Janet's TMS / PDP Success Story - Pelvic and Bladder Pain, Urgency, Interstitial Cystitis

Janet's TMS / PDP Success Story - Pelvic and Bladder Pain, Urgency, Interstitial Cystitis
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[@AJL1720]

I’m an MD as well working on overcoming TMS. This is inspiring. Since starting this journey is been up and downs. Currently feel stuck. However I have been sharing with my patients the diagnosis of TMS and hoping that they can also get the appropriate help.

[@janetreed8441]

Thank you for your comment, great the MDs are becoming more aware of this. All the best in your healing journey ✨️

[@stayred77]

I appreciate you for doing this! I know its not easy but you are doing a great thing

[@marieleak8731]

Amazing success story. I have urgency and frequent urination for years, especially at night, so much interrupted sleep. I had 2 bladder surgeries, years ago. The body heals, so it can't be that. It is PDP. So much fear attached to this issue and embarrassment. Your story will help a lot of people, and it helps that you yourself are a Doctor. THANK YOU JANET AND DAN. ♥♥♥♥

[@janetreed8441]

I am so glad. Sending hugs on your journey to heal 🌺

[@karenmcguire6502]

Janet, Thank you so much for sharing your experience from both personal and medical professional perspectives. I found your story very inspiring as I greatly relate as a nurse experiencing (unfortunately) very similar symptoms. I am in the process of implementing Dan’s recommendations with significant progress over the past few months. Your success story is helping to solidify my belief that these symptoms are all secondary to fear (and continue taking baby steps slowly and freak out less!)

[@janetreed8441]

I'm so glad my story can encourage you Karen, you will get better too❤

[@denisereed4421]

What an Inspiration Janet is to share her personal, triumphant healing journey. The medical profession will definitely benefit from her insights , knowledge and personal experience of an extreme ,debilitating, life altering suffering with IC/BPS. ...and finding understanding and resolution. Dan , you are a God given gift to humankind ! I pray that many will find healing from their extreme pain , even when all treatment options have been exhausted and you're left feeling hopeless and crushed . There is HOPE ! Don't give up! Janet , you're an incredible doctor ,because you understand suffering and pain ...you will be a voice of hope for many , just like Dan has been for hundreds of thousands of suffering people. Huge gratitude 🙏

[@janetreed8441]

Thank you for your never ending support and prayers mom ❤

[@vibrantpelvichealth]

Thank you for sharing, Janet! I’m so glad my Overcome program was supportive for the early phases of your healing journey 🙏❤️

[@janetreed8441]

Dr Bri it absolutely was. You and your community provided such a safe space and support for me and I'm so grateful for that ❤

[@HypnobirthingWithAnja]

​@@janetreed8441Dear Janet, thank you for sharing your story. I was just wondering, did you ever experience any burning sensations? And how did you come to know when you did actually need to pee again. This is something I am struggling with. I hope you don't mind reminding. Thanks 🙏👍

[@janetreed8441]

@HypnobirthingWithAnja yes a lot of burning. I was very out of tune with my physiology, but if I knew I had just used the toilet and wasn't drinking fluids like crazy, I'd reassure myself and hold off despite the sensation. Within limits- don't allow yourself to get in a lot of pain as that heightens the nervous system. It's more important to have a calm approach rather than obsessing about how many times you are using the toilet. With time, the sensations will fade and you will be able to trust your own physiology again. I hope that helps a bit.

[@HypnobirthingWithAnja]

@@janetreed8441 Dear Janet, thank you so much for replying! I really appreciate it. Your story is keeping me going. I will keep rewatching as I know it will help me to recover and overcome the symptoms I'm experiencing which are similar to what yours were. Sending you love from the UK 💓

[@janetreed8441]

@@HypnobirthingWithAnja really a pleasure. I am glad my story can encourage you to keep going. Be kind to yourself and believe you can get better! ❤️

[@kazzey888]

I love that a regular guy dan is getting thru to medical community too, dan was one of my firsts on this journey. I love his no nonsense but gentle, consistent message. And now this MD g-d willing will spread the message in medicine. It's sooooo needed. And also g-d willing this will be taught in medical school. Heck, 1st grade

[@KathleenAnderson-g4b]

Janet thank you so much for sharing your story. I am experiencing the same symptoms as you and needed to hear your encouragement that we can get through this ! Well done you have inspired me to keep going.🙏

[@janetreed8441]

Thank you for the kind words Kathleen, keep going you can absolutely do this. Be kind to yourself ❤

[@stayred77]

You can do this, it will get better just keep going!

[@Inge508]

What a courageous lady!❤ She applied mindbody principles so well! It’s great to know that people in the near future will have a less difficult or long journey thanks to all the great and correct knowledge that’s now available ❤

[@janetreed8441]

Thank you for the kind words Inge 🌺

[@jodi152]

So grateful to you both. Janet your story is so inspiring. You have helped me so much, and Dan thank you so much for the beautiful work you do. So beyond grateful to you.

[@janetreed8441]

Thank you for the kind words Jodi🌺

[@GailRobbins-c6h]

thank you for this interview. janet is such a beautiful person. so pleasant to listen to, so inspiring. i love the way she expresses her gratitude to you and your book, dan.

[@janetreed8441]

Thank you for the kind words Gail, much appreciated ❤

[@helanabobana6523]

I am watching this on repeat while dealing with severe uti symptoms for 3 months. Inflammation of my bladder neck found in my cysto, but they cannot find the cause of it. Starting this journey and found this video. Really hoping the inflammation is TMS.

[@janetreed8441]

I'd definitely recommend applying these principles anyway, calming the nervous system will always help with pain. The FIT assessment on Dan's channel is also helpful! All the best on your healing journey ✨️

[@lisafuller-fs3ze]

Thanks so much for sharing Janet. Your journey could easily be mine as I have suffered with these symptoms since 2016. I discovered Dan in 2022 and have been working with a SIRPA therapist in the UK but my recovery is not as quick as yours. Your story helps me so much as, like you, I have heard few stories from people with my symptoms. I know it shouldn't matter but it still helps. Good luck for the future. 😊

[@janetreed8441]

I am glad my story can be an encouragement to you. Keep going, healing will happen🌺🙏🏼

[@rosenichiporuk8974]

What an awesome Success Story. It makes me so happy that a Medical Doctor told hers. Thank you, thank you, thank you. If only more Doctors would consider this it would change the whole medical system.

[@janetreed8441]

Thank you for the kind words. So true, so important to have a holistic approach to healing✨️

[@saralawlor780]

Thank you for sharing this Janet and Dan. It sounds like a really tough journey and so helpful to share and inspire others, especially other doctors. 🙏👏👍

[@janetreed8441]

Thank you kindly, indeed I hope my story can be an encouragement to others who are suffering 🙏🏼

[@Plottoberry]

Very relatable. I also have bladder and pelvic issues. Physically, my bladder is 'beautiful' (said the doctor), my vagina is fine, except that indeed, I have a hypertonic pelvic floor. However, the physical sensations I get from that are not normal. It arose when I was in an extremely stressful period of my life, when my worst fear came true - getting diagnosed with a progressive chronic illness. My body and mind are stressed out. I need to get out of it but I don't know how. However, I have been offered psychotherapy 2x a week, for people with persistent physical symptoms like chronic pain (with or without physical cause), so I will be in good hands. And indeed, pelvic/bladder issues are more personal so its harder to talk about.

[@janetreed8441]

So sorry to hear this, believe you can get well and give yourself the time and grace to get there. Dan's book and The Way Out by Alan Gordon are great resources to start with🌺

[@HS-1828]

Thank you for this. IC is also known to cause suicidal ideation. It’s not like any other pain. One wouldn’t understand unless one has experienced it for ages. Cystoscopy is brutal!

[@denisereed4421]

Absolutely devastating. I know ...but there is HOPE of healing! Don't give up ..

[@janetreed8441]

Completely understand and agree. All the best on your healing journey ✨️

[@venezianotherapy]

So good guys. Thank you for sharing this. In Italy we are so far but we are getting there!

[@jab787]

Thank you so much ❤

[@JanellSailer]

I'm thinking when an elderly person gets these symptoms, pelvic pain is a physical problem as some of us suffer from vaginal atrophy and it's not tms. We need to watch our diet as there are foods that amplify the pain.

[@janetreed8441]

Definitely, every person is unique and oestrogen deficiency in menopause can definitely exacerbate urinary symptoms and assessing this is part of the assessment of physical/structural causes of symptoms, and treating them

[@delitecreative]

Thank you for sharing your story, this makes me wonder if constant spotting and tummy pain could be caused by TMS?

[@janetreed8441]

You would first want to get this checked out by a medical doctor to rule out any serious medical condition. Spotting in menopause for example requires a gynecological consultation

[@delitecreative]

@@janetreed8441 I seen 6 gynecologist, had 6 ultrasounds, MRI, all sort of blood tests... And nothing found... Makes me wonder if this could be TMS, as i never heard anyone with similar issue.

[@efelzzz]

Thank you for sharing your story! I’m experiencing burning tongue syndrome, did yours onset suddenly and was it your entire tongue or just specific areas? And yours disappeared as quickly as it came on?

[@janetreed8441]

Hi, yes I had it about 2-3 times lasted 1-2 weeks each time. I didn't know what it was at the time and didn't really worry about it and it went away by itself. Unfortunately the fear- pain cycle can keep the pain persistent so I recommend you use the mind body approach Dan teaches to get rid of the symptoms (obviously after checking out with your general doc there's nothing physically wrong)

[@yusuf11682]

Janet, Thank you for sharing your story. I have a question for you. How did you implement the safety message when you had the urgency. What did you tel yourself when you did go to the toilet and after you where finished?.

[@janetreed8441]

I always recognized the urgency and if I felt the need to go, I did that as often as I needed to. But tried not to worry about it so much. It takes time and a lot of positive self talk and reassurance to go from completely panicking to being indifferent. This can only happen when you really believe you are actually ok and while the sensation is awful, it will fade quicker the less attention you give to it.

[@yusuf11682]

Thank you for your advice 😊

[@janetreed8441]

@yusuf11682 it's a pleasure all the best on your journey ✨️keep going!

[@Carmie-rh1ez]

Hi Dan, I just bought your book and your audiobook as well. Janet’s symptoms were triggered by stress, mine were probably triggered by fracturing my pelvis. I’m gathering it’s still TMS though, despite what started it?

[@greenbeanthetwo]

I didn’t fracture my pelvis, but I did have a lot of pelvic/bladder problems after years of eating foods super high in oxalates. Initially the pain was from that, then the fear ingrained caused similar pain for years. It definitely can be PDP after an initial injury or exogenous problem. The body itself is never the problem :)

[@iamjustsaying1]

Janet, since you are a doctor who was diagnosed with IC, but WITHOUT Hunner's Ulcers, would you say that IC WITH Hunner's is a different beast? Or, even with Hunner's ulcerations, could it still be TMS?

[@janetreed8441]

I think regardless of having hunnners ulcers or not, stressing about and catastrophizing will always amplify the pain. I suggest doing the FIT assessment and seeing how your symptoms are behaving and if they behaving like TMS, these principles will certainly help you

[@iamjustsaying1]

@janetreed8441 That's been a big part of the problem. My pain issues don't move around (always in the exact same two places: bladder and left lower back), often wakes me up when sleeping (IC pain), and so on, and have been with me for decades, so Ive just learned to live with both, although its greatly impacted what I can do . I fit the profile ( past trauma), but the symptoms don't neatly fit the assessments. That's why it's been so confusing. I don't want to gaslight myself. Or, maybe the back is TMS, but the Hunner's IC isn't? But still, the pain never moves around, doesn't improve when I'm doing something fun like a vacation, etc. I long ago gave up catastrophizing, and had to lean into acceptance. But, ive always retained hope that something could come along and offer relief, which is why I'm trying to assume these issues could be TMS, in spite of not fitting the assessments very neatly. Thanks for responding.

[@janetreed8441]

My pain didn't move much either, but the quality of the pain (burning, pressure, sharp, dull etc) did change. And the variation from day to day and morning to evening was significant. But remember you don't have to fit all of the requirements of the FIT criteria to benefit from this work- my pain for example got worse with vacation and with exercise. Maybe if you get a TMS coach they can help you work through your specific symptoms to get relief. You can also email or have a virtual appointment with Howard Schubiner (also MD and author if unlearn your pain) to gather evidence for yourself. Reducing panic and fear will almost always help reduce chronic pain and joining Dan's support group can maybe also put you in with a group of like minded people to help you on your journey

[@iamjustsaying1]

@janetreed8441 Thank you for responding, and keeping my hope alive. I wish you well and certainly am glad that you healed and were willing to share your success story with all of us.

[@janetreed8441]

@iamjustsaying1 it's a big pleasure, wishing you all the best in your journey to heal. Don't give up✨️

[@murrij]

I am a male that experience the same thing Jane. Do you have an email you can share through Dan if I contacted Dan and he determines I’m not a stalker or creep?

[@janetreed8441]

youtube.com/@transformpelvichealth?si=ndYlcm-K465ELC-c

[@LoriPirollo]

May want to start 20 plus minutes at least talked about IC

[@staceypollack808]

I think you need to add one more criteria to your list of whether this is most likely TMS. Almost every single story 99.9 of them are people who wake up one day with issues during stressful periods of their life. I understand your take on all injuries healing but the one question they should ask themselves on there is did you have an injury ? No? Were you very stressed or anxious about something on onset ? Yes ? Most likely TMS. Whether pain travels imo is not a definite criteria that 99.9 points to TMS more so on the flip side are those two questions. I’ve listened to every single one of your success stories and noticed this pattern is blatantly obvious. When injury has occurred it’s imo a toss up whether this is all TMS or not, years of post injury can definitely cause issues with the NS but so can chronic unresolved injury. I wish these lines were clearer at least mentioned and not brushed off as everything heals itself across all educators of TMS.