Understanding Makayla & Her Thoughts🌸 | Our Lives, Our Reasons, Our Sanity

[@OurLivesOurReasonsOurSanity]

Thanks everyone for the kind comments!!! 💕

[@JaiJai988]

Our Lives, Our Reasons, Our Sanity your welcome

[@margiecarter2096]

Why is her eyes move

[@oscarsmom9733]

Wonderful video! Thank you for education folks like us that are unaware. I have wondered about her gums and teeth. Is the misshapen gum due to the condition, and does it cause you problems maintaining hygiene for her?

[@astarryeyedgirl]

Much love, it's nice to see a sane, compassionate parent who actually cares about their kid's comfort and quality of life. Thank you for making this. It looked like she smiled so big when you talked about her being your baby forever. I truly hope she's aware of you on some level because it seems so. Best wishes. PS Even more thanks for spanking those horrible anti-vaxxers!

[@jacquelinesmith-jackson2815]

Our reasons our lives our Sanity💜 1) Can you explain in 1 of your videos, if a clinical trial was done to improve Makayla's life, would you be apart of the trial??? 2) Would you be able to find a way for Makayla to make friends?? 💜❤️💜❤️💜❤️💜❤️ ❤️💜❤️💜❤️💜❤️💜 I just believe no matter what if a child or adult has a disability or disabilities they should be allowed to make friends. ❤️💜❤️💜❤️💜❤️💜 💜❤️💜❤️💜❤️💜❤️ I hope you are not mad Tiffany. 💜

[@sallyscott9172]

I love your tone of voice when you speak to her; you are her angel here, she's yours in heaven now. You did such a wonderful job young woman caring for that pretty little girl.

[@katharineg.7686]

Thank you so much for explaining about Makayla’s though processes and emotional development. One of your best videos. You are doing an incredible job with her and I respect you immensely.

[@sweetluvgurl]

When you said she will always be your little big baby, I felt the love in that. I can't imagine the pain you are going through. I'm so sorry for your loss. You gave her so much in life and tried so hard. You're awesome for that. Sending so many hugs and so much love your way. ❤

[@fevertree1957]

She knows her mummys voice all right - she was definitely smiling ☺ Beautiful informative explanation. Her eyes are so 'busy....can she see you Tiffany is she able to focus. She has the best family....special girl. 💕

[@sallybrasher5467]

Sally

[@joanmcgilton5148]

When you said she’s going to always be your baby girl I can tell she really loved that. It was so sweet I could se her smile in her eyes even.

[@boolou127]

I don’t find her boring at all. I don’t see her everyday but her little expressions and sounds are so interesting because I feel it’s her only ways of communication. She’s so cute and you guys are doing great! See you later Makayla! 😊

[@Ashley-ns6tp]

It seemed like her eyes slowed down when there was no commotion about her .... I am wondering... is that her showing that she knows ur talking Bout her. I am sorry for ur loss I am watching in 2020

[@ashleywallace6188]

7:06 Mother knows best! Mickayla passed right when she said! Rest Easy little Angel!

[@jewelhaines8842]

Hi!! Thank you for the video! It was really informative. My daughter is 32 years old. She was born with Cornelia De Lange syndrome. She is mentally about 13 and emotionally about 7. She lives in a group home for disabled adults. I love her more than anything in the world!! 😊 Your daughter is a beautiful girl. God bless you all! ❤

[@Irispia97]

Jewel Haines lol you loved her so much you threw her in a home? Lmao you’re going to hell!!!!

[@jewelhaines8842]

@@Irispia97 Wow! What?? You have NO idea what you are talking about! I am certainly not going to justify why we did what we did. Just know, all circumstances are different and they're reasons for thing that are done that if you don't have all the information, you shouldn't give a opinion.

[@jewelhaines8842]

@@Irispia97 And one more thing.. Who are you to judge ANYONE??! Wow!! The ego you must have to think you are qualified to judge another person!! I pray I never get that conceited. Only God judges me, and I seriously doubt you are God.

[@lisawalker5607]

I swear she was smiling at the end. Made my heart melt seeing that

[@KimberlyWilliams-vw2me]

Love you and your beautiful family. I actually watch your videos with my children. Your life videos and shared experiences have helped my children to learn and grasp that everyone is special and deserves to be loved regardless of who they are and that we all need to embrace each other’s differences. Thank you. ❤️

[@olivia40201]

she seems so relaxed listening to ur voice.

[@lindyhakker]

Thank you for making this video. It was so educational! I also wanted to tell you that you’re and awesome momma and I really respect that you stick to your guns when it comes to your child. You know your child and you know what she needs. I love that you stick to that even when people decide to throw their 2 cents into a situation they don’t fully understand. You’re an amazing mother, Tiffany, and don’t ever listen to anyone that says otherwise!! I also love the relationship you have with Makayla. It is so beautiful. Thank you for sharing these precious moments with us.

[@veevee306]

I care for a 12-year-old with lissencephaly. She is just like Makalya; even looks quite a lot like her. My girl is sweet and sassy, though non-verbal. Certain sounds make her smile or even belly laugh. She understands people's feelings but not their words, like you mentioned with Makalya.

[@shinyeevee606]

The joy on baby girls face when you were loving on her is so precious!

[@margaretspence109]

Makayla is as you say just Makayla. She is adorable. I have been around special needs kids all my life and Makayla is well loved and well looked after and is included in family activities more than a lot of kids. You all are doing a great job looking after her as she wouldn't have made it to 9yrs old otherwise. I love watching you all interact with Makayla so keep doing what your doing. 🙂

[@ashlayyy4118]

I am so glad you put this video out there! I’m constantly seeing people ask questions about why she isn’t hiking etc. :) love your videos. Such a great mom and person!!

[@garden5137]

You're a great Mom Tiffany! You ALWAYS include your daughter in everything you do! You also treat her like nothing is wrong with her! Which I feel is wonderful 😘❤

[@adrunkgorillawithalobotomy353]

Pretty little lady....now an angel. So sorry for your loss. You guys gave her the best life!

[@icecrystal34]

This is a remarkable video Tiffany! It's amazing how clearly and gently you communicate the facts about Makayla. Take care

[@pamelachandler1813]

Tiffany, you're truly amazing! So intelligent & well spoken. Your love & devotion to Makayla is obvious💜💕

[@acmcginley556]

I couldn’t help but smile when she kept smiling at the end ❤️❤️❤️. She is precious and you are an amazing mom.

[@jessycassidy4325]

Makayla is so precious! Love the little grins and her reactions to her environment.

[@lolly5453]

Thanks for your explanation of Makaylas condition, Tiffany. I appreciate the time and effort you put in to make this video informative yet understandable, and I also find your honesty refreshing. Your personal choices regarding Makayla (how you manage certain aspects of her condition, how you speak to her, which activities you involve her in, etc) are between you and her, and providing she is happy, comfortable and within a loving family, I think it's unfair for others to give you a hard time over your decisions. Unless someone is dealing with the situation, they don't know how they'd respond in your circumstances, so I think they should consider that before judging. Thanks for opening MY eyes today. Love to you and your family 💟💟💟

[@donelleglatt]

Thank you for sharing this video about Makayla. I've watched a few of your vlogs, and had questions about her. I know she can't talk, but, at times, her facial expresssions are quite clearly, saying it all. And you hear her, so that's great. I've noticed she smiles a lot a Damien too. I think she enjoys enteracting with him. He's a good bro to his sister. 💞

[@garden5137]

She's perfect, the way she is!! And she has an amazing Mom, Dad & brother 💓

[@jackieblome1795]

Its going to be hard not seeing your videos with her, thank you so much for sharing her with the world.

[@debbygarbato1156]

I've heard your whole story and I just really appreciate how you live in and accept reality.

[@kristinowens899]

This was so informative!! You explain everything so good!! You are the best mom!! You gave her everything, she had the best life she could because of you! I miss seeing her in your videos. I hope all of you, your whole family, are doing well during these horrible times. I hope you can find some peace. Stay safe and be well.

[@abbieprice3430]

It must’ve been really challenging caring for Makayla! Especially with the condition she had! But since she recently passed, I believe she is now running and speaking with joy on the other side without suffering! I’ll betcha if she could say one thing, she would thank her mother so much for raising awareness on serious brain disorders like hers!

[@NormaRodriguez-ed8bk]

You are an amazing mom, she is so beautiful and precious. God Bless you and your family 💕. I love her eyes and how she is looking around 🙏

[@krisc2900]

Keeping doing what your doing, your a great Mom, and Makayla couldn't have a better Mom then you, love your family!!!

[@michelleroy1]

Keep doing what your doing you are a great mom to your beautiful baby girl Makayla keep up the good work keeping her health and take good care of her love you and your whole family lots

[@aolivestone6000]

Love ❤️ your videos and especially that beautiful baby girl Makayla you and Kyle Are amazing parents and Makayla is a very lucky girl to have two loving parents who absolutely love her Pieces ❤️❤️❤️❤️😍😍😍👍👍👍

[@miraclejordan960]

Text me on you tob

[@Mrs.Smith2020]

Thanks for sharing! I wondered if she ever cried or had seizures. She seems healthy and happy. I like the video when she was “talking”, I think y’all were camping. You have a great family and seeing your parents be such a big part of the grandkids lives is wonderful 😊

[@sofiasousapires]

Thank you for sharing about her disorder!! Love Makayla she is so precious!!

[@leighannaray4845]

Great video Tiffany! I loved watching her expressions as she was listening to you talk about and to her. She is such s peaceful "big baby" :) you are a great mom!!!

[@nanamommy4life]

Keeping makayla in prayers. She’s going to prove doctors wrong. I definitely would love too see more video with her involved

[@ninastump7616]

thanks for being so honest about her and educating some of us who wonders about taking care of a child with her condition. she is so beautiful and content. healthy and happy is all that matters so give her a big hug from me. someone who loves kids no matter how they come into our lives.

[@katluann]

Your a good Mom! It’s nothing you did and you have dealt with it beautifully and much better than I would have. Because your her mom and you love her no matter what maybe you didn’t notice when she was a baby but from your videos I can see she has a very heavy tongue which isn’t normal. I think she’s probably happy like a baby. You did that for her.

[@onestepdownonestepup9788]

It looked like she was going to smile when you said I love you and talk to her in that sweet baby voice :)

[@nataliawdowiak4510]

My aunt also has a son like this. She has taught him to swallow his food(mostly soups, and milk) it is so cool these children are so special. Also, I’m so sorry about your loss sending you prayers💙

[@bettemimi4951]

OMG she is so Beautiful! God Bless You Both to the Moon and Back... ♥️

[@lulapetry8133]

Very articulate and knowledgeable mother. Unconditional love.

[@deborahleitch5839]

Makayla is certainly aware at times of individual voices. She talks with her eyes & face. She was so sweet in this vlog, looking so utterly content, so beautiful to see. You & all the family are doing a brilliant job with Makayla. You seem to have came to an acceptance & I would imagine this took a certain process to get to. Keep doing what suits your family, it’s looking perfect from here. Thank you for sharing your story. Sending Positive Vibes & lots of luv from Australia 🇦🇺🇦🇺👍👍❤️❤️❤️.

[@mountain2.060]

So clearly spoken, I’ve been following your life for a while and I just love your explaining videos 🙏🏼💪🏼💜

[@mosaicgirl4002]

Thank you Tiffany, for such clear information about your darling Makayla. You've helped us all understand more about her life. And a pretty contented life it is. You care for her with such compassion & humour & love. Fabulous job. That Baby-Girl has a FAMILY to love her.👏👏👏👏 You are such an impressive young woman. Cheers to you and your dear family! Love & admiration from Australia ❤️❤️

[@OurLivesOurReasonsOurSanity]

Thank you!! :)

[@heatheradams1759]

I love how you say she perfect the way she is.. I say the same thing about my jakob. He make live good

[@Morgan1009]

Such a great video Tiffany, ive been tuning in for some years now and its always nice to see that beautiful kid!! Love you guys 💜💜

[@greeneyedmonster7806]

My niece is like Michaela...the amount of seizures she has in a day would mess with anyone. She is missing important features in her brain and has regressed to newborn stage. They didnt see any signs on the sonograms or tests. She just started having baby spasms and it all began from there. My niece is 19 now. Michaela is a beautiful girl and ya'll are doing a great job! Thank you for showing what life is like with a special needs kid. ❤ from Texas

[@greeneyedmonster7806]

Sorry I spelled Makayla's name wrong❤

[@millisagable1318]

My aunt put my cousin on the ketogenic diet and he went from 100 seziures a day to maybe 2 a day

[@patriciabest303]

Awesome mommy you take great care of your daughter mom bless your heart she is a child of God makayla is beautiful

[@kimbernard5993]

My son Jeffrey who has agenesis of the corpus callosum is very similar to Makayla he doesn't like to be in his chair alot for long periods of time he loves to roll he has eczema very sensitive skin if the weather is too hot he shuts down if the weather is too cold he shuts down he he too has a seizure disorder and is on meds for it he has tracheomalacia cerebral palsy cortical visual impairment A high tolerance for pain barely ever cries unless in pain reacts to when you talk to him or about him is very still and looks focused when he is listening to what's going on around him. He acts similar to Makayla. You go girl you're doing what's best for Makayla and I support you and I love how you are with her she's the sweetest girl

[@beckywaite2250]

Thank you for explaining her condition. I have more of an understanding of it. She's really adorable and she seemed to be very happy near the end like she was laughing. I can see she brings you much joy. ❤

[@hannah_Smith222]

She’s so lucky to have you as her mother! . I love your videos

[@onajourneylife2242]

Thanks Tiffany! This was a great video, thanks for answering those questions. God Bless you all

[@JulieCook2022]

I do have a question about baby girl can she tell you if she hurting or if she doesn't feel good?

[@BicheBug1996]

Julie cook reallllyyyyy

[@sherriolin3807]

I'm learning alot from your life and how you are able to teach others about your family

[@tanreymond3758]

After seeing your video, I felt speechless of what you have done to your lovely daughter. You are very wonderful mom. It inspires me of loving and kindness we as a human, no matter what's happen in our life.

[@21azndancer]

She’s definitely smiling and laughing at the end

[@cameronjaskolowski8068]

Love and prayers from Dallas tx yall are amazing people. Always keep yall in my prayers. God bless

[@rhonda6325]

Thank you for sharing your life with us and I love how Malaya responds to your voice ..children know their mommy's voice ..💜 you are a wonderful mom to ur children ☺

[@Itsjustus2820]

God bless you I am so sorry for your loss I know this is late but I can’t imagine loosing my kid but I don’t have one yet she was always looking stunning and you are stunning too

[@tonemarieantonsen1597]

Oh gosh she was so lovely After watching several vlogs i have seen her in there. Her soul is pure and sweet💖💖. You as parents did the best you possible could for your precious daughter.❤❤

[@joycehebda5274]

You are such a great mom she is so lucky to have you and your family God bless keep on doing what you doing love you guys

[@winegarkristina82winegar49]

Your a great angel for a mom sweetie she is blessed to have a mom like you 💞

[@tonidene1641]

Mom of the year 🥰🥰 she is just perfect

[@karenknicely7779]

I love it!!! While you were talking. She started smiling!! She has such a cute smile!!!!!

[@annetruds9221]

i love the way you take care of her. i love the way she smiles... great video.

[@onemorelightnobodycansavem1633]

She completely understands. You can see how her facial expressions change. Awww..she is soo sweet. Btw, this just came up on my news feed.

[@onemorelightnobodycansavem1633]

@@taratrudeau2029 How do you know?? Her mom knows her best. And you can tell she is reacting. You are an idiot troll. You poor soul. Trying to make others feel as shitty as you do. Poor miserable soul.

[@shagunkothari4417]

She is like so adorable i really love her honestly

[@bdescamps]

You are such an amazing momma! Much love to baby girls. She is so lucky to have you and Kyle too. And Dude is so cute. Love your family.

[@JessicaNiles]

Very informative! I didn't know her cognitive state was that of an infant. She looks happy and content. Well done, mama!

[@ash3227]

Can you tell us more about her teeth? I know you said Epival caused that. I have been on Epival for ten years so I’m curious

[@kristaj428]

ash3227 she had a bad reaction i do remember her saying that and the surgery to fix it would be undue stress.

[@grayskindablue]

She’s got a whole video on why her gums developed the way they did, I’m pretty sure it has to do with her craniofacial development in combination with the Epival.

[@AlleyCat2023]

Thank you for sharing Makayla with us. She is so sweet. How is her vision? She appears to be looking around all the time.

[@Bellakania520]

She has poor vision

[@barbhelle5481]

Thank you so much. It is nice to meet you all.

[@barbhelle5481]

She sure is listening to you.

[@BeenasBookshelf]

Did anyone else see her smile when you said "she'll always be my little baby"? That was precious

[@1blb885]

Inspirational woman 🙏🏻god bless u and ur family

[@dianabeurman364]

YOU ARE A GREAT HUMAN BEING! GOD BLESS UOUR BEAUTIFUL DAUGHTER!

[@outback7092]

Great vlog hun! so glad to see the comments back too ! Much love from Melbourne AUS xo

[@dmc414141]

She's so beautiful! Thank you for sharing!

[@amandapike3333]

You Both are So Gorgeous. In this Video at 14:06 You said "She will always be My Big Baby Girl" did you see she Smiled and her Eye Expressions I had to rewind back Awwww Sweet Face. Hugs. Tiffany Your are a Amazing Mother. I Enjoy Your Videos so much. Sending My Love From Newfoundland.

[@Bloem777]

Yeeeh i saw it tooooo!! Sweet!

[@jessicas2379]

You did a great job explaining everything. She is so cute. I look forward to your SickKids appointment videos and your camping videos

[@sarabell9401]

You are a beautiful loving mother...God blessed you with a wonderful child...

[@desertbreeze69]

Can she see? 👍very informative. It looked like she was smiling at one point. Hoping the best for your family❤️

[@garden5137]

Aww Tiff, beautiful girl smiled when you said she's your big baby ❤

[@carebearkidd]

Thank you for sharing your sweet girl! I found your channel about a year ago & have learnt so much about her condition.

[@Loadedwhisperer]

Thank you for this video! This helps me as well as others understand a little better. I too have worked with children with special needs. Unless one has a child themselves ( which i do) then one wouldnt. Hugs and support is important.

[@allisonyandow3521]

At the end it looks so much like she is smiling or giggling to herself. So so so cute

[@NJSMKMMS]

Great explanation, you make allot of sense, but you know her better than anyone so no one doubted it was going to be good. I just wish you never had to explain it to anyone again, but unfortunately this being KZbin the chances of that happening are not great. Just carry on doing what you do with Makayla she's obviously well loved and cared for. You do a great job.

[@natasha687able]

Does Damien talk about his sister?

[@DaJesster0405]

I loved this. It's pretty obvious she approves of being your big babygirl.

[@DarkAngel71180]

I know she's gone now, I've followed Makayla's journey from pretty early on. I hope she's sleeping well ❤️ You said she's boring lol, I don't know what it is, but I've always felt I could sit there and stare at her all day. Her face is so expressive and it's easy to tell when she's communicating and doing the other things you mentioned. I find none of that boring. I find it just lovely actually ❤️

[@angelacrane9495]

It was like she was smiling at the end.....was she? Oh my goodness my heart💖

[@TheShellie28]

Makayla is very active today bless she’s a little star big kisses an hugs for her today 😘🥰 sorry to hear you’ve hit a delay with the house that sucks I love how she starts falling asleep right at the end great timing baby girls 🥰

[@lilifriio452]

Hi Tiffany, I notice when you speak to her in the vid that she blinks more, she understands. Makayla is growing nicely! Hugs and happiness to you and yours💖

[@kimbasciano_]

Love your videos Tiffany! Makayla is so beautiful ❤️

[@Анечка-з7м]

Makayla is such a beauty, it’s a pity that such good people leave the world, I started crying!

[@bonkers5416]

This is a great video. Thank you for explaining her condition. Does she enjoy listening to music?💕💓❤💞💖

[@gb1914]

A really informative video. I had wondered why Tiffany spoke to Makayla in “baby talk”. I can’t help but wonder about the *quality* of her life though. Tiffany said she’s a baby in a 9 year olds body and whilst she’s aware of voices and people being around her, it seems as though she is just existing and not living a meaningful life. It might sound uneducated and harsh, but I can’t help but feel sad for Makayla.

[@DarkAngel71180]

Thank you so much for this video! I'm always interested in learning more about the whole family. I'm not someone who will ask intrusive questions like "why do you talk to her like a baby?" And I can't believe people even do that. It's more than obvious your whole family is happy and healthy, so why question anything?? I, personally, feel a little weird asking personal questions about Makayla and her condition because I figure you share everything you're comfortable sharing with us, but I am interested in her life and always glad to see how well you all are doing and I really appreciate everything you do share with us!! Sending out love from NEW YORK baby!!! Stay happy & healthy ❤️ oh and that smile at the end was EVERYTHING 😍😍😍

[@jessq7051]

You are an amazing woman!!! Loved this she is so lucky to have the family that she does!!! Keep strong!!!!

[@Kylebfan834]

When you say her name she totally knows you talking about her love you guys bunches XOXO 💚 💛