Duchenne with a Future: The Power to Live

This documentary is an effort to understand how young men with Duchenne cope with their illness and its consequences. How they manage stress and maintain a quality of life. About what parents can do and how professionals can contribute best. But above all this documentary is about the key to successfully living an adult life with Duchenne.
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A film by Jos Hendriksen, Debby Schrans, and Jelle de Jonge. Produced by Parent Project Muscular Dystrophy.
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Parent Project Muscular Dystrophy's mission is to end Duchenne. We accelerate research, raise our voices in Washington, demand optimal care for all young men, and educate the global community. Support our mission at: www.ParentProjectMD.org/Donate

[@dakotaf2773]

I have duchenne MD I'm almost 21 and still walking

[@t_yt3266]

Dakota F wooow your lucky I stopped walking at 13

[@dakotaf2773]

i broke my femur in january I'm still learning how to walk again its been very hard.. this diseases is just so cruel :( but you just got to keep fighting!!

[@lovetaylorswiftjm]

Well you're lucky.

[@lovetaylorswiftjm]

Same I stopped at 13.

[@keto327]

Dakota F you are very lucky

[@mathildes8583]

Thank you for posting this video, I will start working on this disease in a month and it's always important to watch real persons who struggle everyday.

[@lovetaylorswiftjm]

I am 24 and I'm still here. How old are you lot?

[@lavenderchalcedony535]

My 2.5 year old son was diagnosed 2 weeks ago. I have been praying for hope every day. This video delivered exactly that. Thank you!

[@zstrobeck]

Bobbi Sullivan I am 25 years old and have DMD. The fact that your son is so young is great as it gives him time while new treatments/possible cures are being developed. There are a few drugs in trial to slow the progression of the disease and possibly cure it. Check out ptc-124 on google, this is one of the drugs in trial now. (it might be a good idea to take your son to a geneticist at a leading hospital for muscular dystrophy research to learn more about your sons condition.

[@shoppingGirl]

Bobbi Sullivan My son 3 1/2

[@latasharobinson1100]

Hang in there I know it's hard im in yr same position but I have a friend who gives me hope her sin has it as well and they said he wouldn't make it to 14 he's 18 so it definitely has given me hope for my boy

[@jamiedelbruegge2114]

I’ve always heard life expectancy for DMD was late teens so when I found out my grandson would have it I cried for all the things he would not get to accomplish or experience. But watching this has completely lightened my heart. 💖

[@janineschindler2966]

This was 2011 the year one of my son's died of dmd he was 25. I had 2 boys. My other son died 2014. He was 31 years old. I wish I could have been able to find some kind of support system. Someone to talk to when they were alive that really understood. Because unless you have this disease or work with someone with this disease ...you really do not know what it's like and can understand.

[@shoppingGirl]

This is a really awesome video, thank you so much for doing this and sharing. I needed this hope,

[@lic2kil007]

There is a man by the name of Johnny Lombardo living with his parents in Orange Co. California. He is in his mid 50's he has Duchenne. He is beaten the odds on how long you can live.

[@joselemus3079]

I will pray for all the kids in the world who has this disease like my nephew recently

[@cuteredpanda00]

@@joselemus3079 i have bmd

[@kantilalbhanushali7572]

@@joselemus3079 I like to inform you that we got good improvement in muscular dystrophy patients cases for further information please contact me on WhatsApp [phone].. Within a month you will find relief in pain and improvement in body movement

[@officialdrrahulsharma1343]

I am also a patient of duchenne muscular dystrophy but I am also a MBBS student (doctor ).I Am 20year old and still walking.

[@bhupeshswami]

Is it possible? BMD or DMD

[@jamellwashington3926]

I got it too in need of prayer

[@mahtazdin]

my son and brother has it too. i hope we can get through this together.

[@trevorsinclair9949]

jamell washington You’ve got mine!

[@batuhandemirel3787]

@martha You shouldn't have had a son, if your brother has DMD.

[@cuteredpanda00]

@@mahtazdin hello martha

[@latasharobinson1100]

I'll pray for you everyday. What else can I do to help you?

[@HanifKhan-ui7ht]

My grandson have been diagnosed with Duchesne muscular dystrophy he ten years of age and could hardly walk from Guyana 🇬🇾

[@azpta777]

whats the name of music? 53:55

[@virpaulsohi815]

My brother died due to DMD. Now my sister son has DMD

[@kantilalbhanushali7572]

I'm kantilal Bhanushali from madhapar Nava vaas Kutch Bhuj Gujarat India I like to inform you that we got good improvement in SMA DMD LGMD BMD patients cases with the help of acupressure massage therapy healing process power meditation and ayurvedic medicines for further information please contact me on whatsapp [phone]

[@latasharobinson1100]

Be strong

[@PBXAKSH09]

Your brother age

[@rabiamalik1195]

This video is amazing thankyou! But what i dont understand is that these people are going to college, got their Certificare/license and stuff but my brother has duchenne too and they said he cant go to college. Btw he got in a wheelchair 2,5years ago he is 18 now .. Like is that possible ?

[@junbh2]

I see this was posted 8 years ago but I hope your brother eventually found a way to get the education he wanted and I hope he's still OK and having a good life.

[@junbh2]

Whoever it was who told your brother that, shouldn't have said that.

[@stjohnssoup]

What’s happening now

[@hannachrustowska4032]

I would be very happy if there is someone who would be able to sell me that electric wheelchair for little money for my 14 years old grandson who cant walk since 2 years. I think whellchair like these could help him to live normally.

[@hannachrustowska4032]

If there is someone message me please on a mail [e-mail]

[@cuteredpanda00]

Here in the Philippines even if you have power chair you can't live normally people here will stare at you and mock you for getting md i have beckers md

[@kantilalbhanushali7572]

@@cuteredpanda00 if you are ready to spare about 5 hrs a day for one month then contact me on WhatsApp [phone]. Within a month you will find relief in pain and improvement in body movement

[@cuteredpanda00]

@@kantilalbhanushali7572 hmm scam?

[@kantilalbhanushali7572]

@@cuteredpanda00 dear if you know that anyone is muscular dystrophy patients tell them to contact me i will guide them what to do. If anyone ready to spare about 5 hrs a day for one month they will find relief in pain and improvement in body movement if they do regular then day by Day get more and more improvement

[@mariaalston8545]

Do you have a u tube page for Becker's Muscles Dystrophy

[@DefyingDystrophy]

I have Beckers Muscular Dystrophy and I am curing myself. Check out my channel.

[@mariaalston8545]

Beat Muscular Dystrophy wow

[@ivankoho7311]

I know this case is too hard and make many people be burden. But in my case..i surrender to lord Jesus. And i believe everything is gonna be ok. Jesus is the owner of life in the universe. Nothing is ever impossible for God. just believe in your faith. Because faith the size of a small seed can move mountains. pray, believe, do the best for Him and all will be beautiful in His time . In Jesus name,,!! Amen. God bless us 🙏.