and cute little boy i love your 😃 .Goodnight have a great nights sleep .Pleasant dreams little Leon.❤❤😉😘😘
@jjtime
@jjtime 4 жыл бұрын
Thank you ❤
@ninaweatherly1085
@ninaweatherly1085 4 жыл бұрын
My godson has cerebral palsy ..I was wondering if he had it to.. there alot of similarity. He turned 38 this year.. so I can relate. Love you guys..sweet dreams my lil buddy ❤
@obduliamarquez8118
@obduliamarquez8118 3 жыл бұрын
🎂
@obduliamarquez8118
@obduliamarquez8118 3 жыл бұрын
Hola 🙋‍♂️ ya
@obduliamarquez8118
@obduliamarquez8118 3 жыл бұрын
💖💖💖💕❣️
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