Overlapping Syndromes: MCTD, UCTD, Just a Lot of Letters, Virginia Steen, MD

[@corap123]

I am a healthcare worker but only worked for two decades, I develoved UCTD. At mid forties, I had bilateral TKA, Revision of R TKA due to knee instability; lately, I have TMJ dislocation, some signs of hip instability, two decades had past, I had R shoulder dislocation and had shoulder surgery. All spine had degenerated; I suffer sublaxation. A challenging condition. Thank you for your explanation.

[@mercifullove8246]

You do an amazing job explaining these !! I have mctd thanks again

[@SJ-db1lh]

Thank you explaining!

[@swaziswimmer]

So complicated! No wonder it's difficult to get a Dr who can diagnose us!

[@chriskimmer2869]

Imo it's NOT ok that it takes so long to be diagnosed, it's took me 3 years count that 3 of going to over 70 different doctors between countless ER and 4-5+ different primary care providers most of these dr's would instantly form a silent opinion and never actually listen to any complaint or problem i showed them. These Dr's would tell me "that's normal" to any problem I showed them would tell me my blood work says I'm healthier than they are, and try to convince me I need a counselor for mental health as there's nothing wrong with me but I keep coming back saying I feel like I'm dieing and whatever is wrong is systematic. Not 1 doctor would investigate complaints just draw my blood and dismiss EVERYTHING.... even this last ER visit that actually got the blood work that led to my diagnosis that I'm just "paranoid from past narcotics use" it's been 2 years since I've self medicated but what do they expect what am I and many others to do when you know your ill and the people who are supposed to protect you treat you like a liar or hypocondriact (sp) this disease has severely crippled my day to day life consideribg my normal life is 7 days a week heavy work outs too now just begging someone to listen that's lets be honest how hard is it to see ANA on a immune panel ran thats such a HUGE red flag but all tgese drs wpuld dismoss it as "false positive" and it dodnt mean anything imagine if these dr's didnt hace such ego and biased opinions I could have had medicine and auch vetter quality of life all these years ago, I am seriously looking into Medical Malpractice and trying to change the united states medical community to the way it should be prehaps removing "humans" from the ibital diagnosis and have ALL labs ALWAYS ran through AI rather than biased and corrupt doctors

[@joyrees7966]

I have MCTD and I am in skeletal disease 24/7

[@siddharthinishanmugam2567]

Hi Dr is there any food to control Raynauds

[@doctork1708]

A thought MCTD has been classified as it’s own disease?

[@SclerodermaUS]

Hi, please email [e-mail] to learn more about this topic and talk to one of our staff members. Thank you!

[@mariapizarro195]

Existe la posibilidad de que sea traducido al español, porfavor.

[@SclerodermaUS]

hola Maria, actualmente no tenemos planes de traducir este video pero estamos planeando crear más presentaciones en español a finales de este año. consideraremos añadir este tema a nuestras futuras presentaciones.

[@chriskimmer2869]

​gracias para eso